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New Pathways to Discovery
2013 Summary Annual Report
WHO WE ARE
The Foundation for the National Institutes of Health (FNIH) is an agile
team of biomedical scientists, program managers and fundraisers.
We work with a large network of forward-thinking leaders and
organizations to seek new knowledge and apply it to improve health,
lengthen life and reduce illness and disability. We orchestrate
productive research collaborations, incubate new research models and
channel resources for maximum impact. In all we do, we support the
mission of the National Institutes of Health, the largest biomedical
research agency in the world, as it works to turn discovery into health.
ABOUT THE COVER
Today’s biomedical research, which increasingly looks at diseases and conditions from a molecular level,
is devoting deep attention to pathways and networks such as the neural network depicted here. Just as
biological systems continually create new pathways to make more efficient connections, the Foundation for
the National Institutes of Health is creating new pathways and new inroads for managing the complex
alliances that thread through the research community, both public and private.
Biomedical research never stands still. It is a field driven by the intellect and curiosity of
scientists whose discoveries can enhance and protect the lives of people all over the world.
Today, spurred by knowledge generated by the thousands of studies supported by the National
Institutes of Health (NIH), we are experiencing an awe-inspiring era of scientific breakthroughs
and revolutionary insights into the causes and potential solutions to disease and disability.
Paradoxically, NIH, America’s premier biomedical research institution, continues to cope
with constrained budgets that critically erode our country’s ability to tap this remarkable
opportunity. Industry and academia are not immune from similar challenges. As NIH
Director Dr. Francis Collins wrote in the Washington Post in December 2013, we are “at a
critical juncture—a moment of exceptional opportunities that demand exceptional attention
if their promise is to be fully realized.”
An important game-changing strategy, one that helps redefine the landscape of biomedical
research, one that blends priorities and mission, is helping to address these challenges.
Creating alliances and partnerships that bring all the key players together—government,
industry, the private sector, patient advocates and academic researchers—helps the
biomedical community continue to take advantage of the unprecedented scientific
opportunities now available. The Foundation for the National Institutes of Health (FNIH)
is ideally positioned to create and manage complex collaborative efforts that streamline
pathways to discovery and implementation for progress in pursuit of greater knowledge that
supports the mission of the NIH—“turning discovery into health.”
On these pages you will read about FNIH initiatives to find new biological markers of disease,
to better prevent and treat traumatic brain injuries, to confront malnutrition and intestinal
disorders in children of the world’s developing nations and much more. The FNIH is working
to build a legacy of success. We are deeply proud of our accomplishments over the past
year and we are even more excited about the years to come.
Letter from the Chairman and President
CHARLES A. SANDERS, M.D.
CHAIRMAN
CHARLES A. SANDERS, M.D.
CHAIRMAN
MARIA C. FREIRE, PH.D.
PRESIDENT
MARIA C. FREIRE, PH.D.
PRESIDENT
FNIH At-a-Glance
OUR PARTNERSHIPS
Every day, the FNIH forges new models of
collaboration where all partners can contribute
and thrive. Our collective impact is much
greater than what any single organization
could achieve on its own.
Corporations
Foundations & Nonprofits
U.S. Government
Agencies
WHAT WE DO
The FNIH stands at the center of a wide portfolio of initiatives focused on a shared goal:
advancing biomedical science to improve lives and supporting the mission of the NIH.
RESEARCH PARTNERSHIPS — We develop collaborations with top experts from government,
industry, academia and the not-for-profit sector and provide a neutral environment where we can
work productively toward a common goal. Examples include:
• Portfolio Supporting NIH Research — Supporting and raising funds for multiple projects
initiated by the NIH, while also convening the right partners within and outside of the NIH.
• Global Health — Coordinating and operating more than 50 collaborative projects in over
33 countries, including the Grand Challenges in Global Health (GCGH) supported by the
Bill & Melinda Gates Foundation.
• Biomarkers Consortium — Initiating and managing more than 16 projects funded with over
$50 million in private dollars, designed to discover, develop and qualify biological markers to
support new drug development, preventive medicine and medical diagnostics.
SYMPOSIA, EVENTS & EXHIBITS — We organize and facilitate more than 60 events each year,
creating a forum for innovative thinkers in biomedical sciences to share ideas and engage the public
in disease and health awareness.
FELLOWSHIPS & AWARDS — We provide funding and training for early-career scientists, along
with support and recognition for researchers whose findings have advanced biomedical science.
PROGRAM EXAMPLES
NIH RESEARCH:
The Alzheimer’s
Disease Neuroimaging
Initiative created
a new standard
for cross-sector
collaboration and data
sharing (see page 5).
GLOBAL HEALTH:
Novel approach
to control disease-
spreading mosquitoes
(see page 9).
BIOMARKERS
CONSORTIUM:
The I-SPY 2 Breast
Cancer Trial is
accelerating the
development of
targeted therapies
(see page 5).
