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Reducing the Use of Seclusion and Restraint: A National Initiative for Culture Change and Transformation Policy Summit Policy Summit Roman Hruska Law Center Roman Hruska Law Center Friday, October 1, 2004 Friday, October 1, 2004 Lincoln, Nebraska Lincoln, Nebraska Kevin Ann Huckshorn RN, MSN, CAP, Kevin Ann Huckshorn RN, MSN, CAP, ICADC ICADC Director, National Technical Assistance Center Director, National Technical Assistance Center Alexandria, Virginia Alexandria, Virginia

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Reducing the Use ofSeclusion and Restraint:

A National Initiative for Culture Change and Transformation

Policy SummitPolicy SummitRoman Hruska Law CenterRoman Hruska Law Center

Friday, October 1, 2004Friday, October 1, 2004Lincoln, NebraskaLincoln, Nebraska

Kevin Ann Huckshorn RN, MSN, CAP, ICADCKevin Ann Huckshorn RN, MSN, CAP, ICADCDirector, National Technical Assistance CenterDirector, National Technical Assistance Center

Alexandria, VirginiaAlexandria, Virginia  

22

Outline Outline

• Historical Overview• Current Knowledge/Theories • Understanding the S/R Process• Six Core Strategies for S/R Reduction©• Developing a S/R Reduction Plan• Closing Comments

33

Brief Historical OverviewBrief Historical Overview

• 1996: PA S/R Project starts• 1998: Hartford Courant Series • 1999: GAO Report (Congress)

NASMHPD MD S/R Report (s)• Prevention Focus

• 2000: CWLA Project starts• 2001: Curie to SAMHSA

“Roadmap” – NAC/SMHA

44

Brief Historical OverviewBrief Historical Overview

• 2002: NASMHPD Training Curriculum created

National “Call To Action” in DC held• 2003: CMHS National Action Plan for S/R

NTAC Training-26 state delegations

APA/APNA/NAPHS/CWLA make recs

New Freedom Report -Transformation• 2004: State Incentive Grant Proposals

Large Eval project planned (HSRI)

55

What We Know at this Point: What We Know at this Point:

• The reduction and elimination of S/R is possible

• Facilities through country have reduced use considerably without additional resources

• This effort does take tremendous leadership,

commitment, and motivation

66

What We Know at this PointWhat We Know at this Point

• Reducing S/R requires a different way of looking at the people we serve and the staff who serve them

• Although there is no one way to do this, best practice core strategies have been identified

77

What We Know at this Point:What We Know at this Point:• However, change on local level is slow

• The reduction of seclusion and restraint requires a CULTURE CHANGE that resonates with recovery and the transformation of our mental health systems.

• For this to happen we need to “change the way we do business”

88

WHY?WHY?

• Healthcare systems including BH continue to be fragmented

• Not customer friendly or person-centered

• Not outcome oriented

• Resources are wasted

• Poor communication between providers

• Practices not based on evidence

99

Facilitating Culture Change Facilitating Culture Change in Healthcare Organizationsin Healthcare Organizations

• IOM describes new rules to transition the redesign and improvement in care (IOM, 2001)

– Continuous healing relationships– Customized to individual needs/values– Consumer is source of control– Free flow of information/transparency– Reducing risk to ensure safety– Anticipation of needs– Decrease in waste– Use of Best Practices

1010

Facilitating Culture Change in MHFacilitating Culture Change in MH The New Freedom Commission The New Freedom Commission

• A Call for System Transformation• System Goal=Recovery for everyone• Services/supports are consumer/family centered• Focus of care must increase consumer’s ability

self manage illness and build resiliency• Individualized Plans of Care critical• Consumers and Families are full partners

(NF Commission, 2003)

1111

Reducing S/R is a cornerstone to Reducing S/R is a cornerstone to creating recovery oriented SOCcreating recovery oriented SOC

• Decreases wasted resources• Improves safety for staff and consumers• Teaches respect and negotiation skills• Moves from focus on control to one of partnership and empowerment• Creates warm environments• Facilitates treatment• Avoids re-tramatization

1212

What are the Culture Change What are the Culture Change Constructs for Reducing S/R?Constructs for Reducing S/R?

