NGO Health and Disability Network Annual Report: 1 July 2015 to 30 June 2016

1. Background The NGO Health & Disability Network (formerly the Health and Disability NGO Working Group) has partnered with the Ministry of Health since 2002 to implement the Framework for Relations between the Ministry and Health and Disability NGOs. This Framework provides a clear mandate for the Ministry of Health and our Network to engage on a range of issues. It identifies key areas where working together can strengthen the relationship with non-government organisations (NGOs.) These key areas include communication, consultation and capacity/capability building. Thirteen elected members on the NGO Council have responsibility for the ‘executive’ function, and are appointed for two-year terms. This annual report is from the NGO Council.

2. Vision, Mission and OutcomesVISION: Health and disability NGOs are meaningful partners with the Ministry of

Health and other government agencies in system-level policy development, planning and delivery of health and disability services in New Zealand.

PURPOSE: As an outcome of our collective impact with the Ministry of Health (and other government agencies) we will improve the effectiveness of health and disability NGOs’ services and achieve better health outcomes for all people in New Zealand.

OUTCOMES 2013-2016

NGOs are sought/engaged in/contribute to strategic and operational matters concerning the Ministry of Health and NGOs’ development and service delivery.

NGO voices are involved in policy development. A coherent and connected NGO sector, which represents a fundamental element of

health and disability services funded in New Zealand, has the building of community capacity and capability as a priority.

There is cross-government engagement with the health and disability NGO sector at all levels, not just at the ‘coal face’.

Relationships based upon courtesy, respect, integrity, transparency and trust are the experience of all people engaged with the health and disability sector.

3. Overview from the Chair: Strength in our community links and knowledgeThe NGO Council is vehicle for broad community-based advice to the Ministry of Health and is a channel for communicating back to the NGO sector. With such a diverse sector, it can be challenging to reflect all the important issues that community providers see as barriers to better services for individuals, however some significant topics affect us all – whether we are large national NGOs with multiple contracts worth millions or a one-person service in a remote location.One of these topics is service commissioning, which has been a key focus of NGO Council

1 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

discussions throughout the year. It encapsulates the challenges of getting funding levels and processes right to support delivery of the right services in the communities where they are needed.

The new NZ Health Strategy and changes within the Ministry are providing fresh opportunities to explore new ways of commissioning services, but we still have to balance these with existing contractual requirements to improve outcomes.

Recommendations from the Productivity Commission’s review into More Effective Social Services and the government’s broadened social investment approach could also lead to improved outcomes for clients/consumers, especially if our non-profit sector is ready to step up and remind funders of our strong community links. Listening to our communities is part of our kaupapa, but we can help government tap into this if we use our strengths and are innovative and solutions-focused – in our own NGO, in our region and collectively as a sector.

Looking ahead, we have our annual Council elections and the National Forum in October, which will focus on the broad themes of the new NZ Health Strategy. I encourage you to participate in these as a way to connect and share our influence. In the meantime, your elected NGO Council will continue to be forward focused – providing courageous leadership and open and respectful dialogue in partnership with the Ministry, ngā mihi.

Donna Matahaere-AtarikiChair of the NGO Health & Disability Council

4. Key activitiesDuring the year, the NGO Council: ran the 19 th National NGO Forum in Wellington, which was attended by approx 280 people

from 155 organisations. shared the views and experiences of the health and disability NGO sector with various

personnel from different parts of the Ministry of Health. made a submission on the NZ Health Strategy review ran elections to fill six vacancies on the NGO Council progressed a crowd-sourced video project to illustrate the contributions non-profit NGOs

make to the health and disability sector initiated a series of Influencing Policy and Making Submissions workshops to build

capability in NGOs commissioned a Future Focus discussion paper on different service commissioning models delivered information and guidance to Network members on a variety of topics and

consultation opportunities provided regular updates to the website and shared relevant news with the sector via

Twitter and Facebook.

5. Formal relationship with the Ministry of Health The current two-year Letter of Agreement between the Ministry of Health and the NGO Council to support the Relationship Framework runs to 31 December 2016. It specifies Services comprising three parts: the secretariat function for the NGO Council

2 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

facilitating and organising the NGO forums with the Ministry’s NGO Relationship Manager project work to be agreed with the Ministry as and when required.

The Ministry’s NGO Desk is responsible for the regular communications to the sector via the newsletter, and liaison between the NGO Council and the Minister and the Ministry.

6. Network membership still growingThe NGO Health & Disability Network grew to 521 full members and 114 affiliates by 30 June 20161. The 521 members make up approximately 56% of the non-profit NGOs that receive Vote Health funding from the Ministry of Health and/or DHBs. These NGOs that receive Vote Health funding (i.e. have contracts with the Ministry of Health and/or DHBs) can register in a maximum of two categories, and are registered to vote as follows:

228 in Disability Support Services 117 in Public Health 147 in Mental Health and Addictions 116 in Personal Health 118 in Māori Health 24 in Pacific Health

Ninety-eight percent of Network members are registered charities. Based on annual return data from the Charities Register2, we know the following about our 521 Network members: Member NGOs received $1.75 billion in combined annual government funding. 322 member NGOs received over $121 million in combined donations/koha.

(Up from $74m across fewer members in the previous year.) 69 member NGOs received a combined total of over $41 million in bequests.

(Similar to the previous year.) Altogether, 308 member NGOs received over $65 million in other grants and sponsorship. Member NGOs paid more than $1.53 billion in annual salaries and wages to 21,383

full-time staff and 18,295 part-time staff. In an average week, a total of 1.2 million hours were worked by paid staff and 155,445

hours provided by approx. 36,598 unpaid volunteers. 33% of member NGOs had a net annual operating deficit in their last reported financial year,

so had to draw on reserves to continue delivering services. (The third year in a row that approx. one in three NGO members have had to draw on reserves to cover costs.)

