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July 1995 Issue

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Page 1: July 1995

Judge our society by how we care for our children and the disadvantaged.

Q E L3LVEDm n Walsh Of MClL ~ i i i ~ & The

-

V V

uncil Some Su~aestions

6th . - . pyMlc -a - hearing to use the regular route. to work in designing a cam

ika vdid concern, options What krrs the council done tc %hareau&5i% - fnPorm potential riders that

tive ~irector ofthe Metronnl- of service have never been in new accessibleliiwm'add-

C cans with Disabilities Act News is not enough to entice .I you fwwe qpamni - were not in place the fares people to try the new routes. ':

P to share our views on the would increase higher; the Maps and route schedules I:-

I: .. I proposed changes to Metro service area would be shrink- should be distributed at these

I maw& of b u s i n ~ ~ e o o i n m m t ~ n r n t i n n ~ bbiw ' -. - ing even more; rides to work, m d g s . ~ - 2 - b school, or medical amin t -

r - v y ... rr...r.rr " l a u. ahgt thm? -

DRAGnet or amnge fm a CounciI neecis ta concentrate b mfel ADA is I >

pick-up appointment as well. on designing a transit system tying &e.hands olthe hir&o- Admittedly, there have been ' a ,:A, G,.- -,.+~,4:,1+,- L, w h i c h r e s ~ d s inan admuate politan Council. o ~ d i s ~ o n s with which

rt the idea of o - b m

. . .. . - . . - . . -

DRAGNET Expands

:tg people with disabilities employing people with disa- the work site by appointment. mss North Ammica, an- bilities directly." Within the Individual donors can either MpPptpse. b fall. How will thezidemhaw

n o w e d recently that it is ex- firstq~@erofthisyearal~ne, maehinne nff nt

anding i ~ o new facilities in DRAGnet received over

-r - -- -- -- --- x---- -

project's success and rapid e x p s i o n requires additional telnational, h e S C O ~ S ~ ~ U C - V e . The new is: tion, St. Paul Allergy Clinic, 3 14- Washington Avenue Executran, Corporate Finan- North, Minneapolis, MN cial Services, Graduate Stu- crorrl ~~ulrmllrwrry ulsr

I . . . . . . . - - - , - - - - - ---a .- - -

55401. The telephone num- dents Association at the advantaged children and fidershi~ ten percent and expect a commitment from bas m e i n fie same forvoice University of Minnesota, adults throughout Minnedota by using a lnore efficient the Menopolim to . . (612)338-2535, and Carlson School of Manage- n n A nrrrfica XI-.+^ A---- m- change the fleetto sedansand a ~ e

~smissjm. TheDRAGn& Coml , , - - -- .. - ernational Disability Net- Over 250 COmpUterS have

work (DIDnet), a computer been donated by individuals on-line disability information so far in 1995. IIIE;IILUPI]UILUILILI~S ~urpeuple -- - -.----- - - - - v m - - +

I , I"......." " <

resource continues operations with disabilities when the do- Reduction. What that really when You tinnounce the plan Setagoal to reduce the Metro

h m Andover, Minnesotai M~~ peopledon~trealizethat , , ~+~r l o,,,.,,,, ,, ,n., means is that neo~le cannot forre~lacingthecurrentvehi- Mobiliw ridership by twenty

disposal of obsolete comput- "The new facility isover three er technology falls under fed- times larger,"saidBill McCar- eral hazardous waste guide- thy, RE-PC Director. "We'll lines. DRAGnet RE-PC is the establish a space for assisting only Minnesota, n ~ n - ~ r o f i t people with disabilities and organization fully licensed at rehabilitation agencies with both the state and federal lev- finding appropriate comput- el for handling computer haz- L, ,,,,,,,,,,, ., ,,,. ,,,I , J - , ~ - . r-+pJ+& ers and software; processing ardous waste. Corporate and DRAGnet- cont. on p. 5 3 ' -- . Me

&

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important, they also help to sands of people. You have $12.00 in subsidy. So how bility system and the regular

provide low-cost access asked staff to find $2.2 mil- can we reduce costs? Over routeunderthesamemanage-

computer technology for so- lion in savings. This goal can sixty peteent &the riders do ment. The systems are still ,,a ,,,,,:,,I,.. A:, be reached bv reducing the not need @use a lift. We viewedas Separate. Where is

-I" '."."ill3 I.UlU1 Nl&ll,d,. mo&smaller, more efficient riders oil the regular route

aanv. to name a few. The RE-PC project generates The su-ary prepared by vans. We understandthe lease system. Council policy is to

high technology skills train- staff states that the fare in- problem. But you also have a decrease riders on Metro

ing and transitional employ- creasewill save $760,000 due public restrooms problem, Mobility. - ,.-, ----,.-..,I-- r-..- _ _ -, _ tn s M~trn Mnhilitv nemand which will im~rove ereatlv

- i rarvu rurrlyurblJ arc rsrur- r r

bished and placed with those afford the increase for 60,000 cles. percent; This will save $2.4

who could not otherwise af- rides- million. Do not do it by ford similar equipment. Us- Any decrease in hours or area eliminating services to six cit-

able parts who,ly reused; The Service Area and Hours must be accompanied by a h a n d cutting services hours

unusable parts are recycled, Reductions will save $1.066 concerted effort to increase to forty-five cities. Reduce

and the cash produced from million. That means that the use of the main line sys- the number of rides by offer-

scrap offsets some of the 88,800 fewer rides will be tern. TO do otherwise is to ingreliablealtemativemodes

I n . , o ~rovided. discount the ridership. The of transit. Then tell people ;tro Council and the MCTO - cant. on o. ,

Page 2: July 1995

2 July 10,1995 Access Press

H ;ts Errors I ~ i n n e s o t a Again Gives

I / h i e Year 4~ y Leader Dole

I ---- mated As Calling For

Disability Rights Short Shrift I by State Senator John Marty

programs over the next two years, the State will actually end up spend- ing more tax dollars on insti- tutionalization and Welfare in the future.

