Help along the way

Conference Program

Sponsored by

30th Annual Consumer/Clinician ConferenceJune 29–July 3, 2015

Gideon Putnam ResortSaratoga Springs, NY

43 New Scotland AvenueAlbany Medical Center, MC-28

Albany, NY 12208-3478(800) 776-6539, (518) 262-5079, FAX (518) 262-5528

BishopJ@mail.amc.eduwww.oley.org

We strongly advise that you discuss with your physician any medical information received

from the Oley Foundation through conference presentations, informal discussions, the newsletter,

etc.—before you make any changes in your health care.

We do our best to offer a selection of foods that we hope will meet your dietary issues. If you

have a specific need, please inform Cathy at registration and we’ll try to help.p

Smile! You’re on Camera!

Oley and its sponsors will be taking photos and videotaping in the conference sessions and

events. These images may be used by the sponsor or Oley, online or in promotional materials,

without further agreement. If you do not want to be photographed or videotaped at the

conference, please let us know. To “opt out,” please sign a release at the registration table,

or e-mail your name and an image (so we can identify you) to Lisa Metzger at metzgel@mail.amc.

edu. We can’t guarantee that your image won’t appear in group shots or on the video filmed at the

conference, but we will do our best to honor your wishes. Further, if you are in a session that is

being videotaped, please consider how much personal information you want to share.

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StaffJoan Bishop, Executive Directorbishopj@mail.amc.eduJoan handles the multitude of tasks it takes to keep Oley running and growing, including budget planning, building relationships, advocacy efforts, fundraising, board development, coordinating the annual conference, etc. She is dedicated to fulfilling the Foundation’s mission and welcomes your ideas, comments, and criticisms.

Roslyn Dahl, Communications & Development Director dahlr@mail.amc.eduRoslyn is responsible for raising funds for the Foundation as well as producing Oley publications, coordinating online education programs, and managing Oley’s Web page content and information clearinghouse. Call on her to research your questions or to share ideas for Oley publications (other than the newsletter) or promotions.

Andrea Guidi, Executive Assistantandreaguidi.oley@gmail.comAndrea joined Oley in 2013. She has been leading our efforts to upgrade the Oley Web site and coordinates activities for the children/youth at the conference. Andrea got her start in nutrition with an undergraduate degree at the State University of New York and a dietetic internship at Sage Graduate School.

Cathy Harrington, Administrative Assistantharrinc@mail.amc.eduCathy is the centerpiece of Oley efforts, managing the member database, answering most of your calls, and meeting the needs of the Foundation office. She is the glue that holds us together! She has experience in patient care and extensive knowledge of the nutrition support arena.

Darlene Kelly, MD, PhD, FACP, Science & Medicine AdvisorAfter retiring from her role as Medical Director for Home Parenteral Nutrition at the Mayo Clinic in Rochester, Minnesota, in 2012, Dr. Kelly began actively guiding Oley research projects and providing advice on medical-related content for publications. Previously she supported Oley as a board member and research committee chair for more than eleven years.

Lisa Metzger, Editor, LifelineLetter, Director, Community Engagementmetzgel@mail.amc.eduLisa has been the editor of the LifelineLetter since 2007. She has been a member of Oley for many years following her two stints on HPN due to hyperemesis gravidarum while pregnant. Lisa’s responsibilities at Oley also include advocacy and outreach efforts. She welcomes your ideas and articles for the newsletter, and input on outreach.

Meshal Samadzada, Administrative Support Specialist msamadzada.oley@gmail.comMeshal joined Oley in 2014. She supports all of us with enthusiasm. She graduated from Russell Sage College in December 2014 with a Bachelor of Science in Nutrition. Her goal is to become a registered dietitian.

Oley Trustees & Staff

OfficersHarlan Johnson, PresidentFormer CaregiverHackensack, MN

Terry Edwards, Vice PresidentHomeEN ConsumerPort Coquitlam, BC

Marion Winkler, PhD, RD, LDN, CNSC, FASPEN, TreasurerRhode Island Hospital Providence, RI

Rex Speerhas, RPh, CDE, BCNSP, SecretaryWestlake, OH

TrusteesLynn M. Anderson, LLDHoliday Companies Minneapolis, MN

Debbie Fox, MS, RD, LD HomePN Consumer Northwest Texas Healthcare System Amarillo, TX

Peggi Guenter, PhD, RN, FAANAmerican Society for Parenteral and Enteral Nutrition Silver Spring, MD

Shirley Huang, MDParent of HomePEN ConsumerNewtonville, MA

Arlet Kurkchubasche, MD, FACS, FAAP Providence RI Hospital Providence, RI

Laura Matarese, PhD, RDN, LDN, FADA, FASPEN, CNSCEast Carolina University,Brody School of MedicineGreenville, NC

Ann Michalek, MDAlbany Medical CenterAlbany, NY

Lauren Schwartz, MD Concorde Medical Group New York, NY

Bob and Mary Smithers HomePEN Caregiver & Consumer Gainesville, FL

Lyn Howard, MB, FRCP, FACP, Medical Director, Co-FounderPoestenkill, NY

To learn more about the role of Oley Foundation trustees, and/or to submit a name for consideration by the Oley Board of Trustees Nomination Committee, contact Joan Bishop (518-262-5079/ bishopj@mail.amc.edu).

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General Information

Registration and Conference InformationInformation about all aspects of the conference is available at the registration desk. The desk will be staffed Monday noon to 5:00 p.m., Tuesday 8:00 a.m. to 5:00 p.m., and Wednesday 8:00 a.m. to 5:00 p.m. Most conference activities will be held at the Gideon. A map of the meeting rooms is on the back cover of this program.

Medical Support/Emergency ServicesFor an emergency: Contact your primary care physician (if time allows) to discuss the proper treatment plan prior to going to a medical center. If time does not allow, call 911. The following hospital has been alerted as to the increased potential for a GI or HPEN incident, and is prepared to meet your needs:

Saratoga Hospital 211 Church St, Saratoga Springs, NY 12866(518) 587-3222

Albany Medical Center47 New Scotland Ave, Albany, NY 12208(518) 262-3125

To meet unexpected supply needs: Contact your homecare company first. If your homecare company cannot meet your needs, Coram CVS/ specialty infusion services has offered to help troubleshoot issues over the phone (like a pump malfunction), and/or to provide back up emer-gency nursing and pharmacy infusion services. Call the Albany Coram branch at (800) 289-1515 (24 hour availability) and identify yourself as an Oley Conference participant. They will need contact information for your physician in order to obtain orders. They can dispense prescribed fluids, additives, and supplies with a physician’s order. They can also help troubleshoot a consumer’s pump, provided it is one with which they are familiar.

Golf OutingJoin in the fun Monday morning commemorating Oley’s 30th Conference at Saratoga Spa Golf Club, Par 3 Course—only a five-minute walk from the Gideon. Nine holes, contests, and prizes will make for a great outing. Details and registration at www.oley.org.

Ambassador Workshop/Volunteer Info SessionPlanned for “official” Oley volunteers, but open to everyone with an interest in serving Oley via networking, social media, marketing, graphic design, etc. Meet us in the Blue Room, Monday at 1 p.m.

First-Time Conference Attendee OrientationThis session is a must attend for first-time Oley Conference goers. Meet Oley staff Monday at 6:00 p.m. in Geyser to learn how to make the most of your first conference experience.

Welcome Reception/Awards CeremonyWe kick off the meeting Monday at 7:00 p.m in the Ballroom. We’ll celebrate Oley Annual Awards recipients, salute consumers, and meet friends. Dessert-type refreshments will be served.

Continental Breakfast /Non-Profit ExhibitsTuesday and Wednesday mornings, attendees are invited to a delicious breakfast and to tour the non-profit and family business tables. Join us in the Gallery outside the Ballroom. Tuesday’s breakfast is sponsored by Option Care.

Exhibit HallLearn about parenteral and enteral products and services, Tuesday and Wednesday, noon to 2:30 p.m. Complimentary lunch will be served both days. Don’t miss the exhibits and food in the lobby, Portico, Arches and Putnam’s. Consumers, family members, and faculty 16+ years of age are encouraged to complete an Exhibitor Score Card for a chance to win a $200 gift card! Many of the vendors will also have raffle contests to enter. Drawings will be held at approximately 2:15 p.m. on Wednesday in the lobby; you must be present to win!

Rehydration StationStop by the Rehydration Station Tuesday and Wednesday, noon to 2:30 p.m., and Thursday morning before the walkathon, to sample oral rehydration solutions and learn how they might benefit you. Thanks to ThriveRx for sponsoring the station, and to DripDrop and Jianis Brothers for donating product samples.

Child Care—Garden RoomTuesday & Wednesday, 9 a.m.–noon, and 2:30–5:00 p.m. Pre-registration required. All children’s items should be labeled. Please pay particular attention to the special needs portion of the permission slip. It will be inserted into your child’s name badge holder so this critical information will be with them as they travel to each activity. Children should be picked up promptly at noon and 5:00—even if the educational sessions haven’t ended.

Tuesday, youth will enjoy the Children’s Museum at Saratoga’s outreach program “Motion Madness.” Wednesday, youth will enjoy games (including Kan Jam and bean bag toss), puzzles and crafts.

Please don’t be late!We have a packed agenda. Sessions

will need to start on time.

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General Info. (cont.)

Main Sessions—Ballroom

Tuesday: • Oh, the Places You’ll Go!• Signs of Potential Problems: Let’s Try to Avoid Them• And You’ll Need a Tube and/or a Catheter to Get There!• Now to Get It All Covered by Insurance

Wednesday• Tackling Eating Issues• Bacterial Overgrowth

Plus, Hot Topics in Research• Mental Health Support of Consumers and Caregivers on Home

Parenteral and Enteral (HPEN) Therapy • Ethanol Lock Efficacy and Associated Complications in Children with

Intestinal Failure• Central Line Associated Bloodstream Infection and Blood Drawing

Practices in an Adult Home Parenteral Nutrition Population with Tunneled Catheters

Youth ActivitiesTuesday & Wednesday, 2:30–5:00 p.m. Pre-registration required. All children’s items should be labeled. Tuesday, sponsored by Option Care, will feature a trip to Saratoga Strike Zone where youth will bowl, play in the Ballocity, and spend time in the arcade. Meet in the Lobby at 2:30. Bus leaves promptly at 2:45 p.m.Wednesday, youth will enjoy a one hour yoga class with Ellen from Yana Yoga, then games and activities. Meet in the Garden Room.Children should be picked up promptly at 5:00—even if the educational sessions haven’t ended.