The activities of the NGO Network extend far beyond the voting membership as many non-members attend Forums and workshops and provide feedback via Network projects and surveys. The DIA Charities website shows 1,937 registered charities are working in the health sector (7% of all 27,607 charities in NZ) and 880 registered charities are working with people with disabilities (3.2%). The Non-Profit Institutions Satellite Account: 2013 published by Statistics NZ3 identified 2,210 health sector non-profits. Ministry of Health figures indicate less than half of these are Vote Health funded. We continue to engage new members to strengthen our collective voice in discussions with the Ministry and other key stakeholders.

7. NGO Council elections

1 See list of member organisations in Appendix 1.2 Charities register data downloaded 15 August 2016. Nearly 80% of annual return data was for financial years ending in 2015. Data is only as accurate as the information provided by listed charities.3 Statistics NZ published the Non-Profit Institutions Satellite Account: 2013 in June 2016.

3 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

Four hundred and ninety eight health and disability NGOs were registered to participate in the annual elections of Council members in October 2015. 12 candidates stood for 5 NGO Council vacancies in October 2015 and 7 candidates stood

for one disability support vacancy in May 2016. Incumbent members Donna Matahaere-Atariki and Marion Blake were re-elected in October.

Council members Eleni Mason, Shaun McNeil and Sarah Mulcahy did not seek re-election, so three new members (Pesio Ah-Honi Siitia, Barbara Disley and Catherine Marshall respectively) were elected to replace them.

Changes to the Terms of Reference clarifying roles in organising the National Forum (clause 11) and introducing a complaints and dispute resolution process (clause 13), were ratified and accepted by the majority of voters and are effective from 1 November 2015.

Disability Support Service representative Victoria Manning resigned from the NGO Council in April 2016 due to other commitments, and Marese McGee was elected in May to replace her.

Voter participation in 2015/16 was as follows: 35% of 142 eligible Mental Health & Addiction NGOs cast a vote (down from 60% in 2013). 29% of 112 eligible Māori Health NGOs cast a vote (down from 45% in 2014). 23% of 102 eligible Personal Health NGOs cast a vote (down from 35% in 2014). Pacific Health: no vote required as only one candidate. 45% of eligible Disability Support Service NGOs voted (same as 2014).

8. Project workstreams A detailed report on our 2015-16 Work Plan is on our website. Project activity was focused in three key areas.

Building NGO capability to influence policy and make submissionsFifty-eight people from 48 NGOs attended workshops in Christchurch and Wellington in May 2016. Additional workshops in Auckland and Hamilton were scheduled for July. Guidance material and videos were also added to our website.

A crowd-sourced NGO video project to illustrate the contributions NGOs makeThis request received more than 60 video clips from 23 NGOs throughout the country. Work to edit these into 5 or 6 short compilations is nearing completion.

Future Focus literature review on commissioning approachesAfter an initial discussion paper was developed, the NGO Council commissioned the author Richard Clarke to develop a two page summary paper describing key success factors for the four main service commissioning models and create a thinkpiece exploring various existing and potential commissioning principles. These papers will inform ongoing discussions with the Ministry about service commissioning.

9. Ministry of Health NGO National ForumThe 19 th Ministry of Health NGO Health and Disability Sector National Forum entitled ‘How Good Are We: Measurement, Evaluation and Outcomes’ was a response to funders’ increased focus on getting results and putting resources where they will do most good. Topics in the programme explored ways to help non-government (NGO) providers show their service is effective and making progress for communities, or to address challenges if evidence were not available or did not support this view.

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More than 280 people from 155 organisations (including 43 staff from the Ministry of Health) heard the presentations and networked with each other during the day-long Forum at Westpac Stadium on Friday 18 September 2015.

10. NGO Council members’ meeting attendance In the period from 1 July 2015 to 30 June 2016, the NGO Council held six face-to-face meetings. NGO Council members attended as shown below.

Representative Sector Represented Meetings eligible

Meetings attended

Appointment Status

Marese McGee Disability Support Services 1 0 Elected May 2016

Mark Brown Disability Support Services 6 4 Re-elected Oct 2014

Victoria Manning Disability Support Services 4 2 Resigned April 2016

Donna Matahaere-Atariki (Chair)

Māori Health 6 4 Re-elected Oct 2015

Josie Smith Māori Health 6 4 Elected Oct 2014

Karaitiana Tickell Māori Health 6 3 ½ Elected Oct 2014

Barbara Disley Mental Health & Addictions 4 4 Elected Oct 2015

Marion Blake Mental Health & Addictions 6 5 ½ Re-elected Oct 2015

Shaun McNeil Mental Health & Addictions 2 2 Stood down Oct 2014

Eleni Mason Pacific Health 2 2 Stood down Oct 2014

Pesio Ah-Honi Siitia

Pacific Health 4 2 Elected Oct 2015

Robert Muller Pacific Health 6 4 Elected Oct 2014

Catherine Marshall Personal Health 4 3 Elected Oct 2015

Kathryn Jones Personal Health 6 5 Re-elected Oct 2014

Sarah Mulcahy Personal Health 2 1 Stood down Oct 2014

Jackie Edmond (Vice-Chair)

Public Health 6 3 Elected Oct 2014

Warren Lindberg Public Health 6 5 Elected Oct 2014

11. NGO Council meetingsThe February meeting was facilitated by National Forum MC, Fran Hoover to assist the NGO Council to re-focus and respond to the findings in the Productivity Commission’s report on More Effective Social Services. Subsequent meetings built on this discussion and broadened out to include the introduction of the new NZ Health Strategy, changes within the Ministry of Health to support this and processes to improve service commissioning and contracting.Ministry of Health meeting guests included: Kathryn Karantze-Young and Lea Patrick, who provided an update on the Social Bonds trial.

