naaccr irb approved studies · lisa paddock passive ... 16‐09 1995‐2013 analysis of cancer...

NAACCR IRB Approved Studies

Active Studies:

05‐13 1995‐2002 2006‐Cutaneous malignant melanoma (CMM): Differences in epidemiology between U.S. adults and children, 1995‐2002

Lisa Paddock Passive

07‐05 continuous 2007 ‐ Projecting estimates of cancer incidence for every US state both spatially and temporally. [This is an annual project for American Cancer Society's Facts and Figures.]

Rebecca Seigel (formerly Ahmedin Jema Passive

13‐01 1998‐2010 Delayed for Survival Data 2013‐Ovarian cancer mortality and survival trends in relation to changing patterns of menopausal hormone therapy in the United States ‐ Delayed for Survival Data

Hannah Yang and Mark Sherman Active

13‐02 1998‐2010 2013‐Trends in hormone related female cancer incidence in relation to changing patterns of menopausal hormone therapy in the United States

Mark Sherman and Hannah Yang Passive

13‐05 2005‐2009 2013‐Health insurance and cancer stage at diagnosis Xuesong Han Active

13‐09 1995‐2011 2013‐The burden of cancer in the USA in 2012 by race/ethnicity

Joannie Lortet‐Tieulent (ACS) Passive

Friday, October 13, 2017 of 24

14‐03 1995‐2012 2014‐Geographic clustering of invasive melanomas in the United States

Phyllis Gimotty (University of Pennsylva Active

14‐10 1995‐2011 Examining cancer disparities in the Philadelphia Metro Area (New Jersey, Pennsylvania and Delaware)

Kevin Henry Active

15‐05 1995‐2012 Testicular cancer incidence in men aged 50 years and older Armen Ghazarian Passive

15‐06 1995‐2012 Assessing the relationship between rural‐urban residence and cancer using the NAACCR urban‐rural indicator codes

Kevin Henry, Recinda Sherman Passive

15‐10 1995‐2012 Rates of childhood cancers in the US Meredith Shiels, NCI Passive

15‐11 1995‐2012 The association between the incidence of Chronic Lymphocytic Leukemia among adults in the US and rural‐urban residence

S. Cristina Oancea, NDSCR Passive

15‐13 ON HOLD not yet approved by RApR; waiting response from researcher

Chaturvedi ON HOLD RE


15‐14 1995‐2013 Socioeconomic status and variaton in laryngeal cancer stage at diagnosis and survival: a cross‐country comparison

Eshwar Kumar Active

16‐01 1995‐2013 Trends in incidence rates of biliar tract cancers by age group and cancer site among adults in North America and associations with trends in obesity rates

Alison VanDyke Active

16‐02 1995‐2013 Trends in incidence of esophageal and gastric cancer by histological/anatomical subtype and race in the US

Jemal Passive

16‐03 1995‐2013 Incidence of hepatocelluar carcinoma and intrahepatic cholangiocarcinoma by racial/ethnic group in the US

Katherine McGlynn Passive

16‐04 1995‐2013 Imputing hormone receptor and HER2 status for defining breast cancer molecular subtypes using US population based cancer registry data

Nadia Howlader Active

16‐05 1995‐2013 PENDING RESPONSE FROM RESEARCHER/UNDERGOING IRB REVIEW: The Affordable Care Act and cancer stage at diagnosis

Xuesong Han Active

16‐06 1995‐2013 Geographic patterns in lung cancer incidence in the US Denise Lewis Active


16‐07 1995‐2013 Age‐ and subsite‐specific trends in incidence of gastric and esophageal cacners in North American adults

M. Constanza Camargo Active

16‐08 1995‐2013 Forecast of trends in esophageal and gastric cancer in the US through 2030

Jessica Petrick Active

16‐09 1995‐2013 Analysis of cancer among transsexual and intersex patients in the US using national surveillance data

Kevin Ward & Michael Goodman Passive

16‐10 1995‐2013 Measuring observed incidence of prostate cancer by grade and extent of disease for race/ethnic groups in the US and Canada

Raymond Balise Passive

16‐11 1995‐2013 Oregon Hereditary Cancer Surveillance Kristin Kane & Alicia Parkman Active