Your Choice! Breakout Sessions or WorkshopSponsored in part by Nestlé, the Tube Feeding Workshop will be held on Tuesday afternoon in Geyser. Topics to be covered include tube and site options; the new enteral connectors with a hands on demo; living well with tube feeds; and dealing with excipients. Alternatively, you can choose to participate in the small group discus-sion breakout sessions (see pages 4–5 for breakout session topics). There are more breakout sessions on Wednesday afternoon (see page 6).

Oley Benefit Auction The fun begins Tuesday at 7:30 p.m. when the bidding opens in the Ballroom. Drop off donated items at the registration desk before Tuesday afternoon. Visa, MasterCard, and American Express will be accepted, as well as cash and personal checks. The silent auction and raffles are intended to raise funds to offset confer-ence expenses. Conference attendees, including Oley staff and Trustees, conference faculty, and the family members and friends thereof, are encouraged to participate in the silent auction bidding and open raffles. Items will be “sold” to the highest bidder at the closing of the event, or given to the winning ticket holder.

Jammin’ Jammies! Sponsored by Abbott Nutrition, the party begins at 7:30 p.m. Wednesday in Arches. A scavenger hunt, DJ, and karaoke with games will make for a memorable evening! Signed permission required.

Oley WalkathonPick up a pledge sheet Monday through Wednesday, and join us on Thursday! All ages are welcome; the walk will be easy enough for every-one who wants to participate. Turn in your completed sheet and pick up your t-shirt at the Oley registration desk on Wednesday, or in the lobby Thursday morning from 10:30 a.m. to 11:00 a.m. The walk begins at 11:00 a.m. on the beautiful Saratoga Spa State Park grounds.

Oley Annual PicnicWe are keeping this activity on site for your convenience! Sponsored by Fresenius Kabi USA, this fun-filled event will begin Thursday afternoon at 11:30 a.m. (immediately following the Walkathon) in Arches, on the Patio, and on the grounds outside the Patio. We’ll enjoy picnic fare, fel-lowship, fun activities, and the music of Al and Kathy Bain. It’s a special time to connect with others who live similarly, expand your network of friends, have some of your lingering questions answered, etc. Don’t be afraid to ask Oley staff to help you find what you’re looking for. We’ll see you there!

Farewell BreakfastWe’ll gather in Arches from 10:00 a.m. to noon, and enjoy being sur-rounded by Oley attendees one last time before leaving for home. (Cost $14/person; cash and credit card payments accepted.) To be included in this group please make your reservations and pay by Wednesday at noon at Oley registration. Don’t forget your camera and address book!

Wondering what’s best for you to eat?

Reach out to one of the volunteers wearing an eggplant-colored

“Ask Me I'm a Dietitian” ribbon.

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Program

Monday9:45 a.m. Registration/10:30 a.m. Tee Times Start Golf OutingSaratoga Spa Golf Club, Par 3 CourseSee page 2 for details.

12:00 p.m. — 5:00 p.m.Early Registration/InformationCorner hallway near the Ballroom

1:00 p.m. — 6:00 p.m.Ambassador Workshop/Volunteer Info SessionBlue Room/PatioSee page 2 for details.

6:00 p.m. — 7:00 p.m.First-Time Conference Attendee Orientation GeyserSee page 2 for details.

7:00 p.m. — 9:00 p.m.Welcome Reception/Awards/Salute to ConsumersBallroom See page 2 for details.

Tuesday8:00 a.m. — 5:00 p.m.Registration/InformationCorner hallway near the Ballroom

8:00 a.m. — 9:00 a.m.Non-Profit Exhibits/Continental BreakfastGallery outside the Ballroom

9:00 a.m. — 11:45 a.m.Main Session Ballroom

Oh, the Places You’ll Go! Madalyn George-Thiemann, RN

Signs of Potential Problems: Let’s Try to Avoid Them Lillian Harvey-Banchik, MD, FACS, CNSC

And You’ll Need a Tube and/or a Catheter to Get There! Ryan Hurt, MD, PhD; Darlene Kelly, MD

Now to Get It All Covered by Insurance Rachel Ewell

Facilitator: Darlene Kelly, MD, PhD

11:45 a.m. — 12:00 p.m.Oley Corporate Partner Awards Ballroom

12:00 p.m. — 2:30 p.m. Exhibits/LunchLobby, Portico, Arches, Putnam’sComplimentary lunch served. See page 2 for details.

2:30 p.m. — 5:00 p.m.Youth ActivityMeet in the Lobby. Bus leaves promptly at 2:45 p.m.See page 3 for details.

2:45 p.m. — 5:00 p.m.Tube Feeding WorkshopGeyser

Tube and Site Options/SelectionMark DeLegge, MD

Navigating the New ISO ConnectorsRyan Hurt, MD, PhD

Update from GEDSA and Hands-on Demos Fred Reuning; Jasmine Khamvongsa

Living Well with Tube FeedsGunnar Esiason

Dealing with Uninvited Guests: Excipients Mark Klang, MS, RPh, PhD, BSNSP

Facilitator: Rick Davis

2:45 p.m. — 3:45 p.m. Breakout Session I4:00 p.m. — 5:00 p.m. Breakout Session II(choose two)

• Short Bowel Syndrome: Management and the Best Outcomes Susan Olson, RN; Marcia Boatwright RN, CRNI Blue

• Managing HPEN Amidst the Crisis with Medical Supervision Lyn Howard, MB, FRCP Estate

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• Understanding the Delivery of Medications in Compromised or Short GutDean Parry, RPhRed

• Overcoming Vascular Access Challenges Gail Egan, MS, ANP; Reid Nishikawa, PharmD, BCNSP, FCSHP Sun

• Understanding More about Catheter Lock Solutions Ann Marie Parry, RN, CRNI, VA-BC Hathorne

• Update on Current Legislation and Why Your Voice Is Important Bettemarie Bond; Richard Smith; Kendall Van PoolCoesa

• Understanding More about GattexAnn Michalek, MD Patio

• Maximizing Reimbursement for HPNRachel Ewell; Deb Pfister, MS, RD, CNSC Arches

• New Lipids, Biologics and Premix PN Penny Allen, RD, CNSC; Kathleen Gura, PharmD, BCNSP, FASHP, FPPAG, FASPEN Orenda

7:30 p.m. — 9:00 p.m.Oley Benefit AuctionBallroomSee page 3 for details.

Program

Wednesday 8:00 a.m. — 5:00 p.m.Registration/InformationCorner hallway near the Ballroom

8:00 a.m. — 9:00 a.m.Non-Profit Exhibits/Continental BreakfastGallery outside the Ballroom

9:00 a.m. — 11:45 a.m.Main Session Ballroom

Tackling Eating Issues Emma Tillman, PharmD, PhD

Bacterial Overgrowth Kathleen Gura, PharmD, BCNSP, FASHP, FPPAG, FASPEN

Plus Hot Topics in Research:

* Mental Health Support of Consumers and Caregivers on Home Parenteral and Enteral (HPEN) Therapy Ann Weaver

* Ethanol Lock Efficacy and Associated Complications in Children with Intestinal FailureEthan A. Mezoff, MD

* Central Line Associated Bloodstream Infection and Blood Drawing Practices in an Adult Home Parenteral Nutrition Population with Tunneled CathetersMarianne Opilla, RN, BSN, CNSC

Facilitator: Lyn Howard, MD

11:45 a.m. — 12:00 p.m.In Loving Memory BallroomA tribute to Oley members and friends who have died in the past year.

12:00 p.m. — 2:30 p.m. Raffle Day in the Exhibit Hall/LunchLobby, Portico, Arches, Putnam’sVisit exhibits to enter contests. Drawings will be held at approximately 2:15 p.m. in the Lobby. Must be present to win. Complimentary lunch served.

Please don’t leave needles lying around in your hotel room. There will be a sharps container at the registration

desk, if you didn’t bring your own. Syringes without needles or blood can be disposed of in a non-

see-through bag in the regular trash.

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2:30 p.m. — 5:00 p.m.Youth ActivityMeet in the Garden RoomSee page 3 for details.

2:45 p.m. — 3:45 p.m. Breakout Session I4:00 p.m. — 5:00 p.m. Breakout Session II(choose two)

Sharing for Spouses (spouse/significant others only; session I only)Trish Skiendziel, RD, LD, CNSC; Donna Yadrich, MPA, CCRPSun

Sharing for Consumers (consumers only; session II only)Michael Medwar; Donna Yadrich, MPA, CCRPSun

Understanding the Importance of DietMaria Karimbakas, RD, CNSCOrenda

Filling the Gaps: Meeting Your Adult Needs in Difficult Economic Times (session I only)Heidi Martin-Coleman, RN Estate

Filling the Gaps: Meeting the Needs of Your Child in Difficult Economic Times (session II only)Heidi Martin-Coleman, RNEstate

More on Bacterial Overgrowth & D Lactic Acidosis Craig Peterson, RD,CNSD; Kathleen Gura, PharmD, BCNSP, FASHP, FPPAG, FASPENBlue

Disaster Preparedness Brenda L. Gray, PharmD, BCNSP, CNSC, PRS, CVAA; Kevn McNamara, PharmD, CNSC, PRS, CVAA Red

Medical Child Abuse: Avoiding This Nightmare MaryBeth Hollinger, RN, MSNTBD

Program

Maximizing Reimbursement for HENRachel Ewell; Pam Wagner, RD, LD, CNSCHathorne

Let’s Discuss Our Mealtime Challenges Rick Davis; Terry Edwards; Emma Tillman, PharmD, PhDGeyser

Hot Topics in Research (session I only)Ann Weaver; Marianne Opilla, RN, BSN, CNSCCoesa

TSA Sharing TableNick Morano; Ruth Germani Patio

7:30 p.m. — 10:00 p.m. Jammin’ JammiesArchesSee page 3 for details.

