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PoCoG Concept Development Workshop for Nurses and Social Workers Held on 3 September 2010 at the University of Sydney

Final Report Prepared by Monika Dzidowska and the PoCoG Executive Office

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CDW for Nurses and Social Workers Final Report EO-AR-110131

1. Contents

2. Introduction ...................................................................................................................................... 3 3. Development of the workshop ......................................................................................................... 3

3.1. Establishment of the working group/faculty ............................................................................. 3 3.2. Call for Expressions of Interest and selection process ........................................................... 3 3.3. The workshop program ........................................................................................................... 4

4. Summary of outcomes .................................................................................................................... 4 4.1. Workshop evaluation ............................................................................................................... 4

5. Next steps ........................................................................................................................................ 5 6. Acknowledgements ......................................................................................................................... 5 7. Further information .......................................................................................................................... 5 8. Appendix A First announcement and EOI form .............................................................................. 6 9. Appendix B Participants handbook ..............................................................................................10 PoCoG Publication Number: EO-AR-110131 © Psycho-oncology Co-operative Research Group, the University of Sydney 2011 This material is subject to copyright laws. Other than for the purposes of and subject to the conditions prescribed under the Copyright Act, no part of it may in any form or by any means (electronic, mechanical, microcopying, photocopying, recording or otherwise) be altered, reproduced, stored in a retrieval system or transmitted without prior written permission from the appropriate author, the Psycho-oncology Co-operative Research Group, the University of Sydney.

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2. Introduction

The purpose of the PoCoG Concept Development Workshop (CDW) for Nurses and Social Workers was to bring together nursing and social work clinicians who are interested in psychosocial research in the cancer care setting.

Concept development workshops are a significant part of PoCoG’s efforts to foster the development of large-scale, multi-centre psycho-oncology studies of clinical relevance and importance and to educate and mentor early career researchers in the development of research projects.

The workshop aimed to address the problems nurses and social workers face when trying to develop and conduct research in the clinical setting and to provide the participants with a basic understanding of research project planning, design and administration.

3. Development of the workshop

The idea of the workshop was brought before the PoCoG Executive Committee in March 2010 by Professor Kate White who advocated for educational opportunities for cancer nursing professionals. It was decided that PoCoG would organise a concept development workshop aimed at nursing and social work clinicians who typically have little research training or experience and that the program content would have to be adjusted accordingly.

3.1. Establishment of the working group/faculty PoCoG Executive Office approached experienced nursing and social work researcher-clinicians to form a working group and act as workshop faculty. Members of the working group were (discipline/function indicated in parentheses):

Professor Kate White (Nursing)

Ms Kim Hobbs (Social Work)

Professor Patsy Yates (Nursing)

Dr Carrie Lethborg (Social Work)

Dr Melanie Price (Ex officio)

Ms Monika Dzidowska (Ex officio)

The working group was later joined by two additional faculty members:

Dr Rosalie Pockett (Social Work)

Dr Mary Ryan (Nursing)

3.2. Call for Expressions of Interest and selection process The working group decided to initiate the process of selecting workshop attendees by calling for an expression of interest (EOI). The EOI asked for brief information about the applicant’s professional background and research experience as well as a short overview of their research idea (appendix A). The call for EOI was released on Thursday 1 April 2010 and was distributed to the memberships of PoCoG, Cancer Nurses Society of Australia (CNSA) and Oncology Social Work Australia (OSWA). The call for EOI closed on 23 April 2010. Twenty-six EOIs were received.

The working group selected workshop attendees on the basis of their need for mentoring and their project’s relevance to psycho-oncology. Twenty EOIs were successful and further five were shortlisted.

