october 26-28, 2016 historic downtown richmond,...

PediatricComplexCare.org

NON-PROFITPostagePAID

Toms River, NJPermit No. 94

OUR MISSION: To create opportunities for organizations to collaborate, network, share innovations, advocate, and promote excellence in the continuum of care for children with medical complexity and their families

OUR VISION: Uniting organizations to provide a combined voice and promote excellence of care for children with medical complexity and their families

WE ARE DEDICATED TO: • Serving professionals that provide care to children with medical complexity

• Delivering educational and networking opportunities

• Providing a platform for peer-to-peer support through online exchange

• Promoting partnerships, collaboration and communication among disciplinesin the broad field of pediatric complex care

• Developing benchmarks and quality indicators

• Endorsing cost-effective, sustainable care for the pediatric complex carepopulation in an era of health care reform

• Representing the needs of professionals and the patients they serve beforegovernment and regulatory agencies, professional societies and the public

• Researching to develop evidence-based standards of care

The Pediatric Complex Care Association welcomes new members to join us in our

endeavor to better serve children with medical complexity. We offer

Active, Affiliate, Corporate and Individual memberships. Talk to one of our Board Members in

person this fall or learn more at PediatricComplexCare.org

DON’T MISS THIS VALUABLE LEARNING EXPERIENCE

BECOME A MEMBER!

» Relevant Best Practices and Innovations» Knowledgeable Presenters» Tremendous Take-Home Potential

5TH ANNUALCONFERENCE

5TH ANNUAL CONFERENCE

OCTOBER 26-28, 2016


REGISTRATION NOW OPEN

1827 Old Freehold Road Toms River, NJ 08755 732.608.5350

SPONSORED BY

HOSTED BY

HISTORIC DOWNTOWN

RICHMOND, VAOCTOBER 26-28, 2016

HISTORIC DOWNTOWN

RICHMOND, VA

HISTORIC DOWNTOWN

RICHMOND, VA

OCTOBER 26-28, 2016

THURSDAY, OCTOBER 27, 2016

7:00AM Continental Breakfast, Registration & Exhibits

8:00AM Welcome & Introductory Comments

8:15AM SISTER KATHERINE SMITH HONORARY KEYNOTE: The Hero Effect: Being your best when it matters the most! Kevin Brown

9:15AM Break with Exhibits

9:30AM PLENARY: Electoral and Legislative Outlook: What Will Happen in the Election and How it Will Affect Health Care Policy Clifton J Porter, II, LNHA, Senior Vice President, Government Relations, American Health Care Association/National Center for Assisted Living

11:00AM Break with Poster Presenters

11:30AM Breakout Session #1 » 60 minutes

The Hero Effect: Creating a Culture of Heroes at Every Level Kevin Brown

QI Strategies for Population Management Jennifer Lail, MD, FAAP, and Elise Fields, MBA, Cincinnati Children’s Complex Care Clinic, OH

PrAACtical Access: AAC Systems and ECU in Pediatric Complex Care Sara G. Barnhill, MS, CCC-SLP and Katie Bobbitt, MS, OTR/L, Children’s Hospital of Richmond at VCU

12:30PM Lunch & Exhibits

1:30PM Breakout Session #2 » 90 Minutes

Blending Art & Science: Compassionate End of Life Care Scott Klein, MD, MHSA, and Jill M. Wegener, RN, MSN, CCRN, Blythedale Children’s Hospital, NY

Pediatric Long Term Care Emergency and Disaster Planning Michael Frogel, MD, FAAP, NYC Pediatric Disaster Coalition and Edwin Simpser, MD, FAAP, St. Mary’s Healthcare System for Children, NY

Building Recreation Into Your Organization’s Care Vernita Jones, BS, CTRS, Children’s Hospital of Richmond at VCU, VA, BobbiJo Pansier, CCLS, CTRS, Children’s Specialized Hospital, NJ and Lauren Waite, EdM, CTRS, CCLS, Voorhees Pediatric Facility, NJ

