june 8-10, 2018 the vinoy renaissance resort & golf … is committed to providing high quality...

June 8-10, 2018The Vinoy Renaissance Resort & Golf Club

St. Petersburg, FL

AMERICAN ASSOCIATION OF KIDNEY PATIENTS2

On behalf of the AAKP Board of Directors, it is my honor to welcome you to our National Patient Meeting. AAKP is America’s oldest and largest fully independent patient lead kidney organization and your involvement helps us honor our educational and advocacy mission and prepares you to help other patients who need to learn more about how to manage and prevail over their disease.

AAKP follows a national strategy that balances educational activities with a very strong national advocacy effort. This strategy is based on particular principles. First, we honor the principle of no surprises among government officials and allied organizations - AAKP is about being effective and impactful - not simply loud. Second, we seek out opportunities to involve our patient members in the policy and educational efforts of their government and allied kidney organizations. Third, AAKP is committed to providing high quality health education materials and advocacy training to our members at a very low cost - and we do not charge to be a member of AAKP. These principles and this strategy have helped us grow and maintain our distinction in the kidney community.

This year’s Convention Committee has worked diligently, with your input, to create a timely and educational program to further equip you with information designed to make you more effective at advocating both your personal decisions regarding your care and our issues as patients in the larger policy arena.

Some highlights of the program include AAKP’s most recent policy achievements and what they mean for your care now and in the future, the latest innovations and emerging technologies and practical tools to help you amplify your voice in the public square. You will have the opportunity to learn from leading renal and healthcare professionals; Federal government representatives from the Center for Disease Control and Prevention; the Centers for Medicare and Medicaid Services; the National Institute of Health; the Veterans Health Administration; industry representatives; and fellow patients who are living their best life possible with kidney disease.

Social media is a growing and driving presence in all we do. We strongly encourage you to take advantage of the Social Media Center during your time at this meeting – tweet, post, or blog about your meeting experiences in real-time. Take advantage of the complimentary WiFi offered to our meeting attendees and be sure to use our meeting hashtag #kidneypatients18. Most importantly, like us on Facebook, follow us on Twitter – start a conversation.

From the entire AAKP Board and professional staff, thank you once again for joining us in Florida!

Welcome to the 2018 American Association of Kidney Patients National Meeting! We are excited to have you here in St. Petersburg. We have three days of amazing sessions for you- including information on how to be an empowered patient as well as information about staying active, understanding your lab values, diet, dental health and clinical trials. This meeting has information about all types of treatment for kidney disease- from dialysis to transplant. This year we also have sessions for family members and caregivers only- allowing these important people the opportunity to learn about issues important to them.

Please don’t miss the popular lunch with the experts, where you can enjoy a meal and conversation about a topic important to you. This year we are excited to offer two days of lunches with experts! Friday’s lunch speakers are the ultimate experts- patients and family members. Each day, join us in the exhibit hall, where you can learn more about resources that can help you. Be sure to join us at the awards banquet to learn more about the great work of our AAKP members. Use the conference hashtag #kidneypatients18 and post away about the meeting on Twitter, Facebook and Instagram. Please be sure to let me or any of the AAKP staff know how we can help you, and enjoy your time in St. Petersburg!

Paul T. Conway PresidentAmerican Association of Kidney Patients

Teri Browne, PhD, MSW, NSW-CProgram Chairperson

WELCOME TO THE 2018 NATIONAL PATIENT MEETING

43RD NATIONAL PATIENT MEETING 3

American Association of Kidney Patients 2017-2018 National Board of Directors

Officers

Paul T. Conway President

Richard Knight Vice President

Jenny Kitsen Treasurer

Daniel Abel Secretary

Medical Advisory Board

Stephen Z. Fadem, MD, FACP, FASNChairperson

Kent BresslerTeri Browne, PhD, MSW, NSW-CTejas Desai, MDLouis H. Diamond, MBChB, FCP (SA), FACP, FHIMSSKevin FowlerLisa GarnerTheodore “Ted” GeeBrian HessEdward V. Hickey, IIIDoug Johnson, MD

Akhtar Ashfaq, MDChristopher Blagg, MD, FRCPTimothy Bunchman, MDTejas Desai, MDAllon Friedman, MDRichard J. Glassock, MD, MACPFrederick J. Kaskel, MD, PhDPeter A. Laird, MDNathan Levin, MD

