performance report 2014 - donatelife 2014... · 2018. 7. 12. · 2014 013495701...

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Performance Report 2014 In 2014 more organs were transplanted from fewer donors. There were 378 deceased organ donors in 2014. This outcome was 3% lower than that achieved in 2013 (391 deceased organ donors). In contrast, the number of organs transplanted was 1% higher than the 2013 outcome. This result reflects a higher organs per donor ratio. The 2014 organs per donor ratio of 3.2 was higher than the 2013 outcome of 3.0, indicating that donations principally proceeded from standard criteria donors, and did not draw upon more extended criteria donors. The 2014 organ donor outcome represents a 53% increase over 2009 (247), the year the DonateLife Network was established. When compared with the historical average of 205 organ donors per annum (2000- 2008) this represents an 84% increase in the number of organ donors in 2014. 0 Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov 2013 outcome 391 2014 outcome 378 53% 2012 outcome 354 2011 outcome 337 2010 outcome 309 2009 outcome 247 Dec 50 100 150 200 250 300 350 400 Number Deceased organ donors 2009 2014 Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 1200 1000 800 600 400 200 0 2013 outcome 1,122 2014 outcome 1,117 38% 2012 outcome 1,053 2011 outcome 1,009 2010 outcome 943 2009 outcome 808 Number In 2014 there were 1, 117 transplant recipients. This result is comparable to the outcome achieved in 2013 (1, 122 transplant recipients). The 2014 outcome represents a 38% increase over 2009 (808), the year the DonateLife Network was established. When compared to the historical average of 685 organ transplant recipients per annum (2000- 2008) this represents a 63% increase in the number of transplant recipients in 2014. One in four of the 1, 117 organ transplant recipients received a transplant because of the growth in donation outcomes since 2009. Organ transplant recipients 2009 2014 Organs transplanted 2009 2014 Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 1200 1000 800 600 400 200 0 2013 outcome 1,177 2014 outcome 1,193 39% 2012 outcome 1,110 2011 outcome 1,057 2010 outcome 993 2009 outcome 856 Number In 2014 1, 193 organs were transplanted. This outcome was 1% higher than that achieved in 2013 (1, 177 organs transplanted). The 2014 outcome represents a 39% increase over 2009 (856), the year the DonateLife Network was established. When compared to the historical average of 720 organs transplanted per annum (2000- 2008) this represents a 66% increase in the number of organs transplanted in 2014.

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Page 1: Performance Report 2014 - DonateLife 2014... · 2018. 7. 12. · 2014 013495701 869054.9,96IDDDecasd orgnoe–aOedt 3 Performance eport 014 In 2014 Australia had a donors per million

Performance Report 2014

In 2014 more organs were transplanted from fewer donors.

There were 378 deceased organ donors in 2014. This outcome was 3% lower than that achieved in 2013 (391 deceased organ donors). In contrast, the number of organs transplanted was 1% higher than the 2013 outcome.

This result reflects a higher organs per donor ratio. The 2014 organs per donor ratio of 3.2 was higher than the 2013 outcome of 3.0, indicating that donations principally proceeded from standard criteria donors, and did not draw upon more extended criteria donors.

The 2014 organ donor outcome represents a 53% increase over 2009 (247), the year the DonateLife Network was established. When compared with the historical average of 205 organ donors per annum (2000-2008) this represents an 84% increase in the number of organ donors in 2014.

0Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov

2013 outcome 3912014 outcome 378

53%2012 outcome 3542011 outcome 3372010 outcome 309

2009 outcome 247

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Deceased organ donors 2009 – 2014

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In 2014 there were 1,117 transplant recipients. This result is comparable to the outcome achieved in 2013 (1,122 transplant recipients).

The 2014 outcome represents a 38% increase over 2009 (808), the year the DonateLife Network was established. When compared to the historical average of 685 organ transplant recipients per annum (2000-2008) this represents a 63% increase in the number of transplant recipients in 2014.