3:00PM Break with Exhibits


Beacon Program: Improve Care and Decrease ER Utilization Ingrid A. Larson, MBA, MSN, DNP, RN, APRN, CPNP and Edith Roderick, MSN, APRN, BC, PNP, Children’s Mercy Hospital, MO

Strengthening Professional Resilience in Post Licensure Nurses Carlene A. Byfield, MS, RN, St Mary’s Healthcare System for Children, NY

Rethinking Rehabilitation: “Best Fit” Goals and Care Plans Carrie Van Quathem, MS, PT, ChildServe, IA

4:15PM Adjourn

5 - 6PM Light Reception

FRIDAY, OCTOBER 28, 2016


8:00AM Welcome & Announcements

8:15AM PLENARY: Using Data Management to Move Your Organization Forward Judy M. Potter, BSN, MAS, LNHA, Children’s Specialized Hospital, NJ, Kenneth L. Robey, PhD, Matheny Medical and Educational Center, NJ, Kristina Huntsman, MBA, RHIA and Carrie Van Quathem, MS, PT, ChildServe, IA


10:00AM Breakout Session #4 » 60 Minutes

C.difficile in Children with Medical Complexity-Golytely & Vancomycin Ravindra Rao, MD, Loma Linda University & Totally Kids Rehabilitation Hospital, CA and Manoj Shah, MD, Loma Linda University School of Medicine, CA

Administrative Challenges in Pediatric Post-Acute Care Holly Jarek, DSc, NHA, Seven Hills Pediatric Center, MA

Building Engagement and Boundaries with Families Christine Parker, MSW, St. Mary’s Home, VA, Kristin Targett, MSW, Cedarcrest Center for Children with Disabilities, NH



It’s Not Just a Tube: Latest Trends in Gastrostomy Management Nancy Thompson, MS, RN, CPNP, VCU Health System Pediatric Surgery, VA

Welcome Aboard: Improving New Hire Experience Through Consistent Orientation Patricia Anderson, RN, MS, CRRN and Fran Darlington, RN, MHA, Children’s Hospital of Richmond at VCU

Orthotic Considerations for Seating Lisa Ann Troy, PT, DPT, ATP, New England Pediatric Care, MA

12:15PM Lunch, Exhibits & Business Meeting – ALL ARE INVITED


Behavioral Stabilization in a Pediatric Complex Care Population Caron EA Farrell, MD, PhD, FAAP, Dell Children’s Comprehensive Care Clinic, TX

The In’s and Out’s of Designing and Managing Medical Group Homes Cathy Gray, MA, Cedarcrest Center for Children with Disabilities, NH, Holly Jarek, DSc, NHA, Seven Hills Pediatric Center, MA, Michelle A. Russo, MA, CTRS, Matheny Medical and Educational Center, NJ, Harry Schaeffer, MEd, St. Vincent’s Special Needs, CT

Collaboration for Feeding Skills Across Medically Complex Patients Jocelyn P. Horne, MEd, CCC-SLP, Jesse S. Peters, MS, CCC-SLP, Jeremy Santoro, RD, Children’s Hospital of Richmond at VCU, VA

3:15PM Break

3:30PM CLOSING PLENARY: Telehealth: A Coordinated Care Tool for Children with Complex Medical Needs Karen Schulder Rheuban, MD, UVA Medical Center, VA

4:30PM Adjourn

WEDNESDAY, OCTOBER 26, 2016 (Pre-conference activities)

12:00-5:00PM Registration

12:30-4:00PM Member Round Table Lunch (invitation only)

4:30-7:30PM Host Site Tour with Light Dinner (Tickets purchased through registration process)

TARGET AUDIENCEThe conference brings together providers of care for children with medical complexity that may include Physicians, Nurse Practitioners & Nurses, Pediatric Nursing Home Administrators, Occupational, Physical, Recreation & Respiratory Therapists, Social Workers, Speech Pathologists and Special Educators.

SPECIAL SERVICESIf special arrangements are required to attend this conference, including any access needs or dietary restrictions, please contact us by September 28, 2016.

REGISTRATIONRegistration fee includes course syllabus, continental breakfast and lunch.

