renal failure—who cares?
TRANSCRIPT
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Schweiker, however, rejected the proposals of his aides, intendingto maintain existing standards and expressing support for a strongFederal commitment to guaranteeing the safety and rights of morethan a million nursing home patients. After several scandals theneed for inspection cannot be denied. Reforms in the Medicaid andMedicare systems are also required, especially after the criticismthey received from Senator John Heinz on the discovery of rampantfraud and abuse. He found them mainly responsible for a 620% risein the costs of a hospital bed from 1965-80 due to the present systemof "reasonable cost" reimbursement. With the construction ofunneeded hospitals, and the excessive purchase and use of highlysophisticated equipment, the costs escalate with no one concernedto reduce them. In New York, a Deputy Attorney-General said thatof 75 hospitals inspected, about half are likely to face, or have faced,civil or criminal charges. Changes are needed, but not the hastilyconsidered ones that have immediately to be withdrawn.
THE DISUNITED STATES
Circumstances have no doubt changed since Lord Acton said ofthe U.S. in 1866 that "they had contrived a system of federalgovernment which prodigiously increased the national power andyet respected local liberties and authorities", yet the essentialproblems remain the same-in particular, the relationship betweenthe individual states and the Federal Government. The Presidenthas proposed to return many powers to the states, and so reduce theobligations of the Federal Government. This is a reversal oftendencies since 1917, but it is one that many legislators andgovernors would welcome so long as the financial implications wereto be made quite clear. The President’s proposal is that Medicareshould become a Federal concern, but that other welfare
obligations, food stamps, for example, should become a local affair.Experience in New York State has revealed, however, that if welfare
payments appear to be higher in one state than another, people willmove. If this were to occur in the case of food stamps, families mightsoon become malnourished. The Massachusetts Food and ResearchAction Center has already reported that earlier cuts have resulted insome children becoming malnourished, and the medical director ofthe comprehensive child health program of the Boston Children’sHospital has been quoted to this effect.The proposal deserves serious consideration, as does, indeed,
quite the opposite solution-namely that all welfare matters shouldbcome a Federal responsibility, leaving the states to handle many ofthe other concerns now Federalised.
CAPITAL CITIES WOES
If the capital cities of the wealthy nations are compared, they havelittle to boast about when judged on their health indices, at least bytheir rates of infant mortality. The rate in Washington is the highestof any U.S. city, despite the fact that, overall, the city has one of thehighest per caput incomes. The infant mortality rate was, in fact,higher than that reported from Jamaica and Costa Rica, not tomention Singapore, New Zealand, and Israel, and it rose by 10%from 1979 to 1980. It can be argued that the low rates in non-affluent societies show that better health does not depend oneconomic wealth. The high infant mortality rate is seen in othercities, and it is clear that the reasons for its existence are social, as thebulk of the births, in Washington at least, are to poor youngmothers, usually unmarried, who are, perhaps, ignorant or
incapable of attending clinics where they could get adequateantenatal care. Many of the infants are of low birth weight,especially among the black community, which comprises over 70%of the city’s population. Alcoholism, smoking, and the high rate ofseparation only worsen the picture. If this was the situation beforethe massive cuts in welfare programmes, it is not now likely toimprove.
Conference
RENAL FAILURE—WHO CARES?
DIALYSIS and transplantation are now routine treatmentsfor end-stage renal disease (ESRD). When will Governmentand the medical profession take action to improve the lowlevel of provision in the United Kingdom?At a multidisciplinary symposium sponsored by Travenol
Laboratories and held last month in Norwich, manyquestions were asked for which there seem to be few answers,either because of ignorance or because of unwillingness toface unpalatable truths. The British nephrologists whoparticipated, while enthusiastically welcoming theabandonment of arbitrary selection criteria for treatment,were sadly unable to offer tenable explanations as to why theprovision of treatment for patients in the U.K. with ESRDfalls so far behind that of comparable European countries andthe U.S.A., where, supposedly, the same selection criteriaexist and only patients with very severe systemic disease ororganic brain disease are excluded.The figure most often quoted for acceptance of new
patients onto dialysis and transplantation programmes eachyear is between 45 and 50 new patients per million totalpopulation.2 This figure excludes those over the age of 60years, and a more realistic figure, if these patients and allthose with serious coexisting disease are included, would beat least 150 cases per million population per annum or more.In Britain the corresponding acceptance rate for new patientslies somewhere between 25 and 30. Some nephrologists claimthat they do not turn away new patients and, in fact, have1. Renal failure-who cares? Parsons FM, Ogg C, eds. Symposium proceedings.
