pan 2013 annual report

PARKINSON’S ACTION NETWORK 2013 ANNUAL REPORT 01

the Unified Voice

2013 ANNUAL REPORT

Dear Friends of the Parkinson’s Action Network,As we reflect on the past year, we are struck at how often the concept of the “unified voice” has come to define our success around many different issues affecting the Parkinson’s community.

The Parkinson’s Action Network (PAN) is a nonprofit organization working on behalf of people living with Parkinson’s disease, their families, their caregivers, as well as the thousands of grassroots advocates across the country. PAN also represents national Parkinson’s organi-zations including The Michael J. Fox Foundation for Parkinson’s Research, the Parkinson’s Disease Foundation, The Parkinson Alliance, the National Parkinson Foundation, and the Davis Phinney Foundation. As their representative in Washington, DC, PAN makes decisions with the support of those groups every time it takes a position on an issue or advocates on behalf of the Parkinson’s community.

In 2013, that unified voice was able to formally endorse telemedicine legislation, convince the U.S. Department of Veterans Affairs to expand benefits for veterans with traumatic brain injury and parkinsonism, urge Congress to increase funding for the National Institutes of Health, and save the Department of Defense Parkinson’s research program when the Army attempted to redirect fiscal year 2012 and 2013 funds.

We also used our strength as a unified voice by representing the Parkinson’s community in a class action suit against the U.S. Department of Health and Human Services to remove Medicare’s unfair improvement standard measurement for Parkinson’s and other degenerative diseases.

These examples are just some of the ways that PAN’s unified voice works for you each and every day. Last year was a year of many successes, but our work is not done. As a 501(c)(3) nonprofit, PAN relies solely on donations from individuals, corporations, and foundations to fund our work and we could not do any of the work we do without that generous support.

With continued support from our donors, PAN will remain the strong, unified voice that works daily to bring us closer to better treatments and a cure for Parkinson’s disease. The 500,000 to 1.5 million people living with the disease deserve no less from us.

Thank you for your support of PAN, and we encourage you to join us in fighting for people with Parkinson’s disease and their loved ones.

Sincerely,

Ronald H. GalowichCHAIR, BOARD OF DIRECTORS

Amy Comstock RickCEO


WHAT IS THE UNIFIED VOICE?The Parkinson’s Action Network is the one organization that handles all federal policy work and government affairs for the Parkinson’s community. This highly effective model is unique in the patient advocacy community.

OUR MISSIONThe Parkinson’s Action Network is the unified voice for the Parkinson’s community advocating for better treatments and a cure. In partnership with other Parkinson’s organizations and our powerful grassroots network, we educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s.

PEOPLE WITH PARKINSON’S DISEASE

GRASSROOTS LEADERS

DONORS

RESEARCHERS

OTHER PARKINSON’S DISEASE ORGANIZATIONS

CLINICIANS

CAREGIVERS

E-ADVOCATES

PARKINSON’S COMMUNITY

AFFILIATED ORGANIZATIONS

PARKINSON’S ACTION NETWORK 2013 ANNUAL REPORT2

ADVOCATE ISRAEL ROBLEDO TEXAS STATE DIRECTOR, MIDLAND, TX

I am proud to be part of PAN’s unified voice because the focus of the organization is on the Parkinson’s community and the work that we do as advocates is for the benefit of us all. The opportunities that I have to share help me to get a personal message across that I, along with many others, benefit from

research funding, eliminating Medicare ther-apy caps, access to telemedicine, and other important policy issues. With PAN’s unified voice, there is no doubt as to the message and why we advocate throughout the year. Establishing working relationships with my Members of Congress gives me a chance to speak for myself and on behalf of others, and allows me to get my message across about how certain policies affect the Parkinson’s community. My Congressman has said that any time there is a Parkinson’s-related issue on the House floor, he thinks of my Parkin-son’s journey and personal story. I am proud to be part of PAN’s unified voice because it is well respected and effective.