Janice Lea, MD, MSC, FASNWilliam “Bill” K. Murray (In Memory)James W. Myers, IIIDavid RodriquezSuzanne RuffLana Schmidt, MBAScott TonerLinda TylerDavid “Dave” E. White

Robert Miller, MD, FAAP, FCCPWilliam E. Mitch, MDKeith Norris, MDThomas Peters, MD, FACS, FASNRebecca J. Schmidt, DO, FACP, FASNFrancesca Tentori, MDRobert “Bobbi” Wager, RN, MSNLeslie Wong, MD


General Information

Registration CenterThe AAKP registration booth can be found in the Palm Court Foyer area. Attendees can check-in to the meeting and receive their name badge, tote bag and materials at this location. The Registration Booth is open:

Registration Booth hours are:

Thursday, June 7 1:00 p.m. - 5:00 p.m.

Friday, June 8 7:30 a.m. - 4:00 p.m.

Saturday, June 9 7:30 a.m. - 4:00 p.m.

Sunday, June 10 7:30 a.m. - 12:00 p.m.

ExhibitorsThe exhibit hall is located in the Royal Ballroom. The Exhibit Hall features a variety of kidney-related companies and organizations. Registration badges are required for entry. Continental breakfast will be served in the exhibit hall on Friday, Saturday and Sunday.

Exhibit Hall hours are:Friday, June 87:30 a.m. - 9:00 a.m. (Continental Breakfast Served)4:00 p.m. - 6:00 p.m. (Welcome Reception)

Saturday, June 97:30 a.m. - 9:00 a.m. (Continental Breakfast Served)4:00 p.m. - 5:30 p.m.

Sunday, June 107:30 a.m. - 9:00 a.m. (Continental Breakfast Served)

FoodAAKP strives to provide meals that are acceptable to pre-dialysis, dialysis and transplant patients. AAKP recognizes that many attendees have modified diets; however it is the attendee’s responsibility to make appropriate food choices and consume only those food items offered that are appropriate for their diet.

CAPD ExchangesPeritoneal dialysis exchanges can be done in the hospitality suite. Please see an AAKP staff member at the registration booth for more information.

Dialysis ArrangementsFor questions regarding your dialysis arrangements, please visit the registration booth.

CE CreditsCredits are offered to nurses, social workers, dietitians and dialysis technicians. Certificates of Attendance are also available for other healthcare professionals. To receive credit for attending sessions; you MUST sign-in and sign-out each day at the registration booth and return a completed evaluation form. Please see the registration booth for more information.


AAKP Meeting Agenda Friday, June 8th

7:30 a.m. – 4:00 p.m. Registration Palm Court Foyer

7:30 a.m. – 9:00 a.m. Exhibit Hall Open/ Royal Ballroom Continental Breakfast

9:15 a.m. - 9:30 a.m. Opening Remarks Speaker: Paul T. Conway, AAKP President Majestic Ballroom

9:30 a.m. – 10:00 a.m. General Session: Majestic Ballroom National Policy & Kidney Disease: What You Need to Know Speaker: Sandeep Patel, Open Innovation Manager, U.S. Dept. of Health and Human Services

10:00 a.m. – 10:30 a.m. General Session: Majestic Ballroom Assessing Dialysis Facility Quality: CMS Engagement of Kidney Patients Speaker: Elena Balovlenkov, MS, RN, CHN , Centers for Medicare and Medicaid Services

10:30 a.m. – 12:00 p.m. General Session: Majestic Ballroom Innovations in Kidney Disease Care Moderator: Rebecca Schmidt, DO, FACP, FASN Panelists: Ekemini Riley, PhD, Milken Institute; Peter Maag, CEO, CareDx; Carrie Guss, MSBA, RDN, Executive Director, Rockwell Medical; Akhtar Ashfaq, MD, Senior VP of Clinical Development and Research , OPKO Health; William Fissell, MD, Vanderbilt University (The Kidney Project); Joe Muldoon, CEO, FAST BioMedical

12:00 p.m. - 12:10 p.m. Break

12:10 p.m. – 1:10 p.m. Lunch with the Experts: Mezzanine Level Patient & Family Experts (North, South Terrace)

1:10 p.m. - 1:15 p.m. Break

1:15 p.m. – 2:00 p.m. Breakout Session A: Plaza AB Social Media: How Your Story Impacts People and Policy Speakers: Kevin Fowler, AAKP Ambassador and Board Member, Pre-emptive Transplant Recipient; James Myer, III, AAKP Board Member, Transplant Recipient; and Deborah Pelaez, AAKP Marketing and Communications Manager


Breakout Session B: Plaza CD The Importance of Dental Health in Kidney Disease (AAKP Jenny Kitsen Patient Safety Aware Lecture) Speaker: Maureen Munnelly Perry, DDS, MPA, MA.Ed.

