puget sound buddy walk - down syndrome · puget sound buddy walk oct. 7, seattle center...
TRANSCRIPT
January 2013
d o w n s y n d r o m e c o m m u n i t y . o r g f a c e b o o k . c o m / d o w n s y n d r o m e c o m m u n i t y
Puget Sound Buddy Walk Oct. 7, Seattle Center
Record-setting attendance. See pages 4-5
I N S I D E T H I S I S S U E
Self-Advocate Column 2
Bake a Difference Cookbook 3
Buddy Walk 4-5
Conference, Eyeglasses, BT Rush 6
Pizza Party at Pazzo’s 7
DSC Upcoming Events 8
SAVE the DATE:
Big Time Talent Show,
4:30-6pm, Saturday, Jan. 26
Pazzo’s Pizza Workshop
Sixteen self-advocates
headed to Pazzo’s on
Oct. 27 to create their
own pizzas from scratch.
See page 7
Page 2 D O W N S Y N D R O M E C O M M U N I T Y . O R G
Our Goals
Build a caring, understanding, supportive community open to all individuals and families whose lives include a person with Down syndrome.
Share and nurture a climate where every human being is recognized, their strengths appreciated, and their accomplishments respected and valued.
Strengthen the network of individuals and groups working with issues affecting the lives of those with developmental disabilities and their families.
The Down Syndrome Community is a registered 501(c)(3) non-profit organization whose mission is to improve the lives of individuals with Down syndrome and
their families by focusing on education, communication and advocacy. Our service area includes the entire Puget Sound region and Western Washington. Our
members include a wide cross section of families and professionals across the United States. You can find more information and make a tax-deductible
donation through PayPal by visiting our website at www.downsyndromecommunity.org
Sean King, President
president@downsyndrome community.org
Louise Avery, Vice President, Community Relations
Liaison, [email protected]
Carla Snyder, Secretary
Curtis Thelin, Treasurer
Anne Mullis, Recording Secretary, Conf. Comm. Chair
Nick Kappes, Finance Committee Chair
Lynne Palmisano, Buddy Walk Chair
Dan Hartung
Sue Hartung
Jennifer Mullis, Self Advocate
Scott Rutledge
Laurel Sturges
Newsletter editor: Anna M. Jones
DSC Board of Directors
Upcoming board meetings: January 10 and May 9, 7-9pm, Pacific Market Center. Board Planning Meeting: March 9, location tbd.
Board meetings are open to all members. Please let Sean know you are coming: [email protected], 425.228.3391
17930 Normandy Terrace SW
Normandy Park, WA 98166
downsyndromecommunity.org
S E L F - A D V O C A T E C O L U M N GIVING THANKS
By Jennifer Mullis
Give thanks for family who support me
Give thanks for good friends to play with
Give thanks for food on the table to eat
Give thanks for a place to lay my head at night.
Give thanks for puppy dogs and kitty cats to snuggle with
Give thanks for television and movies to watch
Give thanks for a future bright with hope
Give thanks for music to listen to
Give thanks for community classes
Give thanks for line dancing to dance
with the beat of the music.
Give thanks for God in my life,
when I am sad he lifts me up, and
when I am happy he rejoices with me.
Give thanks for God’s love because
His love shines in us.
Give thanks for God’s creation
especially the mountains
because He sings in the mountains!
Give thanks for church members who care about me.
Give thanks for alphabet soup!
Give thanks for UPSIDE and DSC
Give thanks for DDD and DVR
Give thanks for ALP, SAW and ITA
Give thanks for all the people
who support the I/DD community.
Give thanks for being me.
The End
I hope you like this poem. I hope it touches your heart too!
Today, I am going to write a poem for giving thanks.
Page 3 D O W N S Y N D R O M E C O M M U N I T Y . O R G
The Bake A Difference Family Favorites Cookbook is the
culmination of a lot of hard work by our friends at Embassy
Suites Seattle Tacoma International Airport. It is full of
scrumptious recipes, contributed by DSC members and friends!
Sections include: Brownies & Bars, Muffins & Breads, Cakes
& Cupcakes, Candy & Desserts, Cookies, and Pies & Tarts.
There are 94 pages of fully-indexed recipes and the book is
filled with meaningful, professionally-shot photographs of our
self-advocate models and their families.
The cookbook was funded by a grant from Embassy Suites,
so every dollar we collect from cookbook sales goes directly to
support DSC communication, education and advocacy efforts.
Please support us by enjoying and sharing our cookbook! You
can order online, by visiting downsyndromecommunity.org or
you can call 425.228.3391 or email [email protected].