EXHIBIT:
The Smithsonian
exhibition, Genome:
Unlocking Life’s Code at
the Natural Museum of
History, opened in June
2013 to celebrate the
10th anniversary of
the sequencing of the
human genome.
AWARD:
The Lurie Prize
in Biomedical
Sciences recognizes
outstanding
achievement by a
promising scientist
age 52 or younger
(see more at fnih.org).
Individuals
Academia
FNIH
New pathways for discovery. Bold new thinking is urgently needed to take on society’s greatest research challenges to improve health. We are uniquely positioned to help. This is true, in part, because we keep good company—we have built collaborations with some of the most advanced thinkers in the world. And, we have the know-how to make these collaborations thrive, creating environments that are open and neutral, garnering the necessary resources and developing new models.
P. 4 2013 Summary Annual Report
A Unifying Force: Forging Uncommon Collaborations
A new collaboration focuses on traumatic brain injury The FNIH has joined with the NIH and the National Football League—a founding
partner, thanks to a $30 million donation—to form the Sports and Health
Research Program (SHRP), which has taken on brain injury as its first challenge,
including the study of the degenerative brain disease known as chronic traumatic
encephalopathy, or CTE.
CTE results from repeated trauma to the brain and can lead to dementia,
aggression, confusion and depression. Evidence of CTE has been found in the
brains of deceased boxers, football players and other athletes. SHRP is bringing
together researchers to define criteria for diagnosing CTE in brain tissue and
also to determine whether the first signs of CTE can be diagnosed earlier in life
through neuroimaging. In 2013, SHRP supported two major cooperative projects
involving top CTE and brain injury researchers to understand long-term changes
in the brain after head injury or concussions. Six additional pilot projects are
working on new ways to diagnose and treat athletes who suffer concussions.
SHRP’s work has critical implications for the 1.7 million Americans who suffer
traumatic brain injuries each year, including amateur and professional athletes
and combat soldiers.
New Pathways to Discovery P. 5
Unprecedented data sharing in Alzheimer’s research As the Alzheimer’s Disease Neuroimaging
Initiative (ADNI) approaches the end of its first
decade, the partnership remains a gold standard for
how academic, industry, advocacy and government
partners can, together, advance biomedical
research. Involving more than 25 partners
coordinated by the FNIH, ADNI created an online,
open-access database and image archive for all
information collected by researchers.
In ADNI phase 1, this included MRI and PET
scans, cerebrospinal fluid and other biosamples
from 1,500 participants. Making the information
available immediately helps speed everyone’s
progress in identifying the biological markers (or
biomarkers) that can help trace the progression
from normal to mild cognitive impairment to
Alzheimer’s Disease—the key to more accurate
diagnosis and early intervention. ADNI data have
provided the basis for numerous clinical trials and
disease-modeling efforts. Several nations are now
using similar approaches.
Phase 2, which will continue through 2015,
follows phase 1 participants and has enrolled
an additional 750 people. The study has also
expanded to include genetic testing, including
whole-genome sequencing for more than
800 participants.
A more efficient model to identify effective breast cancer drugsDrugs such as tamoxifen and Herceptin®
(trastuzumab) target specific characteristics of
breast cancer cells. But they do not help all women.
The I-SPY 2 TRIAL, supported by the FNIH
Biomarkers Consortium, created a way to evaluate
multiple novel anti-cancer compounds in a
single clinical trial structure, evaluating the
effectiveness of the new treatment by measuring
the shrinkage of the tumor prior to surgery. The
trial assigns women with high-risk breast cancers
to new treatments according to specific genetic
or biological traits of that tumor, using adaptive
randomization to improve these assignments
within the trial and hasten the time to market for
successful drugs.
Since 2010, seven compounds from five
pharmaceutical companies have been part of
I-SPY 2, of which two—neratinib and veliparib—
have moved into wider testing (I-SPY 3).
Now a flourishing program, FNIH has turned
I-SPY 2 over to QuantumLeap Healthcare
Collaborative, a not-for-profit working with the
University of California, San Francisco.
P. 6 2013 Summary Annual Report
Channeling Resources: Achieving High-Impact Insights Worldwide
Insights into improving health for children in developing nations Young children in resource-poor areas are often caught in a cycle of inadequate
nutrition and frequent episodes of diarrhea caused by living in unsanitary conditions.
Enteric (intestinal) diseases often undo the benefits of sufficient nutrition, leading to
lifelong consequences, such as stunted growth and impaired cognitive development.
The $40 million MAL-ED Network, a collaborative project supported by the Bill &
Melinda Gates Foundation and managed by the FNIH in collaboration with the NIH
Fogarty International Center, supports researchers at eight field sites in Africa, Asia
and South America, who have been following more than 1,600 children (more than
200 at each site) since birth to understand how enteric pathogens, nutrition and
other environmental factors are linked to physical growth, cognitive development
and vaccine response.
