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INDY PD UPDATE PRODUCED AND DISTRIBUTED BY: PAACI PARKINSON’S AWARENESS ASSOCIATIONOF CENTRAL INDIANA, INC. March, April, May 2012 Holiday Party We’re planning this years Holiday Party with Rock Steady Boxing and Young Parkinsons of Indiana. We will have in- formation soon. Please check with the PAACI office (317-255-1993), on Face- book at Indianapolis Parkinsons or at www.paaci.org for more information. October 6, 2012 At 1pm Indy West Conference Center 400 N. High School Rd., Indpls., IN Doors open at noon for registration and picking up information from the local Parkinson’s groups, Parkinson’s artists and local businesses. Parkinson’s Symposium Please make plans to attend the 2012 Parkinson’s Symposium on October 6th. It’s the educational event of the year featuring: -John Baumann, Motivational speaker, Attorney and Proud Person with Parkinson’s speaking on “Reclaiming your Positive Perspective” -Joel Herskowitz M.D. & Roya Sayad Ph.D., CCC-SLP who wrote “Swallow Safely” telling us about “Swallowing Problems & PD—Why You Need To Know This” -Aaron Batt, Asst. Federal Security Director for the TSA, discussing “How The TSA Can Help You Travel With Ease” -Exercise break by Dance for PD and -A question and answer panel. $15 per non-dues paying member $10 per dues paying member $25 for Dues for a family of up to four people $5 “Swallow Safely” book with registration/ book only $15 *** See insert to pre-register*** Contact us at: [email protected] or call 317-255-1993

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INDY PD UPDATE PRODUCED AND DISTRIBUTED BY: PAACI

PARKINSON’S AWARENESS ASSOCIATIONOF CENTRAL INDIANA, INC.

March, April, May 2012

Holiday Party

We’re planning this years Holiday Party

with Rock Steady Boxing and Young

Parkinsons of Indiana. We will have in-

formation soon. Please check with the

PAACI office (317-255-1993), on Face-

book at Indianapolis Parkinsons or at

www.paaci.org for more

information.

October 6, 2012

At 1pm Indy West Conference Center

400 N. High School Rd., Indpls., IN

Doors open at noon for

registration and picking up

information from the local Parkinson’s groups,

Parkinson’s artists and local businesses.

Parkinson’s Symposium Please make plans to attend the 2012 Parkinson’s

Symposium on October 6th. It’s the educational event of

the year featuring:

-John Baumann, Motivational speaker, Attorney and

Proud Person with Parkinson’s speaking on “Reclaiming

your Positive Perspective”

-Joel Herskowitz M.D. & Roya Sayad Ph.D., CCC-SLP

who wrote “Swallow Safely” telling us about “Swallowing

Problems & PD—Why You Need To Know This”

-Aaron Batt, Asst. Federal Security

Director for the TSA, discussing “How The TSA Can

Help You Travel With Ease”

-Exercise break by Dance for PD and

-A question and answer panel.

$15 per non-dues paying

member

$10 per dues paying member

$25 for Dues for a family of up to

four people

$5 “Swallow Safely” book with

registration/ book only $15

*** See insert to pre-register***

Contact us at:

[email protected] or

call 317-255-1993

Page 2 INDY PD UPDATE

Phone Numbers 2

Golf Outing with

Dreyer Reinbold Infiniti

3

Social Security Disability 4-6

Symposium Registration 7

Memorials 8-9

Inside this issue:

Newsletter

Published by the Parkinson’s Awareness Association of

Central Indiana, Inc. (PAACI)

Funded by your donations and the Parkinson’s

Awareness Association of Central Indiana

Arranged & Edited by Sheri Kauffman

Disclaimer: The contents or opinions expressed in this

newsletter are those of the individual writers or present-

ers and do not constitute an endorsement or approval

by PAACI Staff/Board. Please consult your personal

physician, attorney or therapist regarding your

individual medical or legal issues.

