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Providing integrated health and social care for older persons in Austria Margit Grilz-Wolf Charlotte Strümpel Kai Leichsenring Kathrin Komp European Centre for Social Welfare Policy and Research March 2003

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Page 1: Providing integrated health and social care for older ...envejecimiento.csic.es/documentos/documentos/procare-providingaustria-01.pdfThe first law in Austria regulating the professional

Providing integrated health and social care for older persons in Austria Margit Grilz-Wolf

Charlotte Strümpel

Kai Leichsenring

Kathrin Komp

European Centre for Social Welfare Policy and Research

March 2003

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Contents 1 Introduction 3 2 Legal and structural framework - the general discourse on (integrated) care

provision 5 2.1 Legal framework on health care and social welfare services 5 2.2 Financing health care and social welfare services 7

2.2.1 Financing health care 7 2.2.2 Financing long-term care: The Long-Term Care Allowance 7

2.3 Process of care provision 10 2.3.1 Institutional Care 10 2.3.2 Community Care 11 2.3.3 Personnel in old age care 12 2.3.4 Family Care 12 2.3.5 Managing pluralism in Vienna 13 2.3.6 Health Care Provision 14

2.4 Stakeholders 15 2.5 Demands and plans for improvement 16

3 Model ways of working 18 3.1 The understanding of integrated care in Austria 18

3.1.1 The terminology used in Austria 18 3.2 Approaching model ways of working in Austria 19 3.3 Theoretical model concepts of working 20

3.3.1 Integrated Health and Social Care Districts 20 3.3.2 The Virtual Hospital at Home 21

3.4 The practical model ways of working 21 4 Conclusions: Lessons to learn 24 5 References 26 Annex: Selected model ways of working 30

A1 Social Care and Health District Hartberg 30 A2 Organization of patients’ care between the Donau hospital and the

Health and Social Centre Donaufeld 32 A3 Discharge-Management in the hospital "Hartmann" - a cooperation

project between Viennese Red Cross and the "Hartmann" hospital 33 A4 Patient oriented integrated care in Vienna, district 14-17 35 A5 “MedTogether – Management between outpatient care and hospital

care 36

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1 Introduction Traditionally, there has been a distinct division of “cure” and “care” in Austria, leading to enormous differences between the areas of health care and social care provision: Health care has been regu-lated mainly by federal government (exception: hospital system) whereas social care has been the responsibility of the nine provincial governments. Health care was and is financed by contributions of the social health insurance, by taxes and by patients’ co-payments. Social care was financed through a variety of individual measures in the context of social assistance schemes, many of them different from province to province. Also, health care has always been legally well regulated, whereas many areas of social care still are not subject to specific legislation (Barta/Ganner, 1998; Rubisch et al., 2001: 8).

The Austrian Constitution stipulates that, unless competencies are covered by the social insurance system, all matters concerning social care, e.g. services and institutions for frail older persons, for people with disabilities or children, are a matter to be dealt with by the regional governments (prov-inces/Länder). As a federal framework law on social assistance has never been agreed upon, there are nine different Social Welfare Acts with various differences concerning the extent of benefits, eligibility criteria and means-testing (Leichsenring, 1999: 1).

Thus it can be stated that, for a long time, policies for persons in need of care, i.e. all matters con-cerning institutional housing, the regional governments have shaped community care and related financial benefits, exclusively. These policies were characterized by an extension of institutional housing and care in nursing homes until the beginning of the 1980s. Since that time, policies were developed to increase the extension of community care services and to look for additional and/or alternative ways of financing measures to cope with social problems related to long-term care (Leichsenring, 1999: 2). Also, there has always been a large proportion of informal, family care provision in Austria (estimation: 80% of all care is informal, family care, mainly by women).

During the past ten years, political debates on necessary reforms but also concrete measures to im-prove social care in Austria are quite in line with general reform trends in Europe (Leichsen-ring/Pruckner, 1993):

• Firstly, persons with help and care needs are increasingly considered as self-confident clients of social services and persons who – depending on their individual potentials – are able to decide on their care arrangements (see 3.3.1). Especially younger persons with physical impairments acted as forerunners with respect to equal rights legislation and claims for “personal assistance”. Issues of user satisfaction, users’ choice of services and users’/clients’ rights have become in-creasingly important in the last few years.

• Secondly, the broad consensus is that care in the community is preferable to institutional care. The slogan “care should be provided at home as long as possible, rather than in an institution” can be found in most policy documents concerning social care. In the last few years care in the community has been developed, which reacts to but also poses new challenges for the interface between health and social care.

• Thirdly, it has become clear that services have to be developed to support informal or family carers to ensure that care at home is more adequate, and less expensive than institutional care.

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Support services and provisions for family carers are being developed increasingly, but there is still a lot to be done in this area.

An important step in social care provision was taken in 1993 when the Federal Long-Term Care Al-lowance Act (“Bundespflegegeldgesetz”) was put into effect. The above mentioned issues were de-bated during the preparation of the Federal Long-Term Care Allowance Act, which allots a cash-benefit to individuals according to their levels of help and care needs, through the whole of Austria. This is one of the first laws regulating social care on the federal level (see below).

Another development to harmonize the area of social care that went together with the implementa-tion of the Long-Term Care Allowance Scheme was the state treaty between the federal state and the federal provinces concerning the development plans for social care facilities. Such development plans were compiled in each region, in order to set objectives in relation to a minimum standard of community care services, institutional care facilities and intermediary structures in terms of quan-tity, quality, working conditions and co-ordination (Rubisch, 1998).

In the same way as progress was made towards improved coordination within the sector of social services, policies in the health care field have also been focusing on coordinating and harmonizing health provision during the last few years. A health care reform has been implemented since 1997, with the aims to improve transparency regarding costs and services and to support hospitals with regard to optimal resource allocation in order to provide a basis for performance-oriented budget flows from the federal state. Also in this case an agreement between the federal and provincial gov-ernments was necessary (Hofmarcher/Rack, 2001: 107-116).

A further agreement on health care reforms has come into effect for the time span 2001-2004 with a focus on uniform planning of the Austrian health care system, including the primary, secondary and tertiary sector with the aim of regionally coordinated planning. Another focus is on improving the management of the interface between different levels and types of health provision.

This paper will give an overview on the legal and structural framework of the varied and frag-mented health and social care provision and the ensuing issues on financing health and long-term care. After a short description of the process of care provision with respect to institutional care, community, family and health care there will be a short section on the stakeholders involved in these processes as well as suggestions for the improvement of the integration of health and social care. In order to introduce the model ways of working in Austria, we will provide a comparison be-tween the understanding of integrated care in an international perspective and in Austria. Further-more, a theoretical model of integrated care provision will introduce the presentation of practical examples. Finally, conclusions will be made concerning lessons learned from the existing situation and from model projects that have been carried out.

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2 Legal and structural framework - the general discourse on (integrated) care provision

2.1 Legal framework on health care and social welfare services The legal framework of health and social care services is characterized by the fact that health and social services are strictly divided concerning legislation and competencies. Whereas health care and its financing is subject to the logic of social insurance, social care functions according to the logic of social assistance. A large variety of provincial laws lead to differing regulations in health care and especially in social care between the provinces. For example, old persons’ homes as well as education for staff in these homes are part of the social services and thus legislated by the prov-inces. Hospitals and the education of nurses are subject to basic regulation by federal laws.

This same rationale is true for the division between health insurance and social assistance: Only strictly medical services are the responsibility of the health insurance, long-term care is partly regu-lated by the Long-Term Care Allowance Act as well as by provincial laws (in particular provincial social assistance laws)1. In Europe, this distinction between health provision and long-term care provision is particularly strict in Austria and Germany (Barta/Ganner, 1998: 6-7).

A sound legal framework has a long tradition in health care in Austria but not so in social care. Whereas some provinces have had social care provisions legislation since the late 1970s others did not have such legislation until as late as 1990 (Barta/Ganner, 1999: 7-8). There has been an espe-cially poor legal framework for training and education of staff in long-term care services for the elderly. The first law in Austria regulating the professional framework and education of staff work-ing in help and care for the elderly and people with a disability was passed in 1992 in Upper Aus-tria. Since then other provinces have followed this example. However, there is hardly any standard-ized provision in Austria, as the provincial laws differ quite substantially (Leichsenring/Badelt, 1999; Wild, 2002).

