making health care measurement patient- centered: a convening … · 2016-09-21 · making health...

American Institutes for Research Participant Biographies —1

Making Health Care Measurement Patient-Centered: A Convening to Develop

Principles and Strategies

Participant Biographies

September 29 – 30, 2016

Washington, DC

This convening is sponsored by the Robert Wood Johnson Foundation,

Gordon and Betty Moore Foundation, and California Health Care Foundation

American Institutes for Research Participant Biographies—2

Table 1. Convening Participants Biographies in Alphabetical Order

Name Organization Page

David Adler Robert Wood Johnson Foundation 9

David Andrews Augusta University 11

Susan Baade Song Gordon and Betty Moore Foundation 10

Cynthia Barginere Rush University Hospital 11

Laura Batz Townsend Louise H. Batz Patient Safety Foundation 11

Beth Berselli Gordon and Betty Moore Foundation 10

Arlene S. Bierman Agency for Healthcare Research and Quality 12

Marc M. Boutin National Health Council 12

Kevin Bozic The University of Texas at Austin 12

Katherine Browne Constellation Consulting 13

Kristin L. Carman American Institutes for Research 5

Jim Chase MN Community Measurement 13

Carolyn Clancy Department of Veterans Affairs 13

Alicia Cole Alliance for Safety Awareness for Patients 14

Pam Dardess American Institutes for Research 5

Darren A. DeWalt University of North Carolina at Chapel Hill 14

Heyward Donigan Vitals 14

Chris Duke Altarum Institute 15

Hala Durrah Patient Family Centered Care Consultant / Advocate 15

Ian Eslick Vital Labs, Inc. 15

Kat Esser Center for Care Innovations 16

Ted Eytan Kaiser Permanente Center for Total Health 16

Lori Frank Patient-Centered Outcomes Research Institute 16

Dominick L. Frosch Palo Alto Medical Foundation 17

Ginamarie Gianandrea Integrated Healthcare Association 8

Mindy Hangsleben Centers for Medicare & Medicaid Services 17

Chris Hass Mad*Pow 17

Mark C. Hornbrook Center for Health Research, Kaiser Permanente 18

Stephen Hoy PFCCpartners 18

Ann Hwang Community Catalyst 18



Kourtney Ikeler American Institutes for Research 7

Rebecca Kirch National Patient Advocate Foundation 19

Ariel Klein Castlight Health 19

Sarah E. Kucharski Stanford Medicine X 19

Kevin Kumler ZocDoc 20

Joseph C. Kvedar Partners Healthcare 20

David Lansky Pacific Business Group on Health 20

Mary Lavelle American Institutes for Research 6

Luther Lowe Yelp 21

Rikki Mangrum American Institutes for Research 6

Alan Manning Planetree 21

Kym Martin 360 Degree Insights, LLC 21

Pat Mastors Patients’ View Institute 7

Maureen Maurer American Institutes for Research 5

Anna McCollister-Slipp Scripps Translational Science Institute 22

Lindsey Messervy Atrius Health 22

Mary Minniti Institute for Patient- and Family-Centered Care 22

Jean D. Moody-Williams Centers for Medicare & Medicaid Services 23

L. Gordon Moore 3M Health Information Systems, Inc. 23

Garrett E. Moran Westat 23

Deirdre Mylod Press Ganey Associates, Inc. 24

Debra L. Ness National Partnership for Women & Families 24

Kathryn O’Callaghan Food and Drug Administration 24

Tara Oakman Robert Wood Johnson Foundation 9

Sally Okun PatientsLikeMe 25

Charlotte Parent LCMC Health 25

Ela Pathak-Sen Commotion UK 7

Jeanne Pinder ClearHealthCosts 25

Wendy Prins National Quality Forum 26

Michelle Probert General Dynamics – Bath Iron Works 26

Raj Ratwani MedStar Health 26



Jacob Reider Alliance for Better Health 27

Lygeia Ricciardi Clear Voice Consulting, LLC 27

Eduardo Sanchez American Heart Association 27

Lewis G. Sandy UnitedHealth Group 28

Ellen Schultz American Institutes for Research 6

Amy Sherwood CedarBridge Group 28

Leah Tuzzio Group Health Research Institute 28

Nick van Terheyden Dell Communications 29

September Wallingford Costs of Care 29

Saul J. Weiner Institute for Practice and Provider Performance Improvement 29

Anne F. Weiss Robert Wood Johnson Foundation 9

Ronald M. Wyatt The Joint Commission 30

Jill Yegian Integrated Healthcare Association 8


American Institutes for Research (AIR) Project Team

Kristin L. Carman

Vice President, American

Institutes for Research

Kristin L. Carman is a Vice President at AIR whose work focuses on issues of

public importance in health care quality, access, financing, comparative effectiveness

research, patient and family engagement, health systems improvement, public

deliberation, and health-related communications. Kristin has expertise related to

assessing the performance of health care organizations and determining how to

enable improvement in organizational performance and an extensive history related

to developing and evaluating information for use by patients and consumers,

purchasers, and health care providers in health care decision making. Kristin’s work

includes leading a large, randomized controlled deliberative methods demonstration

to expand public input into the Agency for Healthcare Research and Quality

(AHRQ)’s Effective Health Care Program and to advance the field of public

deliberation. The founding director of AIR’s Center for Patient and Consumer

Engagement, Kristin was also the lead author of the Patient and Family Engagement

Framework which has been extensively cited and applied.

Pam Dardess

Principal Researcher,

American Institutes for

Research

Pam Dardess is a Principal Researcher at AIR whose work focuses on developing,

implementing, and assessing practices and systems to foster patient and family

engagement in health care. Pam’s experience spans developing and testing Consumer

Assessment of Healthcare Providers and Systems (CAHPS) instruments, public

reporting of health care quality and cost information, working with employer groups

to help communicate with employees about evidence-based health care, and

providing technical assistance to health care organizations around patient and family

engagement. Her recent work includes leading development of the Agency for

Healthcare Research and Quality (AHRQ) Guide to Patient and Family Engagement

in Hospital Safety and Quality and leading a Moore Foundation-funded project to

develop a framework and approach for measuring patient and family engagement in

the hospital setting. Pam is the co-author of the Patient and Family Engagement

Framework and led development of the Gordon and Betty Moore Foundation-funded

Roadmap for Patient and Family Engagement in Healthcare Practice and Research.

She currently serves as director of AIR’s Center for Patient and Consumer

Engagement.

Maureen Maurer

Principal Researcher,

American Institutes for

Research

Maureen Maurer is a Principal Researcher at AIR and senior advisor at AIR's

Center for Patient and Consumer Engagement. At AIR, Maureen leads projects

related to engaging consumers in health care and policy; developing and testing

materials for patients, families, and clinicians that translate complex medical

evidence; eliminating health disparities; and conducting program evaluations. For

this project, Maureen led the design and analysis of the public deliberations that

informed the convening. Maureen was a co-author on the 2014 Roadmap for Patient

and Family Engagement in Healthcare Practice and Research and the 2013 journal

article in Health Affairs titled “Patient and Family Engagement: A Framework for

Understanding the Elements and Developing Interventions and Policies.”

http://www.aircpce.org/


http://www.aircpce.org/pfe-framework




http://www.patientfamilyengagement.org/










Ellen Schultz

Senior Researcher, American


Ellen Schultz is a Senior Researcher at AIR with expertise in applying qualitative

and quantitative methods to develop quality measures, conducting systematic

literature reviews, developing conceptual models, and publishing peer-reviewed

articles. Prior to joining AIR, Ellen managed federal research contracts and grants at

Stanford’s School of Medicine, including developing quality indicators related to

ambulatory care, lung cancer, home- and community-based services, hospital

readmissions, and care coordination. She has subject matter expertise in care

coordination, about which she has presented, consulted, and published widely,

including leading development of the Care Coordination Measures Atlas and a

related interactive database, tools to help users identify and select care coordination

measures appropriate to different measurement needs. She has also served as a

member of the National Quality Forum (NQF) Care Coordination Steering

Committee.

Rikki Mangrum

Senior Researcher, American


Rikki Mangrum is a Senior Researcher at AIR whose work focuses on

quality and performance measurement and patient and family engagement.

Rikki leads and conducts research for projects with an emphasis on mixed

methods and qualitative data collection and analysis, content analysis,

literature and empirical reviews, environmental scans, bibliometric evaluation,

and development of evidence-based tools and guides. She designs custom data

collection, analysis, and reporting tools to support project management, data

analysis, and reporting and has substantial experience in managing and

integrating large collections of quantitative and mixed source qualitative data.

