registries presentation
TRANSCRIPT
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Registries
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Introduction
2,500 years ago
•
Hippocrates (460 - 377 BC) – occurrence of disease
– environmental influences
•
Distinguis !et"een diseases tat are – #visited upon# a population (epidemic)
– #reside "itin# a population (endemic)$
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%at&s a 'egistr
• *n organi+ed sstem for te collection, storage,
retrieval, analsis, and saring of information on
persons "o ave a disease, a condition tat
predisposes to te occurrence of a ealt-related event, or prior eposure to su!stances
(or circumstances) .no"n or suspected to cause
adverse ealt effects$ – use for surveillance and researc – purel descriptive and no intervention
– not a data!ase or medical record
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'egistries and HI/
• HI/CH *ct of 1002 – *merican 'ecover and 'einvestment *ct
– *ccelerate te adoption of ealt information
tecnolog (HI/)
• C – use te most advanced ealt information
tecnolog – use te electronic ecange of ealt
information
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Benefits of 'egistries
• 5agnitude of a pro!lem
• Incidence of disease
• /rends of disease over time• Identifing groups at ig ris.
• Healt effects of specific eposures
• ource of clinical trials and
conducting researc
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CAIR~SDIR
ecure and confidential& saring of an
individuals immuni+ations
8atient, parents, and doctors can see info%at sots tat person as received
%ic sots are needed
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'egistries and 5eaningful 9se
Stage 1 - Menu Objective
– Capa!ilit to su!mit
electronic data to
immuni+ation registries
– 8erformed at least one
test of certified H'
tecnologs capacit to
su!mit electronic data
to immuni+ationregistries
Stage 2 - Core Objective
– Capa!ilit to su!mit
electronic data to
immuni+ation registries
– uccessful ongoing
su!mission of
electronic immuni+ation
data from Certified H'
/ecnolog to animmuni+ation registr
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'egistr tandards
• Immuni+ations – H:7 tandard
• vaccines administered
– H:7 Implementation pecifications• immuni+ation messaging
• ffice of te ational Coordinator for
Healt Information /ecnolog&s (C) – ffice of Interopera!ilit and tandards (I)
• meaning, structure, transport, securit, services
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Companies;tandards
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Barriers and Callenges
• Compleit and acceptance of tecnolog
• Developing te managerial and tecnical
capa!ilit to implement
• 'elia!ilit of te data
• "nersip of te data
•
:egal issues• ecurit and accessi!ilit
• Cost of implementing and maintaining
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'egistr =uture /rends
• Better patient and outcome trac.ing
• Improved "or.-flo" efficienc
•
Higl functional, multi-disease tools• Data from eisting H'
• 9se registries for proactive population
ealt management• 8atient-centered interactions and
participation
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Defense and >eterans Brain In?ur Center
• 'egistr and trac.ing militar personnel
and veterans "it /BI$
• Clinicians report to a central registr$
• 5edical centers collect emergenc
department and outpatient visits$ – o!tain appropriate services
– receive follo"-up clinical contacts, and
– receive appropriate educational materials$
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/a.ea"as
• *n organi+ed sstem for te collection, storage, retrieval,analsis, and saring of information – not a data!ase or medical record
– use latest and most advance HI/ @ HI
– source of clinical trials and conducting researc
– secure access for patient, parents, and doctors
• 5eaningful 9se – successful ongoing su!mission of electronic data
• tandards – meaning, structure, transport, securit, services
• Callenges – developing te managerial and tecnical capa!ilit to implement
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:in.s
HH$gov• Department of Healt and Human ervices
HealtI/$gov
• Healt Information /ecnolog
C5$gov• Centers for 5edicare @ 5edicaid ervices
H' - 5eaningful 9se (
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mpo"ering 8atients