To make short- ihm-

term savings of $10 million, the Legislature

step backwards. If only 5% of the children now served by the TEFRA program were institu- tionalized, all of the anticipat- ed savings fromthe cuts would be wiped out.

In addition to being fiscally irresponsible, these cuts are one more instance where the State denies people with dis- abilities the opportunity to qheiR and contribute to soci- ety.

Cuts in TEFRA and P.C f f I the owha visible examp - LF

.&rtskhted choices bcing - - - I ties. The same Arne Carlson cuts in the PCA program, but made at the Ca~itol. Minneso-

SUNDAY BOSTON GmBE: persons in the nation. He has ~ont~ngt~emisinfomation he who wanted to eliminate the delayed some of the changes ta has done a poorjob of mak-

"Dole, the Senate Majority been our ally and friendduring has received, presenting our TEFRA program, a move that until July of 1996, to allow for ing sure that we have an ade-

t**lold&u.PP,weTf Of his 26-year Senate ca- to cooperae. would likely thmw many chil- a study of the issues involved. quate amount of accessible

ence of Mayors (Miami, june IWr. He is one of Us. Yet we dren with disabilities out of Unlessalternativecostsavings housing. Creative ideas, such

.,) that he to review a let him bow that he is T A L ~ G POMTS: S ~ A - their homes-that same Gov- are found, the recommends- as requiring a certain percent-

viaietyoffederslmandates that ~ i v ~ g m i s i n ~ m a t i o n ~ m TOR DOLE, people with dis- emor enthusiastically support- tions of the Governor will be age of new construction to be take up as much as a third of lobbyists who are advocating abilities are p r o ~ o u n ~ ~ y con- ed dumping $15 million into implemented in 1996. Hisrec- built accessibly and avoid the

a retreat to segregation. we cerned. you are one ofus. For the Winnipeg Jets hockey team ommendations include cuts in need for much more costly many city budgets. Among

must counsel with him to re- 26 years you have been our buyout. Carlson attempted to PCAhours,especiallyforthose modification, don't even get those he mentioned were the Clean Water ~ ~ t , The Safe store thegreat productive part- champion, our hero in the Sen- this deal by saying it with the highest nee4 and the considered.

Drinking Water A C ~ and the nership of the last two and a ate. YOU have participated in was an "invesment", even Of services

Americans with Disabilities half dc~ades. the creation of every law and though it would mainly bene- for people who cannot direct Progress on health care relunrl

program that is positive for fit only a couple of wealthy theirown care. These individ- has shifted into reverse, with Act. Dole, a supporter of the disabilities law, said 'maybe THIS 1s NOT A CALL TO people with disabilities. We businessmen. uals will have to apply for a Minnesota backing offitsgoal

we've gone too far in some "BASH BACK." This is not a owe YOU a &bt of gratitude waiver slot, which may not be of universal coverage. Heavy

-, in implementing i t He call to f l d senator ~ ~ l ~ , ~ that we can never rwy. B~~ It'sunfortunatethattheLegis- available. Even if a waiver is lobbyinghompharmaceutical said he'd like to retool it, 'not 0 f i ~ e with thousands of C ~ I S now, just as We have gotten lature joined the Governor in granted, the cost of care is corporations defeated a bill I

to devastate the program, but and cards, with mess%- our foot in the door of the making deep cuts in TEFRA actuallyhigherunderthewaiv- authored this year that would

to make it work better."' es and demonstrations. ~~~~i~~ dream, at a time and PCA, programs which re- erprogramthanunderthePCA have made prescription drugs when bur hard-won new citi- ally are sm% humane invest- Program. more affordable by allowing

THIS PRESENTS A SERI- IT IS IMPERATIVE THAT zenship isunderassault by oth- 'Ihis yea& $I5 consumers to benefit fiom big OUS POTENTIAL PROB- ORGANIZATIONS AND e r s w h o w o u ~ d a m e n d ~ e ~ ~ ~ million (the same amount that Another $4.5 million was savings negotiated by an ex-

LEM FOR OUR COMMU- INDIVIDUALS WMTEcare- to restore traditional wgrega- CiV1son was to spend squeezed from the TEFRA is@ statemmanaged drug~ur-

NITY. Senator Dole is one of fully considered letters to tion, our most powerful s u p On the Jets) was cut from pro- p r o w by increasingfeesand chasing pool. the two or three most powerful Majority Leader Dole, con- Dole - cont. on p. 9 grams that allow people with changing the criteria for par-

disabilities and the parents of ticipation so that nearly 40% More short-sightedness was

ACCESS PRESS children with disabilities to be ofthe 3900 children skrved by evident in inadequate transit

Publisher Wm. A. Smith, Jr. productive, taxpaying mem- TEFRA will no longer be eli- funding during the 1995 Ses- ............................................................................................................. Editor ........................... Charles F.Smith bers of the workforce. By gible. Thiswasbetterthanthe sion. This underfunding is ....................................................................................... Cartoonist ................................................................................................................ Scott Adams choosing to cut $15 million Governor's proposal to elimi- already resulting in reductions Production ....................................................................... Presentation Images, Ellen Oestreicher from the PCA and TEFRA nate TEFRA, but it is still a big M w . cant. on p. 4 Staff Writer & Editorial Assistant .......................................................................... Jeff Nygaard - ACCESSPRESS isamonthly tabloidnewspaper ublished for persons withdisabilitiesby Polychrome, Ltd., W.A. Smith, Jr., President. Circulation is 1~000, distributed the 10. of each month through more than 120 locations statewide. ~p roximately 650 copies are mailed directly to political, business, SPECIALIZED TRANSPORTATION institutional and civic leaders. ~ugscri~tions are available for $IUyr.

Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. 529-501 Q 483-91 43 Paid advertising is available at rates ranging from $1 1 to SlS/column inch, depending on size and frequency. Classified ads are $7.00, plus 20 centslword over 20 words. C A ~ ~ MEDICAL ASSISTANCE PROVIDER Advertising and editorial deadlines are the 30th of the month preceding publication; special scheduling available for camera-ready art.

Inquiries should be directed to: ACCESS PRESS 3349 University Ave. S.E. Minneapolis, Minnesota 55414 (612) 379-0989 Fax (612) 379-2730

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Page 3: July 1995

Access Let's Understand Medicaid Before We Make Changes by U.S. Senater Paul Wellstone

IEF . . . . I ' Y"

AMERICANS VIDEO LOAN I n an effort to provide the re- organizations throughout MN. in restaurant settings; ar;d "Im- sources for businesses and the proving Y our Rural Business:

to implement the Examples of videos: "Open the ADA" offers suggestions

seniors, peo- - - A * -

cry year to faster than ADA" gives good examples of universal, flexible and

topics and how to brarv. contact:

use the li- Carolvn - . - - - - --- -- -

0 ., , . - - - - - - ple with dn- general inflation, and increas- eos. adaptable environments; "A Emerson, MCIL, ADA CO&' 1 . ,h abilities.and ing numbers of poor elderly Warm Welcome", produced dinator,(6 12) 646-8342 Voice, - 1

' c h i l d r e n - who require Medicaid cover- n e s e films are available fora by the National Restaurant (612) 603-2001 'MY, (6 12) ' . :.-* Minnesota age to fill in the gaps oftheir donation of $10.00 (to cover Association, provides infor- 603-2006 FAX - would lose Medicare coverage postage and handling) fortwo mation about physical access, under this weeks to businesses and hospitality and staff*ing -, . proposal be- Medicaid might save itself cause we some money by eliminating,

I have - - - a high savices - bGt at a significant I U - -, ._- ,

I -

standard of cost to everyone else. Anyone I ACCESSIBILITY FLYERS services and familiar with health care fi- +.Val- A

--

a growing nancing knows that we cannot

II'-

groups, social, recreational, cessfilly in the community.

gerbe adjusted for b& numbers ofMinnesota res-

idents who are projected to become eligible far Medicaid in he future, me federal gov-

of the savings while the fates would have to take on a11 ie risks.

b one is arguing that the cy in St Louis Park, of fa h e groups.

&aid is perfeet - Minnesota Under a flat short-term counseling on an

~ ~ ~ m ~ i v e ~ t h are ref= bill repolred eut of f ie Labor Committee lmt

and my single payer pro- t their i n s m c e pow1 would have merged m d h a i d ~ m w d

Medimid witk dy rest of the b a - d t o ~ a l m * E@&ae s m . And it's hdf (&bout 4%). N& rid that no Eneremental chang- a&ould kmade to the exjst- ifgj Medicaid program - the

process, for example, cumbem be me and time qmsuming for the Governor andhisstaff. But a block gmnt wsit.b no strings attached is just - poor disguise for limiting

iibility, reducing benefts,. Specializing ia&e care ofchildren aAdubmElderly . l Walkemlcanes, crutch&

adlor cuttingpaymentstopm- l Bathroom safety aids a m d l b t i n g w a s . ~b We provide Personal Care Assistants Home Health

Aids Hqmm&m Live-in Caregivers 0 Nursing IncontimnYUmlogical supplies

,poposed reduction in federal fanding is so substantial that 4hg Rehabilitative S&t& &dude: Physical/ regardless d p any flexibility OecupationaYSpeech/Respiratory Therapies states w i v e , they would not PCB Provider Organization customers. Free UPS and CtMvbries to Mpls., St Pad % Suburbs.

~ a i v ~ e d i ~ Certified

8421 Way- Boulevard, Gold& Valley, MN 55426

Page 4: July 1995

4 July 10,1995 Access Press Religion & Disability

SUMMER Musings by Sister Mary Kraemer

fear surrounding dis- tant that you address your children's fears or negativi- ty in an open, respectful

express just wouldn9t come to use a wheelchair. I felt self indwelling power th disabilities that they may is pret- manner. If you scold them

out? ?hat3 how I am as I write conscious and deeply afraid of picking up m school, with

say just doesn't want to come off my pen. myth to the practical realities

Many years ago, the story goes, and challenges oftoday. Sum- Perhaps it is because, = I pan- a child was born. His parents mer's heat always raises the y and pos- nothing wrang in having fear,

demd and prayed oGrthe sub- knew that their Son Was ex- fatigue level in me. Coupled

makes them feel bad, when disabilityorganizationssuch they'see a person with a dis- as the Muscular Dystrophy ability they conclude people Association, United Cere- with disabilities must be bad bral Palsy, Multiple Sclero- --thisishaw reaiity is lost and sis Society, a hospital reha-

bilitation center or even a

I'd like to close this "smorgas-

on selves that a person I think a lot of the reason negative ideas about disabil- ities persists is because in

eliefs the truth of life with a dis-

well as to see God reflected more in all with whom I am grace of living fully each mo- prid~~d t~ travel this life. This ancient sfory became the ment of your life.

core of my spiritual convic- Many years ago, 1 anended a ti0IIs. That power within can- Sister M i Kraemer &mau- workshop where a women not be weakened by outward thor, spiritual director and shared a myth firom India ~t physical limitations. But, oh, sp&. She can be reached the time, I was feeling very OW I need to continue to hear at 731-9528. 1 inland Hosts Third Annual MARTY - cont from p. 2 I "Break Your Own Barriers" in both Metro Mobility ser- vice and regular route transit. Several years ago, I authored a bill to respond to ATE'S mis- management of Metro Mobil- ity by putting it under the con- trol of Metro Mobility riders. fiis would have ended the lnsensitivitv shown bv thetran-

sit bureaucracy. While ATE is gone, the system still needs improvement The most re- cent cuts in service will only make it more difficult for peo- ple with disabilities to get to work, attendschool or visit the doctor.