DONOR ROBIN KATSAROS CALIFORNIA ASSISTANT STATE DIRECTOR, LOS ALTOS HILLS, CA

I am proud to be part of PAN’s unified voice because, as a donor, I want to make sure my hard earned money is used judiciously and efficiently. PAN has consistently shown it is conscientious with monies received from

donors by allocating their budget directly to the people, programs, and initiatives that further advocacy for those in the Parkinson’s community. Since my husband’s diagnosis in 2008, our giving budget is devoted exclusively to Parkinson’s organizations and only those that are transparent and run efficiently. I am proud to report that we have always been pleased not only with the breadth of what PAN achieves with their limited funds, but also the depth at which they accomplish their focused objectives. We are proud and hon-ored to be part of their giving community.

PROUD TO BE

part of the UNIFIED

VOICE for Parkinson’s

Disease


HEALTH POLICY LEADER ELEANOR (ELLIE) DEHONEY VICE PRESIDENT OF POLICY AND ADVOCACY, RESEARCH!AMERICA,

ALEXANDRIA, VA

I am proud to be part of PAN’s unified voice because the cause is so very important and PAN’s advocacy is truly making a dif-ference. PAN’s partnership is invaluable to Research!America, the organization for which I work, as we advocate for federal policies critical to accelerating medical progress. There are many reasons why PAN is an exemplary advocacy organization. I have joined mem-

bers of its grassroots network in Hill meetings, and they are knowledgeable and compelling. I believe they changed the hearts and minds of the individuals we met. As a long-time Hill staffer, I know that “getting through” can be a challenge, but these committed advocates accomplished it. PAN leadership clearly under-stands the power of its grassroots network and rightly treats it as PAN’s most valuable asset. PAN is both innovative and high energy. It keeps the drumbeat going. In the cur-rent budget/political environment, success depends on staying on the frontlines. That’s where PAN is. Finally, I am proud to be associ-ated with PAN because of its leadership and staff, who are incredibly dedicated to Parkin-son’s disease—preventing it, treating it, curing it. If anyone can make it happen, it’s PAN.

PARKINSON’S LEADER TODD SHERER, PH.D. CEO, THE MICHAEL J. FOX FOUNDATION FOR PARKINSON’S RESEARCH,

NEW YORK, NY

I am proud to be part of PAN’s unified voice because I see the optimism and hope that patients have in our continued search for better treatments and a cure for Parkinson’s disease. Through The Michael J. Fox Founda-tion for Parkinson’s Research (MJFF) and as a

PAN board member, I see how federal policies and budget priorities translate to scientific breakthroughs and better options for health and care. Our Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda, but we cannot do it alone. It is absolutely critical that our federal government make research funding a top priority to discover new routes to novel treatments and to usher therapies through the long and laborious development pipeline to pharmacy shelves. PAN helps ensure the Parkinson’s community is repre-sented in discussions over those dollars, and I am proud to lend the MJFF voice to that effort.


Thank You Advocates! PAN advocates educate and raise aware-ness about PAN’s mission in their commu-nities. They are truly the heart of PAN’s advocacy work and we could not do our work without them.

PAN currently has thousands of advocates of all levels, including 144 grassroots leaders serving as State Directors, Assistant State Directors, or District Delegates.

GET INVOLVEDLearn more about becoming a PAN advocate at www.ParkinsonsAction.org/your-voice.

PARKINSON’S LEADER CAROL WALTON CEO, THE PARKINSON ALLIANCE, KINGSTON, NJ

I am proud to be part of PAN’s unified voice because it was at a PAN Public Policy Forum that I started my professional career advocat-ing for Parkinson’s disease research. After my father was diagnosed with Parkinson’s disease in the early 1980s, I found it difficult to find good resources for him. My search led me to

become a PAN advocate and I am proud to say I was part of the group that urged Congress to pass the Morris K. Udall Parkin-son’s Research Act in 1997. It was also at a PAN Forum that I was approached by PAN advo-cates, Margaret and Martin Tuchman, to run their foundation and then start a new organization, The Parkinson Alliance. As the chief executive officer of The Parkinson Alliance, I am steadfast in my dedication to the work PAN does, and as a PAN board member, I wholeheartedly support and appreciate the role public policy and advoca-cy plays in ensuring we get closer to better treatments and a cure for Parkinson’s disease.