Breakout Session C: Lassing/Miller Room All in the Family: How Kidney Disease Impacts Family Members (Caregiver Only Session) Speakers: Bobbie Reed, AAKP Ambassador, Caregiver and Ashley Martin, AAKP Ambassador, Caregiver

2:00 p.m. – 2:15 p.m. Break

2:15 p.m. – 3:00 p.m. Breakout Session A: Plaza AB Taking Dialysis Home: Overcoming Barriers to Home Therapies (Proudly supported by NxStage Medical, Inc.) Speakers: Rebecca Billion, RN, Critical Care Relationship Manager, NxStage Medical; Dawn Edwards, HHD Patient; Vanessa Evans, HHD Patient

Breakout Session B: Plaza CD Reverse the Reversible... Managing the early stages of CKD Speaker: Stephen Fadem, MD, FACP, FASN, AAKP Medical Advisory Board Chairperson

3:00 p.m. - 3:15 p.m. Break

3:15 p.m. – 4:00 p.m. Breakout Session A: Majestic Ballroom Paving the Way for a Better Tomorrow: Understanding Clinical Trials (Proudly supported by Mallinckrodt Pharmaceuticals) Speakers: Gerrit Hamre, Project Manager, Clinical Trials Transformation Initiative; and Scott Toner, VP Marketing, Proteon Therapeutics, AAKP Board Member

Breakout Session B: Plaza CD The Road to Transplantation (Proudly supported by Astellas Pharma US, Inc.) Speaker: Roberta Wager, RN, MSN and Donald Ferguson, Transplant Recipient

4:00 p.m. – 6:00 p.m. Exhibit Hall Open/Welcome Reception Royal Ballroom


Saturday, June 9th



9:15 a.m. – 10:15 a.m. General Session: Majestic Ballroom Under the U.S. Capitol Dome Moderator: Paul T. Conway, AAKP President Panelists: Rachel Myer (ASN), Peggy Tighe (ASTS)

10:15 a.m. - 10:30 a.m. Break

10:30 a.m. – 11:15 a.m. Breakout Session A: Majestic Ballroom Improving Kidney Care and Treatment Options Speaker: Robert Star, MD, Director of Division of Kidney, Urologic and Hematologic Diseases, National Institute of Health

Breakout Session B: Plaza CD Staying Active with Kidney Disease Speakers: Carolyn Feibig, MS, RD, LD, George Washington Transplant Institute and Dave White, AAKP Board Member, AAKP Ambassador, Transplant Recipient

11:15 a.m. - 11:30 a.m. Break

11:30 a.m. – 12:15 p.m. Breakout Session A: Majestic Ballroom Veterans Administration Leadership in Kidney Care Speakers: Prabir Roy-Chaudhury, MD, PhD, Professor of Medicine Banner University Medical Center-Tucson and South; Ted Gee, AAKP Board Member, Veteran; and Daronta Briggs, AAKP Ambassador, Veteran

Breakout Session B: Plaza CD Understanding Living Donation Options (Proudly supported by Fresenius Kidney Care) Speakers: Karl L. Womer, MD, FAST, University of Florida College of Medicine; Risa Simon, Founder of TransplantFirst Academy, Pre-Emptive Transplant Recipient; Suzanne Ruff, AAKP Board Member, Living Donor

Breakout Session C: Lassing/Miller Room Caregiver’s Corner: Taking Time for Me (Caregiver Only Session) Speakers: Lisa Goodwin, LCSW and Ashley Martin, AAKP Ambassador, Caregiver

12:15 p.m. - 12:30 p.m. Break

12:30 p.m. – 1:45 p.m. Lunch with the Experts: Mezzanine Level Healthcare Professional Experts (North, South Terrace)


1:45 p.m. - 2:00 p.m. Break

2:00 p.m. –2:45 p.m. Breakout Session A: Plaza AB Staying Healthy After a Kidney Transplant Speakers: Isabelle Kern, RD, LD, CDE; and Janice Starling-Williams, AAKP Ambassador, Transplant Recipient