Books cost $20 each or two for $30, plus $5 shipping and
handling per book ordered. The books will also be available for
purchase at this year’s social events. Thank you!
Bake a Difference cookbooks can be ordered online
Books are $20,
or two for $30, plus
$5 S&H per book
Page 4 D O W N S Y N D R O M E C O M M U N I T Y . O R G
Buddy Walk of
Puget Sound Oct. 7, Seattle Center
Photos courtesy Tom Ellis
For more photos, please go to:
tinyurl.com/DSCWalk2012
A special thank you to the many volunteers. Greeters, face painters, registration table, those who set up and those who take
down; and those who work for months behind the scenes to make the Buddy Walk, the raffle and the FirstGiving site come
together. Please thank all these wonderful sponsors and volunteers for their support
The Buddy Walk Committee: Lynne Palmisano; Chair. Linda Engen, Adrienne Fraley-Monillas, Mayumi Frame, Lisa Hurlimann,
Leanne Lengle, Linda Michael, Justine Nelson, Barbara O’Kelly, Brian O’Kelly
Amerigroup Community Care
Aneeta Lonkar, ASL
Arc of King County
Arc of Snohomish County
Athletes for Kids
Can Bike/NW Special Families
Center for Pediatric Dentistry, UW
Clara Link—Photography
Diamond Designs
Dustin Bean & Aca. of Kung Fu, Longview
Dustin Bean, Self-advocate speaker
Dylan Kuehl—Painting
Eliza Schaaf, Self-advocate speaker
Ellensburg HS Key Club
Embassy Suites
Garrison Titan, 501st Legion
Highline Com. College, ACHIEVE Program
Jae Chung, Kettle corn
Jagatjoti S. Khalsa, author
Jennie Reed, Olympic Medalist, Emcee
Joani Bishop, ASL
Kristy Yawman— Drawing
Lupita Cano—Painting
Mike Roth, photography
My ID Club, King County Police Union
Outdoors for All
Phillip Thelin, bagpiper
Rat City Roller Girls
Reece’s Rainbow
Sue and Sean Adelman
The Boeing Klown Klub
The Nowhere Men
Tom Ellis Photography
Univ. of Puget Sound Physical Therapy
U.S. Navy and Marines, Naval Base Kitsap
UW Sleep Study
Wahluke HS Key Club
Young Life Capernaum
GUESTS, ENTERTAINERS AND COMMUNITY PARTNERS
Adriatic Grill
Anthony's Restaurants
Argosy Cruises
Bellevue Civic Theatre at Meydenbauer
Camaloch Golf Course
Children's Museum
Coach
Comedy Underground
Consolidated Foods
Costco
Creative Cupcake Parties
Dick Yamane and Associates
Dimitriou's Jazz Alley
Doubletree Hotel Seattle Airport
Doubletree Spokane City Center
Embassy Suites Portland Downtown
Fred Meyer
HiLine Lanes
Hilton Bellevue
Hilton SeaTac
Hilton, Vancouver WA
Hoodsport Winery
Hyatt at Olive 8
Imagine Children's Museum
Ivar's, Inc.
J.P. Frame and Tim Cundiff
Jillian's
Linda Jordin
Majestic Bay Theatre
Mount Si Golf Course
Museum of Flight
Neal & Betty Nelson
Ride the Ducks of Seattle
Seattle Art Museum
Seattle Children's Theatre
Seattle Musical Theatre
Seattle Seahawks
Seattle Sounders FC
Sky City at the Needle
SpringHill Suites Seattle South/Renton
Storybook Theater
The Pacific Science Center
Top Ten Toys
Toyology
Woodland Park Zoo
The Down Syndrome Community and the 2012 Puget Sound Buddy Walk® committee members would like to express
our deepest thanks for those who partnered with us to make the 2012 Buddy Walk a truly spectacular event! This
was our biggest Buddy Walk ever, with more than 1,200 people attending. Please thank all these wonderful people
and organizations for their support.