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3.3. The workshop program Prior to the workshop successful applicants were asked provide feedback regarding the expected outcomes for the workshop. Based on this feedback it was decided that the main aim of the working sessions of the CDW would be to refine the participants’ research question. Since the submitted research concepts were in different stages of development it was decided that each of the small groups would have a different focus to enable the participants to choose the level at which they would like to work. The following groups were proposed for self-selection:

Refining the research question – for a developed idea with a pre-formulated research question (developed aim which includes at least some of the following: problem, population, intervention, comparison, outcome)

Developing the research question – for a basic research idea/concept with no formulated research question

Focus on developing methodology – qualitative vs. quantitative research methodology (suitable for a concept with a pre-formulated research question)

The workshop program consisted of a morning and afternoon session. The morning session comprised of presentations from the workshop faculty about developing a research project as well as career development issues of clinician-researchers (detailed program contained in appendix B). The afternoon session focused on practical aspects of developing the participants’ research ideas.

The small group discussion work was conducted in 5 small discussion groups to which participants self-selected as described above. The faculty and the participants worked together on refining the research questions and benefited from each others’ clinical and research experience. The majority of the participants made substantial progress in developing their research idea.

4. Summary of outcomes

Of the 20 successful and 5 shortlisted candidates 17 attended the workshop. Two-thirds of the attendees were Social Work professionals and one-third was Nursing professionals. They represented a wide spectrum of both professional and research experience.

The workshop’s two main outcomes were:

· Successfully providing the opportunity for Social Work and Nursing clinicians to access expert advice, practical tips and mentoring in developing a research idea and conducting research in the clinical setting

· Successfully providing a networking opportunity for Social Work and Nursing clinicians who are interested in research

One member of the faculty commented that “the small group nature of the afternoon (after the morning set the tone of the day - i.e. that the presenters had all experienced practice issues, the sharp learning curve and were 'just like them' in the early days of their research career) was of great benefit. It allowed participants to toss around aspects of their practice that they could investigate with enough time. It was a real joy to participate in this section of the day in particular. Our group all left stating how excited they felt and happy that they could envisage completing a project - for the first time”.

4.1. Workshop evaluation An electronic evaluation questionnaire was sent to all registered workshop participants. Of the 17 who attended the workshop 14 completed the questionnaire. Five participants reported hearing about the workshop thought the PoCoG mailout and three though the OSWA mailout. Five reported having the message forwarded to them by their manager or colleague.

All the participants expressed a high level of overall satisfaction with the workshop, with 100% participants strongly agreeing that the workshop was a good use of their time. This result was supported by the very positive comments offered by the participants. Specifically, they valued the opportunity to network with like-minded people, opportunity to access research expertise from faculty

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members who appreciated the participants’ situation as a clinician and being able to work on their own research ideas in a non-threatening environment. The participants felt supported and welcomed by both the workshop faculty and PoCoG staff.

The participants were also asked to rate the workshop sessions in terms of their relevance, enjoyment and usefulness of content, the presenter and the resources they presented, by indicating how strongly they agreed with each of the statements. The four morning presentations as well as the small group discussion sessions were very highly valued with 81% or more participants marking “strongly agree to all aspects of the sessions rated by the survey. There was a slight preference for the more clinically oriented sessions and for those more directly relevant to Social Work, a reflection of a higher proportionof Social Work participants. The lowest scoring aspect of the small discussion group sessions was the sufficiency of time allocated to them (1 3/4hrs).

The two most prominent areas of criticism from the participants were the time constrains and a lack of a clear, planned follow-up. Participants felt that more time should have been allocated to the workshop overall but especially to the small discussion group sessions in order to obtain more help with their concepts. The participants also commented that they would have liked a follow-up workshop in order to continue working on their concepts.

5. Next steps

PoCoG has taken steps to continue working with Social Work clinicians on developing research projects and support networks:

· PoCoG has called for expressions of interest from the workshop attendees to participate in a possible audit study of Oncology Social Work practice and is in the process of preparing a literature review

· PoCoG plans to initiate a Social Work forum discussion group on the PoCoG website

Although, due to budgetary constraints, there are at present no plans to conduct a follow-up workshop specifically targeting nurses and social workers, PoCoG conducts regular Concept Development Workshops and will in the future explore ways of increasing participation from these professional groups.

6. Acknowledgements

PoCoG would like to thank the working group and faculty members for their enthusiastic work on developing and presenting the workshop: Prof. Kate White, Ms Kim Hobbs, Prof. Patsy Yates, Dr Carrie Lethborg, and Dr Mary Ryan.

