jeannette jackson-thompson, ma, msph, phd...curriculum vitae jeannette jackson-thompson, ma, msph,...

CURRICULUM VITAE

JEANNETTE JACKSON-THOMPSON, MA, MSPH, PhD BUSINESS ADDRESS Missouri Cancer Registry and Research Center and Department of Health Management and Informatics 401 Clark Hall University of Missouri-Columbia Columbia, MO 65211 Phone: (573) 882-7775 Fax: (573) 884-9655 Email: [email protected] Website: http://mcr.umh.edu HOME ADDRESS 106 East Parkway Drive Columbia, MO 65203 Phone: (573) 442-7361 Cell: (573) 808-3850 Email: [email protected] EDUCATION 1985 PhD, Medical/Cultural Anthropology, University of Missouri – Columbia 1975 MSPH, Public Health, University of Missouri – Columbia 1971 MA, Anthropology (Linguistics), University of Missouri – Columbia 1969 BA (with honors), Anthropology, University of Missouri – Columbia POST-GRADUATE TRAINING 1989 International Graduate Summer Session in Epidemiology, University of Michigan-School

of Public Health, Ann Arbor PROFESSIONAL EMPLOYMENT 1/2011 – present Director, Missouri Cancer Registry and Research Center and Research Associate Professor, Dept. of Health Management & Informatics University of Missouri School of Medicine, Columbia, MO 65211-4380 9/10 – present Core faculty, University of Missouri Informatics Institute (MU-II), Columbia, MO 9/2007 – 12/2010 Operations Director, Missouri Cancer Registry and Research Associate Professor, Dept. of Health Management & Informatics

University of Missouri School of Medicine, Columbia, MO 65211-4380 8/2002 – 8/2007 Operations Director, Missouri Cancer Registry and Research Assistant Professor, Dept. of Health Management & Informatics

University of Missouri School of Medicine, Columbia, MO 65211-4380 4/1996 – 7/2002 Chief, Office of Surveillance, Research and Evaluation Director, Behavioral Risk Factor Surveillance System Project

Director, Missouri Cancer Registry Enhancement Project Division of Chronic Disease Prevention & Health Promotion Missouri Department of Health and Senior Services Columbia, MO (< 5/2000); Jefferson City, MO (≥ 5/2000)

1990 – 1996 Head, Surveillance and Detection Unit, Bureau of Smoking, Tobacco and Cancer, Division of Chronic Disease Prevention & Health Promotion, Missouri Department of Health, Columbia, MO

1988 – 1990 Project Epidemiologist and Coordinator, Cancer Information, Bureau of Smoking, Tobacco and Cancer, Division of Chronic Disease Prevention & Health Promotion, Missouri Department of Health & Senior Services, Columbia, MO

2

Jeannette Jackson-Thompson, MSPH, PhD of 28 08/13/2018

1986 – 1988 Coordinator, Hypertension Control and Coordinator, Worksite Wellness, Bureau of Chronic Diseases, Division of Maternal, Child and Family Health, Missouri Department of Health, Jefferson City, MO

1985 – 1986 Computer Consultant, Corinth Excavations, American School of Classical Studies, Corinth, Greece

1979 – 1983 Research Assistant (half-time), Department of Psychiatry, School of Medicine, University of Missouri, Columbia, MO

1979 Coordinator (half-time), Chancellor’s Residence, University of Missouri, Columbia, MO

1977 – 1978 Manager, Special Projects, InterQual, Inc., Chicago, Illinois 1976 –1977 Information Specialist, Department of Veterinary Microbiology, School of

Veterinary Medicine, University of Missouri, Columbia, MO 1975 – 1976 Instructor, Department of Community and Family Medicine, School of Medicine,

University of Missouri, Columbia, MO 1974 – 1975 Teaching/Research Assistant, Department of Community Health and Medical

Practice, School of Medicine, University of Missouri, Columbia, MO 1972 – 1974 Researcher, Neutron Activation Analysis Project, Department of Anthropology

and Research Reactor, University of Missouri, Columbia, MO 1971 – 1972 Research Assistant, Department of Anthropology, University of Missouri –

Columbia 1967 – 1971 Research Assistant, Center for Research in Human Behavior University of Missouri, Columbia, MO RELATED PROFESSIONAL EXPERIENCE 2006 – Present Serve as Voting Delegate for the Missouri Cancer Registry to the International

Association of Cancer Registries (IACR). (With five years’ high-quality data, MCR became eligible, applied and was accepted into full membership in IACR in 2006.)

2002 – Present Employ one or more Graduate Research Assistants (GRAs) from various departments (e.g., Health Management and Informatics (HMI), Statistics, Rural Sociology) each semester and provide summer internship opportunities for students. Publications and presentations where name is preceded by * denotes author was a student.

1997 – Present Serve on Missouri Cancer Registry Advisory Board. Established Board in 1997 and selected as Chair by Board members; re-elected and continued to serve as Chair until merger with Missouri Cancer Consortium in September 2006.

1996 – Present Serve as Voting Delegate for the Missouri Cancer Registry to the North American Association of Central Cancer Registries (NAACCR). Nominate and vote on candidates for national office; introduce topics for discussion, vote on changes to the bylaws, etc.

2009 – 2012 Participant in CDC/National Program of Cancer Registries (NPCR) Advancing e-Cancer Reporting and Registry Operations (AERRO) Clinic/Physician Office (CPO) Workgroup; the goal is to develop/implement consistent standards for electronic CPO reporting to improve the completeness, timeliness, and quality of cancer registry data.

2009 – 2011 Melanoma Monograph Project: Member of Steering Committee and co-author of methods chapter. Project involves investigators from the Centers for Disease Control and Prevention (CDC), the National Cancer Institute (NCI), population-based cancer registries in the U.S., academic institutions, ORC Macro and the American Cancer Society.

2006 – 2009 Participant in CDC’s National Program of Cancer Registries – Modeling Electronic Reporting Project (NPCR-MERP) central registry-based Strategic Assessment and Modeling Session (SAMS) 9-10 March 2006 and subsequent

3


activities (e.g., pilot project to test the implementation of electronic reporting of pathology data from LabCorp to participating state central cancer registries; member of MERP Central Cancer Registry (CCR) workgroup visioning the future of cancer reporting).

1994 – 2008 Adjunct Assistant Professor, St. Louis University School of Public Health, St. Louis, MO

2003 – 2006 Colorectal Cancer Monograph Project Member, Publications Committee (one of five members) Member, Steering Committee (one of 12 members) Project involved over 60 investigators from the Centers for Disease Control and Prevention (CDC), the National Cancer Institute (NCI), population-based cancer registries, academic institutions, ORC Macro and the American Cancer Society (see PUBLICATIONS (Colorectal Cancer Monograph Project, p. 13).

1998 – 2005 Adjunct Research Associate, Department of Anthropology University of Missouri, Columbia, MO

1989 – 2004 Missouri State Behavioral Risk Factor Surveillance System (BRFSS) Coordinator, Missouri Department of Health and Senior Services (Position mandated for cooperative agreement recipients by the Centers for Disease Prevention and Control (CDC))

2001 – 2003 Supervised CDC Health Prevention Specialist (PHPS) assigned to Missouri. (With CDC approval, supervision continued after change in employment in 2002.) (Spring 2001 (1st round) - submitted application to compete for assignment of a PHPS; summer 2001 (2nd round) - invited to meet with applicants in Atlanta; (3rd round) a PHPS selected the Missouri Cancer Registry project for years 2 and 3 of his PHPS assignment.) Presentations by PHPS marked with **.

1996 – 2002 Initiated and maintained Research Intern/Research Assistant program at Missouri Department of Health (now Department of Health and Senior Services), first to employ undergraduate and graduate students as summer interns to give them real-world experience while carrying out special Behavioral Risk Factor Surveillance System or Missouri Cancer Registry projects, later extended to fall and winter semesters as well as summer sessions. Publications and presentations where name is preceded by * denotes author was a student.

1994 – 1996 Consultant, Behavioral Risk Factor Surveillance Documentation Project, Behavioral Surveillance Branch, Division of Adult and Community Health, Centers for Disease Control and Prevention, Atlanta, Georgia

1974 –1985 Facilitator, Human Sexuality Workshops, Department of Family and Community Medicine, School of Medicine, University of Missouri, Columbia, MO

COMMITTEES and WORKGROUPS American Public Health Association (APHA) Co-Chair, Health Informatics/Information Technology (HIIT) Section Poster Judging Committee

(2013 – present) Member, HIIT Section Work Group on National HIT Transformation: Identifying and Addressing

Gaps in Consumer Involvement (November 2010 – 2012) Centers for Disease Control and Prevention (CDC) National Program of Cancer Registries (NPCR)

Member, AERRO (Advancing E-cancer Reporting and Registry Operations) Work Group (2009 – July 2012)

Member, Central Cancer Registry Council (8/2011 – 12/2011; 3/13 – 7/13; 6/14 – 8/14) Member, Medical Electronic Reporting (MERP) Work Group (2006 – 2009)

4


Member, Scientific Work Group (2000 – 2010) Member, High Quality Data Subcommittee (2003 – 2010) North American Association of Central Cancer Registries (NAACCR) Member, Uniform Data Standards Work Group (July 2014 – present) Co-Chair, Uniform Data Standards Work Group (August 2013 – June 2014) Member, Change Management Board (August 2013 – June 2014) Member, IT Advisory Group (July 2013 – present) Member, CINA Deluxe Application Review Work Group (June 2013 – present) Member, Death Clearance Work Group II (June 2013 – January 2015) Member, UDS – EDITS Impact Workgroup (June 2013 – present) Member, Physician Reporting Work Group (June 2013 – present) Chair, Uniform Data Standards (UDS) Standing Committee (June 2011 – June 2013) Member, UDS - Volume II Subcommittee (June 2011 – June 2013) Member, UDS – EDITS Impact Workgroup (January 2013 – present) Member, Board and Chair Committee (June 2012 – June 2014) Member, Interoperability – Physician Reporting Work Group (June 2012 – June 2013) Member, Cancer Registration Steering Special Committee (August 2011 – June 2013) Member, Change Management Work Group (August 2011 – June 2013) Member, Data Use and Research Standing Committee (DURC) (2009 – May 2013) Member, DURC – Research Proposal Review Subcommittee (2009 – May 2013) Member, DURC – Confidentiality Subcommittee (2010 – June 2013) Chair or Co-Chair (since 2012), DURC – Student Award Subcommittee (2010 – July 2013)