PAN’S WORK in 2013

Public policy matters to the Parkinson’s community. In fact, the federal government, through the National Institutes of Health (NIH) and Department of Defense (DoD), funds mil-lions in Parkinson’s research each year.

In addition, PAN works hard to ensure that government agencies like the Food and Drug

Administration (FDA) receive the funding they needs to bring safe and effective new Parkin-son’s disease drugs or devices to patients.

PAN also works on issues that affect access to quality care, including ensuring programs and pieces of legislation like Medicare and tele-health are working for people with Parkinson’s.

PAN’S SUCCESSES

Advancing Public PolicyThrough direct advocacy from PAN staff and the tireless work of our grassroots network, PAN is able to make a difference in shaping policies that impact the Parkinson’s community and secure funding for major federal programs.

SUCCESSES IN FEDERAL FUNDING & RESEARCH• PAN successfully advocated for a $1 billion

increase in funding, after sequestration, for fiscal year (FY) 2014 for NIH. NIH is the world’s largest funder of biomedical re-search and one institute in particular—the National Institute of Neurological Disorders and Stroke—plays a critical role in facilitat-ing research for Parkinson’s disease.

• PAN successfully advocated for $16 million for the DoD Parkinson’s research program, which fully restored the funding lost in se-questration, and $2.55 billion for FY 2014 at the FDA, a $91 million increase over FY 2013 spending before sequestration.

• PAN saved $32 million of DoD Parkinson’s research funding by fighting off attempts by the Army to redirect FY 2012 and FY 2013 funds. Researchers who were meant to receive those funds contacted PAN to intervene on their behalf. These researchers, an important partner in the unified voice of PAN, were able to receive their funding and continue their critical work.

PAN advocates including Nancy and Jim Hall, Linda Morgan, and Susan Gerbeth-Jones in the halls of Congress on PAN’s annual Hill Day.

Advancing Public Policy Educating the Public Leading & Collaborating


• The Coalition for the Advancement of Med-ical Research (CAMR), led by Amy Comstock Rick, celebrated a victory when the Supreme Court decided not to hear a case (Sherley v. Sebelius) that attempted to stop federal funding for human embryonic stem cell research. People with Parkinson’s could benefit greatly from embryonic stem cell research through potential therapies and to gain greater understanding of the disease.

SUCCESSES WITH IMPROVING ACCESS TO CARE• PAN and the Center for Medicare Advocacy

settled a class action lawsuit (Jimmo v. Sebe-lius) brought against the U.S. Department of Health and Human Services to remove Medicare’s improvement standard policy for Parkinson’s and other degenerative diseas-es. The improvement standard required that a person show improvement in order to continue coverage for skilled care. For peo-ple with Parkinson’s and other degenerative diseases, higher function is an important and valuable outcome of skilled care, and therapy services are used for maintenance and to prevent worsening function. In the lawsuit, the Center for Medicare Advocacy

and Vermont Legal Aid represented PAN, the National Multiple Sclerosis Society, the Paralyzed Veterans of America, the Alzhei-mer’s Association, the National Committee to Preserve Social Security and Medicare, and four Medicare patients. Once again, a unified voice made a difference.

• PAN took on telehealth as a policy priority and formally endorsed the Veterans E-Health & Telemedicine Support (VETS) Act of 2013 and the TELEmedicine for MEDicare (TELE-MED) Act of 2013. For the Parkinson’s community, telehealth has the potential to be a power-fully valuable service in terms of improving quality of life and better management of symptoms by increasing access to specialists.

• PAN joined several other Parkinson’s disease and telehealth organizations to host the 2013 Merinoff Symposium on how telehealth could be leveraged to deliver high quality care to people with Parkinson’s. Sponsored by The Feinstein Institute for Medical Re-search in Garden City, NY, the symposium convened more than two hundred people from the medical, scientific, technology, advocacy, and patient communities.

