Steppingout

newsSpring 2010 Issue 7

Gardeners’worldJoin Livability this summer at our open garden days

We are hosting summer events for Livability supporters in spectacular English gardens.As well as the chance to explore exquisite gardens, we will be offering refreshments,entertainment and the chance to buy your own plants and gardening supplies.

Saturday 10 July Latchetts, Haywards Heath, Sussex

Sunday 18 July Jenningsbury, Hertford Heath, Hertfordshire

Suggested donation £10 per ticket.For more information telephone 020 7452 2115 or email events@livability.org.uk

Livability creates choices for disabled people and brings life tolocal communities. We trace our history back to the Victorianpioneers Lord Shaftesbury and John Groom. Today we offer awide range of support and education for disabled people andalso provide churches with resources to impact their communities.Livability’s president is Baroness Howarth of Breckland and ourroyal patron is HRH The Princess Royal.

A holidayromance 6

A big step for alittle girl 8

Personalbudgets 14

ContentsYour legacy 5

Staff & supporters 12

Finding hidden treasure 13

Events 13

Open garden days 14

Dear supporter,

It’s easy to take things for granted.Whenever we do something regularly,the novelty soon wears off. It justbecomes one of those things thatwe do.

Walking is one thing I rarely give muchthought to. I walk around my house,climb up and down the stairs in theLivability office, stroll to the shops, rushto the train station, never really thinkingof the miracle of walking. But the storyof Danielle reminds us that walking issomething to be grateful for. Thisdetermined 9-year-old has recentlybegun to walk, thanks to thephysiotherapists at Victoria EducationCentre.

Similarly, when I think about holidays,my main challenge is finding time totake a break. Then I have to decidewhere to go away. I never have toworry about hunting for a holidaydestination that I can access. But forso many disabled people, holidays areall but impossible as hotels are simplynot built with them in mind. Vera andBarrie are a couple who do not taketheir holidays for granted, they cherishthe special time they spend at theWest Shore.

I hope that the stories in this edition ofLivability News will challenge you, asthey have me, and inspire gratitude forall that we have.

Thank you for your support,

Mary Bishop, chief executive

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Message fromMary African inspiration

Victoria Education Centre and Sports College (VEC) has alwaysunderstood the positive effect that sport has on the lives ofdisabled and disadvantaged people. Last year, VEC startedworking with Mbeleni Primary School in South Africa to buildlinks through the International Inspiration programme, agovernment-led initiative inspired by the 2012 Olympic Games.

International Inspiration seeks to use the power of sport to uniteschools and communities across the world through the powerof high quality and inclusive physical education, sport and play.Sebastian Coe, chair of London 2012 says: “Our vision is to usethe power of the Games to inspire change – and changing livesis the driving force behind our plans…Victoria Education Centreand Sports College’s involvement is another key step towardsdelivering that.”

One of Livability’s core values is to work in partnership, not justwith those who use our services, but with their families, localcommunities and other organisations. So far this partnershiphas included visits to and from both schools as well as anAfrican drumming lesson in the VEC sports hall, which was anabsolute delight. “It’s such an honour to be one of the 150schools taking part in this incredible programme,” enthuses viceprincipal Sue Stratis. “We believe that the cultural andeducational learning curve we are on will be an invaluableresource when working with pupils at VEC to help build lives ofindependence and choice.”

Thank youEaster already seems a long timeago, but we want to say thank youto all who were able to give to usover that special time of renewaland hope. We wrote to you aboutHugo (right), one of the serviceusers at Lifestyle Choices inBedford. After miraculouslysurviving a vicious attack, Hugocame to Livability. We supportedhim as he rediscovered hispassion for sport and took uparchery. But Hugo’s accomplishments on the archery range are onlya fraction of what he has achieved in the last few years. Hisconfidence and self-esteem are increasing through getting out of thehouse and meeting new people. His balance and coordination areimproving through being physically active. Thanks to our kindsupporters, we can continue our vital Lifestyles work in Bedford,Northamptonshire and Plymouth, and we are planning to extend ourwork into north London as soon as possible.

That is the big question being asked this year by theChristian Legacy consortium, a group of leadingChristian charities including Livability. We havelaunched the campaign to encourage people to thinkabout what they are going to leave behind.

