progress report - positive plus one

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Positive Plus one will: (1) characterize HIV- serodiscordant couples across Canada; (2) examine the individual, inter-partner, and social determinants of relationship satisfaction; (3) examine links between relationship quality and management of HIV transmission risk; (4) assess HIV serodiscordant couples’ needs and access to supportive services; and (5) document how serodiscordance affects their relationship and everyday life. CONTACT: Phone: 1-888-740-1166 Web: www.PositivePlusOne.ca Email: [email protected] POSITIVE PLUS ONE IS FUNDED BY: PROGRESS REPORT November 24 th , 2017 Note: In all figures on this page, ‘all else’ is a combination of the most infrequently- chosen categories for that question. Most common ‘all else’ category for sexual identity is ‘queer’; for gender, ‘all else’ is a mix of transgendered, and two-spirited; most common ‘other’ race/ethnicity is a mixed Indigenous identity (e.g. ‘Aboriginal and white’). This newsletter provides an update on Positive Plus One - a national, mixed-methods study of serodiscordant couples. People who have taken the survey As of November 15 th , 558 persons (324 HIV-positive and 234 HIV- negative) have participated. The sample represents 421 couples, and for 139 of these relationships both partners have completed the survey. Figures on the right show that approximately equal numbers are gay and straight participants (see Figure 1). The majority are male and white (see Figures 2 and 3). Most of the participants are also from Ontario (see Figure 4). Based on PHAC HIV surveillance figures, Positive Plus One currently under-represents Black African and Caribbean people and Indigenous persons (see Figure 3). We also under-represent HIV- positive people from Quebec and British Columbia (Bullock et al., 2017b; see Figure 4). We are calling on you to help us while we recruit through March 2018 to ensure that the voices of a broad range of serodiscordant couples are heard. Thank you for your ongoing support. 41 47 7 5 0 25 50 75 100 Straight Gay Bisexual All else Percent Figure 1. Sexual Identity 26 71 3 0 25 50 75 100 Women Men All else Percent Figure 2. Gender Identity 9 6 66 19 0 25 50 75 100 Percent Figure 3. Race/ethnicity 6 11 2 2 1 2 57 0.5 10 5 0 25 50 75 100 AB BC MB NB NL NS ON PE QC SK Percent Figure 4. Participation by region

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Page 1: PROGRESS REPORT - Positive Plus One

Positive Plus one will:

(1) characterize HIV-

serodiscordant couples

across Canada;

(2) examine the individual,

inter-partner, and social

determinants of

relationship satisfaction;

(3) examine links between

relationship quality and

management of HIV

transmission risk;

(4) assess HIV

serodiscordant couples’

needs and access to

supportive services; and

(5) document how

serodiscordance affects

their relationship and

everyday life.

CONTACT: Phone: 1-888-740-1166

Web: www.PositivePlusOne.ca

Email: [email protected]

POSITIVE PLUS ONE

IS FUNDED BY:

PROGRESS REPORT November 24th, 2017

Note: In all figures on this page, ‘all else’ is a combination of the most infrequently-chosen categories for that question. Most common ‘all else’ category for sexual identity is ‘queer’; for gender, ‘all else’ is a mix of transgendered, and two-spirited; most common ‘other’ race/ethnicity is a mixed Indigenous identity (e.g. ‘Aboriginal and white’).

This newsletter provides an

update on Positive Plus One -

a national, mixed-methods

study of serodiscordant

couples.

People who have taken the

survey

As of November 15th, 558 persons

(324 HIV-positive and 234 HIV-

negative) have participated. The

sample represents 421 couples,

and for 139 of these relationships

both partners have completed the

survey. Figures on the right show

that approximately equal numbers

are gay and straight participants

(see Figure 1). The majority are

male and white (see Figures 2 and

3). Most of the participants are

also from Ontario (see Figure 4).

Based on PHAC HIV surveillance

figures, Positive Plus One

currently under-represents Black

African and Caribbean people and

Indigenous persons (see Figure

3). We also under-represent HIV-

positive people from Quebec and

British Columbia (Bullock et al.,

2017b; see Figure 4).

We are calling on you to help us

while we recruit through March

2018 to ensure that the voices of a

broad range of serodiscordant

couples are heard. Thank you for

your ongoing support.

41 47

7 5

0

25

50

75

100

Straight Gay Bisexual All else

Pe

rcen

t

Figure 1. Sexual Identity

26

71

3

0

25

50

75

100

Women Men All elseP

erc

en

t

Figure 2. Gender Identity

9 6

66

19

0

25

50

75

100

Pe

rce

nt

Figure 3. Race/ethnicity

6

11

2

2

1

2

57

0.5

10

5

0 25 50 75 100

AB

BC

MB

NB

NL

NS

ON

PE

QC

SK

Percent

Figure 4. Participation by region

Page 2: PROGRESS REPORT - Positive Plus One

Preliminary Findings and Presentations

Positive Plus One has executed 11 presentations at

national and international conferences to date. The two

posters presented at the International AIDS Society

(IAS) Conference in July 2017 showcased a wide range

of questions that can be addressed using Positive Plus

One data. Findings included:

From Bullock et al., 2017a:

• 86% of HIV positive participants reported an

undetectable viral load. Of these undetectable

individuals, 20% use condoms. In the remaining 14%

of HIV positive participants with a detectable viral

load, there was little evidence of condomless sex.

• In serodiscordant relationships, individuals who

agreed with the statement, “when a person’s VL is

undetectable, [partners] can safely have intercourse

without a condom,” were less likely to use a condom

if the HIV positive partner had an undetectable viral

load (see Figure 5).

From Mendelsohn et al., 2017:

• Both HIV positive and HIV negative partners had

greater odds of disclosing their relationship to

healthcare providers if their respective HIV positive

partner’s viral load was suppressed.

