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Markle Survey: The Public and Doctors Largely Agree Patients Should Be Able To View, Download and Share Their Health Info January 2011 Markle Survey on Health In a Networked Life

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Page 1: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

Markle Survey: The Public and Doctors Largely Agree Patients

Should Be Able To View, Download and Share Their Health Info

January 2011

Markle Survey on Health In a Networked Life

Page 2: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

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• 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health information online.

• 3 in 4 doctors agree that patients should be able to share their information electronically with their doctors.

• Majorities of both groups agree patients should get access to their lab results as soon as their doctors.

• Roughly half of both groups say they should be able to communicate securely online.

Key Findings

Markle Foundation®

Page 3: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

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Remarkable Agreement Between the Public and Doctors

Patients should be able to download and keep their own copies of their personal health information.

Agree 65%

Agree 70%

Disagree 7%

Neutral 22%

Neutral 20%

Disagree 15%

The Public

Doctors

Markle Foundation®

Page 4: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

4

Remarkable Agreement Between the Public and Doctors

Patients should be able to view their pertinent health information online (such as via a secure website).

Agree 63%

Agree 61%

Disagree 13%

Neutral 25%

Neutral 20%

Disagree 16%

The Public

Doctors

Markle Foundation®

Page 5: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

5

Patient-Doctor Communications

Patients should be able to share their information electronically with their various doctors and other practitioners.

Agree 74%

Agree 59%

Disagree 11%

Neutral 28%

Neutral 17%

Disagree 8%

The Public

Doctors

Markle Foundation®

Page 6: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

6

Control of patient records

Doctors should make a patient’s information like lab results available electronically to the patient as soon as the information is available.

Agree 59%

Agree 67%

Disagree 9%

Neutral 23%

Neutral 19%

Disagree 23%

The Public

Doctors

Markle Foundation®

Page 7: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

7

Patient-Doctor Communications

Doctors and patients should be able to communicate via secure email rather than rely on in-person visits or telephone calls.

Agree 47%

Agree 49%

Disagree 20%

Neutral 29%

Neutral 17%

Disagree 36%

The Public

Doctors

Markle Foundation®

Page 8: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

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• Majorities of both the public and doctors agree that patients should be able to view and download their personal health information.

• However, most patients say they rarely or never ask for copies of their medical records.

• Requests for records in electronic format are quite rare: 83 percent of the public say they never ask. Only 2 percent say they ask most times or every time.

• Online communication between doctors and patients remains uncommon today.

Key Findings

Markle Foundation®

Page 9: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

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Patient-Doctor Communications

How frequently do you communicate online with your doctor? | your patients?

0% 1% 5%

10%

83%

7% 9% 10%

33%

40%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

Daily Monthly A few / yr Rarely Never

The Public

Doctors

Markle Foundation®

Page 10: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

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Patients Seldom Request Health Records—Details

How often do you | do your patients ask for copies of personal health information or medical records?

3% 6%

19%

29%

41%

1% 2%

44% 50%

3%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

The Public

Doctors

Markle Foundation®

Page 11: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

Doctors

11

Patients Seldom Request Health Records in Electronic Format

How often do you | do your patients ask for copies of personal health information or medical records in electronic format?

The Public

6% Sometimes

or more

93% Rarely or

never

92% Rarely or

never

8% Sometimes

or more

Markle Foundation®

Page 12: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

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Patients Seldom Request Health Records in Electronic Format – Detailed Findings

How often do you | do your patients ask for copies of personal health information or medical records in electronic format?

1% 1% 4%

11%

83%

0% 0% 7%

24%

67%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

The Public

Doctors

Markle Foundation®

Page 13: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

13

• 54 percent of the public agree that patients should control which parts of their records are sent to new doctors.

• 41 percent of the doctors surveyed agree with this statement, 49 percent disagree.

• The 2008 and 2010 Markle surveys are very consistent: Majorities of the public say patients should control which parts of their records are transferred.

Key Findings

Markle Foundation®

Page 14: Markle Survey: The Public and Doctors Largely Agree ... · 2 • 2 in 3 of the public and doctors agree that patients should have the option to view and download their personal health

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Control of patient records

When being referred to a new doctor, patients should be able to decide whether the new doctor receives all or part of their health records.

Agree 41%

Agree 54%

Disagree 20%

Neutral 25%

Neutral 11%

Disagree 49%

The Public

Doctors

Markle Foundation®

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15

Control of patient records

When being referred to a new doctor, patients should be able to decide whether the new doctor receives all or part of their health records.

Agree 57%

Neutral 25%

Disagree 17%

The Public 2010

The Public 2008

Agree 54%

Disagree 20%

Neutral 25%

Markle Foundation®

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• By relatively comparable proportions, the public and physicians agree that patients should be able to have online tools to view, download and share their information.

• Despite this conceptual agreement, actual behavior lags: most don’t communicate online or share information in electronic format.

• The patient-engagement requirements of Meaningful Use of health IT are designed to facilitate such electronic information sharing.

Observations

Markle Foundation®

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• Markle commissioned two separate but coordinated surveys with largely parallel questions to be conducted independently by Knowledge Networks (KN).

• General Population Sample: An initial sample of 2,493 people was drawn randomly from KN’s KnowledgePanel, a probability-based web panel designed to be representative of the U.S. non-institutionalized population age 18 and up, including both online and offline households (households are provided access to the Internet and hardware if needed). From the initial sample, 1,582 responded to this online survey—a completion rate of 63 percent. The survey was conducted August 10 through August 24, 2010.

• Physician sample: An initial sample of 2,867 physicians was drawn from Knowledge Networks Physicians Consulting Network, an online opt-in convenience panel consisting of physician members invited to join from reputable listed samples such as the AMA Masterfile and prescriber lists. From the initial sample, 779 physicians responded to this online survey—a completion rate of 27 percent. The physician survey was conducted August 10 through August 26, 2010. The panel generally reflects the U.S. physician population on known demographics, although it somewhat under-represents younger physicians and hospital-based physicians. The study sample consisted of 26 percent primary care doctors (defined as internal medicine, general practice or family practice) and 74 percent specialists.

• The general population sample can validly be projected to the U.S. population, with margin of error of +/- 3.0 percent. Although we believe the physician sample is a highly defensible reflection of U.S. physicians, because it was not drawn entirely by random we are not as comfortable projecting its results to all U.S. physicians. Because the sample is based on those who were invited to join from multiple sources without known probabilities of selection, estimates of theoretical sampling error cannot be calculated.

Methodology

Markle Foundation®