(Aug) Cathy O’Malley (Deputy Director-General Sector Capability & Implementation) and Clayton

Cleary (Manager, Procurement and Contracts) discussing the Ministry’s contracting and commissioning of services. (Oct)

5 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

Therese Egan (Acting Group Manager Strategy, Policy) and Laura Miller (Policy) to share responses to the findings in the NZ Productivity Commission’s report. (Oct)

Jim Nicholson (Manager Health of Older People) and John Roy (Policy Analyst, Populations Policy) met with the NGO Council to discuss consultation on Health of Older People Strategy. (April)

Jill Lane (Director National Services Purchasing, National Health Board) attended to meet the new Council members. (Dec)

Keriana Brooking (Chief Advisor Service Improvement & Change) seeking input on the review of the NZ Health Strategy. (Dec)

Chai Chuah (Director-General), Hamiora Bowkett (Acting Chief Strategy & Policy Officer) and Jill Lane (National Services Purchasing Director) met with the NGO Council to discuss Ministry on the Move changes and the way forward with the new NZ Health Strategy . (April)

Jill Lane (newly-appointed Director Service Commissioning) met with the NGO Council to discuss transformation of the service commissioning business unit. (June)

Keriana Brooking (Chief Advisor - Service Improvement and Change) and Jill Bond (Executive Director, Office of the Director General) met with the NGO Council to discuss the new ELT structure and how business units such as Finance and IT will help meet the strategic direction of the NZ Health Strategy and MoH. (June)

The NGO Council shared insights from meetings with Network members via the Chair’s regular Updates.

11. Key representations and other activities Outside of meetings and projects, the NGO Council endeavours to progress issues and promote the views of the wider health and disability NGO sector. It also encourages the wider sector to contribute directly through formal submissions and by participating in sector initiatives. Activity included encouraging sector input on: The update to the Health of Older People Strategy MBIE’s Exposure Draft of the Incorporated Societies Bill MBIE’s annual procurement survey Health Workforce NZ’s online survey to get feedback on a draft shared core competency

framework for the New Zealand children’s workforce. the Disability Strategy review and Enabling Good Lives examples The NZ Health Research Strategy

Several NGO Council members and the Secretariat attended the Ministry of Health’s Powering Up our Future Health Symposium in April and others participated in MBIE’s focus groups to develop guidelines on contracting and procurement of social services.

During the reporting period, various consultations, workshops and other activities were promoted on Facebook and Twitter.

6 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

12. Financial report of the NGO Health & Disability NetworkFinances are administered by the NGO of the Council Chair (ie: Arai Te Uru Whare Hauora Ltd).

Financial Performance for the period 1 July 2015 to 30 June 2016

2015-16 (incl. GST)

Budget estimates (incl. GST)

2014-15 (incl. GST)

CORE ACTIVITYOPENING BALANCE $ 64,352.40 $ 37,712.72INCOME

MoH Grant 92,000.00 92,000 94,503.16

Interest Received 292.30 700 501.64

92,292.30 92,700 95,004.80EXPENSES

Administration – ATUWH 4,600.00 4,600 3,150.00

Accounting Fees 1,193.00 - -

National Forum # 33,806.42 39,000 630.50

Secretariat 37,326.80 31,920 33,145.00

Website Hosting/Maintenance 4,278.00 4,240 4,278.00

GST Paid 11,704.14 - (1,996.31)

NGO Council Expenses 6,510.82 9,950 11,003.57

NGO Council Travel * 23,469.37 20,000 18,154.36

122,888.55 109,010 68,365.12NET SURPLUS/(DEFICIT) (30,596.25) (16,310) 26,639.68

UNSPENT AT END OF PERIOD $ 33,756.15 $ 64,352.40 PROJECT ACTIVITYOPENING BALANCE $ 11,291.16 $ 20,406.58

INCOME

Influencing Policy project 29,900.00 -

Future Focus project 16,100.00 -

MoH Project Grants 46,000.00 46,000 25,480.16EXPENSES

GST Paid 4,613.32 - -

Video project 1,855.00 5,750 -

Influencing Policy project ^ 14,565.14 29,900 -

Future Focus project 9,340.00 18,400 -

30,373.46 54,050 34,595.58NET SURPLUS/(DEFICIT) 15,626.54 (9,115.42)

UNSPENT AT END OF PERIOD $ 26,917.70 $ 11,291.16

# NGO Forum costs included $2,022.51 for travel, of which $129.00 is for accommodation* NGO Council Travel comprises airfares, parking, mileage, taxi fares and $237.51 for accommodation.^ Influencing Policy project includes $184.00 for travel and $329.18 for accommodation.

7 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

Appendix 1: List of 521 eligible voting member organisations as at 30 June 2016

A.J. Day Options Trust Able Southern Family Support Achievement House

(aka Cambridge Disabled Sheltered Workshop Inc)

ACROSS - Te Kotahitanga O te Wairua (aka ACROSS Social Services)

Affinity Services Ltd Age Concern Auckland Inc Age Concern Counties

Manukau Inc Age Concern Havelock North

Inc Age Concern North Shore

Charitable Trust Age Concern NZ Inc Age Concern Otago Inc Age Concern Wanganui Inc Agencies for Nutrition Action Alcohol & Drug Community

Support Trust Alcohol Drug Assn NZ (ADANZ)

Inc (part of Network 4 Infolines)

Alcohol Healthwatch Trust Allergy NZ Inc Alzheimers Auckland Charitable

Trust Alzheimers Marlborough

(aka Alzheimers Society Marlborough Inc)

Alzheimers NZ Inc – National Office

Alzheimers Society (Manawatu) Inc

Alzheimers Society Gisborne Inc

Alzheimers Society Napier Inc Alzheimers Society Nelson Inc Alzheimers Society Northland

Inc Alzheimers Society Rotorua Inc Alzheimers Taranaki Inc Alzheimers Wanganui Inc Alzheimers Wellington Inc Ambulance NZ Ambury Park Centre Inc Anamata (aka Cafe Inc) Anglican Care Waiapu

(aka Waiapu Anglican Social Services Trust)

Anglican Living - a division of Anglican Care Canterbury-Westland (aka Social Service

Council of the Diocese of Christchurch)

Anxiety NZ Trust Arahura Charitable Trust Arai Te Uru Whare Hauora Ltd Arataki Ministries Ltd arc Counselling Services

(aka Drug & Alcohol Support Taupo Trust)

