let's talk research 2015 - mel chapman - public involvement in the dissemination of research
TRANSCRIPT
Let’s Share Research!
Public involvement in the dissemination of research
Aims
• Aims:• Why do members of the public need to
be involved in dissemination?• What are the issues, benefits and
challenges of involving members of the public in sharing research findings?
• How can they be involved?
Introductions
Your experiences• Have you shared research findings with the
public?• Have you involved patients and members of the
public when disseminating research findings? • How did you do this?• What worked well?• Were there any difficulties?
Why involve the public in dissemination?
• Ethical reasons• Help summarise research findings in clear
user-friendly language• Ensure that information is accessible to a
public audience• Think of creative ways to engage the public• Share results with their networks• ‘Be noisy’ – create demand
How can I involve the public?• Actively involve and engage with people throughout the research
process: • Ownership• Knowledge
• Include funding for public involvement in dissemination in grant application
• Allocate funding for summaries and postage in grant application• Developing dissemination and impact plans• Presenting at conferences• Speaking to patients, support groups and service providers• Co-authors• Acknowledge contribution• Provide appropriate training and support
• PROUD Study – PrEP as a public health intervention for gay men
• Two films:• Interviews with people who took part in the
trial, doctors, scientists, public health experts and community advocates
• 'Voices of the Participants' exploring the experiences of three of the participants
http://www.ctu.mrc.ac.uk/news/2015/proud_film_premiere_02072015
• University of Leeds initiative• Research journals hard to access, cost, specialised
language• Aims to improve communication of medical research
to non-specialists:• Reviewing what is good/bad about how existing
research is communicated (e.g. newspapers, videos on internet)
• Compiling new and better ways to communicate research
Other examples….
• PAtient-Centred Trials (PACT)
• CHOICE
Scenarios
• Two scenarios
• Use the dissemination planner to develop a dissemination strategy
Useful links and resources• Involving members of the public in disseminationINVOLVE Briefing note eight:
Disseminating research http://www.invo.org.uk/posttypecycle/disseminating/
In the Loop https://sites.google.com/site/intheloopleeds/
PROUD study http://www.ctu.mrc.ac.uk/news/2015/proud_film_premiere_02072015• Involving members of the public as co-authorshttp
://emahsn.org.uk/images/resource-hub/PPI%20documents/How%20to%20guidance/How_to_involve_people_as_co-authors.pdf
• Plain English summaries http://www.invo.org.uk/resource-centre/plain-english-summaries/
• Developing a dissemination strategyhttps://depts.washington.edu/ccph/pdf_files/CARE_Dissemination_Strategies_FINAL_eversion.pdf
http://www.innovations.ac.uk/btg/resources/publications/dissemination.pdf• Training and support
NIHR Research Design Service North West: http://www.rds-nw.nihr.ac.ukhttp://www.salford.ac.uk/onecpd/courses/preparing-for-patient-and-public-involvement-in-research
North West People in Research Forum contact details
Email: [email protected]
Phone: 0161 935 8433
Website: www.northwestpeopleinresearchforum.org
Twitter: @nwpirf