To be sure, there were some modest victories this Session. We strengthened protections for vulnerable adults and fought off an attempt to take control of the telephone mes- sage relay sekice away from the consumer group that man- ages it now. But there is still clearly much to be done at the Capitol.

This is not a time to give up or back off. We can't stand by and allow the State to put mil- lions of tax dollars into the ~~:ketsofthemillionaires who

Having fiur while experienc- ing challenges faced by those with disabilities is the goal of the third annual "Break Your Own Barriers" event at Lake Nokomis Saturday, August 14 from 12 noon to 4 p.m. The event is organized by Vinland, a not-for-profit social service agency which specializes in serving people with multiple, complex problems associated with disabilities, and co-spon- sored by the Minneapolis Park and Recreation Board and

American Express Financial equipment, and Wilderness Advisors, Inc. Inquiry canoe and camping

demonstrations, as well as var- Break Your Own Barriers is ious activities which foster designed as an inclusive event education and awareness re- for families and community garding living with disabili- members to show able-bodied ties. people what day-to-day living is like forthose with disabili- All events take place near the ties while demonstrating mainswimmingbeachatLake their many capabilities. Nokamis, just east of Cedar

Avenue on Lake Nokomis "It's diversity training of the Parkway. The first 100 in at- most fun kind, meant to be tendance receive a T-shirt enjoyed on a summer Satur- commemorating the day.

- MEDICA~D buy and sell hockey teams. I E We have to fight the cuts that

will kick kids with disabilities OSTOMY - URINARY MANAGEMENT NURSING SUPPLY SPECIALISTS

. . . out of their homes. commitment to offering all

Our investment in disability programs and services is sim- ply a matter of justice. It is also an acknowledgment of what we stand to lose if we miss out on any person's con- tributions to our families, neighborhoods and business- es. We need to renew our

people the support they need ,to participate fully in our com- munity.

John Marry is a State Senator from Roseville and the 1994 DFL candidate for Governor. He has been a strong advo- cate* disability rights in the Legislature.

day afternoon," said event co- ordinator Courtney Cushing, Founded in 1976, Vinland who promises Break Your S1.4miIlion-a-yearnon-profit Own Barriers will take place organizationdedicatedtoserv- rain or shine. ing people with a variety of

, disabilities, chemical health Event highlights include bicy- challenges, and employment cle rides around Lake obstacles, including targeted Nokomis, a wheelchair obsta- programs for high-riskNative cle course, demonstration by Americans and veterans. Canine Companions for lnde- Vinland is also active in edu- pendence, 'adaptive sports cating the community at large demonstrations such as hand- about preventing disabilities operated bicycling, specially and heightening awareness designed fishing a archery about {ith disabilities.

Page 5: July 1995

1

Access Press ' July 10,1995 5

1 On Mental lllrkss . . , i-- 1 Life Goes On THE CHALLENGE OF . . c L

SCHIZOPHRENIA Alternative Exercise i::: by Leanne Dahl - - -

.I$ r . . * - by Sandy Gardener In 1992, psychologist Dr. Fred

- Frese gave a speech to mem- bers of the Alliance for the Mentally Ill of Minnesota. I saw a tape of it recently and was so moved, that I want to share some of the introduc- tion with you. The speech is entitled "The Challenge Of Schizophrenia"; the story he tells spea-h for itself:

"I'd like to begin my talk to- day by tellingyou a little some-

+ Sing about a young man. The man is in his twenties and he's walking down the street in a large Midwestern city. The

; man is stopping for red traffic lights whenever they turn red, but d i k e the other people .... he doesn't wait to get to the comer to stop.

He's proceeding to church .... It's Sunday morning. And when he arrives there ,. he feels that he must go up and help the priest celebrate the high mass. This is not custom-

! ary in Catholic churches for people to do that, by the way (audience laughter). After par-

position for a day ortwo. After being let out of the seclusion room, the young man wanders about trying to interact with several dozen other seriously mentally ill persons. He's be- having in a very strange man- ner. .. Sometimes he starts lick- ing the dirt off of the floor in the day room. Sometimes his body starts moving around the room as though he has no con- trol ...

After a few weeks, the young man will be asked ifhe is ready to leave. Although he is still quite delusional and he knows he is quite delusional, he is going to respond "yes" and he will be released into somecold streets ... Still confused and delusional and saying and do- ing very unusual things, he will make his way across sev- eral states until relatives come after him and place him in another mental hospital.

In the next few years, the man will be released andrehospital- ized again and again. Eventu- ally he will be determined to

very bleak, but 1 have for the most part recovered. After a total of some 10 hospitaliza- tions in 6 different states, I have not been rehospitalized since 1974. I still have symp- toms fiom time to time, but I have learned to live with them, only infrequently having to take off for a few days or a few weeks from work.