On federal level the Ministry for Women and Health is responsible for health care and the Ministry for Social Security and Generations has the social care agenda. Many of the responsibilities for the provision of health and social care lie with different departments of the provincial governments. Also, 26 Social Insurance Agencies2 are responsible for the provision of social insurance (health in-surance, pension insurance, unemployment insurance). The Ministry for Education, Science and Culture is responsible for academic education and thus – as there is neither an academic education for Social Work nor for Nursing Sciences – only for medical doctors (Hofmarcher/Rack, 2001).

Concerning the legal framework, social insurance (including health insurance) is regulated by the General Social Insurance Law (Allgemeines Sozialversicherungsgesetz).

1 A specific problem with regard to split competencies in health and social care concerns the hospitals for

the chronically ill (Chronische Krankenanstalten). They belong to the area of social care but partly offer the same medical provisions as hospitals. This leads to the phenomenon that persons receiving a certain medical provision in a chronic hospital has to pay for this themselves, while another person receiving the same provision in a regular hospital will have this covered by the health insurance.

2 The social insurance agencies are autonomous bodies. However, in this area federal legislation regulates their functions and governmental agencies are represented on their boards.

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The basic legal framework for hospitals is set in Article 12 of the Austrian Constitution and in the Federal Hospital Law (Bundeskrankenanstaltengesetz). Details on hospital provision in the individ-ual provinces can be found in the Provincial Hospital Laws (Landeskrankenanstaltengesetze).

On federal level there has been a law especially on the education and professional profile of staff in nursing since 1967 which was revised in 1997 as the Health and Nursing Law 1997 (Gesundheits- und Krankenpflegegesetz 1997). This regulates the education of registered nurses and nurses aids (“PflegehelferInnen”). However, it does not include provisions for other staff involved in the care of older people e.g. in old person’ homes. For this group of professionals, the laws of the provincial governments apply. This leads to quite varied educational and professional standards between the different Austrian provinces (Barta/Ganner, 1998; Kalousek/Scholta, 1999:13 ff).

The provision of long-term care is regulated in provincial laws, among others in the provincial So-cial Assistance Laws.

Since 1993 a federal law was passed to standardize provision for long-term care allowances throughout the country. Since then the Federal Long-Term Care Allowance Act (Bundespflege-geldgesetz) has been the main instrument to regulate and finance long-term care on federal level (see 2.3. for details).

Another development to harmonize and improve the area of social care that went hand in hand with the implementation of the Long-Term Care Allowance Scheme was the state treaty between the federal state and the federal provinces3 concerning “Needs and development plans for social care facilities”. Such plans had to be compiled in each province, in order to set objectives in relation to a minimum standard of community care services, institutional care facilities and intermediary struc-tures in terms of quantity, quality, working conditions and co-ordination (Rubisch, 1998). These needs and development plans had to include the legal framework in each province, a structural analysis of demographic and sociological data, personnel needs in the social care sector, minimum standards for provision, development aims with cost assessment as well as an implementation plan (Eiersebner, 2002: 46).4 In addition, provincial governments bound themselves to implement these plans until the year 2011.

In summary, it should be underlined that not only a legal framework for integrated care in Austria is missing, but that the existing legal framework leads to a lack of coordination within the individual fields (especially long-term care), which results in fundamental barriers to integrating health and social care. Nevertheless, there have been some improvements over the last few years such as the implementation of the Long-Term Care Allowance Scheme as well as the “Needs and development plans for social care facilities”.

3 The article 15a of the Austrian Constitution allows for special coordination agreements between the fed-

eral state and the provincial governments in a specific field (such as health care) that both territorial au-thorities have competencies in. The aim of these agreements are to harmonize provisions throughout the country and to improve policy efficiency (BMSG, 2001).

4 As the general framework provided for these plans was quite vague and different institutes or consultants compiled them for each single provincial government, they are hardly comparable as they lack in com-parative data sets and common criteria (Schaffenberger et al., 1999).

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2.2 Financing health care and social welfare services The main pillars of financing health care and social welfare services stem from the above men-tioned legal regulations.

2.2.1 Financing health care

Approximately one half of total health care expenditure in Austria is financed by means of health insurance contributions, a fifth is financed from public budgets and a fourth of health care expendi-ture is financed by private households, i.e. non-prescription medicine and patients’ co-payments (Hofmarcher/Rack, 2001: 33). Thus, actors in financing are the federal and provincial governments, regional and local governments, social health insurance, private insurance as well as the patients themselves (BMSG, 2001). 147 out of Austria’s 321 hospitals – that is 72% of all hospital beds – are financed through public funds.

From 1990 to 2000 the costs of these publicly funded hospitals have doubled (BMSG, 2001: 101). From this followed the necessity to change the method of funding, in particular with a view on the fact that the type of health provision has changed, patients are more intensively cared for and differ-ent, more expensive, methods of treatment have emerged. Thus, in 1997 the Austrian Procedure and Diagnosis-oriented Hospital Financing System was introduced, which is similar to Diagnosis Re-lated Groups (DRG) Funding. Rather than financing lump sums according to the number of days spent in the hospital, in this system the hospital is reimbursed by the provincial funds according to a flat rate per case to abolish the undesirable incentive of extending the patient’s length of inpatient stay. The provincial funds are financed by the so-called structural funds that distribute budgets be-tween the provinces according to predefined indicators (BMSG, 2001:102-103).

2.2.2 Financing long-term care: The Long-Term Care Allowance

During the 1980s, the social welfare expenditures for institutional housing had risen from 2.9 billion to 6.4 billion ATS (from about 200 million Euro to about 500 million Euro) per year, while expen-ditures on other welfare benefits had just doubled (Pratscher, 1992: 77). Thus, regional governments were eager to receive additional funding from the federal state. Another pressure group that was in-terested in additional payments for long-term care were persons with disabilities who demanded equal treatment with war veterans. Since the 1950s, war veterans had been entitled to a special long-term care allowance in seven levels up to more than 20,000 ATS (about 1,450 €) per month. Similar cash benefits had also existed since the 1960s within the pension insurance and within the Social Welfare Acts. However, at much lower levels than the war veterans allowance, with different eligi-bility criteria and with inadequate coverage. The ensuing debate on a long-term care reform was thus focused on the introduction of a comprehensive system of long-term care allowances. The fol-lowing measures were taken since the beginning of the 1990s:

• As a first step, the formerly scattered and unequal cash benefit schemes for frail persons in need of care were comprehensively regulated within the “Bundespflegegeldgesetz” (Federal Long-Term Care Allowance Act), which came into force on July 1, 1993. According to this law, all people with physical, mental or psychological disabilities who are in need of at least over 50 hours of attendance and care per month are entitled to a long-term care allowance. This benefit, which is not means-tested, is paid in seven levels, ranging from 145 Euro to 1,532 Euro per month (12 times a year), depending on a medical assessment of the entitled person’s monthly

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care needs (see Table 1). If residents of old-age and nursing homes are entitled to a long-term care allowance, 80% of the entitlement is paid directly to the provider (usually the provincial government). The person entitled to the long-term care allowance receives a lump sum of 10% of level 3, thus 41 Euro per month (Pfeil, 1994; Barta/Ganner, 1998) as a personal allowance.

• At the same time, in the already mentioned state treaty between the federal state and the prov-inces the former guaranteed to cover the additional means that are needed to finance this new scheme – from general tax-revenues – whereas the latter ensured to amend their old long-term care allowance regulations according to the new standards (see also Leichsenring, 1999; Rubisch, 1998).

The comprehensive long-term care allowance scheme is a benefit that is neither part of the social insurance system nor an element of social welfare or social assistance schemes. However, it follows rationales of both these systems. This scheme increased public expenses (federal state and prov-inces) on cash benefits compensating for care needs from about 1 billion Euros (in the first year) to about 1.7 billion Euros (in 2001) per year. When policies to reduce public spending became stricter in 1995, some legal amendments also concerned the comprehensive long-term care allowance. For instance, the benefits have not been automatically adjusted according to the inflation rate since 1996. In another amendment in 1998, however, definitions concerning the assessment in levels 4, 6 and 7 were improved so that the number of persons in these higher levels increased. In addition, the number of entitled persons and some other qualitative improvements were introduced.

Table 1 The Austrian comprehensive long-term care allowance (December 2000)

Level Care needs per month Amount per month in Euro

Number of beneficiaries (On federal and provin-

cial level) I > 50 hours 145 58.826 II > 75 hours 268 124.191 III > 120 hours 414 59.305 IV > 180 hours 620 48.280 V > 180 hours of heavy care 842 26.841 VI > 180 hours of constant attendance 1.149 8.731 VII > 180 hours of care in combination

with complete immobility 1.532 5.291

Total number of beneficiaries 331.465

Source: Bericht des Arbeitskreises für Pflegevorsorge 2000.

