PROSTATENEWSISSUE 52/MARCH 2013reducing the impact of prostate cancer

BLOKES LUNCH CAMPAIGN

BIGGEST EVER

Contents page 02

page 03

page 04

page 06

page 08

page 10

page 12

CEO MESSAGE

AROUND THE COUNTRY

RESEARCH

AWARENESS

SUPPORT

HEALTH PROGRAMS & NURSING

FUNDRAISING

page 14OPINION

page 16PARTNERSHIPS

Karyn Foster (PCFA-SA) and Max Beck, President of the Adelaide Beer and Beef Club, at cheque presentation lunch at Kooyonga Golf Club on 21 December

NATIONAL BOARD

David Sandoe OAMChairman

Jim Hughes AMDeputy Chairman

Chris Hall (Chairman)Finance & Operations

Professor John Mills (Chairman)Research Advisory

Dr David Malouf (Chairman)Awareness & Education

David Sandoe OAM (Acting Chairman)National Support Groups

Steve Callister (Chairman)Marketing & Fundraising

John PalmerRotary

Tony Sonneveld OAM (NSW/ACT)Peter Gebert (VIC/ TAS)Roz Baker (WA)Professor Judith Clements (QLD)Professor Villis Marshall AC (SA/NT)

State Chairmen

> CEO MessageFrom mine sites to factories and offices right across Australia, PCFA’s Ambassador speakers work tirelessly to deliver a vital prostate cancer

awareness message to communities and businesses.

I am pleased to report that following an extensive consultation process with a representative group of current Ambassadors, we have refreshed the Ambassador presentation and other resources. The new resources include:

• Ambassador Handbook

• Three new presentations: Prevention and Early Detection; Treatment Options and Challenges; What Partners and Carers Need to Know

• Information for organisations on how to request an Ambassador speaker and their role in supporting the Ambassador

The great news is that we have a large group of people who want to become Ambassadors.

We have organised the first of a series of training sessions for new Ambassadors on February 23rd and 24th. The training will enable our new Ambassadors to get speaking in the community as soon as possible.

Starting soon we will also hold State based refresher training for current Ambassadors. The first session will be in QLD in April. This will be followed by training in every State and Territory. We will communicate exact dates and issue invitations to attend in the near future.

Information on how to request an Ambassador speaker and all the new resources are available to download from www.pcfa.org.au. As the files are quite large, we have also produced an Ambassador Toolkit on USB, which has been mailed to all current Ambassadors.

Thank you to all our Ambassador speakers and keep up the great awareness raising work!

Dr Anthony Lowe,Chief Executive Officer, PCFA

Cover shot: Football legends Garry Lyons & Billy Brownless join the blokes at the Baw Baw Biggest Ever Blokes Lunch in Warragul

The Long Ride to Cairns revving up

INSERT HEADLINE HERE

Queensland: Established in 2004 by Chris Dunne, the Long Ride™ has grown to become the biggest event of its type in the Southern Hemisphere and looks likely to build on its success again this year with the 2013 Long Ride to Cairns planned for 4-11 May. Riders will assemble near Ipswich with core riders set to travel all the way to Cairns, while raising funds and awareness for PCFA. According to Chris, the ride provides the opportunity to do something totally out of the ordinary:“If you want a challenge, to do something different, if you want to make a contribution to the community, then join the Long Ride™ and visit places you have never been, make new friends and above all make a difference,” he says. To join the Long Ride™ 2013, contact Chris at christopher.dunne@bigpond.com.

Western Australia: PCFA’s WA office recently had a new office fit out, generously funded by Lotterywest. The WA team is delighted with the revamp, saying its had a positive impact on the daily running of the organisation in WA – thanks Lotterywest!

Victoria: This April, AFL football legend David Parkin will join a spirited group of 25 guys on a ten day adventure of a lifetime. In its inaugural year, the Male Bag Ride, supported by Australia Post, will see each team member ride a Honda 110 cc ex-Postie Bike from Perth to Melbourne. The aim

of the ride is to capture the spirit of adventure, to heighten community awareness of prostate cancer and raise vital funds for PCFA support services throughout the community. Visit www.malebagride.org.au for further details on getting involved and supporting the Male Bag Ride.