One in four of the 1,117 organ transplant recipients received a transplant because of the growth in donation outcomes since 2009.

Organ transplant recipients 2009 – 2014

Organs transplanted 2009 – 2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

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2013 outcome 1,1772014 outcome 1,193

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2012 outcome 1,1102011 outcome 1,0572010 outcome 993

2009 outcome 856

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In 2014 1,193 organs were transplanted. This outcome was 1% higher than that achieved in 2013 (1,177 organs transplanted).

The 2014 outcome represents a 39% increase over 2009 (856), the year the DonateLife Network was established. When compared to the historical average of 720 organs transplanted per annum (2000-2008) this represents a 66% increase in the number of organs transplanted in 2014.

Page 2: Performance Report 2014 - DonateLife 2014... · 2018. 7. 12. · 2014 013495701 869054.9,96IDDDecasd orgnoe–aOedt 3 Performance eport 014 In 2014 Australia had a donors per million

For more information visit www.donatelife.gov.au 2

Performance Report 2014

Transplant recipients monthly actual and trend 2009-2014The transplant recipients trend has increased over time from less than 50 transplant recipients a month in January 2009 to 93 transplant recipients a month by December 2014.

Organs transplanted monthly actual and trend 2009-2014The organs transplanted trend has increased over time from less than 50 organs transplanted a month in January 2009 to 98 organs transplanted a month by December 2014.

Deceased organ donors monthly actual and trend 2009-2014The deceased organ donation trend has increased over time from less than 20 donors a month in January 2009 to 31 donors a month by December 2014.

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The following trends are calculated by taking a Henderson moving average of the actual outcomes to smooth out the month to month volatility. They are designed to indicate the broad direction of a series rather than specific month to month outcomes.

Page 3: Performance Report 2014 - DonateLife 2014... · 2018. 7. 12. · 2014 013495701 869054.9,96IDDDecasd orgnoe–aOedt 3 Performance eport 014 In 2014 Australia had a donors per million

For more information visit www.donatelife.gov.au 3

Performance Report 2014

In 2014 Australia had a donors per million population rate (dpmp) of 16.1 dpmp. This result represents a 4.7% decrease (0.8 dpmp) compared with the 2013 outcome of 16.9 dpmp and a 41% increase over 2009 (11.4 dpmp), the year the DonateLife Network was established.

Using the international standard measure of organs transplanted per million population (otpmp), Australia achieved an outcome of 50.8 otpmp in 2014 which is comparable to the 2013 outcome (50.9 otpmp) and 29% higher than in 2009 (39.5 otpmp), the year the DonateLife Network was established.

In 2014, there was significant variation in jurisdictional outcomes with donation rates ranging from 28.6 dpmp to 12.6. Victoria, South Australia, Tasmania and the Australian Capital Territory jointly accounted for a 3% increase in the national dpmp. New South Wales, Queensland and Western Australia, however, together accounted for a 7.7% decline. The jurisdictional variation in outcomes resulted in a net decrease of 4.7% in the national dpmp (0.8 dpmp). Though well above the national outcome, the slight decrease in dpmp in the Northern Territory had a negligible impact on the national outcome due to the small number of deceased donors and relatively small population size.

The potential for continued national growth in donation outcomes is evident in the 2014 outcomes where five of the eight jurisdictions had donation rates of 17.5 dpmp and higher.

National deceased donation and transplant rates 2009–2014

Jurisdictional donation rates 2009 – 2014

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Donors per million population

Transplant recipients per million population

Organs transplanted per million population

Rate

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11.4 37.2 39.5 14.0 42.8 45.1 15.1 45.2 47.3 15.6 46.3 48.8 16.9 48.5 50.9 16.1 47.6 50.8

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18.7

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.910.0

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33.9

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11.7

17.3

13.7 15

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9.6

19.7

8.7

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14.0

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ACT

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9.9 12

.110.9 20.5

8.5 9.