Identifying biomarkers that predict growth faltering and/or impaired cognitive
development will inform development of strategies for timely intervention. For
example, MAL-ED recently found that elevated levels of three substances in the
stool of infants may correlate with poorer growth over the subsequent six months,
a result consistent in all eight sites, despite environmental differences. These
biomarkers may hold promise to help identify children at greatest risk.
New Pathways to Discovery P. 7
New targets for intervening in pulmonary disease Chronic Obstructive Pulmonary Disease
(COPD)—which includes chronic bronchitis
and emphysema—affects more than 12 million
Americans and is the country’s third leading
cause of death. The disease progresses over
time, suggesting that there may be points for
early intervention to prevent full-blown COPD
from developing. However, we do not understand
the disease’s clinical course well enough to
make that happen.
The SPIROMICS (SubPopulations and
InteRmediate Outcome Measures in COPD
Study) program brings together the National Heart,
Lung and Blood Institute, the Food and Drug
Administration, industry partners and multiple
researchers across the country. The study is
now enrolling subjects with COPD at 11 sites
nationally and collecting blood samples, images,
lung function tests and genetic information to
determine disease subgroups and to identify
biomarkers of disease progression and severity
that will be useful as outcome measures in future
clinical trials. FNIH coordinates the SPIROMICS
External Scientific Board and hosted its meeting
in the summer of 2013.
The first medical definition for age-related muscle lossAs people age, they lose skeletal muscle, which
eventually can make them weaker, slower, more
prone to fall and more dependent—at great cost
to the healthcare system and society in general.
This condition, called sarcopenia, affects nearly
1 in 3 people over 60 and half of those over
age 80. At the moment, there is no standard for
the diagnosis of sarcopenia, which limits our
ability to understand how it develops and how it
might be treated or prevented.
The FNIH Biomarkers Consortium Sarcopenia
Project recently generated the first-ever, evidence-
based definition for sarcopenia, bringing together
the National Institute on Aging, the National
Institute of Arthritis and Musculoskeletal and Skin
Diseases, academic institutions, the Food and Drug
Administration, advocacy groups and five industry
partners to analyze data from nine long-term
epidemiologic studies involving more than 10,000
healthy people.
FNIH presented the definition in 2012 at a
Sarcopenia Consensus Summit and five papers will
be published in the spring of 2014. Approaching
sarcopenia as a medical condition, rather than a
natural outcome of aging, holds great promise for
improving the lives of older people.
P. 8 2013 Summary Annual Report
Transformative Models: Shaping the Future of Biomedicine
Novel approaches to evaluate urgently needed antibiotics The threat posed by bacterial infections grows, as more strains develop
resistance to the current arsenal of antibiotics. Yet, in 2010 regulatory approval
for new antibiotics stalled, largely because the endpoints (outcome measures)
used to judge effectiveness have been based on antiquated studies.
The FNIH Biomarkers Consortium helped establish consensus on what
endpoints should be used in drug trials for Community-Acquired Bacterial
Pneumonia (CABP) and Acute Bacterial Skin and Skin Structure Infections
(ABSSSI). Partners include the Food and Drug Administration, the NIH’s National
Institute of Allergy and Infectious Diseases, the Infectious Diseases Society of
America, pharmaceutical companies, biotechnology companies and academic
researchers. The team identified two patient-reported outcome measures—
symptom improvement within 3 to 5 days for pneumonia and control of lesion
spread within 2 to 3 days for skin infection—that have been incorporated into
regulatory decision-making criteria and clinical trials.
One new antibiotic has been approved for pneumonia and three for skin
infection have cleared phase III testing—the result of well-designed clinical trials
that drew on FNIH work. A full set of recommended outcome measures is under
development, with completion expected by mid-2014.
New Pathways to Discovery P. 9
A biological approach to stopping dengue fever Found in 100 countries, with no vaccine and no
cure, the mosquito-borne viral disease known as
dengue fever is a significant global health threat.
Using insecticides to control populations of the
female Aedes aegypti mosquito, which spreads the
virus, has failed to stop dengue; in fact, incidence
has increased 30-fold in the past 50 years.
The FNIH’s Grand Challenges in Global
Health, an initiative funded by the Bill & Melinda
Gates Foundation, is supporting a global network
of researchers who have found that infecting the
mosquitoes with Wolbachia, a common
bacterium found in many insects, can reduce
mosquitoes’ ability to transmit the virus.
The method has shown great promise
through a series of test releases in Australia
and additional trials are underway in Vietnam,
Indonesia and Brazil. Eliminate Dengue is one
of several projects that are part of the FNIH’s
Vector-based Control of Transmission: Discovery
Research (VCTR) program, an offshoot of the
Grand Challenges Initiative.