Breakout Session B: Plaza CD Understanding Your Lab Values Speaker: Janice Lea, MD, AAKP Board Member

2:45 p.m. - 3:00 p.m. Break

3:00 p.m. - 3:45 p.m. Breakout Session A: Plaza AB Living Well with Kidney Disease Speakers: Brian Hess, AAKP Board Member, Home Hemodialysis Patient; and David Rodriguez, AAKP Board Member, AAKP Ambassador, Transplant Recipient

Breakout Session B: Plaza CD How Patients Can Avoid Infection Risks Speaker: Priti Patel, MD, MPH , Centers for Disease Control and Prevention

4:30 p.m. – 5:30 p.m. Exhibit Hall Open Royal Ballroom

6:00 p.m. - 8:00 p.m. Annual Awards Banquet Majestic Ballroom

Sunday, June 10th



9:15 a.m. – 10:30 a.m. General Session: Majestic Ballroom Nutrition 101: Understanding & Enjoying Your Kidney-Friendly Diet Speakers: Barry Smith, MD, PhD , Rogosin Institute, and Chef Oliver Hale

10:30 a.m. - 10:45 a.m. Break

10:45 a.m. – 12:00 p.m. General Session: Majestic Ballroom Patient-Centered Kidney Disease Care: How to Change the Status Quo Moderator: Richard Knight, AAKP Vice President, Chair of Public Policy Panelists: Teri Browne, PhD, MSW, NSW-C, AAKP Board Member; Janice Lea, MD, AAKP Board Member; Greg Martin, Deputy, Chief Engagment and Dissemination Officer, PCORI; Suzanne Ruff, AAKP Board Member, Living Organ Donor; and Kevin Folwer, AAKP Ambassador and Board Member, Pre-emptive Transplant Recipient


Friday’s Lunch with the Expert: Patient SpeakersLocation: Mezzanine Level (North, South Terrace)

Table 1 How Can I Slow the Progression of Kidney Disease? Stephen Fadem

Table 2 Learn How to Become a Living Donor Suzanne Ruff

Table 3 Choosing and Changing My Kidney Treatment Options Roberta Wager

Table 4 Overcoming Barriers to Transplantation Lana Schmidt

Table 5 Pre-emptive Transplant: Is It Possible to Avoid Dialysis and Receive a Kidney Transplant? Kevin Fowler

Table 6 Understanding the Risk of Skin Cancer Post-Transplant

Table 7 Lunch with the AAKP President Paul Conway

Table 8 Learn How to Become an Effective Patient Advocate: Locally & Nationally Patrick Gee

Table 9 Caregivers Connect: Sharing the Ups and Downs Bobbie Reed

Table 10 Managing My Medications Lisa Garner

Table 11 Coping with a Chronic Illness Brian Hess

Table 12 Becoming Active in Your Local Community David Rodriguez

Table 13Clinical Trials: Getting Involved & Understanding Your Rights & Responsibilities

David White

Table 14 Patient Opportunities for Financial Assistance Joe Karan

Table 15 How Do I Start a Local Support Group?Janice Starling-Williams

Table 16 Cooking Kidney-Friendly Chef Oliver Hale

Table 17 Understanding and Managing Gout Josie Peterson

Table 18 Emergency Preparedness: The Importance of Having a Plan Melissa Perry

Table 19 The Benefits of Exercise in Kidney Disease

Table 20 Fighting the Fatigue: Understanding & Managing Anemia in Kidney Disease Niejtle Gedney

Table 21 Is Home Hemodialysis Right for Me? Vanessa Evans

Table 22 Is Peritoneal Dialysis Right for Me?Yolanda Howard, RN

Table 23 Managing My Care: Understanding Self-Cannulation

Table 24 KidneyWorks: Staying Employment with Kidney Disease Jenny Kitsen

Table 25 How to Find a Living Donor: Sharing Your Story Risa Simon


Saturday’s Lunch with the Expert: Healthcare ProfessionalLocation: Mezzanine Level (North, South Terrace)

Table 1 How Can I Slow the Progression of Kidney Disease? Stephen Fadem, MD

Table 2 Becoming a Living Donor: What Your Need to Know Pre & Post Surgery Karl L. Womer, MD, FAST