NEW OFFICE FIT OUT FOR WA

MALE BAG RIDE INSPIRED BY SPIRIT OF ADVENTURE

New South Wales: The ‘Pull ups 4 Prostate’ event was held at CrossFit Marrickville in Sydney’s Inner West on December 22 with passionate event organisers, Emily and Tama, committing $1 for every pull up that the team could smash out. Participants more than delivered, reaching the aim of 10,000 pull ups in just an hour and raising over $10,000 for PCFA. The unique event was dedicated to Emily’s father who has been diagnosed with prostate cancer.

Pull ups 4 Prostate

Around the country

Adelaide: For the month of December, iconic Adelaide brand FruChoc’s carried a men’s health message devised by Robern Menz and supported by Triple M, Channel 9, GEM and GO! The PCFA message to talk to their doctor was seen on packets of FruChocs across South Australia in supermarkets, petrol stations, convenience stores and cinemas. The campaign was also heavily promoted on air by Triple M and Channel 9 celebrities, sports stars and PCFA ambassadors.

Other news: PCFA South Australia was thrilled to be announced as one of Channel 9’s official charity partners for 2013 during their New Year’s Eve Telethon.

FRUCHOCS SPREAD MEN’S HEALTH MESSAGE ACROSS SA

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> CEO Message

Logo User GuideIssue 2

ContentsThe aim of this guideImage selectionWhich formatDownloading the logoColoursMinimum size

Exclusion ZonePlacementOther supportersA few dont’sIf you need help

Graeme Higgs (centre) at a Long Ride™ promotional barbie generously sponsored by Gasoline Alley Harley Davidson Dealership in Brisbane

PCFA’s Research Program received a total of 83 applications for the 2012 funding round requesting a total of $22,844,180 in the following categories:

• Movember New Concept grants: 54 applications

• Movember Young Investigator grants: 18 applications

• Movember Equipment grants: 11 applications

Based on the recommendations of PCFA’s Research Advisory Committee, the National Board awarded nine Movember New Concept grants (NCG), five Movember Young Investigator grants (YI) and three Movember Equipment grants.

PCFA also continues to partner with Cancer Australia in the Priority-driven Collaborative Cancer Research Scheme (PdCCRS). In 2012 two grants were awarded.

Following is an outline of the Movember Young Investigator grant recipients and project summaries (we will provide an outline of the Movember New Concept grants awarded in the next edition).

Dr Puma Sundaresan from the University of SydneyEvaluating the Utility of a Patient Decision Aid for Prospective Participants in the TROG RAVES Prostate Cancer Trial (TROG 08.03)Clinical trials are the gold standard method for comparing different treatment approaches and determining the best option for a given medical condition. The introduction of potentially

beneficial treatments can however be delayed (and use of less effective ones continued) if a trial is slow to recruit patients and hence slow (or unable) to report results. This is often seen in cancer related trials. In order for patients to consider trial participation, they need to understand why it is being run, the pros & cons of joining the trial and how these weigh against their own circumstances and values. Although Decision Aids (DAs) have been used in various medical situations, the usefulness of a DA for men with prostate cancer has not been studied previously. The current study aims to assess whether a DA for men considering participation in a prostate cancer clinical trial improves men’s understanding of the trial, helps them make an informed decision about trial participation and reduces decisional conflict and anxiety.

Dr Margaret Centenera from University of AdelaideUsing explant technology to discover markers of prostate cancer treatment responseHormonal therapy is used to treat men with advanced prostate cancer, but although patients respond initially, resistance to therapy almost always occurs. There are many new drugs in clinical trials, but it is very difficult to tell if the drug is working. In this study, we will culture actual human prostate tumours taken from surgery with some very promising new drugs. This will allow us to find good markers of response to those drugs that could

be used in clinical trials to help decide whether the drugs should be approved. If the drugs are approved, the doctor can use the marker to help monitor if the drug is working in patients.

Dr Michael Cater from Deakin UniversityCan copper be used to selectively kill prostate cancer cells?The overarching aim of this project is to develop an effective therapy for prostate cancer, which targets a distinct characteristic of the disease ‘elevated copper’. Our copper-based drugs in the laboratory selectively destroy cancerous prostate cells without harming normal prostate cells. This project brings together the fields of metallomics and cancer research and is anticipated to have important implications for prostate cancer therapy.