New inspiration for research on gender and Alzheimer’sIn early 2013, the FNIH came together with the
Geoffrey Beene Foundation Alzheimer’s Initiative,
to initiate a challenge to researchers worldwide,
to better understand gender-based differences in
the early cognitive decline that leads to Alzheimer’s
Disease. Women have a greater risk of developing
Alzheimer’s, partly because they live longer than
men; however, we know little else about differences
in how the disease affects the sexes.
Researchers were invited to “mine the
data”—including those available through the
Alzheimer’s Disease Neuroimaging Initiative
(ADNI)—and present their own hypotheses. In
November 2013, after a strict scientific and
technical evaluation, Enrico Glaab, Ph.D., a
researcher at the Luxembourg Centre for Systems
Biomedicine, was selected as the winner. He
received $50,000 to continue his study of USP9Y,
a protein that is expressed at different levels in
men’s and women’s brains and may afford men
some protection. The decision was so close,
however, that one of the contest’s sponsors,
Sanofi, offered $50,000 to fund the second-place
winners, Kimberly Glass, Ph.D., and John
Quackenbush, Ph.D., of the Dana-Farber Cancer
Institute.
P. 10 2013 Summary Annual Report
2013 REVENUES
Contributions ____________ 95%
Other Revenue ____________ 3%
Grants ____________________ 2%
2013 EXPENSES
Research Partnerships ___ 90%
Management &
Fundraising _______________ 6%
Education, Events
& Awards _________________ 4%
Financial Highlights
REVENUE AND SUPPORT 2013 2012
Contributions $57,747,975 $57,116,586
Grants 887,026 1,338,963
Administrative fee 333,361 260,551
Government appropriations 500,000 514,000
Investment earnings 337,389 247,254
In-kind contributions 589,208 250,927
Donated services 43,000 41,000
Other revenue 150,775 343,501
Reduction of future pledges (214,788) (1,275,000)
TOTAL REVENUE AND SUPPORT $60,373,946 $58,837,782
EXPENSES AND CHANGES IN NET ASSETS
PROGRAM SERVICES
Fellowships and training programs $1,381,328 $1,325,295
Memorials, awards and events 1,299,278 1,246,180
Capital projects 38,754 35,100
Research partnerships 55,290,526 45,183,190
TOTAL PROGRAM SERVICES $58,009,886 $47,789,765
SUPPORTING SERVICES
Management and general $3,352,175 $3,105,327
Fundraising 104,008 145,093
TOTAL SUPPORTING SERVICES $3,456,183 $3,250,420
TOTAL EXPENSES $61,466,069 $51,040,185
CHANGE IN NET ASSETS $(1,092,123) $7,797,597
NET ASSETS BEGINNING OF YEAR 92,230,541 84,432,944
NET ASSETS AT END OF YEAR $91,138,418 $92,230,541
The Foundation's audited financial statements are available on request.
Our Donors
New Pathways to Discovery P. 11
$5,000,000+
Bill & Melinda Gates Foundation 12
McKnight Brain Research Foundation 8
$2,500,000 – $4,999,999
Genentech, Inc. 7
Pfizer Inc 16
$1,000,000 – $2,499,999
Amgen, Inc. 11
Eli Lilly and Company 14
Johnson & Johnson 13
Merck Sharp & Dohme Corp. 16
Novartis Pharmaceuticals Corporation 14
$500,000 – $999,999
Boehringer Ingelheim Pharmaceuticals, Inc. 5
Bristol-Myers Squibb 14
National Institutes of Health 18
Newport Foundation
Pharmaceutical Research and Manufacturers of America 9
The Safeway Foundation 3
Sanofi 12
Takeda Pharmaceutical Company Limited 5
$250,000 – $499,999
AbbVie Inc.
Alzheimer’s Association 9
Biogen Idec 3
The Coca-Cola Company 6
GlaxoSmithKline 15
HSNi LLC
$100,000 – $249,999
Arthritis Foundation, Inc. 4
AstraZeneca LP 12
Daiichi Sankyo, Inc. 4
Eisai Inc. 7
Flexion Therapeutics, Inc. 2
Forest Laboratories, Inc. 3
Foundation for Burkitt Lymphoma Research
Fujirebio 2
Grifols 2
Healthcare Information and Management Systems Society 2
Ikaria, Inc.
Institut De Recherches Internationales Servier 4
Ann Lurie 2
Mr. and Mrs. Joel S. Marcus 3
Merck Serono
Nippon Zoki Pharmaceuticals Co., Ltd. 2
Novo Nordisk A/S 3
The Bernard Osher Foundation 5
Piramal Imaging, GmbH 3
Roche 6
George and Trish Vradenburg 2 Co-Founders USAgainst Alzheimer’s
$50,000 – $99,999
Actelion Pharmaceuticals Ltd. 3
Alexandria Real Estate Equities, Inc.