Argo Trust, The Arohanui Art & Education Trust Arohanui Hospice Service Trust Arowhenua Whanau Services Arthritis NZ (aka Arthritis

Foundation of NZ Inc) ASH (Action on Smoking &

Health) NZ Inc Ashburn Hall Charitable Trust Ashburton Community Alcohol

& Drug Service Inc Asian Health Foundation of NZ Asian Network Inc, The (TANI) Aspire Community Support (aka

Hamilton Residential Trust, The)

Asthma & Respiratory Services (Waikato) Inc (aka Asthma Waikato)

Atareira (aka Schizophrenia Fellowship Wellington Branch Inc)

Auckland District Kidney Society Inc

Autism NZ Inc Avalon (BOP) Inc Avonside House Trust Inc Bainfield Gardens Ltd Balance NZ – Bipolar &

Depression Network (aka Bipolar Network/Signpost)

Barrier Free NZ Trust Bay of Plenty Sexual Assault

Support Services Trust, The Big Brothers Big Sisters of

Manawatu Body Positive Inc Brackenridge Estate Ltd Brain Injury Assn (Auckland)

Inc, The Brain Injury Assn Central

Districts Inc Brain Injury Assn Northland Inc,

The C.A.R.E Marlborough Inc

(aka Consumers Assisting Recovery Everyday)

C.A.R.E. Services Trust Calvary Hospital Southland Ltd Cancer Society of NZ Taranaki

Centre Inc (aka TSB Cancer Support Centre)

Canterbury Asthma Society Inc t/a Canbreathe

CAPS Hauraki Inc Carers NZ Caring For Carers Inc Caroline House Inc CART Consultancy Advocacy

Research Trust Carter Society Inc CCS Disability Action –

Wellington & Hutt Branch CCS Disability Action Bay of

Plenty CCS Disability Action

Canterbury & West Coast Inc (Upper South region)

CCS Disability Action Inc (aka NZCCS )

CCS Disability Action North Taranaki Inc

CCS Disability Action Otago Inc CCS Disability Action South

& Central Taranaki Inc CCS Disability Action Waikato

Inc Central Otago Health Services

Ltd (aka Dunstan Hospital) Central Otago Living Options

Ltd Changing Minds Children's Autism Foundation Chinese Parents Support

Service Trust Chris Ruth Centre Trust, The Christchurch Early Intervention

Trust, The (aka The Champion Centre)

Christchurch Methodist Central Mission

Christchurch Resettlement Services Inc

CHT Healthcare Trust Citizen Advocacy Auckland Inc Claddagh Haven Trust Board Clutha Health First

(aka Clutha Community Health Company Ltd)

Communicare-Civilian Maimed Assn (Auckland) Inc (aka Communicare CMA)

8 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

Community Connections Supported Living Charitable Trust

Community Living Trust Complex Care Group Trust Conductive Education Waikato

Trust Conductive Education

Wellington Trust Connect: Supporting Recovery

Inc, Tama Tu Tama Ora Connections Education &

Development Trust, The Corstophine Baptist

Community Trust (CBST) Cospro Child Obesity Support

Programme Cystic Fibrosis Assn of NZ Darrnley Club Daycare Centre

for the Elderly, The (aka Kaiapoi Daycentre for Seniors Inc)

Deaf Aotearoa NZ Inc Delta Community Support Trust Depression Support Network Diabetes NZ Inc disAbilities Resource Centre

Southland Charitable Trust Disabilities Resource Centre

Trust Disability Information Service

Otago Disabled Citizens' Society

(Otago) Inc (aka Cargill Enterprises)

Disabled Persons Assembly (NZ) Inc (DPA)

Donaldson Residential Trust Dunedin Community Care Trust

(aka CCT) Dunedin Friend-Link Trust Early Start Project Ltd Eastland Helicopter Rescue

Trust EBAT Charitable Trust

t/a Pou Whakaaro Ekalesia Faapotopotoga

Kerisiano Samoa (EFKS) Le Savali o le Filemu in Mangere Bridge Trust Board.

Elizabeth Knox Home & Hospital (aka Knox Home Trust Board)

Emerge Aotearoa Empower A Life Trust Enrich+ Trust Epilepsy Assn of NZ Inc Equip

Evolve Youth Service (aka Te Whanganui-A-Tara Youth Development Trust)

Family Link (aka Western Bay of Plenty Mental Health Trust)

Family Planning NZ (aka NZ Family Planning Assn Inc)

Fiji Village Project NZ Foundation For Peace Studies

Aotearoa/NZ Inc, The (aka Peace Foundation, The)

Founders' Care Trust Board Framework Trust Fred Hollows Foundation NZ,

The Freeling Holt Trust Funding Advisory & Support

Services Ltd Gateway Housing Trust Gore & Districts Community

Counselling Centre Inc Gore Health Ltd Greenways Trust Grief Support Services Inc Haemophilia Foundation of NZ

Inc Hanmer Clinic Tauranga

(aka Hanmer BOP Charitable Trust)

Hapai Te Hauora Tapui (Ltd) HAUORA.COM Trust Hawke's Bay Youth Health Trust

t/a Directions Youth Health Centre

Hawksbury Community Living Trust

HBH Senior Living He Oranga Pounamu He Waka Tapu Ltd Health Action Trust (Nelson) Health Hawke's Bay Ltd

(aka Te Oranga Hawke's Bay) Health Link North Inc Health Promotion Forum of NZ

Inc (Runanga Whakapiki Ake I Te Hauora O Aotearoa Inc)

Health Reporoa Inc HealthWEST – Te Puna

Manawa Community Health Services

Hearing Assn (Wellington) Inc Heart Foundation of NZ, The

(aka National Heart Foundation of NZ)

Helen Anderson Trust Hepatitis C Trust Te

Waipounamu

Hepatitis Foundation of NZ, The Higher Ground Drug

Rehabilitation Trust, The Hillview Trust Inc, The

(aka Hillview Home & Hospital) Hokianga Health Enterprise

Trust Hokonui Runanga Health

& Social Services Trust Home Birth Aotearoa Trust Home Support North Charitable

Trust Horizons Day Options Trust Hospice EBOP

(aka Community Hospice Service Eastern Bay of Plenty)