16‐12 1995‐2013 State‐level lung cancer burden Dennis Deapen & Zach Jump Active

16‐13 1995‐2013 Geographic Patterns in incidence of TNBC Tatalovich Wenzel & Moss Active


16‐14 1995‐2013 Determining the extent of head & neck cacner outcome disparity in Appalachia

Scott Weed Passive

17‐02 1995‐2014 Disparities in breast cancer subtype, stagin, and access to mammography in the Mississippi Delta Region

Whitney Zahnd Active

17‐03 1995‐2014 UNDERGOING RApR Review: Evaluation of breast cancer treatmetn patterms among Medicare Patients in Appalachia

Faustine Williams & Iris Zachary Active

17‐04 1995‐2014 County‐level variations and factors contributing to variations in receipt of curative‐intent surgery for early‐stage, non‐small cell lung cancer (NSCLC) in US

Helmneh Sineshaw Active

17‐05 1995‐2014 Breast cancer subtypes in US women by place of birth Carol DeSantis Passive

17‐06 1995‐2014 waiting for PI to resubmit to RApR: Comparison of High‐Income White Americans and 13 Developed Countries on Cancer, Infant and Maternal Mortality, Ischemic Heart Disease and Stroke

Ezekiel Emanuel Active

17‐07 1995‐2014 waiting for PI to submit IRB materials: Circadian disruption and cancer incidence US

Neil Caporaso Active


1995‐1999 2003‐Changing proportions and age‐specific incidence rates of epithelial vs. non‐epithelial cancers from adolescence to adulthood.

Xiaocheng Wu

1995‐2000 2003‐Urban‐rural variations in Hispanic cancer incidence. Susan Carozza, PhD and CRWG

1995‐2000 2003‐Determining Probabilities of error from each step of indirect identification method for Hispanic persons using NHIA.

Susan Carozza, PhD and CRWG

1995‐2000 2004‐Incidence of Cutaneous Melanoma in Non‐White Population in the United States, 1995‐2000.

Steven Roffers (Emory University), Xiao‐

1995‐2000 2004‐February Consent Hispanic Data Set. Steven Roffers

1992‐1997 2002‐Geographic and Racial Variations in Female Breast Cancer Incidence Rates and Stage Distributions

Mary Hutton

1995‐1999 2002 ‐ Assesment of melanoma incidence: Phase II data quality assessment.

Irene Hall


Terminated Studies:

1994‐1998 2002‐Breast Cancer Monograph: Focus on Race/Ethnic Variations

Holly Howe and Rachel Jean‐Baptiste

1995‐2000 2004‐February consent including topography. Catherine Coreea, and Xiao Wu

1995‐1999 2002 ‐ Geographic variation in stage at diagnosis of prostate cancer and its association with the mortality patterns in the U.S.

Ahmedin Jamal

1995‐1999 2003‐Geographic variation in stage at diagnosis of prostate cancer and its association with the mortality patterns in the U.S.

Admedin Jamal

1995‐1999 2003‐In‐class exercise for the Cancer Surveillance Institute in January, 2003. No table output will be used to generate any report or paper.

1995‐2000 2004‐In class project in order to describe the cancer burden for the United States for lung cancer. Students will be given access for two days (Jan. 28th and 29th) to study and present the data to the rest of the class.

1994‐1998 2001‐To produce and publish the mongraph, Cancer in North America.


2001 2001‐For inclusion of registry‐specific desease rates for the 2001 Annual Report to the Nation, on the burden of cancer.

2001 2001‐CINA+ Online if the data meets the standard established for high quality.

2001 2001‐The DEPC members to use these data for special analyses and data evaluation projects.

1995‐2000 2004‐Descriptive epidemiology of Paget disease of the breast, US, 1995‐2000. Project to add the use of the primary site variable by topography code in addtion to SEER groupings.

Joellyn Ellision, MPH, NAACCR

1995‐2000 2004‐Recent time trends in the incidence of selected cancers among rural and urban US populations, 1995‐2000.

Robert Greenlee

1995‐2001 2005‐Geographic variations in breast cancer incidence in the U.S.

Carol Smigal, Ahmedin Jemal, American Active

03‐01 1995‐1999 2003‐Urban‐rural variation in the incidence of selected cancer sites, United States, 1995‐1999.