Thursday 10:30 a.m. Registration/11:00 a.m. WalkWalkathonSaratoga Spa State Park groundsSee page 3 for details.

11:30 a.m. — 3:00 p.m. PicnicArches, PatioSee page 3 for details.

Friday 10:00 a.m. — noon Farewell BreakfastArchesSee page 3 for details.

Thank You Faculty Thanks to all the faculty who have volunteered to share their expertise in home nutrition support and related issues. The success of the Oley Conference depends heavily on the efforts of these dedicated individuals!

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Special Sponsorships

Many thanks to the following companies and individuals for their generous contributions.

2015 Oley AwardsBioScrip; Coram CVS/specialty infusion services; Nutrishare, Inc.; ThriveRx. Program: New York Press & Graphics.

Ambassador WorkshopShire

Badges BioScrip

BreakfastTuesday: Option Care

Child Care Nutrishare, Inc.

Conference ProgramCoram CVS/specialty infusion services

Elevator WrapNutrishare, Inc.

Emergency Medical SupportCoram CVS/specialty infusion services

Exhibit Hall Score CardAMT; BioScrip; Coram CVS/specialty infusion services; CORPAK MedSystems; Covidien; Halyard Health; Home Solutions; Nestlé Health Science; Nutrishare Canada; Option Care; ThriveRx

General Conference SupportDale & Martha Delano; New York Press & Graphics; Jean Poormon; David & Carolyn Rowland

Golf OutingJane Balint, MD; Coram CVS/specialty infusion services; Decillion; Option Care. Coordinators: Beth Deley; Mike Deley; Kenneth Ford

Hotel Room KeysCoram CVS/specialty infusion services

Jammin’ JammiesAbbott Nutrition

PicnicFresenius Kabi USA

Registration BagsNutrishare, Inc.

Registration BrochureSBS Foundation

Rehydration StationThriveRx

Speaker SupportAxelaCare; Albany Medical Center; Baxter Healthcare; BioScrip; Boston Children’s Hospital; Clinical Pharmacy Partners; Coram CVS/specialty infusion services; GEDSA; Geisinger Health Systems; Mayo Clinic; MitoAction; National Home Infusion Association; Nestlé Health Science; North Shore University; Nutrishare, Inc.; Option Care; Reimbursement Concepts, Inc.; Sutter Medical Group; ThriveRx, Inc.; Transporation Security Administration; University of Kansas; University of Tennessee Health Science Center; Vitaline Infusion Pharmacy Services

Travel Scholarships for ConsumersShire; SBS Foundation; Esther Ann Brown Adler Memorial Scholarship; Jarol Boan, MD, MPH; Melissa Chaney Memorial Fund; Friends of Robin Lang Memorial Travel Fund; Bruce F. Groeber Family; Carol Ireton-Jones, PhD, RD, LD, CNSC, FASPEN, FAND; Carol & Jack Leibee; Janet Platt & Christopher Hlatky

Tube Feeding WorkshopSponsored in part by Nestlé

Videotaping of ConferenceShire

WalkathonAMT; Baxter Healthcare; BioScrip; Boston Scientific; Coram CVS/specialty infusion services; Fresenius Kabi USA; Home Solutions; Option Care; ThriveRx

Youth ActivityTuesday: Option Care

A special shout out to the following companies who have underwritten events with food:

Fresenius Kabi USA—PicnicOption Care—Tuesday’s Breakfast

Shire—Ambassador Workshop

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APPLiED MEDiCAL TECHNoLoGy,

iNC (AMT)*8000 Katherine BlvdBrecksville, oH 44141www.appliedmedical.netApplied Medical Technology, Inc. (AMT) is a global leader and manufacturer of enteral feeding devices and accessories. Its products include the MiniONE® line of low-profile balloon, non-balloon, and capsule non-balloon buttons, the AMT G-JET® low-profile gastric-jejunal enteral tube, and the AMT Bridle™ and Micro Bridle™ Nasal Tube Retaining Systems.

AxELACARE15529 College BlvdLenexa, KS 66219www.axelacare.comAxelaCare is a specialized provider of immunoglobulin and other intravenous infusion medicines. Its core capabilities are targeted to meet the needs of people with rare conditions and patients undergoing complex medical treatments. It takes an individualized approach to care, and strives for compassion, personal attention, and clinical excellence.

B. BRAuN MEDiCAL iNC100 Country Club DrLansdale, PA 19446www.bbraunusa.comB. Braun’s Clinical Nutrition 360 provides a safe option for all your parenteral nutrition admixing needs. Whether through outsourcing, in-house compounding and/or specialty solutions, Clinical Nutrition 360 can provide individualized parenteral nutrition that meets the unique protein and calorie requirements of patients.

BAxTER HEALTHCARE*25212 W illinois Rte 120, WG1-3SRound Lake, iL 60073www.clinimix.comBaxter Healthcare Corporation has eighty years’ experience in developing parenteral nutrition products that work together to help improve patient outcomes. Baxter offers clinicians and patients parenteral nutrition solutions, IV fat emulsions, and automated compounding systems.

BioSCRiP iNFuSioN SERViCES*462A Wando Park BlvdCharleston, SC 29464www.bioscrip.comBioScrip® is a leading national provider of comprehensive, cost-effective pharmaceutical and home care solutions. Their goal is to partner with patients, physicians, health care payors, government agencies, and pharmaceutical manufacturers to provide access to infusible medications and management solutions that optimize outcomes for chronic and other complex health care conditions.

BoSToN SCiENTiFiC*100 Boston Scientific WayMarlborough, MA 01752www.bostonscientific.comBoston Scientific is dedicated to transforming patient lives by developing diagnostic and therapeutic devices that support less invasive, more efficient procedures for a variety of GI conditions. Through innovation and partnership, it is advancing clinical research, supporting education programs, and helping health care institutions deliver high quality health care while managing costs.

CooK MEDiCAL750 Daniels WayBloomington, iN 47401Since 1963 Cook Medical has worked closely with physicians to develop minimally invasive technologies. Today the company is combining medical devices, biologic materials, and cellular therapies to help the world’s health care systems deliver better outcomes more efficiently. Find out more at www.cookmedical.com, and follow on Twitter, Facebook, and LinkedIn.

CoRAM CVS/SPECiALTy iNFuSioN

SERViCES*555 17th St, Ste 1500Denver, Co 80202www.coramhc.comCoram, a division of CVS Health, is a leading national provider of specialty home infusion services. With over eighty-five branches and sixty-five infusion suites, Coram offers both national presence and comprehensive local coverage. Coram’s thirty-plus years of clinical expertise and commitment to positive outcomes has earned it a reputation for excellence.

Please join Oley in thanking our exhibitors and sponsors, who help keep the conference free of charge for consumers and their families.

A special thanks to our Corporate Partners whose generosity supports

Oley programs all year round. Corporate Partners are indicated with an asterisk (*) next to their company name. A complete list

can be found on page 22.

Exhibitors

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Exhibitors (cont.)

CoRPAK MEDSySTEMS1001 Asbury DrBuffalo Grove, iL 60089www.corpakmedsystems.comCORPAK MedSystems’ feeding tubes and accessories provide clinicians, caregivers, and patients the options they need for successful enteral feeding. Included are NG/NI feeding tubes, PEGs, G-tubes, LPGDs, and the FARRELL® Valve System to assist those with issues of feeding intolerance. CORPAK also offers Clog Zapper to keep feeding tubes functioning.

CoViDiEN*15 Hampshire StMansfield, MA 02048www.covidien.comCovidien is a leading global health care products company that creates innovative medical solutions for better patient outcomes and delivers value through clinical leadership and excellence. Covidien develops, manufactures, and sells a diverse range of industry-leading medical device and supply products. Visit www.covidien.com to learn more about its business.

FRESENiuS KABi* 3 Corporate DrLake Zurich, iL 60047www.fresenius-kabi.usFresenius Kabi is a leading global health care company that focuses on pharmaceuticals and medical devices used to care for critically and chronically ill patients inside and outside the hospital. Fresenius Kabi products include intravenous specialty and generic medicines, transfusion technologies, infusion therapies, clinical nutrition, and related medical devices.

FuNCTioNAL FoRMuLARiES860-C Franklin StCenterville, oH 45459www.functionalformularies.comFunctional Formularies® Liquid Hope is a nutritionally complete, organic, real food, whole foods feeding tube formula and oral meal replacement. It is plant based, dairy free, gluten free, soy free, corn free, non-GMO, and packaged in a BPA free pouch. Liquid Hope has a two-year shelf life without preservatives.

HALyARD HEALTH*5405 Windward PkwyAlpharetta, GA 30004www.halyardhealth.comHalyard Health, Your Source for Enteral Feeding delivers clinical products and remarkable service to improve tube users’ well-being. Its MIC-KEY* tubes are the most trusted and studied low-profile feeding tubes and give pediatric, children and adults freedom and mobility. Its “all-in-one” GJ-tubes eliminate the second procedure. Visit www.mic-key.com.

HoME SoLuTioNS1001 South Grand StHammonton, NJ 08037www.infusioncare.comHome Solutions Infusion Therapy is one of the largest independent home infusion providers in the country. The Home Solutions team understands the importance of a positive patient experience. “From the first interaction with the intake department, to the driver, patients feel confident that the company will perform positively and place their health first,” says Home Solutions.

NESTLé HEALTH SCiENCE*12 Vreeland RdFlorham Park, NJ 07932www.nestlehealthscience.com Nestlé Health Science strives to make a positive difference to the nutritional health, well-being, and quality of life of patients through the development and delivery of innovative, medically recognized branded nutritional solutions for acute and chronic conditions.

NuTRiSHARE, iNC*9850 Kent StElk Grove, CA 95624www.nutrishare.comNutrishare celebrates its twenty-five year birthday next year! Focusing solely on home TPN patient care throughout the country, and now Canada. It is proud to be a part of another Oley Conference! Stop by the booth for your “selfie stick” gift.