Subsidiarity in practice: Contributions of persons using social welfare services and institutions

All in all, it is important to mention that long-term care allowances can cover only part of the real costs of home help and care as well as care in nursing homes. In Austria, services and institutions for older persons are generally provided in the framework of the provincial Social Welfare Acts and therefore financed by public subsidies and means-tested contributions of users. On average, each of

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the about 331,465 persons receiving this benefit, does not get more than about 385 Euro per month. Only about 4.2% are assessed in levels six and seven, and even in institutions this share is not ex-tremely different. With, for instance, monthly costs between about 1,100 Euro and 3,600 Euro per bed in a nursing home, it is obvious that other sources are needed, i.e. the resident’s pension (except 20% pocket-money), contributions of family members (only in some regions, spouses and/or chil-dren are charged; see Barta/Ganner, 1998: 12-14) and, finally, social assistance schemes. Alto-gether, in 1996 expenditures for persons in institutional care that were covered by the federal prov-inces (social assistance) were about 8 billion ATS (580 million Euro), of which 2.5 billion ATS (181 million Euro) were covered by income from residents’ or their families’ contributions (Pratscher/Stolitzka, 1998: 288).5

Similar procedures apply to community care services that charge, according to the client’s income, between 3 and 18 Euro – on average about 5 Euro – per service hour.6 In 1997 (latest available data), provincial governments spent a total of about 2.5 billion ATS (181 million Euro) on social services for persons in need of care, of which about 600 million ATS (43 million Euro) were cov-ered by user contributions (Pratscher/Stolitzka, 1998: 288).

The complicated situation in financing long-term care in Austria can be seen using the example of home care services. Generally, home help and care services are financed from different sources (Wild, 2002: 25-26):

• Social assistance budgets of the provinces

• Social assistance budgets of the municipalities

• Provincial funds

• Health insurance agencies

• Clients’ private funds (including long-term care allowances)

In some provinces, the provincial funds contribute to home care payments, in others they do not. Also, the type of financing through the health insurance agencies is different from province to prov-ince. In general, health insurance agencies reimburse providers for so-called “medical nursing care”, i.e. specific tasks provided by home nurses and supervised (prescribed) by the General Practi-tioner. This, however, does not mean that each activity provided by a home nurse is included in the list of these specific tasks. As reimbursement thus becomes obviously quite complicated and GPs are hesitant to get involved in such arrangements, some regional health agencies simply transfer a (small) lump-sum to the regional governments to integrate their budget on community care services.

Graphics 1 provides a rough overview of the various (potential) cash-flows between the stake-holders involved. Variations depend on the type of service a client uses, the province in which s/he lives, his/her GP and, of course, the supply and the organization of services that exist in his/her vi-cinity.

5 Ten years earlier, this ratio had been about the same (Bartunek, 1988) but unfortunately data in Austrian

social welfare statistics cannot be compared well, as data collection was changed in 1994. 6 Although there are different types of charging mechanisms, it should be noted that billing is usually ac-

complished by the local or regional administration that reimburses the providers and charges the clients about 1% of their income (e.g. pensions plus long-term care allowance minus housing costs).

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Graphics 1.1: Overview of financial flows in long-term care provision

Source: adapted according to Wild, 2002: 26.

It has become clear until now that this kind of financing is quite far from a “joint budget” and an integrated provision of health and social care services. However, while transferring money still is relatively easy to manage and to co-ordinate, this becomes much more difficult if we turn to the process of co-ordination and integration of various services which will be outlined in the following section.

2.3 Process of care provision

2.3.1 Institutional Care

Both in institutional housing/care and in community care there is a strong tradition of voluntary non-profit providers in Austria. According to Badelt (1999: 81), about 26% of institutions for older persons (45% of total places in residential housing; and 25% of total places in nursing homes)7 are provided by non-profit organizations, 53% by public providers (46% of total places in residential

7 As most institutions, i.e. also former old-age homes, have at least some nursing beds, a distinction be-

tween old age and nursing homes has become more or less impossible.

Health Insurance Agencies

Provinces

Providers of community

care Long-Term Care

Allowance

Client

Munici-palities

Providers of institutional

care*

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housing; 67% of total places in nursing homes), and about 21% by smaller commercial providers (10% of total places in residential housing and 8% of total places in nursing homes). There are re-markable regional differences in terms of quantity, quality and coverage.

In general one can say that, today, older persons move to institutions only when being in need of help and/or care. Thus, the average age of residents has risen to above 80 and the general health status of residents has declined. Confronted with this ‘ageing’ of their residents, residential homes tend to convert apartments for residents in good health into departments or beds for persons in need of care. Similar to other European countries, almost all of the traditional old-age homes – most of which had been built during the 1960 and 1970s – now dispose of ‘nursing beds’ or ‘long-term care wards’. Altogether there are 68,511 places in senior and nursing homes for Austrians above the age of 60 in 740 institutions (see Table 2). All in all there are about 49,800 “nursing” beds in old age and nursing homes in Austria and 18,004 places in residential care for less frail elderly.

Table 2 Capacities of institutional care in Austria (2002)

of these of these in Province

Population

2002 65 years

and older

75 years and

older

Total no. of places

Residen-tial Care

Nursing Care

Short term Care

No. of institu-tions

Burgenland 278.600 50.136 22.257 1.487 0 1.487 0 26 Kärnten 561.126 91.137 42.378 3.195 982 2.213 0 45 Nieder-österreich

1.549.658 248.656 113.169 10.499 2.548 7.851 100 99

Oberösterreich 1.381.933 204.620 93.005 11.961 0 11.630 331 110 Salzburg 518.587 69.901 32.369 5.201 1.698 3.454 49 82 Steiermark 1.186.379 196.252 91.241 8.315 0 8.315 0 163 Tirol 675.070 90.307 40.842 4.786 1.221 3.522 43 74 Vorarlberg 351.570 43.588 18.752 2.131 889 1.156 86 60 Wien 1.620.170 250.121 129.389 20.936 10.666 10.141 129 81 Austria 8.123.093 1.244.718 583.402 68.511 18.004 49.769 738 740

Source: Departments for Social Affairs of the Provincial Governments, compiled by the Salzburg Provincial Government (Spring 2002).

2.3.2 Community Care

In the area of community care, almost exclusively private non-profit providers are offering services. Although the general objective of both federal and regional governments has been to extend the number of community care services and to increase their efficiency, e.g. by improved co-ordination mechanisms, it can be noticed that additional efforts in terms of investments have remained limited until today. Notwithstanding some positive developments in terms of professionalisation, regional differences remain huge. For instance, while in Vorarlberg more than 80% of long-term care allow-ance recipients use one or the other service, this is only about one third in Carinthia and the Bur-

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genland. All in all 56,5% of persons receiving long-term care allowance use social services (Badelt et al., 1997: 79). Also in Vienna, one of the provinces where services have been traditionally rela-tively well developed, since 1989 the number of clients has remained stable while the number of service hours has slightly increased (Magistrat, 1997). This means that the general trend in commu-nity care – similar to many European countries – can also be observed in Vienna: services are tar-geted towards a smaller number of clients, in particular on those with more intensive care needs.

Concerning co-ordination of services and institutions in health and social care, some provinces have installed so-called health and social districts but even the designation of these (in some regions: vir-tual) entities varies (Bahr/Leichsenring, 1996). A general framework for such integrated health and social districts was developed in the beginning of the 1990s by the Federal Institute for Health but neither the provincial governments nor regional branches of the health insurance (sickness-funds) have implemented this co-ordination model (see Section 3: Model ways of working).

2.3.3 Personnel in old age care

Although some improvements towards better training and professional working conditions have been realized (Leichsenring, 1999), Austria is still lacking in nation-wide regulations for social ser-vice professions. Home-helpers, geriatric aides and family helpers still are trained on the basis of regional regulations8 (sometimes even specific providers’ curricula) so that a minimum standard remains to be developed. Given this background, wages are very low and working conditions rather strenuous. For instance, the average hourly wage of a home-helper is about 7.5 Euro, and working-times often depend on short-term demand.

The analysis of the provinces’ needs and development plans shows, that quite a large amount of ad-ditional personnel is needed in community care as well as in institutional care for the elderly in the next 10 years. However, shortage of staff in the area of care for the elderly is on the agenda already today. This is also why the necessity of better training and further education for staff in this field is being stressed (Schaffenberger et al., 1999).

As a specific Austrian feature it is worth mentioning that, due to the curricula of social worker’s education, social workers only play a marginal role in the provision and organization of care ser-vices for older persons.