Holly Howe


03‐02 1995‐2000 2003‐Mini‐Proposal: Urban‐Rural Incidence Gradient in Childhood Leukemia.

Frank Groves

03‐03 1995‐1999 2003‐Quality assessment and use of CINA Deluxe Morphology Data.

William Athas

03‐04 1995‐2000 2003‐Incidence of Noncutaneous Melanomas in the United States.

Colleen Mclaughlin

03‐05 1995‐2000 2003‐2004 Hispanic Call for Data Monograph Holly Howe

03‐06 1995‐1999 2003‐Subsite‐specific Colorectal Cancer Incidence Rates and Stage Distributions in Asian/Pacific Islanders, Whites, and Blacks in the US, 1995‐1999

Xiaocheng Wu

03‐07 1995‐2000 2004‐Subsite and morphology of esophageal and gastric cancers in the United States, 1995‐2000.

Xiao‐cheng Wu, Vivien Chen, Bernardo

03‐08 1995‐2000 2004‐The epidemiology of breast cancer among men in the United States, 1995‐2000.

Marc T. Goodman


03‐09 1995‐2000 2004‐Obtaining further evidence of the reported decrease in distant stage disease for prostate cancer.

Ben Hankey‐retired/Denise Lewis

03‐10 1995‐2000 2004‐Descriptive Epidemiology of Pancreatic Cancer in the United States, 1995‐2000.

Catherine Correa, L. Joseph Su, Elizabet

03‐11 1995‐2000 2004‐Projecting estimates of cancer incidence for every US state both spatially and temporally.

Linda Pickle‐retired/Barnali Das

03‐12 1995‐2000 2004‐Trends in thyroid cancer histologic sub‐types in the United States.

Karen Pawlish

03‐13 1995‐2000 2004‐Developing new methodology for estimating the completeness of case ascertainment.

Barnali Das, Linda Pickle

03‐14 1995‐2000 2004‐Geographic Patterns of Prostate Cancer Mortality in the U.S. in Relation to Variations in the Stage and Grade at Diagnosis.

Ahmedin Jemal

03‐16 1992‐1997 2003‐Evaluation of Methods to Estimate and Compare Race/ethnicity specific Cancer Incidence Rates Using Combined Central Cancer Registry Data.

Robert Greenlee


04‐01 1995‐2001 2004‐Descriptive epidemiology of Paget disease of the breast, US, 1995‐2001. Note: updated data set.

Joellyn Ellison

04‐02 1995‐2000 2004‐Cancer Incidence Among Hispanic/Latino Children and Adolescents.

Sue Carozza

04‐02 1995‐2000 2003‐Cancer Incidence among Hispanic children and Adolescents.

Susan Carozza

04‐03 1995‐2000 2004‐Comparison of trends in infant neuroblastoma and other cancers in the United States, 1995‐2000.

Lisa Roche, Betsy Kohler

04‐03 1995‐2001 2004‐Comparison of trends in infant neuroblastoma and other cancers in the US, 1995‐2001.

Lisa Roche‐retired/Betsy Kohler

04‐04 1995‐2000 2004‐Incidence of Chronic Lymphocytic Leukemia by Racial and Ethnic Group in the United States, 1995‐2000.

Marc T. Goodman

04‐05 1995‐2001 2004‐Recent time trends in the incidence of selected cancers among rural and urban US populations, 1995‐2001. Note: updated data set.

Robert Greenlee


04‐06 1995‐2000 2003‐Geographic variation in cancer incidence among Hispanic populations.

Maria Schymura

04‐07 2004‐Assessment of development of name lists for Asian groups.

Holly Howe

04‐08 1995‐2001 2004‐Incidence of Cutaneous Melanoma in the US by Race, Age, and Anatomic Subsite, 1995‐2001.

Lisa Roche‐retired/Xiaocheng Wu

04‐09 1995‐2001 2004‐Using NAACCR Data to Validate Cancer Prevalence at the State Level.

Angela Mariotto

04‐10 1995‐2001 2004‐Distributions and incidence rates of subsite‐specific leukemia in Asians/Pacific Islanders and other racial populations in the U.S.