Member, Registry Operations Standing Committee – Death Clearance Work Group II (2009 – June 2013)

Member, Death Clearance Issues Work Group (2003 – 2009) Member, Death Clearance Workgroup, (2002 – 2003) Member, Data Evaluation and Certification Standing Committee (DECC) (2006 – June 2013) Member, Certification Committee (2001 – 2005) Member, 2007 and 2008 Annual Conference Planning Committees (2006 – 2008) Member, Abstract Review Subcommittee (2006 – 2007; 2007 – 2008)

Chair, Poster Judging Committee 2007 Annual Conference (2006 – 2007) Member, Poster Judging Committee for Annual Conference (2008 – present)

National Cancer Registrars Association (NCRA) Member, NCRA/CDC Work Force Project Central Cancer Registry Committee (2007 –2010) CDC Behavioral Risk Factor Surveillance System (BRFSS) Member, National BRFSS Working Group (11/2003 – 1/2004) Member, National BRFSS Working Group (1992 –1994) Missouri Cancer Consortium Member, 2004 – present Chair, Data & Surveillance Subcommittee (2010 – present) Member, Executive Committee (2010 – present) Other Committees, Work Groups and Task Forces

Chair, University of Missouri Information Technology Committee (September 2012 – present; member since September 2011; reappointed July 2013 to serve 2nd term as chair)

Chair, HMI Search Committee for Job Opening 10181 (Associate Research Professor, Non-Tenure-Track) (May 2013 – present)

Member, HMI Faculty Performance Committee (September 2008 – 2010) Member, HMI Strategic Planning Steering Committee (September 2007 – 2010)

5


Member, HMI Departmental Administrator Search Committee (April - May2009) Member, University of Missouri Position Search Committee Job Description ID: 2600544

(Clinical Assistant Professor in Health Management & Informatics) (September 2008) Member, Missouri Department of Health Committee for the Promotion of Employee Health (1989

–1991) Member, Missouri Cholesterol Coalition Steering Committee (1987 – 1988) Member, Inter-Agency Hypertension Committee (1987 – 1988) Member, Missouri Department of Health Occupational Health Task Force (1987 – 1988)

Inter-Agency Older Adult Task Force (1987 – 1988) Member, Inter-Agency Minority Health Task Force, Cardiovascular/Diabetes Subcommittee

(1987 – 1988) APPLICATION REVIEWER/PEER REVIEW PANEL CHAIR Chair, National Center for Chronic Disease Prevention and Health Promotion Special Emphasis Panel

ZDP1 EEO 01 R, Panel 1 DP15-004 (Establish a Vision and Eye Health Surveillance System for the Nation), Centers for Disease Control and Prevention (CDC), 10 March 2015.

Chair, Disease, Disability and Injury Prevention and Control Special Emphasis Panel ZOH1 DYB (51) PAR14-227 Worker’s Compensation Surveillance, National Institute for Occupational Safety and Health, CDC, 5 November 2014.

Chair, Prevention Research Center Special Interest (SIP) Peer Review Panel B1 (Skin Cancer, DP14-0010101, 14-015, -016 & -017), CDC, 3 June 2014.

Chair, National Center of Birth Defects and Developmental Disabilities Special Emphasis Panel ZDD1 EEO (02), CDC, 14-17 April 2014.

Member, Special Emphasis Peer Review Panel ZDP1 EEO 7D (RFA-DP09-0010501SUPP13) National Center for Chronic Disease Prevention and Health Promotion, CDC, May 2013.

Chair, Special Emphasis Peer Review Panel D SIP13-070 (RFA-DD 12-006: Coordinating Center for Research and Training to Promote the Health of People with Developmental and Other Disabilities (U01), CDC, July 2012.

Member, Special Emphasis Project Peer Review Panel (RFA DP-11-001: Pregnancy Risk Assessment Monitoring System (PRAMS)), National Center for Chronic Disease Prevention and Health Promotion, CDC, March 2011.

Chair, Craniofacial Panels, National Center on Birth Defects and Developmental Disabilities, CDC), April and May 2010.

Chair, Special Interest Project Peer Review Panels (3 panels), Prevention Research Center, Centers for Disease Control and Prevention (CDC), July 2009.

Chair, Special Emphasis Panels (3 panels), Centers for Disease Control and Prevention (CDC), Coordinating Center for Health Promotion (CoCHP). Applications reviewed under RFA DP-08-002 Health Promotion and Disease Prevention Research Centers: Special Interest Project (SIP) Competitive Supplements: SIP 1: Managing Epilepsy Well (MEW) Collaborating Center for Epilepsy Self-management; SIP 3: Technical Support for Health Impact Assessment at the Community Level; SIP 2: Data on the Health of Older Adults at State and Local Levels. CDC, 9-10 July 2008.

Panel member, CDC Mentored Public Health Research Scientist Development Award (KO1) (RFA-CD-07-003), June 2007.

Member, Health Promotion and Disease Prevention Research Centers: Special Interest Project Competitive Supplements Panel, National Center for Chronic Disease Prevention and Health Promotion, CDC, June 2007 (Cancer Panel).

Chair, Health Promotion and Disease Prevention Research Centers: Special Interest Project Competitive Supplements Panel, National Center for Chronic Disease Prevention and Health Promotion, CDC, June 2006 (Cancer Panel).

6


Chair, Health Promotion and Disease Prevention Research Centers: Special Interest Project Competitive Supplements Panel, National Center for Chronic Disease Prevention and Health Promotion, CDC, June 2006 (Adult Health Panel).

Chair, Special Emphasis Project Peer Review Panel (RFA DP-06-002: Pregnancy Risk Assessment Monitoring System (PRAMS)), National Center for Chronic Disease Prevention and Health Promotion, CDC, February 2006 (37 panelists).

Chair, Special Interest Project Peer Review Panel, Prevention Research Center, CDC, July 2005. Evaluate and rank nominations for awards to CDC Prevention Research Centers that have demonstrated excellence in areas such as innovation in research and implementation of community-based research (one of three external judges, October 2004). Awards presented at 20th anniversary program at the 2004 APHA meeting in Washington, DC (7 November 2004).

Reviewer, CINA (Cancer in North America) Deluxe applications, North American Association of Central Cancer Registries, 2003 – present.

ABSTRACT REVIEWER Health Informatics Information Technology (HIIT) Section of the American Public Health

Association (February 2009 – present) Women’s Caucus of the American Public Health Association (2005 – present) Annual Meeting, North American Association of Central Cancer Registries (2007 – present) CONFERENCE/WORKSHOP PLANNING 2016 Annual Meeting Program Planning Chair, North American Association of Central Cancer

Registries (NAACCR) to be held in St. Louis, MO 11-17 June 2016 (12/2012 – present) 2007 Annual Meeting Program Planning Committee, NAACCR (7/2006 – 6/2007) Program Directors’ Meeting Planning Committee (2000 – 2001), National Program of Cancer

Registries, Centers for Disease Control and Prevention (Atlanta, Georgia: December 2001) Planning Committee (1993 – 1994), Eleventh Annual BRFSS Conference (Atlanta, GA: June 1994) Planning Committee (1992 – 1993), Tenth Annual Behavioral Risk Factor Surveillance System

Conference (Atlanta, GA: June 1993) Planning Committee (1990-1991), National Heart, Lung and Blood Institute, Workshop on Health

Behavior Research in Minority Populations: Access, design and implementation (Bethesda, Maryland: 17 – 19 July 1991)

Planning Committee (1987-1988) Region VII Cardiovascular Risk Reduction Conference (4 – 6 May 1998)

CONFERENCE/WORKSHOP - Invited Speaker, Moderator or Discussant Moderator, Session on “Applying health informatics and information technology (HIIT) systems to

facilitate surveillance and disparity reduction efforts” to be presented at the 142nd Annual Meeting of the American Public Health Association, New Orleans, LA: 15 - 19 November 2014.

Moderator, Session on “Using health informatics and information technology (HIIT) to improve cancer reporting” to be presented at the 142nd Annual Meeting of the American Public Health Association, New Orleans, LA: 15 - 19 November 2014.

Organizer and moderator, Session on “Health Informatics and Information Technology: Facilitating Data Sharing between Public Health and Clinical Care,” 140th Annual Meeting of the American Public Health Association, San Francisco, CA: 27 October - 1 November 2012.

Organizer and moderator, Session on “Health Informatics and Information Technology: Facilitating Data Sharing between Public Health and Clinical Care,” 138th Annual Meeting of the American Public Health Association, Denver, CO: 6-10 November 2010.

Moderator, Session on “Women’s health across the lifespan: A focus on under-discussed health issues in underserved populations,” 138th Annual Meeting of the American Public Health Association, Denver, CO: 6-10 November 2010.

Invited speaker (“MCR Update: Data usage and new projects”). Missouri State Association of Tumor Registrars (Lake Ozark, MO: 24 September 2010).

7


Invited speaker (“The road to VA data: Patience, persistence and penalties”) and panelist, session on reporting of VA data, 2009 Collaborative NCCCP & NPCR Conference (Atlanta, GA: 15 April 2009)

Invited speaker (“Data security: Central registry perspective”)/panelist, workshop on data security, 2009 Collaborative NCCCP & NPCR Conference (Atlanta, GA: 17 April 2009)

Moderator/Discussant, Session on “Women’s Health Disparities, Women’s Caucus,” 135th American Public Health Association Annual Meeting (Washington, DC: 3 –7 November 2007)

Speaker/Faculty Member, Post-conference Workshop on Recruitment and Retention of Cancer Registry Staff. Annual Meeting of the North American Association of Central Cancer Registries, Detroit, Michigan: 8 June 2007.