NuTRiSHARE CANADA*2180 Steeles Ave W, unit 4 Concord, oN L4k 2Z5www.nutrishare.comIn collaboration with Nutrishare Inc. owners Tom Diamantidis and Rod Okamoto, Sahar Whelan and Souha Mourad became part of a new standard of excellence in TPN care in Canada. Quality care for travelling patients, sharing of resources, and expertise across the border is the first of its kind.

Exhibitors (cont.)

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oPTioN CARE*1411 Lake Cook RdDeerfield, iL 60015www.optioncare.comOption Care is a leading provider of home infusion services. It has a staff of more than 1,700 clinical experts and provides comprehensive support to treat a broad range of acute and chronic conditions. Option Care provides service through its ninety infusion pharmacies and one hundred alternate treatment sites nationwide.

REAL FooD BLENDSPo Box 2126Chesterton, iN 46304www.RealFoodBlends.com Real Food Blends makes shelf-stable, 100% real food meals for tube-fed people of all ages. No corn syrup, preservatives, soy, dairy or nuts—just real food. Covered by many insurance plans too. Stop by for a free sample and to learn more!

SHiRE*300 Shire WayLexington, MA 02421www.shire.comShire enables people with life-altering conditions to lead better lives. Its strategy is to focus on developing innovative specialty medicines to meet unmet patient needs. It provides treatments in rare diseases, neuroscience, GI, and internal medicine, and is developing treatments for symptomatic conditions in other therapeutic areas, such as ophthalmics.

THRiVERx*10828 Kenwood RdCincinnati, oH 45242www.thriverx.netThriveRx, a Division of Diplomat, is proud to be a Gold Medallion Partner of the Oley Foundation. The company is dedicated to providing customized care for the home enteral and parenteral nutrition consumer. Its mission is to promote independence and empower patients and their families. Visit them at www.thriverx.net.

xERiDiEM4700 S overland DrTucson, AZ 85714www.xeridiem.comXeridiem is a vertically integrated silicone expert in single-use medical devices with a reputation for working transparently with customers to provide excellent service and superior quality. The design, development, and manufacturing emphasis are on improving enteral feeding devices for improved patient comfort and performance. FDA Registered, ISO 13485:2012.

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Non-Profit/Family Business Exhibits

AMERiCAN SoCiETy FoR PARENTERAL & ENTERAL NuTRiTioN (A.S.P.E.N.)

8630 Fenton St, Ste 412Silver Spring, MD 20910www.nutritioncare.orgThe American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) is dedicated to improving patient care by advancing the science and practice of clinical nutrition and metabolism. Founded in 1976, A.S.P.E.N. is an interdisciplinary organization whose members are involved in the provision of clinical nutrition therapies, including parenteral and enteral nutrition.

CAREALiNE PRoDuCTS, LLC17 Conant St, #61Danvers, MA 01923www.carealine.comCareAline Products, LLC manufactures and distributes the CareAline® Central Line Wrap (Broviac, Hickman, Groshong; also for G-tubes and various other catheter securement) and CareAline® PICC Line Sleeve. CareAline products are functional, line management, risk management, protective garments. CareAline® products can reduce line damage, breakage, and lines being pulled out.

DiETiTiANS iN NuTRiTioN SuPPoRT, ACADEMy oF NuTRiTioN AND DiETETiCS

5436 20th St NArlington, VA 22205www.dnsdpg.orgDNS is a Dietetic Practice Group in the Academy of Nutrition in Dietetics. DNS focuses on integrating the science and practice of enteral and parenteral nutrition in order to provide appropriate nutrition support therapy to adult and pediatric patients in hospital, at home, and throughout the health care continuum.

GLoBAL ENTERAL DEViCE SuPPLiER ASSoCiATioN (GEDSA)

692 N High St, Ste 304Columbus, oH 43215stayconnected.orgGEDSA is a nonprofit trade association formed to introduce international standards for medical device tubing connectors. Comprised of manufacturers, distributors, and suppliers worldwide, GEDSA facilitates information flow about the Stay Connected initiative, designed to increase patient safety and optimize enteral feeding delivery by reducing the risk of tubing misconnections.

GuS GEAR6196 Penn DrButler, PA 16002www.gusgear.netFun, functional covers for central lines, ostomy pouches, feeding tubes, and more! Gus Gear products were designed not only to be attractive and functional but also to reduce the social stigma associated with medical challenges like central lines, feeding tubes, and ostomies.

MiToACTioNPo Box 51474Boston, MA 02205www.mitoaction.orgMitoAction is a nonprofit organization dedicated to improving the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.

The Oley Foundation is pleased to share the resources these non-profit and family businesses offer to our community.

These tables will be open Tuesday and Wednesday during breakfast (8 a.m. to 9 a.m.) and before lunch (noon to 12:15 p.m.) only.

We encourage you to visit our corporate exhibitors and luncheon food stations in the Lobby, Portico, Arches and Putnam’s 12:00-2:30 p.m. Don’t forget to get

your Exhibitor Score Card signed and turned in. Details on page 2.

Non-Profit/Family Business Exhibits (cont.)

12

SBS CuRE PRoJECTPo Box 982Lakeville, MN 55044www.SBSCure.orgSBS Cure Project is dedicated to finding a “cure” for short bowel syndrome (SBS). SBS Cure is determined to educate SBS brothers and sisters about their treatment options and to do everything possible to find a cure.

SBS FouNDATioN6705 Milan DrLincoln, NE 68526The Short Bowel Syndrome Foundation’s mission is to educate, support, and empower patients who live with the condition and the health care providers who help patients to manage SBS. SBSF empowers patients and their families to live fuller lives by connecting them to necessary resources, creating a lifeline of hope.

ZAyAZ iNC1526 North Cleveland AveFergus Falls, MN 56536www.zayazinc.comZAYAZ (zay-yahz) Inc. is a children’s medical apparel company featuring multi-zippered, adaptable sleepwear for children with ongoing medical needs. Access feeding tubes, catheters, and/or ports with one quick zip! Visit the company at www.zayazinc.com.

13

Faculty

PENNy L ALLEN, RD, CNSCNational Director, Nutrition Support AxelaCare Health Solutions 15529 College Blvd Lenexa, KS 66210 Penny is a Registered Dietitian and Certified Nutrition Support Clinician (CNSC) through A.S.P.E.N. For much of her career, Penny has been responsible for regional and national program development related to HPN. She earned her Bachelor of Science degree in Nutrition and Dietetics from the University of New Hampshire and completed her post grad internship at Beth Israel Hospital in Boston, Massachusetts. Penny has worked in the home infusion industry for more than twenty-five years serving in direct clinical and patient care, nutrition program development, and sales and marketing. Penny also currently serves on the A.S.P.E.N. Public Policy Committee. As the National Director, Nutrition Support, for AxelaCare, Penny is charged with the growth and development of a specialty PN program. She provides clinical, sales, and marketing field support for this specialty infusion/PN provider. Penny also serves as a subject matter expert for Medicare qualification issues related to PN, and provides nutrition support (PN) continuing education presentations to payers, physicians, hospitals and clinicians, along with direct patient assessment and clinical monitoring for home PN patients. Penny is co-author of the 2012 A.S.P.E.N Position Paper, “Clinical Role for Alternative Intravenous Fat Emulsions,” Novel Nutrient Task Force, Intravenous Fat Emulsions Workgroup and A.S.P.E.N. and is the author or co-author of numerous nutrition support practice abstracts.

MARCiA BoATWRiGHT, RN, CRNiClinical Service LiaisonCoram CVS/specialty infusion services215 14th Ave SWRochester, MN 55902Marcia serves as a clinical liaison for Coram Specialty Infusion, Minnesota branch, responsible for clinical services coordination, clinical resource consultant as well as client, medical staff and homecare agency education. Marcia holds national certification in infusion therapy nursing and is a long time participant at Oley Foundation conferences with interest in vascular access catheters, consumer education and parenteral nutrition therapy. She is an active member of Intravenous Nursing Society (INS), International Transplant Nurses, Holistic Nurses Association, and numerous other professional nursing organizations.

BETTEMARiE BoNDHPN Consumer, occupational TherapistLevittown, PA 19057Bettemarie has a long history of volunteering on behalf of Oley as a Regional Coordinator (now Oley’s Ambassador program). Bette has a suspected mitochondrial disorder with dysmotility through her entire GI tract, and has been on intravenous nutrition and other infusion therapy for twenty-five years. She is very passionate about spreading awareness, empowering others, and advocating for herself and others. In 2009 Bette was the first recipient of A.S.P.E.N.’s Lyn Howard Nutrition Support Consumer Advocacy Award. Bette has made congressional visits in Washington, DC, with the Digestive Disease National Coalition and with the United Mitochondrial Disease Foundation. She has reached out to her local political representatives with e-mails and personal visits to share information and resources to encourage change and request support for issues vital to nutrition support and improved health care. Bette worked as a pediatric occupational therapist for fourteen years. She retired last year due to medical reasons.

RiCK DAViS2761 Jean Lafitte Dr Fernandina Beach, FL 32034 Rick began tube feeding after a stroke in December 2000. He attended his first Oley conference in 2002 and, he says, the experience

changed his life. Since then, he has been an Oley volunteer, board member, and president. He has facilitated the tube feeding workshop at several previous conferences and has been a frequent speaker.

MARK DELEGGE, MD Senior Global Medical Director, Baxter

HealthcareMedical Director, Coram CVS/specialty

infusion servicesMedical Director, DeLegge Medical2356 Darts Cove Way Mt Pleasant, SC 29466Dr. DeLegge is a long-time member of the Oley Foundation and A.S.P.E.N. He is the Medical Director at DeLegge Medical, which focuses on research and design.

TERRy EDWARDSHEN Consumer, oley Vice PresidentExecutive Vice President uS operations,

Richards Packaging2650 Fortress DrPort Coquitlam, BC V3C 6G7CanadaTerry Edwards is currently serving his second term on the Oley board. Terry has been on home enteral nutrition (HEN) since 2005, after having had a tumor removed from the base of his brain. He has attended several Oley conferences and represents the consumer voice at professional meetings. Terry lives in Vancouver, Canada, and travels frequently in the United States and internationally for work. After finding himself on tube feeding, Terry writes, “There came a point when I had to decide how I was going to deal with all this. After six months of taking it easy, I needed to get on with it—the charm of hanging around the house was wearing thin. I gradually went back to my Vancouver office and set my sights on making all my feeding and sundry medical supplies as portable and easy to deal with as possible. Lucky for me, I came across the Oley Foundation Web site and learned some of the positive things I could do to make life simpler.” Thus began his involvement with the Foundation.

