presentation by ms. elvira nazarova, head of the department on study of issues of children with...

30
ESTABLISHMENT OF EARLY ASSISTANCE SERVICES FOR CHILDREN AS BASIS FOR INCLUSIVENESS IN UZBEKISTAN

Upload: unicef-ceecis

Post on 30-Jun-2015

181 views

Category:

Health & Medicine


0 download

DESCRIPTION

The role of health sector in ensuring the realization of the rights of children with disabilities. From the parallel working sessions of the 4th Child Protection Forum in Tajikistan, 2013.

TRANSCRIPT

Page 1: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

ESTABLISHMENT OF EARLY ASSISTANCE SERVICES

FOR CHILDREN AS BASIS FOR INCLUSIVENESS IN

UZBEKISTAN

Page 2: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

REPUBLICAN CENTER FOR SOCIAL ADAPTATION OF CHILDREN (RCSAC)

RCSAD was founded by the Resolution of the Cabinet of Ministers of the Republic of Uzbekistan “On establishment of the Republican Center for Social Adaptation of Children" No. 419 of September 7, 2004.

RCSAD is an NGO studying of problems of social adaptation of children, including:

-- children with limited physical abilities (disabled people, children with physical and psychic disorders, children having severe chronic illnesses; -- children of groups of social and legal risk (orphans, children deprived of parental care or persons, replacing them, children from vulnerable families);- - gifted children (in sport, arts, science, etc.);

Page 3: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

DIRECTIONS OF ACTIVITIES Scientific-research activity in the sphere of social

protection of vulnerable children Development of targeted comprehensive

programs to solve the above problems, and reduce the negative impact of the factors causing emergence of children with high risk behavior

Deep study of the country’s experience and the experience of developed countries in the sphere of support and social adaptation of children

Providing support to children through implementation of psycho-pedagogical, educational and rehabilitation programs.

Page 4: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

RCSAC:Research and practical work

Government organizations

Child andfamily

Page 5: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan
Page 6: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

RCSAC OBJECTIVES AND SERVICES

Scientific and methodical work: carrying out scientific researches, development of targeted programs

Teaching and educational, consulting services: psychological, correctional development, legal, treatment and physical activities, medical counceling

Social and economic services: rendering financial support (by charity foundations)

Legal services: support in enforcement of the violated rights of the child.

Page 7: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

PRACTICAL SUPPORT RENDERED TO CHILDREN AND FAMILIES ON THE BASIS OF INFORMATION AND

CONSULTING SERVICE OF RCSAD

Sensor therapy, sand therapy, Montessori pedagogics, fairy tales-therapy, music therapy, rehabilitation pool, massage, phytobar, legal consultations

Services are provided by defectologists, psychologists, lawyers, pediatricians, neuro-pathologists, neuro-psychiatrists, orthopedic traumatologists, specialists on methodology of the physical activities and sports, etc.

Page 8: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan
Page 9: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan
Page 10: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan
Page 11: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

Total number of children who have received comprehensive support– 859

Including:• Physical rehabilitation: 486 children• Correctional and pedagogical work: 224 children• Psychological consultation:143 children

Children, who received comprehensive support in the RCSAC in 2012-2013

Physicalrehabilitation

Correctional andpedagogical work

Psychologicalconsultation

486

224143

Page 12: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

"THE SYNAPSES TO BE STIMULATED"

Neurophysiological and psychological discoveries of the end of the XX century considerably expanded the ideas on possibilities of a comprehensive support to children with development needs.

Researches show that 75% of the brain develops till three years of age.

One of the most important discoveries of scientists – is the identification in a newborn’s brain of the neurons, which need various types of stimulation. If a baby actively receives sensor information from the outside, then the connections among the neurons strengthen. It means that active development takes place.

Page 13: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

Within the first 365 days the child should make an enormous jump in all spheres of development: intellectual sphere – emergence of the first words and understanding of speech of people around; - adequate manipulations with toys, subjects; physical sphere – not only to gain the weight more that three times, grow by 25-30 cm, to take the first steps, etc.

If there is no sufficient sensor stimulation, parts of brain aren't involved fully, communication between neurons weakens, synapses die off and these parts, as a result, will disappear. They are called – "the synapses to be stimulated". And it means the delayed development of the child.

Page 14: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

In the first three years of life the child’s organism develops very quickly. It is important not to miss and correctly diagnose possible developmental disorders keeping in mind the child personality, as a whole. Often because of continuous inclusion of the child with special needs in "treatment“, the relation between the adults and the child with developmental problems, have a distorted character.

Efforts are made to "correct the child", but the issues of his development and education are dropped until he becomes "as the rest of us".

Thus, the most important years for the child’s development are missed.

Page 15: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

It is very important to involve the child in a comprehensive program for receiving early psycho- medico-pedagogical support.

Early diagnostics and intervention is a process of study and identification of the child’s personal physiological and social needs to create enabling conditions for his development, with the help of the team of experts.

Republican Center for Social Adaptation of Children (RCSAC) was the first to introduce early interventions for children in Uzbekistan.