ACCOMMODATIONS & CONFERENCE LOCATIONA block of rooms on 10/26 & 10/27 has been reserved at the Omni Richmond hotel at a special rate of $159 per night for a single or double. This is a peak time in this area, and we encourage early reservations.

Omni Richmond Hotel 100 South 12th Street, Richmond, VA 23219 • 804-344-7000

Group Code: 12200702664 • $159 per night single/double

TRANSPORTATION Parking: Omni Richmond Valet parking $22 per day with unlimited in/out privileges Richmond International Airport (RIC): 10 miles, approximately 20 minutes, shuttle or taxi ranges $25-$40 Train: Amtrak Main Station-6 blocks, Amtrak Staples Mill Station–8 mi. All parking fees and fares are subject to change.

CANCELLATION POLICYConference cancellations must be received in writing by September 28, 2016 to receive a refund. No refunds will be given after this date. A $50 administrative fee will be assessed on all cancellations.

PARTICIPANT INFORMATION

Email (Required) ______________________________________________________

Name _______________________________________________________________

Title _________________________________________________________________

Company _____________________________________________________________

Address _____________________________________________________________

City/ST/Zip ___________________________________________________________

Phone ( ) ________________________________________________________

PAYMENT INFORMATION

Total Amount Enclosed ________________________________________________

____ Check/money order enclosed (Payable to Pediatric Complex Care Association)

____ Charge my credit card: m M/C m VISA m AMEX m Discover

Credit Card # _________________________________________________________

Exp. Date ________________________ Verification # _______________________

Name on Card ________________________________________________________

Billing Address _______________________________________________________

City/ST/Zip ___________________________________________________________

Signature ____________________________________________________________

10/26 TOUR OF CHILDREN’S HOSPITAL OF RICHMOND AT VCU 4:30-7:30PM

m $25 non-refundable, includes transportation to/from the Omni Richmond and light dinner

PRE-REGISTRATION FOR BREAKOUTS:Thursday, 10/27

11:30AM __________________________

1:30PM ___________________________

3:15PM ___________________________

Friday, 10/28 10:00AM _________________________

11:15AM _________________________

1:45PM __________________________

2016 ANNUAL CONFERENCE RATES: Full 10/27 only 10/28 onlyAssociation Members: Early Bird by 8/31 $400 $200 $200 Standard by 9/28 450 225 225 On site 500 250 250

Other Professionals: Early Bird by 8/31 500 250 250 Standard by 9/28 550 275 275 On site 600 300 300

Please complete registration online through PediatricComplexCare.org or mail form with payment to: Pediatric Complex Care Association, 1827 Old Freehold Road, Toms River, NJ 08755.

CONFERENCE SCHEDULE

GENERAL INFORMATION

REGISTRATION – CONFERENCE & BREAKOUT SESSIONS

OPTIONAL EVENT, BREAKOUTS & FEESPlease select desired conference options below. First come, first served.

TO REGISTER ONLINE, VISIT PediatricComplexCare.org Please email Michelle Burke at

[email protected] or call 732-608-5350.

QUESTIONS?

TEA

R &

MA

IL

The policy of Case Western Reserve University School of Medicine CME Program requires that the Activity Director, planning committee members and all activity faculty (that is, anyone in a position to control the content of the education activity) disclose to the activity participants all relevant financial relationships with commercial interests. Disclosure will be made to activity participants prior to the commencement of the activity. Case Western Reserve University School of Medicine also requires that faculty make clinical recommendations based on the best available scientific evidence and that faculty identify any discussion of “off-label” or investigational use of pharmaceutical products or medical devices.

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation

Council for Continuing Medical Education (ACCME) through the joint providership of Case Western Reserve University School of Medicine and the Pediatric Complex Care Association. Case Western Reserve University School of Medicine is accredited by the ACCME to provide continuing medical education for physicians.

Case Western Reserve University School of Medicine designates this live activity for a maximum of 12.0 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Credits pending for NHA by National Association of Long Term Care Administrator Boards (NAB). Please visit PediatricComplexCare.org for the latest information.

ACCREDITATION & CREDIT DESIGNATION

Please email Michelle Burke [email protected] or call 732-608-5350.

QUESTIONS?