Dr Jennifer Gunter from Queensland University of TechnologyHow does the metabolic syndrome contribute to prostate cancer progression and treatment resistance? Targeting hyperinsulinaemia in castrate resistant prostate cancer

Androgen deprivation therapy induces the ‘metabolic syndrome’ and high serum insulin levels, in turn associated with poor prognosis. We investigate the actions of insulin and anti-diabetic medications on processes that augment metastasis and support treatment

New Funding Grants: Movember Young Investigators

RESEARCH

PCFA’s Research Program has awarded nine Movember New Concept grants (NCG), five Movember Young Investigator grants (YI) and three Movember Equipment grants in the 2012 funding round. In this issue, we outline the Movember Young Investigator grant recipients and their project summaries.

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resistance. These findings will provide rationale to target insulin pathways in advanced prostate cancer.

Dr Gunter’s Movember Young Investigator grant is co-funded by Cure Cancer Australia Foundation.

Dr Liesel FitzGerald from Cancer Council – VictoriaIdentifying biomarkers associated with clinically significant and fatal prostate cancer through genome-wide mRNA expression and methylation analysesAt diagnosis of prostate cancer, clinicians are unable to predict which patients are at risk for an aggressive, life threatening form of the disease. Despite the fact that only 20-30% of patients will develop aggressive disease, the majority of patients undergo costly treatment procedures, which can result in debilitating side effects. Therefore, the identification of markers that, at diagnosis, can distinguish those men who are at risk for aggressive disease is of critical importance. This project aims

to discover such markers using new technologies that allow us to identify genes that are altered in prostate cancer tumours. Results from this study will have a significant impact on the way clinicians treat patients, which in turn will have a significant impact on the patient’s quality of life.

Dr FitzGerald’s Movember Young Investigator grant is co-funded by Cure Cancer Australia Foundation.

PCFA would like to recognise the Movember Foundation as a key funder of its National Research Program

“Our support for these talented young scientists guarantees future discoveries that will improve outcomes for prostate cancer patients”Professor John Mills, Chairman Research Advisory Committee

Prostate Cancer Foundation of Australia has a number of resources suitable for men and their families recently diagnosed with Localised Prostate Cancer. While this information is being refreshed and reprinted the resources are available online at www.pcfa.org.au

The resources include:• User Guide - How To Use This Pack • What Every Man Should Know

pamphlet• Localised Prostate Cancer:

A Guide for Men and Their Families• TreatED Prostate Edition booklet• Pelvic Floor Muscle Exercises for

Men pamphlet• Sex After Treatment, Prostate

Cancer booklet• Coping with a Diagnosis of Prostate

Cancer booklet

• Continence and Prostate: A Guide for Men Undergoing Prostate Surgery booklet

• Prostate Cancer, Anxiety and Depression fact sheet

• Maintaining Your Wellbeing book• Prostate Cancer Personal Organiser• What Women and Their Men

Need to Know About Prostate Cancer book (hard copy only, available on request)

LocaLised Prostate cancer Pack

If you would prefer a copy of all resources on a USB please contact PCFA on 1800 22 00 99 or contact your local Prostate Cancer Support Group

* Good news – around 85% of men will be alive 5 years after a diagnosis of prostate cancer

PCFA Ambassador Program Update The PCFA Ambassador Program was recently refreshed, taking into account feedback from existing Ambassadors, with the updated training delivered to new Ambassadors in Sydney on February 23rd and 24th. The new training package is now being rolled out around the country, with further training sessions being planned for each State and Territory.

The refreshed program offers three presentation options to people in the community, being:

1. Prevention and Early Detection. This presentation focusses on what people can do to maintain their health and wellbeing.

2. Treatment Options and Challenges. This presentation looks at decision making throughout the prostate cancer journey.

3. Prostate Cancer: What Partners and Carers Need to Know. This presentation discusses the support partners and carers need to build into their lives as they care for someone with prostate cancer.

Each presentation is about 20 minutes in length and allows time for people to ask questions. Ambassadors will additionally be equipped with a set of speaker notes for each presentation providing evidence-based material to help them address questions they may be asked.