Moderator, Cancer Panel, Epidemiology Section, American Public Health Association 134th Annual Meeting (Boston, Massachusetts: 5 – 9 November 2006)

Moderator, session on Explorations in Undergraduate Public Health Education, 133rd Annual Meeting of the American Public Health Association (Philadelphia, Pennsylvania: December 2005)

Chair, 1995 Questionnaire Breakout Session, Eleventh Annual BRFSS Conference (Atlanta, Georgia: June 1994)

Panelist (two sessions), Workshop on Quality of Life Surveillance, Eleventh Annual BRFSS Conference (Atlanta, Georgia: June 1994)

Chair, 1994 Questionnaire Breakout Session, Tenth Annual BRFSS Conference (Atlanta, GA: June 1993)

Co-Chair, Data Management Breakout Session, Tenth Annual BRFSS Conference (Atlanta, GA: June 1993)

Moderator, Quality of Life Roundtable Discussions (three sessions), Tenth Annual Behavioral Risk Factor Conference (Atlanta, GA: June 1993)

Invited Participant (one of 88 from across the nation), NHLBI Workshop on Health Behavior Research in Minority Populations: Access, design and implementation (Bethesda, MD: June 1991)

Executive Secretary, Task Group on Survey Research, NHLBI Workshop on Health Behavior Research in Minority Populations: Access, design and implementation (Bethesda, MD: June 1991)

Invited participant, Minority Health Issues Conference, Department of Health and Human Services (Washington, DC: 1 – 4 September 1987)

Invited participant, Practical Implications for Public Cholesterol Screening: Conclusions of the Lipid Research Clinics, sponsored by the Citizens for Public Action on Cholesterol (Washington, DC: 20 May 1987)

COMMUNITY SERVICE Fortnightly (faculty wives/faculty women’s) Club, University of Missouri – Columbia: Past President

(May 2008 – present); President (May 2006 – May 2007); President-elect (May 2006 – May 2007); Member, Long-range Planning Committee (May 2007 –present); Gastronomes Interest Group (member, 1970 – present; Chair, 1980, 1984, 1991); Program Chair, 1986–87; Editor, Fortnightly Bulletin, 1983-84.

Museum Associates, Museum of Archaeology, University of Missouri – Columbia (Member, 1979–present; Member, Board of Directors, 1982-92; Chair, Bylaws Committee, 1991-92; Chair, Travel Committee, 1989-90; Chair, Auction Committee, 1985-87,1991-92; Vice-President and Chair, Budget & Finance Committee, 1985-87; Chair, Educational Programs & Activities Committee, 1983-87; Docent, 1979-94).

Park Hill (Neighborhood) Improvement Association (Executive Board member, April 2010 – April 2014; President, April 2012 – April 2014; Vice-President, April 2010 – April 2012) (Member, 1979 – present; Executive Board, 1980-89; President, 1986-87, 1984-85; Vice-President (1983-84); Treasurer, 1981-83; Secretary, 1980-81).

8


Oriental Institute, Chicago, IL (Member, 1979-present; docent and lecturer (“Tutankhamen Revisited”), 1977-78).

HONORS AND AWARDS Professional Presented with four awards from the North American Association of Central Cancer

Registries (NAACCR) at the 2013 Annual Meeting in Austin, TX, June 2013: • “With sincere appreciation to Jeannette Jackson-Thompson for your

dedicated service as a Standing Committee Chair 2011 – 2013” • Merit Award • Achievement Award • “NAACCR Leadership Award – Jeannette Jackson-Thompson, MSPH, PhD

– Awarded June 12, 2013” On behalf of the Missouri Cancer Registry, accepted certificate presented by the CDC

National Program of Cancer Registries in recognition of achievement of the NPCR Standards for Data Completeness, Timeliness and Quality 2013 (and previous years) National Program of Cancer Registries Cancer Surveillance System • Advanced National Data Quality and Completeness Program • National Data Quality and Completeness Program • USCS Publication Standard

On behalf of the Missouri Cancer Registry, accepted certificate presented by the North American Association of Central Cancer Registries stating that the Missouri Cancer Registry has attained the NAACCR Gold Standard for Quality, Completeness and Timeliness (presented at NAACCR Annual Meeting, Austin, TX (June 2013).

On behalf of the Missouri Cancer Registry, accepted certificate (3 silver, 9 gold) presented by NAACCR at 12 previous annual meetings (2001 – 20012). MCR has been a NAACCR-certified registry since 2001 (diagnosis year 1998 data); data for diagnosis years 1999-20010 meet the NAACCR gold standard).

Presented with award “In appreciation for providing 15 years of outstanding leadership and support while serving as the Behavioral Risk Factor Surveillance Coordinator for the State of Missouri” by CDC’s Division of Adult and Community Health/Behavioral Surveillance Branch, Atlanta, Georgia (February 2004).

Missouri Department of Health and Senior Services Employee of the Month – September 2001

Graduate Standard Bearer, University of Missouri-Columbia Graduation Ceremony (August 1985)

National Defense Education Act (NDEA) Fellowship (1969-1972) Woodrow Wilson Fellow (1969-1970) Undergraduate BA with Honors in Anthropology and General Honors (1969) Curators’ Scholarship PUBLICATIONS (Peer-reviewed Journal Articles) Note: Publications where name is preceded by * denotes author was a student. 1. Ibdah J. Rahman R, Schmaltz C, Simoes E, Jackson-Thompson J. Analysis of ethnic and racial

disparities and rising incidence under age 50 in colorectal cancer. Submitted to New England Journal of Medicine but not accepted yet (June 2014).

9


2. Watson M, Johnson, C, Chen V, Thomas C, Weir H, Sherman R, Cockburn M, Jackson-Thompson J, Saraiya M. Melanoma surveillance in the United States: Overview of Methods. Journal of the American Academy of Dermatology, 2011, 11(5 Supplement 1); S6-S16.

7. Kapp JM, Jackson-Thompson J, Petroski GF, Schootman M. Reliability of health-related quality-of-life indicators in cancer survivors from a population-based sample, 2005, BRFSS. Public Health 2009; 123: 321–325.

8. Perdue DG, Perkins C, Jackson-Thompson J, Coughlin SS, Ahmed F, Haverkamp DS, Jim MA. Regional differences in colorectal cancer incidence, stage, and subsite among American Indians and Alaska Natives, 1999-2004. Cancer 2008; 113 (5 Supplement); 1179-1190. Published online 20 August 2008 in Wiley InterScience (http://www.interscience.wiley.com)

9. Perdue DG, Perkins CI, Jackson-Thompson J, Coughlin SS, Ahmed F, Haverkamp D, Jim MA. Colorectal cancer incidence rates for American Indian and Alaska Native populations vary five-fold between regions, with a propensity toward the distal colon and later state at diagnosis.

10. Wingo PA, King J, Swan J, Coughlin SS, Kaur JS, Erb-Alvarez JA, Jackson-Thompson J, Solomon T. Breast cancer incidence among American Indian and Alaska Native women: US, 1999-2004. Cancer 2008; 113 (5 Supplement); 1191-1202. Published online 20 August 2008 in Wiley InterScience (http://www.interscience.wiley.com)

11. Pasupathy K, Gong Y, Vest S, Cole N, Jackson-Thompson J. Quality-oriented Establishment of Characteristics for Central Cancer Registry Software Systems. Journal of Registry Management, Summer 2008; 8:2: 81-89.

12. Gong Y, Pasupathy K, Vest S, Cole N, Jackson-Thompson J. A human-centered information system for central cancer registries. Oncology Issues 2008; March/April; 30-35.

13. Thoburn KK, German RR, Lewis M, Nichols PJ, Ahmed F, Jackson-Thompson J. Case completeness and data accuracy in the Centers for Disease Control and Prevention’s National Program of Cancer Registries. Cancer 2007 (April 15);109(8):1607–1616. Published online 7 March 2007 in Wiley InterScience (http://www.interscience.wiley.com).

14. Reed E, Ahmed F, Jackson-Thompson J, Friedman C, German R, Lai S, Wingo P. Foreword: Promoting the use of registry-based national cancer surveillance data for colorectal cancer prevention and control. Cancer 2006 (Sept 1); 107(5 Supplement): 1101-1102. Published online 12 July 2006 in Wiley InterScience (http://www.interscience.wiley.com).

15. Jackson-Thompson J, Ahmed F, German R, Lai S, Friedman C. Descriptive epidemiology of colorectal cancer in the United States, 1998-2001. Cancer 2006 (Sept 1); 107(5 Supplement): 1103-1111. Published online 11 July 2006 in Wiley InterScience (http://www.interscience.wiley.com).

16. Schootman M, Kinman E, Jeffe D, Jackson-Thompson J. Evaluating the utility and accuracy of a reverse telephone directory to identify the location of survey respondents. Annals of Epidemiology 2005; 55:160-166.

17. Andresen EM, Catlin TK, Wyrwich KW, Jackson-Thompson J. Retest reliability of surveillance questions on health related quality of life. Journal of Epidemiology and Community Health 2003;57(5): 339–343.

18. *Vradenburg J, Simoes EJ, Jackson-Thompson J, Murayi T. The prevalence of arthritis and activity limitation and their predictors in Missouri. The Journal of Community Health 2002; 27: 91-107.

19. Brownson RC, Housemann RA, Brown DR, Jackson-Thompson J, King AC, Malone BR, Sallis JF. Promoting physical activity in rural communities: walking trail access, use, and effects. American Journal of Preventive Medicine 2000; 18: 235-241.

20. Andresen EM, Prince-Caldwell A, Akinci F, Brownson CA, Hagglund K, Jackson-Thompson J, Crocker R. The Missouri disability and health project. American Journal of Preventive Medicine 1999;16(35): 63–71.

21. *Holt BM, Simoes EJ, Chang JC, Jackson-Thompson J. Breast cancer incidence and mortality trends in Missouri. Missouri Medicine 1998; 95(4):165-169.

22. *Robling AG, Simoes EJ, Chang JC, Jackson-Thompson J, Brownson RC. Trends in cancer incidence and mortality in Missouri. Missouri Medicine 1998; 95(11): 607-616.

10


23. *Dietz MJ, Simoes EJ, Waterman B, Jackson-Thompson J, Murayi T. Prevalence changes in modifiable cardiovascular disease risk factors in three Missouri regions, 1990-1996. Missouri Medicine 1998; 95(12): 654-662.

24. Yang S, Leff MG, McTague D, Horvath KA, Jackson-Thompson J, Murayi T, Boeselager GK, Melnik TA, Gildemaster MC, Ridings David L, Altekruse SF, Angulo FJ. Multistate surveillance for food-handling, preparation and consumption behaviors associated with foodborne diseases: 1995 and 1996 BRFSS food-safety questions. Morbidity and Mortality Weekly Reports 1994; 47(SS-4): 33-57.