THURSDAY, OCTOBER 27, 2016


8:00AM Welcome & Introductory Comments

8:15AM SISTER KATHERINE SMITH HONORARY KEYNOTE: The Hero Effect: Being your best when it matters the most! Kevin Brown


9:30AM PLENARY: Electoral and Legislative Outlook: What Will Happen in the Election and How it Will Affect Health Care Policy Clifton J Porter, II, LNHA, Senior Vice President, Government Relations, American Health Care Association/National Center for Assisted Living

11:00AM Break with Poster Presenters

11:30AM Breakout Session #1 » 60 minutes

The Hero Effect: Creating a Culture of Heroes at Every Level Kevin Brown

QI Strategies for Population Management Jennifer Lail, MD, FAAP, and Elise Fields, MBA, Cincinnati Children’s Complex Care Clinic, OH

PrAACtical Access: AAC Systems and ECU in Pediatric Complex Care Sara G. Barnhill, MS, CCC-SLP and Katie Bobbitt, MS, OTR/L, Children’s Hospital of Richmond at VCU

12:30PM Lunch & Exhibits


Blending Art & Science: Compassionate End of Life Care Scott Klein, MD, MHSA, and Jill M. Wegener, RN, MSN, CCRN, Blythedale Children’s Hospital, NY

Pediatric Long Term Care Emergency and Disaster Planning Michael Frogel, MD, FAAP, NYC Pediatric Disaster Coalition and Edwin Simpser, MD, FAAP, St. Mary’s Healthcare System for Children, NY

Building Recreation Into Your Organization’s Care Vernita Jones, BS, CTRS, Children’s Hospital of Richmond at VCU, VA, BobbiJo Pansier, CCLS, CTRS, Children’s Specialized Hospital, NJ and Lauren Waite, EdM, CTRS, CCLS, Voorhees Pediatric Facility, NJ

3:00PM Break with Exhibits


Beacon Program: Improve Care and Decrease ER Utilization Ingrid A. Larson, MBA, MSN, DNP, RN, APRN, CPNP and Edith Roderick, MSN, APRN, BC, PNP, Children’s Mercy Hospital, MO

Strengthening Professional Resilience in Post Licensure Nurses Carlene A. Byfield, MS, RN, St Mary’s Healthcare System for Children, NY

Rethinking Rehabilitation: “Best Fit” Goals and Care Plans Carrie Van Quathem, MS, PT, ChildServe, IA

4:15PM Adjourn

5 - 6PM Light Reception

FRIDAY, OCTOBER 28, 2016


8:00AM Welcome & Announcements

8:15AM PLENARY: Using Data Management to Move Your Organization Forward Judy M. Potter, BSN, MAS, LNHA, Children’s Specialized Hospital, NJ, Kenneth L. Robey, PhD, Matheny Medical and Educational Center, NJ, Kristina Huntsman, MBA, RHIA and Carrie Van Quathem, MS, PT, ChildServe, IA



C.difficile in Children with Medical Complexity-Golytely & Vancomycin Ravindra Rao, MD, Loma Linda University & Totally Kids Rehabilitation Hospital, CA and Manoj Shah, MD, Loma Linda University School of Medicine, CA

Administrative Challenges in Pediatric Post-Acute Care Holly Jarek, DSc, NHA, Seven Hills Pediatric Center, MA

Building Engagement and Boundaries with Families Christine Parker, MSW, St. Mary’s Home, VA, Kristin Targett, MSW, Cedarcrest Center for Children with Disabilities, NH



It’s Not Just a Tube: Latest Trends in Gastrostomy Management Nancy Thompson, MS, RN, CPNP, VCU Health System Pediatric Surgery, VA

Welcome Aboard: Improving New Hire Experience Through Consistent Orientation Patricia Anderson, RN, MS, CRRN and Fran Darlington, RN, MHA, Children’s Hospital of Richmond at VCU

Orthotic Considerations for Seating Lisa Ann Troy, PT, DPT, ATP, New England Pediatric Care, MA