First established in 2008 with a grant made available from the federal government, the PCFA Ambassador Program is made up of people from the community who deliver information and education about prostate cancer to community groups and organisations. Some Ambassadors are prostate cancer survivors, others are health professionals who want to volunteer their time to the community, some have known someone with prostate cancer, and some are just concerned about the issues and want to support the work of PCFA. What’s consistent is PCFA Ambassadors are keen to communicate accurate information to the community about prostate cancer and its effects.

For details on the Ambassador Program visit www.pcfa.org.au or contact ambassador@pcfa.org.au.

AWARENESS

FACING THE TIGER

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Living Well with Prostate Cancer is a new program of research aimed at finding better ways to support men with advanced prostate cancer.

Mindfulness & Living Well with Prostate Cancer

The diagnosis and treatment of prostate cancer is a difficult time for many men. Living Well with Prostate Cancer is a new program of research funded by the National Health and Medical Research Council being conducted by Griffith University and Cancer Council Queensland in partnership with the Australian and New Zealand Cancer Urogenital and Prostate Cancer Trials Group to find better ways to support men with advanced prostate cancer. Men who live in Queensland, New South Wales, Victoria or Western Australia are invited to participate.

The purpose of the research is to develop improved services for men with prostate cancer. Men who take part in this program will be provided with support information about prostate cancer by mail and some men will also receive mindfulness sessions over the telephone.

The mindfulness sessions will allow men to experience a meditation based program designed to reduce stress. We also ask participants to answer some questions about their health and prostate cancer experiences at different times over a nine month period.

If you would like to know more about Living Well with Prostate Cancer to see if it might suit you, please telephone the Recruitment Officer, Tahlee Marian on 07 3634 5324.

Professor Suzanne ChambersProfessor of Preventative HealthGriffith Health Institute

FINANCIAL SUPPORT PILOT (NSW)Cancer Council NSW is piloting two new partnerships with the Bill Assistance Schemes provided by Sydney Water and Telstra until the end of June, 2013 with the aim of increasing the support clients can be offered as part of these organisations’

Financial Assistance Programs. The pilot is geared at clients on a Centrelink pension with those eligible entitled to obtain up to $250 as a one off grant for partial payment towards unpaid utility bills. Eligible clients will be also be given access

to additional financial assistance measures related to Telstra or Sydney Water bill management.

For further information contact a local social worker or Cancer Council NSW on 13 11 20.

Professor Suzanne Chambers, a long-standing friend and supporter of PCFA, recently launched her book Facing the Tiger – A Guide for Men with Prostate Cancer and the People who Love Them and has kindly offered to donate the royalties to PCFA.

Offering practical strategies to help men and their families affected by prostate cancer cope with the emotional and psychological stress of living with the disease, the book draws on Suzanne’s extensive experience working with people with cancer and aims to help those affected regain a sense of ease about the situation in which they find themselves.

Suzanne is one of the world’s leading researchers into the psychological effects of cancer and how best to provide support, focusing most recently on trials of interventions that address couple support and psychological distress in men with prostate cancer. Available online at www.pcfa.org.au

SUPPORT

The inaugural PCFA Affiliated Support Group Leader National Training Conference will take place at the Sebel & Citigate Albert Park in Melbourne, 12-14 May 2013.

National Training Conference planning gears up

This exciting event will bring together support group leaders from across the country where relationships can be developed and group leadership strategies can be shared. By having all Prostate Cancer Support Group leaders together in one space, at one time – magic is bound to happen.

This Training Conference will have the unique blend of harnessing the vast amount of skill and experience of our nation’s prostate cancer support group leaders with evidence-based, yet practical and realistic, training workshops.

We can all unite, learn from one another and elevate the prostate cancer support group movement across the country. It is anticipated that this training and development will provide each support group leader with

pertinent support and guidance aimed at building on the already existing skills and experience.

This event will primarily focus on a number of invaluable plenary sessions and training workshops run by PCFA staff, guest facilitators and speakers selected for their extensive and expert knowledge of prostate cancer, men’s health and support group operations. MP Andrew Wilkie, an advocate for the development of prostate cancer support services, will be the keynote speaker at the Gala Dinner and a variety of exhibition stalls will be available throughout the conference.

To date, the interest shown and feedback received for the conference is both encouraging and exciting.

Funding for this event has been

provided by both PCFA and as part of the “Supporting men with prostate cancer through evidence-based resources and support” grant from the Commonwealth Government (Cancer Australia).