PAACI Numbers:

PAACI Office—317-255-1993

Parkinson’s Care Partner

Support Group (For Caregivers)

317-867-2075 or 902-7373

Helpful Phone Numbers

Aqua classes—317-547-8349

Caregivers Spt Grp w/Catholic Charities—317-261-3378

CICOA—317-254-5465

Dr. Ruth Ann Baird—317-217-3000

Dr. Joanne Wojcieszek & Dr. Liz Zauber—317-944-4000

Chair exercise classes—317-872-4567

Ft. Wayne exercise classes—260-486-4893

Indiana Parkinson’s Foundation—317-630-0315

Indiana Reading & Information Services—317-715-2004

Physical therapy—317-823-6841

Rock Steady Boxing—317-205-9198

Rx for Indiana—1-877-793-0765

Shelby Cty PD Exercise & Support—317-398-7614

(Currently limited to Shelby County residents and

Major Health Partners patients)

The Climb North—317-774-7252

The Climb South—317-946-5340

Westside Support Group—317-244-4463

Young Parkinsons of Indiana—317-203-3049

Special thanks to Mayor Ballard and the city of Indianapo-

lis for declaring April Parkinson’s Awareness Month.

April Declared Parkinson’s

Awareness Month!

New Southside Support Group

contact Judy at [email protected]

PRODUCED AND DISTRIBUTED BY: PAACI Page 3

1st Annual Golf Outing Hosted by: Dreyer Reinbold Infiniti &

the Parkinson’s Awareness Association of Central Indiana

On August 7, 2012, Dreyer Reinbold Infiniti

hosted PAACI’s first annual golf outing at Wood

Wind Golf Course in Westfield. It was a beautiful

day and everyone there had a marvelous time! We

raised almost $5,000 for PAACI while meeting

lots of great people...our sponsors and contributors.

PAACI would also like to give special thanks to

Scott Kenney and Pat Ireland at Dreyer Reinbold

Infiniti, Joe Murphy at Wood Wind Golf Course

and Bill Schultz and all the NFL Alumni that

participated.

Please consider patronizing their businesses (listed

to the left) the next time you want or need some-

thing. They made this event a wonderful

success!!!

Sponsors: Dreyer Reinbold Infiniti

http://dreyerreinboldinfiniti.com

317-573-0222

Automotive Management Group

www.youramg.com

877-404-0206

5 Star Dance

Greenwood, Fishers & Carmel

www.indyfivestardance.com

A&G Digital Consulting

www.consutlagc.com

317-417-7070

Altair Promotions

www.altairpromotions.com

317-710-0628

Arni’s Restaurant on 96th St.

www.meetyouatarnis.com

317-571-0077

Asebella Boutique

www.asebella.com

317-259-4391

Briljent

www.briljent.com

317-735-3500

D2P Kimball Office

http://d2pindy.com

317-572-1589

ERA Real Estate Links

www.realestatelinks.com

Matt Lutz—317-439-5444

F.E. Harding Asphalt

www.hardingasphalt.com

317-849-9666

Gallagher Benefit Services

www.gallagherbenefits.com

317-587-1330

General Cable

www.generalcable.com

317-271-8447

Harley Davidson of Indianapolis

www.hdofindy.com

317-815-1800

Howald Heating

&Air Conditioning

http://howaldheatingandair.com

317-255-4328

Massage Envy

www.massageenvy.com

317-873-3909

NFL Alumni Association Indi-

anapolis Indianapo-

lis.chapters.nflalumni

players.com –317-850-8600

Panduit Corporations

www.panduit.com

1-800-777-3300

Paul Davis Restoration—

Remodeling

www.pdrnorthindy.com

317-863-0490

Re/max Centerstone

[email protected]

Maria Ridenour—317-858-5728

Rock Steady Boxing

www.rocksteadyboxing.org

317-205-9198

The Grill at Geist-

www.thegrillatgeist.com

317-842-2087

VideoTireKicker.com

Contributors: Applebees (96th St.), Asebella Boutique,

Billyjayindycustom.com, Dreyer Reinbold

Infiniti North Store, Einstein Brothers Bagels &

Coffee (96th St.), Golf Galaxy-Chris Young,

PGA Pro, Outback Steakhouse-Castleton

Square, Prestige Performance II, Republic

National Distributing Company, Siriusxm

Radio

Page 4 INDY PD UPDATE

Social Security Disability

By Joseph Pressner, Ph.D.