9 8.8

14.1

11.4

Page 4: Performance Report 2014 - DonateLife 2014... · 2018. 7. 12. · 2014 013495701 869054.9,96IDDDecasd orgnoe–aOedt 3 Performance eport 014 In 2014 Australia had a donors per million

For more information visit www.donatelife.gov.au 4

Performance Report 2014

Kidneys are the predominant organ donated and transplanted. In 2014, 659 kidneys were transplanted from deceased organ donors. This was 2% higher than the outcome in 2013 (645), and 46% higher than in 2009 (452), the year the DonateLife Network was established.

In 2014 there were also four combined heart/lung transplants and one intestinal transplant. These transplants have not been represented graphically due to the relatively small numbers when compared with other types of organ transplants.

The 2014 heart transplant counts include two hearts transplanted successfully from donors who donated after circulatory death. Prior to this, heart transplant units relied on donor hearts from brain-dead donors. This world first procedure has the potential to increase the number of available hearts for transplantation and consequently the number of heart transplant recipients in the future.

In 2014:

79 hearts were transplanted, 3% higher than the outcome in 2013 (77) and 34% higher than in 2009 (59).

159 lungs were transplanted, 5% lower than the outcome in 2013 (167) and 42% higher than in 2009 (112).

237 livers were transplanted, 6% lower than the outcome in 2013 (252) and 28% higher than in 2009 (185).

Deceased donors by donation pathway 2009–2014In 2014 72% (271) of deceased donors were realised from the Donation after Brain Death (DBD)* pathway, with the remaining 28% (107) from the Donation after Circulatory Death (DCD)** pathway.

In 2014 there was an 11% decrease in donations realised from the DBD pathway and a 24% increase in donations from the DCD pathway when compared to the 2013 outcomes.

Of the 131 additional donors in 2014 when compared to the 2009 outcome, 66 donors (50% of the growth) were realised from the DBD pathway and 65 donors (50% of the growth) were realised from the DCD pathway.

Organs transplanted from deceased donors 2009–2014

* DBD – Brain death occurs when a person’s brain is so damaged that it will never function again. When doctors determine that a person in intensive care has died in this way, donation after brain death can be considered.** DCD– Circulatory death occurs when a person’s heart stops beating. When doctors determine that a person in intensive care will not recover and their heart will stop beating within 90min of removal of artificial support, donation after circulatory death can be considered.

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kidney liver heart

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lung pancreas (including islets)

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Page 5: Performance Report 2014 - DonateLife 2014... · 2018. 7. 12. · 2014 013495701 869054.9,96IDDDecasd orgnoe–aOedt 3 Performance eport 014 In 2014 Australia had a donors per million

For more information visit www.donatelife.gov.au 5

Performance Report 2014

International comparison

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Australia (2010)Portugal (2008)Spain (1991)UK (2009)Croatia (2001)

Full years following implementation

It is difficult to draw direct comparisons between countries in terms of their progress in organ donation reform, as there are many differences between health care systems, population size, community attitudes and the relative starting points for national organ and tissue donation reform.

The key lesson to learn from countries with high donation outcomes is that reform of organ and tissue donation is an incremental process that takes time as national systems are developed and hospital based clinical practice is reformed.

International experience from leading organ donation countries has shown that variation in donation and transplantation outcomes has occurred annually while rates continue to trend upwards over time. This is apparent in Portugal and Croatia where performance declined in their fifth year of organ and tissue donation reform. The key elements of international reform models that have been adopted by Australia are:

1 An appropriate legal and ethical framework2 A national coordinating body3 Hospital-based clinical donation specialists4 Specialist training for clinical staff in management of the

deceased donation process and family donation conversations5 Implementation of a clinical governance framework that

supports quality assurance and audit of hospital clinical practice and governance of the donation process

6 Financial support to donor hospitals to ensure that costs related to donor management are not a barrier to donation

7 Media engagement and national community awareness and education, and

8 International cooperation to share best practice.

Australian Paired Kidney Exchange (AKX) programmeIn 2014 the Australian Paired Kidney Exchange (AKX)programme continued to meets its aim to increase the number of live donor kidney transplants performed in Australia by identifying matches for patients eligible for a kidney transplant who have a living donor willing but unable to donate because of an incompatible blood type or tissue type.

