6310 LBJ Freeway Suite 213

Dallas, TX 75240(972) 620-7600 www.daps.us

JULY 2020

INSIDEthank you 2

instructor spotlight 3non-event donations 4-5

memorials, honors, donations 6

parkinson’s foundation grant 6the way of the tortoise 7

virtual classes & webinars 8upcoming events 9

upcoming meetings 10

Connecting in QuarantineThe new “normal” certainly hasn’t been easy or what most of us would have invited; and although we are getting through this tough time, the common theme seems to be a longing to connect more personally with one another. So, we’ve put on our creative caps and come up with some opportunities to connect a little more and we hope you will consider taking advantage of these.

July Jubilee in QuarantineThe July Jubilee is an annual DAPS tradition celebrating the birthday of Clarice Dougherty. Clarice founded DAPS in 1978 when her husband was diagnosed with Parkinson’s disease (PD). This year’s virtual July Jubilee will be the first of its kind, but with your help we can make it fun, interactive, and memorable for all. No registration is required, so we encourage you to invite your loved ones to be a part of our celebration which will honor those keeping Clarice’s mission alive—our outstanding volunteers and instructors.

We also invite you to submit a clever or creative poem that is quarantine themed. It doesn’t have to be long and you don’t need to be a poet to participate. Just email us your poem by July 5 and it will be included in our program. Prefer to remain anonymous? No problem —but it will be a contest and participants will have a chance to vote on their favorite poem submitted. The winner will be announced and a prize awarded.

Personal PD PalsIt’s been over 3 months since our last in-person classes were held. That means connecting with friends and instructors has looked a lot different. We understand the importance of community, discussion, and support within the PD community and we realize that the current situation has made it difficult to provide this kind of meaningful connection. Fortunately, our PD Pals are a group of very dedicated, knowledgeable, and compassionate people who have been impacted by PD in some way. Some of these men and women have PD, others

DAPS is Zooming! (Learn more on Page 8)

Visit daps.us and follow us on Facebook for the most up-to-date information and links to webinars.CONNECTING continues on Page 3

July Jubilee &

Volunteer AppreciAtion

VirtuAl eVent

Monday, July 13

1:00 p.m.

Please click the link below to join the webinar:

https://us02web.zoom.us/j/82369848247

See dial in options on Page 2

Dedicated to impacting and improving the lives of those affected by

Parkinson’s disease

Executive DirectorMike Miles

Board of DirectorsBentley Foster, President Jo Klein, Vice President

Barbara Glass, Secretary Greg Wood, Treasurer

Advisory CouncilSarah Atwood Charlene Noe Ben Casey Sandi Pautler Carlie Dorshaw-Moe Joyce Susman Pat Goukler Barbara Taylor Shirley Hand

Medical Advisory BoardShilpa Chitnis, M.D., Ph.D. Richard B. Dewey, Jr., M.D.

Thomas D. Franklin, Jr., Ph.D. Richard L. Fulbright, Ph.D. Dwight C. German, Ph.D. Aashoo Mentreddi, M.D.

Padraig O’Suilleabhain, M.D. Nirav Pavasia, M.D.

Alexander Peralta, M.D. R. Malcolm Stewart, M.D.

Gary L. Tunell, M.D.

NewsletterJill Dominguez, Managing Editor Pam Michel, Production Editor

DAPS StaffLeisha Phipps, Program Director

leisha@daps.org

The DAPS newsletter is published monthly as an information guide only, and does not

serve as legal or medical advice.

Martha BonillaMike BraitschJared CaplanChris ClausenMartha FiddesStephen Holman

Harold KelloggJim LynchGreg RectorMarcie SalamoneChuck Stewart

PAGE 2 • DAPS • JULY 2020

JULY JUBILEE DIAL-IN OPTIONSYou may join the July Jubilee & Volunteer Appreciation Celebration

by phone with any of the following options:

iPhone single-tap:

US: +13462487799,,82369848247# or

+16699006833,,82369848247#

For other phones, dial:(For higher quality, dial a number based on your current location):

US:

+1 346 248 7799 or

+1 669 900 6833 or

+1 253 215 8782 or

+1 929 205 6099 or

+1 301 715 8592 or

+1 312 626 6799

Webinar ID: 823 6984 8247

International numbers also available:

https://us02web.zoom.us/u/kc9Oh7Uh7E

The July Jubilee is being sponsored by:

We appreciate their generosity!

are spouses of someone with PD, and some are adult children of a parent with PD. If you or someone you know would like to connect with a PD Pal, let us know and we will be sure to match you up with someone that can help you along this journey. PD Pals are here to help—whether that be through phone calls, emails, or texts.