PAN Board Member Greg Wasson, J.D. and Laurie Sanders, Ph.D. speak on a 2013 PAN Forum panel.


• Thanks to PAN advocacy efforts, the U.S. Department of Veterans Affairs expanded benefits for veterans with traumatic brain injury and parkinsonism. There are about 80,000 veterans with Parkinson’s disease.

• PAN became a leader on Medicare therapy caps in the patient advocacy community by successfully advocating for an extension of the exceptions process in 2013 and pushing for a permanent repeal of the therapy caps. Without the exceptions process, therapy services are capped at $1,920. For example, the cap would limit a person with Parkin-son’s to about 14 to 15 hour-long physical

therapy visits. Unfortunately, people with Parkinson’s disease often reach their limit within the first few months of a year and they are then forced to pay out of pocket or go without those services.

• PAN worked with the FDA to ensure neurol-ogists were included in a review of Northera (droxidopa), a drug to treat neurogenic or-thostatic hypotension in Parkinson’s disease, which was approved in February 2014. Prior to PAN’s advocacy work, the panel would not have included people with specific expertise on how this drug would impact people with Parkinson’s.

Educating the PublicPAN leadership, staff, and grassroots advocates play a critical role in educating the public and policymakers about Parkinson’s disease as well as the important role the federal government plays in patient-support programs and funding biomedical research.

In addition to holding regular meetings with Members of Congress and their staff in Wash-ington, DC and in their states and districts, PAN staff and volunteers:

• Attend local town hall meetings;

• Speak at community, regional, and national conferences and events;

• Speak to Parkinson’s disease support groups throughout the country;

• Serve as a resource to national and local media;

• Promote policies through social media, let-ters to the editor, and opinion editorials; and

• Lead a Parkinson’s-focused television series on “Comcast Newsmakers” that airs on CNN’s Headline News.

SUCCESSES IN EDUCATING THE PUBLIC• PAN educated the community on the

Affordable Care Act and its impact on the Parkinson’s community by creating a new section of the website. The new section was among the most visited pages on the website in 2013.

• PAN created a weekly newsletter to communicate the latest policy, advocacy action items, and news to our network. The newsletter is sent to our entire email list each Friday.


Leading & CollaboratingPAN collaborates with leading Parkinson’s and health care organizations across the country in order to advance the policy goals of the Parkinson’s community.

PAN CEO Amy Comstock Rick serves on the National Advisory Neurological Disorders and Stroke Council and the Association of American Medical Colleges Advisory Panel on Research. PAN also has a seat on the board of the Alliance for Regenerative Medicine, the American Brain Coalition, the National Health Council, and Research!America.

Other key organizations PAN works in partnership with include:

• Ad Hoc Group for Medical Research• Alliance for a Stronger FDA• American Academy of Neurology• AdvaMed• American Physical Therapy Association• American Society of Cell Biology• Biotechnical Industry Organization• CurePSP

• Fox Trial Finder Recruitment Community Partners

• Health IT Now Coalition• MAPRx• The Morris K. Udall Parkinson’s Disease

Research Centers of Excellence• PhRMA• Society for Neuroscience• World Parkinson Coalition

PAN by the

Numbers10,568 MESSAGES SENT TO CONGRESS

432 IN-PERSON HILL

MEETINGS BY PAN STAFF AND GRASSROOTS

ADVOCATES

233 EVENTS

ATTENDED OR ORGANIZED BY

VOLUNTEER STATE LEADERS

89 LETTERS OR STATEMENTS TO CONGRESS

AND THE OBAMA ADMINISTRATION

177 MEMBERSOF THE CONGRESSIONAL CAUCUS

ON PARKINSON’S DISEASE

144 2391

FOLLO

WERS O

N PA

N’S

SOCIA

L MED

IAVOLUNTEER STATE LEADERS


SUCCESSES IN LEADING & COLLABORATING• The Coalition for the Advancement of

Medical Research, led by Amy Comstock Rick, successfully moved the needle on human embryonic stem cell research and transferred its mission and assets to the Alliance for Regenerative Medicine, which promotes initiatives necessary to facilitate access to life-giving advances in regenera-tive medicine. Regenerative medicine is the process of augmenting, repairing, replacing, or regenerating organs and tissue that have been damaged by disease, injury, or even the natural aging process.

