no voice unheard, no right ignored - consultation presentation in

8/9/2019 No Voice Unheard, No Right Ignored - Consultation Presentation In

1/44

No voice unheard, no right ignored

a consultation for people with learning

disabilities, autism and mental health

conditions


2/44

The new Green Paper

• Is a consultation from the

Government

• In it are ideas that might

become law

• Before this happens, the

Government have to ask

everyone what they thinkabout the ideas and get

their feedback


3/44

What is the timescale?

The consultation runs for 12weeks and began on the th

!arch 2"1#

It ends on 2$ !ay 2"1#


4/44

What is the new green paper

about?

It aims to give people with

learning disabilities,

autism and mental health

problems more rightsabout the care they get

and the way they are

treated by the %&' and

the care system(


5/44

Care and Support Minister Norman

Lamb MP

• People are in charge, supported

by family and friends• People are included and are

independent in the community

• People have the right care in

the right place• That there is very clear

accountability and responsibility

throughout the system


6/44

Gavin arding M!"

‘’I hope to see this paper

changing a lot of things for

people with learning disabilities,

mental health needs or autismabout some of England’s worst

care.’’

‘’Mae the lives of all peoplewith disabilities a good life

without barriers.’’


7/44

The vision

)ll disabled people, including thosewith learning disability, autism or

mental health needs, have a right to

lead their life like anyone else, with

the same opportunities and

responsibilities and to be treated withthe same dignity and respect(

*eople and their families and carers

are entitled to the same rights asothers(

)ll services should first and foremost

see the person and their potential(


8/44

Wh# the need $or change?

• *eople have been let down by the

system( *eople and their families

have not been listened to

• *eople have not been treated as

the one who has the e+pertise and

so they have not had the right to

be in control of their own lives

• There are still people who are

having long stays as an inpatientin hospitals or residential care

against their wishes

• or some people things are still

the same as many years ago


9/44

%nstitutionalised Care

• In the -ictorian times the type of

care for disabled people, especially

those with a learning disability,

autism and mental health needs,meant they were separated from

their local community often in very

hidden and faraway places

• These types of places were calledasylums

• This kind of care made poor care

and abuse to happen


10/44

• .ver the last /" years these types

of places have been shut down(The last asylums were closed at

the end of the 1$$"s

• %&' long stay hospitals andcampuses have also been closed0

in 2""2, there were over """

%&' long stay and campus beds

in 3ngland( !ost of these havenow closed

• )ll %&' long stay hospitals were

closed by the end of 2"1"11(


11/44

• Information including the work of

the 4are 5uality 4ommission

shows that there are still too many

people with a learning disability or

autism, and mental health

problems who are still being

admitted to inpatient settings

• They stay there for long periods oftime 6 for some years and very far

from home

ave things changed?


12/44

• In some settings levels of

medication, restraint and self7

harm are high

• 'adly, we also know of a

number of deaths


13/44

Winterbourne &iew hospital

)fter the BB4 *anorama programme

of the 8interbourne -iew hospital,

the 4are 5uality 4ommissions report

into their reviews of learning disability

hospitals found that overall levels of

compliance on care and welfare of

people using services andsafeguarding people from abuse

were low


14/44

The 'ustice $or L! (Laughing !o#)

campaign

Family carers of 4onor 'parrowhawkand their supporters have also made

a powerful argument on what people

have a right to e+pect, saying theywish to0

‘’mae it a legal reality for disabled

people to be fully included in their

communities and to mae it harderfor the !tate to force disabled people

to leave their homes against their

wishes, or the wishes of their

families."


15/44

The Governments ideas and *uestions

$or us to answer

There are lots of 9uestions :1/;

to answer but we think it is really

important to feedback so the

Government get this right(


16/44

+ M# right to be independent, to be part o$ a

communit# and to live in a home % have chosen

• &elping people stay close totheir communities

• &aving enough services in the

community

• )ssessment and treatment in

the community and the

!ental &ealth )ct


17/44

-uestion +

These ideas are trying tohelp people to be part of thecommunity.

Would they help to stoppeople being sent awayfrom their home and family?


18/44

. M# right to be listened to and have

m# wishes acted upon•


19/44

-uestion .

These ideas are trying tohelp people play a fullpart in their care andmake sure the NHS andLocal uthorities listen tothem.

!o you think they willhelp?


20/44

/ %nvolving people and their

advocates

*eople working together is very

important(

*eople and their advocates need to

be taken notice of(

*eople with learning disabilities orautism and families on the Boards

of services(

*eople should have a place in

helping to run and control services.


21/44

-uestion /

=o you think that only servicesthat involve people with

learning disability or autism

and families running them

should get contracts with the>ocal )uthority or %&'?


22/44

0 elping people use their rights

'ome people need more help to put

over their views, feelings and beliefs

They may need support to be able to

do this(

This support can come from0

• amily 6 including @nearest

relativesA under the !ental &ealth

)ct

• )dvocates 6 including Independent

!ental &ealth )dvocates

• *rofessionals 7 including social

workers(


23/44

-uestion 0

These ideas are trying to make

sure more people get support

from families, social workers and

advocates called Independent!ental &ealth )dvocates(

They have a part to play in

peopleCs care and helping thembe listened to(

=o you think they will help?