Names and addresses are provided for educational purposes only. The Oley Foundation requests that in the spirit of the Oley mission, this listing not be used for the purpose of sales.

Abbreviations: A.S.P.E.N. = American Society for Parenteral and Enteral Nutrition PN = parenteral nutrition HPN = home parenteral nutritionHEN = home enteral nutrition

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Faculty (cont.)

GAiL M EGAN, MS, ANPNurse Practitionerinterventional RadiologySutter Medical GroupSacramento, CAGail is a nurse practitioner in interventional radiology (IR) with the Sutter Medical Group in Sacramento, California. She has been an NP in IR for almost twenty years. Her primary responsibility is to coordinate all clinical cases, perform consultations, and manage complications. Prior to her work in IR, Gail was a nurse practitioner in oncology. Gail is an active member of the Society of Interventional Radiology and the Association for Vascular Access. She is the 2008 recipient of the Suzanne LaVere Herbst Award for Excellence in Vascular Access Practice.

GuNNAR ESiASoNProgram Director and Patient Advocate,

Boomer Esiason Foundation; Consultant, Nestlé Health Science

200 B Armstrong RdGarden City Park, Ny 11040Despite being diagnosed with cystic fibrosis at age 2 and having a feeding tube since 2011, Gunnar considers himself both a successful athlete and contributing member to society. He graduated from Boston College in 2013. He now works as a patient advocate for the Boomer Esiason Foundation which funds research to find a cure for cystic fibrosis, a consultant for Nestlé Health Science, and as a high school football and hockey coach. He will be speaking about living a full and successful life with a feeding tube.

RACHEL EWELLSenior Reimbursement ManagerReimbursement Concepts, inc 3236 Main St Weirton, WV 26062 Rachel has worked in the field of health care reimbursement since 1998, primarily in the area of home infusion therapy. She has experience working with all of the large commercial insurance plans, Medicare, and many of the state Medicaid programs. Her current role as the Senior Reimbursement Manager for Reimbursement Concepts allows her to work with clients from across the country, assisting them with ensuring efficient billing and collection practices for home infusion and DME services, including HPEN. Rachel currently serves as chair of the

Payer Advocacy and Relations Committee for the National Home Infusion Association; she is also a member of the Provider Outreach and Advisory Group for Jurisdiction B DME MAC.

MADALyN GEoRGE-THiEMANN, RN, CNSMother208 Arch RdChesapeake, VA 23322Madalyn has been a registered nurse for longer than she cares to say. She became Roy’s mother in 1990 and has been caring and advocating for him as he has grown into a fine young man. Madalyn has also cared for many children requiring HPEN in the hospital and home setting.

RuTH GERMANiScreening ManagerTSARuth, now a Screening Manager with Transportation Security Administration (TSA), was first hired in 2007 as a Security Officer (TSO) and has an excellent working knowledge of TSA Standard Operating Procedures, which include screening passengers with a wide variety of medical conditions. For several years prior to joining TSA, Ruth provided patient care in a nursing care facility and has firsthand knowledge of caring for patients with similar needs.

BRENDA L GRAy, PHARMD, BCNSP, CNSC, PRS, CVAA

owner-Manager, Clinical Pharmacy Partners4324 Golf Club Ln Tampa, FL 33618 As a clinical pharmacist and specializing in nutrition support for the last twenty years, Dr. Gray has helped lead nutrition support programs for all ages; she specializes in the long-term consumer. She is involved in leadership roles in state, national, and international associations supporting HPN and HEN consumers. Additionally, her experience with disaster support organizations has given her a particular interest in ensuring safety of the special needs community in times of crisis. Over the past two and a half years, she has also been an HPN consumer.

KATHLEEN M GuRA, PHARMD, BCNSP, FASHP, FPPAG, FASPEN

Clinical Pharmacist Gi/Nutrition Team Leader, Surgical Programs

Manager, Clinical ResearchBoston Children’s Hospital300 Longwood AveBoston, MA 02115 Dr. Gura is the Team Leader with the Surgical Program and a clinical pharmacist with the Clinical Nutrition Service in the Division of Gastroenterology and Nutrition at Boston Children’s Hospital. She is also an Associate Professor of Pharmacy Practice at the Massachusetts College of Pharmacy in Boston. Certified as a Nutritional Support Pharmacist, Dr. Gura is a Fellow of A.S.P.E.N., the American Society of Health-System Pharmacists, and the Pediatric Pharmacy Advocacy Group. She is also a member of several pharmaceutical societies, including A.S.P.E.N. and the European Society for Parenteral and Enteral Nutrition. She has received numerous awards, including the 2012 Distinguished Pharmacist Award from A.S.P.E.N. and the 2008 A.S.P.E.N. Serlick Award for safe practice in the field of PN. Dr. Gura has written several book chapters on pediatric nutrition and many articles for peer-reviewed journals on topics such as PN-associated cholestasis, clinical practice guidelines for PN, and the use of PN in the neonate.

LiLLiAN HARVEy-BANCHiK, MD, FACS, CNSC

2001 Marcus Ave, Suite 240E Lake Success, Ny 11042Dr. Harvey-Banchik has been involved in PN, both home and outpatient, since going into practice in 1987. Her practice is currently limited to PN patients and is dedicated to insuring them the widest access to care, and to maximizing the quality of their lives. In the past year Dr. Harvey-Banchik met with members of Congress during Digestive Disease National Coalition’s Capitol Hill Day to discuss issues of access to care. She also testified in front of a public hearing chaired by New York Assemblyman Richard Gottfried to advocate for wider access to health care for PN patients. Dr. Harvey also serves as a member of the Public Policy Committee of A.S.P.E.N. and was part of the study, recently published in Nutrition in Clinical Practice, on “Results of Provider and Consumer Survey on Nutrition Therapy Insurance Coverage.”

15

Faculty (cont.)

MARyBETH HoLLiNGER, RN, MSNMito411 Coordinator, VolunteerMitoAction Support Group Moderator Advocacy Task Force Member, MitoAction14 Pembroke St Medford, MA 02155MaryBeth has been working with families with mitochondrial disease for over five years as a MitoAction volunteer. She has held a variety of roles. As MaryBeth writes, “Most mito patients are medically complex with dysfunction in many body systems. As the GI system requires a high amount of energy to function properly, it is often heavily affected by mito.” Many MitoAction callers have G- or GJ-tubes, PN, ports, altered diets, gastric pacers, gastroparesis, and other GI symptoms. MaryBeth’s area of special interest includes supporting, educating, and providing advocacy to those facing allegations of medical child abuse, Munchausen syndrome (alone or by proxy), or similar issues.

LyN HoWARD, MB, FRCPProfessor Emeritus, Albany Medical CollegeFormer Head of Clinical Nutrition Program,

Albany Medical Center (1972–2008)Medical Director and Co-founder, The oley

Foundation43 New Scotland AveAlbany Medical Center, MC 28Albany, Ny 12208In the early 1970s Dr. Howard sent her first patient home on nutritional support, and since then she has been published widely in the HPEN arena. With Clarence (“Oley”) Oldenburg’s family support, Dr. Howard started the Oley Foundation in 1983. She is an advocate of the consumer voice in the organization and implementation of HPEN. She is now retired, but she continues research pertinent to HPEN. She is currently working on a national committee to update PN micronutrients. She lives on a farm and is an avid horse driver.

RyAN HuRT, MD, PHDAssociate Professor of MedicineDirector Home Parenteral Enteral Nutrition Mayo Clinic200 First St SW Rochester, MN 55905Born and raised in Rochester, Minnesota, most of Dr. Hurt’s higher education is from the University of Louisville. Dr. Hurt became the Director for Home Parenteral and Enteral Nutrition at Mayo Clinic in 2012, a position previously held by Dr. Darlene Kelly.

MARiA KARiMBAKAS, RD, CNSCClinical NutritionistThriveRx, A Division of Diplomat7167 E Kemper Rd Cincinnati, OH 45249Maria is a registered dietitian and is board certified in nutrition support. She received her Bachelor of Science from the University of Vermont and completed her dietetic internship at Brigham and Women’s Hospital, Boston, Massachusetts. Before joining ThriveRx, Maria worked for six years as a clinical dietitian at the Nutritional Restart Center in Hopkinton, Massachusetts, the first intestinal rehabilitation program for consumers with short bowel syndrome. While at the NRC, Maria co-authored several abstracts, papers, and book chapters on the subject of diet and SBS. She is the co-author of ThriveRx’s Maximize Health Short Bowel Rehabilitation at Home program.

DARLENE G KELLy, MD, PHDScience and Medicine Advisor, The oley

Foundation Emeritus Associate Professor of MedicineMayo Clinic Rochester1318 21st Ave NERochester, MN 55906Dr. Kelly’s interest in HPN goes back to her college days, while her interest in nutrition goes back further—to seventh grade, when, she says, she was intrigued by the “Basic Seven Food Groups.” Like the basic food groups, her career has taken a variety of turns. She explored her interest in nutrition first as a college student, then as a dietitian, a college nutrition instructor, and a graduate student (both masters and doctoral degrees). She then pursued it as a medical student, resident, and fellow, and finally as a practicing gastroenterologist. Dr. Kelly was the Medical Director of Mayo Clinic

Rochester’s HPN program for twenty-two years. She served on the Oley Board of Trustees for over ten years, and now serves as Oley’s Science and Medicine Advisor. She is also active with the European Society for Nutrition and Metabolism (ESPEN) and their Home Artificial Nutrition (HAN) Work Group. Dr. Kelly has been a valuable contributor at Oley meetings for over fifteen years.

