National Core Indicators

Overview for the State of Washington

Lisa A. Weber, Ph.D.Division of Developmental Disabilities

What has NCI Accomplished?

Nationally recognized set of performance and outcome indicators for developmental disabilities service systems

Reliable data collection methods & tools (consumer & family surveys, provider survey, system data)

Baseline and trend data at the state & national level

Participating NCI States

NDAK

HI

WA

OR

ID

MT

WY

ND

SD

NE

CAUT

NV

AZ

CO

NM

KS

OK

TX

MN

IA

WI

IL IN

MO

AR

MI

OH

KY

TN

MS

LA

AL GA

FL

SC

NC

VAWV

PA

NY

MEVTNH

MD

DC

DE

NJCT

MA

RI

PR

Orange County

NCI Structure

Currently 21 states plus Orange County Human Services Research Institute (HSRI) provides technical assistance under subcontract to the National Assoc. of State Directors of Developmental Disabilities Services (NASDDDS)Subcommittees address specific issuesMeet with full steering committee annuallyFunded primarily through state participation fees WA State has used the UW Center for Disability Policy & Research (CDPR) to collect consumer and family data.

Where does NCI fit in?

A major component of our state’s Quality Assurance PlanPrimary method for obtaining comprehensive and statistically reliable feedback from our providers and a representative sample of the persons we serveCross-State comparison dataMonitor system impacts as we implement service system changes

What are the data sources?

Consumer SurveyFamily Survey Adult Family Survey (at home, 18+) Family Guardian Survey (out-of-home) Children Family Survey (at home, <18)

Provider Survey Staff Stability Board Representation

System Data Incidents Mortality

What are the Core Indicators?

Consumer Outcomes: Employment (earnings, hours worked) Community Inclusion Choice and Decision-making (personal

choices, support-related choices) Self-determination (new) Relationships Satisfaction (with home and job)

What are the Core Indicators?

System Performance Service Coordination Family and Individual Participation (on

boards of directors) Utilization (types of services provided) Financial Level of Effort Cultural Competence (access to

supports) Access (relative to population)

What are the Core Indicators?

Health, Welfare, and Rights Safety (mortality, injuries, crimes) Health (routine exams) Medications Wellness (new) Restraints Respect/Rights

What are the Core Indicators?

Staff Stability and Competence Staff Stability (turnover and vacancy rates,

length of employment) Staff Competence (new)

What are the Core Indicators?

Family Indicators Information and Planning Choice & Control Access & Support Delivery Community Connections Family Involvement Satisfaction Family Outcomes

NCI in Washington State

Participation since Phase II (2000)

Even phases – Consumer Interviews (except Phase VI), Adult Family Survey, Family/Guardian Survey

Odd phases – Child/Family Survey

Every year – Provider Survey, System Data

Additional Indicators in WA

Case Management/Service Coordination

Individual Providers

Self-Determination

Residential and Employment/Day Program Provider Wage/Benefits

What do we do with the data?

Results shared with DDD management, external stakeholders and advisory groupsA group of DDD employees, including both headquarters and regional staff reviews the results in detail and has put together a series of recommendations for the division directorDevelopmental Disabilities Council (DDC) will do a three-year project to gather groups of people who are the subject of the reports and ask them to make recommendations to the division.

How is NCI data used?

Setting goals and strategic planning (e.g., management performance agreements, regionally set goals, quality improvement plans)

Budget requests to Governor and legislators (e.g., to illustrate our need for more case managers and service funding, to support requests for provider rate increases)

Helps shape data reporting systems (e.g., incidents, mortality)

National Core Indicators

Selected Results

Provider Survey: Staff Stability

Staff Turnover in Agencies Providing Residential Supports (FY2001)

54.1%

52.2%

49.0%

39.0%

32.6%

0% 10% 20% 30% 40% 50% 60%

IN

WY

WA

RCOC

HI

Board Representation (FY2001)

0%

0%

2%

2%

3%

9%

27%

25%

24%

28%

15%7%

0% 5% 10% 15% 20% 25% 30%

DE

HI

WY

IN

WA

RCOC

Average % Voting Members

% family

% consumers

Employment (earnings, hours worked) --FY2001

Consumers & Families –Areas of Strength

Satisfaction with Services Received 92% of consumers are satisfied with where they live 94% of consumers are satisfied with their work/day

program

Courtesy & Respect 94% report that most day support staff treat them with

respect 93% report that most residential support staff treat them

with respect 92% of families report that DDD staff are generally

respectful and courteous

Consumers & Families --Potential Areas for Improvement

Case Management Only 49% of consumers report that their case manager

asks them what’s important 65% of families providing care for the consumer can

contact their case manager whenever they want to

Access to Services 47% of families get the services and supports they

need 28% of consumers report that needed services were

not available

Next steps…

Complete a baseline report with recommendations.Review internal workgroup and DDC recommendationsDevelop an action plan and implement selected recommendationsMonitor effect of service system changes during future data collection phases

For More Information

Reports with cross-state comparison data are available on HSRI’s website: www.hsri.orgResults for additional indicators added locally can be viewed from reports on the CDPR website at depts.washington.edu/cdprWA State Updates (select Projects)www1.dshs.wa.gov/dddContact: weberla@dshs.wa.gov