2013 INTERNATIONAL CONGENITAL

DIAPHRAGMATIC HERNIA CONFERENCE MassGeneral Hospital for Children’s Congenital Diaphragmatic Hernia Genetic Study and CHERUBS – The Association of Congenital Diaphragmatic Hernia

Research, Awareness and Support

Medical Conference - July 9-11, 2013

Family Conference – July 10-13, 2013

The Inn at Longwood Medical

342 Longwood Avenue

Boston, MA 02115

CDH MEDICAL CONFERENCE Never before has there been

an all-encompassing

conference for the study and

support of patients affected by

Congenital Diaphragmatic

Hernia.

The first ever joint CDH medical and family conference is sponsored by MassGeneral Hospital for Children’s Congenital Diaphragmatic Hernia Genetic Study and CHERUBS – The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. This conference includes all medical specialties that work with CDH patients including pediatric surgeons, neonatologists, geneticists, dieticians, pediatricians, pulmonologists and others as well as the patients and families affected by CDH to come together to search for the cause, prevention and best treatments of Congenital Diaphragmatic Hernia.

All medical professionals are

welcome to attend both the

CDH Medical and CDH Family

Conferences. There is a $150

conference fee for medical

professionals.

cdhconference.org

A

CDH FAMILY CONFERENCE Tuesday, July 9th - Research Presentations*

• Poster Presentations & Display (submissions can be sent to research@cdhsupport.org)

• Vendors

Wednesday, July 10th - Round Tables / Panels

• Evening Pizza Party at Parent Conference

• Parade of Cherubs

• CDH Research on Capitol Hill

• Vendors

Thursday, July 11th - Medical Speakers at Parent Conference

• Medical Panel at Parent Conference

• Vendors

• Medical Conference Conclusion

Medical Professionals only allowed on Tuesday, July 9th

POSTER AND PAPER SUBMISSIONS Abstracts and posters may be submitted to research@cdhsupport.org by May 15th for

consideration.

They will be reviewed jointly by your conference hosts.

PAST PRESENTERS The following have presented at CDH Family Conferences in past years:

• Jay Wilson, MD - Boston Children's Hospital, Harvard University • Patricia Donahoe, Massachusetts General Hospital • Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center • David Kays, MD - University of Florida at Gainesville / SHANDS • Meaghan Russell, MPH and Mauro Longoni - Mass General Genetic CDH Study Program • Marc Arkovitz, MD and Julia Wynn - New York Presbyterian Columbia / DHREAMS • Bella Belleza-Bascon, RN, MHA - Texas Children's Hospital / Fetal Center, Baylor College of Medicine • Kevin Lally, MD - CDH Study Group • Daryl Scott, MD and David Pearson - Baylor Genetic CDH Study Program • Dr. Edmund Yang, St. Louis Fetal Care Institute

• Ruben Quintero, MD - Fetal Treatment Program • Priscilla Chiu, MD - Sick Children's, Toronto, Canada • Brenda Slavin, RN - Children's National Medical Center, Washington DC

CDH FAMILY CONFERENCE

Wednesday, July 10th - Pizza Party/ Dinner

• Family Introductions • Parade of Cherubs

Thursday, July 11th - Research Day

• Medical Speakers • Medical Q&A Panel • Free Genetic Testing • CDH Lab & Clinic Tours

Friday, July 12th - Awareness Day

• CDH Research Bill • April 19th • Volunteering • Fundraisers

Saturday, July 13 - Support Day

• Round Table Discussions • Kids CDH Song Performance • Family Conference Conclusion

Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS to attend. This is also to keep our members safe and medical information private. All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhboards.org

• 3 half-days so you have time to see local attractions • Pizza party and parade of cherubs • World renown guest speakers • Great round-table discussions for families of survivors and angels • Participate in CDH Research • Meet other CDH families • Kids are always welcome! • Special needs families often qualify for grants to attend (check with your social worker) • Our conference makes a wonderful family vacation

About The CDH Family Conference:

• Expect to learn a lot about Congenital Diaphragmatic Hernia! • Our guestspeakers are always the best in their fields, bringing us new information every year! • ALL CDH families are welcome to attend! This includes families of survivors, grieving families

and expectant families. • Our conferences include family introductions, round-table discussions, research guest lectures,

