mary bolger, alzheimer society of ireland - 6th patient's rights day
TRANSCRIPT
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New Models of CareThe Social Club Model
Presented by Mary Bolger, Services Manager(Kildare/West Wicklow)
Alzheimer Society of Ireland
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Presentation outline
Examine the origin of the social clubs Outline the study design and procedure Present the literature supporting the
social clubs Present the core elements of what makes
the model unique
Reflect staff and members experience Discuss future developments and
implications for policy and practice
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Social Clubs Origin
Identification of unmet needNo service for both PWD and
spouse/carerCarers socially isolated
The Social ClubMeeting once a week
Outing every second week Informal and loose structure
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Study Design and Procedure
Small scale mixed quantitative andqualitative
Postal survey to members and staff Feedback of themes to one club Interviews with key stakeholders
Analysed for themes
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Supporting Literature
Dementia and effect on caregiver Increased rate of stress/depressionMore socially isolatedRequires continuous adaptation to
change Loss of confidant
Social Support and Caringstress buffering qualitiesMore significant in the elderly
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Supporting Literature
Alzheimer Caf ModelUnderlying vision of living with
dementiaMeeting places for PWD and their
families, carersSocial and educational
Couple Identity and Couplehood
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Couple Identity
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Couple Identity
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Couple Identity and Couplehood
Couple Identitybeing part of a couple as being part of
ones identity (Beeson, 2003)
Losing this identity is a real threat tocarer and to person with dementia
Celebrating personhood may requirethe celebration of couplehood
Doing things together couplereceives recognition; carer receivessupport
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Unique Elements of Social Clubs
Embrace couplehood Informal structure
Worry-free socialising OutingsMembers as opposed to Service-
Users Sense of belonging
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Reflections members of the club
it makes you realise youre not onyour own
as a couple it allows us to meetothers with similar interests
outings with security of knowingsupport and help is at hand
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Reflections facilitators of the club
Forget the formal stuff. People are lonelyand they want to talk to others in the
same boat
The person with dementia..have acontribution to make from a social pointof view.very important for self-esteem
great friendships have been born and weas a group have shared some very happyand emotional days together
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Future Developments
Expansion of social club model toother regions
Without losing uniqueness of eachgroup to function as their membersdesire
Multiple benefits, value for money Investing in staff and resources
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Implications for Practice
Some Questions Should service models continue to separate the
couple?
Which is more beneficial for spouse a breakaway from PWD or a break with them, with noresponsibility for care needs?
By having spouse involved do we share theduty of care?
Are the club and traditional service modelsmutually exclusive or mutually beneficial?
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Implications for Policy
Traditional approach needs to becritically analysed
Policy shift from providing servicesonto to in conjunction with Maintaining couple as central to all
discussions regarding care Re-examine models and further
research into emerging models
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Frankie
Muriel
AdrienneJean
Maurice
Margaret
Jenny
Monday Club, Bray Friday Club, Rathfarnham
Monday Club, Athy
Mary
Patricia
Leslie
Sr Peig
Grainne
Helena