Xiaocheng Wu

04‐11 1995‐2001 2004‐Demographic characteristics of individuals diagnosed with head and neck cancers.

Marsha Reichman

04‐12 1995‐2001 2004‐Risk of Childhood Cancers Associated with Residence in Agriculturally Intense Areas of the U.S.

Sue Carozza


05‐01 1995‐2001 2005‐Variation in Cancer Stage at Diagnosis by Area‐Level Poverty and Urban/Rural Gradient in CINA Deluxe 1995‐2001: A NAACCR 'Access to Care' Special Study.

Robert Greenlee

05‐02 1995‐2002 2005‐Geographic variations in breast cancer incidence in the United States. Note: updated data set.

Carol Smigal, Ahmedin Jemal Active

05‐03 1995‐2002 2005‐Subsite and Histology of Esophageal and Gastric Cancers among Hispanics and non‐Hispanics in the U.S, 1995‐2002.

Xiaocheng Wu

05‐04 1995‐2002 2005‐Racial Disparities in Esophageal Cancer Incidence and Potential Influences of Data Integrity in Results.

Emmanuel Nwokolo

05‐05 1995‐2002 2005‐Carcinoma of the Biliary Tract in the United States. Marc T. Goodman Passive

05‐06 1995‐2002 2005‐Comparative Epidemiologic Patterns of Leukemia among Men and Women in the United States.

Marc T. Goodman Active

05‐07 1995‐2003 ARN on the status of cancer 1975‐2003, with a special feature on cancer in US Hispanic/Latino populations, 1999‐2003

Holly Howe


05‐08 1995‐2002 2006‐Solar Radiation and Cancer Incidence and Mortality in North America.

Frank Boscoe Active

05‐09 1995‐2003 2006‐Epidemiology of Head and Neck Cancer in the U.S. Colleen McLaughlin

05‐10 1995‐2002 2006‐Geography of second primary breast cancer. Jeanette Jackson‐Thompson Passive

05‐11 1995‐2002 2006‐Spatio‐temporal estimation of cancer incidence in all US states for 1995‐2002

Linda Pickle Active

05‐11 1995‐2003 2006‐Spatio‐temporal estimation of cancer incidence in all US states for 1995‐2002.

Linda Pickle Active

05‐12 1995‐2002 2006‐Cancer Incidence Disparities in Applalachia and within Appalachian Sub‐regions.

Bin Huang Active

05‐14 1995‐2002 2006‐General Assessment of Rare Cancers in CINA Deluxe 1995‐2002

Robert Greenlee Passive


05‐15 1995‐2002 2006‐Descriptive Epidemiology of Invasive Primary Cardiac Tumors.


06‐01 1998‐2002 2006‐Quality and Correction of Time Trend Estimates in the Presence of Missing Data in CINA Deluxe.


06‐02 1995‐2004 2006‐Analysis of AI/AN Data from NAACCR Data Submissions for the 2007 Annual Report to the Nation.

Holly Howe

06‐03 na 2006‐Testing Record Consolidation of the New Multiple Primary/Histology Rules.

Holly Howe/Betsy Kohler

06‐04 1995‐2003 2006‐Incidence rates and trends for chronic myeloproliferative disorders and myelodysplastic syndromes.

Matthew Hayat‐no longer a member/Ly

06‐05 1995‐2003 2006‐Ecologic Method to Estimate Specific Latino Group Cancer Rates.

Holly Howe

06‐06 2006‐Epidemiology of Penile Carcinoma in the United States, 1995‐2003.

Marc T. Goodman


06‐07 2006‐Incidence patterns of primary extranodal Non‐Hodgkin lymphoma by anatomic site and histology among whites, blacks, and Asians and Pacific Islanders (API) in the U.S.

Xiaocheng Wu

06‐08 2006‐Racial/ethnic differences in national incidence trends of primary, invasive cervical cancer.

Jill Barnholtz‐Sloan‐no longer a member

07‐01 2007‐Multiple Imputation for Incomplete Cancer Registry Data.