For further details on this event, please contact Charlotte Houghton on 02 9438 7022 or via email at charlotte.houghton@pcfa.org.au

John Friedsam, National Manager, Support Groups, PCFA

Albert Park, Melbourne – location for the 2013 PCFA Affiliated Support Group Leader National Training Conference

suppo

Q

Q

Q

Hi Margaret, congratulations on your recent appointment as Convenor of the Fremantle

Prostate Cancer Support Group. What was it that compelled you to become involved in a prostate cancer support group?

I had recently retired due to breast cancer metastising to the bone when, while

at a Lions Club meeting, a request was made for someone to take the minutes and do the correspondence for the Fremantle Prostate Cancer Support Group. Being a forced retired secretary, I thought that I could help but, of course, when I went to the meeting found out there was more to it than I was first advised. The men in the group were happy for me to be the Group Leader and I am still there two years later.

Leading the group is stimulating to me. We meet once a month and I have about 35 members on my mailing list. It varies, but about 15 people turn up to meetings.

Through what I’m doing for my group, I’ve got something to do for myself and I’m getting a lot out of it. I think it’s good for me, I don’t have time to think about what’s wrong with me.

What sorts of strategies do you use to recruit new members to the Fremantle Prostate

Cancer Support Group?

I attend as many Awareness Days as possible to make people aware of Prostate Cancer Support

Groups and also utilise advertising in the local papers and word of mouth.

What do you consider to have been the greatest accomplishments for the

Fremantle Prostate Cancer Support Group?

To see men come to the group who are very depressed and after attending the meeting

leaving with a more positive attitude is a great reward. Just being able to help men and their partners deal with a problem that was defined as a old man’s disease – despite the fact that it also affects younger men – is also rewarding. I think the consistency of just being there for people every third Monday of the month is the greatest accomplishment.

What would you like to see achieved in the next 2 years for the national network of PCFA

affiliated support groups?

As Group Leader of the Fremantle Prostate Cancer Support Group I would like

to see blue out in the community just as much as we see pink. I would love to see a football match dedicated to Prostate Cancer in the manner the McGrath Foundation promotes for breast cancer and to make all men around Australia realise they are not alone and that there is a support group and foundation nearby that can help them.

Q

A

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In this edition’s Affiliated Group Snapshot we visit the Fremantle Prostate Cancer Support Group in Western Australia and chat with the group’s Convenor and Secretary of the WA Chapter Council, Margaret Amm

Affiliated Group Snapshot

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Margaret Amm (centre) with members of the Fremantle Prostate Cancer Support Group

letters&issues

PCFA is pleased to announce a new initiative to bring prostate cancer education to regional and rural communities. The Prostate Cancer Rural Education Roadshow has been made possible through funding from the Department of Health and Ageing. The program will commence early in 2013 and run until March 2014.

HEALTH PROGRAMS & NURSING

Rural Education Roadshow Program

The program will fund small teams of prostate cancer experts to travel to selected sites in regional and rural

Australia, to deliver a structured educational program to the local health care professionals and the community affected by prostate cancer.

It is anticipated that the program will be delivered in all States and Territories with support provided directly from PCFA.

Commencing in March 2013, the program will see two educational sessions delivered per site visited – one directly to health professionals, such as GPs, nurses and allied health practitioners and a session directly to the community who are affected by prostate cancer.

The health session will raise awareness of the signs and symptoms of prostate cancer and will help increase the

expertise in the selected sites to better support those who are diagnosed with prostate cancer. The consumer session will empower men and their families to make more informed decisions, and be active participants in managing their individual approach to prostate cancer following a diagnosis.

In addition to the structured sessions, the Roadshow will allow the exchange of information, ideas and practical advice so that prostate cancer patients in regional and rural Australia can benefit from improved services in their locale and improved referral pathways to specialist centres when identified as required.

For further information about the program please contact Jessica Roberts, Project Officer on 02 9438 7032 or via email at jessica.roberts@pcfa.org.au

Planned Roadshow Sites for 2013:

SA

SA

Vic

NT

Qld

Vic

WA

State

Berri

Bairnsdale

Katherine & Gove

Gladstone & Emerald

Swan Hill

Albany

Port Pirie

Site

April 2013

May 2013

June 2013

August 2013

September 2013

October 2013

March 2013

Proposed Month

Stay tuned for

more news on the PCFA

Roadshow Program and

updates direct from the

road via www.pcfa.org.au,

facebook and Twitter

Note: sites for NSW, Tasmania and the ACT will be released at a later date.

