privacy and control
TRANSCRIPT
Privacy and Control: Social Media and Medicine
Dr. Anne Marie Cunningham@amcunningham
Some things are definitely private
http://www.flickr.com/photos/kaptainkobold/4180172507/
A different degree
http://www.flickr.com/photos/48089670@N00/188815585/sizes/z/in/photostream/
We want privacy in public too
http://www.flickr.com/photos/ol1/4789711784/ http://www.flickr.com/photos/bernardomayer/5046335091/
http://www.flickr.com/photos/bepster/120018144/
Not unreasonable social expectation of privacy- civil inattention
http://www.flickr.com/photos/loungerie/3023085176/
Seeking publicity
http://www.flickr.com/photos/libaer2002/4529678428/
Sometimes we are more than happy to be publichttp://www.flickr.com/photos/publiccitizen/5161858599/
http://www.flickr.com/photos/fallsroad/13240207/
http://www.flickr.com/photos/buriednexttoyou/5095255302/
“you are your information”
http://www.flickr.com/photos/verbeeldingskr8/4324902924/
Digital identity
http://en.wikipedia.org/wiki/File:Internet_dog.jpg
Is privacy dying?
http://www.flickr.com/photos/alancleaver/4105726930/
“ Default set to increase social awareness..” Shirky
http://www.flickr.com/photos/mushon/215270738/
Surveillance
http://www.flickr.com/photos/pickard/31220953/
Threats to informational privacy
Gathering
Mining
Exchanging
Matching
Merging
http://www.flickr.com/photos/21782644@N04/3191535692/
Digital footprints
http://www.flickr.com/photos/vinothchandar/4282241642/
Something much more permanent
http://www.flickr.com/photos/oberazzi/974939987/
Control + Context= PRIVACY danah boyd
http://www.flickr.com/photos/joi/1394510691/
Harvard health expert calls Facebook 'Wild West‘
http://news.cnet.com/8301-27083_3-20021519-247.html
New Frontier
What are the rules?
http://www.flickr.com/photos/litherland/2614531003/
Confidentiality
“You should not share identifiable information about patients where you can be overheard, for example in a public place or in an internet chat forum.”
http://www.gmc-uk.org/guidance/ethical_guidance/confidentiality_12_16_protecting_information.asp
Offline
http://www.flickr.com/photos/naiadsspring/143114085/
Not so easy online.
http://www.flickr.com/photos/sidelong/305305214/
Social media?
“You must not make recordings for use in publicly accessible media without written permission, whether or not you consider the patient to be identifiable”
Privacy is dead. Long live privacy!
How can we help patients control privacy?
http://www.flickr.com/photos/horizon/176177318/