For this project, Rikki assisted with the design, data collection, and analysis of

the public deliberations and blue sky interviews that informed the convening.

Mary Lavelle

Researcher, American


Mary Lavelle is a Researcher at AIR, where she leads and contributes to qualitative

research projects on the topics of evidence-based medicine, clinical preventive

services, and comparative effectiveness research. She contributes to and manages

qualitative research projects, with responsibilities including but not limited to,

conducting focus groups, in-depth interviews, cognitive testing and environmental

scans. For this project, Mary supported the team with designing and analyzing the

public deliberations and the blue sky interviews that informed the convening.


Kourtney Ikeler

Research Associate, American


Kourtney Ikeler is a Research Associate at AIR. She contributes to research projects

related to public reporting of health care quality, translating evidence and testing

plain language materials for patients and clinicians, and patient’s experience of care

surveys. Kourtney serves as research support for several projects where she assists

with qualitative data collection and analysis, development of plain language

materials, and project management. For this project, Kourtney serves as the logistics

coordinator and participant liaison.

Ela Pathak-Sen

Director, Commotion UK

Ela Pathak-Sen is an expert in public deliberation and quality improvement in

healthcare. With extensive senior leadership experience in healthcare, Ela has a

proven track record in patient and family involvement in health services in both the

United Kingdom (UK) and the USA. An experienced facilitator and designer of

involvement methodologies, Ela has worked with AIR as methodology lead on the

Agency for Healthcare Research and Quality (AHRQ) sponsored Community Forum

and the Gordon and Betty Moore Foundation sponsored Roadmap for Patient and

Family Engagement in Healthcare Practice and Research. Ela's company Commotion

UK specializes in social entrepreneurship and change projects, ensuring the voice of

the patient and their loved ones is at the center of healthcare policy and decision

making.

Pat Mastors

Co-Founder / Executive

Director, Patients’ View

Institute

Pat Mastors serves as Co-Founder and Executive Director of the Patients’ View

Institute (PVI). PVI is a nonprofit organization founded to organize and amplify the

patient voice, so that patients can have more impact in driving improvement in the

health care system. PVI uses its web-based platform (GoPVI.org) to gather, weight

and tag patient stories (1,000+ to date), distilling actionable data tied to published

research with patients about what matters most to them. Pat also serves on advisory

committees for national health policy organizations, including National Quality

Forum (NQF) and the Agency for Healthcare Research and Quality (AHRQ), to

advance issues related to patient/family engagement, clinical decision tools, and

social mission in health professions education. Pat was a news and medical reporter

at New England television stations for many years before turning to patient advocacy,

prompted by unexpected the death of her father in the hospital from complications of

an infection. She worked with lawmakers to pass two Rhode Island patient safety

laws, created a bedside empowerment tool for patients, and published a critically

acclaimed book on partnering with patients to create optimal outcomes.


Jill Yegian

Senior Vice President,

Integrated Healthcare

Association

Jill Yegian leads the Integrated Healthcare Association (IHA)’s program staff, with

oversight for health care integration, performance measurement and reporting, and

payment innovation. Her responsibilities include program development and

implementation, knowledge translation and dissemination to share key findings from

IHA's decade of experience working on delivery system alignment and payment

reform, and policy analysis to guide organizational strategy. Prior to IHA, she co-

directed the American Institutes for Research’s (AIR) Health Policy and Research

Group, a team of over 70 health services research professionals. Jill’s areas of

expertise include health insurance and the uninsured, health care cost and financing,

and consumer use of quality and cost information for decision-making. Prior to

joining AIR, Jill spent 13 years with the California HealthCare Foundation (CHCF),

where she worked to improve the State’s financing and delivery systems for health

care. At CHCF, she led the foundation’s efforts to increase coverage among

California’s uninsured, and served as its first director of research and evaluation.

Ginamarie Gianandrea

Program Coordinator,

Integrated Healthcare

Association

Ginamarie Gianandrea is the Program Coordinator for the California Value Based

Pay for Performance Program (VBP4P) at the Integrated Healthcare Association

(IHA). Ginamarie supports VBP4P program communications and operations, with a

focus on performance measurement and public reporting via the VBP4P common

measure set. Ginamarie also supports other IHA performance measurement and

reporting efforts, such as the Medicare Advantage 5-Star Reporting of Physician

Organizations. Prior to joining IHA, Ginamarie was Project Coordinator for the

California Joint Replacement Registry (CJRR) at the Pacific Business Group on

Health, where she supported program operations including onboarding of new

participants, stakeholder communications, and public reporting of patient reported

outcomes.


Robert Wood Johnson Foundation (RWJF) & Gordon and Betty Moore Foundation

David Adler

Senior Communications

Officer, Robert Wood Johnson

Foundation

David Adler is a senior officer at the Robert Wood Johnson Foundation (RWJF),

working to increase the number of Americans with health insurance and improve the

value the nation gets for its investments in health and health care. David oversees

programs in several areas: educating individuals about coverage options made

possible by the Affordable Care Act, helping states learn from each other in the arena

of health policy, and making sure that consumers are represented in conversations

about cost, quality, and value in health care. David joined the Foundation in 2008 and

brought extensive experience working with community-based agencies and

individuals to help advance public health initiatives. He started his work at the

Foundation with the Childhood Obesity Team as a communications associate and

joined the Coverage team in 2010, initially as a communications officer and later as a

program officer.

Tara Oakman

Senior Program Officer,

Robert Wood Johnson

Foundation

Tara Oakman is a senior program officer at the Robert Wood Johnson Foundation

(RWJF) working to catalyze fundamental changes in our health and health care

system to measurably improve health outcomes for all. Prior to joining the

Foundation in 2013, Oakman served as director of the Quality Team at the Center for

Consumer Information and Insurance Oversight (CCIIO) in the Centers for Medicare

and Medicaid Services (CMS). Earlier, she was an international health officer with

the U.S. Department of Health and Human Services (HHS) Office of Global Health

Affairs and also served as a program analyst in the HHS Budget Office.

Anne F. Weiss

Team Director and Senior

Program Officer, Robert

Wood Johnson Foundation

Anne F. Weiss is a team director and senior program officer who leads Robert Wood

Johnson Foundation (RWJF)’s efforts to achieve the highest possible value from our

nation’s investments in improving health and health care. Anne joined the

Foundation in 1999, after a distinguished career in health care policy at both the

federal and state level. She served as senior assistant commissioner of the New Jersey

Department of Health, where she directed the state’s oversight of the quality of care

delivered by health care providers and health plans, and was also responsible for the

state’s hospital indigent care programs. She worked with physicians and hospitals

throughout the state to issue New Jersey’s first report card on health care quality. She

also served as executive director of New Jersey’s blue-ribbon health reform panel,

the Essential Health Services Commission, where she directed implementation of a

subsidized health benefits program for the working uninsured. She also has served as

a program analyst in the Office of the Assistant Secretary for Planning and

Evaluation, was a member of the steering committee of the National Academy for

State Health Policy, and served on the board of the National Association of Health

Data Organizations.


Susan Baade Song

Program Officer, Gordon and

Betty Moore Foundation

Susan Baade Song is a Program Officer in the Patient Care Program at the Gordon

and Betty Moore Foundation. In this role, she supports the program’s grantmaking

and strategic operations. Before joining the foundation, Susan was the program

manager for the Clinic Leadership Institute Emerging Leaders program at the Center

for the Health Professions at the University of California, San Francisco. She also

held positions at the National Association of Community Health Centers,

Northwestern University’s Feinberg School of Medicine and the Center for Bionic

Medicine at the Rehabilitation Institute of Chicago.

Beth Berselli

Program Officer, Patient Care,

Gordon and Betty Moore

Foundation

Beth Berselli is a Program Officer, Patient Care, at the Gordon and Betty

Moore Foundation in Palo Alto, California. In this role, she supports the

program’s grantmaking and strategic operations. Before joining the

foundation, Beth worked for Cambia Health Solutions in Portland, Oregon, as

the director of project management for startup SpendWell Health, which

created an innovative e-commerce marketplace that allows people to shop and

buy routine health care services directly from providers at a transparent price.

Prior to that, she was a product manager for Providence Health & Services,

where she helped launch the health system’s telehealth service.