This is the first in a two-part series on social security disability.

As the disease progresses, individuals suffering from Parkinson’s Disease often come to the point where they must file

for social security disability benefits. However, most of us have no experience in filing such a claim. Furthermore, the

process seems very confusing and complex. Many times individuals do not know the “ins and outs” of applying.

This first article is meant to be a “primer” about filing for disability benefits. However, a disclaimer is in order.

1) Although I am very familiar with the disability process, I am not nor have I ever been an employee of the social

security administration or the state of Indiana’s disability determination bureau. I have been a consultant for many

years. Thus I am an “outsider,” and am not writing on behalf of the state of Indiana or the social security administration.

This article represents my personal opinion only. 2) Each social security disability claim is decided on a “case-by-

case” basis. This article contains general information that may or may not be applicable to the particular claim. It is

therefore wise to obtain professional help for your disability claim.

SSD vs. SSI.

There are two separate but related social security disability programs. The first, social security disability (SSD), is for

those individuals who are 1) medically disabled and 2) who are covered by social security. If an individual has a

significant work history, it is probable that the individual is covered under this program although the eligibility rules can

be complex. The second, supplemental security income (SSI), is a program for those individuals who are 1) medically

disabled and 2) who have very limited income and resources. Many times because an individual has been ill and unable

to work for a significant period of time, an individual may be eligible for both programs. By and large the medical

determination is the same for both programs. The difference between the two is not medical. The difference in the pro-

grams is basically work history and financial status.

Filing a claim.

There are several ways of filing. An individual can apply via the telephone or can set up a face-to-face meeting at the

social security office by calling 1-800-772-1213. The fastest way to apply is on line if you have a computer and internet

connection. The web address is ssa.gov. This leads to the social security home page. There is a tab there indicating

“Disability.” Merely click on this tab and you are on your way. I recommend whether applying via telephone, appoint-

ment, or on-line, that you read through all the pages. There is a wealth of information about the disability determination

process.

After familiarizing yourself, you can begin the application process by selecting option two on the disability page,

“Complete the Disability Application Report.” This is quite a lengthy form, and you need a lot of information at your

finger tips to complete this such as the names, addresses, and phone numbers of all your doctors. However, it is

possible to partially complete the form and go back to it at a later time. You can take your time with this to make sure

that the form is completed with as much information as possible,

Finally, if you have access to a computer, the internet and a printer, it’s possible to download the form, to fill it out by

hand, and then to mail it in.

One question that people sometimes ask is which way of applying is the best. You may wish to consult with your own

expert about this before you apply, but from my experience there are a couple of differences that could come into play.

First, when you apply on-line, all of the answers are neatly typed. The form is easy for reviewers to use. This helps to

make sure that the people making the decision can read all of the information that you want them to read. Hand-written

forms may not be as easy for reviewers to read, and they may not understand what you are trying to communicate.

Second, there is one difference between a face-to-face, and an on-line application. This difference could facilitate some

claims, but could also be detrimental to others. There is a place on the form for the social security employee to record

his/her observations. Thus if the person filing for disability is severely disabled, it may facilitate the claim for that social

PRODUCED AND DISTRIBUTED BY: PAACI Page 5

security employee to describe the limitations that he/she sees. On the other hand if the individual filing for benefits is

very functional, having this observed and written down by the social security employee could be detrimental to the

claim. It probably goes without saying that when a claim is filed electronically, there is no social security employee to

make any observations. In general because of the ease of filing electronically, more and more people are filing that way

rather than waiting weeks for a face-to-face appointment and having to make the trip to the local office.

The Determination Process.