Table 3 Choosing and Changing My Kidney Treatment Options Lisa Goodwin, LCSW

Table 4 Dental Issues in Kidney Disease Maureen Munnelly Perry, DDS

Table 5 The Importance of Managing Your High Blood Pressure Prabir Roy-Chaudhury, MD, PhD

Table 6 The Importance of Managing Your Diabetes Barry Smith, MD, PhD

Table 7 Understanding and Managing Gout Josie Peterson

Table 8 Advancements in Telemedicine Akhtar Ashfaq, MD

Table 9 Caregivers Connect: Sharing the Ups and Downs Jenny Kitsen

Table 10 Managing My Medications William Fissell, MD

Table 11 Coping with a Chronic Illness Andy Esch, MD

Table 12 The Importance of Vaccinations in Kidney Disease Priti Patel, MD, MPH

Table 13 Getting Involved in Patient-Centered Research Projects Teri Browne, PhD, MSW, NSW-C

Table 14 Fistula First: Understanding Your Dialysis Access Options Lynn Gee, RN, CCM, ACM & Tammy Bryant, LPN

Table 15 Food Facts: Understanding the Food Nutrition Label Laura Richardson, RD

Table 16 Cooking Kidney-Friendly Chef Oliver Hale

Table 17 Dining Out While on Dialysis Frances Mumbey, RD

Table 18 Food Safety for Kidney Transplant Patients Isabelle Kern, RD, LD, CDE

Table 19 The Benefits of Exercise in Kidney Disease Carolyn Feibig, MS, RD, LD

Table 20Fighting the Fatigue: Understanding & Managing Anemia in Kidney Disease

Dana Tiwaini

Table 21 The Benefits of Home Hemodialysis Roberta Wager, RN, MSN

Table 22 The Benefits of Peritoneal Dialysis Denise Eilers, RN

Table 23How to Use Social Media to Effectively Raise Awareness of Kidney Disease

James Myers

Table 24 CMS Dialysis Facility Compare Five Star Rating Elena Balovlenkov, MS, RN, CHN

Table 25 Understanding Acute Kidney Injury Robert A. Star, MD


Thanks to our 2018 Sponsors

Silver LevelAmgen, Inc. Keryx Biopharmaceuticals

Bronze LevelFresenius Kidney Care Mallinckrodt PharmaceuticalsNxStage Medical, Inc.

Patron LevelAstellas Pharma US, Inc.Baxter International Inc.Dialysis Clinic, Inc.Hansa MedicalHorizon PharmaMerck & Co., Inc.Rockwell Medical

Supporting LevelArbor Research Collaborative for HealthFlorida Hospital Medical Education InstituteNephrology Associates of Central FloridaOPKO Health Proteon Therapeutics

Thanks to our 2018 ExhibitorsAlliance for Gout Awareness

All Kidney Patients Support Group

Baxter Corporation

Chronic Disease Coalition

Dialysis Clinic, Inc.

Empath Health

Florida Hospital Transplant Institute

Fresenius Kidney Care

Hansa Medical

Home Dialyzors United

Horizon Pharma

HSAG

HSAG: The Florida ESRD Network

Keryx Biopharmaceuticals

Kibow Biotech, Inc.

LifeLink Foundation, Inc.

Making Dialysis Safer for Patients Coalition

Mallinckrodt Pharmaceuticals

National Kidney Foundation of Florida

NxStage Medical, Inc.

PKD Foundation

Rockwell Medical

TNT Moborg Int’l LTD

UF Health – Shands Transplant Center

Veterans Transplant Association

AAKP Thanks the Contributions of the Following IndividualsAuthor Bernie Gilmer, Dialing In On DI-AL-Y-SIS

Earnest ContostaJames Bryant

Jeanine BryantJonathan Levine

Mary BellMr. & Mrs. Herbert Haigh

Paul HolzhueterVanessa Love

KERYX BIOPHARMACEUTICALS, COMMITTED TO BRINGING MEANINGFUL MEDICINES TO PEOPLE LIVING WITH KIDNEY DISEASE, IS PROUD TO SUPPORT THE AAKP National Patient Meeting.

Copyright © 2018 by Keryx Biopharmaceuticals, Inc.

Despite the health benefits that more frequent home hemodialysis may provide to those with chronic kidney disease, this form of therapy is not for everyone. Home hemodialysis with the NxStage System One requires a patient and partner who are committed to being trained on and following the guidelines for proper system operation.