Parkinson’s On Capitol HillThank you to the 177 Senators and Representatives who make up the CONGRESSIONAL CAUCUS ON PARKINSON’S DISEASE. A special appreciation to the co-chairs of the caucus, Senators Johnny Isakson (R-GA), Mike Johanns (R-NE), Debbie Stabenow (D-MI), Mark Udall (D-CO) and Representatives Peter King (R-NY), Carolyn Maloney (D-NY), and Chris Van Hollen (D-MD).

TO LEARN MORE, VISIT WWW.PARKINSONSACTION.ORG.

$12,531

1,037 TOTAL DONORS

$97,750 RAISED FOR

Forum Scholarship FundA 125% INCREASE FROM 2012

$218,971RAISED IN 2013

YEAR END CAMPAIGN,

AN 18% INCREASE FROM 2012

300 ATTENDEES &

$358,000 RAISED BY MORRIS K. UDALL

AWARDS DINNER

RAISED THROUGH THE TULIP TRIBUTE GARDEN


ERIC K. SHINSEKI2013 Morris K. Udall Award for Public Service RecipientEric K. Shinseki, secretary of the U.S. Depart-ment of Veterans Affairs, received this award for recognizing Parkinson’s disease among the illnesses that affect thousands of our brave men and women, and for supporting the VA’s Parkinson’s Disease Research, Education and Clinical Centers.

MONNIE LINDSAY, J.D.2013 Milly Kondrake Award for Outstanding Advocacy RecipientLongtime advocate, Monnie Lindsay, serves as PAN’s Nebraska state director and member of the PAN Board of Directors. After being diagnosed with Parkinson’s disease at the age of 38, Monnie decided to find a way to com-bine her love of advocacy with her newfound passion for fighting the disease. This drive to work within the Parkinson’s community led her to PAN.

2013 Advocacy & Public Service Awards


ISRAEL ROBLEDO 2013 Murray Charters Award for Outstanding Service to the Parkinson’s CommunityIsrael Robledo, Texas state director and bilingual resource teacher, has been a strong advocate for the Parkinson’s community since 2008. The Charters Award recognizes a member of the Parkinson’s community who has selflessly com-mitted time or resources for the betterment of the community as a whole.

ANN “AJ” WASSON2013 Louis Fishman Advocacy AwardAJ Wasson, California assistant state director, was diagnosed with Parkinson’s in 1995 at the age of 36 and has been working with PAN since 2000. She received the Fishman Advocacy Award for exhibiting exemplary outreach efforts in advocacy at the local level.

BRITTANY DUGGER, PH.D.2013 Postdoctoral Advocacy Prize RecipientBrittany Dugger, postdoctoral fellow at the Banner Sun Health Research Institute in Sun City, Arizona, was honored with a $10,000 prize for her commit-ment to community service and advocacy in the Parkinson’s community. Brittany is also a voice for the importance of research in her local community by providing tours of her lab to elected officials, speaking at Parkinson’s support groups, and hold-ing educational programs for children.


LE ADERSHIP

PAN Board of DirectorsThe PAN Board of Directors is a highly moti-vated group of individuals who are deter-mined to improve the lives of people with Parkinson’s disease.

