looking back to look forward: hiv futures trend data

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Melbourne, Australia Rachel Koelmeyer, Jeffrey Grierson and Marian Pitts Australian Research Centre in Sex, Health and Society, La Trobe University, Melbourne, VIC, Australia Looking Back to Look Forward: HIV Futures Trend Data 20 March 2012 Making Positive Lives Count

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Rachel Koelmeyer (ARCSHS Research Officer), presents data from the HIV Futures studies, looking at changes that have occurred over time in the experience of living with HIV in Australia. She also briefly describes the Tracking changes and Lifetimes studies, the findings of which may be useful to consider in service planning This presentation was given at the AFAO Positive Services Forum 2012.

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Page 1: Looking Back to Look Forward: HIV Futures Trend Data

Melbourne, Australia

Rachel Koelmeyer, Jeffrey Grierson and Marian PittsAustralian Research Centre in Sex, Health and Society, La Trobe University,

Melbourne, VIC, Australia

Looking Back to Look Forward:

HIV Futures Trend Data

20 March 2012

Making Positive Lives Count

Page 2: Looking Back to Look Forward: HIV Futures Trend Data

Today’s Presentation

• HIV Futures Data

– Changes over time

• Other Living with HIV Projects

– Tracking Changes study

– Lifetimes study

Page 3: Looking Back to Look Forward: HIV Futures Trend Data

HIV Futures Data

Page 4: Looking Back to Look Forward: HIV Futures Trend Data

HIV Futures Surveys

• National, cross-sectional surveys of PLHIV• Sample weighted against national surveillance data

• Full reports available at: www.latrobe.edu.au/hiv-futures

Futures

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Futures

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Futures

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Futures

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Futures

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Futures

6Year(s) 1997 1999 2001 2003 2005/6 2008/9Sample Size 925 924 898 1059 973 1106Proportion of estimated population (%)

8.0 8.0 6.0 8.1 6.4 6.6

Page 5: Looking Back to Look Forward: HIV Futures Trend Data

Antiretroviral use

Page 6: Looking Back to Look Forward: HIV Futures Trend Data

Difficulties using ARV (%)

Page 7: Looking Back to Look Forward: HIV Futures Trend Data

Do ARVs mean better prospects?

Page 8: Looking Back to Look Forward: HIV Futures Trend Data

Self-rated Health

Page 9: Looking Back to Look Forward: HIV Futures Trend Data

Using Medication for Mental Health Condition (%)

Page 10: Looking Back to Look Forward: HIV Futures Trend Data

Employment Status (%)

Page 11: Looking Back to Look Forward: HIV Futures Trend Data

Poverty

Page 12: Looking Back to Look Forward: HIV Futures Trend Data

Relationship status (%)

Page 13: Looking Back to Look Forward: HIV Futures Trend Data

Discrimination – ever experienced

Page 14: Looking Back to Look Forward: HIV Futures Trend Data

Other Living with HIV Projects

Page 15: Looking Back to Look Forward: HIV Futures Trend Data

Tracking Changes

• Aim: To investigate treatment decision-making in the recent post-HAART era in Australia

• Method: – Online survey of PLHIV (n=254)– Interviews with HIV S100 prescribers (n=18)– Data collection: Nov 2010 – Mar 2011

• Key findings:– Patient-centred decision making– Psychosocial barriers to commencing/switching HAART

regimens– Importance of doctor-patient relationship to PLHIV

• Report available: www.latrobe.edu.au/arcshs/

Page 16: Looking Back to Look Forward: HIV Futures Trend Data

National longitudinal online survey (ARCSHS and NAPWA)Compares HIV-positive and HIV-negative gay men aged 40 years over

Physical health, mental health, sex, and relationships

Wave 1: November, 2010 – April, 2011 1,233 gay men (202 HIV+; 904 HIV-) aged 40 to 78

Wave 2: November, 2011 – April, 2012 So far we have a 48% follow-up rate

Outcomes so far:HIV+ men aging well in most domains relative to HIV- men

But poorer mental health outcomes: 37% of HIV+ men reported treatment for a mental health problem compared with 25% of HIV- men

Contact: Dr. Anthony Lyons at ARCSHS, [email protected]

Anthony Lyons, Marian Pitts, Jeffrey Grierson

Page 17: Looking Back to Look Forward: HIV Futures Trend Data

Summary: Areas for Future Work?

• Address psychosocial barriers to taking ARV

• Management of comorbidities

• Employment / financial position of PLHIV

• Addressing ongoing unwanted disclosure and discrimination, especially in relation to health services and work

• Supporting PLHIV to establish and maintain fulfilling relationships