• HIV negative partners were less likely to report

their relationship to healthcare providers in

comparison to HIV positive partners (see Figure 6).

• HIV positive individuals were less likely to disclose

their relationship to their healthcare providers if they

were diagnosed after the relationship started.

SHARE HELP BE HEARD

Figure 6. Predicted

probability of disclosing

relationship to healthcare

providers by HIV status,

and gender/sexual

identity

Figure 5. Predicted Probability of NOT using

condoms during intercourse in the 3 months

prior to survey, by viral load of the HIV-positive partner

)

Page 3: PROGRESS REPORT - Positive Plus One

Some Amazing Messages Created by Exhibit Attendees

Positive Plus Poems—A Night to Remember

Thank you to everyone who joined us for Positive

Plus Poems on Friday May 5th, 2017 during the pre-

play reception of “It’s All Tru” by Toronto-based

playwright Sky Gilbert at the Buddies in Bad Times

Theatre in downtown Toronto. During this emotional

night of touching art installations, the research team

provided attendees with over 140 quotes from

participants in the Positive Plus One study.

Attendees were then asked to mix and match the

words and phrases into meaningful messages about

their own experience in a serodiscordant relationship

or messages to people living in serodiscordant

relationships.

Some quotes provided by the participants:

“Some people...they don’t want to know. They make

up their minds without educating themselves. That’s

it. That’s all. They made up their mind.”

–words from mixed HIV-status relationships

“I found out I was positive and to my surprise it didn’t

scare him away. If anything it actually brought us

together, for which I am very grateful.”

–words from mixed HIV-status relationships

Page 4: PROGRESS REPORT - Positive Plus One

SHARE HELP BE HEARD

A person may participate in Positive Plus One if:

1) They are currently in a relationship where one partner is HIV-positive and the other is HIV-negative and the relationship has lasted 3 months or longer, OR they were in one in the past 2 years,

2) They live in Canada, and lived in Canada during at least part of the relationship,

3) They are at least 18 years old,

4) They speak either English or French,

5) If they are HIV-positive, they have disclosed their status to their HIV-negative partner.

Staff Sandra Bullock – Project Manager James Iveniuk – Post-doctoral fellow

Investigative Team:

Liviana Calzavara (PI, Univ. Toronto) Dan Allman (Univ. Toronto) Chris Aucoin (AIDS Coalition of Nova Scotia) Jean-Guy Baril (Clinique Médicale du Quartier Latin) Laura Bisaillon (Univ. Toronto) Adam Bourne (La Trobe University) Ann Burchell (St. Michael’s Hospital) Ken Clement (Canadian Aboriginal AIDS Network) Brian Conway (Vancouver Infectious Diseases Centre) Amrita Daftary (Univ. Toronto) Laurie Edmiston (CATIE) Brenda Gladstone (Univ. Toronto) Elgin Lim (Positive Living BC) Gary Lacasse (Canadian AIDS Society) Bertrand Lebouché (McGill Univ.) Mona Loutfy (Maple Leaf Medical Clinic)

Renée Masching (Canadian Aboriginal AIDS Network) Ryan Meili (Saskatchewan MLA, NDP) Joshua Mendelsohn (Pace University) Ted Myers (Univ. Toronto) Jean-Pierre Routy (McGill Univ.) Shannon Ryan (Black CAP) Stephen Sanache (SHARE) Stuart Skinner (Univ. of Saskatchewan) Kris Stewart (Univ. of Saskatchewan) Donna Tennant (Positive Women’s Network) Wangari Tharao (Women’s Health in Women’s Hands) Tamara Thompson (Western University) Chris Tsoukas (McGill Univ.) Jocelyn Watchorn (AIDS Committee of Toronto) Alexander Wong (Regina General Hospital)

Please check out our Facebook page (at facebook.com/PPlus1UofT/ ) and Twitter page (at

https://twitter.com/P_Plus1_UofT ) where we will be posting articles or blogs regarding HIV care, HIV stigma,

serodiscordant relationship and much more!

References Bullock, Sandra L., Liviana Calzavara, James Iveniuk, Joshua Mendelsohn, Darrell Tan, Ann Burchell, Jean-Pierre Routy, Bertrand Lebouché, Amrita Daftary, Dan Allman, Tamara Thompson, Ted Myers, Renée Masching, Brian Conway, and The Positive Plus One Team. 2017a. Beliefs and practices underlying “undetectable = uninfectious” in a study of serodiscordant couples enrolled in the Positive Plus One study in Canada. In International AIDS Society (poster MOPEC 0642 ). Paris, France. Bullock, Sandra L., Liviana Calzavara, James Iveniuk, Joshua Mendelsohn, Amrita Daftary, Darrell Tan, Dan Allman, Laura Bisaillon, Ted Myers, Tamara Thompson, Joanna Dowdell, Stuart Skinner, Renee Masching, and Positive Plus One Team. 2017b. The Positive Plus One study: Enrollment and comparison of the survey sample to the distribution of people living with HIV across Canada. In Canadian Association for HIV Research (poster SSP5.01). Montreal, QC. Mendelsohn, Joshua, Liviana Calzavara, Sandra Bullock, James Iveniuk, Amrita Daftary, Dan Allman, Ann Burchell, Laura Bisaillon, Bertrand Lebouché, Ted Myers, Darrell Tan, Renée Masching, Mona Loutfy, and The Positive Plus One Team. 2017. Disclosure of HIV-serodiscordant relationships to healthcare providers is associated with viral suppression in the HIV+ partner. Preliminary findings from the Canadian Positive Plus One Study. In International AIDS Society (poster MOPEC 0644). Paris, France.