WELCOMEmICF Collaborative WORKSHOP 22-4 June 2015Helsinki, Finland

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Successful consensus-based partnerships develop solid trust relationships

NAME, City, Country,

ProfessionEmployer

1-2 thing that nobody here will

know / guess about you?

PHOTO

1. What MOTIVATED you to be here? Why are you here?

2. What are your EXPECTATIONS? What would you like to get out of this workshop?

3. What VALUABLE CONTRIBUTIONS would you hope to make towards the mICF collaborative?

Getting on the same page

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ICF Spring: Part of the health revolution

Back then…• Introduction of

basic sciences in medical curricula• Doubling of

human lifespan1910

100 years later…

November 2010

HEALTH EQUITY

PATIENT-CENTREDNESS

INTEGRATEDCOMMUNITY-BASED

CARE

INTERPROFESSIONAL EDUCATION &

COLLABORATIVE PRACTIVE

(catalyst for change)

INSTRUCTIONAL

TRANSFORMATION

(health professions education)

INSTITUTIONALREFORM

(interdependence in providing healthcare)

RATIONALE FOR mICF

is driven by the global priority to reach

REFORMING HEALTH

SYSTEMS

HEALTH EQUITY

through

TRANSFORMING HEALTH

PROFESSIONS EDUCATION

TRANSFORMING HEALTH PROFESSIONS EDUCATION

Bio-psycho-social-spiritual approach incorporating complex interrelatedness of

• changes in body functions and body structures,• functioning and fulfilling life roles, • in the context of the barriers and facilitators of • environmental factors influencing health• (including social determinants of health)

which required competencies related to a

a person-centred approach

HOLISTIC CARE, SHARED DECISION-MAKING AND PATIENT-REPORTED OUTCOMES

resulting in

through

creating the opportunity for

PATIENT-DRIVEN DATA

RATIONALE FOR mICF

is driven by the global priority to reach

HEALTH EQUITY

through

TRANSFORMING HEALTH

PROFESSIONS EDUCATION

REFORMING HEALTH

SYSTEMS

implying

to provide

ultimately resulting in

which is dependent on

obtained by utilising paradigm-shifting

REFORMING HEALTH SYSTEMS

BIG DATA

PREDICTIVE HEALTH CARE

• Universal health coverage,• reducing institutionalised care and • focusing on preventative healthcare

a focus on community-based practice through• health-education harmonisation

(interdependence),• breaking down silo's and professional

tribalism, • embracing interprofessional collaborative

practice,• and decreasing power relations

PATIENT-DRIVEN DATA

RATIONALE FOR mICF

is driven by the global priority to achieve

REFORMING HEALTH

SYSTEMS

TRANSFORMING HEALTH PROFESSIONS EDUCATION

ultimately resulting in predictive health

careperson-centred approach

holistic care, shared decision-making, patient-reported outcomes

resulting in

through

big data

which is dependent

made possible by

resulting in

contributing to reaching

Individualised healthcare in a strengthened health system

MOBILE TECHNOLOGY UTILISING ICF

through through

PATIENT-DRIVEN DATA

creating the opportunity for

obtained by utilising

paradigm-shifting

HEALTH EQUITY

FDRG: Beijing 2013, London 2014 & Barcelona 2014

Aims of mICF

1. assist providers and users of health services in the front line to identify a person's problems in terms of the ICF (functional status and contextual information), and

2. To develop a user-friendly mobile application to amalgamate ICF-related data centrally.

Aim 1: Objective 1

1. Develop the specifications for the mICF to enable programmers to develop the application.

Activities

Requirement survey Partnership development Literature review Barcelona & Cape Town

Aim 1: Objective 2

2. Provide a means for providers and users of health services to collect and transfer ICF-related information to facilitate the continuity of care

Activities Agile and iterative developing of mICF

application Develop and test Minimum Viable

Product (MVP)to develop a first product/service

with the minimum effort and minimum cost that is still really useful

Aims 2: Objectives and Activities

To investigate the development of a user-friendly mobile application to amalgamate ICF-related data centrally

1. Convey information securely between service

2. Ensure a sustainable and cost-effective platform

3. Facilitate administration and reporting

4. Providing person-centred feedback to inform shared decision-making

Mobile ICF enhanced with Big Data Analytics

Private and Confidential Copyright Novolibri 2014

It is envisaged that the mICF will

ensure accurate and efficient capture of functional status and contextual information,

convey information securely between service providers in different service settings,

facilitate clinical decision-making by making person-centred data readily available,

facilitate administration and reporting through the aggregation of the data and

minimise the need for repeat data collection.

The envisaged benefits of the mICF would be to:

Empower providers and users of health and related services

Enable continuity of care Capture the interactions between ICF

components to facilitate Understanding of the complexity of

interactions between health and contextual factors

Person-centred decision-making and goal setting

Interprofessional and transprofessional collaborative practice

Amalgamate data to help strengthen systems.

Progress made over past 2 years

Fund raising efforts

CHEC / NRF (South

Africa) Tekes (Finland) Horizon 2020

application USA investigating…

“mICF can be a game changer in addressing health inequity by facilitating the necessary institutional reform as well as the transformation of health professions education by utilising patient-driven and patient-owned data to optimise individualised healthcare and to strengthen health systems.