Meet our Rural Education Roadshow Program Officer...

THE PROSTATE CANCER RURAL EDUCATION ROADSHOW PROGRAM

Jessica RobertsPROJECT OFFICER – RURAL EDUCATION ROADSHOW PROGRAM

Jessica joined PCFA in November 2012 after 4 years working on the New South Wales and Victorian border as the Health Promotion Coordinator at Albury Wodonga Health. In her previous role she worked with a range of different health professionals and was responsible for coordinating a wide variety of projects including working with schools, health professionals and projects with the local Aboriginal community.

“I definitely think my background working at Albury Wodonga Health will benefit the Roadshow Program,” she says. “Hailing from Yarrawonga in country Victoria, I understand the issues around access to health care and educational opportunities that local communities and health professionals have to face... and this is why the PCFA Roadshow Program is vital to help bridge this gap in rural areas of Australia.”

PCFA’s Director of Nursing, Julie Sykes, says the organisation is fortunate to have such a passionate individual in the Project Officer role. “Jessica is very enthusiastic and brings with her a diverse set of skills that will ensure the success of the Rural Education Roadshow Program. We’re very excited to have her on board,” she says.

Since beginning in her role, Jessica has hit the ground running, shaping the Rural Education Roadshow Program for 2013. “I’m really looking forward to getting the program up and running as well as working with such amazing health professionals throughout the Roadshow journey and visiting some wonderful local communities along the way,” she says.

“First stop... Port Pirie SA”The South Australian towns of Port Pirie and Berri will be the first locations visited by the PCFA Rural Education Roadshow Program, with a dedicated team from the Royal Adelaide Hospital set to deliver health professional and community education sessions. The team is comprised of:

Nick Brook - Urologist

Braden Higgs - Radiation Oncologist

Hsiang Tan - Medical Oncologist

Lauren Wood - Prostate Cancer Specialist Nurse

Nick has been involved in PCFA’s Rural Education Roadshow Program since the initial planning phase and has been instrumental in providing input into the education component of the program. He believes need for the program is clear : “There’s no doubt that rural and country patients have additional challenges to face when they are given a prostate cancer diagnosis because of their distance from treatment centres,” he says. “Distance from the main treatment centre is also a challenge for GPs looking after these patients. Our hospital sends visiting Urologists to these areas, and has established close links with the GPs there. Each area (Port Pirie and Berri) represents a significant patient population that we believe will benefit from specialist education in the area of prostate cancer, specifically how to Live Better with Prostate Cancer. The ethos behind the Rural Education Roadshow Program is an excellent one – to improve quality of care by giving patients and their primary carers the information they need to understand prostate cancer”.

Biggest Ever Blokes Lunch Support Network Grows

Conceived by passionate PCFA supporter, Chris McPherson, four years ago, The Biggest Ever Blokes Lunch concept has grown rapidly from a bunch of blokes getting together for lunch in Shepparton, Victoria to an extensive network of annual lunches attended by over 4,000 men across regional Victoria and, increasingly, other parts of the country.

While the lunches promote an atmosphere of camaraderie, conversation and laughter, the underlying seriousness of the initiative – prostate cancer awareness – clearly leaves an impression on those who attend.

The lunches also highlight what country communities do so well – support each other. The importance of such support becomes all the more evident when considering the staggering reality that men in Rural and Regional Australia have a 21 percent higher prostate cancer mortality rate than men in capital cities.

PCFA would like to extend a big thank you to each of the organising committees for their passion and dedication in making the lunches such a success, with an impressive average of 350 men in attendance. We commend their tireless efforts in raising vital funds and, importantly, delivering such a powerful message to men across Australia in an accessible and entertaining way.

Following on from the success of 2012’s Biggest Ever Blokes Lunch campaign, plans are underway to maximise its popularity again in 2013 – visit www.pcfa.org.au for dates and further information.

Thousands of blokes across the nation have gathered together for lunches aimed at spreading the important message to check their prostate health and raise funds for PCFA.

