mason durie massey university ninth global forum on bioethics in research (gfbr9) perspectives
TRANSCRIPT
Mason DurieMassey University
Ninth Global Forum on Bioethics in Research (GFBR9)
Perspectives
Universality
Diversity
Distinctiveness
Universality
Many ethical values are held in common by people across nations,
cultures, and ethnicitiesAvoid
unneccesary pain &
sufferingProtect the young
Respect property Abide by community customs, ideals, conventions
Value people
Diversity
Not all people within the same group hold the same values, ideals, or perspectives
A suburban orientation
A tribal world view
A global perspective
The culture of youth
Whanau values
Pragmatism
Political ideologies
A Christian focus
BEING MAORI2008
Distinctiveness
Ethical expectations and norms of groups are built on their distinctive views, shared histories, values, and
aspirations,
Religious persuasions
The New Zealand way
Maori perspectives Tribal conventions
The Kiwi tradition
Indigenous custom
Community standards
Indigenous
5000 indigenous and tribal groups
200 million people
4% of the global population
Distinctiveness
1. Colonised tribes
2. A vulnerable population
3. An ethnic minority
4. Marginalised communities
5. A Culturally different people
Distinctive 2
1. A close and enduring relationship with the environment
2. Autonomous social groupings that reflect territory
3. Knowledge systems based on environmental encounters
4. A sustainable economy
5. Unique culture & language
1. Colonised tribes
2. A vulnerable population
3. An ethnic minority
4. Marginalised communities
5. A culturally different people
3 Characteristics
Ecological ties Mana whenua
Human encounters Mana tangata
Autonomy & self determination Mana whakahaere
Maori
Indigenous people of New Zealand
Tribal society (now largely urban)
Population 565,000 (15% of total population)
Median age 22 years
Increasing cultural fluency in younger age groups
Rangi & Papa
The earth mother and the sky father were forced apart by their children
• Forests & birds• The elements• The seas, waters, fish• Crops• Ferns• Humankind
Separation enabled life and light
But connections were retained
Spiral
Building relationships
Outward flow of energy
People, land, flora, fauna,water, air, cosmos
Centrifugal direction
Relationships and context give rise to knowledge
Smaller entitiesmake sense when viewedin relationship tolarger entities
Identity
People are part of a wider ecological context
Tangata whenuaPeople of the land
TurangawaewaeA land-based reference point
Mauri
• All matter has life - a mauri
• Connections with the wider environment create a dynamic relationship
• Inner & outer energy chains
• Carbon credits
Relationships
Relationships between:
People and the natural environment Tangible and intangible dimensions Organic and inorganic material Past and future (intergenerational
continuity) The microscopic and the macroscopic Tangata whenua (Hosts) and manuhiri
(visitors)
Marae
Marae AteaA Forum for negotiating relationships
Manuhiri(‘People with other land connections’)
Tangata whenua(‘People of the land’)
Whare nui(Meeting House)
Marae Kawa
• Tangata whenua
• Whaikorero
• Tapu
• Koha
• Social conventions
• Terms of engagement
• Level of risk
• Reciprocity
Autonomy
Potatau te Wherowhero1858
Tuheitia2006
The Maori King
The State
The Treaty of Waitangi1840
Implications
Ecological TiesThe ethics of eco-
connectedness
Human EncountersThe ethics of engagement
Autonomy and self determinationThe ethics of empowerment
Eco-connect
Synergies between people and the natural environment Balance between human
endeavours and environmental sustainability
Longstanding connections between species
All environmental forms have a unique ‘mauri’
Balance
Human & environmental equilibrium Climate change, carbon emissions
Human adaptation to the environment Type II diabetes (living in consumer environments)
Species specificity xenotransplantation
Species survival Assisted reproductive technologies, organ donations Stem cell research
Engagement
Relationship building – assessing risk & motive Time Space
Agreement on termsMutual benefits
Mutual respect and mutually re-enforcement
Implications
Reason for engagement with Maori Who to engage with ? Where should engagement occur ? Trusting relationship or ‘one off’ ? A sample of Maori views or a sample of
views on Indigeneity ? Ownership & management of
information & data
Empowerment
Informed Consent
Active participation
Guardianship:
• Knowledgeable
• space to decide
• time to reflect
• Involvement in research design
• advice on research protocol, & methods • Researcher as well as ‘subject’ of research
• research integrity
• Indigenous environmental interests
• research data
• dissemination of resultsPromoting ethics
Shifting researcher attitudes
Indigenising ethical standards and protocols
Researcher attitudes
Ethical compliance Extension of vision
Research method Research impacts
Centripetal focus Centrifugal focus
Recruitment Active participation
Scientific merit Indigenous gain
Consultation Relationship
Indigenisation
Guidelines for researchers (HRC) Bioethics Council Report Maori framework for ethical review
(NEAC & Nga Pae o te Maramatanga) WAI 292 Matauranga Maori
Claim to the Waitangi Tribunal Protection of native flora, fauna, & Maori
knowledge A Maori Ethical Commission ?
Wider research interests: Health – environment - education - energy)
Indigeneity
The ethics of empowerment
The ethics of eco-connectedness
The ethics of engagement
Ecological ties Human encounters Autonomy & self determination
End