24/44

1 Support i$ something goes wrong

It can be hard to know what to door to get support if something

goes wrong(

It should be easy for people tocomplain(


25/44

-uestion 1

=o you think anything else is

needed to help people to speak

up if something has gone wrong?


26/44

2 M# rights and the Mental ealth 3ct

&ow the !ental &ealth )ct is

used for people with learning

disabilities or autism(


27/44

-uestion 2

8hat do you think about the idea

of people with learning disability

and autism0

• not being sent to hospitalunder the !ental &ealth )ct or

• only in a smaller number of

situations or

• only sent if a court sendsthem?


28/44

4 3 single path $or Mental ealth 3ct

assessment and treatment

The !ental &ealth )ct can be

hard to understand( *eople

can go for assessment andtreatment under different

rules(


29/44

Question 4

8hat do you think about the

idea of making the !ental&ealth )ct law easier to

understand and follow with

one path into hospital for

assessment and treatment?


30/44

5 The Mental ealth 3ct and people who plan and bu#

services $or the NS

*eople who plan and buy services for the %&'

should have to make sure that the !ental&ealth )ct works well(

There is a D4ode of *racticeC for the !ental

&ealth )ct which hospitals have to follow unless

there are really good reasons for not doing this(

But, the law does not say that the people in the

%&' who plan and buy services in hospitals

have to follow the 4ode of *ractice(


31/44

Question 8

=o you think we should change

the law to make sure that peoplewho plan and buy services for the

%&' have to follow the 4ode of

*ractice guidance about the

!ental &ealth )ct like hospitalsdo?


32/44

6 7sing police cells and holdingpeople in hospital instead o$ prison

'ometimes, when people have a mental health

crisis, they are taken to a place of safety(

It is usually a hospital but sometimes cells in

police stations are used(The Government want to0

• cut down on police cells being used a Dplace of

safetyC

• make sure no children and young people are

kept in police cells• where people are kept in police cells, to make

sure it is only for a short amount of time

• see if people from other services could take

people to a place of safety and not Eust the

police


33/44

Patients who are held in hospitalunder the Criminal Justice System

• 'ome people are patients under the !ental

&ealth )ct through the 4riminal Fustice

'ystem• Instead of going to prison they have been put

into a hospital( They are called Drestricted

patientsC

• Some "restricted# patients cannot lea$e

a hospital to li$e in the community in a

safe way at the moment• Some people are in secure hospitals

when they might be able to be in thecommunity under strict rules

• The %o$ernment are thinking about

whether the law should change to allow

this to happen


34/44

Question 6

These ideas look at how tomake things better for people

who are being kept safe in

police cells or are being held in

hospital instead of prison(

8hat do you think?


35/44

+8 M# right to control m# own supportand services with a personal budget

• The Government think a

personal health budget would

work well for people with alearning disability or autism(

• It could pay for care and

treatment in the community(

• This could be for somepeople who are in mentalhealth hospitals at the

moment.


36/44

Question 10

8hat do you think about more

people with a learning disability

or autism having personalhealth budgets?


37/44

++ Putting di$$erent sets o$ mone# together

(pooled budgets)

• &eople who buy ser$ices forthe NHS and Local uthorities

sometimes put their moneytogether for mental health andlearning disability ser$ices

• This does not happen everywhere

• The Government wants to look at

setting this up throughout thecountry

• This could mean there is money for

people to move back into their

communities when they are ready


38/44

-uestion ++

8hat do you think about making

local areas having to put theirmoney together to help people

get out of hospital?


39/44

+. Sharing %n$ormation

• *ersonal information should be kept

private but important information

about what care people need

sometimes has to be shared(

• The Government thinks that it

should be the law that people who

are providing care at the hospitals

or care homes should have to share

information with commissioners

• They think that sharing information

will help get the right care for people

or help if there are worries


40/44

-uestion +.

=o you think it should made

clearer when people who buy

care have to share information

to support peopleCs care and

keep them safe?


41/44

+/ Who is in charge o$ supporting m#

ph#sical as well as m# mental health

) personCs physical health needs must

also be looked after when they are in a

mental health hospital(

The Government wants to make it very

clear who has to do what, including0

• who buys physical healthcare in the

area where people are staying in a

mental health hospital

• what the hospital has to do

• what the main doctors have to do


42/44

-uestion +/

=o you think the Governmentshould try and make it more

clear who has to make sure

people are physically well when

they are in mental health

hospitals?


43/44

+0 Last *uestion

Is there anything else you think

is important about these

changes?


44/44

The di$$erent wa#s people can respond to the

consultation :

By e7mail to0 norightignoreddh(gsi(gov(uk

.nline at0 http0consultations(dh(gov(uk

In writing to0

4onsultations 4o7ordinator

%o Hight Ignored 4onsultation=epartment of &ealth

rd loor )rea 1), Hichmond &ouse

$ 8hitehall

>ondon '81) 2%'

no voice unheard, no right ignored - consultation presentation in

Documents