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Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director of Program Design and Implementation

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Page 1: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

Reforming State Long-Term Care Services and Supports Through Participant Direction

NASHP State Health Policy ConferenceOctober 2010

Suzanne CrispDirector of Program Design and

ImplementationNRCPDS

Page 2: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

Changes in Federal Law, Regulation, and Policy

2008 Veterans-Directed Home and Community -Based Care

Program

2001 New Freedom Initiative

2006 Deficit Reduction Act

2006 Reauthorization of Older Americans Act

2007 Aging and Disability Resource Center Program

2008 Community Living Program

2

Page 3: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

WAAK

Hawaii

OR

CA

NV

ID

MT

WY

UT

AZ

CO

NM

TX

OK

KS

NE

SD

ND MN

IA

MO

AR

LA

MS

TN

KY

IL

WI

MI

INWV

AL GA

FL

SC

NC

VA

PA

NY

DC

MD

DE

NJ

RI

MA

NH

VT

ME

OH

CT

Prevalence of Participant Direction: 1970’s

3

Page 4: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

WAAK

Hawaii

OR

CA

NV

ID

MT

WY

UT

AZ

CO

NM

TX

OK

KS

NE

SD

ND MN

IA

MO

AR

LA

MS

TN

KY

IL

WI

MI

INWV

AL GA

FL

SC

NC

VA

PA

NY

DC

MD

DE

NJ

RI

MA

NH

VT

ME

OH

CT

4

Prevalence of Participant Direction: 1980’s

Page 5: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

WAAK

Hawaii

OR

CA

NV

ID

MT

WY

UT

AZ

CO

NM

TX

OK

KS

NE

SD

ND MN

IA

MO

AR

LA

MS

TN

KY

IL

WI

MI

INWV

AL GA

FL

SC

NC

VA

PA

NY

DC

MD

DE

NJ

RI

MA

NH

VT

ME

OH

CT

5

Prevalence of Participant Direction: 1990’s

Page 6: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

WAAK

Hawaii

OR

CA

NV

ID

MT

WY

UT

AZ

CO

NM

TX

OK

KS

NE

SD

ND MN

IA

MO

AR

LA

MS

TN

KY

IL

WI

MI

INWV

AL GA

FL

SC

NC

VA

PA

NY

DC

MD

DE

NJ

RI

MA

NH

VT

ME

OH

CT

6

Prevalence of Participant Direction: 2000’s

Page 7: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

Participant Direction Survey Methods Three Part Data Collection

Secondary review of existing program information State websites Medicaid waiver applications

Brief survey on program characteristics Confirm fields of information found in secondary

review Obtain information on program population,

structure, eligibility requirements, programmatic restrictions

Brief interview on program procedures Participant engagement, FMS, worker registries,

and budget authority (if applicable)

Page 8: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

(Very) Preliminary Findings 300 programs identified with some

level of participant direction Does not include VD-HCBS programs Possible this number will drop as survey

information is analyzed Majority are serving non-elder

population Majority are Agency with Choice

models of participant direction

Page 9: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

9

Growth of Budget Authority ProgramsWA

AK

Hawaii

OR

CA

NV

ID

MT

WY

UT

AZ

CO

NM

TX

OK

KS

NE

SD

ND MN

IA

MO

AR

LA

MS

TN

KY

IL

WI

MI

INWV

AL GA

FL

SC

NC

VA

PA

NY

DC

MD

DE

NJ

RI

MA

NH

VT

ME

OH

CT

15 Cash & Counseling States

16 Additional States with Budget Authority Programs

Page 10: Reforming State Long-Term Care Services and Supports Through Participant Direction NASHP State Health Policy Conference October 2010 Suzanne Crisp Director

10

Growth of VD-HCBS Program WA

AK

Hawaii

OR

CA

NV

ID

MT

WY

UT

AZ

CO

NM

TX

OK

KS

NE

SD

ND MN

IA

MO

AR

LA

MS

TN

KY

IL

WI

MI

INWV

AL GA

FL

SC

NC

VA

PA

NY

DC

MD

DE

NJ

RI

MA

NH

VT

ME

OH

CT

2008 – 7 States

2009 – Grew by 3 states for a total of 10

2010 – Expect to grow by 18 states for a total of 28