Today’s Church owes a huge debt of gratitude tofaithful Christians of the past, who have left us such avaluable inheritance – famous people like Shaftesbury,Wesley, and Wilberforce, as well as millions of ordinarypeople. But what will be the legacy of our generation?The Christian Legacy campaign wants to challengeevery Christian to decide what they want to hand on tothe future.

The campaign started with a series of adverts inleading Christian magazines, featuring well-knownChristian writers, speakers and personalities and theirvision for the future. The campaign then developed byfeaturing the visions of the chief executives of membercharities, including our own Mary Bishop. Lateradvertisements will include ideas sent in by membersof the public.

The Christian Legacy consortium is hoping to remindpeople just how important their legacy can be, and toencourage them to leave a legacy to their favouriteChristian charities when writing their will.

Minibuses are vital for our service users to get out into thecommunity

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Stuck inside with no way to get out: that's theexperience of disabled people from our LifestyleChoices centre in Northamptonshire after their onlyminibus was stolen.

Like anyone, they had been looking forward to asummer of trips and visits, enjoying the goodweather. But for disabled people, it's all the moreimportant as isolation can be a real problem. In fact,Lifestyle Choices was set up specifically to challengethe problems of loneliness by supporting disabledpeople to become active in their local community.And now, without their wheelchair-accessibleminibus, many plans will have to be cancelled.

Based in a fairly rural area, the centre is not servedby public transport, and with a new minibus costingaround £30,000, this is a dreadful blow. Lifestyle

Choices are hoping to buy a new minibus as soonas they can, so that their members can get out andabout and take part in the activities that they love.

Stolen minibus

What will your legacy be?

Christian Legacy adverts have been appearing inleading Christian publications

Like most of us, Vera and Barrie look forward totheir annual holiday. But it’s certainly notsomething they take for granted.

For Vera and Barrie, holidays are a chance to relax,have fun and spend time together as a couple. Theyhave been married for 26 years and have alwaysenjoyed going away together. But a few years ago, astroke left Vera paralysed on her left side anddependant on a wheelchair. Barrie became her full-time carer.

For many disabled people like Vera, finding a holidaythat meets their needs is a frustrating and oftendisappointing process. As one disabledholidaymaker remarked after a particularlyunsuccessful vacation: “The hotel’s idea of anaccessible bathroom meant leaving my wheelchairoutside and struggling into the shower. After monthsof planning, my break was in tatters.” This loss ofdignity is all too common for disabled people andleads to feelings of isolation and frustration.

Livability is working hard to solve this problem. Webelieve that everyone should have the opportunity tolive life to the full, whether disabled or not. So our

eight self-catered holiday homes and two hotel-styleproperties offer holidays that are fully accessible.

Since discovering Livability Holidays, Vera andBarrie have rediscovered a sense of freedom. Everyyear they visit the West Shore in Llandudno, Wales.There they enjoy a fully accessible holiday thatmeets all Vera’s needs and allows them to have funalong the way. “It’s like a second home to us,” saysBarrie. “We have been to the West Shore seventimes, and we just keep coming back. It haseverything we could possibly want in a holiday andVera feels so special and taken care of.”

Speaking to the couple, it’s clear that Vera’s strokewas a terrible blow for both of them. But what is alsoobvious is that they are still very much in love. Theycherish going on holiday because it gives them timeto spend together as husband and wife.

‘Everything is taken care of for usby the staff at the West Shore,so I really get to spend quality timewith Vera’

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A holiday romance

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“Our holiday is the one place where I know there willbe nothing standing in the way of Vera and I havingan excellent time,” says Barrie. “The food isfantastic, the staff are friendly and understandingand the room has every facility Vera needs. She canenjoy a holiday where her dignity remains intact, andwhere being disabled isn’t a barrier for her.”

Vera and Barrie’s holiday at the West Shoretraditionally lasts for a week. “We never run out ofthings to do,” says Barrie. “There is so much to seeand do around the area. And we are never restrictedby transport because the West Shore’s privateaccessible minibus is available to take us out on ourday trips. We would never get this level of care in atraditional hotel. We are able to enjoy our holiday theway we want to enjoy it. Nothing stands in our way.”