Lancaster; MTP. (in press).2. Renal failure A priority in health? London: Office of Health Economics, 1978
room to accept more. However, this simply reflects theuneven geographical distribution of facilities and it should beunreasonable to expect somebody to travel more than about50 miles for regular hospital dialysis.CAPD
Although the transplantation rate for kidneys (and other organs) isfar too low,3 the real problem lies in failure to accept new patientsfor some form of dialysis treatment. This position has now
improved slightly with the advent of continuous ambulatoryperitoneal dialysis (CAPD), although the drop-out rate from thisform of treatment, particularly as a result of peritonitis, can be veryhigh.4 CAPD was greeted with much enthusiasm as a relativelycheap and effective form of dialysis, but there are serious doubts asto whether it will be a viable long-term treatment, comparable withhaemodialysis- the "gold standard". Dr Roger Gabriel (St Mary’sHospital, London) suggested that CAPD training could be carriedout in district general hospital by non-specialist staff and that, inthis way, more patients could be accepted for treatment. However,Dr Ram Gokal (Manchester), amongst others, disagreed. He saidthat this would be a very dangerous move since CAPD can pose asmany practical problems as haemodialysis and to consider it an
essentially easier treatment option and take it out of the hands ofspecialist medical staff would be a recipe for disaster. Moreover,back-up haemodialysis facilities must be readily available for CAPDpatients.
Costs
What of the economic arguments and how far do these determineacceptance of patients for treatment? Dr Guido Pincherle,representing the D.H.S.S., said that in a system such as the N.H.S.,where patients are not charged at point of use, costs are difficult toestimate. Current costing for the different treatments for ESRD isbased upon a surprisingly small D.H.S.S. survey of 72 patients
3. Calne RY What has happened to charity? Br Med J 1982; 284: 998-99.4. Chan MK, Baillod RA, Chuah P, et al. Three years’ experience of continuous
ambulatory peritoneal dialysis. Lancet 1981; i: 1409-12.
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receiving the four possible treatments, carried out in 1980. Resultsfrom only one unit are available and, based on November, 1981figures, give annual costs of £ 10 600 for hospital haemodialysis,7000 for home haemodialysis, and ,?200 for CAPD.’Funds for renal units are allocated from the budgets of regional
health authorities, and this figure will vary greatly. Individualcosting is therefore not very meaningful when it comes to explainingwhat happens to patients who are either turned down for treatmentor never offered it in the first place. Since more money is needed andthe Government is not providing it, then maybe there is somethingmore to this end that nephrologists and other renal unit staff couldbe doing. At present this is largely left to local and national patients’organisations. Nephrologists must realise that their responsibilitygoes far beyond either clinical or academic involvement, althoughthere must be many who would not wish to believe it. They, after all,said Dr Vic Parsons (King’s College Hospital, London), mustconfront the unfortunate patient-or perhaps they have evolvedsubtle ways of getting round the whole distasteful business?Hospital doctors and general practitioners must also accept some
of the blame. All patients with progressive renal disease should bereferred for specialist assessment-this at least they must begranted. No-one has a legal right to treatment under the N. H.S., andif it is refused the patient’s only recourse ultimately is to theOmbudsman.The treatment of renal failure in the U.K. has reached a
watershed. Patients have been let down by those supposedlyworking for them and it is now a sad fact that they must bettereducate themselves and take positive action in order to gettreatment. "Shopping around" to different renal units in order to beaccepted for dialysis is not uncommon, but should not be necessary.
Patient participation in the symposium was welcome. Besidespatient delegates in the audience, the chairman of the NationalFederation of Kidney Patients’ Associations and three patients eachrepresenting a different mode of treatment (transplantation,haemodialysis, and CAPD) presented short papers reflecting theirown experiences. It was a pity that there were not more of theprevious day’s medical speakers present to listen to them.