In 2014 the AKX programme facilitated 38 live donor kidney transplants, bringing the total number of transplants conducted under the programme to 109 since commencement in August 2010. The number of AKX-facilitated kidney transplants in 2014 (38) was more than 50% of the total number of AKX transplants facilitated between 2010 and 2013 (71). Due to the high-sensitivity of patients enrolled, these surgeries were unlikely to have occurred in the absence of the AKX programme.

There are currently 21 transplant centres across Australia participating in the AKX programme (7 in New South Wales, 7 in Victoria, 2 in Queensland, 2 in South Australia and 3 in Western Australia).

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Page 6: Performance Report 2014 - DonateLife 2014... · 2018. 7. 12. · 2014 013495701 869054.9,96IDDDecasd orgnoe–aOedt 3 Performance eport 014 In 2014 Australia had a donors per million

For more information visit www.donatelife.gov.au 6

Performance Report 2014

CardiovascularMusculoskeletal

0 500 1000 1500 2000 2500 3000 3500 4000

2014

2013

2012

3,696

3,784

17

3,652

20

Living tissue donation 2012 – 2014The 3,649 living tissue donors in 2014 gave 3,713 tissue donations, predominantly from patients undergoing joint replacement surgery.

This outcome represents a 2% decrease compared to 2013 (3,804), and a 2% increase compared to 2012 (3,652), the first year in which national tissue donation outcomes were reported for Australia.

2014

2013

2012

0 50 100 150 200 250 300 400 550500350 450

Deceased organ and tissue donationsDeceased tissue only donations

322 190

214 177

192 131

Musculoskeletal

Deceased organ and tissue donationsDeceased tissue only donations

Musculoskeletal

Musculoskeletal

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Cardiovascular

Cardiovascular

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2014 141 62

101 57

83 43

85

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59

75

36 53

122 43

78 45

73 35

The provisional 2014 outcome of 3,980 tissue donors included 331 (8%) deceased tissue donors and 3,649 (92%) living tissue donors.

The 331 deceased tissue donors gave 512 tissue donations in 2014 comprising 190 from solid organ and tissue donors and 322 from tissue only donors.

The 2014 outcome (512 tissue donations) represents a 31% increase over 2013 (391), and a 59% increase over 2012 (323), the first year in which national tissue donation outcomes were reported for Australia.

There was an increase in the number of musculoskeletal (203), skin (165) and cardiovascular (144) tissue donations in 2014. This compares to 158 musculoskeletal, 123 skin and 110 cardiovascular tissue donations in 2013.

Deceased tissue donation 2012 – 2014

Page 7: Performance Report 2014 - DonateLife 2014... · 2018. 7. 12. · 2014 013495701 869054.9,96IDDDecasd orgnoe–aOedt 3 Performance eport 014 In 2014 Australia had a donors per million

For more information visit www.donatelife.gov.au 7

Performance Report 2014

Eye donors 2009 – 2014The 2014 outcome was 1,162 eye donors, representing a 2% increase in eye donors compared with the 2013 outcome of 1,144 eye donors.

This outcome represents a 26% increase in eye donors over 2009 (922 donors).

Eye Donors

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1,169

1,083

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Corneal Transplants

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1,932

1,942

1,716

1,510

1,467

The 2014 outcome of 1,897 corneal transplants represents a 2% decrease compared with the 2013 outcome of 1,932 corneal transplants. Australian eye banks reported that all requests for eye tissue for transplantation were met in 2014.

This outcome represents a 29% increase over the 2009 outcome of 1,467 corneal transplants.