American Association for Dental Research
AXA Research Fund 2
Dairy Research Institute 3
Geoffrey Beene Foundation Alzheimer’s Initiative
All Foundation for the NIH (FNIH)
donors play a critical role in providing the
resources that are vital to our success.
Unrestricted gifts allow us the flexibility
to place them where they are most
needed, from supporting core operations
to developing new partnerships and
emerging program ideas. Donors also can
choose to restrict their gifts to one area
of interest, such as a biomedical research
program; a fellowship, lecture or
symposium that trains scientists and
helps them build their careers; or a
specific laboratory or area of scientific
research at the NIH.
The FNIH manages all private gifts
with care and efficiency. Of every
dollar spent, 94 cents are used to
support programs and just six cents
for administration and fundraising.
We gratefully acknowledge the
following donors and partners who made
gifts or pledges of $500 or more during
2013. Every attempt is made to list donors
according to their wishes. Please call
301.402.5311 if you have any questions.
Our Donors
[x] Superscript indicates number of years of consecutive giving.For a more complete list of donors, funds and endowments,
visit fnih.org/about/foundation/annual-reports
In 2013, FNIH received its seventh
consecutive four-star rating by Charity
Navigator. This top ranking recognizes
that we execute our mission in a
“fiscally responsible way, and
outperform most other charities.”
Our Donors
P. 12 2013 Summary Annual Report
Howard Hughes Medical Institute 2
New England Biolabs 5
Perrigo Company plc 2
PhRMA Foundation 6
Promega Corporation 3
Regeneron Pharmaceuticals, Inc.
Mrs. Lily Safra 12
$25,000 – $49,999
American Society for Bone and Mineral Research
Bausch & Lomb Incorporated 3
Bayer HealthCare Pharmaceuticals Inc.
BioClinica, Inc. 4
Biotechnology Industry Organization 6
Colgate-Palmolive Company
Danskin
James H. and Christina W. Donovan 2
GE Healthcare
Iconix Brand Group In honor of Ari Goldman
IXICO Ltd. 2
Howard H. and Jacqueline K. Levine 3
Meso Scale Diagnostics, LLC. 5
Mr. and Mrs. Paul M. Montrone 16
NeuroRx 2
Otsuka American Pharmaceutical, Inc.
Andrew & Lillian A. Posey Foundation
Bill and Giuliana Rancic
SoBran, Inc. 3
SYNARC Inc. 6
Trius Therapeutics, Inc. 3
$10,000 – $24,999
Janet B. Abrams 5 In memory of Bernard Abrams
Alzheimer’s Drug Discovery Foundation
American College of Medical Genetics and Genomics
AMS Foundation for the Arts, Sciences and Humanities 9
Basilea Pharmaceutica International Ltd. 3
Peter D. and Karen N. Bell 2
Judy Belous In memory of Effie Loomis
Buffy and William Cafritz 10
Chiesi Farmaceutici S.p.A. 4
Timothy Choate
Brad Cox In honor of Ari Goldman
Crescendo Bioscience, Inc. 2
Friends of Cancer Research 4
Miles Gilburne and Nina Zolt 3
Hogan Lovells US LLP In honor of John Porter
Estate of Jack Gramlich 3
Freda C. Lewis-Hall, M.D., F.A.P.A.
LUNGevity Foundation
Mars, Incorporated
Steve and Sherry Mayer
Mitsubishi Tanabe Pharma Corporation
Drs. Martin J. and Ann Murphy 8
In honor of Charles and Ann Sanders
Myriad RBM
Nabriva Therapeutics AG 3
Nestlé USA Inc.
Bob and Sally Newcomb 3
Nichols Family 4
OfficeMax Incorporated
Steven and Jann Paul 3
PepsiCo, Inc.
RottaPharm I Madaus 3
Dame Jillian Sackler 11
Dr. and Mrs. Charles A. Sanders 17
Jane M. Sayer, Ph.D. 12
Dr. Ellen V. and Mr. Gerald R. Sigal 11 In honor of John Porter
Simon Property Group 4
The Association for Frontotemporal Degeneration
United States Pharmacopeial Convention 3
USAgainst Alzheimer’s Network
$5,000 – $9,999
Anonymous
American Diabetes Association 4
American Orthopaedic Society for Sports Medicine
Luther W. Brady, M.D. 7
California Dairy Research Foundation
Esther and James H. Cavanaugh 6
Centre for Proteomic & Genomic Research
Durata Therapeutics, Inc.
Foundation for Health Improvement and Technology
Marjorie D. Fuller In memory of Jean Fuller
General Mills, Inc.
Carol-Ann Harris
Laura and Chris Hazzard 5
In memory of Richard Curtin
Mike and Beth Hunkapiller 2
Kite Pharma, Inc. 2
Barbara Lazio In memory of Carol Scher
Kelly and Adam Leight
Metabolon, Inc.
