learning disabilities: turning improvement ideas into local action (sharon jeffreys)
TRANSCRIPT
www.england.nhs.uk
Building the Right Support for Learning Disabilities
Turning improvement ideas into local action
Kia Oval, Surrey County Cricket Club, London SE11 5SS
19 July 2016
Transforming Care in Lincolnshire: Coproduction, Coproduction,
Coproduction
Sharon Jeffreys – Head Commissioning of Learning Disabilities and Autism Jo Minchin - Expert by Experience
True Co-production with those with a lived experience
- Engaging with people who use the services and their families and carers to find out what works well and what we need to do better
- Partnership Boards- Expert by Experience Workers
Engaging with people who use the services and their families and carers to find out what works well and what we need to do better
What we did• Sent all invites in easy read• Put our photos on the
invites• Held events all around the
county• Different times of the day
Feedback from Events• People felt like we really
wanted them to attend• High turn out compared to
other engagement events• People felt listened to• People liked that we
smiled on our pictures
The Re-launch of the Autism Partnership Board – 30th January 2015
The Re-launch of the Autism Partnership Board – 30th January 2015
The Launch of Lincolnshire's All-age Autism Strategy – 2nd April 2015.
The theme was creativity of people
with ASD
Status Cards
Making bigger meetingsautism friendly
Also known as flapplause. Flap, don’t Clap.
Display Cards
Other reasonable adjustments• Maps to, and of the venue.• Consider lighting and background noise.• Ask participants if there are things that
might cause a problem before the meeting.
• One page profiles.• Making the adjustments individualised.• Match people to their strengths.
Expert by Experience workerI work with other autistic people, in one work stream I do this on the Autism Partnership Board (APB). I chair the A-team, collaboration group of autists and parent carers of autistic people, and I don’t think that the group would thrive as it does if it were not being steered by an autistic person. I can also be seen by the members to be a valued part of a bigger team within service shaping and commissioning. I am paid to do my role, that is noteworthy and valued deeply by the other A-team members. I don’t have to convince them that I am on their side, and they see that I do bring their views and concerns to those deeper within the commissioning team.My involvement in Care and Treatment Reviews (CTRs) has been both useful for the team and for the individuals the CTR has been for. In some cases, I am the only member of the team the individual has wanted to talk to. I have the experience of a disability, there is already a shared understanding between us.
Transforming Care Team Recruitment
The interview panel process and any other activity that is conducive to enhancing positive images, results, maintenance and other such elements in relation to autistic people and essentially the entire community, is wholly endorsed by myself and it was an absolute pleasure to be given the opportunity to provide authentic input. Authentic input is integral to all elements mentioned above and beyond because autistic people are not hopeless, motionless, un-impactful beings and deserve to be majorly if not completely involved in everything that concerns them and others which is not to imply 'them' and 'us' but to confidently communicate that this approach is for everyone's benefit. Callum, expert by experience
panel.
Transforming Care Team RecruitmentIt was vital that we knew how the panellists felt about working with autistic people. One of the best ways to do that is to actually see how they interact with us, and deal with our sometimes quirky behaviour.One of the panellists conducted most of his part of the interview whilst lying on the floor behind some filing cabinets. I spent much of it spinning thread on my spindle, and the other panellist had some pressing questions on an issue that he is campaigning about. We all had something different and unique to bring to the process, and we made a good teamIt was interesting to see how people responded to our question about how they felt about working with us. Most responded with a carer / patient scenario, whereas a few more enlightened ones started talking about us as work colleagues. That was the answer we were looking for, though we admit, it’s a very forward thinking model at the moment. I wish it wasn’t.Jo: Expert by experience panel
Transforming Care Team Recruitment I feel that it was a good opportunity to see what kinds of people wanted these jobs, and to see how well they could set aside the jargon and formality in exchange for frank communication. I will say that the technical qualifications went over my head. I could not possibly judge whether someone is capable of doing something I cannot. However, seeing how an applicant dealt with one of their interviewers lying on the floor was a useful test, I think. It is a very comfy floor.And, of course, the obvious: It's good to have at least one autistic person involved at in selecting someone who will have significant influence over many other autistic people.Joshua: Expert by experience
panel