7. Further information

Further inquiries about the workshop report should be directed to:

PoCoG Executive Office

Tel: 02 9036 5002

Fax: 02 9036 5292

Email: [email protected]

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8. Appendix A First announcement and EOI form

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PURPOSE The purpose of the PoCoG Concept Development Workshop (CDW) is to bring together nursing and social work clinicians who are interested in psychosocial research in the cancer care setting.

The workshops are a significant part of PoCoG’s efforts to foster the development of large-scale, multi-centre psycho-oncology studies of clinical relevance and importance and to educate and mentor early career researchers in the development of research projects.

The workshop aims to address the problems nurses and social workers face when trying to develop and conduct research in the clinical setting and to provide the participants with a basic understanding of research project planning, design and administration.

WHO CAN ATTEND? PoCoG is calling for expressions of interest from nursing and social work clinicians working in the area of psychosocial oncology, who are interested in getting involved in collaborative, multi-disciplinary research and have an idea for research with which they need help to get started.

HOW TO APPLY? To register your expression of interest please fill in the attached form.

The form is to be submitted electronically to the PoCoG Secretariat by email to: [email protected] Places are limited to 20 participants and will be subject to a selection process. The closing date for submission is:

5pm, Friday 23 April 2010

COST PoCoG will cover registration costs. All meals during the workshop will be covered by PoCoG.

WHEN AND WHERE? The workshop is planned for Friday 27 August 2010. The venue for the workshop will be confirmed closer to this date

Further information Please contact Dr Melanie Price Tel: 02 9351 3916 Email: [email protected]

PROGRAM OUTLINE Friday 27 August 2010 9:30am—5:00pm

Registration

Morning session:

• Presentations from invited speakers to address the challenges and strategies in research for nurses and social workers

Afternoon session

• Practical small group works

• Consolidation and Evaluation

Please note that while the commencement and conclusion times are final the details of this program may change. The program details will be confirmed closer to the date of the workshop.

Research Concept Development Workshop for Nurses and Social Workers

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Concept Development Workshop 2010 For nurses and social workers

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Please complete and email to [email protected] or fax to (02) 9036 5292 by 23rd April 2010. If you have any questions please contact Dr Melanie Price or email [email protected] 1. PERSONAL DETAILS

Title and full name PoCoG member

Organisation:

Address: State Post code

Phone: Fax: Email:

Qualifications:

End of page 1. Page two follows

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Concept Development Workshop 2010 For nurses and social workers

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2. Expression of Interest Please answer the following questions Briefly describe the environment in which you work (e.g. palliative care, haematology, surgical):

Please describe any previous involvement in research you may have had (e.g. recruited to studies, coordinated a trial etc.):

Are you aware of anyone in your work environment with whom you could partner or seek advice from when planning or conducting a research project (e.g. research unit, researcher, clinician conducting research, trials coordinator)?

Briefly describe a research idea or a theme or issue of interested which you would like to pursue as a research project:

Full name Date End of document.

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9. Appendix B Participants handbook

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Nurses and Social Workers Workshop 2010

The Education Building, A35 Manning Road The University of Sydney NSW 2006 03 September 2010

PoCoG’s Concept Development Workshop 2010 received funding from the Australian Government through Cancer Australia

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Dear Participant, Welcome to the first PoCoG Concept Development Workshop for Nurses and Social Workers. The purpose of the PoCoG Concept Development Workshop (CDW) is to bring together nursing and social work clinicians who are interested in psychosocial research in the cancer care setting. This workshop is a significant part of PoCoG’s efforts to foster the development of large-scale, multi-centre psycho-oncology studies of clinical relevance and importance and to educate and mentor early career researchers in the development of research projects. We look forward to an exciting day and hope that you will find this workshop a rewarding and productive event. Yours sincerely, Prof. Phyllis Butow Prof. Kate White Kim Hobbs PoCoG Chair Workshop Convenor Workshop Convenor