25. Brownson RC, Mayer JP, Dusseault PM, Dabney S, Wright KS, Jackson-Thompson J, Malone BR, Goodman RM. Developing and evaluating a cardiovascular risk reduction project. American Journal of Health Behavior 1997; 21(5): 333-344.

26. Brownson RC, Smith CA, Pratt M, Mack NE, Jackson-Thompson J, Dean CG, Dabney S, Wilkerson JC. Preventing cardiovascular disease through community-based risk reduction: the Bootheel Heart Health Project. American Journal of Public Health 1996; 86: 206-213.

27. Brownson RC, Jackson-Thompson J, Wilkerson JC, Kiani F. Reliability of information on chronic disease risk factors collected in the Missouri Behavioral Risk Factor Surveillance System. Epidemiology 1994; 5: 545-549.

28. Flood TJ, Contreras J, Jackson-Thompson J et al. Prevalence of Arthritis – Arizona, Missouri, and Ohio, 1991 – 1992. Morbidity and Mortality Weekly Reports 1994; 43(17): 305-309.

29. Brownson RC, Wilkerson JC, Jackson-Thompson J, Davis JR, Sharp DJ, Northup KM. Trends and projections in selected chronic disease risk factors in Missouri, 1986-2000. Missouri Medicine 1993; 90:17-20.

30. Sharp DJ, Brownson RC, Sosin DM, Davis JR, Wilkerson JC, Jackson-Thompson J, Davis JR, Smith CA. Patterns of obesity in Missouri. Missouri Medicine 1993; 90(3):119-122.

31. Sharp DJ, Brownson RC, Wilkerson JC, Jackson-Thompson J, Cooperstock L. Exposure to environmental tobacco smoke among Missouri children. Missouri Medicine 1993; 90: 701-704.

32. Weaver AY, Brownson RC, Wilkerson JC, Akinbola PO, Jackson-Thompson J. Racial differences in the prevalence of cardiovascular risk factors among persons with diabetes. Missouri Medicine 1993; 90: 751-754.

33. Brownson RC, Jackson-Thompson J, Wilkerson JC, Fisher EB Jr., Davis JR. Demographic and socioeconomic differences in beliefs about the health effects of smoking. American Journal of Public Health 1992; 82:99-103.

34. Arfken CL, Fisher EB Jr., Heins J, Brownson RC, Smith C, Wilkerson JC, Jackson-Thompson J. Increased cholesterol awareness in Missouri: Urban and rural areas, 1988-1991. Morbidity and Mortality Weekly Report 1992; 89: 42-45.

35. Fisher EB Jr., Auslander W, Sussman L, Owens N, Jackson-Thompson J. Community organization and health promotion in minority neighborhoods. Ethnicity and Disease 1992; 2: 252-272.

36. Brownson RC, Chang JC, Davis JR, Wilkerson JC, Jackson-Thompson J. Breast cancer in Missouri: Staging, survival and mammography screening patterns. Missouri Medicine 1990; 87: 753-756.

37. Favazza AR, Jackson-Thompson J. Social networks of alcoholics: some early findings. Alcoholism: Clinical and Experimental Research 1984; 8(1):9-15.

PUBLICATIONS (Proceedings of Invited Conferences/Workshops) 1. Chang JC, Simoes EJ, Jackson-Thompson J, Malone BR. Time trends of prostate cancer in

Missouri, United States. Proceedings of the 17th International Cancer Conference, Rio de Janeiro, Brazil, August 1998.

2. Jackson-Thompson J, Ewigman B, Kruse R. Monitoring access to health care at the community level. In: Proceedings of the 1995 Public Health Conference on Records and Statistics. Hyattsville, MD: US Dept. of Health and Human Services (DHSS), National Center for Health Statistics. DHSS Pub. No. (PHS) 96-1214:290-295.

11


3. Jackson-Thompson J, Hagan R, Wilkerson JC, Davis JR, Brownson RC, Fisher EB Jr. From basic BRFSS to special surveys: The collection, analysis and use of state, area and local data. In: Proceedings of the 1991 Public Health Conference on Records and Statistics. Hyattsville, MD: US Dept. of Health and Human Services (DHSS), National Center for Health Statistics, DHHS Publication No. (PHS) 92-1214:337-342.

4. Fisher EB Jr., Auslander W, Sussman L, Owens N, Jackson-Thompson J. Community organization and health promotion in minority neighborhoods. In: Proceedings of the NHLBI Workshop on Health Behavior Research in Minority Populations: Access, design and implementation. Bethesda, MD: US Department of Health and Human Services, Public Health Service, National Institutes of Health, NIH Publication No. 92-2965:53-69.

5. Shumaker SA, Jackson-Thompson J, Doak L, Fisher EB Jr., Frate DA et al. Survey measurement with minority populations. In: Proceedings of the NHLBI Workshop on Health Behavior Research in Minority Populations: Access, design and implementation. Bethesda, MD: US Department of Health and Human Services, Public Health Service, National Institutes of Health, NIH Publication No. 92-2965:194-206.

PUBLICATIONS (Book Chapters) Favazza AR, Jackson-Thompson J. A psychological network approach to alcoholism. In: Advances in

the Psychosocial Treatment of Alcoholism, Marc Galanter and E. Mansell Pattison (eds). Publication of the American Medical Association, 1984:46-55.

PUBLICATIONS (Other) 1. NAACCR Death Clearance Issues Work Group (includes Jackson-Thompson J, member). Death

Clearance Manual. Manuscript submitted, undergoing final revisions (June 2014). 2. Jackson-Thompson J. “NAACCR 2013 Student Award Winners” The NAACCR Narrative,

Summer 2013: 16-17. 3. Jackson-Thompson J. “The DURC Student Award Program” The NAACCR Narrative, Fall 2012:

8-9. 4. Jackson-Thompson J. “Looking Backward, Looking Forward: Reflections and Projections from a

NAACCR Committee Chair” The NAACCR Narrative, Fall 2012: 18-19. 5. Jackson-Thompson J, Rold N, Lee B. “NAACCR Fellowship Program” The NAACCR Narrative,

Fall 2011: 9-10. 6. Jackson-Thompson J. One Member’s Opinion in Response to “Registry Certification: To

Trademark™ or Not to Trademark ™” The NAACCR Narrative, Fall 2002. 7. Schootman M, Simoes EJ, Jackson-Thompson J. Women’s Health Report No. 1 - Cancer Deaths

among Missouri Women: Past, present and future. Jefferson City, MO: Missouri Department of Health, Office of Surveillance, Research and Evaluation, 2000.

8. Simoes EJ, Holt B, Miller N (authors); Jackson-Thompson J (one of seven contributors). Chronic Disease Report. Jefferson City, MO: Missouri Department of Health, Division of Chronic Disease Prevention and Health Promotion, 2000.

9. Simoes EJ, *Robling AG, Miller N, Chang JC, Jackson-Thompson J. Chronic Disease Data for Decision-making and Planning. Volume 1: Incidence and mortality trends and projections. Columbia, MO: Missouri Department of Health, Division of Chronic Disease Prevention and Health Promotion, Office of Surveillance, Research and Evaluation, 1999.

10. Jackson-Thompson J, Davis JR, Roberts D. Missouri Cancer Inquiry Protocol. Columbia, MO: Missouri Department of Health, 1990.

11. Jackson-Thompson J. Radon and lung cancer. Bulletin of the Missouri Cancer Registry, September 1988.

12. Jackson-Thompson J. Stomach cancer. Bulletin of the Missouri Cancer Registry, July 1988. 13. Jackson-Thompson J. Alcoholics and Their Social Networks. PhD Dissertation, University of

Missouri-Columbia, 1985.

12


PUBLICATIONS (Author, Steering Committee Member and Publications Committee Member for Colorectal Cancer Monograph Project) The Colorectal Cancer Monograph Project was conceived by a group of researchers in late 2003. Led by CDC, a 12-member Steering Committee was formed to provide guidance to authors and to the five-member Publications Committee. The Publications Committee reviewed articles and sent their comments along with the authors’ responses and the hardcopy articles to the journal Cancer. The Cancer editorial office accepted the reviews of the colorectal cancer Publication Committee and did not perform additional peer review. Eleven articles and a Foreword appear as a supplement, titled Descriptive Epidemiology of Colorectal Cancer in the United States, 1998-2001, Utilizing Data from the NPCR and SEER Programs, to the journal Cancer (Cancer 2006 (Sept 1); 107 (5 Supplement): 1103 - 1204. 1. Reed E, Ahmed F, Jackson-Thompson J, Friedman C, German R, Lai S, Wingo P. Foreword:

Promoting the use of registry-based national cancer surveillance data for colorectal cancer prevention and control. Cancer 2006 (Sept 1); 107(5 Supplement):1101-1102. Published online 12 July 2006 in Wiley InterScience (http://www.interscience.wiley.com).

2. Jackson-Thompson J, Ahmed F, German R, Lai S, Friedman C. Descriptive epidemiology of colorectal cancer in the United States, 1998-2001. Cancer 2006 (Sept 1); 107(5 Supplement):1103-1111

3. Matanoski G, Tao X, Almon L, Adade AA, Davies-Cole JO. Demographics and tumor characteristics of colorectal cancers in the United States, 1998-2001. Cancer 2006 (Sept 1); 107(5 Supplement):1112-1120.

4. Wu X, Cokkinides V, Chen VW, Nadel M, Ren Y, Martin J, Ellison GL. Associations of subsite-specific colorectal cancer incidence rates and stage of disease at diagnosis with county-level poverty, by race and sex. Cancer 2006 (Sept 1); 107(5 Supplement):1121-1127.

5. Stewart SL, Wike JM, Kato I, Lewis DR, Michaud F. A population-based study of colorectal cancer histology in the United States, 1998-2001. Cancer 2006 (Sept 1); 107(5 Supplement):1128-1141.

6. Cress RD, Morris C, Ellison GL, Goodman MT. Secular changes in colorectal cancer incidence by subsite, stage at diagnosis, and race/ethnicity, 1992-2001. Cancer 2006 (Sept 1); 107(5 Supplement):1142-1152.