In the past 25 years I've man- aged to earn 3 degrees fiom graduate school, including one in management and a doctoral degree in psychology, and I was also a special pbstdoc- toral student in the University of Akron Law School for 3 semesters. For the past 15 years, I have functioned as a licensed psychologist and administrator ... in Ohio's k g - est state-operated hospital for seriously mestally i ~ ~ . In that cotpacify, I work every day ... interacting with and car- ing for individuals with the same disorder ... that I have but, obviously, for the most part they are more seriously dis- abled than I am. For most pur-

/ ticiwting in the c ider lmyseK re-

a snake. He"$ loaded into an ambulance and taken to a pub- lic psychiatric facility. When he wakes up, the man does not know where h~ is or how he got there. At first he thinks he may be dead and in a storage area waiting for some k i d of judgment. Later, he realizes that he's alive and that he's very, very thirsty.

He is screaming for someone to give him water and waits a long time ... He is strapped down with his arms and legs to a table and remains in that

nia, and that hfs conditioi will probably only become worse as he becomes older. He has had no paying job for some time ... he's never been.-*- ried. Those who know him have little hope that he'll ever live a dignified and meaning- ful life ....

The man I have be& speaking about is in E M rtrsrl, and '& many of you probably know, the man I have been speaking about is myself.

20years ago, my future seemed

no extremely obvious symp- toms.

..a abdt;4yeazs+*& "Tided that the topic? should

not be as t a b as it is. I have come to believe that persons with the disorder should be more open about ... what it is like to live with a brain that f i r o m ~ q ~ ~ w ~ l ~ tio m I * - ~ m ~ o ~ . ' *

Videotapes of the complete speech are available through the Alliance for the Mentally Ill of Minnesota.

isabled & Proud, 's Not An Oxymoron

+;. . July 11 Eric Peterson, Elin Ohlsson, Jan Doud: ADA Celebration

July 18 Darcy Pohland: Life as a newsreporter with a disability

July 25 Arlene Innman: Visual and written arts -. C . -Q.qpagram for parents with disabilities by the Courage Center 1 .

I L 8 a,<- k v * I-- I. ,.I Angust 8 Advocating Change Together

~ e m e m b e r h ~ with ~ i g n i t ~ Project: preserve and tell the history of people who have lived in institutions through oral history and the restoration of the institution's

Minneapolis

-- - . , With so much emphasis interested. 1 met with Sue also allows me the opportuni- ;'i placed on aging and keeping Lemon,theownerandmanag- ty to meet with other women c; in good condition, I thought it er ofthe program. The minute andgives me both the physical iz'. might be fun to explore what I met her I liked Sue and was and mental conditioning that .h . . .- this really means for the dis- impressed by her explanation any body requires. It even , - abled population. Two years ofthis unique exercising tech- provides me with better blad- :;; ago when this column was nique. der control." \e ;- -73 - launched under "Aging - It's , L~ - -. Not Just "Staying Alive", TODAY'S CONCEPT has Althougn tnls wrlrer nas only Eunice McClurg and I had been in existence since Octo- gone for a short time, it's giv- certain preconceived ideas on her, 1987. According to Ms en me anew surge ofenergy as e: how we wanted to approach hmon, "There are seven dif- well as a better sense of bal- this whole subject. While I ferent machines that combine ance and mobility. While I can't speak for Eunice, I feel bdth physical therapy and iso- know that exercise programs that my idms have shifted metric exercise along with the may not be for everyone, I can somewhat. You seG I looked traditional extras like bikes, attest tothe factthat this o m is a at the area of aging as pretty treadmills, rolling machines, pmvingto beeffective forme. --- ;.:, w.

SCW. NOW, I'm beginning to stair-steppers and step boxes in my opinion, I feel that this '

relax more and I view aging to get your cardiovascular alternative exercise is worth I and disability as something that workout." looking into for people with no one can escape. If you disabilities. However, you don't have adisability to begin Unlike the average fitness fa- need to go at your own speed with, you will acquire one cilit',thisfitness alternative is and in your ww$ tim? m e . somewhere along the way. Sbffed by older, QMMX &% %% -:- ~R'nh'ometer. And if y ~ u already have a db- : > ;. =Q

Ifyou think you night be inter- , . ' ability, you em l e m Plb tkd - w * @ m l a f & & g - b , t ested in this type of exercise, determining how best to take who have disabilities. The give Sue a call at 483-27 19. care of yourself. exercises for the person with a TODAY'S CONCEPT is k

disability are pretty similar to cated at 1075 County Road E F O ~ quite some time now I've other participants "except for at Lexington in Shoreview been looking for a well bal- str'aps that can be used to keep The building is accessible an anced exercise program, be- limbs in place and p i l l~w rolls withhthelbletroM&m cawe I'm well -6 of the usedtoprotectthelowerback. Fees are demm&& by fie

. . ;,, .: -- d machines since '85. Now ing the message in my fortune

I'm very happy that J found cookie the other night, it said: what Irefer toasUSue'sPlace". "You are going to have a very

DRAG N ET n e s e machines allow me to comfortable old age." I cer- . ' use and exercise my muscles tainly will look forward to that without tiringouvttoomuch. It as LIFE JUST GOES ON. -

'a .mt fmm p I I

- L , I THE CHOICE IS YOURS ( d m & e t ~ e Z m e i . . '

ther disabled or directly sup. porting someone who is.

The two other primary servic- es of DRAGnet will continue

I cument operations: Computer Precision provides system de- sign, management, training, and consulting to assist tap- ping into the ''Information superhighwayw. DIDnet is an online information service car- I -

I

Who knows better than you the PCA services you need'?

At Allied Health Alternatives, we work with you to create a health services partnership.

We'll provide competent nursing supervision that supports your goals and

objectives, plus knowledgeable assistance and coordination when you need it.