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GROUP ALLOCATION Group 1: Prof Patsy Yates & Dr Mary Ryan Refining the research question Seminar Room 436 Judith Conning Jane Hunt Jan Obery Patricia Reid Julianne Whyte Group 2: Dr Carrie Lethborg Developing the research question Seminar Room 433 Heather Aldis Elizabeth Ballinger Jenny Downes Group 3: Ms Kim Hobbs Developing the research question Seminar Room 435 Julie Garrard Nathan MacArthur Patsy Pynn Group 4: Prof Kate White Developing the research question Seminar Room 311 Katrina Breaden Rosemary Hoyt Bronwyn Raymond Karen Robinson Group 5: Dr Rosalie Pockett Focus on developing methodology Registration Room 461 Helen Breen Robyn Keall Trish Mckinnon Jeanie O’Connor

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PURPOSE The purpose of the PoCoG Concept Development Workshop (CDW) is to bri ng together nursing and social work clinici ans who a re int erested in psychosocial research in the cancer care setting.

The workshops a re a significant part of PoCoG’ s efforts to foster the devel opment of la rge-scale, multi-centre psycho-on cology studi es of clini cal relevance a nd importan ce and to educate an d mentor ea rly c areer r esearchers in th e development of research projects.

The worksh op aim s to address th e pro blems nurses an d so cial worke rs face when trying to develop and condu ct re search in the clinical setting and to provide the participants with a basic understanding of re search proje ct planni ng, design and administration.

THEME The purpose of the PoCoG Concept Development Workshop (CDW) is to bri ng together nursing and social work clinici ans who a re int erested in psychosocial research in the cancer care setting.

PROGRAM OUTLINE The d ay wil l comm ence with an in troductory address by Prof Kate White, and will be followe d by a presen tation on “Clinical Data Mining for Practice Based Research Projects” by Dr Rosalie Pockett. This will be followed by morning tea.

Prof Patsy Yates will then pre sent on “ Getting Started - Tips for developing your research plan”. This will be followed by a presentat ion by Dr Carrie Le thborg on “ Experience as a clinician- researcher in the area of Social Work”, and Dr Mary Ryan on “ Experience as a clinician-researcher in the area of Nursing”.

After breaking for lunch we will separate into small discussion g roups fo cusing on the area s of Refining the research question, Developing the research question and Focus on developing methodology.

After afternoon tea we will have feedback from the group discu ssions and an informal pane l discussion and wind up.

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Time Activity Rooms/Presenters

9:00am - 9:30 am Registration

Room 461

9:30am Welcome and workshop introduction

Prof Kate White Room 436

10:50am -11:10am Morning tea Room 461

11:10am -12:10pm Getting Started: Tips for developing your research plan

Prof Patsy Yates Room 436

1:10pm -1:55pm Lunch Room 461

1:55pm -3:40pm Small discussion groups

Prof Kate White Room 311 Dr Carrie Lethborg Room 433 Ms Kim Hobbs Room 435 Prof Patsy Yates Room 436 Dr Mary Ryan Room 436 Dr Rosalie Pockett Room 461

3:40pm -4:00pm Afternoon tea Room 461

4:00pm -4:30pm Feedback from group discussions

Participants Room 436

4:30pm -5:00pm Informal panel discussion and wind-up

Participants Room 436

9:50am Clinical Data Mining for Practice Based Research

Dr Rosalie Pockett Room 436

12:10pm -12:40pm The Practice-Research Loop: Experiences of a clinician-researcher

Dr Carrie Lethborg Room 436

12:40pm -1:10pm Experience as a clinician-researcher in the area of Nursing

Dr Mary Ryan Room 436

5:00pm Workshop close

Prof Kate White Room 436

DETAILED PROGRAM OUTLINE

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Social Work in Palliative Care Progress in Palliative Care, Volume 18, Number 4, August 2010, Social Work in Palliative Care http://www.ingentaconnect.com/content/maney/ppc/2010/00000018/00000004

PICO summaries http://resources.bmj.com/bmj/authors/bmj-pico Nursing research: methods and critical appraisal for evidence ..., Volume 1 By Geri LoBiondo-Wood, Judith Haber http://books.google.com/books?id=9ypDwvWnoocC&lpg=PA483&ots=-DKCKhje90&dq=PICO%20nursing%20research%20framework&pg=PA483#v=onepage&q&f=false

PoCoG Psycho-oncology Outcomes Database (PoD) PoD is a searchable online database of patient-reported outcome measures. PoCoG has developed PoD to help you find the most appropriate, validated patient-reported measures for your next study. Find out more...