RONALD H. GALOWICH, J.D. Chair—Illinois

EDWARD L. WEIDENFELD, J.D. Vice Chair— Washington, DC

JODIE T. ALLEN Treasurer—Washington, DC

GREG WASSON, J.D. Secretary—California

ROBIN ANTHONY ELLIOTT New York, Parkinson’s Disease Foundation

COL (RET.) KARL E. FRIEDL, PH.D. Maryland

CLARENCE T. KIPPS, JR. Virginia

MORTON KONDRACKE Washington, DC

ZACHARY T. LEVINE, M.D. Washington, DC

DANIEL M. LEWIS, J.D. Maryland

MONNIE LINDSAY, J.D. Nebraska

JOYCE A. OBERDORF Florida, National Parkinson Foundation

CHERYL LYNN PRESCOTT Wisconsin

KARL A. ROBB Virginia

TODD SHERER, PH.D. New York, The Michael J. Fox Foundation for Parkinson’s Research

JOHN M. SPRATT, JR., LL.B South Carolina

ANNE J. UDALL, PH.D. Oregon

CAROL WALTON New Jersey, The Parkinson Alliance

PAN Honorary CouncilFRANK C. CARLUCCI Chair

SENATOR BOB DOLE

J. WILLIAM LANGSTON, M.D. The Parkinson’s Institute

DAVIS PHINNEY Davis Phinney Foundation

JANET RENO, J.D.

COKIE ROBERTS

PAN Grassroots Advisory BoardPAUL CORDELLA Georgia State Director

KIMERLY COSHOW, PH.D. State Director— North Florida

SUE DUBMAN Massachusetts Asst. State Director

MICHAEL GREENBAUM Arizona State Director

ROGER HALLEEN Illinois State Director

SARAH KING State Director—Southern California

MICHELLE LANE Louisiana State Director

SUE LAUX Tennessee State Director

ADRIENNE O’NEILL South Carolina State Director

LAURIE SANDERS, PH.D. Pennsylvania Asst. State Director

PAN Staff(As of May 2014)

AMY COMSTOCK RICK, J.D. Chief Executive Officer

HAYLEY CARPENTER Deputy CEO/Advocacy

EMILIO AROCHO IT & Web Senior Manager

KRISTINA GAWRGY CAMPBELL Sr. Outreach Manager

MICHELLE DUELLEY Manager, Administration and Executive Assistant to the CEO

CATHERINE PUGH Government Relations Manager

JENNIFER SHERIDAN, MPP Director of Policy

JAMIE TUCKER, MPA Sr. Government Relations Manager

CHRISTOPHER VANCE Director of Development

CHEYENNE WILLIAMS Administrative Assistant


1 SEND AN EMAIL to your Members of Congress about an important Parkinson’s issue.

2 ORGANIZE AN INFORMATION

SESSION about PAN at your local Parkinson’s support group.

3 CREATE A LOCAL FUNDRAISER

to help support the work of PAN and our grassroots advocates.

4 GET 10 OF YOUR FRIENDS to join the unified voice and sign up for PAN’s email list.

5 HELP PAN RAISE MONEY FOR

THE FORUM SCHOLARSHIP FUND,

which helps send more advocates to the PAN Forum.

6 INCLUDE PAN in your planned giving and estate planning.

7 LIKE PAN ON FACEBOOK and share our posts with your friends.

8 FOLLOW PAN ON TWITTER and retweet our posts to your followers.

9 ATTEND THE NEXT PAN FORUM to become trained as an advocate and learn more about the policies that affect the Parkinson’s community.

10 MAKE A DONATION to PAN through our website.

11 VOLUNTEER as a state director or assistant state director in our grassroots leaders program.

12 INVITE FIVE PEOPLE to the annual Morris K. Udall Awards Dinner in Washington, DC.

13 USE SMILE.AMAZON.COM when making Amazon purchases and .5% of your purchase will be donated to PAN.

13 Ways to Help PAN Help the Community

In 2013, our volunteer advocates were more dedicated than ever before. Their work advocating and raising awareness of PAN and Parkinson’s disease goes a long way in helping us fight for the community and push us all toward better treatments and a cure for Parkinson’s disease.

Here are 13 ways you can help PAN help the community.

David and Regina Zinzer meet with Senator Tim Kaine (D-VA) during PAN’s Hill Day in 2013.