[x] Superscript indicates number of years of consecutive giving.
Our Donors
New Pathways to Discovery P. 13
Dr. and Mrs. Garry A. Neil 2
Erik F. Neva 2
Kristin Neva 2
Radiological Society of North America 5
Research!America In honor of John Porter
Robert E. Roberts, Ph.D. 5 In memory of Barbara Roberts
Nina Solarz 4 In memory of Stephen Solarz
University of British Columbia 3
Marica and Jan Vilcek 2
Steve and Chris Wilsey 5
Drs. Elias A. and Nadia Zerhouni
$2,500 – $4,999
Anonymous
Alliance for Aging Research 2
Ronald and Barbara Berke 4
In memory of Jennifer Berke
Gregg Bevensee 4
ChemoCentryx, Inc.
Anthony S. Fauci, M.D. and Christine Grady, Ph.D.
Jim Fisher
Joseph H. and Cheryl L Kott In honor of Temptime’s 25th anniversary
Donna Nichols 4
PNC Foundation
Lenore R. Salzman 16
SOHO Publishing Company 2
SunTrust Banks, Inc. 3
Samuel O. Thier, M.D. and Paula Thier 8
Alexander Trebek
Ullmann Family Foundation 5
Zerhouni Group LLC
$1,000 – $2,499
Anonymous (3)
Ronald A. and June L. Ahrens 2 In honor of Xavier Martin
Alnor Oil Company
Dr. and Mrs. William G. Barsan 4
Raghu Bellary
BH III LLC In honor of Ari Goldman
Dr. Kathy and Mr. Zachary T. Bloomgarden 5
Mr. Charles Cerf and Dr. Cynthia E. Dunbar 3
Mark Chee, Ph.D. 2
Joe Bergera and Alice Cho
Thomas and Corrie Colter In memory of Malcolm McDuffie
Stewart Daniels 5
Robert and Betsey Drucker 2
Marianne E. Durkin In honor of Miller & Rider Group
Marilyn B. Einstein and Steven P. Sim
Jack A. Elias, M.D.
The Essence of Red Committee 3
Shirley Evans In memory of Eleanor Frierson
Ronald G. Evens, M.D. 7
In honor of John Gallin
Joseph M. Feczko, M.D. and Leighton K. Gleicher 6
James M. Felser, M.D. 4
Shelagh Ferguson-Miller, Ph.D.
Drs. Ernesto I. and Maria C. Freire 2
Paul J. Gattini 2
Stanley and Eve Geller 3
Peggy J. Gerlacher 16
In memory of John Gerlacher
Eli Glatstein 10
Jane O. Graham 3
Margaret Grieve In honor of Nina Solarz’ birthday
Gary and Lynn Grossman 3
Kay A. Hart 3
Harley Anderson Haynes, M.D. 4
Eric Hirschhorn and Leah Worthham 3
Eva C. Holtz 4
IQ Solutions 4
Kalidex Pharmaceuticals, Inc.
Bernard H. and Georgina E. Kaufman 4
U.S. Senator Amy Klobuchar
Sherry Lansing and William Friedkin
Jonathan D. Levine 3
Jean Linton 11
Edison T. Liu, M.D., Ph.D.
John Madden
Debbie Magids In honor of Ari Goldman
Margaret and James Malaro
Martin Goldman, L.L.C. In honor of Ari Goldman
Ruth O. Mutch
Amy and John Porter 14
Sunny Raspet
Charles P. Rogers Beds
Robert and Marjorie Rosenberg 3
Estate of Frances H. Saupe 6
Robert C. and Dawn W. Schiff
Dr. and Mrs. Richard B. Silverman
Mark A. Spiteri 7
Russell W. Steenberg and Patricia Colbert
Lynda Swann In honor of Lanier Swann
Our Donors
P. 14 2013 Summary Annual Report
Temptime Corporation 3
The Drs. Tremoulet 5
Jon and Kristin Vaver 6
Howard M. and Nancye C. Weisberg 5
Dr. Ann F. Welton 6
Stephanie J. Whang, M.D.
Michael and Lisa Nichols Whitten
Stewart K. Wilson 2
$500 – $999
Anonymous (3)
Drs. Bryan and Donna Arling 9
Association of American Medical Colleges 2 In memory of Rod Ulane
Dr. and Mrs. Paul A. Berg
Robert A. Bergman 3
In memory of Arthur Schatzkin
Berroco, Inc. 2
Bnai Mitzvah Project 2013
Dan Balliet and Jan Carlson 5
Susan Castle In honor of Ari Goldman
Classic Elite Yarns
The Community Foundation for Greater Atlanta, Inc.