Connecting VirtuallyDAPS has become much more active on social media, providing you with new information such as webinars, resources, and other helpful information. We encourage you to stay connected with us on any of our social media sites to hear about the latest news on PD and to connect with others.

Mondays with MikeEvery Monday at 3:00 p.m. CDT, we welcome friends, members, and supporters of DAPS to join us virtually on Zoom. This has been a great opportunity

to connect with new and old friends, share funny stories, and learn more about how DAPS is keeping up with new and challenging demands during this pandemic. This informal gathering allows you to join or leave when it is convenient for you. If you haven’t joined us, we hope you’ll gather with us in July.

Moving Forward CommitteeLastly, DAPS’ Moving Forward Committee continues to meet regularly to address, determine, and discuss the safest measures for resuming in-person classes. There are many considerations to take into account, including the facilities’ decisions to re-open. Although dates have not been established as to when we will resume classes, the committee and the Medical Advisory Board have been hard at work to address the standards and procedures necessary to ensure a safe return to classes.

As the landscape of our daily living continues to evolve, we hope that some of these opportunities will help you stay connected.

PAGE 3 • DAPS • JULY 2020

CONNECTING continued from front page

Spotlight on DAPS Instructor...

Danielle Mitchell

Danielle Mitchell is a speech therapist and has been leading the Duncanville speech class since 2013. She graduated from TWU in 2002 with a Masters of Science in Speech & Language Pathology. Danielle came to DAPS when a client she was seeing at her former place of employment asked if she would be interested in teaching a speech class in Duncanville. In 2014 she became LSVT (Lee Silverman Voice Treatment) certified and she maintains her certification through online courses.

When she isn’t teaching classes, Danielle and husband Billy are hanging out with their 13-year-old daughter, 10-year-old son, two furry pups, and two fuzzy bunnies. Join Danielle on Mondays at 1:00 p.m. CDT via Zoom. See https://daps.us for details.

Adult Children of a Parent with Parkinson’s Disease

Adult children of people with Parkinson’s often struggle with unique issues and

circumstances as care partners. Whether it be switching to the role of caretaker from the traditional role of child, or dealing with a change in sibling dynamics, these issues

are common. If you’d like to meet with other adult children who are experiencing

similar situations, let us know so that we can connect you with others who are here

to support you.

State of Hawaii . . . $ 20,000 +Anonymous Donors

Maui . . . . . . . . . . . . . . $ 5,000 +Warren Smith

Ron Wall

Lana‘i . . . . . . . . . . . . . . $ 1,000 +Gene & Donna Burson

Allan & Kerry Gillan

Pam & Matt Michel

Marcie Salamone

Paul Salzberger

Gene & Koleda Swaithes

Paul & Beth Taylor

Moloka‘i . . . . . . . . . . . . $ 500 +Melissa Barrow

Mr. Richard A. Doelling

Dick Flunkerin honor of Barbara Flunker

Walter & Johnnie HackneyMike MilesJoy MooneyhamMaryann Walsh

O‘ahu . . . . . . . . . . . . . . . . $ 250 +Sarah B. Atwood

in honor of Dr. Malcolm Stewart and Dr. Dwight German

Morris BaggettLea & Mark Bond

in honor of Lea Rosenthal-BondScott BuzzellJared CaplanMitzi ClarkJill DominguezBentley FosterMr. Cecilio C. GarciaBarbara R. Glass

PAGE 4 • DAPS • JULY 2020

Donations to the Twelfth Annual Non-Event

Hawai‘i (The Big Island)

Maui

Kaho‘olawe Lana‘i

O‘ahu

Moloka‘iKaua‘i

Ni‘ihau

STATE OFHawaii

Aloha!

awaiiHWelcome to

Thank you does not begin to express our most sincere gratitude for your support during our annual Non-Event Fundraiser. During this extremely unusual and

uncertain time, your donations are even more important than ever.

PAGE 5 • DAPS • JULY 2020

Barry GouklerBob HurschMr. Richard LeBlancWayne RichGuy & Kay Senter

in honor of Sarah AtwoodDavid SomervilleNancy TofferBrenda TruittGeorge Wilburn

in honor of all the DAPS instructors—Thank you!