Hospice Kaipara Inc Hospice Mid-Northland Society

Inc Hospice NZ Inc Hospice Taranaki Inc Hospice Whanganui Huria Management Charitable

Trust (aka Huria Trust) Hutt Union & Community

Health Service Inc IDEA Services Ltd (part of IHC) INA (Maori, Indigenous & South

Pacific) HIV/AIDS Foundation Inclusive NZ Inc Incredible Families Charitable

Trust Board Independent Living Service Inc,

The Interchurch Council For

Hospital Chaplaincy, The Interpreting NZ Inc Ironside Vehicle Society Inc JJ IF Funding Kahungunu Executive ki te

Wairoa Charitable Trust Kahungunu Health Services

Charitable Trust - t/a Choices Kamo Home & Village

Charitable Trust Kapiti Retirement Trust Karldon Trust Inc Kaurilands Skills Centre Trust

Board Kerikeri Village Trust

(aka Kerikeri Retirement Village)

Kites Trust Koputai Lodge Trust Korowai Aroha Trust Korowai Youth Well-Being Trust

(t/a 298 Youth Health) Kotuku Trust

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KYS One Stop Shop Trust (aka Kapiti Youth Support)

La Leche League NZ Inc Lakeland Disabilities Support

Trust L'Arche NZ Inc Laura Fergusson Rehabilitation

Auckland (aka Laura Fergusson Trust Inc, The)

Laura Fergusson Trust (Canterbury)

Laura Fergusson Trust Wellington Inc (aka Wellington Laura Fergusson Trust)

Le Va (aka Pacific Inc Ltd) Leslie Groves Residential Care

Services (aka Saint John's Parish [Roslyn] Friends of the Aged & Needy Society Inc)

Life Centre Trust Auckland, The Life Centre Trust t/a Lifeway

Homes (aka LIFE North Trust) Life Unlimited Charitable Trust Lifeline Aotearoa Inc

(aka Lifeline NZ Inc) Lifestyle Trust (t/a Interactionz) Lifewise Trust, The Linc Support Services Trust Lincoln & Districts Community

Care Assn Inc Lister Home Inc Living Streets Aotearoa Inc Mahitahi Trust Mana o te Tangata Trust Manawanui In Charge Ltd (The

Individualised Funding Agency) Mangere Community Health

Trust Manukau East Council of Social

Services (MECOSS) Inc, The Marcellin College Ltd

(aka NZ Marist Brothers) Marralomeda Charitable Trust

Inc Masada Community Trust MASH Trust Matea Trust McKenzie Centre Trust Melanoma Network of NZ Inc

(MelNet) Mental Health Foundation of

NZ Mental Illness Survivors Team

Inc (M.I.S.T. Inc)

Methven Aged Persons Welfare Assn Inc (aka Methven House)

MHAPS (Mental Health & Addictions Advocacy & Peer Support Trust)

Mika Haka Foundation Charitable Trust

Mix - Connecting, Creating, Living Inc

Motor Neurone Disease Assn of NZ (Inc), The

Mount Cargill Trust, The Muaupoko Tribal Authority Inc Multiple Sclerosis & Parkinsons

Society Of Canterbury Inc Multiple Sclerosis Auckland

(aka Multiple Sclerosis Society of Auckland & The North Shore Inc, The)

Multiple Sclerosis NZ (aka Multiple Sclerosis Society of NZ Inc)

Muscular Dystrophy Association of NZ Inc

Naku Enei Tamariki Inc - Kokiri Marae

National Council of Maori Nurses Inc (aka Te Kaunihera O Nga Neehi Maori O Aotearoa)

Natural Fertility NZ Inc Nazareth Community of Care

(aka Trustees of the Sisters of Nazareth NZ, The)

Nazareth Rest Home Ltd (aka Mary MacKillop Care Ltd)

NEST - Needle Exchange Services Trust Inc

New Dawn Partnership Inc Newtown Union Health Service

Inc NFD - National Foundation for

the Deaf Inc, The Nga Iwi O Mokai Patea Services

Trust (aka Mokai Patea Services Trust)

Ngā Kaitiaki o Te Puna Rongoā o Aotearoa - Māori Pharmacists Assn Inc, The

Nga Kakano Foundation Nga Manga Puriri Nga Ngaru Rautahi O Aotearoa

Inc Nga Tai O Te Awa Trust Board Ngaruahine Iwi Health Service

(aka Ngaruahine Iwi Authority) Ngaruawahia Tu Tangata

Charitable Trust

Ngati Awa Social & Health Services Trust

Ngati Kahu Social & Health Services Inc

Ngati Kapo O Aotearoa Inc (aka Kapo Maori Aotearoa NZ Inc.)

Ngati Maniapoto Marae Pact Trust (Inc), The

Ngati Ruanui Tahua Ltd (t/a Ngati Ruanui Healthcare)

Ngati Whatua O Orakei Health Clinic Ltd (t/a Orakei Health Services)

North Haven Hospice Society Inc

North Waikato Care Of The Aged Trust Board (t/a Kimihia Home & Hospital)

NorthAble Disability Service (aka Northable Matapuna Hauora)

Northbridge Lifecare Trust Northern Cochlear Implant

Trust Northland Disabled Charitable

Trust Number10 Youth One Stop

Shop (aka Southland Youth One Stop Shop Trust Board)

Nurse Maude (aka Nurse Maude Assn, The)

NZ AIDS Foundation (Te Tuuaapapa mate Aaraikore o Aotearoa)

NZ Breastfeeding Authority Inc NZ College of Public Health

Medicine Inc NZ Council of Christian Social

Services (NZCCSS) NZ Disability Support Network

Inc, The (NZDSN) NZ Drug Foundation, The NZ Federation of Disability

Information Centres Inc NZ Institute Of Community

Health Care NZ Psychological Society, The NZ Spinal Trust (2009) NZ Stewart Centre Trust NZ Wheelchair Rugby Assn Inc NZNASCA