FINANCIAL SSUBJECT TO AUDIT

REVENUE

UDALL DINNER $357,810

THE MICHAEL J. FOX FOUNDATION $250,000

PARKINSON'S DISEASE FOUNDATION $200,000

THE PARKINSON ALLIANCE/ PARKINSON'S UNITY WALK

$140,000

NATIONAL PARKINSON FOUNDATION $121,000

FOUNDATION REVENUE $84,500

CORPORATE REVENUE $385,596

INDIVIDUAL DONOR REVENUE $288,364

TOTAL REVENUE $1,827,270

EXPENSES BY PROGRAM

ADVOCACY/PUBLIC POLICY $798,652

PUBLIC EDUCATION $315,497

2013 FORUM $304,606

OTHER EVENT EXPENSES $220,539

FUNDRAISING $129,193

GENERAL ADMINISTRATIVE $132,403

TOTAL EXPENSES $1,900,890

CHANGE IN NET ASSETS ($73,620)

ASSETS IN "RESERVE ACCOUNT" AS OF DECEMBER 31, 2013

$481,861

revenue expenses

revenue expenses


VISIONARY$100,000 AND ABOVE

ABBVIE

FRANK AND MARCIA CARLUCCI

THE MICHAEL J. FOX FOUNDATION

FOR PARKINSON’S RESEARCH

NATIONAL PARKINSON

FOUNDATION, INC.

THE PARKINSON ALLIANCE/

PARKINSON’S UNITY WALK

PARKINSON’S DISEASE

FOUNDATION

GROUNDBREAKER$50,000 TO $99,999

TEVA NEUROSCIENCE

UCB

BENEFACTOR$25,000 TO $49,999

DANNY KAYE AND SYLVIA FINE

KAYE FOUNDATION

LOUISIANA WALKS FOR

PARKINSON’S (MICHELLE LANE

AND CHUCK DEBLIEUX)

INNOVATOR$10,000 TO $24,999

ADVAMED

GEORGE AND JODIE ALLEN

PETER & IRENE ANDRULIS

CHARITABLE TRUST

DAVIS PHINNEY FOUNDATION

RONALD AND LINDA GALOWICH

JOHN AND ROBIN KATSAROS

SOLOMON L. KORNBLUH

MEDTRONIC, INC

NEPTUNE CHARITABLE TRUST

JOSEPH PERPICH AND

CATHY SULZBERGER

PFIZER, INC

PHRMA

PRESCOTT FAMILY FOUNDATION

BRUCE AND PAULA ROBINSON

THE IAN AND MIMI ROLLAND

FOUNDATION, INC.

THE MICHAEL STERN PARKINSON’S

RESEARCH FOUNDATION

SPONSOR$5,000 TO $9,999

ADVAMEDDX

AMERICA’S CHARITIES

DISTRIBUTION ACCOUNT

BIOTECHNOLOGY INDUSTRY

ORGANIZATION

CHARLIE AND JUDY BLACK

WOLF AND LYNN BLITZER

NINA BROWN

CFC NATIONAL CAPITAL AREA

(GLOBAL IMPACT)