JASMiNE KHAMVoNGSA Public Relations GEDSA, Global Enteral Device Supplier

Association692 N High St, Ste 304 Columbus, oH 43215Jasmine’s role is public relations and marketing for GEDSA, a non-profit association formed to facilitate information flow about the new ENFit initiative, which is designed to increase patient safety by reducing the risk of tubing misconnections. Jasmine has served in this role since the beginning of the year. Her goal is to effectively communicate about ENFit so the end user will be well prepared for the changes in connectors with minimal disruption to current practice.

MARK G. KLANG, MS, RPH, BCNSP, PHD

Research Pharmacy Core ManagerMemorial Sloan-Kettering Cancer Center1275 york AveNew york, Ny 10065Dr. Klang works for Memorial Sloan Kettering Cancer Center and has been active in specialized nutrition support issues all of his career. Although he works in a lab and has almost no patient contact, he has devoted much of his time to studying the issues of drug administration through feeding tubes. He is active in A.S.P.E.N. and has made many presentations on this subject. He is especially interested in what happens when the feeding tube end is past the stomach.

16

Faculty (cont.)

HEiDi MARTiN-CoLEMAN, RNowner, Coleman ConnectEasthampton, MA 01027 Heidi is the owner-operator of Coleman Connect, a small business founded in 2009 that provides educational articles for nonprofit organizations, continuing education workshops for health care workers and disability educators, short-term case management and advocacy services to disabled clients, and English and health literacy to deaf adults. Heidi has been a registered nurse for twenty-five years and an educator for twenty. She was working as an early intervention/birth to three developmental nurse educator when her youngest daughter, Heather Grace, was born prematurely in 2002. Heather was diagnosed with maternally inherited mitochondrial encephalomyopathy and Leigh’s disease; Heidi, who had been misdiagnosed with MS for thirteen years, also received a diagnosis of mitochondrial disease. With the support of HPN, Heather was able to spend three years with her family before passing away due to complications of her disease. During that same year, Heidi experienced worsening GI and respiratory symptoms, and became dependent on HEN and eventually HPN, which she continues to receive. In 2006, Heidi became profoundly deaf as a result of receiving an ototoxic antibiotic for multi-drug resistant pneumonia. She became active within her local deaf community, returned to school, and became certified in deaf studies in 2011. Heidi is working towards her M.Ed. in adult basic education. She continues to contribute patient advocacy articles to nonprofit organizations (including Oley), and writes the column “Cut the Red Tape!” for MitoAction.org. Heidi lives in western Massachusetts with her husband Paul, teenage children Nicholas and Kaitlin, and service dog Mercury.

KEVN M MCNAMARA, PHARMD, CNSC, PRS, CVAA

owner-Manager, Clinical Pharmacy Partners14509 Thornfield CtTampa, FL 33624Dr. McNamara is a clinical pharmacist. She has been specializing in nutrition support for the last twenty years. She has run multiple nutrition support teams in Florida, and has also been a preceptor for students on nutrition support rotations. Over the past two and a half years, she has also been the caregiver for an HPN consumer.

MiCHAEL MEDWARPatient AdvocateCoram CVS/specialty infusion services491 W Central St D9 Franklin, MA 02038Michael is a nutrition patient advocate for Coram CVS/specialty infusion services. Michael was diagnosed with Crohn’s disease at the age of nine and was on HPN intermittently from 1984–2001 and briefly after bowel resection surgery in 2013. He attended his first Oley conference in the late 1980s thanks to his parents, Eli and Joan. Even though he was able to cease HPN, he has continued to attend conferences and volunteer for Oley. He served on the Oley Board of Trustees from 2003–2010 and has been a past conference co-chair. He also serves on the Sustain Executive Council of A.S.P.E.N. His mother, Joan, volunteers as an Oley regional Ambassador. A former newspaper editor, Michael has worked for Coram CVS since 2013.

ETHAN A MEZoFF, MDinstructor, Division of Gastroenterology,

Hepatology, and NutritionCincinnati Children’s Hospital Medical

Center3333 Burnet Ave, MLC 2010 Cincinnati, oH 45229Dr. Mezoff recently completed a fellowship in pediatric gastroenterology, hepatology, and nutrition and will begin his career as an instructor in the Division of Gastroenterology, Hepatology, and Nutrition at Cincinnati Children’s. There he will attend the intestinal rehabilitation clinic and continue clinical and translational work aimed at understanding how the microbiome influences adaptation to intestinal resection and how human milk oligosaccharides might be used to improve this process.

ANN MiCHALEK, MDoley Foundation Trustee Albany Medical Center Bariatrics25 Hackett Blvd, Ste 2 Albany, Ny 12208Dr. Michalek specializes in Clinical Nutrition at Albany Medical Center. She completed her fellowship with Oley’s co-founder, Lyn Howard, MD, and assumed responsibility for many of Dr. Howard’s patients when Dr. Howard retired in 2007.

NiCK MoRANoStakeholder LiaisonTSANick began his career with Transportation Security Administration (TSA) in 2002 as a Training Manager in Hartford, Connecticut, and in 2014 became the TSA Stakeholder Liaison in Albany, New York, a customer service related position. For thirteen years prior to TSA, he worked for United Airlines as a customer service representative and senior staff analyst, during which time he completed the registered nursing degree program at Hudson Valley Community College.

REiD NiSHiKAWA, PHARMD, BCNSP, FCSHP

Coordinator, Clinical ServicesDirector of ResearchNutrishare, inc9850 Kent StElk Grove, CA 95624Dr. Nishikawa has been involved with nutrition support for over thirty years. He is actively involved with the Oley Foundation, A.S.P.E.N., the European Society for Clinical Nutrition and Metabolism, the American Society of Health-Systems Pharmacists, and the American Gastroenterological Association. He has been involved in clinical research that has been presented at local, state, national, and international meetings. His clinical interests include intestinal failure, gastroenterology, and nutrition support. His interests also have focused on reducing complications and improving quality of life for the long-term HPN consumer.

SuSAN Joy oLSoN, RN Mayo Clinic Rochester1318 21st Ave NERochester, MN 55906Susan has served for two years as a home parenteral nurse educator at the Mayo Clinic in Rochester. Their program currently manages about 170 patients that are on HPN.

17

Faculty (cont.)

MARiANNE oPiLLA, RN, BSN, CNSCClinical Care and Research SpecialistNutrishare, inc9850 Kent StElk Grove, CA 95624Marianne received her nursing degree from Virginia Commonwealth University and has been a nutrition support specialist in the home and hospital settings since the mid-1980s. She has been certified as a nutrition support clinician since 1992, and was a member of the Nutrition Support Team at VCU Health Systems from 1989 to 2005. In 2005 she started with Nutrishare, Inc., where she currently serves as Clinical Care and Research Specialist. She has published several articles on nutrition support topics, is a previous winner of the HomePN Research Award, is an A.S.P.E.N. member, and received A.S.P.E.N. Abstract of Distinction in 2015.

ANN MARiE PARRy, RN, CRNi, VA-BC, RN Clinical CoordinatorViTALine Pharmacy Services, Geisinger

Health System100 N Academy Ave, MC 24-01 Danville, PA 17822-2401Ann Marie graduated from Presbyterian School of Nursing in Philadelphia. She has worked as a home infusion and home care nurse for almost twenty years. She has spent ten years at Macha Mission Hospital in Choma, Zambia, Africa. She has authored several posters and professional journal articles and has presented at several national conferences. Her focus has been on HPEN for most of that time working with both patient and home care staff. She has a passion for this special area and for educating those involved in the specialty.

DEAN T PARRy, RPHDirector, Pharmacy Clinical ProgramsGeisinger Health System100 N Academy Ave Danville, PA 17822 Dean has been the Director of Clinical Pharmacy programs for the Geisinger Health System for the last fifteen years. In his role he is responsible for the pharmaceutical care that is provided across the entire health system, including the appropriate administration of medications to a wide variety of patients. He has participated and led in the development of many protocols for the appropriate use and administration of

medication to patients who may not be able to receive the medications in the standard dosage forms. Dean has a strong interest in pharmacokinetics, which is the study of how the body absorbs, distributes, and eliminates medications, and teaches courses in this area to pharmacists across the Geisinger Health System.

CRAiG PETERSEN, RD, CNSC Nutrishare, inc9850 Kent StElk Grove, CA 95624Craig has been involved in the provision of HPEN for the last thirty-five years. He is actively involved in research involving HPEN, with the goal of identifying practices to reduce complications, provide more efficacious care, and improve quality of life of the HPEN consumer. One of Craig’s major areas of interest is the identification and treatment of D-lactic acidosis, a neurological disorder that can occur in short bowel syndrome. DEBoRAH PFiSTER, MS, RD, CNSCDirector of NutritionThriveRx142 Mill Rd Littleton, MA 01460Deb is a registered dietitian with a specialty in nutrition support. She has worked in the home infusion industry since 1990 before joining BioRx in 2007 to help create ThriveRx. Areas of specialization include gastrointestinal care, intestinal rehabilitation, and reimbursement for home nutrition support.

FRED REuNiNGSenior Marketing Manager, Medical DevicesNestlé Health Care Nutrition12500 Whitewater Dr Minnetonka, MN 55345Fred has been involved with enteral delivery products since the mid-1980s, first working for a company supplying components to the industry and then working for Sandoz Nutrition/Novartis as the marketing manager responsible for enteral pumps, sets and feeding tubes, which is the same role he has had with Nestlé since 2009. As part of the Nestlé team, Fred has participated in GEDSA with a focus on the U.S. market and the development of products and programs to improve enteral patient safety. In addition to his experience with enteral feeding, he has also worked in the

vascular access products area, gaining experience in IV access and delivery products. Fred’s experience with Oley goes back to the late 1990s when he conducted patient interviews to gain perspective on how patients would like feeding tubes and enteral pumps to function for them. “That experience,” he says, “impressed upon me the importance of understanding the needs of patients and caregivers and their special relationship with their enteral feeding equipment. Patients live and interact with these products each day. They become a part of their daily life.” They “should enhance and improve it,” he continues, and this has become a focus in his professional life.