FUNDRAISING

Main shot: Shepparton Biggest Ever Blokes Lunch Bottom left: pre-lunch festivities at the Shepparton Biggest Ever Blokes Lunch Bottom right: PCFA VIC/TAS State Manager Kendra Overall with Keith Sutherland, Bendigo Bendigo Biggest Ever Blokes Lunch organiser, and PCFA CEO Dr Anthony Lowe at the Bendigo Biggest Ever Blokes Lunch

part of

BIG AUSSIE

BARBIEcampaign

Biggest Ever Blokes Lunch Support Network Grows

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NSW WARATAHS TO TACKLE PROSTATE CANCER WITH PCFAPCFA is proud to announce it has become an official charity partner of the NSW Waratahs, the state’s representative rugby team with the team’s players getting behind PCFA this season to help raise awareness of prostate cancer.

Following his father Rob’s prostate cancer diagnosis last year, Waratahs’ halfback Brendan McKibbin has dedicated his spare time to raising awareness of the disease with the support of his team mates and the coaching staff at the club.

“When something like this happens, it really knocks you,” McKibbin said on hearing about his father’s diagnosis. “We try to be macho, but it’s good to go out and talk about it and not get embarrassed. It’s something men need to talk about more. It’s great to have this opportunity to help raise awareness of prostate cancer and the work that PCFA are doing to reduce its impact on the community.”

The partnership will centre around the team’s big Super Rugby clash against the Brumbies at ANZ Stadium on the 18th May. Keep an eye out for PCFA promotions with the NSW Waratahs throughout the 2013 Super Rugby season.

PCFA is thrilled to be teaming up with the Melbourne Victory Football Club as an official charity partner. The partnership is a natural fit, with both organisations focused firmly on health, family and community.

“We are delighted to welcome PCFA to Melbourne Victory as our newest charity partner,” Anthony Di Pietro, Melbourne Victory Chairman said.

The partnership kicked off at the Derby match on 2nd February with fans supporting PCFA and their team by donating a gold coin for a co-branded blue flag, to raise the profile of prostate cancer throughout the community.

MELBOURNE VICTORY TEAMS UP WITH PCFA

It is not just the direct costs of primary treatment whether it is active surveillance, radical prostatectomy, external beam radiotherapy, or brachytherapy that need to be taken into account. What about the following potential expenses:

• Direct costs of secondary and subsequent treatment such as salvage radiotherapy, androgen deprivation therapy (ADT) and chemotherapy

• Direct costs of additional treatment to manage side effects such as incontinence sling or penile prosthesis

• Indirect costs of treatment such as travel and accommodation and out-of-pocket expenses

• Additional life costs such as incontinence pads and exercise programs for men on ADT

• Loss of income for both patient and their carer

• Additional financial services costs including increased insurance premiums as a result of a diagnosis of cancer.

It can all add up to a significant amount. Because the risk of developing prostate cancer rises steeply from age 50, it is often retired men with limited income that face the financial burden.

Surprisingly the costs of treatment for prostate cancer and who pays: the public health system, health insurers, or the patient, are not well documented nor well understood by health policy makers, health professionals, or men and their families.

Anecdotal evidence from support group leaders indicates that some sources of reimbursement, such as Department of Veteran’s’ Affairs for incontinence pads, and avenues to meet costs, such as early release of superannuation, are often not explained to, or accessed by, consumers.

What we do know is that men without private health insurance face significantly longer waiting times for treatment and that different health insurers have different policies on what costs they will reimburse. For example, some insurers will reimburse the costs of robotic surgery whilst others will not. Studies in breast cancer have shown that indirect costs such as travel and accommodation can be significant but are often unrecognised.

For men who are still in the workforce at the time of diagnosis worries include the possibility that they will need to take significant unpaid time off work. Unfortunately there is anecdotal evidence that some men face employment discrimination either through loss of

opportunity for promotion or in some cases redundancy as a result of a diagnosis of prostate cancer.

PCFA is working with a team of health economists at Griffith University, led by Dr Louise Gordon, to answer the question how much is this all going to cost? The research will be used to develop information and resources for men and their families and to help PCFA advocate for a better deal from the public health system and health insurers.

We will be launching an online survey in the very near future. Follow us on www.pcfa.org.au and Facebook if you would like to participate.