Brent J. Shelton

07‐02 1995‐2004 2007‐Trends in colorectal cancer incidence rates by county‐level poverty in the US, 1995‐2004

Yongping Hao

07‐03 2007‐Quantifying transportation barriers in accessing health facilities for breast cancer diagnosis and treatment

Holly L. Howe ‐ no longer the PI/ Charlie

07‐04 2007‐Highlights from CINA 2000‐2004 Holly L. Howe

07‐06 2007 ‐ Geographic Patterns of Cervical Cancers in the US: Incidence, Mortality, and Related Factors

David Stinchcomb


07‐07 2007 ‐ Racial/ethnic and socioeconomic variation in breast cancer incidence trends: US and Canada, 1995‐2004

Christina Clarke

07‐08 2007 ‐ Comparative Incidence of Fallopian Tube Cancer, Primary Peritoneal Cancer, and Ovarian Cancer in the US, 1995‐2004

Marc T. Goodman

07‐09 2007 ‐ Incidence of Soft Tissue Sarcoma in Older Adolescent and Young Adults, US, 1995‐2004

Mei‐Chin Hsieh

08‐01 2008 ‐ Multiple Imputation for Incomplete Cancer Registry Data

Brent Shelton

08‐03 2008 ‐ Evaluation of in situ Tumors Reported to Cancer Registries

Holly L. Howe

08‐04 2008 ‐ Epidemiology of Head and Neck Cancer Sub‐sites among Different Racial and Ethnic Populations in the United States, 1995‐2005

Edward Peters

08‐05 2008 ‐ Hematopoietic Cancers in the Hispanic Population in the United States

Maria Schymura


09‐01 2009 ‐ Pediatric Brain Tumor Incidence: Comparison of the Central Brain Tumor Registry of the United States (CBTRUS) and the International Classification of Childhood Cancer, Third Edition (ICCC‐3) Classification Schemes

Bridget J. McCarthy

09‐02 2009 ‐ Spatio‐temporal estimation of childhood cancer incidence in all US states for 1995‐2009

Li Zhu

10‐01 2010 ‐ Urban‐Rural Gradient and Time Trends in Incidence of Medulloblastoma

Frank D. Groves

10‐02 1995‐2007 2010 ‐ Comparative Epidemiology of Osteosarcoma in Adults Holly L. Howe Passive

10‐03 2010 ‐ 3 State/3 Province Combined Cancer Incidence Rate Study ‐ A Descriptive Epidemiology Study

Bruce Riddle Active

10‐04 2010 ‐ Cancer in the Appaliachian Regions of North Carolina, Tennessee, and Virginia, 2004‐2006

Toni Herring Bounds ‐ retired

10‐05 1995‐2007 2010 ‐ Incidence of Small Bowel Cancer in the United States, 1995‐2007

Marc T. Goodman Passive


10‐06 1995‐2007 2010 ‐ Recent Changes in Incidence Rates of Ovarian Cancer: Relationship to Patterns of Use of Hormone Replacement Therapy

Mark E. Sherman NCI Passive

10‐07 1995‐2007 2010 ‐ Comparison of Patients Captured in the National Cancer Data Base with Those in Population‐Based Central Registries

Anthony Robbins Active

11‐01 1995‐2007 2011 ‐ Geographic Association of Agriculture and Pancreatic Cancer

Brian Luckett Active

11‐02 1999‐2008 2011 ‐ Comparisons of Cancer Incidence and Mortality for Rural vs. Urban Counties in Pennsylvania and Rural United States

Samuel Lesko Active

11‐03 2004‐2007 2011 ‐ Data Quality Control Through Nonlinear Association Analysis of Unknown Staged Cancer Cases

Qingzhao Yu Active

11‐04 1995‐2008 2011 ‐ Hodgkin Lymphoma Incidence in the United States by Age, Race, and Ethnicity

Denise Lewis Passive

11‐05 1995‐2008 2011 ‐ Estimating Complete Prevalence by State/County Angela Mariotto Active


11‐06 1995‐2008 2011 ‐ Incidence and Trend of Soft Tissue Sarcoma in Adolescents and Young Adults

Mei‐Chin Hsieh Active

11‐07 2004‐2008 2011‐Comparing Surveillance Methods Using County‐level Cancer Incidence Data in the United States

Ge Lin Active

11‐08 1999‐2008 2011‐State‐specific Endometrial Cancer Incidence Rates Corrected for Hysterectomy Prevalence