12:15PM Lunch, Exhibits & Business Meeting – ALL ARE INVITED


Behavioral Stabilization in a Pediatric Complex Care Population Caron EA Farrell, MD, PhD, FAAP, Dell Children’s Comprehensive Care Clinic, TX

The In’s and Out’s of Designing and Managing Medical Group Homes Cathy Gray, MA, Cedarcrest Center for Children with Disabilities, NH, Holly Jarek, DSc, NHA, Seven Hills Pediatric Center, MA, Michelle A. Russo, MA, CTRS, Matheny Medical and Educational Center, NJ, Harry Schaeffer, MEd, St. Vincent’s Special Needs, CT

Collaboration for Feeding Skills Across Medically Complex Patients Jocelyn P. Horne, MEd, CCC-SLP, Jesse S. Peters, MS, CCC-SLP, Jeremy Santoro, RD, Children’s Hospital of Richmond at VCU, VA

3:15PM Break

3:30PM CLOSING PLENARY: Telehealth: A Coordinated Care Tool for Children with Complex Medical Needs Karen Schulder Rheuban, MD, UVA Medical Center, VA

4:30PM Adjourn

WEDNESDAY, OCTOBER 26, 2016 (Pre-conference activities)

12:00-5:00PM Registration

12:30-4:00PM Member Round Table Lunch (invitation only)

4:30-7:30PM Host Site Tour with Light Dinner (Tickets purchased through registration process)

TARGET AUDIENCEThe conference brings together providers of care for children with medical complexity that may include Physicians, Nurse Practitioners & Nurses, Pediatric Nursing Home Administrators, Occupational, Physical, Recreation & Respiratory Therapists, Social Workers, Speech Pathologists and Special Educators.

SPECIAL SERVICESIf special arrangements are required to attend this conference, including any access needs or dietary restrictions, please contact us by September 28, 2016.

REGISTRATIONRegistration fee includes course syllabus, continental breakfast and lunch.

ACCOMMODATIONS & CONFERENCE LOCATIONA block of rooms on 10/26 & 10/27 has been reserved at the Omni Richmond hotel at a special rate of $159 per night for a single or double. This is a peak time in this area, and we encourage early reservations.

Omni Richmond Hotel 100 South 12th Street, Richmond, VA 23219 • 804-344-7000

Group Code: 12200702664 • $159 per night single/double

TRANSPORTATION Parking: Omni Richmond Valet parking $22 per day with unlimited in/out privileges Richmond International Airport (RIC): 10 miles, approximately 20 minutes, shuttle or taxi ranges $25-$40 Train: Amtrak Main Station-6 blocks, Amtrak Staples Mill Station–8 mi. All parking fees and fares are subject to change.

CANCELLATION POLICYConference cancellations must be received in writing by September 28, 2016 to receive a refund. No refunds will be given after this date. A $50 administrative fee will be assessed on all cancellations.

PARTICIPANT INFORMATION

Email (Required) ______________________________________________________

Name _______________________________________________________________

Title _________________________________________________________________

Company _____________________________________________________________

Address _____________________________________________________________

City/ST/Zip ___________________________________________________________

Phone ( ) ________________________________________________________

PAYMENT INFORMATION

Total Amount Enclosed ________________________________________________

____ Check/money order enclosed (Payable to Pediatric Complex Care Association)

____ Charge my credit card: m M/C m VISA m AMEX m Discover

Credit Card # _________________________________________________________

Exp. Date ________________________ Verification # _______________________

Name on Card ________________________________________________________

Billing Address _______________________________________________________

City/ST/Zip ___________________________________________________________

Signature ____________________________________________________________

10/26 TOUR OF CHILDREN’S HOSPITAL OF RICHMOND AT VCU 4:30-7:30PM

m $25 non-refundable, includes transportation to/from the Omni Richmond and light dinner

PRE-REGISTRATION FOR BREAKOUTS:Thursday, 10/27

11:30AM __________________________

1:30PM ___________________________

3:15PM ___________________________

Friday, 10/28 10:00AM _________________________

11:15AM _________________________

1:45PM __________________________

2016 ANNUAL CONFERENCE RATES: Full 10/27 only 10/28 onlyAssociation Members: Early Bird by 8/31 $400 $200 $200 Standard by 9/28 450 225 225 On site 500 250 250

Other Professionals: Early Bird by 8/31 500 250 250 Standard by 9/28 550 275 275 On site 600 300 300

Please complete registration online through PediatricComplexCare.org or mail form with payment to: Pediatric Complex Care Association, 1827 Old Freehold Road, Toms River, NJ 08755.