For many people taking a Livability holiday, it is oftenthe first time they have been able to go awaytogether as a family. “This is why Livability Holidaysare so important,” says Andy Hibble, manager of theWest Shore. “Families are often forced to choosebetween not going away and leaving a disabledrelative in respite care. Taking a Livability holidayensures that nobody is excluded and that families,

couples and friends are able to enjoy themselveswithout the usual barriers getting in their way.”

This summer is another busy one for the LivabilityHolidays team. Our self-catering properties and ourhotel-style options, the West Shore in Llandudnoand the Promenade in Minehead are booking upquickly. Thanks to your support, Livability can openup holiday opportunities to hundreds of people likeVera and Barrie every year.

If you would like to find out more about LivabilityHolidays or to book a holiday of your own, pleasecontact Livability Holidays on 08456 584478 or visitwww.livability.org.uk/holidays

Last September, when a teacher asked Danielle’smother, Marie, if she’d like to see Danielle walk,Marie assumed that Danielle would be using herwalking frame as usual. Marie told us: “I went to thesports hall and watched Danielle from behind apartition. She didn’t know I was there. And when Isaw that she could actually walk a little way byherself without any help whatsoever, I cried my eyesout! Every parent wants to see their child take theirfirst steps, but when you have waited nine years it’sjust so overwhelming.”

A very special schoolIt’s largely thanks to the long-term help of Livabilitysupporters that Danielle was able to take her firststeps in the sports hall that day. Your generosityhelps fund Danielle’s school, Victoria Education

Centre and Sports College, where pupils enjoy thevery highest standards of support and therapy.

The school is on a mission to give the best possiblestart in life to children with physical disabilities andassociated neurological and learning difficulties,offering advanced levels of care that simply aren’tavailable in mainstream schools. It has around 100pupils from nursery age through to 19 and whilst afew are residential students, most live at home withtheir families and attend the school each day.

Danielle started going to VEC when she was just twoand a half and has continued as a day pupil eversince. Marie told us she looked at many differentschools, but had no doubt that VEC was the bestoption for Danielle. The small class sizes, friendly,specialist care and safe environment all help toreassure Marie that Danielle is in very good hands.

A big step for a little girlWhen Danielle was diagnosed with cerebral palsy at six months, her parents didn’tknow if she would ever be able to walk by herself. Thanks to Livability staff at VictoriaEducation Centre and Sports College (VEC) and nine years of determination andperseverance, Danielle has taken her first independent steps.

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Starting to walk has opened up a new world of opportunities for Danielle

Dedicated teachers and therapistsWhen Danielle took her first unaided steps in thesports hall, it was a landmark achievement. But it wasby no means her first. Two years previously, Daniellehad already reached another important milestonewhen she stopped being reliant on a manualwheelchair and started using a walking frame.

Danielle’s physiotherapist, Andre Kirby, works withher intensively every day. He told us that theprogress Danielle has made with her walking overthe last couple of years has had far-reaching effects.

“When I first started working with Danielle a coupleof years ago, she was still in a manual wheelchair.She was entirely dependent on somebody else toget to where she wanted to go. Without someoneelse’s help, she couldn’t get to the people shewanted to talk to. Since she’s been using a walkingframe, she can decide for herself who she wants totalk to. She’s chosen her own friends, which issomething most of us take for granted. So she’smuch more sociable and a lot happier.”

Amy Hunt, who is the lead learning support assistantin Danielle’s class, agrees: “Danielle’s confidence hasreally developed alongside her walking skills. She’smuch chattier than she ever used to be and she hasa fantastic sense of humour.”

The wonders of waterWhen meeting Danielle, it’s pretty clear that she ishappy at school. She loves nearly every aspect ofschool life and is extremely enthusiastic. Her particularfavourite activity is definitely swimming. Like most ofthe pupils at VEC, she swims every week. Hercondition means that the muscles in her legs are often

very tight, but the warm water helps to relax them.And, of course, playing in the water is great fun!

It’s not surprising that Danielle loves to be in thewater. Most youngsters enjoy floating and splashingaround, but for children like Danielle who havecerebral palsy, the benefits of being in the water aremagnified many times over.

In order to help the children's muscles relax, thewater in the VEC pool is kept at a much highertemperature than the swimming pool in a localleisure centre. The heated water eases the tension inDanielle’s over-tight muscle fibres.

