Executive Office of Elder Affairs

Massachusetts Family Caregiver Support ProgramStatewide Meeting

8/9/2016

AGENDA•Program Updates

oThe Year in ReviewoNew MFCSP Care EnrollmentoAssessment Data ReportoADSSP Grant – Savvy CaregiveroGrandparents Raising Grandchildren

•MFCSP World Cafe

•“Show and Tell” – 1:15 pm to 2:15 pm

•Wrap-up and Evaluation – 2:15 pm to 2:30 pm

The Year in Review•Site visits to 13 local programs•ADSSP Grant Steering Committee•Development of MFCSP Care Enrollment•Updated fcsp.800age info•Two webinars:

▫NAPIS Service Categories▫SO-GI Assessment Question

Upcoming Activities•Care Enrollment Launch•Update Program Guidelines and

Expectations•Implementation of Savvy Caregiver•More Site Visits•More Webinars

▫Grandparents Raising Grandchildren▫Action Planning▫Other ideas?

MFCSP Program UpdatesNEW! MFCSP Care EnrollmentBackground:Presently, Service Delivery entries for the MA Family Caregiver Support Program (MFCSP) include:•Deliveries that are particular to the

program

•Deliveries that are not particular to the program (such as respite services, information and assistance, etc.)

Current Challenges with MFCSP Service Delivery Entries

•Lack of consistency in service delivery entries

•Challenges in tracking service units and cost for respite and supplemental services

•Challenges gathering data for NAPIS reports

•Lack of system for provider direct

NEW: MFCSP Care Enrollment

• Review NAPIS Categories Webinar

• Test the program in Sandbox

• Assess whether you need to use the vendor

management for MFCSP

1.Counseling/Support Groups/Caregiver Training- -Support caregivers in their decision making and problem solving regarding their role-Assessment Unit of Service: 1 SessionServices:Alzheimer’s Disease/Dementia CoachingCaregiver Counseling

Counseling/Professional Therapy Caregiver Support Group

Caregiver Training and Education: Savvy Caregiver, Powerful Tools

2. Respite Care: Brief period of relief or rest for the CaregiverUnit of Service: 1 hour and CostServices:Adult Day Health Social Day HealthCompanion Nursing HomeChore Supportive Home Health AideHomemaker Personal CareHome Health Aide Supported Home Health AideAssisted Living Other

3. Supplemental Services:

Limited services to complement care provided by caregivers

Unit of Service: Order and Payment Amount

Services:Wanderer Locator Grocery Shopping and DeliveryTransportation Chair Car TransportationEnvironmental Adaptations Medical SuppliesOther

4. Self-Directed Care:

Voucher or payment for respite services

Unit of Service: Payment and Amount

Services:

Scholarship for Respite ServicesScholarship for CampershipScholarship for Daycare/Afterschool

NEW!

4. Access Assistance

Connect caregivers to services and resources (two-way conversation is required)

Unit of Service: 1 Contact (may be inbound, outbound, in person, by mail or email, or by phone)

Services:

Access Assistance

5. Information Services:

General information to the public about services available to present an prospective caregivers

Unit of Service: 1 Activity* and an Estimated Audience Size**

Services:

Group OutreachTV and Radio OutreachPrint Media OutreachSocial Media Outreach

• Locally administered program to deliver services

to care-recipients

• Vendors or fiscal staff will post service deliveries

• Units of service: home care program

• Will not be used for NAPIS Reports

NEW! Vendor Management for MFCSP

Starting 10/1/2016

•All care enrollments will be closed•Active and new Caregivers will need to be

enrolled in MFCSP•Vendor Management Program should be

used for those interested in billing through Provider Direct

MFCSP Work Group:Brenda Labbe – Greater SpringfieldSuki Mok and Lisa Parrilla – Boston Senior Home CareLaurie Deskavich – LifepathLaura Black-Silver – Tri ValleyAlicia Rego – BaypathKathy Learned – Mystic ValleyLynn Vidler – ESMV

Questions?Training webinar has been scheduled

for Wednesday September 28, 2016

9 am to 10:30 am The webinar will be recorded and

posted.

You need Chrome or Firefox to view join.me recordings!

