research access to records containing protected health information a review of 2014 survey results
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Research Access to Records Containing Protected Health Information A Review of 2014 Survey Results. Emily R. Novak Gustainis, Head, Collections Services Center for the History of Medicine, Countway Library, Harvard Medical School [email protected]. About the Survey. - PowerPoint PPT PresentationTRANSCRIPT
Research Access to Records Containing Protected Health InformationA Review of 2014 Survey Results
Emily R. Novak Gustainis, Head, Collections ServicesCenter for the History of Medicine, Countway Library, Harvard Medical [email protected]
About the Survey
Maxwell Finland papers, H MS c153. Box 18, folder 5: Erythromycin and Ilosone, Food and Drug Administration: Ilotycin cases, 1952. Collection contains correspondence, pamphlets, articles, invoices,
notes, charts, photographs, and graphs supporting drug studies from the 1940s through the 1970s.
Oliver Cope papers, H MS c177: Box 6, folder: Q-Z. Contains Massachusetts General Hospital-related patient records on thyroid research, treatment, and surgical technique. Records include operation sheets, correspondence, reports, photographs
• Open four months (January – April 2014)
• 63 respondents• 50 opted to self-identify as:• A professor/instructor of history, the history of
medicine, or the history of science (44%)• A student (any field) (22%)• A physician or healthcare provider with an interest in
the history of medicine or science (16%)• A professor/instructor of another Humanities sub-
discipline or a different discipline (10%)• A researcher (no academic affiliation) (6%)• A librarian or archivist (2%)
Awareness of Collection Restrictions
59.65% (n=57) learned about the presence of restricted records for the majority of the collections they used (or were interested in using) from a librarian or archivist
77.37% percent (n=61) respondents have used finding aids that included information about whether or not patient or otherhealth-related records in the collection hadaccess restrictions
Variables
What are the “Most Useful” formats for archivists to identify?
1. Patient histories (91.67%)2. Case files3. Correspondence4. Patient questionnaires5. Patient summaries6. Consultation files7. Family medical histories8. Admission/registration record9. Diagnostic indices10.Photographs/medical imaging11.Informed consent records
(43.75%)
12. Autopsy records (40.43%)13.Lab notebooks14.Prescription books/logs 15.Research protocols16.Hospital policies17. Graphs and charts18. Surgical logbooks19. Microscope slides/specimens20. Billing information21. Genetic testing records22. Immunization records23. Insurance records (12.5%)
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