7. Fairley TL, Cardinez CJ, Martin J, Alley L, Friedman C, Edwards B, Jamison P. Colorectal Cancer in U.S. adults younger than 50 years of age, 1998 – 2001. Cancer 2006 (Sept 1); 107(5 Supplement):1153-1161.

8. Ahmed F, Goodman MT, Kosary C, Ruiz B, Wu X, Chen VW, Correa CN. Excess risk of subsequent primary cancers among colorectal carcinoma survivors, 1975-2001. Cancer 2006 (Sept 1);107(5 Supplement):1162-1171.

9. Lai S-M, Zhang KB, Uhler RJ, Harrison JN, Clutter GG, Williams MA. Geographic variation in the incidence of colorectal cancer in the United States, 1998-2001. Cancer 2006 (Sept 1); 107(5 Supplement):1172-1180.

10. Coughlin SS, Richards TB, Thompson T, Miller BA, VanEenwyk J, Goodman MT, Sherman RL. Rural/nonrural differences in colorectal cancer incidence in the United States, 1998-2001. Cancer 2006 (Sept 1); 107(5 Supplement):1181-1188.

11. Parikh-Patel A, Bates JH, Campleman S. Colorectal cancer stage at diagnosis by socioeconomic and urban/rural status in California, 1988-2000. Cancer 2006 (Sept 1); 107(5 Supplement):1189-1195.

12. Coughlin SS, Costanza ME, Fernandez ME, Glanz K, Lee JW, Smith SA, Stroud L, Tessaro I, Westfall JM, Weissfeld JL, Blumenthal DS. CDC-funded intervention research aimed at promoting colorectal cancer screening communities. Cancer 2006 (Sept 1); 107(5 Supplement):1196-1204.

13


PUBLICATIONS (General Editor, Monograph Series dealing with the burden of chronic diseases among minorities (primarily African Americans) in Missouri)

1. *Dietz M, Simoes EJ. Monograph No. 4 - Racial/ethnic differences in the prevalence of modifiable cardiovascular disease risk factors in three regions of Missouri, 1996. Columbia, MO: Missouri Department of Health, Office of Surveillance, Research, and Evaluation, 2000.

2. *Dietz M, Simoes EJ, Waterman B. Monograph No. 3 - Changes in modifiable cardiovascular disease risk factors among African Americans in the City of St. Louis, Kansas City and the Bootheel region of Missouri, 1990-1996. Columbia, MO: Missouri Department of Health, Office of Surveillance, Research and Evaluation, 1999.

3. *Vradenburg, JA. Monograph No. 2 – Prevalence of Arthritis and Activity Limitations among African Americans in the City of St. Louis, Kansas City and the Bootheel region of Missouri. Columbia, MO: Missouri Department of Health, Office of Surveillance, Research and Evaluation, 1998.

4. Missouri Department of Health. Monograph No. 1 - Prevalence of diabetes among African Americans in the City of St. Louis, Kansas City and the Bootheel region of Missouri. Columbia, MO: Missouri Department of Health, Office of Surveillance, Research and Evaluation, 1997.

PUBLICATIONS (Instructional Materials) 1. Jackson-Thompson J, Lanham GB, Greeley HP. Patient Care Evaluation for Respiratory

Therapy. Chicago, IL: InterQual, 1978. 2. Jacobs CM, Jackson-Thompson J, Weagley S. PAT (physician-administrator-trustee)

Conference Manual. Chicago, IL: InterQual, 1978. 3. Lamprey J, Jackson-Thompson J. Concurrent Utilization Review. Chicago, IL: InterQual, 1978. 4. Lamprey J, Jackson-Thompson J, et al. Intensification Criteria for Concurrent Utilization

Review. Chicago, IL: InterQual, 1978. 5. Lanham GB and Jackson-Thompson J. Antibiotic Use Review and Infection Control. Chicago,

IL: InterQual, 1978. 6. Lamprey J, Pfeffer L, Jackson-Thompson J. Patient Care Evaluation Manual for Social

Workers. Chicago, IL: InterQual, 1977. 7. Greeley HP and Jackson-Thompson J (eds). Patient Care Audit Seminar Materials. Chicago, IL:

InterQual, 1977. 8. Jackson-Thompson J, Selby LA. Zoonoses - a slide/tape instructional program created and

narrated by J. Jackson-Thompson. Columbia, MO: University of Missouri-Columbia College of Veterinary Medicine, 1977.

9. Jackson-Thompson J, Selby LA, Hacker DV. “Zoonoses of Pet Animals,” “Milk Pasteurization,” “Humane Slaughter,” “Ante-Mortem Inspection” and “Post-Mortem Inspection” – Series of instructional materials produced for the University of Missouri-Columbia College of Veterinary Medicine, 1976 - 1977.

Note: Presentations where name is preceded by * denotes author was a student. Presentations were name is preceded by ** indicates author was a CDC Public Health Prevention Specialist assigned to Missouri under Dr. Jackson-Thompson’s supervision. PRESENTATIONS (Oral, Refereed Abstracts) 1. Jackson-Thompson J, Headd A, Schmaltz C. Using electronic health records (EHRs) to enhance

registration and improve cancer surveillance. Annual Meeting of the International Association of Cancer Registries, Ottawa, Ontario, Canada: 26 - 28 June 2014.

2. Zachary I, Jackson-Thompson J. Challenges and Opportunities for Cancer Registries with Meaningful Use Stages 2 and 3. Annual Meeting of the North American Association of Central Cancer Registries, Ottawa, Ontario, Canada: 21 – 26 June 2014.

14


3. Schmaltz C, Jackson-Thompson J, Headd A. Use of Clinic/Physician Office (CPO) electronic health records (EHRs) to Improve Cancer Surveillance Quality, Reduce Costs and Advance ePublic Health. 2014 Public Health Informatics Conference, Atlanta, GA: 29 April – 1 May 2014.

4. Jackson-Thompson J, Headd A, Zachary I, Cole N. Thinking globally while acting and innovating locally: Achieving meaningful use stage 2 by reporting cancer from electronic health records to a central cancer registry. Annual Meeting of the American Public Health Association, Boston, MA: 2 - 7 November 2013. (Round-table presenter and moderator)

5. Jackson-Thompson J, Zachary I, Yemane S. Think global, act locally and globally: Planning to partner for cancer control through population-based cancer registries. Annual Meeting of the American Public Health Association, Boston, MA: 2 - 7 November 2013.

6. Jackson-Thompson J, Boren S, *Pena-Hernandez K. Development of a Breast Cancer Clinical Dashboard to Ensure Population Health of Missouri Medically Underinsured Women. Annual Meeting of the American Public Health Association, Boston, MA: 2 - 7 November 2013.

7. Headd A, Jackson-Thompson J, Zachary I, Cole N. Achieving increased cancer reporting from clinicians to public health: A local success with global implications. Annual Meeting of the American Public Health Association, Boston, MA: 2 - 7 November 2013.

8. Zachary I, Jackson-Thompson J, Simoes EJ, Yemane S. Think Globally, Act Locally: How central cancer registries can be a resource for other disease registries and surveillance activities. Annual Meeting of the American Public Health Association, Boston, MA: 2 - 7 November 2013.

9. Headd A, Jackson-Thompson J. Enhancing cancer registries for comparative effectiveness research Project # 3 (From EHRs to MCR) – preliminary findings. CDC Technical Assistance Reverse Site Visit (TARSV), Atlanta, GA: 21 – 23 August 2013.

10. Jackson-Thompson J. Data sharing between public health and clinical care: A possible solution to close the gap to completeness. Annual Meeting of the North American Association of Central Cancer Registries, Austin, TX, 8-14 June 2013.

11. Headd A, Jackson-Thompson J. Enhancing cancer registries for comparative effectiveness research Project # 3 (From EHRs to MCR) – preliminary findings. Annual Meeting of the North American Association of Central Cancer Registries, Austin, TX, 8-14 June 2013.

12. Jackson-Thompson J, *Zachary I. Preparing for technology-induced organizational changes: Assessing and adapting to the impact of EHRs. HIIT Section session on Facilitating Data Sharing between Public Health and Clinical Care at the Annual Meeting of the American Public Health Association, San Francisco, CA: 27 October – 1 November 2012.

13. Harris M, *Zachary I, Jackson-Thompson J. Preparing the information technology infrastructure for secure use of electronic health records (EHRs) and protected health information (PHI). HIIT Section session on Facilitating Data Sharing between Public Health and Clinical Care at the Annual Meeting of the American Public Health Association, San Francisco, CA: 27 October – 1 November 2012.

14. Headd A, Jackson-Thompson J, *Zachary I. Innovations in information technology: Achieving increase cancer reporting through use of electronic health records. ). HIIT Section session on Facilitating Data Sharing between Public Health and Clinical Care at the Annual Meeting of the American Public Health Association, San Francisco, CA: 27 October – 1 November 2012.

15. *Zachary I, Cole N, Jackson-Thompson J, Headd A. Innovations in information technology: Storing, integrating and using EHR data. HIIT Section session on Facilitating Data Sharing between Public Health and Clinical Care at the Annual Meeting of the American Public Health Association, San Francisco, CA: 27 October – 1 November 2012.

16. Jackson-Thompson J. A new approach: Using electronic health records to capture unreported cases and missing data. Annual Meeting of the North American Association of Central Cancer Registries, Portland, OR: 5 – 7 June 2012.

17. Jackson-Thompson J, *Schmaltz C, Culter S. Using information technology to improve the quality and completeness of cancer incidence data. Annual Meeting of the American Public Health Association, Washington, DC: 29 October – 2 November 2011.

15


18. *Zachary I, Jackson-Thompson J, Boren S, King MJ. How information technology can increase access and use of registry data. Annual Meeting of the American Public Health Association, Washington, DC: 29 October – 2 November 2011.

19. Cole N, *Zachary I, Jackson-Thompson J (presenter). Security isn’t just a central cancer registry issue: How one CCR helped reporting facilities improve security. Annual Meeting of the North American Association of Central Cancer Registries, Louisville, KY: 21 – 23 June 2011.

20. Jackson-Thompson J. Central Cancer Registries (CCRs): ARRA, eHealth and comparative effectiveness research (CER) in supporting achievement of public health goals. Annual Meeting of the American Public Health Association, Denver, CO: 6-10 November 2010.