Janet S. DeGilio 4
James and Karen Gavic 4
Michael and Linda Goone
Ken and Yvette Guidry 7
Andrea Haslinger In honor of Gregory Papp and Lindsay Bailey
Henry Haslinger In honor of Gregory Papp and Lindsay Bailey
Amy W. Hawthorne
Brian J. and Darlene Heidtke
Abigail Holtz
Arthur C. and Susan C. Horowitz 2
David Horowitz In honor of Ari “Prefontaine” Goldman
Jimmy Beans Wool 2
Max Kantzer In memory of Henry Kantzer & In honor of Ari Goldman
Charles E. Kaufman Medical Fund 2
Ronald L. Krall, M.D. 2
In memory of Vivian Krall
Jeremy Krasner 2
Arnold Lakind
Erica Joyce Lam 2
Dr. and Mrs. Ronald W. Lamont-Havers 4
Wei Li
Russell C. Libby, M.D. and Mary Schmidt Libby, M.D. 2
London OpCo LLC
Mattlin Foundation 5
Charles McCormick 4
Luke McCrone 2
The McDuffie Family In memory of Malcolm McDuffie
Reverend and Mrs. Robert H. Naylor 4
New Belgium Brewing Co., Inc.
Northrop Grumman Corporation
Glen and Beverley Norton
Dr. Gilbert S. Omenn and Mrs. Martha Darling 3
Matthew W. O’Neill 5
Matt and Robyn Nichols Painter 2 In memory of Jay Nichols
George Rudman In honor of Ari Goldman
Dr. Michael Ryan and Dr. Linda Ryan
Howard K. Schachman 9
In memory of Ethel Schachman
Charles and Chris Sellers
Danny Shively 5
Walt and Rachel Sirene 2
Skacel Collection 2
Richard I. and Anastasia Smith
Shannon Stafford
Marta M. Ulane & Family In memory of Rod Ulane
Richard and Tracy Nichols Waggoner In memory of Jay Nichols
David Wholley and Mary M. O’Crowley 2
Fred C. Williamson
Matthew Zimmerman 4
[x] Superscript indicates number of years of consecutive giving.
New Pathways to Discovery P. 15
Board of DirectorsCharles A. Sanders, M.D. (Chairman)
Retired Chairman and CEO, Glaxo, Inc.
Mrs. William McCormick Blair, Jr. (Secretary)
Director Emeritus, Albert and Mary
Lasker Foundation
Kathy Bloomgarden, Ph.D.
Chief Executive Officer, Ruder Finn, Inc.
Mrs. William (Buffy) N. Cafritz
Trustee, The John F. Kennedy Center for
the Performing Arts
Mr. James H. Donovan
Partner, Goldman Sachs & Company;
Adjunct Professor, University of Virginia
Joseph Feczko, M.D.
Retired Senior Vice President & Chief
Medical Officer, Pfizer Inc.
Maria C. Freire, Ph.D.
President and Executive Director,
Foundation for the National Institutes
of Health
Mr. Miles Gilburne
Managing Member, ZG Ventures, LLC
Paul L. Herrling, Ph.D.
Chairman, Novartis Institute for
Tropical Disease
Ronald L. Krall, M.D.
Former Senior Vice-President and
Chief Medical Officer, GlaxoSmithKline
Ms. Sherry Lansing
Chief Executive Officer, The Sherry
Lansing Foundation
Freda C. Lewis-Hall, M.D.
Chief Medical Officer, Senior Vice President,
Pfizer Inc.
Edison T. Liu, M.D., Ph.D.
President and Chief Executive Officer,
The Jackson Laboratory
Ms. Ann Lurie
Lurie Holdings, Inc., Ann & Robert H.
Lurie Foundation
Mr. Joel S. Marcus
Chairman, CEO and Founder,
Alexandria Real Estate Equities, Inc.
Mr. Steven C. Mayer
Former CEO and Co-Founder,
CoGenesys, Inc.
Paul M. Montrone, Ph.D. (Treasurer)
Chairman, Perspecta Trust
Martin J. Murphy, Jr., Ph.D.
Chairman & Chief Executive Officer,
AlphaMed Consulting, Inc.
Garry A. Neil, M.D.
Global Head R&D, Medgenics, Inc.
Steven M. Paul, M.D.
Director, Helen and Robert Appel
Alzheimer’s Disease Research Institute,
Weill Cornell Medical College
The Honorable John Edward Porter (Vice Chairman for Policy)
Hogan Lovells US, LLP
Mrs. Jillian Sackler, D.B.E.
President and CEO, AMS Foundation for
the Arts, Sciences and Humanities
Mrs. Lily Safra
Chairwoman, The Edmond J. Safra
Philanthropic Foundation
Ellen V. Sigal, Ph.D.
Chairperson, Friends of Cancer Research
Solomon H. Snyder, M. D. (Vice Chairman for Science)
Distinguished Service Professor of
Neuroscience, Johns Hopkins University
School of Medicine
Ms. Nina K. Solarz
Former Executive Director of Peace Links
and the Fund for Peace
Samuel O. Thier, M.D.