Rebecca Siegel Passive

12‐01 1995‐2009 2012‐U.S. geographic distribution of hepatocellular and cholangiocarcinoma

Zaria Tatalovich Active

12‐02 2005‐2009 2012‐Assessing the relationship between poverty and cancer using the census tract poverty indicator

Frank Boscoe Active

12‐03 1995‐2009 2012‐Analysis of ethnic disparities in colon cancer suggests a potential need for early colon cancer screening in Asians living in the USA

Jeannette Jackson‐Thompson Passive

12‐04 2004‐2009 2012‐Weighting method to handle missing values in estimating tumor stage distributions in population‐based cancer registration

Qingzhao Yu Active


12‐05 1995‐2009 2012‐Priorities for cervical cancer control based on disparities in race, social position, screening, vaccination, incidence, and mortality, 1995‐2009

Sean Alterkruse (Jonathan Kish) Active

13‐03 2000‐2010 2013‐Cancer burden and trends among adults aged 20‐40 years in the U.S.

Edgar Simard Passive

13‐04 1998‐2010 2013‐Insurance coverage expansion and disparities in cervical, prostate, and lung cancer

Amresh Hanchate Passive

13‐06 2013‐Withdrawn before IRB approval WITHDRAW

13‐07 2005‐2010 2013‐Female breast cancer incidence at Komen Foundation affiliate‐level

Serban Negoita Active

13‐08 2001‐2010 2013‐State‐level changes in the incidence of HPV‐associated anal and oropharyngeal cancers in the US

Edgar Simard Passive

14‐02 1995‐2011 2014‐Comparison of latitude gradients for testicular cancer and remaining cancer in Australia and the United States

Peter Baade (Cancer Council Queenslan Active


14‐04 1995‐2011 Recent trends in incidence of testicular germ cell tumors in the US: rising rates among Hispanic men

Armen Ghazarian (NCI Fellow) Passive

14‐05 1995‐2012 The epidemiology of pediatric brain cancers in Appalachia Bin Huang Active

14‐06 1995‐2011 Variations in receipt of curative‐intent surgical treatment for early‐stage non‐small cell lung cancer (NSCLC)

Helmneh Sineshaw Active

14‐07 1995‐2012 Lymphoid malignancy statistics in the US, 2001‐2012 Jemal & Teras Passive

14‐08 1995‐2012 Demographic and regional/state variation in DCIS and early stage breast cancer incidence and treatment

Ward & Lin Passive

14‐09 NOT APPROVED by RApR

15‐01 1995‐2012 Recent trends in incidence of testicular germ cell tumors in the US

Armen Ghazarian Passive


15‐02 1999‐2012 WITHDRAWN: pending IRB materials from PI: Maine Cancer Registry: Annual Cancer Report and Routine Surveillance using CINA deluxe data

Molly Schwenn Passive

15‐03 1995‐2012 US CONCORD‐2 study: incidence rates (1995‐2009) Hannah Weir Passive

15‐04 1995‐2012 WITHDRAWN: The impact of reporting practices onstate and local lip cancer rates

Frank Boscoe, Christopher Johnson WITHDRAW

15‐07 1995‐2012 Forecasting trends in testicular germ cell tumors in the US Armen Ghazarian, NCI Active

15‐08 1995‐2012 NOT APPROVED by RApR: Spatial analysis of rural disparities in staging and oncologic outcomes for esophageal and pancreas cacner

Whitney Zahnd, SIUSM NOT APPRO

15‐09 1995‐2012 NOT APPROVED by RApR: The association between environmental radon exposures and long term survival from Chronic Lymphocytic Leukemia among adults in the US

S. Cristina Oancea, NDSCR NOT APPRO

15‐12 1995‐2012 WITHDRAWNPending revision of application by PI: Treatment pattenrs in Primary CNS Lymphoma

Mendel Goldfiner/Kevin David, Rutgers WITHDRAW


17‐01 1995‐2013 Recalibrating NHIA‐‐UPDATE under Primary Data Uses for Workgroup data evaluation

Frank Boscoe Passive


naaccr irb approved studies · lisa paddock passive ... 16‐09 1995‐2013 analysis of cancer...

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