Call 544-1 655 I 1 r ~ i n g a comprehensive array I for our FREE brochure titled . - - - . . - -

of disability information including Americans with Dis- I"choosing a Personal Care Assistant." I abilities~ct and other dimbil- ity-rel*dlegalissues;~=lth Allied Health Atternatives, Inc. and Disability Policy; Job Opportunity and Employment

Nursing Support Services Nursing Enterprises . 5401 Gamble Drive; Suite 235 referrals; Visual, Hearing, and

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Page 6: July 1995

3! .. With A Love Story OPEN DOOR THEATRE people who find redemption to emerge. A probing explora- apolis Theatre Garage 7 1 1 W. will present DANNY AND through the power oflove. The tion of exorcism and forgive- Franklin Ave. Thursday - Sat- THE DEEP BLUE SEA, an production is d a t e d by Kim ness that questions how we urday performances at 8 P.M. explosive, deeply affecting McCallum and features Twin disable ourselves. Sunday at 7 P.M. Ticket prices study of alienation and the Cities actors Shelli M m l i n i are S 10.00 with discounts for

OPEN DOORTHEATRE was students, seniors and low in-

, day from June 22 - July 16. Roberta, meet in a Bronx bar. to provide artistic opportuni- please call 924-0508. Adult He is a self-loathing man, in- ties to artists with disabilities. themes, language,violenceand

'DANNY AND THE DEEP capable of tender emotion. OPEN DOOR THEATRE is brief nudity. BLUE SEA is the equivalent He resorts to violence rather devoted to celebrating LIFE! of sitting ringside for a fight. than reason. She is adivorced, through the Theatre. We feel OPEN DOORTHEATRE will A wrenching love story. A guilt-ridden young woman the Arts must be open to all hold auditions in July forJIM- h y , frightening, hypnotical- haunted by the memory of an people as celebrants, critics, MY'S TAIL and in August for ly fascinating evening of the- incident for which she does andcreators. TheJuly l6show TALK LOUDER, SHE'S a*. The play, by the Acade- not forgive herself. Both are will be ASL interpreted and BLIND. my Award-winning MOON- paralyzed by fear and guilt. audio described. STRUCK screenwriter John And yet, the possibility of a Patrick Shanley, is about two meaningful relationship begins The play will run at the Minne-

Bell To Host Butterfly And Moth Exhibition

Beauty and Biology: Butter- artists have created a wide ar- The James Ford Bell Museum For additional information on

Keren Or. August20 at2:OOpm

Day. Stick your kids into

Renaissance Festlwal. countless artistic metaphors

ment, medieval games and artistic perspectivex.

. .Labor Day, 9 am to 7 pm in a1 entertainment at the. Shakopee, 945-7361. stand, plus the Fair has

-7

tim thnmgh. a live butterfly new m c t i m s , mcludi garden. Inside the exhibition,

photopphs; specimens, and nual Twin CiMs Latin .km Royal Lipizzaner interactive displays of butter-

, loured by a performcnce with ' grounds in St Paul. C h I k n ' ' L d h jazz harpist R&rto Ray, Senior's Day, and Elvi 'Perera (venue TBA) on Satur- Day! 642-2200 *dsly, Latin jazz flutist Nestor

Cafe, Minneapol~s.

Dances of the Middle East. I* Sucms.Awards kdcoTlaborative ~ancert of Arabic and Israeli folk dances

Entertainment communities. Nothing less

withthe Jawaahiu Dance Com- pany; and two ls&lj dance standard of fairness. troupes, Keren Or and Gva- n h : 'Ihe concert cullninates .in anew d m c e k ~ ~ m e m - -

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Page 7: July 1995

Access Press The Power Of To

by Gordon Gillesby

interesting results so long as the little budgets. I'm not qualified to manage any- with disabilities is what I find most practical). gray cells prefer something to do one's money other than my own. I interesting. It is a long-term action other than the Days of Our Eternal Rather than explain this idiocy, per- dosupport the principles expounded that frees us from what one of my So why haven't I done all this? I Hospital Worldly Turnings. Particu- haps it's time we learned to take care tythe~ationd Association oflnves- friends calls"economic subjugation" haven'tthe timeto run DRAGnetand larly if you happen to be pathologi- of ourselves better. I know, it's eas- tor Corporation (NAIC) based in (a.k.a. government control). It also give starting this kind of project the

ere's ier said than done. I'm not suggest- Royal Oak, Michigan. They are a is a very visible way to demonstrate attention it deserves. Somebody else ing that this is the answer for every- non-profit organization focused on we are capable people with the same is going to have to step up tothe plate one. It's just that almost anyone has teaching people sound fiancial anal- abilities as everyone else. Besides, and take a swing at this one. I'm sure

absence of my usual morning caf- ity or retirement. eventhoughtheorganizationdoesn't a club is the problem of mobility. 583-4880 (b imi le ) feine, I began to wonder if this endorse commercial services. Getting people together for a month- assumption was correct. Now, this may come as a shock to ly meeting would be nice bat diffi- - - - - -