• Leadership theory

• Public Health Prevention Approach

• Principles Facilitating Recovery

• Trauma Informed Care– Prevalence– Neurobio/psych effects

• Consumer and staff self-reports valued

1313

The Public Health Prevention ModelThe Public Health Prevention ModelBrief OverviewBrief Overview

• The Public Health Approach is a model of disease prevention and health promotion and is a logical fit with a practice issue such as S/R

• This approach I.D.’s contributing factors and creates remedies to prevent, minimize and remedy the problem if it occurs

• It reconciles our focus on “safer use” to preventing use in the first place

1414

The Public Health Prevention ModelThe Public Health Prevention Model

• Primary Prevention– Interventions that create therapeutic environments

that avoid or minimize conflicts

• Secondary Prevention – Interventions designed to immediately respond to and

resolve conflicts when they occur

• Tertiary Prevention– Interventions used post S/R designed to mitigate

effects, analyze the event and take corrective action

1515

RecoveryRecovery PrinciplesPrinciplesBrief OverviewBrief Overview

• Goal of the NF Commission system Transformation to Recovery Based SOC– Individuals can recover and have a

meaningful life in their communities– Focused on adults to date but concepts apply

to kids– Primary concepts include the avoidance of

labeling, offer hope and promote a highly individualized, inclusive treatment process

– SOC that facilitate recovery avoid coercion

1616

Principles of Trauma Informed Principles of Trauma Informed Systems of CareSystems of CareBrief OverviewBrief Overview

• Definition– Mental Health Care that is grounded in

and directed by a thorough understanding of the neurological, biological, psychological and social effects of trauma and violence on humans and that understand the significance in the prevalence of these experiences in children and adults who receive mental health services.

1717

Exposure to TraumaExposure to TraumaMental Health PopulationMental Health Population

• 90% of public mental health clients have been exposed

(Muesar et al., in press; Muesar et al., 1998)

• Most have multiple experiences of trauma(Ibid)

• 34-53% report childhood sexual or physical abuse

(Kessler et al., 1995; MHA NY & NYOMH 1995)

• 43-81% report some type of victimization(Ibid)

1818

Exposure to TraumaExposure to TraumaMental Health PopulationMental Health Population

• 97 % of homeless women with SMI have experienced severe physical and sexual abuse - 87% experience this abuse both as children and as adults (Goodman et al., 1997)

• A recent study in a SC CMHC found a prevalence rate of 91% for a hx of trauma (Cusack, Frueh & Brady, 2004)

• Majority of adults diagnosed BPD (81%) or DID (90%) were sexually or physically abused as children (Herman et al., 1989; Ross et al., 1990)

Trauma in American Children

•3.9 million adolescents have been victims of 3.9 million adolescents have been victims of serious physical assault, and almost 9 million serious physical assault, and almost 9 million have witnessed an act of serious violence have witnessed an act of serious violence (Kilpatrick et al., 2001)

•In 1998, 92% of incarcerated girls reported In 1998, 92% of incarcerated girls reported sexual, physical or severe emotional abuse in sexual, physical or severe emotional abuse in childhood childhood (DOC, 1998)

•Each year between 3.5 and 10 million children Each year between 3.5 and 10 million children witness the abuse of their mother – up to half are witness the abuse of their mother – up to half are victims of abuse themselves victims of abuse themselves (Edelson, 1999)

•3 million children were suspected of being victims 3 million children were suspected of being victims of abuse and/or neglect in 1998 of abuse and/or neglect in 1998 (Mazelis, 1999)

2020

Trauma Informed Care Systems• Integrate philosophies of care that guide all

clinical interventions• Are based on current literature • Are inclusive of the survivor's perspective• Are informed by research and evidence of

effective practice• Recognize that coercive interventions cause

traumatization and re-traumatization and are to be avoided

Key Principles

(Fallot & Harris, 2002; Ford, 2003; Najavits, 2003)

2121

Trauma Informed Care SystemsTrauma Informed Care SystemsKey FeaturesKey Features

• Recognition of the high rates of ASD, PTSD and other psychiatric disorders related to trauma exposure in the people we serve

• Includes routine and thoughtful trauma assessment

• Early and rigorous diagnostic evaluation and consideration of trauma in adults/kids with complicated, treatment-resistant illness

(Fallot & Harris, 2002; Cook et al., 2002; Ford, 2003; Cusack et al.)