(NZ Needs Assessment Service Co-ordination Assn Inc)

NZORD (NZ Organisation for Rare Disorders Trust)

Oamaru Mental Health Support Charitable Trust

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Odyssey House Trust (Auckland)

Optionz Brain Rehabilitation & Recovery Trust

Otago Community Hospice Trust

O'Taihape Maori Komiti Inc Otaki Womens Health Group

Inc Otara Health Charitable Trust Oxford Health Charity Ltd Pablos Art Studio Inc Pacific Health & Social Service

Porirua Inc Pacific Health Service Hutt

Valley Inc Pacific Heartbeat

(part of Heart Foundation of NZ)

Pacific Information Advocacy & Support Services Trust (PIASS Trust)

Pacific Island Advisory & Cultural Trust Inc

Pacific Islands Community Trust, Gisborne

Pacific Trust Canterbury Pacific Trust Otago PACT Group Paediatric Society of NZ Inc,

The Paladin Project Charitable

Trust, The (aka Fuse [Wellington] Charitable Trust)

Palmerston North Women’s Health Collective Inc

Papakura Marae Society Inc Papatuanuku Independency

Trust Parent & Family Resource

Centre Inc Parent To Parent NZ Inc Parkinsons NZ

(aka Parkinsonism Society of NZ Inc, The)

Partners Porirua Trust Pathways Health Ltd Patients First Ltd

(aka General Practice NZ) Paulownia Trust, The People First NZ Inc

(aka Nga Tangata Tuatahi) People Relying On People

(PROP) Inc Personal Advocacy Trust Inc,

The

PHAB Assn (Auckland) Inc (Physically Disabled & Able-Bodied)

Platform Charitable Trust Podiatry NZ Charitable Trust Porirua Union & Community

Health Service Inc Positive Women Inc Poutini Waiora

(aka Rata Te Awhina Trust) Poutiri Trust

(aka Poutiri Charitable Trust) Prader-Willi Syndrome Assn

(NZ) Inc Pregnancy Counselling Services Presbyterian Support

(Upper South Island) Presbyterian Support Central

(aka Family Works/Enliven) Presbyterian Support East

Coast Presbyterian Support Northern

(aka Enliven) Presbyterian Support Otago Inc Presbyterian Support Services

(South Canterbury) Inc Problem Gambling Foundation

of NZ Progress to Health

(aka New Progress Enterprises) Public Health Assn of NZ (Inc),

The Puhinui Homes Trust Board,

The Pukeora Trust, The Purapura Whetu Trust Q.E. Hospital Ltd (aka QE

Health) Quit Group, The Rakaia Medical Centre Trust Ranfurly Care Society Inc Rangitane o Tamaki nui a Rua

Inc Rannerdale War Veterans

Home Ltd Rauawaawa Kaumatua

Charitable Trust Raukawa Charitable Trust Redwood Daycare Trust, The

(aka Redwood Club, The) Refugee Services Aotearoa NZ -

part of NZ Red Cross Inc Refugee Trauma Recovery Refugees As Survivors (RAS) NZ

Trust Royal NZ College of General

Practitioners, The

Royal NZ Foundation of the Blind (aka Blind Foundation)

Royal NZ Plunket Society Inc Ryder-Cheshire Foundation

Manawatu, The Safe Communities Foundation

NZ Safer North Community Trust Salvation Army - Addiction

Services (aka Salvation Army NZ Trust, The)

Selwyn Foundation Group, The SF Aoraki - Supporting Families

Aoraki Inc SF Marlborough - Supporting

Families in Mental Illness SF Nelson - Supporting Families

in Mental Illness Nelson Branch Inc

SF Wairarapa - Supporting Families in Mental Illness (aka Schizophrenia Fellowship Wairarapa Branch Inc)

SF West Coast - Supporting Families in Mental Illness (aka Schizophrenia Fellowship West Coast Inc)

SHINE (Safer Homes in NZ Everyday Inc)

Shore Trust SILC Ltd

(aka SILC Charitable Trust, The) Skylight Trust (aka Children's

Grief Centre Charitable Trust) Sommerville Disability Support

Services (aka Sommerville Centre For Special Needs Wanganui Inc)

South Canterbury Hospice Inc South Seas Health Care Trust,

The (aka South Seas Healthcare Ltd)

South Waikato Pacific Islands Community Services Inc

Southern Hearing Charitable Trust, The

SPAN Support Providers Allied Network Trust

Spectrum Care Trust Board Spina Bifida Association of NZ Sport Canterbury

(aka Canterbury West Coast Sports Trust)

Sport Gisborne Tairawhiti (aka Eastland Sports Foundation Education Trust Board of Trustees)

Sport Northland

11 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

Sport Otago Sport Taranaki

(aka Taranaki Sports Trust) Sport Waikato General

Purposes Trust Sport Wellington Sprott House Trust St Chad's Communication

Centre (aka St Chad's Charitable Trust)

St John (aka Priory in NZ of the Most Venerable Order of the Hospital of St John of Jerusalem, The)

St John of God Hauora Trust Stand Children’s Services Tū

Māia Whānau Standards & Monitoring

Services Board (SAMS) Step Ahead Trust Stepping Stone Trust Stewart Centre @EIT Trust Stroke Foundation Northern

Region Inc Stroke Foundation of NZ Trust,

The Sunshine Service Inc Supporting Families In Mental

Illness NZ Supporting Families in Mental

Illness Waikato Inc.(aka SF Waikato)

Supporting Families in Mental Illness Whanganui (aka Schizophrenia Fellowship Wanganui Branch Inc)

Taeaomanino Trust Taikura Trust Takapau Community Health

Charitable Trust Taranaki Multiple Sclerosis

Society Inc Tararua Community Youth

Services Inc Taumarunui Community Kokiri

Trust Taupo Parents Centre Inc Tauranga Community Housing

Trust Tautoko Services Te Aitanga A Hauiti Hauora Te Anua Nua Trust Te Ao Hou Trust Te Ara Korowai Inc Te Ara Tika Trust Te Aroha & District Health