Q&A sessions and much more! • Each conference runs for 3 half-days; CDH Research Day, CDH Awareness Day and CDH

Support Day. • CHERUBS conferences are planned to be educational, supportive and affordable! • Our conference hotels always offer rooms around $100 per night, breakfasts and parking. • Meet new friends, see old friends and participate in research for various hospitals. • Our conferences are always half days so that families can enjoy local tourist attractions. • Children are welcome and babysitting services will be provided during conference hours. • Our conferences are held near top rated hospitals for safety. • We take photos, we videotape intros and lectures but we ALWAYS respect member

confidentiality and privacy! • Join in our new Parade of Cherubs at every conference! • Join in our balloon releases at every conference! • We have a pizza party on the first night of every conference. • Kid's get a chance to learn the CDH kids song and perform on the last day of the conference. • CHERUBS does not charge a conference fee. • For safety and privacy of our members, you MUST be a member of CHERUBS to attend. You

may register for free at http://www.cherubs-cdh.org/members • Many families of survivors are eligible for grants to cover travel expenses to medical

conferences. Ask your child's social worker for more information. Registration for CDH families is just $5.00 per person for the entirety of the conference and includes pizza party. You may register on-line at:

www.cdhconference.org

ACCOMODATIONS The Inn at Longwood Medical

342 Longwood Avenue

Boston, MA 02115

We have a limited number of rooms so please book early if you plan to

attend. Please call the hotel directly at (617) 731-4700 and ask for the

CHERUBS rate of $189 on July 10-13th before the cutoff date of June 1st,

2013.

Any bookings made after June 1st will be subject to the hotels prevailing rate

(Average rate for those dates on 12-20-2012 is $288).

Rooms may be cancelled without penalty up to 72 hours prior to arrival.

Breakfast Sponsorship on Tuesday, Wednesday, Friday, or Saturday: $1500 + Cost of

Food after May 30, $1200 + Cost of Food if contract is signed and paid prior to May 30.

Sponsorship includes Logo displayed on Screen prior to and post talks, product distribution on

tables, acknowledgement in program and on conference website.

Breakfast Sponsorship Thursday- A special opportunity to reach medical professionals,

researchers, and parent participants during the only joint session of the conference! $2000 +

Cost of Food after May 30, $1500 + Cost of food if contract is signed and paid prior to May 30.

Sponsorship includes Logo displayed on Screen prior to and post talks, product distribution on

tables, acknowledgement in program and on conference website.

Pizza Party- During this session the medical professionals, researchers, and families will come

together for food and fellowship. This is the night prior to the beginning of the Family

Conference, and families introduce themselves and share their CDH stories.

3 $1000 sponsorships are available.

1 $2500 sponsorship non-competing sponsorship available (No competing companies will be

allowed to sponsor)

Kids Entertainment room: Entertainment room with babysitters during parent conference only

(Thursday-Saturday 8am-12pm). $2000.

Other Sponsorship Opportunities:

Conference Bags- $2000 Includes sponsor’s logo on one side of bag and CHERUBS logo on

other side of bag. CHERUBS to manage ordering and production of bag, at no additional cost to

sponsor.

Lanyard/ Badge Holder- $1500 Includes sponsor's logo and the CDH awareness

ribbon. CHERUBS to manage ordering and production of lanyard at no additional cost to

sponsor.

Information/Advertisements in bags- $250

Contact Ashley Barry at abarry@cherubs-cdh.org or 919-624-2883 for more information or

purchase sponsorship on-line at

www.cdhconference.org

SPONSORSHIP & VENDOR OPPORTUNITIES

CHERUBS MEDICAL ADVISORY BOARD

• Patricia Donahue, MD – Massachusetts General Hospital

• David Kays, MD – University of Florida at Gainesville

• Henry Rice, MD – Duke University Medical Center

• Edmund Yang, MD – Fetal Treatment Center of St. Louis

• N. Scott Adzick, MD – Children’s Hospital of Philadelphia

• Kevin Lally, MD, MS - University of Texas Medical School at Houston

• Jan Deprest, MD, PhD - University Hospital Gasthuisberg, Leuven,

Belgium

• Paul Losty, MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) – Liverpool

University, UK