Participants

David Andrews

Patient Advisor, Augusta

University

David Andrews has been a patient advisor at Augusta University (formerly Georgia

Regents Medical Center) for 12 years. During that period he has been a member of

many Patient and Family Advisory Councils, quality committees and quality

improvement projects. He has frequently been involved in training (both in Georgia

and at other hospitals) people from other facilities who are interested in learning how

to do Patient and Family Centered Care, and has done presentations at many

conferences, from the local to the international. He is currently a patient advisor for

the Georgia Hospital Association and with many other national organizations and

projects. He spends part of each year in Maine and has done training and

presentations as well as working with several organizations there. Before retirement

he was a college professor in New Hampshire.

Cynthia Barginere

Senior Vice President / Chief

Operating Officer, Rush

University Hospital

Cynthia Barginere is Senior Vice President and Chief Operating Officer for Rush

University Hospital, in Chicago, IL. Cynthia came to Rush in 2011 as the chief

nursing officer and associate dean for nursing practice and served in that role until

being promoted in June of 2015. She also spent nearly 13 years of her career at the

University of Alabama, Birmingham Hospital, a 908-bed, major academic and level-

one trauma center where she served as associate vice president and then chief nursing

officer with responsibility for quality/performance improvement and The Joint

Commission accreditation. She also served as chief operating officer and chief

nursing officer at Baptist Medical Center South where she led the organization in the

development and implementation of a new strategic plan; played a key role in

information technology transformation; led a facilities renovation plan; and

implemented coordinated hospitalist and intensivist programs. Cynthia has completed

multiple national leadership fellowships and currently serves as a member of the

American Nurses Credentialing Center (ANCC) Magnet Commission and the IOM

Committee Evaluating the Future of Nursing Report.

Laura Batz Townsend

Co-Founder / President,

Louise H. Batz Patient Safety

Foundation

Laura Batz Townsend is the Co-Founder and President of the Louise H. Batz

Patient Safety Foundation which was founded in honor of her mother Louise, who

lost her life to a preventable medical error in 2009. The mission of the Batz

Foundation is to prevent medical errors by ensuring that patients and families have

the knowledge they need for a safe hospital experience. The Foundation has

developed the Batz Guide For Bedside Advocacy for Adults in English, Spanish,

Dutch in Print and The Batz Patient Guide APP for iPhone, Android and iPad. The

Batz Foundation has also developed Weezie's Angels Pediatric Guide and the Batz

Transplant Guide for Children Pre- and Post-Transplant. Laura serves on the Board

of Consumers Advancing Patient Safety (CAPS), Chair of the PFAC at Seton

Healthcare in Austin, Steering Committee for the Patient Safety Movement

Foundation, and the Planetree Designation Committee.


Arlene S. Bierman

Director, Center for Evidence

and Practice Improvement,

Agency for Healthcare

Research and Quality

Arlene S. Bierman is Director of Agency for Healthcare Research and Quality’s

(AHRQ) Center for Evidence and Practice Improvement which consists of five

divisions: the Evidence-Based Practice Center Program; the U.S. Preventive Services

Task Force Program; the Division of Decision Science and Patient Engagement; the

Division of Health Information Technology and the Division of Practice

Improvement and the National Center for Excellence in Primary Care Research.

Arlene is a general internist, geriatrician and health services researcher whose work

has focused on improving access, quality, and outcomes of health care for older

adults with chronic illness in disadvantaged populations. Arlene has also developed

strategies for using performance measurement as a tool for knowledge translation and

conducted research to increase policymakers’ uptake of evidence. Previously, she

was a professor at the University of Toronto and a senior scientist in the Li Ka Shing

Knowledge Institute at St. Michael's Hospital. Arlene has served on many advisory

committees including the Geriatric Measurement Advisory Panel of the National

Committee for Quality Assurance (NCQA), the boards of Health Quality Ontario,

and the National Center of Excellence National Initiative for Care of the Elderly

(NICE).

Marc M. Boutin

Chief Executive Officer,

National Health Council

Marc M. Boutin is the Chief Executive Officer of the National Health Council

(NHC), the only organization that brings together all segments of the health

community to provide a united voice for the more than 133 million people with

chronic disease and disabilities and their family caregivers. Mark has been a leading

voice for greater patient involvement at every stage of the continuum, starting with

the development of new drugs, to regulatory oversight of health care delivery, to

shared decision-making at the point of care. Under his leadership, the NHC has

convened a broad range of stakeholders to create and effectively implement

pragmatic strategies and public policy that address diverse issues, such as enhancing

patient engagement, advancing the development of new treatments, and developing a

better health delivery system to meet the needs of people with chronic conditions.

Kevin Bozic

Professor / Chair, Department

of Surgery & Perioperative

Care, Dell Medical School, The

University of Texas at Austin

Kevin Bozic is the inaugural Chair of Surgery and Perioperative Care at the Dell

Medical School at the University of Texas, Austin. He is a nationally recognized

leader in orthopaedic surgery, health policy, and health care services research.

Previously, he was the William R. Murray Endowed Professor and vice chair of

Orthopaedic Surgery at the University of California, San Francisco, (UCSF) Medical

School. Kevin currently serves as a visiting scholar in the Institute for Strategy and

Competitiveness at Harvard Business School. His research interests are in the fields

of health policy and health care services research and specifically in the areas of

health care technology assessment, cost-effectiveness analysis, shared medical

decision making, and the implementation and evaluation of value-based payment and

delivery models. Kevin holds both regional and national leadership positions,

including member of the Board of Trustees of the Orthopedic Research and

Education Foundation, chair of the American Academy of Orthopedic Surgeons

Council on Research and Quality, and chair of the California Joint Replacement

Registry.


Katherine Browne

Constellation Consulting

Katherine Browne is an independent consultant working with clients and

communities to realize a vision of a health care system that delivers on its promise

and its potential. She has over fifteen years of experience driving improvements to

the health care system, managing cross-sector alliances, leading teams, and

developing strategy and operational capacity. Her areas of expertise include

ambulatory and hospital quality, specifically performance measurement, public

reporting/transparency, consumer engagement, and payment reform. Katherine

served as the deputy director of the Aligning Forces for Quality project and managing

director of the Hospital Quality Alliance. Prior roles have also included translating

research into practice at AcademyHealth and working on the Consumer-Purchaser

Alliance at the National Partnership for Women & Families. She has served on the

Board of Directors for several non-profit organizations, including the American

Hospice Foundation and the Visiting Nurse Associations of America as well as

participating on the Community Health Accreditation Partner’s Quality Standards

Board.

Jim Chase

President, Minnesota

Community Measurement

Jim Chase has served as President of Minnesota Community Measurement (MNCM)

since the organization’s inception in 2004. With more than 25 years of experience in

health care management, he is a nationally-recognized expert on performance

measurement and health care transparency. Prior to joining MNCM, he served as

Director of Health Purchasing at the Minnesota Department of Human Services. He

has held roles at multiple health plans and provider organizations throughout

Minnesota and has taught courses at the University of Minnesota in the School of

Public Health’s Health Administration program for many years. He is the past chair

of the Network of Regional Healthcare Improvement, a group of leading regional

health organizations working to improve the quality and value of health care in their

communities. He currently serves on the Boards of Directors of the National Quality

Forum (NQF), the Institute for Clinical Systems Improvement (ICSI) and Apple Tree

Dental.

Carolyn Clancy

Deputy Under Secretary for

Health for Organizational

Excellence, Department of

Veterans Affairs

Carolyn Clancy, a highly experienced and nationally recognized physician

executive, is Deputy Under Secretary for Health for Organizational Excellence at the

Veterans Health Administration (VHA). She oversees the VHA’s performance,

quality, safety, risk management, systems engineering, auditing, oversight, ethics,

and accreditation programs. Previously, she served as the VA Interim Under

Secretary for Health, overseeing the nation’s largest integrated health care system, as

well as 10 years as director of the Agency for Healthcare Research and Quality

(AHRQ). Carolyn holds an academic appointment at the George Washington

University School of Medicine and serves as senior associate editor of the journal

Health Services Research. She has also contributed to eight academic text books and

authored, co-authored, and provided invited commentary in more than 225 scholarly

journal articles. She served as member of the National Quality Forum (NQF) Board

of Directors, as chair of the Ambulatory Care Quality Alliance (AQA), and on the

Board of Governors of the Patient-Centered Outcomes Research Institute (PCORI).

An elected member of the National Academy of Medicine, Carolyn was most

recently presented with the 2014 Quality Champion Award, National Committee for

Quality Assurance (NCQA).