Services Charitable Trust

Te Awa O Te Ora Trust Te Awakairangi Health Network Te Awanui Hauora Trust Te Awhina Marae O Motueka

Society Inc Te Hauora O Ngāti Rārua Ltd Te Hauora o Turanganui-a-Kiwa

Ltd (t/a Turanga Health) Te Hauora Runanga o

Wairarapa Charitable Trust (aka Te Runanga Hauora o Wairarapa)

Te Kauwhata Retirement Trust Board

Te Kohao Health Ltd Te Kotuku Hauora Ltd Te Kotuku Ki Te Rangi

Charitable Trust Te Kupenga Hauora O Tauranga

Moana Te Kupenga Hauora-Ahuriri Te Kupenga Net Trust Te Kupenga Whakaoti Mahi

Patunga - The National Network of Stopping Violence Services (NZ) Inc

Te Manu Toroa Trust Te Maramatanga Ki Otautahi Te Menenga Pai Charitable

Trust Te Ohu Rata o Aotearoa

- Māori Medical Practitioners Assn Inc (Te ORA)

Te Ora Hou Hawkes Bay Inc Te Oranganui Iwi Health

Authority (aka Te Oranganui Trust Inc)

Te Papa Takaro O Te Arawa Trust

Te Pou o Te Whakaaro Nui Ltd Te Puawaitanga Ki Otautahi

Trust (Otautahi Maori Women's Welfare League)

Te Puawaitanga O Otangarei Healthcare Centre Inc

Te Puke Karanga Hauora Health Clinic

Te Puna Hauora ki Uta ki Tai Tauranga Moana Trust

Te Rangihaeata Oranga Trust, Hawkes Bay Gambling Service

Te Rau Matatini Te Roopu Huihuinga Hauora

Trust Board Te Roopu Mate Huka O

Aotearoa Trust Te Roopu Taurima o Manukau

Trust

Te Roopu Tautoko Ki Te Tonga Inc

Te Rori A Mua Trust Te Runanga O Kirikiriroa

Charitable Trust Te Runanga O Ngati Pikiao

Trust Te Runanga O Raukawa Inc

Hauora Te Runanga O Te Rarawa Te Runanga o Toa Rangatira Inc Te Taiwhenua o Heretaunga

Trust Te Taiwhenua o Te Whanganui

a Orotu Inc Te Tomika Trust Te Waka Whaiora Trust Te Wana Trust Te Whanau Kotahi Te Whanau o Waipareira Group Te Whare Hauora Kaupapa

(aka Otautahi Women's Refuge Inc)

Te Whariki Takapou Te Whatu Manawa Maori-

Tanga o Rehua Trust Board (aka Rehua Marae)

Thrive Teen Parent Support Trust

Tiaho Trust Timaru Mental Health Support

Trust Timaru Needle Exchange Trust

(aka NEXT) Timeout Carers Bureau Ltd Timeout Carers Southland Trust TOA Pacific Inc Toi Tangata

(t/a of Te Hotu Manawa Māori) Tuhoe Hauora

(aka Rakeiwhenua Trust) Tuhoe Matauranga Trust, The Tui Ora Ltd Tuwharetoa Health Charitable

Trust Tuwharetoa Ki Kawerau Health,

Education & Social Services Trust

Uruuruwhenua Health Inc Vaka Tautua Ltd Victim Support (aka NZ Council

Of Victim Support Groups Inc.) Victory Community Health Inc Village Collective

(aka Family Life Education Pasefika Services Trust)

Vision Pacific Waiau Health Trust Ltd

12 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

Waiheke Island Supported Homes Trust (WISH Trust)

Waihopai Runaka Inc Waihopai Whanau Services

(aka Waihopai Hauora) Waikato/ Bay Of Plenty

Division Cancer Society Of NZ (Inc)

Waipuna Hospice Inc Wairoa District Society on

Alcohol & Drugs Misuse Inc (Manaaki House)

Waitakere Health Link (WHL) Inc

Waitaki District Health Services Ltd (aka Oamaru Hospital)

WALSH Trust (aka West Auckland Living Skills Home Trust Board)

Well Women & Family Trust

Wellington Early Intervention Trust

Wellington Free Ambulance Service (Inc)

Wesley Community Action (aka Wesley Wellington Mission Inc)

Whai Manawa Ltd Whaioranga Trust Whakaatu Whanaunga

Trust Whakatohea Maori Trust

Board (aka Te Wheke Atawhai Ltd)

Whakatu Marae Committee Inc

Whānau Support Services & Community Consultants / Quality of Life Community Support Services

Whanganui Community Living Trust

Whanganui Disability Resources Centre Trust

Whangarei Group Riding For The Disabled Inc

White House Inc Society, The

Windsorcare (aka Windsor House Board of Governors)

Wise Trust Women’s Health Action

Trust Woodlands Centre

Charitable Trust Young Men's Christian Assn

Of South & Mid Canterbury Inc (aka YMCA South Canterbury)

Youth Horizons Trust, The Youth Services Trust

Whanganui Youthline Auckland

Charitable Trust YouthLine Otago Inc

Affiliates (114)(Not eligible to vote, but receive communications)

@Heart Abbeyfield NZ Inc Access Homehealth Ltd Agape Fellowship Charitable

Trust Agape Homes Trust, The Agender NZ Inc Allied Health Aotearoa NZ Ara Taiohi Inc Asthma & Respiratory

Foundation of NZ (Inc), Te Taumatua Huango, Mate Ha O Aotearoa Inc (aka Asthma Foundation, The)

Auckland HELP Foundation Auckland Protected

Employment Trust [APET] (aka AttainAble Trust)

Australian & NZ College of Anaesthetists, NZ National Committee

Awhina Whanau Services Inc

Cancer Control NZ (aka NZ Cancer Control Trust)

Cancer Society of NZ Inc Cannons Creek Opportunity

Centre Inc, The Careerforce

(aka Community Support Services ITO Ltd)