21. *Zachary I, Jackson-Thompson J, Harris M. Security and the New HITECH ACT Regulations: Is your registry ready? Annual Meeting of the American Public Health Association, Denver, CO: 6-10 November 2010.

22. Jackson-Thompson J, Cole N, King MJ. Steps taken by a central cancer registry with limited resources to improve data security and maintain patient confidentiality. Annual Meeting of the North American Association of Central Cancer Registries, Quebec City, Quebec, Canada: 12-18 June 2010.

23. Jackson-Thompson J. Improving data security and maintaining patient confidentiality in a time of evolving information technology (IT) and limited resources. Annual Meeting of the American Public Health Association, Philadelphia, PA: 7-11 November 2009.

24. Jackson-Thompson J, Alafaireet P. How developing policies, procedures and a fee structure for accessing data increased registry efficiency and income. Annual Meeting of the North American Association of Central Cancer Registries, San Diego, CA: 15-18 June 2009.

25. Jackson-Thompson J, King MJ, Cole N, Alafaireet P. Visioning cancer surveillance in the coming decade. Annual Meeting of the North American Association of Central Cancer Registries, San Diego, CA: 15-18 June 2009.

26. Jackson-Thompson J, Culter S. Enrolling underserved women in research projects: Overcoming IRB culture to improve access. Annual Meeting of the American Public Health Association, San Diego, CA: 25-29 October 2008.

27. Jackson-Thompson J, Vest S, Cole N, Smith D. Innovations in training and education. Annual Meeting of the North American Association of Central Cancer Registries, Denver, CO: 7-12 June 2008.

28. Jackson-Thompson J, Culter S, Ellis C. Using a central registry for population-based research: Lessons we learned. Annual Meeting of the North American Association of Central Cancer Registries, Detroit, Michigan: 4-7 June 2007.

29. Lee B, Alafaireet P, Cole N, Vest S, Jackson-Thompson J. Help is on the way: Computer-based training (CBT) for non-registry hospitals. Annual Meeting of the North American Association of Central Cancer Registries, Detroit, Michigan: 4-7 June 2007.

30. Thoburn K, German R, Lewis M, Nichols J, Ahmed F, Jackson-Thompson J. Case completeness and data quality in the National Program of Cancer Registries (NPCR). Annual Meeting of the North American Association of Central Cancer Registries, Detroit, Michigan: 4-7 June 2007.

31. Cole N, Baral S, Seiffert J, Warsaw, IN. Jackson-Thompson J. Web-based physician reporting of melanoma in Missouri. Annual Meeting of the North American Association of Central Cancer Registries, Regina, Saskatchewan, Canada: 10-16 June 2006.

32. Jackson-Thompson J, Cole N, Ellis C, Smith D, Vest S, Yemane S, *Zachary I. Questions we wish we’d asked, Lessons we hope we’ve learned. Annual Meeting of the North American Association of Central Cancer Registries, Regina, Saskatchewan, Canada: 10-16 June 2006.

33. *White G, Vest S, Jackson-Thompson J. Process-control-based approach to ensuring quality control in data requests. Annual Meeting of the North American Association of Central Cancer Registries, Regina, Saskatchewan, Canada: 10-16 June 2006.

34. Jackson-Thompson J. How an academic/public health partnership can enhance evidence-based policy and practice. Annual Meeting of the American Public Health Association, Philadelphia, PA: 11-15 December 2005.

16


35. Jackson-Thompson J, Vest S. Recruitment and retention of tumor registrars: The Missouri experience. Annual Meeting of the North American Association of Central Cancer Registries, Boston, MA: 7-9 June 2005.

36. Jackson-Thompson J. Continuous Quality Improvement: Retroactive application of death clearance best practices. Annual Meeting of the North American Association of Central Cancer Registries, Salt Lake City, UT: 7-10 June 2004.

37. Cole N, Vest S, Jackson-Thompson J, Smith D, *Wasekar C, *Kalgi R. In the meantime…Interim solutions to automated data capture. Annual Meeting of the North American Association of Central Cancer Registries, Salt Lake City, UT, 7-10 June 2004.

38. Lee B, Vest S, Jackson-Thompson J, Cole N, Smith D. One-on-one for excellence. Annual Meeting of the North American Association of Central Cancer Registries, Salt Lake City, UT, 7-10 June 2004.

39. Jackson-Thompson J. What happens when the money dries up: How we completed a projected $1,000,000 BRFSS-based county-level survey on a shoestring. 21st Annual Behavioral Risk Factor Surveillance System (BRFSS) Conference, Scottsdale, AZ: 9-12 February 2004.

40. Jackson-Thompson J, King MJ, Land G. Data confidentiality v. data access: developing an interactive database. Annual Meeting of the North American Association of Central Cancer Registries, Honolulu, HI: 7-13 June 2003.

41. Jackson-Thompson J, Vest S, Schneider K, Malone BR. Evaluating and improving registry operations and data usage. Annual Meeting of the North American Association of Central Cancer Registries, Honolulu, HI: 7-13 June 2003.

42. Lee B, Vest S, Jackson-Thompson J, Cole N. If you are going to talk the talk, you’ve got to walk the walk. Annual Meeting of the North American Association of Central Cancer Registries, Honolulu, HI: 7-13 June 2003.

43. Vest S, Yemane S, Jackson-Thompson J, Cole N. Your (override) flag or mine? Annual Meeting of the North American Association of Central Cancer Registries, Honolulu, HI: 7-13 June 2003.

44. Deshpande A, Jackson-Thompson J, Malone BR. Creating broad appeal and value in a population-based baseline tobacco surveillance effort. Seventeenth National Conference on Chronic Disease Prevention and Control, St. Louis, MO: 19-21 February 2003.

45. Cole N, **Rosencrans L, Jackson-Thompson J, Vest S, Zachary I. Use of nursing home data in the death clearance process. Annual Meeting of the North American Association of Central Cancer Registries, Toronto, Ontario, Canada: 8-15 June 2002.

46. Jackson-Thompson J, Malone BR, Balas EA. Evaluating and strengthening a public health/academic partnership: contractual integration of research, police and practice. Sixteenth National Conference on Chronic Disease Prevention and Control, Atlanta, GA: 27 February - 1 March 2002.

47. Jackson-Thompson J, Gilmore S, Simoes EJ, Schootman M. Furthering the vision of Missouri women living healthier, living longer and developing their full potential. Fifteenth National Conference on Chronic Disease Prevention and Control, Washington, DC, 29 November - 1 December 2000.

48. Jackson-Thompson J, Simoes ES, *Vradenburg JA, Lock A, Murayi T, Akinbola P. Communicating the Individual, Social, and Economic Burden of Chronic Diseases among African Americans. 14th National Conference on Chronic Disease Prevention and Control: Prevention Successes 2000: Better Health for All, Dallas, Texas. 30 November – 2 December 1999.

49. Zachary I, Jackson-Thompson J, Vest S, Mazziotti G, Yemane S. Moving towards the 21st century: A central registry Strives For quality. Annual Meeting of the North American Association of Central Cancer Registries, Chicago, IL: 5-9 April 1999.

50. Jackson-Thompson J, Reisenleiter M, Simoes EJ, Chang JC. Collaboration and constituency building: a central cancer registry forges relationships for the 21st century. Annual Meeting of the North American Association of Central Cancer Registries, Vancouver, British Columbia, Canada: 19-25 April 1998.

17


51. Jackson-Thompson J, Simoes EJ, Reisenleiter M. Partners for progress: a central cancer registry forges relationships for 21st century goals and needs. Roundtable presentation and discussion, 12th National Conference on Chronic Disease Prevention and Control, Washington, DC: 3-5 December 1997.

52. Jackson-Thompson J, Murayi T, Ronald J, Brownson RC. Tracking arthritis: Obtaining information through the BRFSS. Ninth National Conference on Chronic Disease Prevention and Control, Washington, DC: December 1994.

53. Jackson-Thompson J, Murayi T, Kruse J. Health care in a community: Assessing needs and removing barriers: Evaluating the present, planning for the future. Annual Meeting of the American Public Health Association, Washington, DC: November 1994.

54. Jackson-Thompson J, Donnell HD, Brown TA et al. Disaster Epidemiology: Risk factors in flood-related morbidity and mortality: Missourians need to be shown the danger. Annual Meeting of the American Public Health Association, Washington, DC: November 2004.

55. Jackson-Thompson J, Akinbola PO, Kiani F. Characteristics of Missouri’s older adults: Using BRFSS and special survey data to identify intra- and inter-group differences in African American and white respondents 65 years of age and older. Tenth Annual BRFSS Conference, Atlanta, GA: June 1993.

56. Jackson-Thompson J, Hagan RA, Wilkerson J, Davis JA, Brownson RC. Using data-driven planning to build healthier communities: Missouri’s Breast and Cervical Cancer Screening Program.” Annual Meeting of the American Public Health Association, Washington, DC: November 1992.

57. Jackson-Thompson J, Hagan RA, Brownson RC, Fisher EF, Jr., Smith C. Uniting for healthier communities: cooperative efforts in two intervention projects using data-driven planning. Annual Meeting of the American Public Health Association, Washington, DC: November 1992.

58. Jackson-Thompson J. The challenge of measuring Year 2000 objectives: Enhancing the BRFSS to assess special populations or special state concerns. Ninth Annual BRFSS Conference, Atlanta, GA: June 1992.

59. Jackson-Thompson J, Hagan RA, Wilkerson J. Collecting and using additional data on mammography: Men’s knowledge is important, too! Eighth Annual BRFSS Conference, Atlanta, GA: 12-14 June 1991.

60. Jackson-Thompson J, Hagan RA, Kellogg KW, Craw R. Accepting the Challenge of Healthy People 2000: A Regional Approach to Obtaining Subpopulation Data. Sixth National Conference on Chronic Disease Control. Washington, DC: 22-24 October 1991.

61. Jackson-Thompson J, Davis JR, Roberts D, and Carlson G. Cancer clusters and environmental Issues: Perceptions v. realities. Annual Meeting of the American Public Health Association, New York City, NY: 10 September – 4 October 1990.

62. Jackson-Thompson J, Wilkerson J. “From Basic BRFSS to Special Surveys: Adapting a state-operated CATI system to meet local needs.” Seventh Annual Conference, Atlanta, GA: 27-29 June 1990.