Alicia Cole

Founder, Alliance for Safety

Awareness for Patients

Alicia Cole is a survivor of multiple antibiotic-resistant hospital infections, near-fatal

sepsis and necrotizing fasciitis. While bedridden, and armed with a talk-to-type

program, Alicia began using social media to advocate for quality improvements in

healthcare. She helped co-sponsor and lobby successfully for passage of two

California laws for infection prevention education for healthcare workers and public

reporting of hospital infection rates. Honored by President Obama for her advocacy

work, Alicia now serves on the Presidential Advisory Council for Combating

Antibiotic Resistant Bacteria (PACCARB). Appointed to a four year term by

Secretary of Health & Human Services, Sylvia Burwell, Alicia was selected as a Co-

Lead for the Stewardship & Prevention Working Group of that esteemed council.

Her mission is to partner with stakeholders across the board to improve care.

Darren A. DeWalt

Chief of General Medicine,

University of North Carolina

at Chapel Hill

Darren A. DeWalt is Chief of the Division of General Medicine and Clinical

Epidemiology and associate professor at the University of North Carolina (UNC) at

Chapel Hill. He recently completed two years as director of the Learning and

Diffusion Group at the Center for Medicare and Medicaid Innovation (CMMI),

where he led a team designing and supporting improvement and learning activities

across the Center’s portfolio of new models of care. Darren has a long history of

research and quality improvement at local, regional, and national levels. Previously,

he was the principal investigator for the North Carolina Infrastructure for

Maintaining Primary Care Transformation grant from the Agency for Healthcare

Research and Quality (AHRQ). He also was principal investigator at the UNC

research site for the Patient Reported Outcomes Measurement Information System

(PROMIS), which develops advanced tools for measurement of symptoms, function,

and quality of life. Darren is interested in the use of self-report measurements among

vulnerable populations, particularly those with low literacy. Darren is a former

Robert Wood Johnson Clinical Scholar and completed his residency in internal

medicine and pediatrics at UNC at Chapel Hill, where he served as chief resident in

internal medicine.

Heyward Donigan

Chief Executive Officer, Vitals

Heyward Donigan is a leader in the healthcare industry with 30-years of experience

in all aspects of the health plan business. She has a passion for healthcare

consumerism and helping people make better decisions about their care. Previously,

Heyward was President and CEO of ValueOptions, driving innovation through

disciplined execution and taking company revenues to over $1 billion. She was also

Executive Vice President & Chief Marketing Officer at Premera Blue Cross. There,

she architected their consumerism strategy, a precursor for Premera’s transparency

solution. Heyward has also held executive roles at Cigna Healthcare, General

Electric, Empire Blue Cross BlueShield, and U.S. Healthcare.


Chris Duke

Director, Center for Consumer

Choice in Health Care,

Altarum Institute

Chris Duke is Director of Altarum Institute’s Center for Consumer Choice in Health

Care. As a social psychologist, he focuses on social barriers and drivers of patient

health and health care consumerism. His research focuses on health care access for

disadvantaged populations, patient engagement, and patient satisfaction. Chris has

conducted health care research for the Robert Wood Johnson Foundation, Centers for

Disease Control and Prevention (CDC), Department of Defense (DoD), Department

of Veterans Affairs (VA), and others.

Hala Durrah

Patient Family Centered Care

Consultant / Advocate

Hala Durrah is a patient family centered care advocate, speaker, and consultant. Her

professional background includes event and meeting management, non-profit work,

and development. Her passion for this work stems from her experiences as a mother

of a chronically ill child who has undergone two liver transplants and a bone marrow

transplant. Hala currently serves on a number of national committees, including the

American Academy of Pediatrics Family Partnerships Network Executive

Committee, CMS Executive Leadership Council for the Strategic Innovation Engine,

and the Patient-Centered Primary Care Collaborative Care Delivery and Integration

Cabinet. In addition, Hala has served on the IOM Patient Family Leadership Network

consultative group and the Schwartz Center for Compassionate Care and Gold

Foundation Triple “C" advisory group. Hala served as a volunteer co-chair of the

Women and Children’s Patient & Family Advisory Council (PFAC) at Anne Arundel

Medical Center (AAMC) in Annapolis, MD. Hala was a co-founder of the 1st

Women and Children's Patient and Family Advisory Council and assisted in

launching the first advisor-nursing shadowing program. Hala continues to share her

story and perspectives in national forums and with national associations.

Ian Eslick

Chief Executive Officer,

Vital Labs, Inc.

Ian Eslick is an entrepreneur, innovator, and Chief Executive Officer / Co-Founder

of Vital Labs, Inc., a digital health company based in San Francisco. He previously

co-founded two high technology venture startups, including Silicon Spice which sold

to Broadcom in 2000. Ian's doctoral work at the MIT Media Laboratory developed

scientific methodologies for patient-generated health data. He advises the C3N

Project of the Cincinnati Children’s Hospital, the Health eHeart project at the

University of California San Francisco, and Academy Health’s Electronic Data

Methods (EDM) Forum.


Kat Esser

Program Director, Innovation,

Center for Care Innovations

Kat Esser is a seasoned thought partner, coach, and change agent who gets joy from

teaching others about the power of human-centered design and innovation across

industries. Kat has led organizations including Kaiser Permanente, Ximedica, Calvin

Klein, and Martha Stewart through strategy, development and implementation of

human-centered product, service and experience innovations for over twenty years.

As Program Director for Innovation at Center for Care Innovations, she leads the

design and implementation of innovation programs that transform healthcare delivery

for our most vulnerable patient populations.

Ted Eytan

Medical Director, Kaiser

Permanente Center for Total

Health

Ted Eytan currently works as a Director at Kaiser Permanente, in The Permanente

Federation, LLC, and is the Medical Director of the Kaiser Permanente Center for

Total Health. Ted’s experience is in working with large medical groups and

technologists to leverage health information technology to ensure that patients and

their families have an active role in their own health care. His clinical interests are

preventive care and reducing disparities in health status among vulnerable

populations. He is a regular user of social media tools to promote open leadership.

Lori Frank

Program Director, Evaluation

and Analysis, Patient-Centered

Outcomes Research Institute

Lori Frank is Program Director, Evaluation and Analysis, with the Patient-Centered

Outcomes Research Institute (PCORI). Her current work is focused on understanding

the impact of inclusion of the perspective of patients and other stakeholders in

comparative effectiveness research. Prior to joining PCORI she served as Senior

Research Leader and Executive Director of the Center for Health Outcomes Research

with MEDTAP International/United BioSource Corporation. While there she initiated

and served as Principal Investigator of the Cognition Initiative of the Critical Path

Institute PRO Consortium, a multi-sponsor patient-reported outcome measure

development consortium. She has served on numerous advisory boards including the

Memory Screening Advisory Board of the Alzheimer's Foundation of America and

the National Quality Forum (NQF) Patient-Reported Outcomes Expert Panel. Her

career has focused on patient-reported outcomes measures development and

assessment and she has held research and teaching positions with Georgetown

University Department of Psychiatry; the National Institute on Aging; Medimmune,

LLC and AstraZeneca; and the Veteran’s Administration (VA).


Dominick L. Frosch

Chief Care Delivery

Evaluation Officer,

Palo Alto Medical Foundation

Dominick L. Frosch is Senior Scientist at the Palo Alto Medical Foundation

Research Institute and Chief Care Delivery Evaluation Officer at the Palo Alto

Medical Foundation. Dominick’s research has focused on advancing patient

engagement and patient-centered care for almost 20 years. His methodological

expertise includes intervention development, randomized efficacy and effectiveness

trials, implementation science, measurement and qualitative methods. Dominick’s

work has been funded by the National Institutes of Health (NIH), Department of

Health and Human Services (HHS), Patient Centered Outcomes Research Institute

(PCORI), Robert Wood Johnson Foundation (RWJF) and Informed Medical

Decisions Foundation. He has published over 100 articles, editorials and chapters in

the scholarly literature and serves as Deputy Editor for the Journal of General

Internal Medicine.