2.3.4 Family Care

Traditionally, family care plays an important role in care provision in Austria, as it is undoubtedly the main source of care. According to the evaluation of the long-term care allowance scheme (Badelt et al., 1997) currently about 90% of the recipients are mainly cared for by a family member. This finding is underlined in a more recent study on “Quality assurance in social care” (Nemeth/Pochobradsky, 2002). About 23% of these carers combine work and family care (more than one third of all family carers below the age of 60). Altogether about 1.5% of all employed per-

8 Since September 1997, in Vienna special training is needed for home-helpers according to the new “Wie-

ner Heimhilfegesetz” (Viennese Home Help Act). This act determines that home-helpers have to attend a course to the extent of 400 hours (200 theory and 200 practice). Those courses are carried out by the pri-vate non-profit organizations themselves. Sozial Global, Wiener Sozialdienste, Wiener Volkshilfe and the Wiener Rotes Kreuz are the main providers of this service.

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sons are carers of older kin. Generally, however, it is daughters and daughters-in-law who carry the main burden of care: about 59% of all family carers are between 40 and 60, one third above 60 and about 15% are younger than 40. About 25% of all family carers who care for persons receiving long-term care allowance have reduced or abandoned their employment according to the care needs of their dependent family member (Badelt et al., 1997: 175). Family carers are confronted with mul-tiple burdens, such as back aches, too much responsibility as well as time or financial problems (Nemeth/Pochobradsky, 2002).

Services to support family carers, such as counselling, respite care, etc. have developed over the past few years (Farkas/Leichsenring, 1994). However, there are still very few day centres, opportu-nities for short-term care and day care for older persons. Also, family carers are confronted with a lack of information on all aspects of the care situation (Nemeth/Pochobradsky, 2002). Austrian ex-perts in this area suggest that it would be very important to expand such provisions as well as in-formation on family care in order to improve the situation of family carers (Kalousek/Scholta, 1999: 8-12; Schaffenberger et al., 1999; Nemeth/Pochobradsky, 2002).

An amendment of the comprehensive long-term care allowance Act in 1998 facilitated the inclusion of family carers into the social security system. Family carers who care for a dependent person with substantial care needs (long-term care allowance levels 4-7) may contribute to the pension insur-ance (using part of the long-term care allowance), while the state takes over the employer’s contri-bution (Rubisch, 1998).

To sum up, the status of informal carers in Austria remains precarious as specific and systematic measures to acknowledge and support family care are still lacking. The importance of family ethics is the main factor why it remains the most preferred and accepted way of long-term care for frail (older) persons (Bahr/Leichsenring, 1996; Rosenmayr/Majce, 1998).

2.3.5 Managing pluralism in Vienna

As the organization of services – as well as their mode of financing and their degree of develop-ment, quality and professionalisation – differs from region to region, some more information is pro-vided in the following with respect to Vienna.

In Vienna, the municipality, which is at the same time a provincial government, hardly plays any role as a supplier of community care services for older persons except for home nursing (“Mobile Schwestern”). In particular, home help services (and some home nursing) are provided exclusively by private voluntary organizations, which are reimbursed by the municipality. Currently about 20 voluntary organizations offer their services, but five big suppliers dominate the market (Wiener Volkshilfe, Wiener Hilfswerk, Sozial Global, Rotes Kreuz, Wiener Sozialdienst). Those providers are offering a wide range of services while others concentrate on one or two services. Altogether, these services remain generally limited to the ‘classical’ one’s such as home help – the most impor-tant – home nursing, “meals on wheels”, cleaning services, or repair services and alarm systems. On average, not more than 5% of Viennese citizens above 60 use one or the other of these services (Ta-ble 3). While the supply of social services for the elderly is officially still subdivided in the single segments mentioned above (e.g. home help, home nursing), some providers consider this situation inadequate and try increasingly to offer integrated community care services such as, for instance, in Lower Austria and other provinces.

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Table 3 Number of users of Community Care Services in Vienna (1997)

Type of service (1) No. of users/year (2) Share of users in total population above 60

Home help 17,709 5.0% Cleaning services 9,043 2.6% Meals-on-wheels 11,155 3.2% Hospice 353 0.1% Befriending 3,304 0.9% Repair services 622 0.2% Laundry services 1,557 0.4%

Source: Amt der Wiener Landesregierung (MA 47), 1997.– (1) except community nursing care; (2) There are about 330,000 Viennese above the age of 60 out of which about 125,000 are above the age of 75.

The Department “Soziale Dienste” acts as a purchaser, co-ordinator and controller of these services on the municipal level, i.e. general contracts, planning and budgeting are regulated between this Department and single providers. Local supply is co-ordinated by organizational branches of that department, so-called “Soziale Stützpunkte” (social co-ordination and support centres – see also be-low). There are altogether 10 “Soziale Stützpunkte”, each covering a specified area of the city. Their staff consist mainly of district nurses who are responsible for the first contact with the client, i.e. the assessment of the client’s needs in his or her home. On that basis an individual care plan is drawn up which serves as a guideline for the kind of care that is subsequently supplied by the single providers. It is up to the individual co-ordination nurse to contact the local providers, unless the cli-ent expresses certain preferences. In the recent past some of the ‘social co-ordination and support centres’ have been integrated into “Gesundheits- und Sozialzentren” (health and social centres). There, information is offered not only about home care and home help, but also about residential homes, social work etc. In addition, they organize day care and other social services on a local level (Leichsenring/Stadler, 1998). Currently, there are five centres of this kind in Vienna.

2.3.6 Health Care Provision

In Austria there are 16,600 independent physicians (5,800 general practitioners and 7,400 special-ists). Three-quarters of them have a contract with one or more health insurance agencies as 99% of the Austrian population is covered by health insurance. There are also 750 outpatient clinics and 1,600 outpatient-hospital departments that offer health care services.

In Austria there are 321 hospitals with 70.300 beds (1 December, 2000). This means 8.7 beds per 1,000 inhabitants. More than 2 million patients were treated in Austrian hospitals in 2000. The Aus-trian hospital law distinguishes between general hospitals (118 hospitals with 62% of all beds), 98 special hospitals (21% of all beds) with specific aims, such as accident hospitals, or for specific groups such as geriatric or children’s hospitals as well as 105 other hospitals (nursing homes for chronically ill patients, convalescent homes, etc.) with 17% of all beds. The third group are institu-tions like nursing homes for the chronically ill, rehabilitation homes, birth clinics etc. (105 hospitals with 17% of all beds). As mentioned above 70% of the beds in 147 hospitals are public. 38 hospitals with 8% of beds are private, non-profit. The third group of hospitals belongs to the provinces (51%

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of beds) and to municipal governments, religious organizations, private persons, etc. Apart from some huge hospitals in Vienna and the provincial capitals, most of these institutions are quite small (BMSG, 2001: 51-52).

The Austrian Hospitals and Major Equipment Plan (Österreichischer Krankenanstalten- und Groß-geräteplan – ÖKAP/GGP) is an important pillar of the Austria Health Reform that was started in 1997. Its aims are to ensure structural quality and to optimize the allocation pattern of health care and the interactions with the (public) health system and between its sectors. The ÖKAP/GGP regu-lates numbers of beds, key areas and geographical position of the public hospitals. Detailed regula-tions are fixed in provincial hospital plans (Landeskrankenanstaltenpläne) (BMSG, 2001: 52).

Looking at the development of hospital provision over the last 20 years, one can say that the amounts of hospitals per 100,000 inhabitants have stayed relatively constant. The number of beds per 1,000 inhabitants has decreased from 11.2 in 1980 to 8.6 in 2000 and the average stay has de-creased significantly from 7.2 in 1995 to 6.3 in 2000. The admissions per 100 inhabitants have in-creased from 19.5 to 29.3 a year from 1980 to 2000. These developments are in line with those in other EU-countries. They show that medical treatment is becoming more efficient. At the same time the consequences for home help and care are self-evident (Hofmarcher/Rack 2001: 75-80).

Table 4 Characteristics of hospital provision in Austria (1991-2000)

1991 1992 1993 1994 1995 1996 1997 1998 1999 2000 Number of beds in a hos-pital per 100.000 inhabi-tants

9,8 9,6 9,4 9,4 9,3 9,2 9,1 8,9 8,8 8,6

Admissions per 100 in-habitants

23,7 24,0 24,1 24,5 24,8 25,2 26,7 27,9 28,9 29,3

Average length of stay in days

7,2 7,1 6,7 6,6 6,5 6,3

Source: „Krankenanstalten in Zahlen“: www.kaz.bmsg.gv.at

2.4 Stakeholders

There are a great variety of actors involved in the different processes of health and long-term care in Austria: the federal and provincial governments are responsible for funding and provision, control-ling/inspection as well as for developing and planning provision. In addition, local governments have provision as well as planning functions. The social insurance agencies have an important role in financing and administrating health care and long-term care provision. Non-profit organizations as well as informal family carers provide most help and care services for older people.