After the claim is filed, within days it goes to an adjudicator. This is the person who is charged with gathering the infor-

mation, assessing it, and making the final decision. The adjudicator is typically not a health care professional, but is

assisted in making the decision by a group of physicians representing the main medical specialties, by psychologists and

psychiatrists who assess the mental health aspects of claims, and by speech/language pathologists if there are

communication issues.

Once you have filed you will have your own specific adjudicator. This is your contact person regarding all aspects of

you initial claim. This person should assist you in making sure that all of the necessary medical records are obtained.

Also the adjudicator may well send you several questionnaires to fill out about your condition and how the condition

affects you on a day-to-day basis.

At times there is not enough medical information to make a disability decision. Perhaps your physician has not sent in

the records or perhaps the records do not contain enough information, or perhaps they are not recent enough. In such

cases the adjudicator may ask that you attend an exam or even several examinations by physicians and psychologists in

your area. You do not have to pay for these examinations. The cost of the exam is born by the social security

administration.

Some people ask if it is necessary to go to these examinations. In general the answer to this question is “yes – you have

to go.” The reason for this is that the examinations are being ordered because there is insufficient medical evidence. If

there is insufficient medical evidence, then a finding of disability cannot be made. On the other hand, attorneys at times

counsel their clients to NOT attend such examinations. The may believe that there is, in fact, sufficient medical

evidence, and they may want the claim decided on that evidence and that evidence alone. Thus, in doubt, this is another

reason to have an attorney.

Once the adjudicator has obtained all of the necessary information he/she will make a decision which you will receive in

writing. This usually takes less than 60 days from the time that you file your claim. Most of this time is simply waiting

on the medical sources to provide information or waiting on the applicant or applicant’s family/friends, to provide

requested information. In general the decision is made within a day or two after all the information is in file.

What If My Claim is Denied?

There is a myth that all claims are denied initially. There is some variability from state to state, but approximately a

third of all claims are allowed at the initial level.

If your claim, however, is one of the two-thirds denied, your next step is to file an appeal. When you appeal, your claim

goes back to the disability decision bureau, but it is evaluated by a different adjudicator, and different physicians, and

psychologists. They are charged with the responsibility of making an independent decision – not simply rubber

stamping the initial decision. You will be asked for any updated medical information or information on your day-to-day

functioning. Since most of the information has already been collected, this second step in the process is quite rapid –

usually less than 30 days.

There is another myth that if your claim has been denied at the initial level it will automatically be denied at the appeal

level. Although this statistic again varies from state-to-state, approximately one-quarter of those claims appealed are

allowed at the second level.

If, however, your claim is denied at the reconsideration level, your next level of appeal is to request a hearing before an

administrative law judge (ALJ). Again, there is quite a bit of variability in regard to allowance versus denial rates, but

on the average, at least another 25% of claims are allowed at this level.

The ALJ is totally independent and in some ways above the rules and regulations. At the hearing you will have a

Page 6 INDY PD UPDATE

chance to present your claim and your facts face-to-face with

the person who is making the decision. This represents your

last best chance for a favorable decision.

If denied at the ALJ level, an appeal can be made to the

Appeals Council, and beyond that to federal district courts,

but these appeals are rarely successful.

To Lawyer-up or not to Lawyer-up.

If you are a fan of day time television, you are probably aware

that there are many attorneys specializing in disability claims.

Some would have you believe that just involving an attorney

in your claim somehow intimidates the decision makers and

increases the probability of a favorable decision. This is

simply not true. The adjudicators, physicians, and

psychologists at the disability decision bureau provide the

same service to individuals filing for themselves as those who

have obtained an attorney.

Per regulations, these attorneys are not to charge you unless

your claim is allowed. At that point their payment is confined

to a specific percentage of the award of back benefits.

Usually this comes out of the first payment to you.

When it comes to appealing a denial decision – especially

when going to an ALJ hearing – I have always advised my

friends and relatives to seek a competent attorney. They have

much experience in dealing with different ALJs and thus will

know the best way to present your case to the specific ALJ.