FCSP FY2013-2015 Assessment Analysis

[By: Meagan Smith, Master of Public Policy Candidate | Health and Aging]

General Key Findings•70% of caregivers are female•58% of caregivers live with their care

recipient•61% of caregivers provide assistance for 3

or more years•34% of caregivers deliver fulltime (24 X 7)

care•25% of caregivers work full-time jobs

outside of providing care

Lessons Learned•Program Enrollment

▫Data shows trend over the years with 12.5% in 2013, 32.2% in 2014, and 43.6% in 2015 of care recipients NOT being enrolled in any program

•Caring for Those with Alzheimer’s Disease/Dementia▫60% of care recipients have ADRD▫77% of caregivers do not understand how to

care for client▫66% of caregivers experience changes in

personal/social life

Highlights: Emotional Health

•More than 1/3 of caregivers rated their health

as fair

•Those who believed their emotional health changed during the past 3 months, 1/3 felt their health deteriorated

Highlights: Long-Term Caregivers

• Areas of Assistance 5 Years or Less

Environmental support, psychosocial support, heavy housework, meal preparation

6 Years or More Eating, toileting, mobility, personal hygiene

• Immediate Needs/Concerns 5 Years or Less

Managing CR’s medications, safety issues, understanding CR’s health needs, understanding CR behavior

6 Years or More Dealing with own physical health, home modification, financial

strains/constraints, addressing personal concerns other than CG responsibilities

• Areas of Assistance▫ 35 Hours or Less

Advocating/participating in CR’s healthcare, CR psychosocial support, transportation, CR’s legal/financial matters

▫ 36 Hours or More Toileting, personal hygiene, eating, dressing

• Immediate Needs/Concerns▫ 35 Hours or Less

Managing CR’s medications, home modification, balancing work/CG responsibilities, managing other family responsibilities

▫ 36 Hours or More Dealing with own physical health, respite, addressing

personal concerns other than CG responsibilities, understanding/managing behavior of CR

Highlights: Full-Time Caregivers

Remaining Questions•Is the self-care plan working?

•Are caregivers’ physical and emotional health improving?

•How can we continue to look at needs of ADRD, long-term and full-time caregivers?

Alzheimer’s Disease Supportive Services Program (ADSSP) Grant

Objective 1. Create and sustain a comprehensive dementia-capable No Wrong Door (NWD) system for individuals with dementia and their caregivers.

Objective 2. Ensure access to a system of culturally competent, high quality dementia-capable Home and Community Based Service (HCBS).

•Advance professional training for Caregiver Advisors.

•Opportunity to build capacity in MA for “Savvy Caregiver.”

The ADSSP Grant and MFCSP

Savvy Caregiver History•Developed in Minnesota in the late 1990s

•Training the caregiver for an unexpected role

Savvy Caregiver• Six weekly classes, 2 hours each

• Format: lecture, discussions, exercises, video clips,

and homework

Who can attend?

• Informal caregivers-family members and friends

• Care-recipient lives at home or plans to return home

• Care-recipient - moderate stage of the disease

Savvy Objectives• Appreciate scope and impact of work

• Increase skills and knowledge

• Adopt a more strategic outlook

• Develop more effective strategies

• Improve self-care skills

• Improve the quality of life of care recipients

• Increase involvement of families and other

resources

More Information on Savvy Caregiver

http://www.rosalynncarter.org/caregiver_intervention_database/dimentia/savvy_caregiver/

Reaching Grandparents Raising Grandchildren

Are we doing enough?

Grandparents Raising Grandchildren(National Data)

•From 2000 to 2010 alone, there has been a 7% increase in the amount of grandchildren residing in grandparent-headed households (U.S. Census Bureau, 2014).

•Since 1990, the number of grandchildren living in grandparent-headed households has increased by 30% (Fuller-Thompson & Minkler, 2001; Leonard, 2004).

Characteristics of Grandparents Raising Grandchildren (Massachusetts Data)

• 39.7% of grandparents have been responsible for their grandchildren for 5 or more years.

• 38.5% of grandparents are older than 60 years of age. • 43.2% of grandchildren are under 6 years of age. • 64.6% are grandmothers. • 67.9% are married. • 63.5% are non-Hispanic White, 16.4% Hispanic and

14% Black or African American. • 61.8% are currently employed. • The median family income (past 12 months) for

grandparent-households with no parent present is $38,792. *Data not specifically cited is from the U.S Census Bureau, 2010-

2014 American Community Survey 5-Year Estimates.

Website: WWW.MASSGRG.Com

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3% on av-erage

Serving grandparents raising grandchildren

What are you doing already?What else can be done?

Upcoming Webinar

Working with Grandparents Raising GrandchildrenOctober 20, 201610 am to 11 am

Colleen PritoniProgram CoordinatorCommission on Grandparents Raising Grandchildren