radiotherapy data collection helen forbes national cancer services analysis team

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Radiotherapy Radiotherapy Data Data Collection Collection Helen Forbes Helen Forbes National Cancer Services National Cancer Services Analysis Team Analysis Team

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Radiotherapy DataRadiotherapy DataCollectionCollection

Helen ForbesHelen ForbesNational Cancer Services Analysis TeamNational Cancer Services Analysis Team

National Cancer Services Analysis National Cancer Services Analysis TeamTeam

Partly funded by Cancer Action Team in Partly funded by Cancer Action Team in EnglandEngland

Remainder from project workRemainder from project work Carry out a range of innovative healthcare Carry out a range of innovative healthcare

data analysisdata analysis Accessible presentation of routine hospital Accessible presentation of routine hospital

admission/attendance data admission/attendance data Geographical MappingGeographical Mapping Web data collection and reporting toolsWeb data collection and reporting tools

RTDSRTDS

‘‘A dataset intended to A dataset intended to collect data regarding collect data regarding every patient treated with every patient treated with radiotherapy in the NHS radiotherapy in the NHS in the UK’in the UK’

Data ExtractionData Extraction

Vast majority of data items already held and Vast majority of data items already held and entered by radiographers using verify & entered by radiographers using verify & record system databasesrecord system databases

No requirement (when the project began) to No requirement (when the project began) to report any radiotherapy activityreport any radiotherapy activity– No agreed coding methodsNo agreed coding methods– No agreed currencies (courses, prescriptions No agreed currencies (courses, prescriptions

etc.)etc.)

HRGs/OPCDSHRGs/OPCDS

In parallel to the development of the RTDSIn parallel to the development of the RTDS– HRG 4 releasedHRG 4 released– Recommendation to use out-patient Recommendation to use out-patient

commissioning dataset to report HRGcommissioning dataset to report HRG– Potential requirement to re-key all radiotherapy Potential requirement to re-key all radiotherapy

attendances into PAS (Patient Administration attendances into PAS (Patient Administration Systems) in order to generate the OPCDSSystems) in order to generate the OPCDS

DatasetDataset

In agreement withIn agreement with– Representatives of SCORRepresentatives of SCOR– Payment By Results TeamPayment By Results Team– Data Dictionary and Modelling TeamData Dictionary and Modelling Team– Information Centre HRG teamInformation Centre HRG team

To produce To produce ONEONE dataset which meets the dataset which meets the needs of the RTDS, the OPCDS and needs of the RTDS, the OPCDS and collects the HRG for PbRcollects the HRG for PbR

DatasetDataset

Allows Trusts to generate the OPCDS Allows Trusts to generate the OPCDS without entering radiotherapy attendances without entering radiotherapy attendances into PASinto PAS

Takes all ‘attendance specific’ information Takes all ‘attendance specific’ information from Radiotherapy Management Systemsfrom Radiotherapy Management Systems

Takes most information not routinely Takes most information not routinely recorded on Radiotherapy Management recorded on Radiotherapy Management Systems from PASSystems from PAS

DatasetDataset

Extraction routesExtraction routes– Reports are provided to facilitate extraction of Reports are provided to facilitate extraction of

data from Visir/Oncentra, Varis/Aria, data from Visir/Oncentra, Varis/Aria, Lantis/ImpacLantis/Impac

– Specification is provided to get relevant data Specification is provided to get relevant data from PAS (will need to use local information from PAS (will need to use local information people)people)

– Toolkit is provided to generate OPCDS (for Toolkit is provided to generate OPCDS (for commissioning/PbR) and radiotherapy ‘tail’ from commissioning/PbR) and radiotherapy ‘tail’ from the two data sourcesthe two data sources

DatasetDataset One record produced for each attendance for One record produced for each attendance for

radiotherapy (ie: one per fraction – unless patient has radiotherapy (ie: one per fraction – unless patient has concurrent radiotherapy)concurrent radiotherapy)

Record is made up ofRecord is made up of– OPCDS (a long-established dataset within the NHS in OPCDS (a long-established dataset within the NHS in

England)England)– Radiotherapy TailRadiotherapy Tail

Radiotherapy Tail is made up ofRadiotherapy Tail is made up of– One or more Episode records (which will be identical for One or more Episode records (which will be identical for

every fraction in this episode)every fraction in this episode)– One or more Prescription records (which will be identical for One or more Prescription records (which will be identical for

every fraction in this prescription)every fraction in this prescription)– One or more Exposure records (for each exposure given on One or more Exposure records (for each exposure given on

this attendancethis attendance

Data CollectionData Collection

DiagnosisDiagnosis Waiting timesWaiting times Anatomical site treatedAnatomical site treated Procedure codes for planning and Procedure codes for planning and

deliverydelivery

Data CollectionData Collection

Manual co-written with Varian to Manual co-written with Varian to advise on collection advise on collection methodology for Ariamethodology for Aria

Data ExtractionData Extraction

Demographic data extracted from PAS Demographic data extracted from PAS as per specificationas per specification

Radiotherapy data extracted from Aria Radiotherapy data extracted from Aria using reports developed by Varianusing reports developed by Varian

NATCANSAT Toolkit combines data NATCANSAT Toolkit combines data from both sources to generate from both sources to generate specified RTDS outputspecified RTDS output

Data SubmissionData Submission

Output file submitted directly to Output file submitted directly to NATCANSATNATCANSAT– Using ftp upload of encrypted file to nww serverUsing ftp upload of encrypted file to nww server– Using NHS Connecting for Health secure file Using NHS Connecting for Health secure file

transfer via nhs.nettransfer via nhs.net

OPCDS submitted via SUS in EnglandOPCDS submitted via SUS in England Quality Assurance process completed within Quality Assurance process completed within

24 hours24 hours QA Pass data uploaded to serverQA Pass data uploaded to server

ReportingReporting

Reports run from live server dataReports run from live server data New data has interim status for one New data has interim status for one

weekweek

ReportingReporting

NATCANSAT Analysis in combination NATCANSAT Analysis in combination with other data sourceswith other data sources

NCIN Central Data Repository in NCIN Central Data Repository in EnglandEngland

RTDS used to feed NCASP cancer RTDS used to feed NCASP cancer auditsaudits

Available to analysts/researchers for Available to analysts/researchers for other projects subject to governance other projects subject to governance frameworkframework

NATCANSAT SupportNATCANSAT Support

Telephone helpline (staffed by Telephone helpline (staffed by humans) in office hourshumans) in office hours

Support to modify the reports and Support to modify the reports and extraction tools to fit in with local data extraction tools to fit in with local data entry practiceentry practice

More InformationMore InformationGeneral website: www.canceruk.netGeneral website: www.canceruk.net

Analysis website: nww.natcansat.nhs.ukAnalysis website: nww.natcansat.nhs.uk

(only accessible from an NHSNet connection)(only accessible from an NHSNet connection)

Helpdesk 0870 840 8033Helpdesk 0870 840 8033

[email protected]@ccotrust.nhs.uk

[email protected]@ccotrust.nhs.uk