63. Jackson-Thompson J and Cohen J. Growing pains: The ongoing evolution of a worksite wellness program. First National Conference on Cholesterol. Washington, DC: 9-11 November 1988.

64. Jackson-Thompson J. Quality through cooperation: The formation of the Missouri Cholesterol Coalition (roundtable discussion). Region VII Cardiovascular Risk Reduction Conference, Omaha, NE: 26-28 April 1988.

65. Jackson-Thompson J, Meyers CB. Growing pains: The evolution of a worksite wellness program. Region VII Cardiovascular Risk Reduction Conference, Omaha NE: 26-28 April 1988.

66. Jackson-Thompson J. Missouri’s Worksite Wellness Program. National Heart, Lung, and Blood Institute Workshop: From a Programmatic and Product Perspective. Washington, DC: 28-30 September 1987.

67. Jackson-Thompson J, Favazza AR. The social network of alcoholics. Symposium on Medical Anthropology, Edinburgh, Scotland: April 1981.

18


68. Jackson-Thompson J. Linguistic deviations among disadvantaged youth. Annual Meeting of the Southern Anthropological Society, New Orleans, LA: April 1969.

PRESENTATIONS (Oral, Invited) 1. Jackson-

Thompson J, Schmaltz C. (Central Registry) Recipe for Success: We couldn’t do it without YOU! MOKA (Missouri-Oklahoma-Kansas-Arkansas) Regional Tumor Registrars Meeting. Branson, MO: 26 September 2014.

2. Jackson-Thompson J, Schmaltz C. (Central Registry) Recipe for Success: We couldn’t do it without YOU! Missouri Department of Health & Senior Services Chronic Disease Staff Meeting.. Jefferson City, MO: 10 September 2014.

3. Jackson-Thompson J. Introduction to Informatics – Focus: Focus: Public Health Informatics. HMI7410, Dept. of Health Management & Informatics/University of Missouri School of Medicine. Columbia, MO: 7 March 2014.

4. Jackson-Thompson J, Headd A., Schmaltz C. Meaningful Use stage 2 – cancer reporting: What it means in Missouri. Missouri State Tumor Registrars Association Annual Meeting. Springfield, MO: 9 October 2013.

5. Jackson-Thompson J. Introduction to Informatics: Medical and health informatics. MU Informatics Institute Symposium. Columbia, MO: 9 April 2013.

6. Jackson-Thompson J, *Zachary I. Preparing cancer registries for “Big Data”: Innovations in information technology: Storing, integrating and using EHR data. MU Informatics Institute Symposium. Columbia, MO: 22 October 2012.

7. Jackson-Thompson J. NAACCR and MCR-ARC: Opportunities for research, round 2 (HIIT section, APHA). HMI Research Session. Dept. of Health Management & Informatics/University of Missouri. Columbia, MO: 19 September 2012.

8. Jackson-Thompson J. Our financial future: Working together for better outcomes. Missouri State Tumor Registrars Association Annual Meeting. Cape Girardeau, MO: 13 September 2012.

9. Jackson-Thompson J, Schmaltz C. Missouri Cancer Registry and Research Center (MCR-ARC): Improving data quality and completeness through patient abstract system (PAS) linkage. NAACCR Webinar on Hospital Discharge Data: 10 September 2012.

10. Jackson-Thompson J. NAACCR and MCR-ARC: Opportunities for research. HMI Research Session. Dept. of Health Management & Informatics/University of Missouri. Columbia, MO: 15 June 2012.

11. King MJ, Zachary I, Jackson-Thompson J. Using Missouri Central Registry Data. Missouri Tumor Registrars Annual Meeting. Overland Park, KS: 11-14 October 2011.

12. Jackson-Thompson J. From EHRs to MCR: Implementing Electronic Physician Office/Clinic Reporting in a Central Cancer Registry (CCR). CDC Public Health Informatics Conference. Atlanta, GA: 21-24 August 2011.

13. Jackson-Thompson J, Culter S, *Schmaltz C. Enhancing Cancer Registries for Comparative Effectiveness Research Project # 3: From EHRs to MCR: Implementing Electronic Physician Office/Clinic Reporting. CDC-NPCR Program Directors Meeting. Atlanta, GA: 5-8 April 2011.

14. Jackson-Thompson J. Data Usage and New Projects. Missouri State Tumor Registrars Association Annual Meeting. Lake Ozark, MO, 24 September 2010.

15. Jackson-Thompson J. Cancer incidence data in Missouri: What is available on MCR’s website? Quarterly Cancer Inquiry Meeting, Jefferson City, MO, 2 September 2010.

19


16. Jackson-Thompson J. Cancer data at the county level: Making data accessible and understandable. Missouri Cancer Consortium Quarterly Meeting, Columbia, MO, 22 July 2010.

17. Jackson-Thompson J. The Missouri Cancer Registry: Physician Impact and Opportunities. Colwill Seminar, University of Missouri School of Medicine, 20 January 2010.

18. Jackson-Thompson J. The Missouri Cancer Registry: An Overview. Presentation to epidemiology students, Master of Public Health Program, School of Allied Health Professions, University of Missouri-Columbia, 20 October 2009.

19. Jackson-Thompson J., Cole N. The Road to VA Data: Patience, persistence and penalties. 2009 National Program of Cancer Registries Program Directors’ Meeting, Atlanta, GA: 15-17 April 2009.

20. Jackson-Thompson J., Cole N. The Road to VA Data: Patience, persistence and penalties. 2009 National Program of Cancer Registries Program Directors’ Meeting, Atlanta, GA: 15-17 April 2009.

21. Jackson-Thompson J., Cole N. Data Security: Central registry perspective. 2009 National Program of Cancer Registries Program Directors’ Meeting, Atlanta, GA: 15-17 April 2009.

22. Jackson-Thompson J. Operating a central cancer registry in an era of changing health care delivery and technology. Presentation at the University of Kansas Medical Center/School of Medicine, Kansas City, KS, 4 March 2009.

23. Jackson-Thompson J. Operating a central cancer registry in an era of changing health care delivery and technology: An overview. Presentation to the Lawson Rotary Club, Lawson, MO: 14 October 2008.

24. Jackson-Thompson J. Operating a central cancer registry in an era of changing health care delivery and technology. Presentation to the Mid-Missouri Health Information Management Association, Osage Beach, MO: 10 October 2008.

25. Jackson-Thompson J. Secrets of a successful software switch (and database conversion). Registry Plus Users’ Group (RPUG) Meeting held in conjunction with the Annual Meeting of the North American Association of Central Cancer Registries, Denver, CO: 4-7 June 2008.

26. Jackson-Thompson J. Strategic Planning and Non-hospital Reporting: Lessons learned by the Missouri Cancer Registry. Louisiana Tumor Registry, New Orleans, LA: 21 May 2008.

27. Jackson-Thompson J. Overview of the Missouri Cancer Registry: Data quality, complexity and application to public health and research. Friday Forum presentation, MU Department of Health Management & Informatics, Columbia, MO: 7 March 2008.

28. Jackson-Thompson J. Aging and Ageism in healthcare and rehab. One of four invited panelists for Hickman High School’s Speak Your Mind Forum, Columbia, MO: 3 October 2007.

29. Jackson-Thompson J. You can dress yourself, walk down the hall and climb half a flight of stairs – you don’t need rehab: Ageism in health care and rehab. Works in Progress session sponsored by the Center for Health Ethics, University of Missouri-Columbia, Columbia, MO: 4 October 2007.

30. Jackson-Thompson J. Workforce recruitment and retention. Invited speaker and faculty member, post-conference workshop on recruitment and retention of cancer registry staff. Annual Meeting of the North American Association of Central Cancer Registries, Detroit, Michigan: 8 June 2007.

31. Jackson-Thompson J. Developing and using computer-based training modules. 2007 National Program of Cancer Registries Program Directors’ Meeting, Atlanta, GA: 15-17 May 2007.

32. Jackson-Thompson J. Creating a Career Track for Cancer Registrars. Invited Plenary Session speaker, 2007 National Cancer Registrars Annual Meeting. Las Vegas, NV: 22-25 April 2007.

33. Jackson-Thompson J. The Missouri Cancer Registry: A collaborative partnership between the Missouri Department of Health & Senior Services and the University of Missouri. Epidemiology Grand Rounds. Jefferson City, MO: 7 December 2006.

34. Jackson-Thompson J. "Neighborhood Effects on Quality of Life in Breast Cancer, Unexpected challenges involved in implementing an NCI-funded research project involving cancer patients." Works in Progress session sponsored by the Center for Health Ethics, University of Missouri-Columbia, Columbia, MO: 7 September 2006.

20


35. Jackson-Thompson J, Vest S. Creating career paths for registry staff. National Program of Cancer Registries Program Directors’ Meeting, Atlanta, GA: February 2006.

36. Jackson-Thompson J. Missouri Cancer Registry Challenges: Research, Technology and Terminology. MU School of Medicine Department of Health Management and Informatics, 426 Clark Hall: 4 October 2005.

37. Jackson-Thompson J. The BRFSS: Overview (past, present and future) and data usage. MU School of Medicine Department of Family and Community Medicine Robert Wood Johnson Grant, St. Louis, MO: 9 September 2005.

38. Jackson-Thompson J. The Missouri Cancer Registry: Overview and data usage. MU School of Medicine Department of Family and Community Medicine Robert Wood Johnson Grant, St. Louis, MO: 9 September 2005.

39. Jackson-Thompson J. Overview of the Missouri Cancer Registry. Siteman Cancer Center, Washington University School of Medicine, St. Louis, MO: 5 June 2005.

40. Jackson-Thompson J, King MJ. Missouri Department of Health and Senior Services’ Cancer Inquiry Program: a systematic response to citizen reports of possible excesses of cancer. Response to Cancer Clusters with Suspected Environmental Etiology: State and Federal Capacity Building Workshops sponsored by the National Center for Environmental Health, Centers for Disease Control and Prevention (CDC), Atlanta, GA: 11-12 March 2003.

41. Jackson-Thompson J. The road to recognition for a central cancer registry: How a public health agency/academic partnership led to increased funding, national certification and research opportunities. MU School of Medicine Department of Health Management and Informatics, 426 Clark Hall: 10 December 2002.

