PEOPLE LIVING WITH HIV ARE…

Gathering

Evidence for

Advocacy

HIV Leadership through Accountability programme

by Peter NwekeNetwork of People Living with HIV and AIDS

in Nigeria

23 July 2012

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Overview

• Leadership through Accountability Programme

• Evidence-gathering• Building/strengthening campaign

platforms• Lessons learnt• Key messages

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The Leadership through Accountability (LTA)

Programme• Partnership: national networks of

people living with HIV, civil society, GNP+ and WAC

• Joint work plan• 5-year programme in 11 countries• Supported by UKaid

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• Build evidence-based advocacy campaigns developed by and for PLHIV and civil society– Provide evidence on why it is

important to achieve universal access;

– Hold governments accountable for progress on achieving universal access goals. 5

Aim of LTA Programme

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Role of the PLHIV networks

• NEPHWAN implemented the 5 tools in partnership with research institutes and broad based civil society partnerships

• GNP+ supported NEPWHAN to strengthen its ability to deliver evidence-based advocacy and their participation in national processes and mechanisms6

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Evidence-gathering tools

• Document experiences and perspectives of people living with HIV across thematic areas:– PLHIV Stigma Index– GIPA Report Card– SRHR Guidance Package– Global Criminalisation Scan– Human Rights Count!

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• Promoting and developing expertise:– Planning and design– Consultation and collaboration– Implementation: review tools, data

collection, analysis, report-writing– M&E: tracking tool (budget

breakdown, action plan, check lists)– Governance and accountability

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Evidence-gathering Process

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• Documents laws, judicial practices and cases studies on the criminalisation of HIV transmission and exposure.

• Collaboration: GNP+ and regional & national networks of PLHIV• Particularly relevant given the wave of criminlisation / ‘model

laws’ in Africa

GIPA Report Card

Criminalisation Scan

Opportunity for key stakeholders to assess the application of the GIPA principle in their country. 81 organsiations have been sampled. Collaboration: GNP+, ICW, UNAIDS Lack of awareness, poverty and stigma are signifcant barriers to

GIPA PLHIV networks at grassroot level lack understanding of GIPA

principle and its value

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Human Rights Count

Documents human rights violations against PLHIV Collaboration: GNP+ and regional & national

networks of PLHIV Significant amount of work done training 40 interviewers on

human rights Key areas where human rights violations occurred included

workplaces, homes (from women and youth)

SRHR Guidance Package Recognises rights of PLHIV to health and satisfying sex lives Collaboration: GNP+, ICW, Young Positives, EngenderHealth, IPPF, UNAIDS and others National networks identified key groups & developed methodolygy

for SRHR needs of: sero-discordant couples in Nigeria; PMTCT in Kenya; and Tanzania adolescents in Zambia; MSM in Cameroon and Senegal; women in Ethiopia and Moldova, LGBTI is South Africa & sex workers in Malawi

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PLHIV Stigma Indexo PLHIV stigma index measures trends in the stigma and

discrimination experienced by PLHIV

o Developed by founding partners: GNP+, ICW, IPPF, UNAIDS

o Capacity is built: PLHIV lead the process at all levels

o The questionnaire itself is designed to be an empowering

experience for the respondents and interviewers:

o Involved over ten of thousands of PLHIV as interviewees and

hundreds as interviewers, programme managers, budget

holders and advocates

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Using Results in Nigeria

• Recommendations of the PLHIV Stigma Index was incorporated in NACA Joint Action Committee review for the year 2011

• Results from the PLHIV SI and GIPA Report Card were prioritized from the among studies in advocating for the passage of the anti-discrimination bill into law12

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Using Results in Nigeria

• Absence of an existing civil society platform

• Limited democratic space to operate - no free access to lawmakers.

• Need to even review Anti-discrimination Bill and incorporate discrimination in health facilities, places of worship, communities, family, institutions of learning etc

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Implementation Challenges

• Absence of an existing civil society platform

• Limited democratic space to operate - no free access to lawmakers.

• Need to even review Anti-discrimination Bill and incorporate discrimination in health facilities, places of worship, communities, family, institutions of learning etc

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Achievements

•Partnerships built with CSOs, agencies, government, service providers ...

•Evidence available to support advocacy

•Increased capacity to implement research

•Results shared at international conferences and at the 5th Nigeria AIDS conference in 2010

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Lessons Learned

• Collective participation builds organizational solidarity and results in a stronger advocacy voice

• Nigerian CSOs need to engage lobbyists with the mandate to carry the agitation to the next level after the visit, meeting, demonstration...

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Thank you for listening...