Kaua‘i . . . . . . . . .$ 100 +Mr. & Mrs. William BashamAl BemShelley BroylesWanda & John CallDA PS Duncanville Exercise

GroupChristine DobsonDowning & Rink, PLLCRoger & Leslie DurhamRosemary EdwardsDrew & Marcia FinnDr. Dwight C. GermanGary GriffithMary HempkinsMargery HunterAnne & Bill JordanJohn KarmannHarold KelloggArnold KuypersMarilyn & Ed LaneDottie Kilpatrick

in memory of George KilpatrickTom & Rosemary LootensWilliam McNeill

Janice & Charles MarrsPeggy MartinDonna Miles

in memory of Kevin MilesNeiman Marcus Group Matching Gift ProgramSandra NelsonKaren Palmer

in memory of Dr. James B. Palmer

Leisha PhippsMilton & Lonna PowellJerry & Sue RagsdaleJohn RapierAndy SchoenebergerBarbara SchraderRoy Carter & Janet ScottHolly ScottAbbass SekhavatCynthia ShinodaMitch & Barbara SingletonCharles StewartJoyce SusmanDr. Chad SwankJon ThornurgDennis & Gloria VerbeekBob & Dottie VlachMs. Lori L. Wick

in memory of Mary & Dave Wick

Greg Wood

Ni‘ihau . . . . $ up to $99Shelley AdayRoland AndersonLieselotte BeeneSharon BlendMartha Bonilla

Mike BraitschCarlie Dorshaw-MoeMartha FiddesCarla GaylorBarbara GeertsemaSuzanne Harned

in memory of Jim HarnedEdna & Paul HeadlandBeth JacobsJustGive-Great NonprofitsJo KleinMarsha Kreitman

in memory of my dear husbandMarilyn LevinVicky McNeillAnna Lee MannJay MilesPaul MilesRobert MitchellSteve MitchellHelene MorrisRod Myers & Micheline GaudinMy Trang NguyenWillard NopperRaymond NorrisKathy RamirezMarge RiccardiBonnie RobertsonShiela RobertsonRoy Carter & Janet ScottShelby SmithZane & Angie SmithJim StrubleRandy VisserDorothy Watts

in memory of R.N. WattsSusan WilderJanice Wilsey

PAGE 6 • DAPS • JULY 2020

Memorials • Honors • DonationsMay 2020

In memory of Brent DollFrom: Mary Hennington & TJ Shain Jerry & Linda Johnson Roger Koeppen Bill & Mary Pyke Ken & Marilyn Rogers Billie Seale Ray & Laura Snow Annette, Janita & Ernie Sparkman

In memory of Claudia HardenburgFrom: Sarah Atwood Cindy Weatherall

In memory of Gloria HarmonFrom: Kenneth & Judy Schoen

In memory of Bernard McDermottFrom: Stuart Anderson Holly Hodges Betsy & Gary Keep Keith & Kathryn Koshkin Barry & Dena Rowe Patty & Norman Ray

In memory of Carl N PeavyFrom: Durene I White

In memory of Ron RockFrom: Breezy Rock

In memory of Virginia SummersFrom: Lea & Mark Bond

In memory of Nolan WelbornFrom: Bobby Brown Jerald Brown

In honor of our siblings, our children & our grandchildren: Elbert & Eleanor Hartless, Patrick & Madeline Ryan, Rita Fries, Jeanne BentzFrom: Scott & Kathleen Hartless

Donation to DAPSFrom: Edna Buentipo Pat Goukler Robert Mitchell Wayne Rich Wanda Smith Mike Swanson Teri Yeargan Amazon Smile Foundation Facebook Fundraisers Fox, Byrd & Company, PC Neiman Marcus Group Matching Gift Program Pepsico Employee Giving Program United Way of Metropolitan Dallas Workplace Giving

Due to space limitations this month,

our list of GEMs is only available online.

Please go to http://bit.ly/dapsgems

to see the list of precious GEMs

who are Giving Every Month to DAPS.

DAPS is proud to be a recipient of the Parkinson’s Foundation

2020-2021 Community Grant Award.

Thanks to support from the foundation, we will be expanding our classes

to reach the underserved in Dallas.