Page 16: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

EARLY INTERVENTION GOALS

"Normalize" life of the child and his family

Help parents create enabling conditions for development and education of the early age children

Prevent abandonment of the child and his placement to residential institutions.

Page 17: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

PRIORITIES OF THE DEVELOPMENT OF THE EARLY INTERVENTION SYSTEM IN

UZBEKISTAN

Joint work of interdisciplinary group with families and children

Capacity development of the team of experts

Improving access to complex services of early intervention for children and families at their residence place, particularly in the rural areas

Introduction of innovative forms and methods of work with children and families.

Page 18: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

PRIORITIES OF THE DEVELOPMENT OF THE EARLY INTERVENTION SYSTEM IN

UZBEKISTAN

Involvement of parents in programs of early intervention

Provide information and legal support to families

Prevention of abandonment of children with special needs in development

Support for an effective transition to inclusive preschools and schools.

Page 19: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

EARLY INTERVENTION SERVICES IN UZBEKISTAN

Outcomes of the project “Establishment of the Early Intervention Model in Uzbekistan“ ( 2009-2011).

Early Intervention Services have been organized in Tashkent in the Yakkasaray district Regional Medical Association, Chilanzar district family policlinic No. 39 and the Republican Center for Social Adaptation of Children to provide support to children and the families, which have children with special development needs.

Page 20: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

SCIENTIFIC METHODOLOGICAL WORK

The principles and methods of work of Early intervention services are defined

The map of psycho-social development with consideration of regional specifics has been developed

The methodology of correctional development work with children with problems of development aged 0 to 12 months, from 13 to 24 months, from 25 to 36 months has been developed and tested.

Page 21: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

95111

2 3 7 16 279 28

10

225

10 10 1 17

SERVICES PROVIDED TO CHILDREN AND FAMILIES IN PILOT POLICLINICS OF TASHKENT CITY

TOTAL NUMBER OF CHILDREN – 596

Page 22: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

21%

41%

38%

Achievements for 2012-2013.Specialized kindergartens

Development dynamics has imrpoved

Regular kindergartens

Page 23: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

Developmentof speech

Undetstandingof speech

Minor motorfunctions

Overall motorfunctions

22,1% 21,1%16%

45%

ACTIVITIES OF THE EARLY INTERVENTION SERVICES IN POLICLINICS HELPED REDUCE DELAYS IN DEVELOPMENT OF CHILDREN BY:

Page 24: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

ORGANIZATIONAL ACTIVITIES: include various forms of work with parents (consultations, group work) Supervision Planning, reporting and monitoring

Page 25: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan
Page 26: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

NEXT STEPS FOR PROMOTION OF EARLY ASSISTANCE SERVICE

Opening of early assistance services in health care system (in central multi-profile policlinics) in Uzbekistan.

Opening of early assistance service in education and pre-school education system in Uzbekistan (groups of early consultative-methodical support to parents, having children with special needs).

Page 27: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

EXPECTED RESULTS OF INTERAGENCY COOPERATION ON THE BASIS OF

EARLY ASSISTANCE SERVICES

100% identification of children of high risk groups having development disorders

100% coverage of children of high risk group with comprehensive psychological, medical and pedagogical abilitation

100% coverage of the early age children with a comprehensive abilitation that will improve their health.

Page 28: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

EXPECTED RESULTS OF INTERAGENCY COOPERATION ON THE BASIS OF EARLY

ASSISTANCE SERVICES

Ensuring continuity of the work of experts on children's development in health, educational and social protection institutions

Establishment of the interagency data bank on the early age children of high risk groups

Development of an individual abilitation/ rehabilitation program for the child and the rehabilitation plans of all team members with an active participation of parents.

Page 29: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

RESULTS OF COOPERATION OF THE RCSAC WITH MINISTRY OF HIGHER AND SECONDARY SPECIAL

EDUCATION

Special modules were developed and included into the bachelors’ degree curriculum of Tashkent State

Pedagogical University (TSPU) named after Nizami: «Vocational guidance for children with special needs»;

«Normative-legal framework on social protection of

children with special needs». Special courses were developed and included into the

bachelors’ degree curriculum of TSPU named after Nizami:

«Integration of children with special needs», «Social work with children with special needs and their

families». New subject was developed and included into the

bachelors’ degree curriculum of TSPU: «Training and upbringing of children with special

needs».

Page 30: Presentation by Ms. Elvira Nazarova, Head of the Department on Study of Issues of Children with Disabilities, Republican Centre of Social Adaptation of Children, Uzbekistan

RESULTS OF COOPERATION OF THE RCSAC WITH MINISTRY OF HIGHER AND SECONDARY SPECIAL

EDUCATION

The following new topics were developed and included into the bachelors’ degree curriculum of TSPU named after Nizami

Training and upbringing of children with severe mental disorders»

«Early diagnostics and abilitation» «Inclusive education» «Speech rehabilitation therapy» «Rehabilitation of children with special needs» «Family psychology of the special school

students».