2222

Trauma Informed Care SystemsTrauma Informed Care SystemsKey FeaturesKey Features

• Recognition that mental health treatment environments are often traumatizing, both overtly and covertly

• Recognition that the majority of mental health staff are uninformed about trauma and its sequelae, and do not recognize its significance in their daily work

(Fallot & Harris, 2002; Cook et al., 2002; Ford, 2003; Cusack et al.; Jennings, 1998; Prescott, 2000)

2323

Applying the Theories to ReduceApplying the Theories to Reduce S/R S/R

• Organizational Leadership must decide to take on this challenge

• Often requires an exercise in values clarification

• Helpful to review organizational mission statement and philosophy of care and then analyze the fidelity of these in daily operations

2424

Staff need to know Staff need to know WhyWhy they are reducing S/R?they are reducing S/R?

• To be consistent with our mission to promote dignity, autonomy, respect and recovery

• To improve the safety of our persons served and our staff

• To avoid causing trauma or re-enacting traumatic experiences

• To instill a culture of caring, collaboration and partnership vs. one of coercion and control

2525

KnowKnow why you are reducing why you are reducing Seclusion & Restraint?Seclusion & Restraint?

To at least

• Do No Harm…

2626

How do we reduce S/R use? How do we reduce S/R use?

• TO START: Develop a S/R Reduction Action Plan

Action Plan Essential Framework

Prevention-Based ApproachContinuous Quality Improvement Principles Individualized for the Facility or AgencyKnow the process you wish to change

2727

Understanding The S/R ProcessUnderstanding The S/R Process

Step 1: Has a treatment environment been created where conflict is minimized (or not)?

Step 2: Could the trigger for conflict (disease, personal, environmental) have been prevented (or not)?

Step 3: Did staff notice and respond to events (or not)?

2828

The S/R ProcessThe S/R Process

Step 5: Did Staff choose an effective intervention (or not)?

Step 6: If the Intervention was unsuccessful was another chosen (or not)?

Step 7: Did Staff order S/R only in response to imminent danger (or not)?

Step 8: Was S/R is applied safely (or not)?

2929

The S/R ProcessThe S/R Process

Step 9 : Was the Individual monitored safely (or not)?

Step 10: Was Individual released ASAP (or not)?

Step 11: Did Post-event activities occur (or not)?

Step 12: Did Learning occur and was it integrated into the tx plan and practice (or not)?

3030

Adopt Adopt Six Core StrategiesSix Core Strategies ©©(as a menu)(as a menu)

• Leadership Toward Organizational Change• Use Data To Inform Practices• Develop Your Workforce• Implement S/R Assessment and Prevention

Tools• Actively recruit and include consumers and

families • Make Debriefing rigorous

(Ibid)

3131

11stst Core Strategy: Leadership Core Strategy: Leadership

I. Leadership Toward Organizational Change

• Mandatory Component ***• Create the Vision/Philosophy • Develop the Plan, make assignments• Find the Champions• Elevate Visibility and oversight• Be Accountable• Reward Successes

3232

11stst Core Strategy: Leadership Core Strategy: LeadershipKey StrategyKey Strategy

Elevate oversight of all S/R Events• Called “Witnessing”• Refers to 24-7 off site executive level on call

response (by phone) to each event• Demonstrates importance of event• Executive role is to ask “ Why” questions• Assigns new responsibilities to all

3333

22ndnd Core Strategy: Use of Data Core Strategy: Use of Data

II. Use Data To Reduce Use• Gather baseline data by event/hours

(6 m to 1 yr)• Set realistic goals• Gather data by

unit/day/shift/time/age/dx/gender/ race/individuals involved/MD/DOA

• Post on units monthly

3434

22ndnd Core Strategy: Use of Data Core Strategy: Use of Data

Use Data To Reduce Use• Monitor Progress• Discover new best practices• Identify emerging S/R champions• Target certain units/staff for training• Create healthy competition • Assure that everyone knows what is

going on

3535

33rdrd Core Strategy: Core Strategy: Workforce DevelopmentWorkforce Development

III. Determine Workforce Development Activities

Integrate S/R Reduction in HRD Activities• New Hire procedures• Job Descriptions and Competencies• Performance Evaluations• New Employee Orientation• Annual Reviews

3636

33rdrd Core Strategy: Core Strategy: Workforce DevelopmentWorkforce Development

Staff will require education on key concepts:

• Common Assumptions about S/R• Experiences of Staff and Consumers with S/R• The Neurobiological/Psych Effects of Trauma• Creating Trauma Informed Systems and

Services• Principles of Recovery• Building non-coercive relationships• Use of S/R Reduction Tools (violence,

death/injury, de-escalation, trauma etc)

3737

33rdrd Core Strategy: Core Strategy: Workforce DevelopmentWorkforce Development

Note about S/R Application Training

Very important while reducing useSenior S/R Champions need to experience

whatever S/R application training you are providing

• Empower staff to question rules, policies and procedures and to make decisions. THIS MAY BE A BIG CULTURE CHANGE!