From this follows a large number of interfaces where the different stakeholders cooperate in fund-ing, contracting, providing and controlling. However, it seems difficult to steer the different systems towards one mutually agreed objective.

A common phenomenon concerning the financing of these different systems (like “medical home nursing” and home help) is to try pushing certain types of provision or financing to other actors. The void or ambiguities which result from this behavior are often felt negatively by clients/patients

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and/or their informal carers. Also, it is unusual that stakeholders reflect on potential consequences for the other systems that might stem from reforms in one sector. For example, the DRG-based fi-nancing system for hospitals that was introduced in 1997 aimed at among others and succeeded in reducing the average length of stays in hospitals but, at the same time, put pressure on community care provision. Another example is when the provincial governments profited quite substantially from the implementation of the Long-Term Care Allowance Scheme – however, rather than using the money that was economized on lower bills for institutions to invest in further community care services or innovation, it was mainly used to rebalance regional social assistance budgets.

Another pertinent conflict line dividing the stakeholders can be identified between the different pro-fessional groups. Health care professionals have a better regulated educational and job profile, higher pay and higher status than staff in the area of long-term care for the elderly. This has a vari-ety of consequences for the ability and willingness of professional groups in health and long-term care to cooperate and work together.

Important stakeholders in long-term care provision in Austria are the non-profit organizations such as the Austrian Red Cross, Caritas, Diakonie, Volkshilfe and Hilfswerk. With a few exceptions (Austrian Red Cross) they either have religious (Caritas, Diakonie) or political party (Volkshilfe and Hilfswerk) affiliations. Whereas non-profit organizations’ links to religion are quite common in many countries, links to political parties are an Austrian specificity: the Austrian political culture is characterized by a long tradition of pillarisation, where all areas of society have been linked to the main political parties (schools, seniors organizations, sports clubs etc. etc.). As a result, in Austria, choice – in terms of being able to choose between providers between different providers linked to different political parties – has been considered an important feature, in particular for the older gen-eration and in rural areas. Todate, an important sign for the diminishing influence of ideological cleavages between the providers can be seen in the fact that the most important ones have formed a working group (“Bundesarbeitsgemeinschaft Soziale Wohlfahrt”) with the aim to harmonize their interests towards federal government policies and e.g. to develop quality criteria for social services.

Concerning patients’/users’ interests, mostly the interest organizations of people with disabilities at working-age were engaged in influencing care policies, in particular the introduction of the long-term care allowance. The large seniors’ organizations (also affiliated to the political parties) also play a role when it comes to representing older people’s interests in health and long-term care. However, until now they have focused more on issues of pensions than on health and social care is-sues. Family carers are not organized on the national level, but there are smaller – self-help type – organizations for caring family members (e.g. carers of those with Alzheimer’s Disease or those with psychiatric diseases). As mentioned above the clients/patients and their carers are usually the last link in the chain of provision and have to compensate for ambiguities and gaps in the responsi-bilities of the other actors.

2.5 Demands and plans for improvement

The important points in the discourse on long-term care and health provision for the elderly in Aus-tria can be identified from several documents that express demands or plans for the improvement of these provisions. During 1999, the UN-Year of the Elderly, the Austrian Federal Government con-vened several working groups, consisting of experts – providers, interest groups, representatives of political parties and local, regional federal government, researchers and older people themselves – in the field (20-40 experts each). One working group was on help and care of the elderly in home

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care and institutions. A variety of recommendations to improve the provision of long-term care for the elderly were elicited (Kalousek/Scholta, 1999), for instance:

• More support for family carers: better and more information for caring relatives, educating gen-eral practitioners to play a role in networking and giving information, better coordination be-tween providers and more training and support services for family care givers.

• Better interface between institutional and home care: implementation of care and case manage-ment and improving quality assurance. In its brochure on developing quality, the “Bundesarbeit-gemeinschaft Freie Wohlfahrt” (2002: 2) states case management as an important quality crite-rion.

• More choice for clients in provisions.

• Transparent financing systems: Harmonizing financing e.g. for home care is demanded from dif-ferent sides (Wild, 2002).

• Standardized federal legal regulations concerning education and professional profile of all staff in the field of elderly care.

• Standardized federal training system for staff, with different modules and scope for mobility be-tween different professions.

• Improvement of care provisions on the week-ends, nights also short term and day care.

The conclusion of the needs and development plans for long-term care of the provincial govern-ments also include some of these points, they are (Schaffenberger et al., 1999):

• expanding services for care of the elderly (especially day care and day centers),

• improving provision to meet the needs of the old and people with dementia,

• improving structures to enable integration of different provisions,

• improving and securing quality and economic outcomes of provisions.

Finally, some reform steps in the health reform also concern older people, like (Hofmarcher/Rack, 2001):

• Creating 57 new geriatric wards until 2005,

• Improving hospice and palliative care provision,

• Improving home health services and day clinics.

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3 Model ways of working

3.1 The understanding of integrated care in Austria The term integrated care has experienced growing popularity within the last few years. The increase of attention towards Integrated Care and its variants is accompanied by a growing number of mean-ings attributed to these terms. As a basis for future discussion and research projects it is essential to clarify the use of these terms. Therefore, this section shall reflect the understanding of Integrated Care in Austria.

3.1.1 The terminology used in Austria

When talking about integrated care in Austria, one usually refers to case management. Both in the-ory and in practice this concept has been predominant since the issue has gained public interest. Other concepts of integrated care and the idea of integrated care itself are of subordinate interest and use in Austria. They only exist in connection with case management, often lacking explicit definitions. Accordingly, there is a variety of literature on case management in Austria but hardly any publication on care management or on integrated care as a self-contained idea. Even coordina-tion, the second popular idea in the field of integrated care in Austria, is being used in a rather im-precise way. In the following the use of the terms integrated care, care management and cooperation shall be shortly described and the term case management shall be considered in detail.

There is no explicit definition of the term-integrated care, but from its use and its concepts one might draw a few conclusions. Firstly, the idea of integration refers to the horizontal as well as to the vertical level. Secondly, the aims of the process are to guarantee demand-orientation, a continu-ity of service provision and a high standard of quality (Grundböck et al., 1997: 13; Kain, 1994: 13ff.; LBI, 2000). It is impossible to compare the use of this term on the international and on the Austrian level concisely on the basis of this scarce information. Statements concerning the nature of care management are just as fragmentary as the ones about integrated care. In Austria care man-agement stands for the design of the cooperation between care providers (Grundböck et al., 1997: 14; Grundböck et al., 1998: 101).

The question whether this design refers to a particular case or cooperation in general thus remains open. However, as a basic definition we may conclude that care management is a contract between different service organizations on the management level. Another kind of vagueness can be found when talking about coordination, cooperation and networking: there is no distinct separation be-tween those terms, usually though, the term cooperation is applied. In contrast to this vagueness the internal structure of the conglomerate at stake is very elaborated. There is a multitude of sugges-tions on how to subdivide and therewith characterize the different ways of networking, cooperating or coordinating. The characteristics used for this task are closeness (from formal agreements to agreements concerning working procedures), type of involved institutions (from service providers to decision-making bodies) and number of partners (from intra- to inter-institutional arrangements) (Bahr/Leichsenring, 1995: 25; Grundböck et al., 1998: 191; Grundböck et al., 2000: 221; Hofer, 1999: 26; ÖBIG, 1993: 225). Thus the vague definitions are met by a complex content, which stands out because of the attention it pays to decision-makers, e.g. on the political level.

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The concept of integrated care preferably talked about and mainly used in Austria is case manage-ment. This term, as it is used in Austria, stresses the individual case with its specific needs and its long-term aspect. The basic idea is that all cooperative and organizational tasks are taken over by a single person, preferably a qualified nurse. In this function s/he should represent the contact person for the patient, his or her relatives and the internal as well as external service providers. Even though it is her/him who collects information about the market for care services and the develop-ment of the patient’s needs, it is still the patient him- or herself who makes the decisions (DWPS, 1998: 5ff.; Grundböck et al., 1997: 14; Grundböck et al., 1998: 101; ÖBIG, 1993: 228; RKW, 2001: 3). There is the – not undisputed – suggestion to distinguish between an internal and an external variation of case management on the organizational and personnel level. The external variation re-fers to the relationship between the case manager and her/his client and works on the level of the ‘market’ for care services. The internal variation refers to the client-orientation within the individual (BMFSFJ, 2000: 426ff.). All in all the use of the term case management in Austria resembles its in-ternational use. It stands out due to the naming of a specific profession as ideal case managers. Un-fortunately, the question whether the term case refers to the person or the situation the person is in remains unanswered.

