Working with Vanguard Sites: A Voluntary Sector Perspective

George McNamaraAlzheimer’s Society

@george_mcnamara

• Dementia still remains a national and international challenge.

• Improvements made in some areas, but not yet the transformational change that people with dementia deserve.

• Overall a mixed picture of progress.

Dementia-friendly health and care settings? Hospitals

• 3.2 million hospital bed days.• Over 40% of beds occupied by people

with dementia.• Excessive hospital stays.• High level of readmission.

Care homes • 70% of residents have dementia.• GP and acute care relationship.• Dementia friendly environment.• Community engagement.

Home care• Limited access to home care.• Services stretched or reduced.• High turnover of staff.

Dementia can be the success criteria for integrated health and social care.

Scale of the changeVanguard sites City Devolution deals

New opportunities to raise ambitions?

• Delivering the Prime Minister’s challenge on dementia 2020 – focus on system and societal change

• Better Care Fund• The NHS Five Year Forward View and Vanguards – driving

integration and person- centred care• Greater Manchester Devolution

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Working with the Sutton VanguardEnhanced Health in Care Homes

Enhancing health in care homesChallenge on Dementia 2020

People with dementia ‘I statements’

‘I was given information

about reducing my personal risk of getting

dementia’

‘I was diagnosed in a timely way’

‘I am able to make decisions and know what

to do to help myself and who else can help’

‘I am treated with dignity and

respect’ ‘I get treatment

and support, which are best

for my dementia and

my life’

‘Those around me are

supported’ ‘I feel included

as part of society’

‘I am confident my

end life wishes will

be respected’

‘I can expect a good death’

NHSE ‘The well

pathway for dementia’1

PREVENTING WELL

Risk of people developing dementia is minimised

DIAGNOSING WELL Timely

diagnosis, integrated care

plan, and review within the first

year

SUPPORTING WELL

Access to safe high quality health and

social care for people with

dementia and carers

LIVING WELL People with

dementia can live normally in safe and accepting

communities

DYING WELL

People living with

dementia die with dignity in the place

of their choosing

CQC Key lines of enquiry

Safe Effective Caring Responsive Well-led

‘A good life with

dementia’2

A GOOD DIAGNOSIS

for those showing

symptoms of dementia after admission to

residential care

SKILLED WORKFORCE appropriately

trained in dementia care and support

LIVING WELL in the home maintaining

activities and interest in life and hobbies

and integrated health and social care

SUPPORTING CARERS and loved ones to

provide advice, information and

maintaining positive

relationships

PART OF THE

COMMUNITY ensuring the

place of home is also an

integral part of the community

Alzheimer’s Society

support to care homes

Dementia Resource pack Includes information relating to risk, diagnosis, This is me, communicating and

supporting people with dementia, person-centred care, community links and end of life Linked Key-worker (cluster led Dementia Support Worker)

can provide support across the whole pathway to care home provider, person with dementia and family

Workforce training and development Enabling the workforce to support improved dementia outcomes across the whole

pathway Community Engagement

Improved well-being through Dementia Friendly Communities, Dementia Friends and Oomph!

Local outcomes

People’s physical, psychological and social needs met

People are supported to remain

independent

Social connectedness for

care home residents

Improved medicines

management in care homes

1 Key points of dementia support (currently in draft) 2 Findings of research by Deborah Sturdy and George McNamara on a good life in residential care for people with dementia, 2015

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Other examples

North East Urgent Care

NetworkTower Hamlets

Integrated Provider

Partnership

Greater Manchester Devolution and Dementia

Let’s Keep Building…5 Year Plan

Overcoming Barriers

• Developing a shared language• Consistent understanding on role of the

voluntary sector• Addressing variable levels of engagement• How and when to involve the voluntary sector• National v local learnings

What are the outcomes?• Person-centred care• Improved outcomes• Efficient allocation of resources• Better value for money• Future-proofing services

“If it works for dementia, it works for integration”

Thank you

George McNamara, Alzheimer’s Societywww.alzheimers.org.uk

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alzheimers.org.uk