you: I'm an investor. Try not to boo I learned most of what I know about cult. It'sthe principle reason 1 didn't Granted, not everyone has the ability and hiss too loudly. You see, I'm investing fiom NAIC and other eas- join one of the Twin Cities chapters GordonGillesby is theChair/CEOa& to save money. People with disabil- largely self-taught and have been ily accessible financial information ofNAIC . !t's also one ofthe reasons DRAGnet-the D i s a b i l i f y l a ~ ities are facing the same economic activelyinvestingsince 1986. Idon't resources. Back then, they weren't I founded DRAGnet - so people es, Affiliates and Groups W o r k and political realities as everydne put away a lot, but I do invest sme- onlinebutnow many,manyfinancial wouldn't necessarily have to leave (612.338.2535/voice). The Power else-except lately its been more of thing each and every month. I be- resources are available through a their homes to do something worth- ofTo: isabout computen,cybempace. a nightmare. We've all read about lieve in being self-taught, even if computerandmodem. Thatmakes it while. Why wouldn't we be able and communication for all people. how tight the federal budget is and you're going to use professional help even easier. Many sources such as to have quarterly meetings in person Please shareyourthmgk, comments we've heard Uncle Arnie whine in managing yo* money. Other- NAIC have a lot of free information (at a nice restaurant, of come) and and ideas about this column with about how bad it's g o i ~ g to be for wise, you have no idea when some- available directly. Many financial otherwise meet on-line through Access hess or log on to DRAGnet the state. Every one - es- one is sugge!sthg something terribly magazines now publish online edi- DRAGne? For that matter, it's Information Service with your com- peciallythose least qualified to under- unwise for your situation. It is, after tionsavailable fiommanyofthecm- possible to have a much larger group puter and modem (6 12.753.1943; 8- . stand what social services we actual- all, your money. mercial online services. If all else participatewithoutnecessarily limit- n-1; ANSI emulation). ly really need - is starting fails, there's always the library. ing it to specific geography and not with us in the race to cut the most My intention isn't to turn this col- have any in-person meetings at all

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Page 8: July 1995

Access Press e-y I-J9 = J J d ,

ARC RECOGNIZES IN BRIEF. . . . JOHN HOCKENBERRY - FREE LECTURE Public Radio station KNOW- is currently a correspondent plegic since the age of nin FM in the Twin Cities wel- for ABC-TV, most recently teen, when a car in which he comesformerNationalPublic with thenewsmagazine show wasridingwithatiiendcrashed Radio (NPR) correspondent Day One. Beforejoining ABC- on a rural road in Pennsylva- JohnHockenbenytotheTwin TV, he spent 12 years as a nia. Moving Violations is a Cities on Thursday, July 13 general assignment reporter, vivid account of for a free public lecture at the Middle East correspondent, Hockenbeny's extraordinary Macalester College Chapel in and host of a number of NPR life and award-winning work St. Paul. The lecture will be programs, most recently Talk as a journalist - and it is also recorded and broadcast on oftheNation. DuringthePer- . a meditation on the conse- KNOW'S Midday program at sian Gulf crisis in 1990-199 1, quences of being different noon on Friday, July 14 (re- he was assigned to the Middle which resonates farbeyondthe broadcast at 9 p.m.). East, where he was one of the individual experience ofa man

first Western broadcast jour- in a wheelchair. Hockenbeny will discuss his nalists to file from the Kurdish new memoir, Moving Viola- refugee camps. He spent two Moving Violatr*ons will be tions; War Zones, Wheel- years (1 988- 1990) based in available for purchase at a book chairs, and Declarations of Jerusalem during the recent signing to follow Hocken-ber- Independence. A political intensive conflict ofthe Pales- ry's lecture. This event is co- analyst, journalist, and advo- tinian uprising. sponsored by Minnesota Pub- cate for the rights of people lic Radioandthe Hungry Mind with disabilities, Hockenbeny Hockenbeny has been a para- Bookstore.

VOLUNTEERS AT ANNUAL CELEBRATION

Minneapolis Mayor Sharon Sayles Belton presented the 1994 volunteer awards at Arc ofHennepin County's Annual Celebration held May 3 1. Mayor Sharon Sayles Belton also spoke at the event, en- couraging volunteers and com- munity members to continue their work in support of Arc of Hemepin County and individ-

vehicle of television to spread the word about self-advocacy and People First -Central on the Judy Corrao Show on Channel 6. In addition to all of these activities, John has vol- unteered at Arc of Hennepin County for over 70 hours in the past eight months.

far beyond her personal situa- tion or needs. These qualities have impacted key policy de- cisions and activities which Arc of Hemepin County has pursued as an organization.

Arc of Hennepin County is a non-profit organization that provides advocacy and sup- port to people with develop- Darlys Westlund is a strong

uals with developmental dis- abilities.

The 1994 Dick Rothmund Memorial Award honoring a self-advocate who has partici- pated fully in their community in an outstanding manner through leadership in self-ad- . vocacy or community service was awarded to John

A 4

Rischmiller. Arc of Hemepin County's 1994 Founders Award was presented to Darlys Westlund for her efforts in helping to improve the lives of people with developmental

1 Jo .... ,.,,........,. and Mayor Sayles-Belton

disabilities and their families. leaderwhohasdedicatedyears mental disabilities and their The Founders Award honors ofservice to strengthening Arc families. Arc of Hemepin an individual who exemplifies of Hennepin County to ensure County was founded in 1946 the vision ofthe founders who the mission of securing for all by a small group of parents dreamed of a community in people with developmental and volunteers. This group which all people with devel- disabilities the opportunity to served as the nucleus to a ~pqggtal~disabilities would choose and realize their goals grassroots movement that

I COMMUNITY INCLUSION AFTER BRAIN

1 INJURY CONFERENCE OFFERED A conference on community inclusion afterbrain injury will be held on Friday, August 18 at the Holiday Inn Minneapo- lis West in St. Louis Park, Minnesota for social workers, public health nurses, teachers, qualified rehabilitation coun- selors, case managers, and oth- ers who work with clients with traumatic brain injury in the- -- -

community. viduals find value and mean- ing in a confusing new world, and how to help people with brain injury and the communi- ty come together.

The all-day conference, spon- sored by Courage Center, ad- dresses a paradigm shift to in- terdependence and moves be- yond the theory to the realities of how integration can hap- pen, how to better understand the world ofthe person with a brain injury, how to help indi-

For more information, contact Ann Roscoe, Courage Center, (6 12) 520-02 10. ~egistrations are needed by July 28.