Do you remember the fable The Tortoise and the Hare? The hare repeatedly raced ahead, got tired and stopped to rest, whereas the tortoise maintained a steady pace and won the race, eventually. In this fast-paced world, the thought of slowing down seems foreign, uncomfortable, and even lazy. Let’s explore another perspective.The human machine is remarkable in its potential and its shortcomings. I have taught and trained performance enhancement at a fast, hard pace and a slow, deliberate pace. Both have their value and each has their place in developing overall human potential.Consider that when we move fast like the hare, our muscles fire in a rapid succession to facilitate the action of running. This forces our vestibular network (responsible for balance, postural, and spatial awareness) to process stimuli at a very high rate of speed. While this fast pace can increase reaction times and reflexes, it also uses fewer muscles overall and invites the potential for neural “short circuits” causing trips and falls. Have you ever seen a young child run right past their feet, face first into the grass? I have, its hilarious. But more to the point, their brain outpaced their body and wham, gravity takes over. Just like any fine-tuned machine, this fast pace requires all balance and motor systems to be operating at near, or full, potential. So many factors can influence these motor systems from proper nutrition and hydration, to quality sleep, reduced stress and yes, less screen time.Parkinson’s disease (PD) offers the added challenge of disrupting the optimum flow of information through the balance and motor systems. As PD symptoms progress, motor functions are further impaired and coordination becomes more difficult. This makes moving at a faster pace harder and significantly more dangerous. Enter Tai Chi and Qigong training, or let’s call it “The Way of the Tortoise”.I won’t bore you with the history of these arts, just some contextual information. Qigong (Chee-Gong) typically involves slow, controlled movements with an emphasis on breath control and mental concentration. These movements can be very simple to complex in nature, performed seated or standing, and are done repeatedly to achieve a level of internal awareness and competency. Tai Chi

comes in 5 main styles, but at its core is a collection of choreographed movements, arranged in a specific sequence, designed to teach martial arts principles. Each has their training value and I often prescribe these practices for my therapeutic clients based on their specific needs.Well, you have waited long enough—here comes the Tortoise, moving slowly and deliberately. This lingering pace stimulates not only the large muscles used for running but also all the other supporting muscles. This leads to the development of deeper, overall muscle density and strength. Also, the neurotransmitters are active for much longer which has been shown to improve overall muscle control and function. In addition, slow, deep, relaxed breathing is introduced activating the “slow down” side of our autonomic nervous system. It is well known that dopamine production is impaired when we experience chronic stress, and in my experience stress also exacerbates physiological symptoms of PD. Bottom line, the more we learn to reduce our stress response, the more dopamine is available for motor function. Our mental acuity is then focused on encouraging the breath to lead the movements which can further strengthen neural pathways and synaptic connections while actively deescalating our nervous system. Think about it, the Tortoise is not stressed, not in a hurry, it is simply following its own pace and allowing that to be enough.

In summary, through my work with PD clients, I have found that a focused mind, slow, controlled movements, and integrated deep breathing techniques can bring remarkable improvements in motor control, balance, coordination, and mental acuity, with a caveat: The brain takes time to adapt and respond with meaningful neural adjustments, so long-lasting improvement requires training, consistency, persistence, and patience. Like the Tortoise, “The more you know, the slower you go.”

About the author:Sifu Chris Bouguyon, MMQ, holds a Master of Medical Qigong Certification through the International Medical Qigong College. In 2018 he and his wife Fayne opened the SimplyAware Wellness and Training Center in Richardson, Texas. With a focus on

combining the best of Eastern and Western training and therapeutic modalities, Sifu Chris uses his 4 decades of training to help people optimize their mental, emotional, physical, and spiritual well-being, one breath at a time.

PAGE 7 • DAPS • JULY 2020

The Way of the Tortoiseby Sifu Chris Bouguyon, MMQ

PAGE 8 • DAPS • JULY 2020

Virtual Classes & Webinars

Have you made room to Zoom? Research from the Parkinson’s Foundation Parkinson’s Outcomes

Project, the largest-ever clinical study of Parkinson’s, suggests that people with PD should do at least 2.5 hours of exercise a week for a better quality of life.

If boredom is getting the best of you, consider trying one of our Zoom classes that are offered 7 days a week. We understand that technology can be frustrating and intimidating, and we are here to help you stay active and connected. We can help you get set up and ready to Zoom!

Join us for recorded EXERCISE class any time at https://bit.ly/DAPSYouTubeChannel.

Below are the LIVE CLASSES DAPS is offering each week via Zoom.You can join our live exercise, speech, and support groups by contacting us at daps@daps.org for login details.