It could facilitate the dawn of a new era of universally affordable, accessible, personalised, predictive, sustainable, integrated, community-based interprofessional and transprofessional health and social care”

Work packages

WP 1: Coordination and management

Ensure the effective and efficient execution of work program according to the time plan and budget

Provide efficient financial management and oversight

Ensure the achievement of mICF’s objectives as outlined in the work plan

Report to and liaise proactively with funders and all mICF partnership

WP2: Content specificationsThe overall goal of this work package is to provide evidence-based ICF-related content — based on a bio-psycho-social-spiritual approach in the context of an ethical, human rights and legal framework — for the development of mICF. The specific objectives of WP2 are to

define ICF-related content for different patient journeys (e.g. Older persons, adults with chronic diseases, vulnerable children and youth) by:

Specific objectives of WP2 Embedding the content in the context of

ethics, human rights and legislation Developing and refining questions (i.e. what

questions to ask and how to ask it) Identifying appropriate responses to the

potential answers to questions (i.e. identify the qualifiers)

Selecting relevant patient-reported outcome measures i.e. PROMs

Specific objectives of WP2 Determining ways to use ICF and PROMs in

optimising a service user’s assessment, enabling shared decision-making and interprofessional goal setting.

Utilising technology to link the use of natural language to ICF codes and qualifiers.

Translating the content to other languages Refine the content specifications based on

iterative development cycles (WP3) and feedback from the disciplined in-market experimentation (WP4).

WP3: Lean minimum viable product (MVP) design and technical implementation

specify and create the technical service design and implementation for the minimum viable product (MVP) service platform, including

the mobile solution on selected terminals

as well as the backend solution for integrated care by applying lean, agile, iterative and continuous, interactive person-centred service design methods.

For that, Service Design Toolkit (91) and lean UX methods will be used in close collaboration with WP2 and WP4.

design and implementation of the Big Data and computer modelling platform that will be used to process and analyse ICF assessment data.

WP3: Objectives for main phases of (technical) design process are

Learning: learn the user needs based on tests and feedback.

Creating: collaborative ideation and creation of solutions that support findings.

Testing: test/experiment the solutions in a relevant way and collect/analyse feedback.

WP3 Description of work tasks

1. MVP development project management

2. Specifications of the MVP

3. Mobile solution (front end) development and prototyping

4. Backend service platform development

5. End-to-End testing and product development environment

6. Big Data analytics solution & integrated care GUI

7. Hosting and maintaining the backend & Big Data services

WP4 Disciplined in-market experimentation

Objectives Users of the mICF Define and implement metrics to assess

user experience and data validity in different user groups, e.g. older persons, adults with chronic diseases enrolled in community based rehabilitation, vulnerable children and youth

Define which requirements are to be fulfilled in order to accept a part of mICF to be released to clinical and scientific use

WP4 Disciplined in-market experimentation

Tasks Field test preparation Train clinician users in the use of ICF Capture feedback regarding usability

data from users Capture feedback regarding

discrepancies of data entry between patient users and clinicians

Compile data from the different test sites

WP 5: Impact and economic evaluation

Cost and effect analysis post-6 months of usage of the mICF by user group individuals (e.g. older persons, adults, and children or their caregivers) and healthcare professionals in various countries.

Through quantitative and qualitative methods measure the impact of the mICF on user groups (e.g. older persons, adults and children or their caregivers).

Compare the satisfaction of healthcare professionals’ use of the mICF product to current products used by healthcare professionals.

WP 5: Impact and economic evaluation

Demonstrate the interoperability of the mICF with other electronic health record products.

Share the findings of the impact and cost evaluation as soon as data is analysed (linkage to WP6).

Conduct economic evaluation; benefits, effectiveness and costs of mICF use.

WP6: Dissemination and Market Introduction

Application of appropriate commercialisation techniques to guide the project from the (1) innovation phase, through the

(2) incubation phase with agile commercialisation, to an

(3) acceleration (or scaling) phase.

The most important outcome is a mature offering with sustainable benefits that are repeatable in a market segment that responds predictably and that yield a critical mass of references representative of an early majority of the technology adoption curve.

WP6: Dissemination and Market Introduction

Continuous dissemination of research and development results (e.g. mICF website, social media, training events, user support, presentations, academic and non-academic publications)

Implementation of a pragmatic marketing strategy addressing the “4 Ps”, namely Product, Place (Distribution or Sales Channel), Promotion and Price.

Creating the blueprint for a marketing and early sales organisation

WP# Work Package Title Facilitators

1 Coordination and management

Stefanus Snyman, Heidi Anttila with WP facilitators

2 Content specifications Heidi AnttilaThomas Maribo

3 Lean Minimum Viable Product (MVP) design and technical implementation

Petteri WeckstromDirk Wagener

4 Disciplined in-market experimentation

Olaf Kraus de CamargoPatricia Saleeby

5 Impact and economic evaluation

Joanne Valerius

6 Dissemination and Market Introduction

Stefanus Snyman

Work groups for Helsinki

Content specification (WP 2) [Heidi & Thomas] Questions, answers & Proms

IT Team (WP3) [Petteri & Dirk] Get everything ready for the word “go”

Research and Literature (WP 4 & 5) [Olaf & Joanne] Overall research framework

“Generic” funding proposal

Finish outstanding articles

Prepare Manchester abstracts (due date 15 June)

“Contract research” from other WPs

DISCUSSION

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