That being said, in my personal opinion, there is significant

variability in the quality of the attorneys who specialize in

disability claims. Some seem to take on every case, but

provide little service. Their strategy seems to be that if they

take a 100 cases, do little, but win 10% of them, they will

receive a significant amount of money for virtually no real

work. Then there are others who take on a much smaller

number of cases, but work hard on behalf of their clients.

Their strategy seems to be that they will take a smaller

number of cases, work hard, and win a greater number of

them. That is the person that you want.

Thus I would recommend that you not be unduly influenced

by the television ads. You should ask friends or relatives who

have utilized a disability attorney how satisfied they have

been. I also suggest that you interview several different

attorneys to find one that you like before selecting one. You

might ask how many claims they average a year, and what the

percentage of success is. You want an attorney who has a

high winning percentage.

Conclusion.

This article provides an overview of the social security

disability process. The next article will provide information

about the disability guidelines for Parkinson’s Disease in

particular.

Parkinson’s Night

with the Pacers

Thanks to Mary Yeaman and Linda Hinkle, very

active members of Rock Steady Boxing, the Parkin-

son’s night with the Pacers was a huge success.

John Bauman, Dr. Stephanie Combs and Dr. Liz

Zauber came out to talk about Parkinson’s disease

in one of the private suites, then a handful of our

PD friends got to go out on the floor during half-

time. Big thanks to Levy Restaurant who donated

food and catering services to make this event a suc-

cess. We handed out a lot of literature and got to

share with the people at the Pacers game a little

about PD. Thanks Mary and Linda for a great

night!

Goodbye to Dr. Xabier Beristain

It is with a heavy heart that PAACI says goodbye to

Dr. Xabier Beristain, a phenomenal doctor and con-

tributing PAACI Board member. Dr. Beristain has

moved to Maine, but PAACI is grateful for all the

time he spent contributing to our Newsletter, speak-

ing at Symposiums, and caring for his patients.

PAACI Board Members

Jeff Brodzeller—President

Nancy Pressner—VP of Operations

Rebecca Parks—VP of Educational Programs

Connie Beery—Board Secretary

Barbara Habermann—VP of Communications and

Publications

Members at Large—Edward Daly, M.D., Ph.D.,

Ahmed ElAntably, Dee Garrett, Glenda Ockerman,

Jim Pressner, Leo Rafail, Sarah Kempfer, Joe

Carney

Honorary Board Member—Julie Sanderson

PAACI Executive Secretary—Sheri Kauffman

Symposium Registration Form

$15 per non-dues paying members $10 per dues paying member

$25 dues for a family of 4 or less $5 per “Swallow Safely” Book (with paid ticket only)/Book only is $15

Parkinson’s

Awareness

Association

Of Central

Indiana, Inc.

317-255-1993

www.paaci.org

Name of Attendee: Paying Dues or Date Previously

Paid:

Amount Paying:

Total Attendees: Total Dues

Total books ordered:

Quantities Limited!

Total Due: Total Payment:

Method of Payment: Check___________________ Cash___________________________

Credit Card Payment (circle one): Mastercard Visa Expiration Date:_______________

Credit Card Number:________________________________________________

Zip Code (where credit card statements are received):_________________________

Signature:__________________________________________________________

Contact Information

Name:________________________________________

Address:______________________________________

City, State, Zip:_________________________________

Phone:_______________________________________ (Please include phone number for questions)

E-mail:_______________________________________

Please make checks payable to PAACI. Registrations and payments can be mailed to the PAACI Office at:

PAACI 4755 Kingsway Dr., #333

Indpls., IN 46205

Contact Sheri at 317-255-1993 or e-mail [email protected] for questions or

more information

***Most time sensitive information is sent out through e-mail. If you would like to receive messages from us that include information about new or updated PD info, local events, or webcasts please be sure to share your email with us in the contact information.

Page 8 INDY PD UPDATE

Matrix Group Benefits

Mooresville HS—Lucky 75, Inc.