The reported benefits of home hemodialysis may not be experienced by all patients.

The NxStage System One is a prescription device and, like all medical devices, involves some risks. The risks associated with hemodialysis treatments in any environment include, but are not limited to, high blood pressure, fluid overload, low blood pressure, heart-related issues, and vascular access complications. The medical devices used in hemodialysis therapies may add additional risks including air entering the bloodstream, and blood loss due to clotting or accidental disconnection of the blood tubing set. When vascular access is exposed to more frequent use, infection of the site, and other access related complications may also be potential risks. Patients should consult with their doctor to understand the risks and responsibilities of home and/or more frequent hemodialysis using the NxStage System One.

Certain risks are unique to the home. Treatments at home are done without the presence of medical personnel and on-site technical support. Patients and their partners must be trained on what to do and how to get medical or technical help if needed.

References: 1. Jaber BL, Lee Y, Collins AJ, et al. E¬ect of daily hemodialysis on depressive symptoms and postdialysis recovery time: interim report from the FREEDOM (Following Rehabilitation, Economics and Everyday-Dialysis OutcomeMeasurements) Study. Am J Kidney Dis. 2010;56(3):531-539. 2. Lindsay RM, Heidenheim PA, Nesrallah G, Garg AX, Suri R, Daily Hemodialysis Study Group London Health Sciences Centre. Minutes to recovery after a hemodialysis session: a simple health-related quality of life question that is reliable, valid, and sensitive to change. Clin J Am Soc Nephrol. 2006;1(5):952-959. 3. Kraus M, Finkelstein FO, Daoui R, et al. Short Daily Hemodialysis (SDHD) improves overall Quality of Life (QOL) and physical intimacy: interim results from the FREEDOM study. Abstract presented at the American Society of Nephrology Conference, 2011. 4. Weinhandl E, Liu J, Gilbertson D, Arneson T, Collins A. Transplant incidence in frequent hemodialysis and matched thrice-weekly hemodialysis patients. Poster presented at National Kidney Foundation Spring Clinical Meeting, 2012. 5. Weinhandl ED, Lie J, Gilbertson DT, Arneson TJ, Collins AJ. Survival in daily home hemodialysis and matched thrice-weekly in-center hemodialysis patients. J Am Soc Nephrol. 2012;23(5):895-904.

Reclaim Your Life

© 2017 NxStage Medical, Inc. NxStage is a registered trademark of NxStage Medical, Inc. System One is a trademark of NxStage Medical, Inc. CAUTION: Federal law restricts this device to sale by or on the order of a physician. APM2688 Rev. A

Visit us at Booth #8 and be sure to check out LIVE dialysis inside the NxStage Freedom RV.

With the Proven Benefits of More Frequent Home Hemodialysis

increased chance of receiving a transplant414%

improvement in time to recover 2More frequent treatments can improve your vitality to give you the energy you need to do the things you love.

A majority of frequent home hemodialysis patients report and studies confirm 60 minutes or less post dialysis recovery time1.

87%

Keep romance alive.

100% improved libido3

Celebrate more birthdays.

More frequent home hemodialysis has been shown to lower your risk of death

13% compared to in-center5.

Despite the health benefits that more frequent home hemodialysis may provide to those with chronic kidney disease, this form of therapy is not for everyone. Home hemodialysis with the NxStage System One requires a patient and partner who are committed to being trained on and following the guidelines for proper system operation.

The reported benefits of home hemodialysis may not be experienced by all patients.

The NxStage System One is a prescription device and, like all medical devices, involves some risks. The risks associated with hemodialysis treatments in any environment include, but are not limited to, high blood pressure, fluid overload, low blood pressure, heart-related issues, and vascular access complications. The medical devices used in hemodialysis therapies may add additional risks including air entering the bloodstream, and blood loss due to clotting or accidental disconnection of the blood tubing set. When vascular access is exposed to more frequent use, infection of the site, and other access related complications may also be potential risks. Patients should consult with their doctor to understand the risks and responsibilities of home and/or more frequent hemodialysis using the NxStage System One.

Certain risks are unique to the home. Treatments at home are done without the presence of medical personnel and on-site technical support. Patients and their partners must be trained on what to do and how to get medical or technical help if needed.