In summary the idea of integration within the process of care delivery is being realized in a multi-tude of concepts, which can still be expected to grow in number and evolve in quality. Examples for the diversity of possibilities of realisation are the concepts of case management, which is need-driven, care management, which pays also attention to the financial perspective, and networking, which describes a certain quality of cooperation. The Austrian discussion about integrated care con-centrates on the matter itself, thus neglecting definitions. The – often-rudimentary – definitions partly resemble, partly contradict their international equivalents. The concept of case management is in the centre of attention as well as the variant prevalently realized. In the practical model ways of working in Austria, case management is very often reduced to discharge management (see 3.3.)

3.2 Approaching model ways of working in Austria As becomes clear from the description of the current system of help and care for the elderly in Aus-tria, there is a need for better care systems, which is much discussed at present. In the late 80’s and early 90’s several research as well as practical projects were initiated which have multiplied since then.

Looking at models for integrated care systems, there are three types, which can be seen as a basis for description and analysis:

• The theoretical models, which describe the model ways of working and demonstrate the (posi-tive) aspects of an integrated care system.

• The practical models (projects) that try to implement the theoretical concepts.

• The speculative models that can support the analysis of problems of integrated care systems and the systems development (Lindell/Olsson, 1999: 39).

Currently, the main focus should not be put on finding new theoretical model ways of working for integrated care, as the already existing theoretical models give us sufficient background for practical model ways of working. At this stage, it is more important to adapt the theoretical models to the practical situation in our societies (Grimm, 2002: 53-59).

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This chapter is focused on two theoretical models in Austria, on practical models that illustrate these as well as on the connection between theory and practice. The two theoretical models are the Integrated Health and Social Care Districts (Integrierte Gesundheits- und Sozialsprengel) and The Virtual Hospital at Home (Das virtuelle Krankenhaus zu Hause).

3.3 Theoretical model concepts of working

3.3.1 Integrated Health and Social Care Districts

In 1990 the government stated the introduction of Integrated Health and Social Care Districts (“In-tegrierte Gesundheits- und Sozialsprengel”, in the following: IGSS) in Austria as a major aim of fu-ture health policy. The Austrian Federal Institute of Health (Österreichisches Bundesinstitut für Ge-sundheitswesen (ÖBIG)) developed the respective theoretical concept (ÖBIG, 1993 with the idea that IGSS should be regional organizations for co-ordination and co-operation of health and social care organizations within a defined geographical area. The concrete work of an IGSS should be guided by the regional situation. Also, they were to analyse the existing provisions, to guarantee the existence of health and social care organizations and to act as partners for the patients and their families by helping them find the organizations to meet their specific needs.

An IGSS was to be comprised of a part of a city or several local governments with a number of in-habitants between 10.000 and 20.000 persons in all.9 The health and social care districts have to co-operate with public services for financing, controlling and strategical arrangements.

The objectives of the concept are:

• to improve and guarantee the provision of health and social care in a district,

• to coordinate and harmonize the services of health and social care organizations,

• to optimize the co-operation and exchange between the health and social care organizations,

• to increase the effective output of the health and social care organizations in a district by catering to the special requirements of the patients,

• to help patients and their families to find the correct organization for their needs,

• to initiate and develop health programmes.

The IGSS concept improves and extends the health and social care systems in a region. This also improves the situation for the elderly in need of care at home as it will be possible for these organi-zations to find the best organization(s) to meet their special needs and requirements. Also they help to improve the quality of care by securing its continuity and avoiding over provision the doubling of services.

They should develop preventive and rehabilitative health programmes to prevent and/or delay the development of diseases or disabilities responsible for an augmented need of care.

9 Austrian municipalities/communes comprise entities with some 300 inhabitants as well as, for instance,

Vienna with its more than 1.8 million inhabitants. Thus, in general, an IGSS would comprise about 5 smaller municipalities/communes.

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The conceptual guidelines for an IGSS outline them mainly as information centres about health and social care organizations in a district but do not include advice and counseling of the elderly in need of care, concerning which kind of health or welfare organization they should select for their special needs.

In Austria there are different practical ways of working which are supposedly developed along this theoretical concept of IGSS (see A1).

3.3.2 The Virtual Hospital at Home

In 1998 the „Ludwig Boltzmann-Institut für Medizin- und Gesundheitssoziologie” in Vienna – a re-search centre for health and medical sociology – developed a theoretical concept for integrated care in Austria (LBI, 1999). The concept is based on international experience of “hospitals at home”, empirical fieldwork and practical models for integrated care in Austria (Pelikan et al., 1998: 14).

In the concept Virtual Hospital at Home social care providers offer a “hospital at home” for pa-tients. In practice, this means that social care providers have to organize an individual network of providers for every patient to manage his/her illness at home. The starting point is the co-operation between health and social care systems and, especially relevant with regard to the structure in Aus-tria, the construction of a network between health and social care systems and different social care providers (see 2.4; Pelikan et al., 1998: 16-17).

This means integrating health and social care systems without establishing a new organization, i.e. virtual integration). So, The Virtual Hospital at Home offers care following the hospital characteris-tics, in case of the patient’s need, at the time of the patient’s need and in the patient’s own home, provided by a combination of adequate providers (LBI, 1999: 14). The theoretical model „Virtual Hospital at Home” was developed by a study of the LBI where existing model ways of working were collected and analysed.

To summarize one can say that the focus of the theoretical models and the model ways of working in Austria is to improve cooperation between the different health and social care systems (see 2.4. and 2.5), not the integration of health and social care systems into one system.

3.4 The practical model ways of working The starting point of all practical model ways of working in Austria is a holistic approach. This means that the older person in need for care is seen in relation to his/her biography and environment and not as an isolated entity (Österreichisches Hilfswerk, 2001: 29). All practical model ways of working in Austria try to see the person in need of help and care not as a helpless object of care but as a self-determined user with his/her own needs and wishes.

In the concrete, practical work, networking and co-operation between patient, hospital and social care system(s) the main prerequisite is to provide better care for the elderly. The target is to over-come the division of provision of health and long-term care for the elderly. The model ways of working try to find optimal ways of co-operation between established health and social care sys-tems. They do not establish new organizations (Schmidt, 2002: 12-13).

The different model ways of working in Austria can be divided into four types (LBI, 1999: 36-39):

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a) Extramurally organized model ways of working: The starting points of these model ways of working are the providers of social care, in general private non-profit organizations offering home help, meals-on-wheels etc. – and (in most provinces except Vienna) home nursing. These social care providers exist in all of the provinces and co-operate with the medical field, repre-sented by a general practitioner (see Annex A1).

b) Vertically integrated extramurally organized model ways of working: Within the nursing and the care sectors pre-conditions for co-operation and substitution are created; the social care sec-tor is the point of departure. The scope of action is the region of the hospital and the social care organization (see Annex A3).

c) Vertically integrated intramurally organized model ways of working: These model ways of working have the same background as the vertically integrated extramurally organized models; the only difference is that in this case the point of departure is the hospital (see Annex A4).

d) Intramurally organized model ways of working: In this model, the professionals working in a hospital are responsible for the mobile care of patients at home. For example, teams of nurses offer medical care for the patients at home under supervision of the hospital staff (for example the integrated community care of patients with cystic fibrosis in the “Lainz hospital” in Vi-enna).

This categorization represents ideal-type models. There has been some criticism of this as in reality the models partly overlap and cannot always be put clearly into one of these categories. In Austrian reality a number of variations of these idealtyped models can be found in every province, most of them defined as model projects others as large-scale mainstream practices. Still, for the target group “older persons” we did not find an example for an intramurally organized model way of working. Most of the model projects considered in the analysis are situated in Vienna (14 out of 27), four in the province of Upper Austria, three in the province of Salzburg, two in Styria and one in each of the provinces of Burgenland, Niederösterreich, the Tyrol and Vorarlberg.

The reason for this situation might be that networking and co-operation is easier – but also more important – in a city than in rural areas. And/or that in rural areas the informal care of the elderly in the need of help and care, such as family care and neighbourhood help is more common, and insti-tutional as well as home care provision is less available.