Mindy Hangsleben

Lean Entrepreneur Fellow,

Centers for Medicare &

Medicaid Services

Mindy Hangsleben is an Entrepreneur Fellow for the Centers for Medicare and

Medicaid Services (CMS). Currently she is working on accelerating the healthcare

marketplace by applying Lean tools to federal processes, such as the electronic

clinical quality measure development process, enabling significant cost savings,

increased productivity and higher quality. In addition, she leads the Lean cultural

transformation for all of CMS. Prior to CMS, Mindy worked at Intel Semiconductor

as a process engineer and taught and led Lean start-up transformations in healthcare,

software development, and manufacturing. Mindy has over 5 years leading Lean

transformations and applying problem solving methodologies.

Chris Hass

Senior Vice President,

Experience Design,

Mad*Pow

Chris Hass is a Senior Vice President of Experience Design at Mad*Pow. Chris

opened the Mad*Pow Boston office, founded the company’s UX research team in

2009, and currently serves as business development lead. Chris has unique expertise

conducting human factors research with persons who have physical and cognitive

disabilities, and designing information architecture and interaction designs for

consumer, medical, professional and human service products. Chris is the former

President of the International User Experience Professionals’ Association (UXPA),

and former president of the UXPA Boston Chapter. Prior to joining Mad*Pow, Chris

was a usability consultant and Interim Director of the Bentley Design and Usability

Center, a senior research scientist at the American Institutes for Research (AIR), and

a WWW Specialist at Harvard Medical School. Chris has published numerous papers

on usability including Optimizing Research Design for Diverse Target Populations,

and PHIN for all: Implementing Research Based Accessibility Practices into Web-

based Applications.


Mark C. Hornbrook

Chief Scientist, Center for

Health Research,

Kaiser Permanente

Mark C. Hornbrook is Chief Scientist at Kaiser Permanente's Center for Health

Research. His research career as a health economist has spanned over 43 years, and

he has published more than 210 peer-reviewed journal articles. He has been a long-

term faculty member at Oregon Health & Science University and Portland State

University. His current research focuses on health-related quality of life for long-term

survivors of rectal cancer; detection of recurrent breast, colorectal, and lung cancers

in claims and utilization data; and patterns of maternal health care and outcomes. He

is also studying the effects of increasing out-of-pocket costs on patterns of cancer

care in HMOs, a follow-up to his Medical Care Burden of Cancer study that assessed

the incremental medical care costs of cancers in integrated health care systems and

Surveillance, Epidemiology, and End Results Program (SEER)-Medicare fee-for-

service practice. His contributions to behavioral health research include successful

demonstrations of: 1) a self-management intervention for rectal cancer survivors with

ostomies; 2) a home health nursing intervention for frail elderly adults and their

family caregivers; 3) cognitive-behavioral interventions for depressed adolescents; 4)

falls prevention interventions for elderly health maintenance organization (HMO)

members; and 5) smoking cessation interventions with HMO members.

Stephen Hoy

Director of Strategy and

Programs, PFCCpartners

Stephen Hoy is the oldest of three brothers diagnosed with mitochondrial disease.

Stephen and his family have been navigating the healthcare system for over 20 years.

Growing up so deeply involved in his own care has given Stephen a profound view of

how patients and families can be used as a resource across all stages of the healthcare

continuum. Now, he works to advance patient and family centered care practices by

serving the role of advisor for Patient Centered Outcomes Research Institute

(PCORI) and the National Quality Forum (NQF).

Ann Hwang

Director, Center for Consumer

Engagement in Health

Innovation, Community

Catalyst

Ann Hwang is Director of the Center for Consumer Engagement in Health

Innovation, a hub devoted to teaching, learning, and sharing knowledge to bring the

consumer experience to the forefront of health. The Center works with consumer

advocates to increase the skills and power they have to establish an effective voice at

all levels of the health care system; collaborates with health plans, hospitals, and

providers to incorporate the consumer experience into the design of their systems of

care; and works with state and federal policymakers to spur change that makes the

health system more responsive to the needs of consumers, with an emphasis on the

care of vulnerable populations. In addition to leading the Center, Ann is a primary

care physician with Commonwealth Care Alliance. As the former Director of Health

Care Policy and Strategy for the Commonwealth of Massachusetts Executive Office

of Health and Human Services, Ann played a leading role in the implementation of

the state’s major health care initiatives, including the Affordable Care Act (ACA),

payment and delivery system reform and the Commonwealth's State Innovation

Model grant.


Rebecca Kirch

Executive Vice President of

Healthcare Quality and Value,

National Patient Advocate

Foundation

Rebecca Kirch is Executive Vice President of Healthcare Quality and Value for the

National Patient Advocate Foundation (NPAF), the advocacy affiliate of the Patient

Advocate Foundation (PAF). In this role, she provides strategic focus and leadership

in bringing the millions of patient and family voices these two organizations

represent to the forefront of national health care quality improvement efforts. As a

leading health policy expert and advocate in her field, Rebecca is dedicated to

improving quality of life and the quality of care for all adults, children and families

confronting serious illness. Rebecca previously served 15 years with the American

Cancer Society and its advocacy affiliate, the American Cancer Society Cancer

Action Network (ACS CAN). As the Society’s first Director of Quality of Life and

Survivorship, she orchestrated development of its national agenda addressing pain,

symptoms and distress experienced by patients, survivors, and caregivers, creating

collaborative initiatives in research, programs and advocacy for integrated palliative,

psychosocial, and rehabilitation services, as well as enhanced clinical communication

skills.

Ariel Klein

Senior Manager, Quality

Products, Castlight Health

Ariel Klein is a Senior Manager for Quality Products at Castlight Health. As a

member of the Product Development team, she oversees the presentation of clinical

quality and patient experience ratings in Castlight's health care transparency products.

Previously, she managed statewide physician clinical quality measurement and

medical group patient experience reporting at the Pacific Business Group on Health.

In prior roles, she conducted research and policy analysis for Steward Health Care,

the Commonwealth of Massachusetts, and the Urban Institute.

Sarah E. Kucharski

Coordinator of ePatient

Programs, Stanford Medicine

X

Sarah E. Kucharski is a consultant, public speaker, and advocate fostering the

patient voice in medicine through storytelling, social media, and design thinking for

innovation. Her special interests include narrative medicine, patient engagement, the

patient experience, doctor-patient relationships, patient-caregiver relationships,

chronic illness, clinical trials, research access, health literacy, and social media's

ability to connect for peer-to-peer support and medical education. She is Coordinator

of ePatient Programs for the emerging technology and healthcare innovation

conference Medicine X at Stanford University and CEO/Founder of FMD Chat, a

nonprofit medical organization. She has served as a technical committee advisor to

the Robert Wood Johnson Foundation's work on provider engagement and a

Foundation-sponsored guide to using narrative in healthcare. She is a co-author on a

paper regarding patient involvement in medical conference to be published in The

BMJ and a paper about best practices treating the rare disease fibromuscular

dysplasia to be published in Cardiology Clinics of North America.


Kevin Kumler

Vice President of Health

Systems, ZocDoc

Kevin Kumler is Vice President of Health Systems at digital health marketplace,

Zocdoc, leading the company’s hospitals and health systems business, which has

doubled under his leadership. From a medical family of orthopedists, pediatricians

and dental hygiene faculty, Kevin took to the business side of healthcare. He brings

15 years of experience to hospital and health system clients—applying his

entrepreneurial spirit and deep healthcare industry knowledge to help clients improve

their patients’ experience while growing their revenues.

Joseph C. Kvedar

Vice President, Connected

Health at Partners Healthcare

Joseph C. Kvedar is Vice President of Connected Health at Partners HealthCare.

His work focuses on creating a new model of healthcare delivery and developing

innovative strategies to move care from the hospital or doctor’s office into the day-to-

day lives of patients. At Partners Connected Health, Joseph is leveraging information

technology to improve care delivery as well as help providers and patients better

manage chronic conditions, maintain health and wellness, and improve adherence,

engagement and clinical outcomes. In 2013, Joseph launched Wellocracy, a leading

source of impartial, easy-to-understand information on new personal “self-health”

technologies like activity trackers, wireless devices and mobile apps to empower

people to get and stay healthy. He is internationally recognized for his leadership and

vision in the field of connected health, and has authored over 100 publications on the

subject; his popular cHealth Blog provides his insights and vision for connected

health. Joseph serves as a strategic advisor at Qualcomm Life, Puretech Ventures and

BD Technologies, and is a mentor at Blueprint Health and Harvard Innovation Lab,

providing guidance and insight to developing companies.

