my diabetes my way patient access scott cunningham ... · my diabetes my way patient access. scott...
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www.mydiabetesmyway.scot.nhs.uk
My Diabetes My Way Patient AccessScott Cunningham – Technical Consultant
www.mydiabetesmyway.scot.nhs.uk
IntroductionDiabetes in ScotlandSCI Diabetes CollaborationMy Diabetes My WayPatient AccessFuture Plans
www.mydiabetesmyway.scot.nhs.uk
Diabetes in ScotlandCurrently ~220,000 (4.3%) people diagnosed with diabetes in Scotland– Type 1: ~27,500 (12.5%)– Type 2: ~192,500 (87.5%)
Increasing at a rate of 4.9% per yearPeople with diabetes at increased risk of:– Eye disease– Renal failure– Cardiovascular disease
Diabetes accounts for 10% of NHS expenditure
www.mydiabetesmyway.scot.nhs.uk
SCI Diabetes CollaborationThe National Diabetes Clinical Information System in Scotland since 2002“The IM&T infrastructure that underpins the diabetes managed clinical networks”Completed rollout across Scotland in 2006Providing clinically useful tools to support the care of patients with Diabetes
www.mydiabetesmyway.scot.nhs.uk
SCI Diabetes CollaborationLinks data captured from multiple sources– Primary Care (GPASS, Vision, EMIS, Ascribe)– Secondary Care (SCI-DC Clinical)– Laboratories (SCI Store)– Diabetic Retinopathy Screening Service
Conforms to National Clinical Datasets (NCDDP)Clinically relevant views on dataAd-hoc and pre-defined audit functions
www.mydiabetesmyway.scot.nhs.uk
My Diabetes My WayWebsite for patients and carersInformation leafletsInteractive content– Videos– Animations– Patient Journeys
Validated internal/external contentLive since October 2008
www.mydiabetesmyway.scot.nhs.uk
Patient AccessLink from Patient Website to the shared diabetes record50-patient pilot funded by Scottish Diabetes GroupUsing ‘Internet Banking’ securityIntegration with Citizen’s AccountLinks to relevant Website informationSimilar processes to Renal PatientView
www.mydiabetesmyway.scot.nhs.uk
Enrolment ProcessPatient is invited to sign up for ‘Patient Access’, is provided with information and completes a signup formClinician verifies the patient’s identity and submits their request for data access to SCI-DC.SCI-DC passes details of patients requesting data access to Citizen’s Account
www.mydiabetesmyway.scot.nhs.uk
Enrolment ProcessCitizen’s Account create user accounts and authentication details as appropriate and send directly to the patientSCI-DC data is validated and transferred securely to My Diabetes My WayPatient uses authentication details received to access personal information via My Diabetes My Way
www.mydiabetesmyway.scot.nhs.uk
Citizen’s AccountScottish Government National Infrastructure sub-programmeAllows citizen’s access to various public servicesDiabetes demonstrator first for NHSAuthentication using OneScotland portal
www.mydiabetesmyway.scot.nhs.uk
Patient AccessLimited to key diabetes data initiallyFeedback mechanism to report errorsFull user audit trailPilot available in selected boards (Lothian, Tayside, Fife)
www.mydiabetesmyway.scot.nhs.uk
Patient Access – Benefits
Access to the ‘shared’ diabetes record containing data from multiple sourcesLinks to nationally agreed educational materials, tailored to patient’s conditionPatient involvement in their medical careAwareness of guidelines and targets
www.mydiabetesmyway.scot.nhs.uk
Patient Access – Completed
Integration with Citizens AccountReview of draft screensPatient information leafletsStaff information leaflets
www.mydiabetesmyway.scot.nhs.uk
Patient Access – To Do
Final development of screens for pilotSCI-DC data transfer approvals/releaseLive server configurationPatient recruitment and pre-project evaluation questionnaireFurther national eHealth awarenessGo Live – November 2009
www.mydiabetesmyway.scot.nhs.uk
Patient Access – Future Plans
Funding for wider rollout after pilotAutomatic Citizen’s Account registrationPatient notification of new data (email/SMS)Patient-recorded results to SCI-DC– Blood glucose, blood pressure, cholesterol,
weight, waist circumference
www.mydiabetesmyway.scot.nhs.uk
Patient Access – Future Plans
Patient queries and feedbackWiden data setAppointment booking for Retinopathy ScreeningLinks with:– Ayrshire & Arran demonstrator– Renal PatientView
Audit and evaluation