Claire SevergniniChief ExecutiveProfessor Terry O’NeillChair of the Clinical and Scientific Committee

National Osteoporosis Society Update 2012

• The only UK-wide charity dedicated to improving the prevention, diagnosis and treatment of osteoporosis and fragility fractures.

• Our vision is a future without fragility fractures.

• Dependent on financial support from individual donations, legacies, and membership. We do not receive statutory funding.

Board of Trustees

Finance, General Purposes and Audit

Committee

Appointments and Governance Committee

Members and Volunteers Committee

Clinical and Scientific

Committee

Research Grants Committee

Clinical and Scientific Advisory Community

Conference Committee

Nutrition and Lifestyle Forum

Osteoporosis Review Editorial

Board

Bone Densitometry Training Advisory

Panel

Working groups incl: ORPC, Vit D, FLS

Standards

Senior Management Team

Governance Structure

What We Do

Influence Policy

Support Health Professionals

Support Individuals

Government guidance on and support for fracture prevention across the UK

NHS health reforms: indicators for fracture prevention are included

Seven year campaign: osteoporosis incentives for primary care (Quality and Outcomes Framework - QOF)

NICE management and treatment guidelines

Influencing Policy

Quality and Outcomes Framework

Delivering our messages to 10 Downing Street. Lord Black, Claire Severgnini, members Anthea Franks, Val Napier, patron Lynn Faulds Wood and member David Brookfield

"Osteoporosis affects three generations in my family – more should be done to prevent this devastating disease and to help future generations to build stronger bones."

My GP doesn’t understand the effects of fractures caused by osteoporosis. I have lost five

inches in height, my body has changed and it has knocked

my confidence." "Osteoporosis deserves the same attention as other long-term conditions. More and more people are living with fragile bones and the government needs to take action."

Clear, concise information on all aspects of osteoporosis management

How to implement QOF, and much more

Keep updated by joining our email list

Supported by

Osteoporosis Resources for Primary Carewww.osteoporosis-resources.org.uk

• Support implementation of national public policy

• Demonstrate cost-effectiveness and clinical effectiveness.

• A series of regional education meetings• On-line resources: www.nos.org.uk/FLS• Developing FLS Standards

Supporting Service DevelopmentFracture Liaison Services

• Osteoporosis Review- Online clinical and scientific journal

• e:Bulletin

• Practical Guides and Position Statements

• NEW Osteoporosis Resources for Primary Care

• NEW Allied Health Professional Network

• Clinical and Scientific Advisory Structure

• Clinical Training– Bone densitometry– IRMER– Study days

• Osteoporosis and Bone Conference 2012

Reviewing areas of activity to ensure we are providing what you need.

Supporting You

• In 2012 joined with the BRS and the Paget’s Association to deliver an Osteoporosis and Bone Conference to diversify the programme to respond to the evolution of osteoporosis and bone health, maximise delegate attendance and commercial sponsorship

• Climate in which we have marketed, funded and delivered the conference in 2012 has been tough

• Reviewing the objectives of the conference• We want your views – survey monkey

The future of the Osteoporosis Conference

•Osteoporosis Review•Research •Influence•Guidelines / Position statements•Advice

Update – Future plans

Osteoporosis Review

www.nos.org.uk

• To date £2.9m awarded to over 100 projects

• In 2011 Grants were awarded to: - Develop method for quantification of mechanical

loading in pre-menopausal women

- Effects of Obesity on Bone Structure and Strength

- Bone turnover and Vitamin D status in South Asian and Caucasian women

- Impact of nutrition on bone health

Research

• 2012 Round - £250,000• 2013 Round

• Young Scientist Prize • Bursary Scheme 10 recipients

• Research Grants Committee – New Members

Research

Research

Research Priorities • Current treatment and

patient care• Diagnosis and risk

assessment• Mechanisms of disease /

prevention

Research Strategy

Influence

• Quality Outcomes Framework

• Clinical Guideline 124 - Management Hip Fracture

• NICE Quality Standard Hip fracture

Management of Hip Fracture in AdultsClinical Guideline 124

• Surgery Timing /Analgesia • Multidisciplinary care Orthogeriatrics• Hip fracture program• Rehabilitation

• Describe what a high-quality service looks like so organisations can improve quality and achieve excellence. • Not mandatory • Hip Fracture Standard

- Patients assessed to identify falls risk

- Offered a bone health assessment to identify future fracture risk

NICE Quality StandardHip Fracture

• ‘To produce a clinical guideline on therisk assessment of fragility fractures in people with or at risk of osteoporosis’.

• Consultation / Expected Launch August 8th

Assessing the Risk of Fragility Fracture : Short Clinical Guideline

TA 160 / 161

i) Rate of emergency admissions

for fractured neck of femur

in persons > 65 years

ii) Rate of emergency

admissions for falls or falls

Injuries in persons

aged 65 and over.

Outcomes Framework – 2012/13

Guidelines

Position Statements

Densitometry - In Progress

• Guidelines for the provision of a clinical bone densitometry service• Bone densitometry : A structure for UK clinicians reporting DXA scans at the hip and spine

• How do we assess for vitamin D status?• How do we treat & how do we monitor

response?

• Vitamin D & Bone Health : A Practical Clinical Guideline for Patient Management

• Consultation / End 2012

Vitamin D and Bone Health

Fracture Liaison Standards

• One in three non-hip fractures

receive treatment

• Working group standards for

fracture liaison services

Advice

• Long term adverse effects of Bisphosphonates

Osteonecrosis of the Jaw

Atypical femoral fractures

• Duration of Drug therapy

• Evidence based• Clear• Balanced• Consistent

Advice

• Clinical Scientific Committee

• Broader network

Advisory Structure

Influence Policy

Support Health Professionals

Support Individuals