David Lansky

President / Chief Executive

Officer, Pacific Business

Group on Health

David Lansky is the President and Chief Executive Officer of the Pacific Business

Group on Health (PBGH) and directs its efforts to improve the affordability and

availability of high quality health care. A nationally-recognized expert in

accountability, quality measurement and health IT, David has served as the purchaser

representative to numerous health care policymaking programs, including the

Congressional Budget Office, the Department of Health and Human Services (HHS)

Learning and Action Network, and the Healthcare Transformation Task Force.


Luther Lowe

Vice President, Public Policy,

Yelp

Luther Lowe joined Yelp in 2008 as an account executive on the company’s sales

team and a year later moved into the role of Manager of Business Outreach, where he

built a department that educates small business owners about the importance of Yelp.

Since 2011, Luther has led public policy at the company. As Vice President of Public

Policy, he manages and directs the company’s global outreach to policy makers about

the vital role Yelp plays in driving economic activity to local businesses while

serving as a platform to empower and protect consumers. Previously, Luther worked

as a Special Assistant to retired four-star General Wesley Clark.

Alan Manning

Executive Vice President,

Planetree

Alan Manning is the Executive Vice President at Planetree, Inc. For 36 years,

Planetree has partnered with over 700 healthcare organizations in 19 countries to

advance the implementation of patient centered care culture and practices. Alan is

also the President of the Connecticut Center for Patient Safety, a group dedicated to

ensuring that safe and quality care is delivered at every organization throughout the

state. He is also the co-founder and Vice President of Kisses from Katie, Inc., a non-

profit that he and his wife started to help “take the edge off” for critically ill children,

their families, and caregivers.

Kym Martin

Founder, 360 Degree Insights

LLC

Four time Cancer Survivor

Kym Martin was named one of fifteen Disruptive Women to Watch in 2015, along

with the Honorable Ruth Bader Ginsburg, Maria Shriver, and Amy Berman, RN.

Kym leverages her 33 years of cancer survivorship, 20 years of wellness practice and

10 years of business development and client relations expertise to help expand

conversations and project deliverables around “patient experience.” Kym has

survived Hodgkin’s lymphoma, melanoma (2x) and breast cancer. Kym is a

Voiceover Artist, National Speaker and Patient Opinion Leader who shares her life

with Ross Martin, MD, a highly-skilled and entertaining leader in medical

informatics and healthcare information technology.


Anna McCollister-Slipp

Chief Advocate / Director,

Participatory Research,

Scripps Translational Science

Institute

Anna McCollister-Slipp is the Chief Advocate and Director for Participatory

Research at the Scripps Translational Science Institute (STSI), where she is charged

with bringing the expertise of patients, caregivers, and community physicians into the

design of health research. With Scripps, Anna recently formed VitalCrowd, a Web-

based collaborative platform aimed at crowdsourcing the design of health research. In

addition, she is co-founder of Galileo Analytics, a Visual Data Exploration and

advanced data analytics company focused on democratizing access to and

understanding of complex health data. Anna’s passion for innovation in health data

research is rooted in her personal experiences living with type 1 diabetes. As an

entrepreneur and advocate, she speaks frequently about the promise of digital health,

the imperative for patient data access and the need for improved outcomes measures

for chronic disease. Anna is one of the lead researchers for the recently awarded

National Institutes of Health (NIH) Precision Medicine Initiative Cohort Program, a

centerpiece of President Obama’s Precision Medicine Initiative. As part of a team

lead by STSI’s Eric Topol, Anna and her colleagues are creating technology

platforms, evaluating digital sensors and pioneering engagement methods that will

form the core of the NIH cohort program.

Lindsey Messervy

Innovation Engineer, Atrius

Health

Lindsey Messervy has worked at the intersection of healthcare, design, and human-

centered research for most of her career. She believes that we must imagine and

design new healthcare experiences in order for people to lead healthy, productive

lives. Recently, she has led the research and development of a new model centered on

supporting family well-being in order to improve health outcomes. She also led the

development of a Narrative in Healthcare Playbook, a toolkit co-created with 30+

thought leaders that leverages story to improve health outcomes.

Mary Minniti

Senior Policy and Program

Specialist, Institute for Patient-

and Family-Centered Care

Mary Minniti is a Senior Policy and Program Specialist at the Institute for Patient-

and Family-Centered Care (IPFCC) and a certified professional in healthcare quality.

Before joining IPFCC in 2011, Mary worked for 16 years at PeaceHealth, an

integrated delivery system in the Pacific Northwest, and managed diverse projects

focused on improving the patient experience of care. Mary has participated in a

variety of national efforts, including the Qualis Health Oral Health Framework for

Primary Care Committee, 2016; the Transforming Clinical Practice Initiative (TCPI)

PFE Measurement Strategy Workgroup, 2016; and the National Committee for

Quality Assurance (NCQA) Patient-Centered Medical Home (PCMH) 2017

Standards Committee. Actively involved in Oregon’s health care reform work, she

served on key state committees, leading efforts to integrate patients and families into

clinic redesign efforts and development of standards. The recommendations of a

taskforce she led established the Patient Centered Primary Care Home (PCPCH)

Technical Institute, which supports clinics across Oregon in meeting PCPCH

standards. Additionally, Mary was the principal investigator for an Agency for

Healthcare Research and Quality (AHRQ)-funded study on Medication Management

at Home: Patient Identified Processes and Risk Assessment. Her passion is bringing

patients and family members into conversations about health care transformation

because of the positive and powerful impact it creates for all involved.


Jean D. Moody-

Williams

Deputy Director, Center for

Clinical Standards and

Quality, Centers for Medicare

& Medicaid Services

Jean D. Moody-Williams is the Deputy Director of the Center for Clinical Standards

and Quality at the Centers for Medicare and Medicaid Services (CMS). Jean is a

member of the leadership team responsible for one of CMS’ Centers that has more

than 500 employees and a $3 billion annual budget. She is responsible for working

with a great team to lead policy activities for Quality Improvement Programs, End

Stage Renal Disease Networks, Survey and Certification, Quality Measurement and

Health Assessment, Clinical Standards, Coverage and Analysis, Quality Innovations

Models and many of the agency’s Value Based Purchasing and public reporting

programs for hospitals, physicians and ambulatory settings.

L. Gordon Moore

Senior Medical Director, 3M

Health Information Systems

Inc.

L. Gordon Moore is a Senior Medical Director for 3M Health Information Systems

Population and Payment Solutions who advises health systems, insurers, and others

on the intersection of payment, measurement, policy, data, technology and the

behaviors of health care delivery that predict triple aim outcomes. He prototyped a

Lean relationship-based primary care practice and collaborated in studying the

impact using patient-centered measures.

Garrett E. Moran

Vice President, Westat

Garrett E. Moran is a Westat Vice President and Associate Director with

experience in public policy, program evaluation, research, and management. He has

held key leadership roles on projects for the Agency for Healthcare Research and

Quality (AHRQ), the Substance Abuse and Mental Health Services Administration

(SAMHSA), and the Office of the Assistant Secretary for Planning and Evaluation

(ASPE) within the U.S. Department of Health and Human Services (HHS). His areas

of substantive expertise include integrated healthcare delivery, health care financing,

health information technology, and program evaluation. Garrett has served as the

Project Director of the AHRQ Quality Academy for Integrating Behavioral Health

and Primary Care since 2010. Garrett previously served as Deputy Commissioner,

then Commissioner for Community Support, in the cabinet of the Secretary of the

Department of Health and Human Resources for the State of West Virginia. In this

role, he guided public policy related to people with mental or substance use disorders,

developmental disabilities, and older adults. Garrett is also a clinical psychologist,

whose early career included several years of direct clinical work with people with

behavioral health disorders.


Deirdre Mylod

Executive Director of the

Institute for Innovation /

Senior Vice President of

Research & Analytics, Press

Ganey Associates, Inc.

Deirdre Mylod joined Press Ganey in 1997 and currently serves as the executive

director of the organization’s Institute for Innovation and senior vice president of

Research & Analytics. In this joint role, she is responsible for advancing the

understanding of the entire patient experience, including patient satisfaction, clinical

process and outcomes. Through the Institute, Deirdre partners with leading health

care providers to study and implement transformative concepts for improving the

patient experience.