TransplantationIn the U.K., according to Prof. Roy Calne (Cambridge), very far
from enough kidneys are transplanted.5 Transplantation offers thehope of indefinite renal function, full rehabilitation, and return offertility, and must be considered the treatment of choice.Graft survival has been improving slowly over the years. HLA
matching and preoperative blood transfusion contribute to this, but,as Mr Richard Wood (Oxford) maintained, it is becoming clear thatgood DR typing and, perhaps, platelet transfusions may produceeven better results. Steroids are now given in low dosage in manyunits as part of a standard immunosuppressive regimen; but withthe recent synthesis ofcyclosporin A and the improving results withits use, free from disfiguring side-effects, the future is lookingbrighter. So, the kidneys are there-why are they going into hospitalincinerators instead of into those who are dying while waiting forthem? It has been said that if carriage of donor cards were betterpublicised the problem would be quickly solved. Campaigns in thepast to encourage this have produced a good public response, but arenot the whole answer. Kidneys most commonly become availablefor transplantation in the emergency departments and intensivecare units of general hospitals, and it must be up to a member of themedical staff to think of the possibility of transplantation andthen to set the wheels in motion. This is not happening, andprincipally for two reasons. Firstly, a lack of awareness that theorgans are needed or that they could be used-the criteria fordetermining this are well documented.6 Secondly, apathy and areluctance to approach distressed relatives; donor cards can helphere, but the permanent solution can only be the better education ofmedical students and motivation of medical staff-an importantfunction of transplant coordinators, the newest and potentially oneof the most useful members of the transplant team.
5. U.K. Transplant Service Review 1981 Bristol: U.K. Transplant Service.6. Robson JG. Brain death Lancet 1981; ii: 365.
Nearly 20 years have passed since the N.H.S. embarked ona programme of renal replacement treatment intended
ultimately to provide it for all those in need.7 This venturewas an example to the rest of Europe, but the U.K. has nowbecome a "poor relation". Dr Frank Parsons (Leeds), an elderstatesman of British nephrology, issued a challenge to theD.H.S.S.: a solution must be found quickly-within weeks ormonths, not years.
7. Knapp MS. Renal failure-dilemmas and developments. Br Med J 1982; 284: 847-50.
In England Now
The best salesman I ever encountered was a hospital gardenerwho bred pedigree dogs as a supplementary source of income. Whena family appeared to buy a pup, the litter was quickly designated.Two were called ’show’ dogs, one was the ’runt’ and the rest werereferred to simply as ’pets’. The price was scaled accordingly. At theviewing, the gardener let it be known that he thought an ordinaryhouse pet would meet their needs. A show dog was not really for thelikes of them. This repeated remark invariably made the father buythe most expensive animal available. Eventually only two were left:the runt and one destined for Crufts. By using the same invertedsnob technique, the latter was easily disposed of. The last of thelitter was freely admitted to be not fit for showing. However, hesaid, it had such a lovable personality that his wife had demanded itfor herself. He could only let it go for an enhanced sum. The pup’sattractive character was emphasised by the way it scamperedforward to lick his fingers when he appeared (they had previouslybeen dipped in honey). No child could resist it.His spiritual colleague was a senior consultant when I was but a
medical pup myself. One day, through a series of misunderstand-ings, he removed a small boy’s tonsils and adenoids instead of thecongenital hernia for which he had been admitted. Panic ranthrough the administrative block, but the great man was unruffled.Leave it to me, he said. He met the lad’s father and after a short time
they parted, with the parent shaking him by the hand, thanking himprofusely and swearing he would not say a thing to a soul. "How didyou do it?" asked the hospital secretary. "Quite simply," replied thesurgeon. "I told him that when I examined the child, his tonsils andadenoids were so bad that they had to come out at once. I insisted hebe put at the top of the year long waiting list but, by jumping thequeue as I did, I was placed in a difficult position with my colleagues- and heaven only knows what would happen if those on thewaiting list ever found out. I will, of course, repair the hernia in afew months’ time." Pups and tonsils, it’s all in how you do it.
* * * ’
Giles was definitely in shock when I met him outside the hospital.Do you remember, he said, how it was when a consultant was calledinto the ward for an opinion? Did I remember? The patient had to beprepared, the bed and locker made tidy, and the instrument tray,covered with a chaste white cloth, placed close to hand. Sister, ofcourse, had to be placated. As the junior doctor I had to memorisethe leading features of the complaint, have the case notes ready, and,most important, make sure they were up to date. The visitor had tobe attended upon, from escorting him to the bedside to holding thetowel when finally he washed his hands. The last feature of theceremony was to walk with him to the door of the ward while he
dropped pearls of wisdom before me. It was quite a performance.Giles’s chagrin was occasioned by a visit to a distant ward. He had
been asked to give an opinion on a patient with rectal tenesmus. Heentered the ward at the appointed time but no-one was there to greethim. Eventually he traced the duty doctor to a small room where hereposed in a bright red open necked shirt, blue jeans, and sandals, allcovered in a loose-fitting white coat. He finally remembered whyGiles had been summoned and, after finishing his coffee, took Gilesinto the ward. He looked around the patients clustered beside thetelevision set and, in a loud voice called out, "Hands up the guy withthe sore backside!" The future is not what it used to be, said Giles, asI took him to the cafeteria for a resuscitative cup of tea.