Thank you to everyone who contributed to the success of
the 2012 Buddy Walk
Alex Toys Philip Heier, Windermere Sun Press Printing Tim’s Cascade Chips
DONORS
SPONSORS
Page 6 D O W N S Y N D R O M E C O M M U N I T Y . O R G
Eyeglass frames for special kids SPECS4US (Superior Precision Eyewear for Children Who Are Special) has a line of eyeglass frames for
children with Down syndrome that the company says eliminates the problems commonly associated with
traditional eyeglasses. The Erin’s World line of frames is engineered with a flatter bridge and specially
curved frames to fit the unique facial features of children with Down syndrome. Adult sizes and sunglass
clips are also available. The line was created by an optician who has a child with Down syndrome. Among local locations listed at
specs4us.com: Marysville Vision Source, Woodlawn Optical of Bothell, Roosevelt Vision (Seattle), Woodlawn Optical (Redmond),
Sammamish Vision Center, Visual Connection (Bremerton). For more information, visit specs4us.com or call 1.800.586.1885.
Big Time Rush is a Big Time Thrill
Megan Schiedler enjoys opportunity of a lifetime to meet her favorite boy band
First there was the sound-check, where Megan was chosen to
ask one of the many questions from their fan club. Then we were
whisked away to the front of the line to meet them back-
stage before the Big Time Tour concert for a private photo shoot.
Megan spent 10 glorious minutes with the four young men:
Kendall, James, Logan and, of course, her No. 1 crush, Carlos
(standing to her right). They asked Megan all about her life and
were very engaging. It was an evening full of music, laughter,
dancing, singing and fun—a night that she will never forget.
I know I won’t, and neither will her mommy (Paula Schiedler),
who drove all the way from Lake Oswego, Ore., on that sunny
day in September to DO THE PUYALLUP and Get Your Happy On!
Submitted by: Louise Avery, Megan’s Aunt WeeZy Megan with BIG TIME RUSH at the Puyallup Fair
Savvy Estate Planning Thank you to the DSC Conference
Committee for a great day of
learning on Saturday, Oct. 20
More than 50 people joined us at the Blackriver
Training and Conference Center on Saturday, Oct. 20.
After a welcome by our President, Sean King, the audience was given a preview of the
day by DSC Board member Nick Kappes, who then introduced our speakers, attorneys
Larry Jones, Karen Thompson and Stephen Waltar.
The DSC would like to extend our deepest appreciation to the Conference Committee,
which was co-chaired by Anne Mullis and Sharon Dommermuth.
The Committee would like thank Kasey, from the Conference Center, as well as the
DSC Board and volunteers for making the day run so smoothly. Special thanks to Christina
and Brian, as our greeters and door monitors, and to Bobby at the registration table.
Our most sincere thanks also goes to our talented presenters who took time out of their
schedules to share their expertise and provide invaluable information. Thanks to our
attendees, the reason for our efforts!
Watch for information regarding our next conference on Saturday, Oct. 19, 2013, and
plan to join us.
Jones Thompson Waltar
Thank you to Larry Jones, Karen
Thompson and Stephen Waltar for
sharing their time, energy and vast
knowledge with the DSC.
Pizza Party at Pazzo’s! On Oct. 27, Pazzo’s on Eastlake hosted their first DSC Pizza
Workshop.
Sixteen DSC self-advocates made their own pizza creations
from scratch to share with their families and learned some of
the mechanics about how a restaurant works.
Special thanks to Laurie, Missy, Jay and Jeremy of Pazzo’s
for making this fantastic afternoon a memorable success!
Page 7 D O W N S Y N D R O M E C O M M U N I T Y . O R G
We are on Facebook!
facebook.com/downsyndromecommunity
17930 Normandy Terrace SW
Normandy Park, WA 98166
PRESORTED
STANDARD
U.S. POSTAGE
PAID
SEATTLE, WA
PERMIT NO. 4037
Down Syndrome Community early 2013 Calendar
SAVE the DATE:
Big Time Talent Show,
4:30-6pm, Saturday, Jan. 26
Thursdays, Jan. 10, May 9, July 11
Board Meetings (Open to all members)
Pacific Market Center
6100 4th Ave. S., Seattle, 98108
Board Planning Meeting, March 9, details tbd
Wednesday, March 21
World Down
Syndrome Day
worlddownsyndromeday.org
4:30-6pm, Saturday, Jan. 26
DSC presents: The 1st
Big Time Talent Show
Highland Community Center
14224 Bel-Red Road, Bellevue
[email protected], 206.285.6128
Saturday, Feb. 16
Sweetheart Dance, Pizza,
Silent Dessert Auction
Sharing Library Event
Highland Community Center
14224 Bel-Red Road, Bellevue
[email protected], 425.228.3391
Wednesday, March 6
Day to End the
R-Word Campaign
r-word.org
Saturday, May 18
Spring Fling Dance and
Annual Meeting
Sharing Library Event
Highland Community Center
14224 Bel-Red Road, Bellevue,