record keeping. importance of record keeping success for monitoring kt greatly relies on the data...
TRANSCRIPT
Record Keeping
Importance of Record Keeping
Success for monitoring KT greatly relies on the data recorded by caregivers
Daily Diary Ketone and Specific Gravity
Ketones ComplianceCorrelation to seizure control
Specific Gravity Hydration status
Daily Diary Ketone and Specific Gravity Records
Check twice per day (am/pm) Tips:
If you child wears diapers try placing a cotton ball in the center of the diaper to catch the urine, then squeeze the urine onto the multi-stick
Check reading on multi-stick after indicated time on package Checking the multi-stick after a long period of time may give a false
reading. Keep multi-sticks in a dry place
Humidity and moisture can affect their accuracy.
Daily Diary Seizure Records
If seizures are not seen for a day record “0” Don’t use terms such as “many, several, occasional,
few, or all day” Neurologists will classify type, you can describe the
seizure/seizures in your own words
Sample Daily Diary Medication Records
Record all medication and supplements and corresponding dosages when you begin the therapy.
It is not necessary to record them everyday but make sure to record any changes that are made.
How to Record Other Issues
Record all GI issues including nausea, vomiting, diarrhea, constipation
Number of bowel movements and any illness
What is a Diet Recall?
Diet recalls consist of everything your child has eaten in a 24-hour period
Assign letters to each of meal Write the corresponding letter to the meal
your child ate on the records
How will Diet Recalls benefit my child? Since it is not known why KT can decrease seizure
frequency, we hope that this investigation will give us further insight into the mechanism behind the diet.
As we learn more about why the diet works, it is possible to tailor meals to increase effectiveness of KT.
We expect that this will not only help your child, but help every child on KT.We can learn from your child’s success and help other
children improve their seizure control, and vice versa.
Sample Daily Diaries
Sample Daily Diaries
Use of Records
Seizure records,medication records will be graphed and used to analyze progress on therapy
Ketones/SG records will be graphed with total seizures to see if there is a relationship
Diet Recalls are diet analyzed by the Nutrition Data System for Research (NDSR)This database will give us information on over 170
different types of nutrients and indicesNutritional analyses can be compared to your child’s
seizure records
0
100
200
300
400
500
600
2/22/2008 6/1/2008 9/9/2008 12/18/2008 3/28/2009 7/6/2009
Sei
zure
Poi
nt T
otal
Date
Daily Diaries Seizure Point Totals Graph
Daily Diaries Mild PT Seizures Daily Diaries Mild-Moderate PT Seizures
Daily Diaries Moderate PT Seizures Daily Diaries Moderate -Severe PT Seizures
Daily Diaries Severe PT Seizures Seizures Point Total
Initiation: 03/17/2008
-100.0
0.0
100.0
200.0
300.0
400.0
500.0
600.0
2/22/2008 6/1/2008 9/9/2008 12/18/2008 3/28/2009 7/6/2009
Sei
zure
Per
cent
age
Date
Daily Diaries Seizure Percentage Graph
Daily Diaries Seizure Percentage
Initiation: 03/17/2008
07/04/2008-07/11/2008 Off Diet
-100.0
0.0
100.0
200.0
300.0
400.0
500.0
600.0
0
20
40
60
80
100
120
140
160
2/22/2008 6/1/2008 9/9/2008 12/18/2008 3/28/2009 7/6/2009
Sei
zure
Per
cent
age
Ket
one
Ave
rage
Date
Daily Diaries Ketone Average vs. Seizure Percentage Graph
Daily Diaries Ketone Average Seizure Percentage
Initiation: 03/17/2008
-100.0
0.0
100.0
200.0
300.0
400.0
500.0
600.0
1.000
1.005
1.010
1.015
1.020
1.025
1.030
2/22/2008 6/1/2008 9/9/2008 12/18/2008 3/28/2009 7/6/2009
Sei
zure
Per
cent
age
Spe
cifi
c G
ravi
ty A
vera
ge
Date
Daily Diaries Specific Gravity Average vs. Seizure Percentage Graph
Daily Diaries Specific Gravity Average Seizure Percentage
Initiation: 03/17/2008
0.0
2.0
4.0
6.0
8.0
10.0
12.0
14.0
9/1/2002 6/28/2003 4/23/2004 2/17/2005 12/14/2005 10/10/2006 8/6/2007 6/1/2008 3/28/2009 1/22/2010
Med
icat
ion
Sco
re
Clinic Date
Medication Scores Graph
Klonopin Zonegran Total
Don’t forget! Record as you go!
Do not wait until the end of the day or week to record from memory Records can be faxed, mailed, emailed or brought in during
each clinic visit. Records can be personalized to fit your needs. They can be
made in a monthly calendar, weekly or daily record form. Make sure to record any deviations to the therapy If you have nursing care or need records taken at school, we
can have Rx written so that nurses or staff can keep records as well.