Caring Communities Inc Child Connection Trust Child Poverty Action Group

(CPAG) Christchurch PHO Ltd Collaborative for Research

& Training in Youth Health & Development, The

Community Networks Aotearoa Community Networks

Wellington Community Research DEBRA NZ Dietitians NZ

Downtown Community Ministry

Eastern Bay Primary Health Alliance

ENSAF Etihad Noor Saddat Aid Foundation

Every Child Counts Foundation For Youth

Development (Canterbury) Friends Who Care Inc Graeme Dingle Foundation Grey Power Hastings Women's Refuge Inc Health Care Aotearoa Inc Health Literacy NZ Health Services Research

Centre, Victoria University of Wellington

Healthshare Ltd Hearing Assn NZ Inc Hinemanu Solutions Ltd

13 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

Home & Community Health Assn

Hui E! Community Aotearoa Hutt Valley Disabled Resources

Trust Hutt Valley Violence Free

Network [Ahuru Mowai O Te Awakairangi]

Infinite Scope Trust Injury Prevention Aotearoa Insight Endometriosis

(aka Endometriosis Waikato) Ka Hao Te Rangatahi ki te

Matau a Maui Trust Kaiapoi Community Garden

Trust Kauri Trust, The Life Links

(a division of Compensation Advisory Services)

Life Without Barriers NZ Trust, The

LINC Support Services Little Elms Charitable Trust Maatangireia Trust Male Survivors of Sexual Abuse

Trust Mana Whenua Ki Waitaha Maori Women's Welfare

League Inc (Te Ropu Wahine Maori Toko I Te Ora)

Methodist Mission Southern Mosgiel Abilities Resource

Centre Inc Music Therapy NZ Neighbourhood Trust Nga Mataapuna Oranga Ngati Rangi Community Health

Centre (NRCHC) Inc North Otago Asthma Society

Inc Northern Southland Health Ltd

(aka Northern Southland Medical Trust)

NZ Assn of Optometrists NZ Breast Cancer Foundation,

The NZ Federation of Multicultural

Councils Inc

NZ Nurses Organisation NZ Society on Alcohol & Drug

Dependence (NSAD) NZ Sri Lanka Forced Migrants'

Support Group Inc Occupational Therapy NZ -

Whakaora Ngangahau Aotearoa

Ora Toa Mauriora Otago Neighbourhood Support

Charitable Trust Parafed Otago Inc

(aka Dunedin Branch of NZ Paraplegic & Physically Disabled Assn)

Pasifika Futures Ltd (Pacific Whanau Ora Commissioning Agency)

Physiotherapy NZ (aka NZ Society of Physiotherapists Scholarship Trust, The)

Pioneer Opportunities & Resources Trust

Polio NZ Inc Rangitaawa-Munro Whanau

Trust Rape Prevention Education

(aka Rape Crisis [Auckland] Inc) Revive & Thrive Coaching

& Consulting Road Forward Trust Royal NZ Plunket Society Otago

Area Inc Safekids Aotearoa SeniorNet Wellington Inc Simply Dental Special Olympics NZ

Sunshine Trust Switched On. Co Ltd T&T Consulting Ltd Takiri Mai Whānau Ora

Collective Te Ika Whenua Hauora Inc Te Omanga Hospice Trust Te Piki Oranga Ltd Te Puna Oranga Inc Te Roopu Awhina Te Taihere Hauora -

NZ Health Promoting Schools Assn Aotearoa/NZ Inc

Te Waipounamu Māori Leadership Group

Te Whare Tu Taua Ki Waitaha Charitable Trust

Tick for Kids Variety - The Children's Charity

Inc Waiheke Health Trust Waikawa Marae Inc Waimakariri Safe Community

Governance Group WellElder Wellington After Care Assn Inc WellMe, the Wellington Region

ME/CFS Support Group Inc Whangamata Community

Health Inc Whanganui Regional Health

Network (aka WRPHO) Youthline Wellington Inc

Contact informationYou can stay informed about the activities of the Network via:

14 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

E-mail: secretariatngo@gmail.com Website: www.ngo.health.govt.nz Facebook: www.facebook.com/HealthDisabilityNGONZ Twitter: https://twitter.com/NZHealthNGOs Google+: www.google.com/+NGOSecretariatNZ

15 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

Appendix 2: Untapped Potential: Bringing the voluntary sector’s strengths to health and care transformationThis 2016 research report from the United Kingdom identifies key challenges, contributions and opportunities for the charity health sector, which bear remarkable similarities to our New Zealand non-profit community sector.

Key summary diagrams are reproduced here with the permission of the authors and provide useful frameworks to build on in 2017 and beyond. (For the purposes of this overview, the ‘charity’ and ‘non-profit NGO’ terms can be used interchangeably.)

While the value of the non-profit sector is often thought of solely in terms of the role it plays supporting individuals, much of the value it adds is at the system level.

As well as supporting people at each stage of the patient pathway (and often across pathways), the work of the non-profit sector also relieves pressure in the health and care system across settings.

16 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016

The value offered by non-profit NGOs goes beyond simply the activities that they deliver and the outcomes they achieve. Instead, much of the community sector’s value comes from how non-profit NGOs deliver services. This needs to form part of the narrative about the role of non-profit NGOs in health and care.

There are concepts particularly associated with non-profit NGOs that set them apart from other types of providers.

The Untapped Potential report identifies the potential as follows:“If health and social care decision-makers have a clear understanding of the charity sector’s evidence in relation to their priorities, the charity sector can be more involved in developing and delivering better health and care services – which will support better outcomes for people and communities.”

Looking ahead, this is a challenge we can all contribute to addressing here in New Zealand.

These frameworks may be useful to support constructive dialogue with service commissioners and policymakers.

Credit: Untapped Potential, research by NPC commissioned by the Richmond Group of Charities and its partners. Diagrams reproduced with permission. www.thinknpc.org/publications/untapped-potential/

17 NGO Health & Disability Network Annual Report: 2015-16 published 29 August 2016