References: 1. Jaber BL, Lee Y, Collins AJ, et al. E¬ect of daily hemodialysis on depressive symptoms and postdialysis recovery time: interim report from the FREEDOM (Following Rehabilitation, Economics and Everyday-Dialysis OutcomeMeasurements) Study. Am J Kidney Dis. 2010;56(3):531-539. 2. Lindsay RM, Heidenheim PA, Nesrallah G, Garg AX, Suri R, Daily Hemodialysis Study Group London Health Sciences Centre. Minutes to recovery after a hemodialysis session: a simple health-related quality of life question that is reliable, valid, and sensitive to change. Clin J Am Soc Nephrol. 2006;1(5):952-959. 3. Kraus M, Finkelstein FO, Daoui R, et al. Short Daily Hemodialysis (SDHD) improves overall Quality of Life (QOL) and physical intimacy: interim results from the FREEDOM study. Abstract presented at the American Society of Nephrology Conference, 2011. 4. Weinhandl E, Liu J, Gilbertson D, Arneson T, Collins A. Transplant incidence in frequent hemodialysis and matched thrice-weekly hemodialysis patients. Poster presented at National Kidney Foundation Spring Clinical Meeting, 2012. 5. Weinhandl ED, Lie J, Gilbertson DT, Arneson TJ, Collins AJ. Survival in daily home hemodialysis and matched thrice-weekly in-center hemodialysis patients. J Am Soc Nephrol. 2012;23(5):895-904.

Reclaim Your Life

© 2017 NxStage Medical, Inc. NxStage is a registered trademark of NxStage Medical, Inc. System One is a trademark of NxStage Medical, Inc. CAUTION: Federal law restricts this device to sale by or on the order of a physician. APM2688 Rev. A

Visit us at Booth #8 and be sure to check out LIVE dialysis inside the NxStage Freedom RV.

With the Proven Benefits of More Frequent Home Hemodialysis

increased chance of receiving a transplant414%

improvement in time to recover 2More frequent treatments can improve your vitality to give you the energy you need to do the things you love.

A majority of frequent home hemodialysis patients report and studies confirm 60 minutes or less post dialysis recovery time1.

87%

Keep romance alive.

100% improved libido3

Celebrate more birthdays.

More frequent home hemodialysis has been shown to lower your risk of death

13% compared to in-center5.

You may be facing kidney disease, but you are more than “a condition.” We can help you live your best life in spite of kidney disease.

We offer FREE chronic kidney disease education to help you slow or prevent kidney failure. We are your advocate for a kidney transplant, if that is what you want. We provide a variety of treatment options, in-center and at home, so that treatment fits into your life.

For more information visit: WWW.DCIINC.ORG

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AAKP-Ad-2017.indd 1 7/31/17 3:16 PM

or pick up your copy at the AAKP Registration Center!

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For more information, ask your doctor or your clinic about Triferic® today.

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IMPORTANT SAFETY INFORMATIONWarnings and PrecautionsSerious hypersensitivity reactions, including anaphylactic-type reactions, some of which have been lifethreatening and fatal, have been reported in patients receiving parenteral iron products. Patients may present with shock, clinically significant hypotension, loss of consciousness, and/or collapse. Monitor patients for signs and symptoms of hypersensitivity during and after hemodialysis until clinically stable. Personnel and therapies should be immediately available for the treatment of serious hypersensitivity reactions. Hypersensitivity reactions have been reported in 1 (0.3%) of 292 patients receiving Triferic® in two randomized clinical trials. Iron status should be determined on pre-dialysis blood samples. Post dialysis serum iron parameters may overestimate serum iron and transferrin saturation.

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Please visit us at the AAKP, Booth #9HansaMedical.com

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Mallinckrodt, the “M” brand mark and the Mallinckrodt Pharmaceuticals logo are trademarks of a Mallinckrodt company. © 2018 Mallinckrodt.

WHERE OTHERS SEE COMPLEXITY, WE SEE HOPE FOR PATIENTS AND FAMILIES

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Use Hashtag #KidneyPatients18

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© 2018, Fresenius Medical Care, All Rights Reserved.

Don’t get left out of the conversation. See what everyone is talking about.

Join us on social media at:

American Association of Kidney Patients14440 Bruce B. Downs Blvd., Tampa, FL 33613

(800) 749-2257 | [email protected] | www.aakp.org

@kidneypatients @kidneypatient American Association of

Kidney Patients

@kidneypatients @kidneypatients

june 8-10, 2018 the vinoy renaissance resort & golf … is committed to providing high quality...

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