The different spheres of competence between the government and the provinces (see 2.1-2.5) have, on the one hand, resulted in various co-operation agreements between local governments and Hos-pital Systems of a province. On the other hand, local level model ways of working have developed in which one specific hospital co-operates with one specific social care organization.

For example in August 1996 the Hospital System of Vienna (Wiener Krankenanstaltenverbund) and the local government department of Vienna for care at home (Magistratsabteilung 47, Betreuung zu Hause) made a co-operation agreement concerning patients in need of long-term care. The target of this cooperation agreement between seven hospitals and different social care organizations in Vi-enna was to improve the co-operation and co-ordination between health and social care organiza-tions focused on discharge-management. For the realization of these co-operation agreements, working-groups in some districts of Vienna were established.

In 1999 the Hospital System of Vienna (Wiener Krankenanstaltenverbund), a municipal health de-partment of the City of Vienna (Magistratsabteilung für Angelegenheiten der Landessanitätsdirek-tion) and the Austrian Umbrella Association for Social Security Agencies (Hauptverband der

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Österreichischen Sozialversicherungsträger) have commissioned the Ludwig Boltzmann-Institut for Medical and Health Sociology to carry out a feasibility study on patient oriented integrated care in Vienna (LBI, 2000b). The result was an action plan and a federal recommendation for a best prac-tice model of integrated care in Austria (see 3.1.2).

The important points of this action plan are:

• to optimize the process between the allocation of care and discharge management

• to advance case management and to support professionals in social care services

• to construct a network between intramural and extramural services

• to construct a regional information pool for the patients.

Also, in July 2002 the practical model “Patient oriented integrated care” in Vienna (Districts 14-17) was started (see A4) (www.univie.ac.at).

The latest model in Austria will start officially in October 2002. The project is called “MedTo-gether” (www.medtogether.at) and aims to improve the management of the interfaces between health provisions and social care organizations throughout Austria10 (see 2.1 and A5).

Although the different health and social care systems on different levels try to find new model ways of working and although similar in structure (discharge-management, co-operation), there is no ex-change between the different model ways of working. The reason for this situation is that there is no specific government programme for integrated care, that the different spheres of responsibilities of the state and the provinces complicate the co-operation of health and social care organizations, and that the social organizations compete with one another (see 2.1-2.5).

Thus, the government and the particular health and social care organizations are looking for solu-tions to work together, but they do not try to integrate the different health and social care systems into one system.

So the common targets of the model ways of working are (only) to give elderly in need of care the possibility to live at home. Therefore health and social care organizations try to improve the co-operation between each other. The background of all model ways of working is discharge-management (see 3.1).

10 Thus, once more it will be necessary to formulate agreements between the federal and the provincial gov-

ernments according to Art. 15a B-VG (Art. 5 und 6) of the Austrian Constitution.

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4 Conclusions: Lessons to learn What becomes clear in this report on the Austrian situation is that different types of financing of health and social care and the fact that health is subject to federal regulation and social care is sub-ject to provincial regulation makes the coordination of these two areas very difficult. Because of this legal distinction between health and social services there has been no integration of these fields on federal level until now.

The involved actors in these field – federal government, provinces, health and social service organi-zations, communities, health insurances – have been aware of this dilemma for quite a long time and a number of efforts have been made to improve the situation (see 3). A feasibility study (LBI, 2000 b) has shown that there are different model projects of integrated health and social care. It be-came clear while looking at these different models in Austria that theoretical models available on an international level have to be tailored to fit the individual situation in the country, and to be able to develop new paths.

In Austria, it was realized that it is not possible to radically change structures that have grown in the last 30 years, and that are very closely related to the political structure (“pillarisation”). It seems as if it was hardly possible to integrate the health and social service systems in Austria into one sys-tem. However, there are extensive efforts to improve the coordination of health and social services and it is considered as being important to build up an infrastructure for care and case management (Wild, 1992: 24).

One of the latest efforts to improve the management of the interface between health and social care is the government-initiated project “MedTogether”(see 3). This is a project working on the federal level with the aim of initiating regional networks. An important aspect of this project will be to in-volve all stakeholders in health care and social networks in the project. This project is a reaction to suggestions from different sides concerning the need for improvements in this area (see 2.4). An-other important improvement from earlier projects will be using better project management struc-tures and to implement once more the method of benchmarking between the involved projects.This improvements cannot be reached on a federal level but are mainly relevant on a local level. Efforts in this direction are made for example in the patient-oriented integrated care projects in Vienna, that are also beginning at the moment.

A specific issue of coordination within social services in Austria concerns the coordination between different providers and between provinces in the provision of social services. This is due, on the one hand, to the varied legal frameworks in the provinces and, on the other hand, to issues of competi-tion between different providers (especially those linked to different political parties). One lesson to be learned from the models aimed at improving health and social care is that social service provid-ers have learned to work together better. Due to the number of social service providers and the fact that there are several in one region, they have been under pressure to participate in the model pro-jects and thus to work together and keep the logic of competition in the background.

One of the main issues in all these models is the effort to combine a reduction of cost increases with improved quality of life for the clients and other people involved. It is still open whether these aims can be combined. Especially, if social services are given more responsibilities and have more clients due to shorter length of stays in hospitals and improving opportunities for home care services, there is a need to improve social services’ infrastructure as well as staffs’ education, working conditions etc. These improvements would then also involve further spending.

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A main lesson that has been learned from the models that have been implemented in Austria so far concerns the cooperation and working together between different organizations that operate accord-ing to different logics and have different types of personnel. It was shown, that after overcoming first doubts, people cooperating in these projects develop a new understanding of the other sectors’ work and both groups of personnel learn from each other and can improve their performance.

The success of model projects depends on the engagement of those involved in them and in the structural framework of the organizations at hand. We have seen that, in successful projects, the staff members have to take up the ideas of a project within the organization to be able to take it out-side and to cooperate with staff from other areas.

It has also become clear that projects need clear competencies and guidelines to function success-fully. The split competencies and regulations in the area of health and social services that these pro-jects strive to overcome are at the same time the barriers for successful work of these projects.

Another issue is criticism on the Integrated Health and Social Districts (IGSS) that can be found especially in Tyrol and Vorarlberg. Some experts argue that they are only a group of providers that integrate social service provision and nothing more. From our point of view some of the envisaged aims in coordinating regional social service provision have been reached (see 3). The IGSS have shown professional ways of working. Also, the IGSS have always been oriented towards the needs of the clients. They are existing regional networks in which providers from different political back-grounds and with a long tradition of competition have learned to mutually work together. However, working together with regional hospitals and other health providers has been missing until now.

With respect to the new project “MedTogether” which aims at building up new regional networks in the area of health and social care, it will be interesting to see, whether they will connect to existing networks like the IGSS, whether the existing networks will be flexible enough to adjust to new net-works or whether new networks, in the worst case, lead to a disintegration of the existing ones. “Medtogether” does endeavor both to use existing networks and to support new ones. Another is-sue to be noticed is that while there have been studies that looked at different model projects and thus the model projects could learn from each other, there are no apparent links and networks con-necting the different projects and enabling on-going exchange. This is, for instance, noticeable in the respective projects’ websites.

Last but not least, there is a discussion in Austria on the issue whether the increased coordination and integration of social services – as e.g. in IGSS – might lead to less choice of services for the service users. However, with respect to the lack of staff and services, which is to be expected, these worries will certainly vanish, in particular if the only distintion in providers’ qualities remains to be their political or religious affiliation.

All in all one can say, that the fragmented situation of health and social service provision in Austria has been recognized and that there have been several efforts made to improve this situation. How-ever, there is still a lot to be done in order to be able to speak of integrated health and social service provision in Austria.

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Annex: Selected model ways of working

A1 Social Care and Health District Hartberg

Example for an extramurally organized model way of working based on the concept of Inte-grated Health and Social Care Districts (see 3.3.1.)

Name Integrierte Sozial- und Gesundheitssprengel in Hartberg (ISGS-Hartberg) Provider In 1989 the Integrated Social Care and Health Districts in Hartberg was es-

tablished. The social care and health organizations “Red Cross”, “Caritas” and “Volkshilfe” work together in this field and since 2000 there is also a co-operation with the district hospital. The principal task is to coordinate the network between the different social and health care providers in a district.

Objectives • to offer patients in need of care the possibility to stay at home, • to improve and guarantee the offer of health and social care organizations

in a district, • to help patients and their families to find the correct organization for their

needs, • to start and develop care programmes for relatives

Target group In 2002 941 elderly received care services in the districts. Number of staff involved 55 persons (managers, nurses, family and home helpers) plus volunteers work

in the district. In 2002they worked in summary 48.319 hours whereas 28.696 hours were for care and 2.536 hours for case management.