Debra L. Ness

President, National

Partnership for Women &

Families

Debra L. Ness is President of the National Partnership for Women & Families where

she has played a leading role in positioning the organization as a powerful and

effective advocate for today’s women and families. Debra is a member of the Board

of Directors and chairs the Consumer Advisory Council of the National Committee

for Quality Assurance (NCQA). She was recently elected to serve as the first public

member on the American College of Cardiology (ACC) Board of Trustees and sits on

the management board of the National Cardiovascular Data Registry (NCDR). She is

also one of the first public members of the American Board of Internal Medicine

(ABIM) Board of Directors. Debra co-chairs the Consumer-Purchaser Alliance, a

group of leading consumer, employer, and labor organizations working to promote

high value care through the use of quality measurement, smarter payment, and

effective Health Information Technology (HIT). She serves on the Executive

Committee of the Health Care Transformation Task Force (HCTTF), and recently

completed service on the Board of Directors of the National Quality Forum (NQF).

Kathryn O'Callaghan

Assistant Director for Strategic

Programs, Center for Devices

and Radiological Health,

Food and Drug Administration

Kathryn O'Callaghan is Assistant Director for Strategic Programs at the Food and

Drug Administration’s (FDA) Center for Devices and Radiological Health (CDRH).

Katie oversees a broad program portfolio at CDRH, with teams supporting a number

of strategic partnership and regulatory science programs. Her focus is on directing the

Center’s 2016-2017 Strategic Priority of Partnering with Patients. This work aims to

promote a culture of meaningful patient engagement between patients and CDRH’s

employees, and to increase use and transparency of patient input as evidence in

regulatory decision-making. Execution impacts approximately 1,700 employees and

dozens of programs and policies across eight organizational departments. Katie is

dedicated to building productive partnerships and promoting availability of usable

information to reduce healthcare disparities and to drive more patient-centric medical

product innovation, evaluation and access. Katie is a biomedical engineer by training

and worked in MedTech industry prior to her 11+ years at FDA.


Sally Okun

Vice President, Advocacy,

Policy, and Patient Safety,

PatientsLikeMe

Sally Okun is the Vice President for Advocacy, Policy and Patient Safety at

PatientsLikeMe, an online patient powered research network. She is responsible for

bringing patient voices and insight to diverse advocacy and health policy discussions

at the national and global level, and is the company’s liaison with government and

regulatory agencies. Sally joined the company in 2008 as the manager of Health Data

Integrity and Patient Safety overseeing the site’s medical oncology and the

development of the PatientsLikeMe Drug Safety and Pharmacovigilance Platform.

She serves on advisory boards and expert panels including the PCORI Patient

Engagement Advisory Panel, Scientific Advisory Committee for Reagan-Udall

Foundation's IMEDS program, National Academy of Medicine, National Quality

Forum, Agency for Healthcare Research and Quality, The Commonwealth Fund, and

others. She is the co-chair for the Precision Medicine Initiative’s Engagement and

Communications Work Group.

Charlotte Parent

Assistant Vice President of

Community Affairs & Network

Navigation, LCMC Health

Charlotte Morgan Parent is the Assistant Vice President of Community Affairs and

Network Navigation for Louisiana-based, non-for-profit healthcare system LCMC

Health. In her role at LCMC Health, she serves as the lead executive on Medicaid

expansion operations and implementation across LCMC Health hospitals, oversees

the integration of nursing best practices across the health system and works on the

coordination and implementation of public health initiatives, alternative care delivery

models and new payment initiatives. Prior to this role, Charlotte served as the

Director of Health for the City of New Orleans, where she led the nationally

accredited New Orleans Health Department. Charlotte helped the department earn the

2013 Robert Wood Johnson Roadmaps to Health Prize for its transformational work

moving from direct services to population health initiatives. Previously, Charlotte

was the director of Maternal and Child Services at Touro Infirmary in New Orleans,

where she developed and oversaw services for expectant mothers and their families

throughout the childbirth and postnatal experience. She served in this role during

Hurricane Katrina and during the reopening of hospital services post-Katrina, when

Touro Infirmary was the only facility in New Orleans providing obstetrical services.

Jeanne Pinder

Founder / Chief Executive

Officer,

ClearHealthCosts

Jeanne Pinder is Founder and CEO of ClearHealthCosts, which brings transparency

to the health care marketplace by partnering with media and other groups to discover

and reveal prices. The partners use shoe-leather journalism, database analysis, and

crowdsourcing to shed light on prices for people, relieving their pain over their

medical bills and creating great news stories. Previously an editor, reporter, and

human resources executive at The New York Times, Jeanne is a leading expert on

pricing nationwide and was recently called one of the “benevolent geniuses” trying to

fix health care’s problems. She has been quoted in The Wall Street Journal, The New

York Times, USA Today, NPR, JAMA Internal Medicine, and The Los Angeles Times

and has spoken at Politico, Health Datapalooza, the Integrated Healthcare

Association, TedMed Great Challenges, and Grantmakers in Health. Jeanne created

ClearHealthCosts with funding from a group of devoted angels and with grants from

the Tow-Knight Center for Entrepreneurial Journalism at the City University of New

York Graduate School of Journalism; the Ford Foundation via the International

Women’s Media Foundation, in the Women Entrepreneurs in the Digital News

Frontier program; and the McCormick Foundation’s New Media Women

Entrepreneurs Program via J-Lab: The Institute for Interactive Journalism, at

American University.


Wendy Prins

Senior Advisor, Quality

Innovation, National Quality

Forum

Wendy Prins is Senior Advisor of Quality Innovation at the National Quality Forum

(NQF). She provides leadership to the National Quality Partners (NQP) program,

fostering multistakeholder collaborative partnerships that drive action, alignment, and

improvement on national health and healthcare priorities. Wendy has been with NQF

for eight years and previously led the work of the National Priorities Partnership,

guiding it through the provision of input to Health and Human Services on the

development of the National Quality Strategy. She is a champion of person-centered

care, particularly in the area of serious/advanced illness, and has overseen numerous

projects supporting these areas at NQF. Wendy has nearly 20 years of experience in

the healthcare industry and over 15 years in the field of healthcare quality. Early in

her career, she worked as a physical therapist across acute, post-acute, and home-

based settings in North Carolina and Georgia, providing rehabilitation primarily to

older adults and neurologically-impaired individuals.

Michelle Probert

Manager, Integrated Health

Services, General Dynamics

Bath Iron Works

Michelle Probert is Manager of Integrated Health Services at General Dynamics -

Bath Iron Works (BIW). Michelle is responsible for the oversight and strategic

management of employee health and welfare related benefits for over 12,000

employees and dependents. Michelle joined BIW in August 2014 after working for

state government for 10 years in Massachusetts and Maine, reforming payment and

provider relations for Medicaid and other health and social service programs.

Michelle is Vice Chair for the multi-stakeholder Maine Health Management

Coalition, advocating for public reporting of quality and cost information and value-

based payment reform. She is a 2016 Bruce Bradley Fellow for The LeapFrog Group,

focused on steering employees and their families to safer, higher-quality hospitals

and health systems.

Raj Ratwani

Scientific Director, National

Center for Human Factors in

Healthcare, MedStar Health

Raj Ratwani is the Scientific Director of MedStar Health’s National Center for

Human Factors in Healthcare and is an Assistant Professor of Emergency Medicine

at Georgetown University’s School of Medicine. His research career is focused on

improving the safety, efficiency, and quality of healthcare through the application of

human factors and applied psychology. His research has been funded by federal

agencies such as the National Institutes for Health, the Agency for Healthcare

Research and Quality, the Office of the National Coordinator, as well as by private

foundations. Raj has authored over forty peer-reviewed publications and has been

invited to give numerous talks in the area of human factors, health information

technology, and patient safety. In addition to his research efforts, he has testified in

front of, and advised, the U.S Senate Health, Education, Labor and Pensions (HELP)

committee and several other federal advisory committees focused on improving

health information technology safety and accessibility for patients.


Jacob Reider

Chief Information Officer /

Chief Medical Informatics

Officer, Alliance for Better

Health

Jacob Reider is a family physician who wants the world to be healthier. He has

worked for decades to improve the health of our communities through the innovative

use of technology, and the promotion of benevolence in business. Jacob is currently

Chief Information Officer (CIO) & Chief Medical Informatics Officer (CMIO) of

The Alliance for Better Health Care, an organization in Albany that is working to

improve care and health for Medicaid beneficiaries. Jacob recently served as the

Deputy National Coordinator for Health Information Technology at the US

Department of Health and Human Services (HHS). In his three years at HHS, he was

responsible for the policies and programs designed to improve health through the

development and implementation of safer, more resilient, reliable, usable, helpful and

interoperable information technology. He has more than 20 years of experience in

health information technology with a special interest in user experience, clinical

decision support and information portability. He formerly served as Medical Director

of Hospital Informatics at Albany Medical Center, and as Associate Dean for

Biomedical Informatics at Albany Medical College where he continues to teach on an

adjunct basis. He co-founded three successful health IT start-up companies, served as

the CMIO Allscripts, of one of the nation’s largest health IT developers, and was on

the Executive Committee of the HIMSS EHR Association, as well as the Board of

Trustees of the Society of Teachers of Family Medicine.

