leveraging contextual inquiry methods to empower patients in a learning health system
TRANSCRIPT
Leveraging Contextual Inquiry Methods to Empower Patients in a Learning Health System
HICSS’48, January 2015. Presenter: Sanjeev KumarCo-Authors: Ted Hanss, Lynn Johnson, Charles Friedman, Katherine Donaldson, Kathleen
Omollo, Janee Tyus, Josh Rubin
Patient Empowerment
Self
Trans-formation
Shared Decision Making
Concept
Care TeamPatient
Web
Family & Friends
Provide information that closes the knowledge gap and leads to self-transformation
Sharing the learned experiences
How do patients
find, evaluate, and
use health
information?
Where are patients
learning and how are
they learning?
What is the
patient's own
self-learning
cycle?
How do authors of
healthcare content get
information to patients in
a way that it is useful to
patients and helps them
engage to improve their
health?
What labeling on the
source of information
will cause patients to
trust it, find it more
credible, and pay more
attention to it?
Study design
Key research questions
Other prompts
Prompts related to a
time when the patient could
not find information.
Patient
Prompts related to the
patient’s appointment
with his or her provider
Prompts related to follow-up
Prompts on access to
information sources
Prompts related to self-
learning
Do you try to learn more about your condition [or progress] before your doctor’s appointment?
When you are with your doctor [or nurse, therapist, ...] do you like them to share information about your diagnosis and treatment plans?
Has anyone from your care provider team followed up with you to check if you are comfortable in using the information that was provided to you?
Do you remember a time when you tried to find some information related to your condition but were not able to?
Do you keep a log of blood pressure/other condition-related readings?
Do you own a smartphone? [And/or tablet, laptop, or any other device such as Fitbit?]
Other prompts
Prompts related to a time when the patient could not find information.
Prompts related to the patient’s
appointment with his or her provider
Prompts related to
follow-up
Prompts on access to
information sources
Prompts related to
self-learning
Pre-Appointment
Appointment
Post-Appointment
Protocol developed for the patient interviews
Excerpts from Patient Interviews
Design Principles
A f f i n i t y w a l l a n a l y s i s
Multiple Tiers/Levels of abstraction to condense and cluster the excerpts
Patient-centric design domains
Information gathering
Information sharing
Information access
Ownership and onus
Communication
Personalization
Discussion
T2.7: I want to have access over my health information.
T2.15: I do my own research.
T2.8: I would like to choose in what medium I receive information.
T2.11: I like the ability to turn on and off reminders.
T2.8: I would like to choose in what medium I receive information.
T2.2: I trust information that I find on my own if it is authored by a reputable organization.
T2.3: I want to engage my healthcare team in between the appointments.