TRiSH SKiENDZiEL, RD, LD, CNSCVice President Nutrition SupportBioscrip, inc462 Wando Park Blvd, Ste A Mt Pleasant, SC 24632As a registered dietitian with over fifteen years’ experience in home nutrition support and the wife of a man living with Crohn’s disease Trish says, “I work every day to minimize the impact chronic illness has on my own family and the consumers and families I work with. When helping a loved one manage a chronic condition, I believe, education, honest communication, and an open mind are essential components to leading a fuller, happier life.”

RiCHARD SMiTHBoard Member, National Home infustion

Association,President, Chief Executive officer BioScrip, inc.100 Clearbrook RdElmsford, Ny 10523Rick has been a leader in the home infusion and specialty pharmaceutical industry for many years. He currently serves as the CEO of Bioscrip Home Infusion. He is especially interested in enhancing operational processes within the industry to improve the patient experience and identifying the best ways to meet the needs of home infusion consumers in the rapidly changing health care environment.

18

Faculty (cont.)

Thanks to all the faculty who have volunteered to share their expertise in home

nutrition support and related issues. The success of the Oley Conference depends

heavily on the efforts of these dedicated individuals!

EMMA TiLLMAN, PHARMD, PHD, HPN CoNSuMER

Assistant Professor, Department of Clinical Pharmacy

university of Tennessee Health Science Center881 Madison AveMemphis, TN 38163Dr. Tillman has been an HPN consumer for the past three and a half years and has struggled with social eating in a food-centered world. Aside from being a consumer, she works full-time as an assistant professor in the Department of Clinical Pharmacy at the University of Tennessee Health Science Center in Memphis. She does research on intestinal barrier function.

KENDALL VAN PooLVice President of Legislative AffairsNational Home infusion Association100 Daingerfield RdAlexandria , VA 22314

PAM WAGNER, RD, LD, CNSCRegional Nutrition Program Manager option Care Home infusion Services1411 Lake Cook Rd #321Deerfield, iL 60015-5213As a dietitian, Pam has been helping care for HPEN consumers since 1993. Her role as an HPEN dietitian, she writes, “has allowed me the opportunity to be involved in the three most important facets of HPEN care—optimal provision of nutrition, maintaining the consumer’s highest quality of life while on HPEN, and maximizing consumer’s coverage of HPEN services. They are interconnected and can

change through the course of treatment.” As a member of A.S.P.E.N. for over twenty years and an Oley member for over fifteen years, she notes she has both contributed to research and learned from others’ research in the field of HPEN.

ANN WEAVERSenior Consumer AdvocateThriveRx Cincinnati, oH 45249 Ann first began advocating for consumers over twenty years ago with the birth of her second son. She was a Regional Coordinator for the Oley Foundation for nine years, and for the past five years she has been a Consumer Advocate for ThriveRx. During her time as a Regional Coordinator and as a Consumer Advocate, she has assisted in planning and coordinating Oley regional conferences, presented at Oley and A.S.P.E.N. conferences, lobbied federal legislators on behalf of consumers, participated in the production of consumer education videos, written articles and provided peer to peer support. She was the recipient of the 2008 Lenore Heaphey Grassroots Education Award and the 2014 Lyn Howard Advocacy Award.

DoNNA yADRiCH, MPA, CCRP university of Kansas3901 Rainbow BlvdKansas City, KS 66160Donna has been working on clinical research projects funded by the National Institutes of Health (NIH) for over twenty-five years at the University of Kansas Medical Center. She has experience with cancer patients and HPN

consumers and their families. For nine years, Donna has worked with Carol Smith, RN, PhD, FAAN; under her mentorship, Donna has authored and co-authored several peer-reviewed journal articles. Under the mentorship of Dr. Smith and Ubolrat Piamjariyakul, RN, PhD, she developed a data collection instrument to identify and tabulate out-of-pocket costs associated with chronic disease. This instrument has been used in Dr. Smith’s NIH-funded projects for HPN and heart failure and its data has been published in peer-reviewed journals. Donna earned a B.S. in Life Science and Physical Science (Kansas State University), a Master of Public Administration degree in Health Services (University of Missouri-Kansas City), and, since 1995, has been a Certified Clinical Research Professional (Society of Clinical Research Associates). Working with Dr. Smith introduced Donna, her daughter, Audrey, and son, Peter, to the Oley Foundation, where finally a community was found with which they shared common ground. Although Audrey was not on HPN or HEN, she had a very serious and rare autoimmune syndrome that contributed to her death in 2011. Prior to her death, Audrey joined the State of Kansas Youth Advisory Council for youth with special health care needs. To honor Audrey’s unfinished work, Donna works to improve the experience of the chronically ill and their family members. She serves on several state and national initiatives and has founded a business named AudreySpirit, LLC, to manufacture clothing for infants, children, youth, and adults with invasive medical devices.

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Research Prize

Nutrishare HomePN Research PrizeSponsored by Nutrishare, Inc., Oley Silver Circle Partner

The Nutrishare HomePN Research Prize was established in 2007 to encourage clinical studies focused on improving the quality of life for homePN consumers. The 2015 prizes will be awarded to:

Abigail Brogan ThriveRx

Cincinnati, OHMental Health Support of Consumers and Caregivers on Home Parenteral and Enteral (HPEN) Therapy

Ethan A. Mezoff, MD Cincinnati Children’s Hospital Medical Center

Cincinnati, OhioEthanol Lock Efficacy and Associated Complications in Children with Intestinal Failure

Marianne opilla, RN, CNSC Nutrishare, Inc.Elk Grove, CA

Central Line Associated Bloodstream Infection and Blood Drawing Practices in an Adult Home Parenteral Nutrition Population with Tunneled Catheters

All three of these research papers will be presented during Wednesday morning’s main session.

Travel Scholarships

Many thanks to the following individuals and corporate sponsors for their generous support of scholarships for first-time consumer attendees.

Melissa Chaney Memorial Fund I am Victor R. Chaney, the husband of Melissa Chaney, an HPN consumer and Oley contributor. Melissa passed away from natural causes on January 30, 2006. For more than nine years, Melissa battled pseudo-obstruction, polymyocitis, and mitochondrial myopath-transport chain deficiency. Over those years there were many drastic ups-and-downs. In the summer of 2003, Melissa learned of the Oley Foundation’s network of support and outreach. At that time Melissa’s health care management was less than adequate. Her weight was in a downfall—she was 5'1" and she averaged around 75 lbs. After joining Oley, the change in her health care and overall quality of life was amazing. We credited the education and contacts she acquired at our first annual conference as the turning point in her health. Melissa’s wishes in life were that any memorial donations given after her passing would be directed to Oley. In keeping with those wishes, we established this travel scholarship so that others may have the opportunity she had in attending.

Friends of Robin Lang Memorial Travel Fund To honor the memory of Robin Lang, several of her friends pooled their funds to continue a tradition that meant a great deal to Robin: getting more HPEN consumers to the Oley conference. As Robin explained once, “When I was born, I was bitten by the travel bug. When I became an HPNer I thought that bug was smashed into the windshield of my car. About one or two years after becoming an HPNer, I was able to attend Oley meetings. I learned so much, my life was forever changed. I have driven across the country (all the while mixing my PN). I’ve traveled to the Caribbean and made two trips to Europe. I’ve learned life-saving techniques, diet information, cutting-edge practices to keep me and my lifeline safe, and so much more. Most importantly, I learned that I am not alone. I have made many friends who have brought me a great deal of happiness. I’m so grateful to have the opportunity to help others have similar positive experiences.”

Corporate/Organizational Support for Travel Scholarships

ShireShort Bowel Syndrome Foundation

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Esther Ann Brown Adler Memorial Scholarship “What could be bad about a weekend in Boston?” That’s how I ratio-nalized my late wife Esther Ann’s suggestion that we attend something called an Oley Conference. I personally had no desire to spend a summer weekend at a convention talking about ostomy and J-tube products. Much to my surprise, the convention was a wonderful experience! Many of the seminars and products did not apply to our situation but the camaraderie was overwhelming for Esther Ann and me. Here were people that truly knew what she dealt with on a daily basis. Other than a particularly rough excursion to Provincetown, my strongest memory of our first Oley Conference was a sense of relief that there were thousands of good people handling issues like ours and working on solutions. Esther Ann and I both were very happy that we had made the decision to attend an Oley Conference and I am happy to support others in our position to do the same.

Jarol Boan, MD, MPH As a practicing internist, I have seen patients on home PN or EN feeding who struggle with the long-term ramifications of their disease. The constant, unrelenting burden of “hooking up” every night takes a toll on self-esteem, work, and family relationships. Additionally, the financial burden of having a chronic disease cannot be underestimated, even if there is insurance coverage for the solutions. The multiple visits to a physician, increased cost of gas, and incidentals that are not covered by insurance add to the burden of home PN and EN feeding. I strongly believe in the mission of the Oley Foundation to provide patient support for those affected, as well as educating physicians about home management. I have seen many patients helped by knowing there is an organization that is working on their side. The interaction between patients at an Oley conference is an important positive outcome for the attendees. My gift to the Oley Foundation is intended to help patients and their families attend the Oley conference, and experience the encouraging exchange of ideas that occurs as a result.

Travel Scholarships (cont.)

Bruce F. Groeber Family Bruce Groeber was an avid fan and regular attendee of the Oley annual conference. He never missed a conference after attending his first in 1988 until his death in March of 1997. Even though Bruce was on HEN for nine years and on HPN for an additional nine years due to malabsorption, he loved to eat and drink. He also loved boats and the water, computers and talking to people—most of all, though, he loved his family. Bruce and his wife Bobbie (still active in Oley as an Ambassador), have five children. Bruce also has several grandchildren now. The Bruce F. Groeber family feels it is important to sponsor a travel scholarship to the annual Oley conference because of what the conference has provided our family. The conference provides the opportunity to get together with others who have similar issues and concerns. It provides the opportunity to learn about new ideas and information. People leave the annual Oley conference knowing that they are not alone, feeling empowered and more positive about their life. They are aware of how much more information they have than when they started. The Bruce F. Groeber Travel Scholarship hopes to honor the joy Bruce found in the companionship with other Oley families by supporting others in their efforts to attend the conference.