Family of Margaret Hahn

Midwest Surgical Specialists

Donna Sturgeon

Friends of Dennis Jones

Don & Kathy Sulgrove

Stanley & Ann Tarrant

Roger, Barb, Kyle &

Danielle Bragg

Larry & Shirley Chapman

Larry & Linda Hasecuster

Larry & Charlotte Laird

Fredrick & Sally Arven

Linda, Brian & Susan Wiley

Chip & Erin Moore & Girls

Rick & Tom Allison

Dues / Donations

Don & Norma Haynam

Norman & Donna Funkhouser

Charles Keller

Mridula Jarial

Robert Weiss

Mary Sutton

Marjorie Allen

Robert Arkins

Mike Ash

Harold Ballman

Mack Blakley

Merritt R. Bragg

Ronald Byers

William F. Cobb

Dave Collins

Alice Elder

Dana C. George

Lyle Giles

Paul L. Graber

Margaret Hahn

Robert Held

Richard L. Hardyman

George Hill

William Jarrett

Velma R. Jones

Alex King

Lavinia Smith

Carl Stoops

Rest in Peace Dear Friends...

Donations made in

loving remembrance

of... Floyd Chandler,

Midge Lackey, Merrell

Ramey and James

Skinner.

Honorariums… Some

of our PD friends wanted

to Honor their friends

and/or loved ones with a

donations. Those honored

in this Newsletter are

Fred Schmidt, Robert

Friedman and Ron &

Alice Kilgore.

Happy Birthday!

Phil Bercovitz

Myrna Fang

Multiple Memorial Donations

Special thanks to our members’ families who thought

of PAACI at a very difficult time in their lives. These

are our members whose families remembered us in

their loved ones obituaries or at their memorial ser-

vices. Thanks to the families of Marjorie Allen, Mack

Blakley, Merritt R. Bragg, Ronald Byers, Dana C.

George, William Jarrett, Velma R Jones, Alex King

and Lavinia Smith.

Bequests are donations planned lovingly

long in advance, placed in your will, to be

given upon your passing. As much as we

all know how difficult this kind of plan-

ning is, your thoughtfulness really matters

to us. Thanks you so much!

Donations of $100 & Over

PAACI is so grateful for your donations.

Thank you for thinking of us in all you do.

PAACI would like to offer a

sincere, heart-felt thanks to

the family of Margaret

Hahn for her generous

bequest.

PRODUCED AND DISTRIBUTED BY: PAACI Page 9

Donations of Under $100

Paul Cook

Edward & Phyllis Spanier

Joanne King & Dorothy Wyn

Wally & Joanne Wingler

Jim & Becky Harrell

Robbie Kakadelis

Wanda Baugh & Family

John & Bekki Johnston

Orin & Velma Grogan

Wendell Bonnie Cates

Marjorie Schroeder

Paula Martin

Don & Susan Kuhn

Stuart Takoyoshi

Donald & Karen Perez

Don & Josie Essig

Billy & Sharon Pickerel

Jim & Doris Ellsberry

Bill & Marge Glesing

Jerry & Diana Hurst

Dave & Kathy Moreno

Jerry & Melissa Wiley

Rob & Kim Kumler

Kip & Andrea Benbow

Peggy Eickoff

LaFontaine-Liberty Fire Dept.