THE CLARK CHARITABLE

FOUNDATION

THE ECHLIN FOUNDATION

ELI LILLY & COMPANY

ARTHUR AND DENISE KATSAROS

MORTON AND MARGUERITE

KONDRACKE

ZACHARY T. LEVINE AND

JENNIFER AVELLINO

MEDSTAR GEORGETOWN

UNIVERSITY HOSPITAL

STUART AND AMY RICK

ROGER AND VICKI SANT

US WORLDMEDS, LLC

VRADENBURG FOUNDATION

EDWARD AND SHEILA WEIDENFELD

WILL K. WEINSTEIN

SUPPORTER$2,500 TO $4,999

JOHN AND BARBARA ALDEN

AMERICA’S HEALTH INSURANCE

PLANS

BOEHRINGER INGELHEIM

PHARAMCEUTICALS, INC

BLAIN AND PEG BUTNER

IRWIN AND BETTY HELFORD

JAMES HUNT

ABRAHAM AND INA LIEBERMAN

LSVT GLOBAL

NORMAN ORNSTEIN

LAURA H. PHILLIPS

BARBARA ROSENFELD

J. ROBERT AND LINDA SIMS, JR.

ADVOCATE$1,000 TO $2,499

JOHN AND BARBARA ALDEN

PEGGY ALTAMURA

AMERICAN TELEMEDICINE

ASSOCIATION

DANIEL AND LISA BAIN

RICHARD AND BARBARA BEATTY

DOUGLAS AND SUE BESHAROV

JOHN AND SARAH BOYER

WILEY AND JANIS BUCHANAN

CFC OF SAN ANTONIO, TX

GERD AND KELLEY DUNKELBERG

EXXON MOBIL EMPLOYEE

CHARITY FOUNDATION

HOWARD FEDEROFF AND

WENDY SOLOVAY

JULIE FINLEY

PAUL FISHMAN AND

ELIZABETH BARRY

KARL AND VICKI FRIEDL

JEFFREY GALOWICH

ROGER AND BARBARA HALLEEN

HAROLD AND BONNIE HIMMELMAN

JAMES S. AND PENELOPE JONES

ELEANOR & HERBERT KATZ FAMILY

FOUNDATION

JAY AND BERNICE KAUFMAN

CLARENCE T. KIPPS, JR.

ROBERT KIPPS

BARBARA LASHINSKY

DANIEL AND VICKI LEWIS

UNICE LIEBERMAN

MONNIE LINDSAY

ALAN LOPATIN AND DEBBY ENGLER

MILLICENT MAILLIARD

MERCK PARTNERSHIP FOR GIVING

ANNETTE C. MERLE-SMITH

MILLER & CHEVALIER CHARITABLE

FOUNDATION

LARRY AND IRIS MILLER

ASIM AND MADHURI MISHRA

ANTHONY NEUVEL

RICHARD NICELY

WILLIAM AND

CATHY ONUFRYCHUK

BARRY AND MARGERY PASSETT

NAD PETERSON

R. G. SMITH CO., INC

JAMES AND MARTINA RANKIN

DIANE AND JOHN REHM

KARL AND ANGELA ROBB

THANK YOU!We would like to thank all of our donors for their support of the Parkinson’s Action Network. It is the support of individuals, corporations, and foundations that makes all the difference for the estimated 500,000 to 1.5 million Ameri-cans with Parkinson’s disease.

The following is a list of donors who gave to PAN from January 1, 2013 through December 31, 2013. We make every effort to ensure this list is complete and correct. If you have any questions, please contact Christopher Vance, director of development, at 202-638-4101 x108 or [email protected].

2013 HONOR ROLL of DONORS


NICOLE S. SCHIEGG

SARAH T. SCHUBERT

JACK AND LILA SEGAL

JOHN AND JANE SPRATT, JR.

KENNETH M. AND KARIN TRAVIS

ANTOINE AND EMILY VAN AGTMAEL

JOHN AND JOANNE VINE

WALTER W. WURFEL AND

SARAH FITZGERALD

MONIQUE YINGLING

EDUCATOR$500 TO $999

RICHARD AND MARY ALLEN

AMERICAN PARKINSON DISEASE

ASSOCIATION

LINDA ANTHONY

WILLIAM AND HILDA BANK

JOHN BARBER

GARY AND JUDITH BARNHARD

ALEXANDER BENNETT AND

BROOKSLEY BORN

ALESSANDRA BIAGGI

ABBY BLACK

JONATHAN BLAKE AND

ELIZABETH SHRIVER

CAROLINE BRADY

CONNIE BUCKLEY

MARK AND JEAN BURNS

ELLISON S. BURTON

CFC DALLAS FT WORTH

(COMMUNITY HEALTH

CHARITIES OF TEXAS)

CFC GREATER OLYMPIC

PENNINSULA

CFCSENC FUND

CFC UNITED WAY OF

GREATER MILWAUKEE

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