CONFERENCE SCHEDULE

GENERAL INFORMATION

REGISTRATION – CONFERENCE & BREAKOUT SESSIONS

OPTIONAL EVENT, BREAKOUTS & FEESPlease select desired conference options below. First come, first served.

TO REGISTER ONLINE, VISIT PediatricComplexCare.org Please email Michelle Burke at

[email protected] or call 732-608-5350.

QUESTIONS?

TEA

R &

MA

IL

The policy of Case Western Reserve University School of Medicine CME Program requires that the Activity Director, planning committee members and all activity faculty (that is, anyone in a position to control the content of the education activity) disclose to the activity participants all relevant financial relationships with commercial interests. Disclosure will be made to activity participants prior to the commencement of the activity. Case Western Reserve University School of Medicine also requires that faculty make clinical recommendations based on the best available scientific evidence and that faculty identify any discussion of “off-label” or investigational use of pharmaceutical products or medical devices.

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation

Council for Continuing Medical Education (ACCME) through the joint providership of Case Western Reserve University School of Medicine and the Pediatric Complex Care Association. Case Western Reserve University School of Medicine is accredited by the ACCME to provide continuing medical education for physicians.

Case Western Reserve University School of Medicine designates this live activity for a maximum of 12.0 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Credits pending for NHA by National Association of Long Term Care Administrator Boards (NAB). Please visit PediatricComplexCare.org for the latest information.

ACCREDITATION & CREDIT DESIGNATION

Please email Michelle Burke [email protected] or call 732-608-5350.

QUESTIONS?

LEARNING OBJECTIVES: 1) Identify values of data

management in influencing quality and clinical

outcomes, 2) Recognize what is needed for full

assessment and what needs to be added to practice

better care, and 3) Implement new systems to

improve care for children with medical complexity.

PediatricComplexCare.org

NON-PROFITPostagePAID

Toms River, NJPermit No. 94

OUR MISSION: To create opportunities for organizations to collaborate, network, share innovations, advocate, and promote excellence in the continuum of care for children with medical complexity and their families

OUR VISION: Uniting organizations to provide a combined voice and promote excellence of care for children with medical complexity and their families

WE ARE DEDICATED TO: • Serving professionals that provide care to children with medical complexity

• Delivering educational and networking opportunities

• Providing a platform for peer-to-peer support through online exchange

• Promoting partnerships, collaboration and communication among disciplinesin the broad field of pediatric complex care

• Developing benchmarks and quality indicators

• Endorsing cost-effective, sustainable care for the pediatric complex carepopulation in an era of health care reform

• Representing the needs of professionals and the patients they serve beforegovernment and regulatory agencies, professional societies and the public

• Researching to develop evidence-based standards of care

The Pediatric Complex Care Association welcomes new members to join us in our

endeavor to better serve children with medical complexity. We offer

Active, Affiliate, Corporate and Individual memberships. Talk to one of our Board Members in

person this fall or learn more at PediatricComplexCare.org

DON’T MISS THIS VALUABLE LEARNING EXPERIENCE

BECOME A MEMBER!

»Relevant Best Practices and Innovations»Knowledgeable Presenters»Tremendous Take-Home Potential


5TH ANNUAL CONFERENCE

OCTOBER 26-28, 2016


REGISTRATION NOW OPEN

1827 Old Freehold Road Toms River, NJ 08755 732.608.5350

SPONSORED BY

HOSTED BY

HISTORIC DOWNTOWN

RICHMOND, VA OCTOBER 26-28, 2016

HISTORIC DOWNTOWN

RICHMOND, VA

HISTORIC DOWNTOWN

RICHMOND, VA

OCTOBER 26-28, 2016

october 26-28, 2016 historic downtown richmond,...

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