Carol Ireton-Jones, PhD, RD, LD, CNSC, FASPEN, FAND It is my pleasure to donate to the patient travel grant funds for the Oley Annual Conference. As a professional attendee, speaker and volunteer, I know how important this conference is for consumers. However, until I read the consumer travel grant applications, I did not realize that the ability for a consumer to attend this meeting is potentially life changing— whether they are new or long-term, young or old, enteral or parenteral! Too many people are without the support of another person “just like them.” Finding that person is one of the key benefits of attending.

Carol & Jack Leibee In April 2005, the Leibees’ lives changed dramatically when Jack was diagnosed with short bowel syndrome. Complications arose frequently. They were astounded by the lack of information available to them. As Jack puts it, “soon we had more questions about my care than answers.” Fortunately they were put in touch with the Oley Foundation. Jack continues, “Oley has provided my wife and me with critical information that has allowed us to make informed decisions about how we treat my condition.” They also found support through Oley conferences. “Talking face to face with other families and health care specialists at these meetings has proven invaluable. We learned tips that made an immediate and lasting difference in my health and quality of life,” he adds. The Leibees are sponsoring a travel grant so they can share this valuable experience with another consumer.

Janet Platt & Christopher Hlatky We are sponsoring a travel grant for this year’s Oley Foundation Consumer/Clinician Conference because we strongly believe in the positive impact attending the conference can have. Several years ago Janet’s brother got his first tubes. We were all scared and depressed. What did this mean for his quality of life? Would he be able to work? What was his life expectancy? The doctors and nurses at the hospital seemed almost as clueless as we were. Then a social worker mentioned Oley casually in passing. I found out the annual conference (that year in Saratoga Springs, NY) was only a few weeks later. I signed Janet’s brother and me up and practically dragged him there from the hospital! From the moment we arrived, we found a warm, supportive, and INFORMED group of people. We met lifelong tube users who were in college or working full-time, people who had families, people who, in general, were experiencing an excellent quality of life. We got so many questions answered. We learned about different kinds of tubes and pumps, different kinds of care providers and insurance issues. We left feeling much more positive about life with feeding tubes. Having Oley around to support and inform is priceless. Helping other tube users get the support they need is important to us.

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The following companies provide over one-half of the funds needed to support Oley programs all year long. Corporate relationships also strengthen our educational and outreach efforts. For their continued interest and strong commitment we remain grateful.

PLATINUM LEVEL PARTNERS ($70,000)BioScrip, Inc.

GOLD MEDALLION PARTNERS ($50,000)Coram CVS/specialty infusion services

ThriveRx

SILVER CIRCLE PARTNERS ($30,000)Nutrishare, Inc.

Shire

BRONZE STAR PARTNERS ($20,000)Baxter HealthcareBoston Scientific

Covidien Fresenius Kabi USA

Halyard Health

BENEFACTOR LEVEL PARTNERS ($10,000)Abbott Nutrition

Nestlé Health ScienceOption Care

Teleflex Foundation

PATRON LEVEL PARTNERS ($5,000)Applied Medical Technology, Inc.

Nutrishare Canada

Oley Corporate Partners

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The Groeber FamilyValerie Gyurko, RN

Alfred HaasShirley HellerAlicia Hoelle

Jeff & Rose HoelleLyn Howard, MD

William HoytPortia & Wallace Hutton

Kishore Iyer, MDDoris R. Johnson

Darlene Kelly, MD, PhD, FACP Family of Shirley Klein

Jim Lacy, RN, BSN, CRNI Robin Lang

Hubert MaidenLaura Matarese, PhD, RDN, LDN, CNSC,

FADA, FASPENKathleen McInnesMichael MedwarMeredith NelsonNancy Nicholson

Horizon Society Members

Felice Austin Jane Balint, MD John Balint, MD

Joan BishopGinger Bolinger

Pat Brown, RN, CNSCFaye Clements, RN, BS

Katherine CotterJim CowanRick Davis

Ann & Paul DeBarbieri David & Sheila DeKoldDale & Martha Delano

Tom Diamantidis, PharmDGail Egan, MS, ANP

Selma EhrenpreisHerb & Joy Emich

Jerry Fickle Don FreemanLinda Gold

Linda GravensteinDeborah Groeber

Rodney Okamoto, RPh, & Paula Okamoto

Kay OldenburgHarold & Rose OrlandJudy Peterson, MS, RN

Clemens PietznerBeverly PromiselAbraham RichWendy Rivner

Roslyn & Eric Scheib DahlSusan & Jeffrey Schesnol

Doug Seidner, MD, FACG, CNSC Judi Smith

Steve SwensenCheryl Thompson, PhD, RD, CNSC, &

Gregory A. Thompson, MD, MScCathy Tokarz

Eleanor & Walter WilsonMarion & Larry Winkler

James WittmannPatty & Darrell Woods

Rosaline Ann & William Wu

Join us!If Oley was there for you and your family in a substantial way,

please consider becoming a member of theOley Foundation Horizon Society.

This is our best chance of making sure Oley is there for the next consumer, and the next.

Joan Bishop and Roslyn Dahl can answer your questions this week, or speak to you at any time at (800) 776-OLEY or

bishopj@mail.amc.edu or dahlr@mail.amc.edu.

“Oley holds a special place in my heart, and

its future security is important to me. It’s an

honor and a privilege to be a part of this

group that shares my passion.”

— Joan B.

Ensuring the Future of oleyMany thanks to those whose commitment and dedication to the

Oley Foundation has led them to arrange a planned gift to help ensure continuing support, service, and advocacy for HPEN consumers and their families.

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Sticker Shape/Color Diagnosis

J red Short bowel syndrome

J purple Motility disorder

J orange Swallowing disorder

J pink Inflammatory bowel disease

J yellow Other

Sticker Shape/Color Therapy

★ silver Parenteral nutrition (PN)

★ blue Enteral nutrition (EN)

Sticker Shape/Color Status red Caregiver/spouse/family member

Ribbons & Dots

You’ve probably noticed several people milling about the conference wearing ribbons and stickers on their badges. To unravel the mystery, below is a color-coded guide to their significance. Colored stickers (“dots”) can be used to identify the diagnosis (or diagnoses) and nutrition therapy (or therapies) your family has experience with—making it easier for you to connect with others with similar experiences. Pick up ribbons and stickers at the registration desk.

Ribbon Color Indicates

Bright Green First Time Attendee...please make them feel welcome!

Red Award Winner

Brown Award Nominee

Black President

Maroon Conference Co-Chair

Blue Oley Board Trustee

White Past Board Trustee

Turquoise Conference Chair

Teal Faculty

Kelly Green Exhibitor

Red/White/Blue Oley Ambassador

Hot Melon Conference Volunteer

Hot Orange Inspire Member

Eggplant Ask Me, I’m a Dietitian

Want to meet your Inspire friends?Add an orange “Inspire Member” ribbon to your name badge and introduce yourself to others with the ribbon.

Kimberly-Clark Health Care is now Halyard Health.

We are your source for enteral feeding delivering clinically-superior products (like the MIC-KEY* G-Tube) and remarkable service to improve tube users well-being.

BETTER CAREDESERVES A NEW NAME.

www.mic-key.com

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FORMERLY KIMBERLY-CLARK HEALTH CARE

www.SafeEnteralConnections.com

www.Covidien.com

COVIDIEN, COVIDIEN with logo and Covidien logo are U.S. and internationally registered trademarks of Covidien AG. Other brands are trademarks of a Covidien company. ©2015 Covidien

A New Twist on Enteral Connection Safety

Recently, the International Standards Organization created ISO CD 80369-3 defining a safe design for an enteral feeding connector.

Covidien, in collaboration with companies across the industry, has helped to develop the ENFit Connection System and the Stay Connected Initiative.

Specialists in HomePN.

Experienced team of Board Certi�ed Nutrition Support Pharmacists (BCNSP).

Empowering TPN consumers to choose their supplies and equipment.

Leaders in HPN Research.

America’s Premier HPN Pharmacy Created Exclusively for Long-term Home TPN Consumers

Why Choose Nutrishare?

1 800 HOME TPN

Serving TPN Consumers Nationwide

®

24 Years of Home TPN Dedication

www.nutrishare.comhometpn@nutrishare.com

Helping our family of consumers

reach a greater quality of life

1-888-6-THRIVE (847483) | info@thriverx.net | www.thriverx.net

Visit ThriveRx’s Rehydration StationDrop by the rehydration station in the lobby for a taste test and learn more about OralRehydration Solutions. We will be open during breakfast and lunch and before the walkathon.

ThriveRx, a division of Diplomat, is a national providerof home TPN and enteral services. Our mission is toprovide education to empower our consumers.

Learn more

Copyright © 2015 by Diplomat Pharmacy Inc. Diplomat and Thrive Rx are either trademarks orregistered trademarks of Diplomat Pharmacy Inc. All rights reserved. BIORX - 001182 - 0515

Small but durable.*

Ditto.• Flexible design for comfort

• Durable up to 90 days*

• 24/7 clinical support line

• Meets new ISO misconnection safety standards

EndoVive™ 3s Low Profile Balloon

Designed for your child’s comfort. Committed to caregiver peace of mind.

*Balloon durable for 90 days when tested in accordance to ASTM F2528-06(G) method at recommended fill volume.

Indications, Contraindications, Warnings and Instructions for Use can be found in the product labeling supplied with each device.

Caution: Federal (U.S.) law restricts this device to sale by or on the order of a physician.

©2015 Boston Scientific Corporation or its affiliates. All trademarks are the property of their respective owners.

ENDO-314604-AA May 2015 www.bostonscientific.com

BioScrip’s home parenteral and enteral nutrition program is specially designed to fit your life in the most convenient way possible. For 30 years, we have been delivering clinical excellence in nutrition support for any age and any lifestyle. With over 70 locations nationwide and our extensive payor relationships, we can be there to provide the quality care you deserve so you can focus on living your life.

is a breeze...

Our mission is to enhance thelives of those we care for each day.

© 2015 BioScrip, Inc. All rights reserved.

Life

Call us to find out more 844.213.8446or visit bioscrip.com

Visit booth 17 to learn more about our advancements in parenteral nutrition.

Map of Meeting Rooms