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Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17

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Page 1: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Loneliness in Older People with an Intellectual Disability

Presented by Andrew Wormald

Date 09/06/17

Page 2: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Defining Loneliness

– Loneliness is the distressing feeling that accompanies discrepancies between one’s desired and actual social relationships (Hawkley et al., 2010), and contributes to serious disease and premature death (Lynch, 1977)

– Loneliness is not isolation

– Loneliness is not depression

Page 3: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Why Should we be concerned about Loneliness? Consistent Loneliness

– Reduces quality of life

– Premature mortality

– Loneliness raises Systolic Blood Pressure

– Increases levels of the stress hormone epinephrine

– Causes DNA changes dampening cortisol response

– Causes DNA changes that affect the response to bacteria and viruses

– Creates Sleeping Difficulties

– Increases use of medications

– Increases alcohol consumption

Page 4: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Why should we be concerned about Loneliness?

Consistent Loneliness is Nearly Double in the ID population

0

5

10

15

20

25

30

IDS-TILDA Victor et al. (2015) Victor et al.(2008) Wenger & Burholt (2004)

Jylha (2004)

Consistent Loneliness

Page 5: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Population Wave 2,N=315. Longitudinal, N=297

23.9

46.5

24.3

5.3

IDS-TILDA Level of ID

35

50

Level of ID

Mild

Moderate

Severe

Profound

31.2

47.2

21.6

Type of Residence

Indep/Family

Community group home

Residential Care

17.1

35.6

47.3

IDS-TILDA Residence

Page 6: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Loneliness Model Perlman & Peplau (1988) Cognitive Discrepancy Approach to Loneliness

Cognitive Attribution Model.

Trajectories of Loneliness

Page 7: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Loneliness Scale

Page 8: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Antecedents of Loneliness Hawkley et al. 2008

Page 9: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Antecedents of Loneliness Predisposers and precipitators

Protective Against Loneliness

Fewer Functional Limitations

Page 10: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Cognition and Attributions Burholt & Scharf (2013)

Page 11: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Cognition and Attribution

Cognitive Loop

Negative Framework

Expect more negative

outcomes

Remember more negative

events

Elicit Negative Behaviour

Page 12: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

The role of depressive thinking

Page 13: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Experience of Loneliness Victor et al. (2008)

Trajectories of Loneliness: Consistently Lonely Regenerative Degenerative Never Lonely

Page 14: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Trajectories of Loneliness

0

10

20

30

40

50

60

Never Regenerative Degenerative Consistently

IDS-TILDA

Victor et al.(2008)

Wenger & Burholt (2004)

Jylha (2004)

Page 15: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Trajectories of Loneliness

Consistent Loneliness (26%)

– Being Older

– Being Female

– Experiencing Pain

– Having more Chronic Conditions (Protective)

– Falling

– Experiencing Difficulty Doing Activities

– Voting in Last Election

– Holidaying Abroad (Protective)

Page 16: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Trajectories of Loneliness

Never Lonely (42%)

– Low on Functional Limitations

– Individualised Personal Plans

– Social Lives Matched Desires

Page 17: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trajectories of Loneliness

Regenerative (19%)

– Changed the amount they met family and friends

Degenerative (12%)

– Movement within the service organisation

Page 18: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Outcomes of Loneliness Hawkley & Cacioppo (2007)

Page 19: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Proportions

Page 20: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Analysis of Covariance

Page 21: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Binary Logistic Regression

Page 22: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Physical Outcomes

Loneliness Predicts Sleeping Problems

Loneliness Predicts Raised Blood Pressure

Page 23: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Coping with Loneliness

Lonely People do more moderate exercise

Report Diet as Good or Very Good

Attend Church Services

Vote in Elections

Active Engagement

Page 24: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Final Model

Page 25: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Avoiding & Overcoming Loneliness

1) Focus personal planning on the needs of the person.

2) Tackle high levels of depression.

3) Train staff to facilitate individual social lives.

4) Encourage the development of community-based social roles.

5) Consider the effect on individuals when making organisational changes.

Page 26: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Trinity College Dublin, The University of Dublin

Acknowledgement

Grateful appreciation to the participants and families

Funders

Page 27: Loneliness in Older People with an Intellectual Disability€¦ · Loneliness in Older People with an Intellectual Disability Presented by Andrew Wormald Date 09/06/17 . Defining

Thank You