How much is this all going to cost? By David Sandoe OAM and Dr Anthony Lowe

OPINION

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How much is this all going to cost? It’s not the first question that comes into your mind when you are diagnosed with prostate cancer, but it is an important one.

A great friend and colleague, David will be remembered for many things. To some he was a champion footballer playing six seasons on the wing with Fitzroy and representing Victoria. To all he was a great friend and colleague who approached life with great passion and good humour.

He was enormously proud of his achievements; both personal and professional.

Beyond his considerable sporting achievement, he had a notable career working with Channel Nine and in sports management. But perhaps his proudest moments were reserved for his much loved family. He spoke openly and often to his colleagues of his love for his wife Liz and his three children.

He was a tremendous networker and when he came to work for PCFA

started the organisation off on a journey that would result in a remarkable legacy of profile and awareness for prostate cancer across the Victorian Community. His colleagues recall it would be nothing for him to travel for five hours to a remote community to speak about the disease and meet with men diagnosed with prostate cancer and their families. He was enormously generous with his time and loved working with the community and supporters of the organisation.

Supporting people in need was a clear passion for David and he made a significant contribution to the success of PCFA. Perhaps the most lasting of his legacy will be the creation of the Biggest Ever Blokes lunches. Established by Chris McPherson, David worked hard to support Chris in building

a series of lunches across regional Victoria to build men’s’ awareness and understanding of prostate cancer and to raise money for PCFA.

In the words of former PCFA Chairman Graeme Johnson, “We have lost a great bloke and a good friend. It is a tragedy that a fit young man has been taken.”

We will miss David, but we will always hold him dear to us in our memories.

Vale David Rhodes

T 1300 788 855 F 1300 788 811E customerservice@independenceaustralia.comwww.independenceaustralia.com

Independence Australia supports the Prostate Cancer Foundation of Australia (PCFA) and those living with Prostate Cancer.We can provide information and assist PCFA clients to choose the right continence products. Talk to our Urology Continence Nurse Advisor on: 1300 788 855 or email askthenurse@independenceaustralia.com

Download our brochure of products for the “Active Man” at; www.independenceaustralia.com/health-solutions/ products-services/download-catalogues/

Much admired and respected Prostate Cancer Foundation of Australia (PCFA) Victoria/Tasmania State Manager David Rhodes passed away peacefully at his home on Friday 15 February.

An exciting new initiative by Hire a Hubby and PCFA will soon see the launch of a ManVan, a mobile prostate cancer awareness and education service in Sydney. PCFA is delighted to announce a new partnership with national handyman franchise, Hire a Hubby. The partnership will focus on the provision of a Man Van, designed to promote prostate cancer awareness and education in communities across Sydney.

Throughout 2013, one dollar from every invoice issued by participating Hire a Hubby franchisees across Australia will go toward getting the ManVan on the road.

The idea of the ManVan is synonymous with the vans driven by Hire a Hubby franchisees that are central to their business. The first Man Van will be launched later this year and will operate in communities in the Sydney area particularly those identified as having a higher prevalence of prostate cancer.

PCFA CEO Anthony Lowe says PCFA is delighted to be partnering with Hire a Hubby on this exciting new venture. “With their support, we can continue to reach out to communities throughout Sydney to increase awareness of prostate cancer and provide information to men who have been diagnosed and their partners,” he says.

Hire a Hubby CEO Brendan Green added: “A number of our franchisees

have unfortunately been impacted either directly or indirectly by prostate cancer over the past few years. We are committed to working with PCFA to drive awareness of men’s health and reduce the impact of this terrible disease.”

You can help to get the first ManVan on the road by getting the word out about this exciting initiative to family and friends. The more invoices that are issued by Hire a Hubby, the more money that we can raise for the ManVan. With over 300 franchisees

participating in this initiative, there’s sure to be a Hire A Hubby maintenance team near you.

Hire a Hubby & PCFA: Driving Awareness for Men’s Health

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Your feedback is important to us. Please write to us at Prostate News, PO Box 1332, Lane Cove NSW 1595 or email pnews@pcfa.org.au

For more information visit www.hireahubby.com.au

For more information about prostate cancer and PCFA, please call 1800 22 00 99, or visit www.pcfa.org.au