Corneal transplants 2009 – 2014

Data sourcesNational data: Australia and New Zealand Organ Donation (ANZOD) Registry (January 2015)

Australian Paired Kidney Exchange (AKX) Programme (January 2015)

International data: International Registry in Organ Donation and Transplantation (January 2015)

Tissue transplant outcomes 2013 – 2014In 2014 there were 9,071 notified tissue grafts transplanted. Of these, 7,488 were musculoskeletal tissue, 204 were cardiovascular tissue and 1,379 were skin tissue transplants1.

This outcome represents a 45% increase compared to the 2013 outcome of 6,248 notified tissue grafts transplanted.

In the same period, there were 5,553 notified tissue transplant recipients2, some recipients receiving multiple grafts. These included 5,247 recipients of musculoskeletal tissue, 203 recipients of cardiovascular tissue and 103 recipients of skin tissue.

This outcome represents a 50% increase compared to the 2013 outcome of 3,691 notified tissue transplant recipients.

Notified tissue grafts transplanted

Musculoskeletal

Musculoskeletal

Cardiovascular

Cardiovascular

Skin

Skin

0 1000 2000 3000 4000 60005000 8000

2013

2014

2013

2014

2013

2014

7,488

5,289

1,379

166

204

793

7000

5000

Notified tissue transplant recipients

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Musculoskeletal

Cardiovascular

Cardiovascular

Skin

Skin

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2014

2013

2014

2013

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166

103

89

203

5,247

3,436

1 While the majority of tissue transplanted in Australia comes from Australian donors, tissue is imported in certain circumstances utilising the Therapeutic Goods Administration’s special access scheme.

2 For the purpose of national reporting a tissue transplant recipient is counted as a transplantation event.

Page 8: Performance Report 2014 - DonateLife 2014... · 2018. 7. 12. · 2014 013495701 869054.9,96IDDDecasd orgnoe–aOedt 3 Performance eport 014 In 2014 Australia had a donors per million

For more information visit www.donatelife.gov.au

Organ and Tissue Authority Level 6, 221 London Circuit Canberra ACT 2600 PO Box 295 Civic Square ACT 2608 T 02 6198 9800 F 02 6198 9801

Not everyone can be a deceased organ donor as particular circumstances must prevail in order for a patient to be medically suitable for donation. Deceased organ donation is only possible from a subset of end of life events that occur in intensive care units or hospital emergency departments. Potential deceased donors need to be identified and, if medically suitable, the family asked to confirm the wishes of their family member before donation can occur.

By way of example, in 2014 the Australian population1 was 23,490,700 with an estimated 149,100 deaths occurring2. Of these, approximately 74,400 deaths occurred in hospitals3 with around 700 potential donors identified4 – around 1% of the hospital deaths.

Requests to families for donation4 were made in around 680 cases, with approximately 415 families consenting to donation4. In just under 40 cases where family consent was given, donation did not proceed for a variety of reasons.

The resulting 378 deceased organ donors5 enabled 1,193 organs to be transplanted5, transforming the lives of 1,117 transplant recipients5.

Australia’s potential deceased organ donor population 2014

Performance Report 2014

Source:1. 30 June 2014 estimated resident population (ABS 3101.0 Australian Demographic Statistics, Jun

2012. Released 18/12/2014)2. Estimated from ABS 3302.0 Deaths, Australia, 2013. Released 6/11/2014.3. Estimated from AIHW Australian hospital statistics 2012-13. Released 30/4/2014.4. Extrapolated from September 2014 DonateLife Audit Report, Organ and Tissue Authority.5. ANZOD Monthly Report on Deceased Organ Donation in Australia, January 2015.

Australian population1

23,490,700

Australian deaths2

~149,100

Deaths in hospitals3

~74,400

Potential donors4

~700

Actual donors5

378

Consented donors4

~415

Donation requests4

~680

Transplant recipients5

1,117

Organs transplanted 1,1935