While Danielle enjoys the water, physio Andre is usinggames to encourage stretching exercises to increaseher flexibility. And the resistance of the water helpsbuild up Danielle's muscle strength. It's all valuablephysical training and while her body's getting abrilliant workout, Danielle's having a whale of a time!

Although Danielle loves being in the pool, getting inand out of the water is not quite such fun.

The waiting gameAt the moment, Danielle and her fellow pupilstypically spend the same amount of time getting inand out of the swimming pool as they do in thewater. So for an hour-long session, they typicallyonly spend 30 minutes in the pool. That's becausethe pool, which is now 27 years old, still has itsoriginal hoist, which is very slow and awkward to usecompared to new-style hoist facilities.

Naturally, Danielle and her friends find this prettyfrustrating! It’s also very frustrating for their therapists,who know that the relaxing and invigorating time thechildren spend in the pool is undermined by the ordealat either side of the hydrotherapy session.

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In capable hands: Danielle works with physio Andre

We very much hope, however, that this situation willchange before too long. Livability has launched theSparkle Appeal to raise funds for a brand newhydrotherapy pool and therapy centre. This is a reallyexciting project because it will give Danielle and herfellow pupils at VEC – as well as other disabledchildren in the community – the first-classenvironment they clearly deserve.

What’s next for Danielle?Danielle’s life has changed so much since shestarted to be able to get around independently – firstwith a frame and now, for short distances, byherself. But her physiotherapist Andre is keen tokeep her moving forward. Each individualphysiotherapy goal he sets is small and incremental,but he knows just where he wants her to head next.

Andre says, “We’re working towards self-initiation ofwalking. We want her to be able to initiate that firststep by herself. We also want her to be able to stopduring her journey and change direction. And beyondthat, we’d love to see her learn to adapt her speed.

Danielle enjoys the achievementsshe’s made and I enjoy working withher. She always remembers the lastgoal we have set her – and wehaven’t stopped yet.”

On the day that we met Danielle,she showed great determinationand strength of character. Nothingwas going to get in the way of herwalking and showing us what shecould do.

Livability’s vision is for disabled people torealise their full potential and achieve realindependence in their lives. And with her firstindependent steps under her belt and newprogress every day, it’s obvious thatDanielle’s future is looking incredibly bright.

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Danielle's mum is onhand during a physiosession

Danielle's school-mateenjoying hydrotherapy

Architect's drawingof the new pool wehave planned

March 2011 will see one of the biggest shake-ups ofthe care system in decades. For the first time, disabledpeople will be given control of their own care budget,instead of government bodies deciding what types ofsupport, therapy, housing and leisure activities theyare entitled to. Disabled people will be given the chanceto make their own decisions. They will be able tospend their Personal Budget how they choose.

Livability is excited about the advent of PersonalBudgets. They aim to give disabled people greaterchoice and control over their own lives – somethingwhich is at the heart of all our work.

However, when we talk to disabled people, very fewof them have heard about this new system. As aresult, the Livability campaigns team felt it necessaryto do some research to find out just how preparedthe country is for this major change.

Our researchWe used a professional polling company to conductinterviews with over 500 young disabled people.They were asked if they had heard of PersonalBudgets, and what kind of changes they would liketo make to their lives once they had one.

Because Personal Budgets will be run by localauthorities, we also wanted to see how preparedthey were. So we phoned half of all the localauthorities in England – over 100 of them – and askedif they had any information they could send us. Wealso visited their websites to see whether they hadany information online, and how good it was.

The resultsThe results were disappointing. They show that withonly a year to go, very few disabled people havebeen told about these major changes. Localauthorities have not made the effort to communicatewith people who live in their area. In fact, most localauthorities haven't even put information up on theirwebsites. If the government is serious about givingdisabled people choice and control of their lives, itwould be a good idea to let them know!

Spreading the wordLivability has worked hard to get this research intothe public eye. We started by sending the results toall MPs and local authorities. We also contacted thepress, asking them to write about this issue.Subsequently, Livability has been invited to speak toa number of local authorities, to help them preparefor March. We hope that our campaign hasencouraged local authorities to communicate betterwith their disabled residents, and spread the wordabout Personal Budgets.

Personal budgets– is England ready?Next March, the way the care system works willchange radically. Livability set out to discover howprepared the government is.