Professor of Medicine and Health Care
Policy, Emeritus, Harvard Medical School,
Massachusetts General Hospital
Anne Wojcicki
Chief Executive Officer and Co-Founder,
23andMe
HONORARY DIRECTORS
Luther W. Brady, M.D.
Distinguished University Professor,
Drexel University College of Medicine
Patrick C. Walsh, M.D.
University Distinguished Service
Professor of Urology, Johns Hopkins
Medical Institutions
DIRECTOR EMERITUS
Paul Berg, Ph.D.
Cahill Professor in Biochemistry (Emeritus),
Stanford University School of Medicine
EX-OFFICIO
Francis S. Collins, M.D., Ph.D.
Director, National Institutes of Health
Margaret A. Hamburg, M.D.
Commissioner, Food and Drug
Administration
Our Staff
PRESIDENT’S OFFICE
Maria C. Freire, Ph.D.
President and Executive Director
Ann Ashby, M.B.A.
Deputy Executive Director
Andrea Baruchin, Ph.D.
Senior Advisor to the President
Erika Tarver
Senior Project Manager
Felicia Gray
Executive Assistant
Liz Johns
Executive Assistant
Kathy Guire
Operations Officer
FINANCE
Julie Tune, C.P.A., C.F.E.
Chief Financial Officer
Eva Coyne, C.P.A.
Controller
Cathy Martin, C.P.A.
Senior Accountant
Noemi B. Rodriguez
Staff Accountant
Peggy J. Gerlacher
Operations Associate
EVENTS AND MARKETING
Laura Payne
Director
Jolie Mak
Events Manager
Jasmin Miles
Senior Events Coordinator
Andrea Hickman
Events Coordinator
Kai Yee
Digital Administrator
DEVELOPMENT
Julie Wolf-Rodda, M.A.
Director of Development
Renee Bullion, M.P.A.
Partnership Development Officer
Elizabeth Dobbins
Partnership Development Officer
Rob Drucker, J.D., M.S.
Partnership Development Officer
Caite Gilmore
Partnership Development Officer
Jennifer Ilekis, M.P.A.
Partnership Development Officer
Paris L.A. Moore
Partnership Development Officer
Asante Shakuur
Partnership Development Officer
Will Tolentino
Development Systems Administrator
Anne Bradfield
Development Assistant
Will Whitaker
Development Intern
SCIENCE ADMINISTRATION
Stephanie James, Ph.D.
Director of Science and Director, Grand
Challenges in Global Health
Michael Gottlieb, Ph.D.
Deputy Director of Science
Dennis Lang, Ph.D.
Senior Program Coordinator, MAL-ED
(Contractor)
Karen Tountas, Ph.D.
Scientific Program Manager, MAL-ED
Susan Powell, M.T.S.
Senior Grants Manager
Susan Wiener, M.A.
Senior Project Manager
Gail Levine, M.A., C.R.C.C.
Scientific Program Manager
Anna Sambor, M.S.
Program Manager
Tiffany Francis
Executive Assistant
BIOMARKERS CONSORTIUM
David Wholley, M.S.
Director
Maria Vassileva, Ph.D.
Senior Scientific Program Manager,
Metabolic Disorders
Sonia Pearson-White, Ph.D.
Scientific Program Manager, Cancer
Judy Siuciak, Ph.D.
Scientific Program Manager, Neuroscience
Steven C. Hoffmann
Scientific Program Manager, Inflammation
and Immunity
Jessica Ratay, M.S.
Clinical Project Manager
Cheryl Melencio
Executive Assistant
PROFILE
The Foundation for the National Institutes of Health procures funding and
manages alliances with public and private institutions in support of the
mission of the NIH, the premier medical research agency. The Foundation,
also known as the FNIH, works with its partners to accelerate biomedical
research and strategies to fight against diseases in the United States and
across the world. The FNIH organizes and administers research projects;
supports education and training of new researchers; organizes educational
events and symposia; and administers a series of funds supporting a wide
range of health issues. Established by Congress in 1996, the FNIH is a
not-for-profit 501(c)(3) charitable organization. For additional information
about the FNIH, please visit www.fnih.org.
PHOTO CREDITS
Page 1: Maria C. Freire, Ph.D. by Robert Burke Photography
Page 4: Vernon Doucette for Boston University Photography
Page 5, left: National Cancer Institute
Page 6: Dennis Lang, FNIH
Page 8: Centers for Disease Control and Prevention Public Health Image Library
Page 9, left: Eliminate Dengue
Page 9, right: courtesy Dr. Glaab
DESIGN
Rector Communications, Inc., Philadelphia, PA | www.rector.com
Foundation for the National Institutes of Health
9650 Rockville Pike
Bethesda, MD 20814-3999
fnih.org
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LOCATION
(DOES NOT
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