If you are interested in joining a DAPS class virtually for the first time, please be aware that response times to receive login information are generally during office hours: Monday – Thursday, 9:00 am–2:00 pm.

MONDAYS

9:45 am EXERCISE with Angie

10:45 am SUPPORT GROUP with Carol

1:00 pm SPEECH with Danielle

TUESDAYS

9:00 am SPEECH with Pat

10:00 am EXERCISE with Diana

11:30 am SPEECH with Lynn

2:00 pm DANCE with Misty (email mowensdance@gmail.com

for details)

WEDNESDAYS

9:45 am EXERCISE with Barb

11:00 am SPEECH with Lynn

12:30 pm EXERCISE with Tammy

THURSDAYS

10:00 am EXERCISE with Amanda

2:00 pm SPEECH with Pat

2:00 pm DANCE with Misty (email mowensdance@gmail.com

for details)

FRIDAYS

9:45 am EXERCISE with Barb

12:30 pm EXERCISE with Tammy

SATURDAYS

1:00 pm EXERCISE with Tammy

SUNDAYS

11:00 am EXERCISE with Diana

2:30 pm EXERCISE with Tammy

All times are Central Daylight Time

Upcoming Events

Rescheduled:Join us in September!

Friday, September 18, 2020

7:30am – 4:30pm

Lovers Lane United Methodist Church

9200 Inwood Rd, Dallas TX 75220

www.educaredallas.com/cfs

MARK YOUR CALENDARSaturday, September 26, 2020

9 a.m. to 3:30 p.m. Lover’s Lane United Methodist Church

9200 Inwood Rd., Dallas, TX 75220

Keep an eye here for more info:

bit.ly/2020KMS-info

PAGE 9 • DAPS • JULY 2020

Event DetailsLocation: Lone Star ParkAddress: 1000 Lone Star Pkwy

Grand Prairie, TX 75050Date: Saturday, October 17, 2020Registration Begins: 8:30 a.m.Walk Begins: 10:00 a.m.Contact: Debbie Nathan ph: 214-328-4769 dnathan@parkinson.org

people who moVe chAnge the world!Moving Day is an inspiring and empowering annual fundraising walk event that unites people around the country living with Parkinson’s disease (PD), their care partners, and loved ones to help beat PD. Moving Day is more than just a walk; it’s a celebration of the benefits of movement—proven to help manage the symptoms of Parkinson’s disease.Leading up to the event, participants and teams fundraise to help the Parkinson’s Foundation provide everything people with Parkinson’s need to live better—from lifesaving resources to delivering quality care to more than 193,500 people living with Parkinson’s to improving Parkinson’s treatments through research.

register your teAm todAyhttps://movingdaywalk.org/event/moving-day-dfw/

PAGE 10 • DAPS • JULY 2020

ALL PROGRAMS ARE CURRENTLY ONLINE ONLY

Please check the DAPS website at https://daps.us for schedule changes.

For assistance, contact the DAPS office Monday–Thursday, 9am–2pm at 972-620-7600 or daps@daps.org

UPCOMINGMEETINGS

VIRTUAL JULY JUBILEEMonday, July 13, 2020, 1:00 p.M.

Join us for a virtual celebration!At this webinar, we will celebrate the birthday of DAPS founder Clarice Dougherty and recognize this year’s DAPS Outstanding Volunteers.

Please visit bit.ly/Jubilee-072020-info for information on joining the webinar.

Disclaimer: The contents or opinions expressed in this newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff.

Please consult your personal physician regarding your individual medical problems.

Connect with DAPS!

facebook.com/daps.us instagram.com/daps.us

@dapsinfodaps.us

we’VemoVed!

DAPS has downsized our office space in order to ensure funding is directed towards services like exercise and speech classes,

care partner support groups, and more. We are in the same office complex, but in a

different building. Our new address is 6310 LBJ Fwy Ste 213, Dallas, TX 75240.

As many of you know, Carrie Marquis, our Administrative Assistant, left DAPS for a very promising opportunity at SMU. Becca will be joining our team on July 20 as our new Office Manager. Please give her a warm welcome when you have occasion to call the office.

Click here to register for DAPS monthly e-news.

Monday, august 10, 2020, 1:00 p.M.A link to join this online, live presentation will be posted

closer to the date of the event.

Speaker: Nirav Pavasia, MD

Topic: Spotlight on Addressing the Non-Motor Symptoms—The Changing Landscape

Meeting sponsored by

AUGUST VIRTUAL EDUCATIONAL SERIES