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Why I support LivabilityI worked in social housing for over 20 years and Isee its provision as key to unlocking a healthy society.But bricks and mortar alone do not make a home -and that's where organisations like Livability comein. Livability changes people’s lives by giving themopportunities and the confidence to take control. Irun a lot, but at least once a year I like to run amarathon for more than just a medal. Running forLivability lets me do that, as I know that in a tinyway I am contributing to transform someone's life.

Stephen Wakeford

Thanks to youA big thank you to Mrs Audrey Osborne and her friends for their fundraising efforts for John Grooms Court inNorwich. They organised a bring and buy sale and coffee morning which raised over £170. Mrs Osborne,who generously hosted the event, said that it was a great success and good fun too.

The money will go toward our building project, creating five new flatlets in our Norwich home. Thanks tothe support of Mrs Osborne and her friends, we are a step closer to achieving that goal.

Diana Newbury is in chargeof fundraising at VictoriaEducation Centre. We askedher about her work:

Tell us a little bit aboutVictoria’s fundraising appeal.We’ve called it the SparkleAppeal, and its aim is to raise

£4 million so that we can completely transform oursport and therapy facilities. We work with disabledyoung people in a holistic way – so physiotherapyand hydrotherapy are vital parts of their time atschool, alongside standard lessons. This buildingwork will completely change the way we are able towork with disabled children in helping them achievereal independence and choice.

What does the Sparkle Appeal mean to you?Being able to work at VEC with all these amazingchildren and staff is such a privilege. I’m not a nurseor a teacher so usually I wouldn’t get to be a part ofthis incredible work.

Adding a bit of sparkle

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What is the most rewarding aspect of your job?Every day when I come to work, I see how together,staff and students are constantly achieving incrediblethings and how when this work is complete, VEC willbe able to help disabled children and their familiesfor many years to come. I feel so satisfied andgrateful when a big cheque comes in because itmeans we are getting closer and closer to our goal.

What is your best Livability memory?I was there the day Danielle (see page 8) took herfirst steps. What I saw in that moment was the resultof her constant determination and hard work. Itsolidified my purpose for working here and I knewthen that if I showed the same determination andtenacity as Danielle, I would be able to achieve greatthings!

If you could say one thing to our supporters,what would it be?Thank you. Thank you for your generosity. Every dayI see first-hand what can be achieved because ofwhat you have given us.

Supporter Stephen completes the marathon.

At Livability, we believe that disabled people have an enormousamount to offer to church life. However, too often barriers are put intheir way that hide the contribution they can bring; too often the giftsand faith of disabled people are a hidden treasure waiting to bediscovered. The barriers faced by disabled people are not just physicalaccess to premises, but access to information and understanding.As a partner in the Churches for All coalition of Christian disabilitycharities, we are working to dismantle these barriers.

This year there will be three major initiatives to encourage and helpchurches include disabled people in every way possible. First,Livability will participate in the Churches for All zone at the ChristianResources Exhibition in Surrey from 11-14 May. The zone will includeinteractive activities, seminars and workshops to stimulate andinform church leaders.

Then, on 6 June, Churches for All is promoting Disability Sunday.A resource pack called Finding Hidden Treasure has been puttogether to help congregations engage more fully with disabled people.Visit www.churchesforall.org.uk to download a free copy.

Finally, on 7 October there will be the first Churches for All conferencein London. Livability is currently helping to put together the programmeof speakers and seminars that will address issues of concern tochurches, including theological aspects of disability, recognisingeveryone’s gifts, and enabling churches to become more welcoming.

For further details on any of these events, please contact AlastairEmblem on 020 7452 2118.

On amission

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Finding hidden treasure

As I write, I’m on an evening trainreturning from leading a workshopfor a Salvation Army project inSunderland. As a Livabilitycommunity mission advisor, I hadbeen asked to evaluate their workand help the team implement somenew recommendations.

Based in one of the poorest wards ofSunderland, it’s as inspiring as thecommunity projects featured inChannel 4’s Secret Millionaireprogramme. Like many of the projectsvisited by the cheque-book-in-handundercover millionaires, this projectwas started and is energised by itsChristian faith. This same radical faithdrives Livability to work for peace,justice and true community for ourneighbours both locally and globally.