What is a Systematic Review For information regarding systematic reviews please visit the following link and click on systematic review. http://www.whatisseries.co.uk/whatis/

PoCoG website Members of PoCoG can access a wide range of resources through the PoCoG website. Membership is free and you can join by going to www.pocog.org.au and registering online.

RESOURCES AND BACKGROUND READING MATERIAL

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http://www.ingentaconnect.com/content/maney/ppc/2010/00000018/00000004

http://resources.bmj.com/bmj/authors/bmj-pico

http://books.google.com/books?id=9ypDwvWnoocC&lpg=PA483&ots=-DKCKhje90&dq=PICO%20nursing%20research%20framework&pg=PA483#v=onepage&q&f=false









http://www.pocog.org.au/content.aspx?page=podlaunchpage

http://www.whatisseries.co.uk/whatis/

http://www.pocog.org.au

VENUE INFORMATION

The workshop will be held at: The Education Building, A35 Manning Road The University of Sydney Camperdown NSW 2006

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The Education Building

Main Entrance City Road

Main Entrance Parramatta Road

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MEALS Morning tea, lunch and afternoon tea are all included in the registration costs which are covered by PoCoG.

These will be provided in Seminar Room 461 on Level 4.

ELECTRONIC RESOURCES We do not anticipate any need for internet access for the purposes of the workshop.

PARKING There is a day parking rate of $24.00 There is a parking station underneath the Law School building in addition to limited on campus street parking.

PUBLIC TRANSPORT By Train: Catch a train to Redfern train station, and then take a 10-minute walk to the main campus.

By Bus from the City: For stops on Parramatta Road (closest to the Quadrangle) catch routes 412, 413, 435, 436, 437, 438, 440, 461, 480 from George Street or Railway Square.

For stops on City Road (closest to Darlington Campus) catch routes 422, 423, 426, 428 from Castlereagh Street or Railway Square.

By Bus - cross routes: Route 370 runs between Coogee and Leichhardt. Alight on City Rd for Sydney University. Route 352 runs between Bondi Junction and Marrickville. Alight on City Rd for Sydney University.

PARTICIPANT EMAIL LIST

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mailto:[email protected]













mailto:jeanie.o'[email protected]





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PRESENTERS INFORMATION

KIM HOBBS Kim Hobbs holds a Ma sters degree (research) in Social Work. She has a long career in oncology social work, and has been working at Westmead Hospital since 1994 in the Department of Gynaecological Oncology.

She has participated in several multidisciplinary research projects, resulting in several publi cations in peer-revie wed journals. Current research initiatives in-clude qualitative research with advanced ovarian cancer patients, sexuality for patients and partners following treatment for cancer, the needs of cancer care-givers, training and support needs of ca ncer support group leaders and unmet needs of young women with gynaecological cancer.

Kim is a member of the PoCoG’s Scientific Advisory Committee.

CARRIE LETHBORG Dr Carrie Lethborg is a social worker, researcher and educator in the can cer setting with over 20 years experie nce. She holds the position s of Clinical Leader, Cancer Social Work an d Coordinator Psycho-social Care – Can cer Services at St Vincent's Ho spital in Melbou rne as well as hon orary appoint-ments at Peter MacCallum Cancer Centre and at the University of Melbourn e. She is Chair of the Western and Central Melbourne Integrated Cancer Service (WCMICS) – Supportive Care Advisory Group, Deputy Chair of the Victorian Co-operative Oncology G roups’ P sycho-Oncology Committee and is an ex -ecutive member of the State Governm ent Advisory group for cancer survivor-ship, OSWA, Cancer Social Work Victoria and the Clinical Advisory Group for WCMICS. Carrie i s widely publi shed in pee r review journals and text boo ks as well as producing an award wi nning child ren’s book for chi ldren with a pare nt with