Lygeia Ricciardi

President, Clear Voice

Consulting, LLC

Lygeia Ricciardi is a thought leader in consumer engagement and digital health. Her

consulting practice, Clear Voice Consulting, focuses on helping clients succeed in

engaging consumers more effectively in their health via digital tools. Previously,

Lygeia established and directed the Office of Consumer eHealth at ONC (Office of

the National Coordinator for Health Information Technology), where she integrated

the consumer perspective into federal policies and programs and led the Blue Button

Initiative. She has also worked on technology and its impact at Harvard Business

School, the Markle Foundation, the Federal Communications Commission, and

several startups.

Eduardo Sanchez

Chief Medical Officer for

Prevention, American Heart

Association

Eduardo Sanchez serves as Chief Medical Officer (CMO) for Prevention and Chief

of the Center for Health Metrics and Evaluation for the American Heart Association

(AHA). Prior to joining AHA, he served as Vice President and CMO for Blue Cross

and Blue Shield of Texas (BCBSTX). He served as Health Officer for the State of

Texas overseeing the Texas Department of Health from 2001 to 2004 and the Texas

Department of State Health Services from 2004 to 2006. Eduardo currently serves as

Chair of the National Commission on Prevention Priorities and the Texas Public

Health Coalition. He also serves on the National Academy of Medicine (NAM)

Roundtable on Obesity Solutions; RWJF Culture of Health Prize Advisory Group;

RWJF Health Policy Fellows Advisory Board; and the National Quality Forum

Disparities Standing Committee. In addition, Eduardo currently serves on the Board

of Directors of Trust for America’s Health, AcademyHealth, and on the University of

Texas Health System Health Care Advisory Committee.


Lewis G. Sandy

Executive Vice President,

Clinical Advancement,

UnitedHealth Group

Lewis G. Sandy is the Executive Vice President (EVP) of Clinical Advancement,

UnitedHealth Group (a Fortune 25 diversified health and well-being company

dedicated to helping people live healthier lives). At UnitedHealth Group he focuses

on clinical innovation, payment/delivery reforms to modernize our health care

system, and physician collaboration. He also is a Principal in the UnitedHealth

Center for Health Reform and Modernization, with a focus on payment/delivery

innovation and policy. From 2003 to 2007, he was EVP and Chief Medical Officer of

UnitedHealthcare, UnitedHealth Group’s largest business focusing on the

employer/individual health benefits market. From 1997 to 2003, he was EVP of the

Robert Wood Johnson Foundation where he was responsible for the Foundation's

program development and management, strategic planning and administrative

operations. Prior to this, Lewis was a program VP of the Foundation, focusing on the

Foundation's workforce, health policy, and chronic care initiatives. Lewis is also an

internist and former health center medical director at the Harvard Community Health

Plan in Boston, Massachusetts.

Amy Sherwood

Managing Director,

CedarBridge Group

Amy Sherwood serves as Managing Director at CedarBridge Group where her work

focuses on innovative healthcare practices, regulatory compliance, policies,

engagement, and technology to support care coordination, improve health outcomes,

and lower healthcare costs. In 2014-2015, Amy served as the Healthcare Innovation

Liaison to the Intermountain Healthcare Transformation Lab for the Health and Life

Sciences group at Intel Corporation. Prior to that she was a Lean Innovation Fellow

at the Centers for Medicare & Medicaid Services (CMS), selected as one of six

private sector entrepreneurs in the HHS Entrepreneurs-in-Residence Program. In this

role, she focused on accelerating the development and implementation of electronic

Clinical Quality Measures (eCQMs) by standardizing and reducing variation and

waste in associated programs and processes. Additionally, she was the State of

Oregon Meaningful Use Coordinator for Tuality Healthcare where she participated in

an employer-led healthcare marketplace collaborative which used Lean and user-

centered design principles to improve access, increase quality, and reduce the cost of

healthcare for patients.

Leah Tuzzio

Research Associate, Group

Health Research Institute

Leah Tuzzio is a Research Associate at the Group Health Research Institute’s

MacColl Center for Health Care Innovation and the Center for Community Health

and Evaluation in Seattle. Her research focuses on improving patient experience,

reducing health care costs, and improving the quality of care. From 2005 - 2013, she

was the Project Director for Dr. Ed Wagner’s National Cancer Institute (NCI)-funded

Cancer Research Network (CRN), a consortium of 14 research centers embedded in

health care systems studying the effectiveness of cancer control interventions and

quality of cancer care. Her work on Dr. Wagner’s Learning from Effective

Ambulatory Practices (LEAP) initiative, funded by the Robert Wood Johnson

Foundation (RWJF), led to the www.improvingprimarycare.org toolkit. She is

currently the Project Director for Dr. Michael Parchman’s EvidenceNOW Healthy

Hearts Northwest project which is funded by the Agency for Healthcare Research

and Quality (AHRQ), a researcher for the National Institutes of Health (NIH)

Collaboratory’s Health Care Systems Interactions Core, and provides technical

assistance to the Patient-Centered Outcomes Research Institute’s (PCORI) Asthma

Evidence to Action Network. Leah is a co-chair for the Health Care Systems

Research Network’s Patient Engagement in Research Scientific Interest Group and

co-leads Group Health’s Patient-centered Care Interest Group which led to the

publication, A Framework for Making Patient-Centered Care Front and Center.

http://www.improvingprimarycare.org/


Nick van Terheyden

Chief Medical Officer,

Dell Communications

Nick van Terheyden is the Chief Medical Officer for Dell Communications. He is

responsible for providing strategic insight to help Dell advance its support of

healthcare organizations, medical professionals, and patients through information-

enabled healthcare and working with clients gathering insights and direction and

helping them navigate clinical issues and applying innovative solutions in an

increasingly complex healthcare industry. He brings a distinctive blend of medical

practitioner and business strategist to the realm of healthcare technology. Nick is a

pioneering creator in the evolution of healthcare technology and worked as a business

leader in one of the first speech recognition companies.

September Wallingford

Operations Director,

Costs of Care

September Wallingford is the Operations Director for Costs of Care, a global non-

governmental organization that curates insights from clinicians, patients, and

administrators on the frontlines of healthcare delivery that lead to better care at lower

cost. She oversees strategy, coordination, and execution of Costs of Care’s growing

programs. As a practicing nurse at a large, academic medical center in Boston,

September joined Costs of Care in 2013 to enhance the visibility of the nursing

profession in empowering clinicians and patients to deflate medical bills. She

believes that nurses are essential partners in creating and maintaining cultures of

value among clinicians and patients and their families.

Saul J. Weiner

Co-Founder / Principal,

Institute for Practice and

Provider Performance

Improvement (I3PI)

Saul J. Weiner is an internist and pediatrician who coined the term “contextual

error” to characterize care plans that are consistent with guidelines or research

evidence but nevertheless inappropriate because they fail to take into account a

particular context, such as a patient's inability to pay for a brand name medication

when a less costly generic would be equally effective and more affordable

(www.contextualizingcare.org). For over a decade, his research team has conducted

large scale studies employing both unannounced standardized patients and recruiting

real patients to study contextual error by carrying concealed audio recorders into their

visits. Saul is co-founder and principal of the Institute for Practice and Provider

Performance Improvement, a professor of medicine, pediatrics and medical education

at the University of Illinois at Chicago, and deputy director of the US Department of

Veteran’s Affairs (VA) Center of Innovation for Complex Chronic Healthcare.


Ronald M. Wyatt

Patient Safety Officer /

Medical Director, The Joint

Commission

Ronald M. Wyatt is the Patient Safety Officer and Medical Director at The Joint

Commission. In this role, Ronald directs data management and event analysis in the

Office of Quality, and he collaborates in the development of National Patient Safety

Goals, Sentinel Event Alerts, and Quick Safety publications. Ronald leads The Joint

Commission’s efforts to address health and health care disparity and equity.

Additional areas of interest include professionalism and work place safety in health

care.

making health care measurement patient- centered: a convening … · 2016-09-21 · making health...

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