Jeremiah 29:7 says: ‘Seek the peaceand prosperity of the city to which Ihave carried you into exile. Pray to theLord for it, because if it prospers, youtoo will prosper.’ Jeremiah reminds usof the lifestyle that Christians are calledto, wherever they may find themselves.Although Channel 4 viewers may notknow the Christian ethos driving theschemes, the communities they serveare better places because of theinclusion, compassion and stayingpower the projects demonstrate.

This to me is true community missionin action.

Disabled people have an important role to play in the Church

Adam is a Livability communitymission advisor, helping churchestransform their communities.

Golf DayFriday 25 JuneSelsdon Park Golf Club, Croydon isthe venue once again for this year’sgolf day. We are looking for bothteams of four and individuals to playon this championship course. Theclub also has a beautiful hotel whichis offering Livability supporters aspecial rate of just £49 per night fortwo people sharing. So why not turnthe golf day into a weekend getaway?

City Charity Cup footballchallengeFriday 16 JulyHosted by former England and WestHam defender Alvin Martin, the Citytackles disability in this5-a-side football tournament. Testyour skills in a penalty shoot-outagainst an ex-England goalie. Manyother competitions and prizesthroughout the evening. Enter yourteam now.

Hike Hadrian’s Wall10-12 SeptemberSpend three days walking 25 milesalong the remaining sections ofHadrian’s Wall. The walk passesthrough some of Britain’s mostspectacular countryside. Spend time inNorthumberland National Park andfinish at Brocolitia Roman fort.

Royal Parks Half MarathonSunday 10 OctoberThis half marathon winds its wayacross four royal parks; Hyde Park,St. James’s Park, KensingtonGardens and Green Park. As always,this spectacular run promises to beone to remember!

For more information on any of theseevents please call the events team on020 7452 2115 or if these eventsdon’t take your fancy, why notorganise your own? For a communityfundraising pack, contact Kerry on020 7452 2112.

Events calendar

Livability open garden daysWhat could be better than a summer’s day spent in abeautiful English garden?

Enjoy a lovely day out with your family or friends wandering throughthe gardens and browsing market stalls. Relax with tea and cakeson the lawn while listening to a brass band. As well as refreshmentsand gardening quizzes, there will also be lectures by leadinghorticulturists and an area to purchase plants and cuttings.

Saturday 10 JulyLatchetts, Haywards Heath, SussexFeatured in Sussex Life as a top 25 garden to visit, Latchetts gardenis full of variety and imagination. The fine lawns show off colourfulborders with mature and new trees, roses, dahlias and many otherplants and shrubs. There are beautiful water features, a watergarden, raised vegetable beds, a fruit cage, a labyrinth, a sunkengarden, and a Christian garden, as well as stunning vistas. You’resure to be inspired!

Sunday 18 JulyJenningsbury, Hertford Heath, HertfordshireFeatured in the Sunday Telegraph, Jenningsbuy has acres of stunningwildflower meadows designed by award-winning landscape andgarden designer Julie Toll. A 17th-century farm house sitssurrounded by a thousand-year-old moat. Wander through thegarden admiring the carnassias, tradescantias, ox-eye daisies, andorchids. Follow the path past a large pond, a bog garden, primulasand a fernery. The pond features large koi carp and water lilies andis edged with wild and cultivated plants. The Daisy Roots Nurserywill be open for you to purchase plants and cuttings.

Tickets for the open garden days are complimentary, however asuggested donation of £10 per ticket would be greatly appreciated.Tickets will be allocated on a first come, first served basis. Pleasecall our ticket hotline to reserve your tickets 020 7452 2115 or emailevents@livability.org.uk

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‘Prayer is the nerve that movesthe hand of God.’Livability’s prayer diary helps you to prayfor us with more insight and focus.

The diary is sent out three times a year.It includes weekly prayer requests anditems for praise. Articles about our latestwork will help inform your prayers.

Join the hundreds of Christians whosupport us with their prayers. To sign upfor Livability’s prayer diary please phone020 7452 2021 or emailinfo@livability.org.uk

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Livability50 Scrutton Street, London EC2A 4XQTel: 0845 264 1194 Fax: 020 7452 2001fundraising@livability.org.uk www.livability.org.uk

Livability is the new face of John Groomsand the Shaftesbury Society

InspirationWhat does the Lord require of you?

To act justly and to lovemercy and to walk humblywith your God.Micah 6:8