Methods The Social Care and Health District in Hartberg is a regional organization for co-ordination and co-operation of health and social care organizations in a district. The concrete work of a Social Care and Health District is guided by the regional situation. They analyse the provision situation of a district, guar-antee the provision of health and social care organizations in a district and they are the partners of the patients and their families to look for special or-ganization(s) for their needs. They offer home nursing, family care, meals on wheels, visiting services and health prevention.

Strengths and weak-nesses

Strengths • The Social Care and Health District in Hartberg extend the health and so-

cial care systems in a region for the elderly in the need of care a care at home.

• They improve the quality of care because the continuity of care is secured and the services are more in line with each other.

• They have preventive and rehabilitative health programmes to prevent and to delay the necessity for care.

• The Social Care and Health District in Hartberg co-operates with the dis-trict hospital..

Weaknesses • The Social Care and Health Districts are basically associations, where dif-

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ferent providers get together and provide services. This leads to the ques-tion whether clients in one district have enough choice of providers.

Results of evalua-tion/keywords

The Social Care and Health District in Hartberg is a specific model way of working in one province of Austria. It is a good practice example to start a model way of working on the provincial level and to start a political pro-gramme for a better care provision or better co-operation between different social service organizations and a district hospital..

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A2 Organization of patients’ care between the Donau hospital and the Health and Social Centre Donaufeld

Example for a vertically integrated intramurally organized model way of working

Name Organization der Patientenbetreuung zwischen dem Donauspital und dem

Gesundheits- und Sozialzentrum Donaufeld (GSZ 21/22) (LBI, 2000a) Provider Donau hospital, Health and Social Centre Donaufeld

Based on the co-operation agreement between The Hospital System of Vi-enna (Wiener Krankenanstaltenverbund (KAV) and the Local Government Department of Vienna for Care at home (MA 47, Betreuung zu Hause)

Objectives • to develop concrete structures between the Donau hospital and the mo-bile organization Health and Social Centre Donaufeld to guarantee the continuity of provision for elderly in need of care

• to limit the number and length of hospital stays • to intensify the offer of information, advice and care

Target group Older patients needing complex mobile provision Number of staff involved A working-group of hospital doctors, family doctors, managers of social

care organizations, social workers and local government officials. Methods The working group met regularly every month from 1997 – 1999 to de-

velop relevant structures for discharge-management and to transfer the re-sults into their practical work.

Strengths and weak-nesses

Strengths • The working group evaluated the output of their meetings as being ef-

fective. The regular working group meetings between hospital, family doctors, and mobile care organization improved the concrete co-operation between the different actors in the care system. The exchange of experience helped the involved staff to understand the process of or-ganization of the other involved actors in care provision of the elderly in need of care and the working plans they developed helped to co-ordinate discharge-management for elderly in the need of care.

• This model way of working is a first step to start a co-operation between regional health and care systems.

Weaknesses • The weaknesses of this model way of working for the working group are

the complicated structures of the Austrian Health System (see 2.1 – 2.5) and the missing legal framework for theses model way of working.

Results of evalua-tion/keywords

• A regional working group with different actors from the health and so-cial care systems is seen a first step to start co-operation.

• The intensive exchange of experience improves the acceptance of the different ways of working in hospitals and social care services.

• The co-operation agreement is an important basis to improve the co-operation between health and social care organizations.

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A3 Discharge-Management in the “Hartmann” – Hopsital: a cooperation pro-ject between Viennese Red Cross and the ”Hartmann” Hospital

Example for a vertically integrated extramurally organized model way of working

Name Discharge-Management in the Hartmann Hospital Provider Wiener Rotes Kreuz (Viennese Red Cross), Hartmann Hospital Objectives • it is a follow-up project of the model project Recovering at Home (Da-

heim gesund werden) of the Viennese Red Cross and the Hanusch Hospital,

• to foster cooperation between hospital and home care service providers to guarantee the continuity of provision for the elderly in need of care,

• to offer individual services in the hospital (before discharge) for elderly in need of care at home,

• to limit the hospital stay Target group Patients needing complex provision at home Agencies 2002 were 389 inquiries, on average there were 32 consultations per

month 1 discharge manager + substitute

Methods The discharge-management takes place in different wards of the hospital and the heads of the wards refer the patients to the discharge-managers. The discharge manager accepts the responsibility for organizing and coor-dinating the provision of home care for the patients while they are still in the hospital.

Strengths and weak-nesses

Strengths for patients and their families • The patients and their families receive a „made-to-measure” mainte-

nance schedule for care at home from the discharge-manager. • The discharge-manager works in co-operation with patients, families,

hospital and social care services. The personal confidence between dis-charge-manager, patients and their families helps to reduce the fear and the insecurity caused by the new personal situation of in the persons in need of care and their families at home.

Strengths for the hospital • The co-operation between hospital and discharge-managers demon-

strates the limits and the possibilities of mobile social care services and promotes the bilateral understanding of hospital and social care ser-vices.

• The discharge-managers relieve the hospital employees in their work and the duration of the patients’ stay in the hospital becomes shorter.

Strengths for the home care organizations • The social care service receives detailed information from the dis-

charge-manager on the need for care. Thus, the social service providers have enough time to prepare special services for the elderly in need of care at home.

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Strengths for the health system • The co-operation agreement between hospital and social care services

(local-level) is an important basis for the continuity of provision of in-tegrated health and social care for older persons.

Weaknesses • The high standards of the discharge-management: discharge-managers

have to have knowledge about the medical sector, the mobile care ser-vices and have to organize the network between different systems and persons (hospital employees, social care employees, elderly in the need of care and their families).

• The high standards of the co-operation agreement between hospital, discharge-manager and social care system are the prerequisite for an ef-fective network.

Results of evalua-tion/keywords

• High contentment of the patients and their families. • Enough time for the social care organization to prepare the care at

home. • The stay in the hospital is shorter and thus the hospital costs are re-

duced. • The intensive exchange of experience improves the acceptance of the

different ways of working of hospitals and social care services.

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A4 Patient oriented integrated care in Vienna, districts 14-17

Name Patientenorientierte integrierte Krankenbetreuung (in Wien 14.-17.) [pik]

(www.univie.ac.at/pik) / July 2002 – December 2004 Provider Viennese Health Insurance Agency (Wiener Gebietskrankenkassen) and the

local government of Vienna Objectives Patient orientation:

• to assess the needs of the patients • to develop an information system of mobile care for the patients • to include the patients in developing their care programmes • to help the patients to be active partners in their care programmes Integrated care: • to provide a bridge in health and social care in difficult phases (e.g. a

hospital stay is necessary for a person, the discharge of a patient from a hospital, home care is needed)

• to improve networking and communication between the professionals and the patients

Number of staff involved and target group

The following groups work together in a district: • patients, their families and their other social contacts • hospitals • medical practitioners • social care organizations • therapists • pharmacies

Methods • a project team with regular meetings supports the work • an evaluation team accompanies the project • the LBI’s feasibility study will be validated through this project • an interactive website for information exchange

Strengths and weak-nesses

Strengths • The important point of the project is to include the patients and their

families in it and to install a focus group. Weaknesses • The project only tries to improve the management level between the dif-

ferent partners and does not link the health and social organizations and truly integrates them.

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PROCARE | National Report Austria 36

A5 “MedTogether – Management between outpatient care and hospital care

Name MedTogether – Schnittstellenmanagement zwischen ambulanter und statio-

närer Versorgung “MedTogether” – Management between outpatient care and hospital care October 2002 – 2004 (www.medtogether.at)

Provider Federal Structural Funds Objectives • to improve the management between social care and health provision

• to improve the care of the patients • to optimize the admissions and the discharge of patients in a hospital • to increase the satisfaction of the patients and the Health care providers • to optimize the length of stays in hospitals • to slow down cost increases in the hospital

Target group Hospitals, social organizations and patients and their families in a region build a network

Number of staff involved The project is focused on the whole of Austria Methods • a regional project team is the basis

• tasks forces have the overlapping function to build an network between the regional project teams

• a discussion forum is for all involved persons • the project coordinator and the controlling team lead the project • the project is structured according to people with specific diseases: e. g.

diabetes, cardiac infarction, aberrant mamma, apoplectic stroke Strengths and weak-nesses

Strengths • It is the first model way of working that will be planned and imple-

mented throughout Austria. Weaknesses • It is only a project to improve the co-operation between the different

health and social care systems concerning the involvement of patients and their families. The focus of the project is not to integrate health and social care systems in one.