Martha Heazeltine Family

Laverne Padrick

Patsy Wilson

Barbara Habermann

Donations Under $50

Anonymous

Dave & Mary Morgan

Michael & Debra McKillip

John & Dolores Snyder

Janice Goodyear

Garrell & Carol Roberson

Betty Foust & Family

Cathy Barnett

Charlie & Bev Kelley

Paul & Sherri Karst

Carol Snyder

Jay & Janet Rohlman

Gene & LaDonna Voyles

John & Barbara Laird

Louis & Pat Alexander

Virginia Morrow

Donald & Shirley Stodghill

Kyle & Pamela Turner

Cynthia Durkes

Senior Golf League at Arbor Trace

Golf Course

Mark & Ann Schaffner

Miles & Freda Donaldson

Paul & Marsha Usher

Hanfield United Methodist

Church

Glen & Susan Bland

Dave & Rose Ann Hausz

Raymond Hausz

Bill & Gay Pangburn

Patricia Wingerning

Barbara Simmons

George & Juanita Rapp

Jerry & Sue Scott

Mark & Bonnie Keen

John & Marilyn Andrews

Ted & Carolyn Jones

Don & Sharon Szeszycki

Bridgemore Village Coffee Club

Alice Kilgore

Jason, Ada, May & Miles Stucky

Jeffrey & Gig Harris

Paul & Mary Fleener

Lynn James

Rod & Renee Frank

Jim & Deb Garrison

Larry Karst

Katy Clouser

Bud & Beverly Pritchett

Wilma Guenin

Ann Cunningham & Family

Paul & Bonnie Kelly

Erik & Marsha Herendeen

Phil & Marilyn Speicher

Richard & Mary Lou Borst

Chris Brinson

Bernice Frank

Jay & Janette Norris

Katherine Forestal

Sandra Beck

Lela Kay Sale

Lloyd & Marge Snider

Tocie Duclan

Gary & Debbie Schroeder Family

Mike & Carol Becher Family

Parkinson's Awareness Association of

Central Indiana, Inc. (PAACI) 4755 Kingsway Dr., #333, Indpls, IN 46205

317-255-1993 www.paaci.org

Facebook: Indianapolis Parkinsons

Email: [email protected]

Non-Profit

U.S. Postage

PAID

Permit# 1040

Leesburg, FL

34748

Parkinson’s Unity Picnic

It was a cold, rainy April day at Garfield

Park. Fonda (the lead singer to the band we

invited) was sick, but the food was good, the

company was great and those of us that

were there had a very nice time. Big thanks

to all of you that braved the weather to come

join us for the Parkinson’s Unity Picnic this

year. PAACI would also like to give a

special thank you to Bruce Eccles and

Medtronics who purchased all the food for

the event. We look forward to better

weather and another great picnic next year!

PAACI Respite Care Subsidy Program The PAACI Board is discussing what new services would help

the needs of persons and families with PD in the Central Indiana

area. One of the options being considered is a respite program. If

you are unfamiliar with what respite is, the following DRAFT

description defines:

Respite care provides the full-time caregiver some “time out” to

relax and take care of his or her personal needs, and at the same

time offers quality care for the person with Parkinson’s disease.

For respite care, the caregiver can either receive in home or adult

day care. In home services consist of non-medical services and

may include assistance with personal care (bathing, dressing,

hygiene), ambulation assistance, meal preparation, meal assis-

tance, companionship, safety supervision, medication reminders

and light housekeeping. The other respite option for the caregiv-

er is use of an adult day care. Not only does adult day care pro-

vide respite for the caregiver, it provides an added benefit of so-

cialization for the person with Parkinson’s.

As we continue to explore developing this program, we are inter-

ested in knowing if there is interest in such a program. We wel-

come your suggestions for the program also. Please get in touch

with Sheri at [email protected] or 317-255-1993, to let

her know your thoughts.

Leo Rafail & Barbara Habermann

PAACI Board Members

PDF Live Seminars

What is New in Genetics & Parkinson’s?

Tuesday, September 25, 1-2pm ET,

Caregiving and Parkinson’s

Tuesday, November 20, 1-2pm ET

Each PD Expert Briefing can be viewed via

webinar. Register online at

http://www.pdf.org or call 800-457-6676

Updated Information Available

If you would like to receive more frequent

updates regarding local PD events, webinars,

or any new information available please send

your email address to:

[email protected] or

text PARKINSONS to 22828.

We send out frequent emails with good infor-

mation. Just check the topic line to see if it’s

something that might interest you.

Women’s Retreat

November 5th - 7th, 2012

Contact Mary at 317-894-2721 or

Linda at 317-374-4201