cancer. She has successfully secured over $500,000 in grant funds, is the reci pient of multiple award s in-cluding the A ward for Ex cellence for social work research, the P remier’s Excellence Award for Imp roving Cancer Care in Victoria (2009), the AOSW Naomi Stearns Scholarship (2009) and was most recently given the Emerging Leader award for Catholic Health Aust ralia. Carrie is currently completing her NH&MRC post doctoral study involving an intervention trial of a me aning and purpose therapy after an initial post d octoral fellowship at the prestigious Memorial Sloan Kettering Cancer Center in New York.

ROSALIE POCKETT Dr Rosalie Pockett is a se nior lecturer in Social Work & Policy Studie s at the Uni-versity of Sydney. She h as a career background i n ho spital/health so cial work practice and her a reas of resea rch inte rest include: cri sis inte rvention; advanced care and end-of-life care planning; practice-based research; health inequalities and social justice persp ectives; interprofession al educa tion and pra ctice; leade rship and management in social work; professional practice supervision; new graduates and the wo rkplace; the occup ational culture of social work, and cl assification sys-tems for social work practice. She has been involved in a num ber of clini cal data-mining research p rojects that have re cently been p ublished. Fu rther info rmation can be found on the Supervisor Connect page of the university: http://www.usyd.edu.au/research/opportunities/opportunities/747 This paper will look at cli nical data mi ning as method for undert aking practi ce-

based re search proj ects u sing existin g data sets. T wo recent examples of co mpleted re search proj ects using CDM will be presented.

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http://www.usyd.edu.au/research/opportunities/opportunities/747

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PRESENTERS INFORMATION

PATSY YATES Patsy is jointl y appointed as Professor of Nu rsing with the Instit ute of Health and Biomedical I nnovation at Quee nsland Univ ersity o f Tech nology, and Di rector for Queensland Health’s Cent re for Palliati ve Care Research and Education, a state-wide service that was established to enhance palliative care services in Queensland through education and research. Patsy has developed a program of research aimed at improving management of symptoms as sociated with advanced progressive dis-ease, having com pleted several clinical trials evaluating interve ntions fo r p eople with cancer experiencing cancer pain, breathlessness, fatigue and nausea.

This presentation aims to provide a broad overview of what is require d to develop your research plan. At the end of thi s presentation, you should be able to: Expl ain the key elements of a resear ch que stion, Identify k ey issue s to be con sidered in developing research plan, Identify general qualities of a good research proposal.

MARY RYAN Mary is a clinical nurse consultant in gynaecological cancer nursing, an area she has worked i n sin ce 1989. She com pleted her Ph D titled ‘Livin g with recurrent ovarian cancer: a narrative analysis’ in 2005 (University of Sydney) under the su-pervision of Professor Jocalyn Lawler.

Mary is currently working half time in clinical practi ce and half time working o n an evidence implementation project to improv e nutritional status a nd physical condi-tioning of women with g ynaecological can cer. The proje ct is made po ssible through an NHMRC NICS CA-NCGC Fellowship.

Contact:

In this presentation Mary will give a per sonal perspective of the experi ence of moving from full time clinical practice into conducting funded research while still maintaining a clinical role. The opportunities and challenges of managing multiple roles as a clinical researcher will be addressed.

KATE WHITE Professor Cancer Nursing Kate White is a member of the PoCo G Executive. Her research interests have been in the psychosocial areas related to cancer and pallia-tive care. Drawing on h er clini cal expe rience Kate has been de veloping a back-ground in ca ncer re search, focusin g on improving the psycho social outcome s for those diagnosed with cancer. This has been in the areas of supportive care, estab-lishment of advanced p ractice roles, cancer h ealth service d elivery, and eq uity of care for rural and NESB Australians and their families.

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