~ g e i s fully included and pfoy,g@&&e and how they learn, bread acrossthe U.S. and es-

. - social and ~hysicaliarriers. committees, includha; strate- tiod's largest volunteer orga- --

gic planning, policy and pro- nization devoted to improving gram advisory task forces of the lives ofchildren and adults the National Convention, and with developmental disabili- has recently signed onto Arc ties and their families

porter in government is quot- ed as saying "maybe we've gone too far," maybe we ought to "retool" the ADA.

THE TRUTH IS THAT NO CITY has been forced, no city could be forced, to spend any- thing near one-third of its bud- get on the ADA. How many cities have actually spent as much as two percent of their budgets on the ADA?

dice, paternalism, and econom- ic self-indulgence and to in- vest in free enterprise for all? President of People First -

Central, which is an organin- tion of and for people with developmental disabilities to learn self-advocacy and em- powerment skills. As Presi-

' - dent, John has had the oppor- tunity to become involved in a variety of activities including planningthe People First Mid- western Conference in Lacrosse, Wisconsin and the 1995 Metro Self-Advocacy

- Conferencecoming up this fall.

John has also expressed him- - selfthrough performingin skits

focusing on self-advocacy to - Hennepin County Social

- Workers and atheatrical event about AIDS called Sa&Choic- es. John has also used the

of ~ e n n e p i n - County's 50th Anniversary efforts.

SENATOR DOLE, it is diffi- -

cult for us to believe that you would intentionally do any- thingthat wouldgive the slight- est support to limitations on our ADA rights, our citizen- ship and our humanity. But surely your statement to the Mayor's Conference could be understood and quoted by the opponents ofthe ADA as sup- portingallegations and actions which we know you do not support. We hope and trust that future statements by you will clarify any doubts that might have been raised. The coming fifth anniversary cele- bration of the signing of the ADA will give ample oppor-

S E N A ~ R DOLE, THE ADA IS A WELL-CONCEIVED LAW. You helped to write it. It has not caused any of the problems that opponents pre- dicted. It has made a good start toward the achievement of its long term goal: full par- ticipation in free enterprise democracy by 49 million Americans with disabilities. There is one major problem. The original opponents of the ADA have launched a mas- sive, vicious campaign ofmis- information, fear and fallacy.

Darlys has brought an im- portant balance of compassion and insight as a

THE TRUTH IS THAT FOR 22 YEARS cities have been required by the Rehabilitation Act of 1973 to effect most of the accessibility mandated by the ADA. It is the cities that have not complied with the 1973 law that are complaining about "abrupt" expenses.

parent of a daughter with developmental disabilities and a strong sense of ethical busi-

t ness savvy. She is able to D.

debate hard is- Darlys Westlund and Mrryor Sayles-Belton sues and think

BUT YES, SENATOR, THERE IS AN ECONOMIC AND MORAL HORROR STORY. Obsolete discrimi- natory attitudes and environ-

FALLACY: ADA COSTS TOO MUCH. Businesses, cit- ies, counties will be bankrupt- ed. ADA is one of the man- dates that will take "up to one third of city budgets."

ments condemn 69% of work- ing-age Americans with dis- abilities to unemployment. Millions are forced to depend on public or private welfare, incarcerated in institutions and the back rooms of ghettos. President Bush estimated that this costs our nation almost $200 billion cash every year. Who pays? Whosuffers? Who else? Every American busi- ness, city, county, tax payer and family, present and future.

tunity for such statements. -. I Letters . . .. . SENATOR DOLE, we who have disabilities thank you for youi support over the years. Weneed your leadershipmore than ever. We will cooperate 100% to achieve harmonious cost-effective implementation ofthe ADA. But we will fight with all of our strength any change that weakens our rights as American citizens.

I I

Dear Charlie, was Michael. I realize that parts of his career. That is no THE TRUTH: THE ADA HAS CAUSED NO BANK- RUPTCIES, no serious economic problems. Not one. It never will. Because the Act specifically states that no pub- lic entity or business can be forced to do anything that will result in an undue financial burden. It states that, when necessary, alternative servic- es can be delivered to citizens with disabilities in ways that are equitable and cost-effec- tive. Those are good, common sense, free enterprise provi- sions.

Ed's contributions were on a reasontonotrememberagreat In May when I learned of the grander scale than Michael's; man for what he did for all of passing of Michael Erhlichmann I was disappoint- ed to find out that the local disability community lost an- other warrior. When no men- tion was made of this in the June issue of Access Press, I

- wassyen more disappointed.

however, the contributions made by Michael were very important. Many times Micha- el had to endure criticism for one reason or another. His contributions, all of which a lack of knowledge prohibits me from listing, had a great impact on our lives. The one example I can think of is his insistence of trip assurance before it was a legal require-

us. In a recent issue you credit Mike for his efforts. Couldn't you find room among the hoop- la ofthe fifth anniversary issue to remember the accomplish- ments of a great man? Billy Golfus referred the passing of Ed Roberts as the loss of a warrior. Wasn't Michael Erhlichmann an important lo- cal warrior?

* . Senator Bob Dole L ,

Hart Senate Office Building, Room 141 Washington, D.C. 205 10 2021224-652 1 Voice 2021224-8952 FAX 9 131295-2745 Topeka 91 31371-6108 Kansas City 3 16/263-4956 Wichita

THE REAL QUESTION is not "How much will ADA cost?". It is "How much will ADA save?". The real ques- tion for today's Americans with and without disabilities is, will we as a nation have the character to overcome preju;

!

4 A t!ouple of months ago you published an article that Billy Golfus wrote about Ed Rob-

. ertswhen hepassedaway. Yes, ment. Sincerely, Ed Roberts was a man Lisa ~ a r o n who did many great things for I realize he was the center of the disability community. So many negative rumors during

7 *

Page 9: July 1995

Trainiq Programs @