• Reward Excellent Practice

3838

44thth Core Strategy: S/R Tools Core Strategy: S/R Tools

IV. Review and Implement S/R Prevention Tools• Risk for Violence and S/R Use • Trauma Assessment – Risk history• Risk for Death and Injury• Use of Safety Plans- identify

triggers/preferences

3939

44thth Core Strategy: S/R Tools Core Strategy: S/R Tools

Review and Implement S/R Prevention Tools• Use of comfort/sensory rooms • Use of Language• Building Relationships• Training Guidelines (De-escalation

models)• Effective Treatment Activities

4040

55thth Core Strategy: Debriefing Core Strategy: Debriefing

V. Debriefing Specifics

• Define What Debriefing Is and What it is Not

• Implement both types of Debriefing Acute- immediate post event response gather info, manage milieu

Formal- rigorous problem solving

R

4141

55thth Core Strategy: Debriefing Core Strategy: Debriefing

• Run by uninvolved senior staff (admin liaison)

–Include the consumer–Include the staff–Entire treatment team

4242

55thth Core Strategy: Debriefing Core Strategy: Debriefing

• Document Findings and follow-up

• Use root cause analysis steps

• Non-punitive approach (be consistent)

• Goal is to find out what happened, mitigate and how to prevent reoccurrences

• New info should change practice

4343

66thth Core Strategy: Core Strategy: Full Consumer InclusionFull Consumer Inclusion

VI. Consumer/Family Inclusion

• Inclusion-MAKE IT HAPPEN!

• Clarify Roles for All

• Value Information Transparency• “Nothing about us without us”

4444

66thth Core Strategy: Core Strategy: Full Consumer InclusionFull Consumer Inclusion

Family/Consumer Inclusion in S/R Action Plan, at all levels • Hire ex-consumers/family members as

staff members, appoint volunteers• Allow access to information• Use to interview people post-event• Attend meetings-all levels• Empower participation and abilities

4545

NTAC S/R Training Evaluation - 2003NTAC S/R Training Evaluation - 2003

• National Executive Training Institutes• SAMHSA/CMHS Funded• Pre and post S/R Data Evaluation• First 12 states trained • 6-12 month pre-training data and 3-6

month post-training data compared• Very preliminary• Not studied as to change “why’s”

4646

NTAC S/R Training Pre/Post DataNTAC S/R Training Pre/Post Data(NRI, 2003)(NRI, 2003)

• 5 of 8 hospitals showed reduced hours of restraint,

• 7 of 8 had fewer consumers restrained, • 5 of 7 had fewer restraint events,• 5 of 7 showed a reduction in seclusion

hours,• 6 of 7 had fewer clients secluded, and• 6 of 6 had fewer seclusion events.

(HSRI Fast Facts, 2004)

4747

NTAC S/R Training Pre/Post DataNTAC S/R Training Pre/Post Data(NRI, 2003)(NRI, 2003)

• The data also showed that S/R hours were reduced by as much as 79%, the proportion of consumers in S/R was reduced by as much as 62%, and the incidents of S/R events in a month were reduced by as much as 68%.

(HSRI Fast Facts, 2004)

4848

Seclusion/Restraint Reduction Seclusion/Restraint Reduction Final CommentsFinal Comments

• Lowering the risk of S/R use can occur at almost every step

• Focus on Prevention and Improved Safety• The strategies outlined here are designed

to assist in implementing a culture change that reduces use, mitigates harm and promotes safety for all.

• An important cornerstone toward changing our cultures

4949

Seclusion/Restraint Reduction Seclusion/Restraint Reduction Final Comments Final Comments

• S/R Reduction is a Leadership responsibility • Develop leaders at all levels• Develop a facility specific Action Plan• Learn and revise plan as you go• Change is challenging, takes time• Consumers, families and advocates know a

lot, learn from them

5050

Contact InformationContact Information

Kevin Ann Huckshorn

Director, Office of Technical Assistance

National Association of State Mental Health Program Directors

66 Canal Center Plaza, Suite 302

Alexandria, VA 22314

(703) 739-9333 ext. 140

[email protected]