42. Jackson-Thompson J. CDC Behavioral Risk Factor Surveillance System (BRFSS) and QOL Measures. National Workshop on Measurement of Quality of Life (QOL), Arlington, VA: 19-20 April 1999.

43. Jackson-Thompson J. Behavioral Risk Factor Surveillance System (BRFSS) Basics and the Missouri experience: Bringing behavioral risk assessment to the regional and local level. Co-Presenter: Gordon Brown (session on risk assessment in a managed care environment). 1996 Annual Meeting of the Association of University Programs in Health Administration (AUPHA), Atlanta, GA: 7-9 June 1996.

44. Jackson-Thompson J, Fisher EB, Jr. Reaching the Right Respondents: Developing and Implementing Telephone Survey Methodologies to Reach Minorities and Other Special Populations. NHLBI Workshop on Health Behavior Research in Minority Populations, Washington, DC: 17-19 July 1991.

PRESENTATIONS (Oral/ePoster, Refereed Abstracts) 1. Jackson-Thompson J. Reducing the burden of cancer: A central cancer registry uses strategic

planning, new partnerships and innovative ideas to meet needs. UICC World Cancer Congress. Montreal, Quebec, Canada: 27 – 30 August 2012.

2. *Zachary I. Using information technology to increase the application and use of cancer registry data. UICC World Cancer Congress. Montreal, Quebec, Canada: 27 – 30 August 2012.

PRESENTATIONS (Poster, Refereed Abstracts) 1. Jackson-Thompson J, Zachary I, Schmaltz C. Maintaining patient confidentiality while

constructing customizable public use data maps, graphs and tables. Annual Meeting of the International Association of Cancer Registries, Ottawa, Ontario, Canada: 26 - 28 June 2014.

2. Zachary I, Jackson-Thompson J. Increasing awareness of colorectal and rectal cancer in younger age groups is needed. Annual Meeting of the International Association of Cancer Registries, Ottawa, Ontario, Canada: 26 - 28 June 2014.

3. Rold N, Jackson-Thompson J, Schmaltz C. A Missouri model for batch audit quality assessment. Annual Meeting of the North American Association of Central Cancer Registries, Ottawa, Ontario, Canada: 21 – 26 June 2014.

21


4. Francis B, Rold N, Jackson-Thompson J. Use of Live Meeting to conduct interactive quality review of data from a multi-campus healthcare system. A Missouri model for batch audit quality assessment. Annual Meeting of the North American Association of Central Cancer Registries, Ottawa, Ontario, Canada: 21 – 26 June 2014.

5. Jackson-Thompson J, Schmaltz C. How special project #1 can improve Hispanic ethnicity data in the Missouri Cancer Registry database. Annual Meeting of the North American Association of Central Cancer Registries, Austin, TX: 8 – 14 June 2013.

6. Zachary I, Jackson-Thompson J, Boren S, Hicks L. Evaluating and addressing the needs for central cancer registry (CCR) data collection. Annual Meeting of the North American Association of Central Cancer Registries, Austin, TX: 8 – 14 June 2013.

7. Zachary I, Jackson-Thompson J, King MJ, Cole N. Capturing, storing, integrating and using electronic health record (EHR) data: A central cancer registry’s (CCR’s) experience. Annual Meeting of the North American Association of Central Cancer Registries, Austin, TX: 8 – 14 June 2013.

8. *Zachary I, Jackson-Thompson J, Boren S, Cole N. Public health surveillance and research: Evolution of the Cancer Registry Data Set. Annual Meeting of the North American Association of Central Cancer Registries, Portland, OR: 5 – 7 June 2012.

9. Cole N, Zachary I, Jackson-Thompson J, King MJ. Finding the path to becoming a survival cancer registry. Annual Meeting of the North American Association of Central Cancer Registries, Portland, OR: 5 – 7 June 2012.

10. *Williams F, Jackson-Thompson J, O’Brien D, Jeanette S, Barnett C. Spatial cluster analysis of female breast cancer diagnosis in Missouri: Using GIS and spatial cluster analysis. Annual Meeting of the North American Association of Central Cancer Registries, Portland, OR: 5 – 7 June 2012

11. Jackson-Thompson J, *Zachary I, *Pena-Hernandez K. Health Informatics and Public Health: Opportunities for promoting careers in public health. Annual Meeting of the American Public Health Association, Washington, DC: 29 October – 2 November 2011.

12. *Pena-Hernandez K, Boren SA, Jackson-Thompson J (presenter). Use of Geographic Information Systems (GIS) in Breast Cancer Health Disparities Research: A Systematic Review. Annual Meeting of the American Public Health Association, Washington, DC: 29 October – 2 November 2011.

13. *Zachary I, Jackson-Thompson J, King MJ, Cole N. Effective Information Management in Cancer Registries: Evaluating and Addressing the Needs for Cancer Research and Data Collection. American Medical Informatics Association 2011 Annual Symposium, Washington, DC: 22-26 October 2011.

14. Jackson-Thompson J, Culter S, *Schmaltz C. Improving a central cancer registry’s data quality and completeness: Preliminary results from two new projects. Annual Meeting of the North American Association of Central Cancer Registries. Louisville, KY: 21 – 23 June 2011.

15. Rold N, Smith D, Currence C, Jackson-Thompson J. Memory vs. Modules: A Training Success Story. . Annual Meeting of the North American Association of Central Cancer Registries, Louisville, KY: 21 – 23 June 2011.

16. Jackson-Thompson J, Culter S, *Schmaltz C, Liang L. From Surveillance to Research: A central cancer registry strives to improve participation in research projects while protecting human subjects. Annual Meeting of the North American Association of Central Cancer Registries, Quebec City, Quebec, Canada: 12-18 June 2010.

17. Jackson-Thompson J, Culter S, *Schmaltz C, Liang Y. How can we make it easier for women with cancer to participate in research while protecting human subjects? Annual Meeting of the American Public Health Association, Philadelphia, PA: 7-11 November 2009.

18. Jackson-Thompson J, *Zachary I. Is quality being sacrificed for quantity: Impact of an ever-increasing number of data elements on quality of cancer incidence data. Annual Meeting of the International Association of Cancer Registries, New Orleans, LA: 2-5 June 2009.

22


19. Jackson-Thompson J. Importance of APHA networking: How information received and contacts made at the 2007 annual meeting helped rescue a research study. Annual Meeting of the American Public Health Association, San Diego, CA: 25-29 October 2008.

20. Jackson-Thompson J. You can dress yourself, walk down the hall and climb half a flight of stairs – you don’t need rehab: Ageism in health care and rehab. Annual Meeting of the American Public Health Association, Washington, DC: 3-7 November 2007.

21. Jackson-Thompson J, German RR, Ahmed F, Lai S-M, Friedman C. Annual Meeting of the North American Association of Central Cancer Registries, Regina, Saskatchewan, Canada: 10-16 June 2006.

22. Vest S, Jackson-Thompson J, Cole N, Smith D. What’s the diff? – The use of 8000 v. 8010. Annual Meeting of the North American Association of Central Cancer Registries, Regina, Saskatchewan, Canada: 10-16 June 2006.

23. Jackson-Thompson J, *White G. Incorporating multiple evidence sources for the assessment of breast cancer policies and practices. Annual Meeting of the American Public Health Association, Philadelphia, PA: 11-15 December 2005.

24. Jackson-Thompson J. Expanding the use of surveillance data: The colorectal cancer monograph project, chapter 1. Annual Meeting of the North American Association of Central Cancer Registries, Boston, MA: 7-9 June 2005.

25. Cole N, Jackson-Thompson J, Vest S. Website ushers in new season of service and cost-containment. Annual Meeting of the North American Association of Central Cancer Registries. Boston, MA: 7-9 June 2005.

26. Thoburn KK, German RR, Lewis MB, Nichols PJ, Jackson-Thompson J. Case completeness and data quality in the National Program of Cancer Registries (NPCR). Annual Meeting of the North American Association of Central Cancer Registries, Boston, MA: 7-9 June 2005. [Poster received first place award for poster on registry operations.]

27. *Wasekar C, Jackson-Thompson J, Vest S. Abstract Plus: Lessons learned. Annual Meeting of the North American Association of Central Cancer Registries, Boston, MA: 7-9 June 2005.

28. *White G, Jackson-Thompson J, King M. Bayesian estimation of confidence intervals for NAACCR predicted age-adjusted incidence rates. Annual Meeting of the North American Association of Central Cancer Registries, Boston, MA: 7-9 June 2005.

29. *White G, Jackson-Thompson J, King M. The use of Bayesian estimation of county-level incidence rates and SIRS using Winbugs and Geobugs software. Annual Meeting of the North American Association of Central Cancer Registries, Boston, MA: 7-9 June 2005.

30. Vest S, Smith D, Currence L, Jackson-Thompson J. From our point of view. Annual Meeting of the North American Association of Central Cancer Registries, Salt Lake City, UT: 7-10 June 2004. [Poster received third place award for poster on registry operations.]

31. *Wasekar C, Jackson-Thompson J. ABC’s of the internet cancer registry. Annual Meeting of the North American Association of Central Cancer Registries, Salt Lake City, UT: 7-10 June 2004.

32. Zachary I, Cole N, Vest S, Jackson-Thompson J, Edison K, Weiner R, Greer E. Collected and applied data: Meeting shared interests. Annual Meeting of the North American Association of Central Cancer Registries, Salt Lake City, UT: 7-10 June 2004.

33. Jackson-Thompson J, Yun S, Chanetsa F. SMART BRFSS: Opportunities and challenges. 21st Annual Behavioral Risk Factor Surveillance System (BRFSS) Conference, Scottsdale, AZ: 9-12 February 2004.

34. **Rosencrans L, Jackson-Thompson J. Lung, breast and colorectal cancer rates by quartile, 1996 – 2000, Missouri. Annual GIS Conference, Jefferson City, MO: 12 July 2003.

35. Zachary I, Cole N, Jackson-Thompson J, Vest S. Working smarter, not harder. Annual Meeting of the North American Association of Central Cancer Registries, Honolulu, HI: 7-13 June 2003.

36. **Rosencrans L, Jackson-Thompson J. Women’s smoking (1999 – 2001) and lung cancer (1996 – 2000) rates in Missouri. Chronic Disease and Missouri Women Conference, Jefferson City, MO: 12 May 2003.

23


37. Jackson-Thompson J, King MJ. Screening practices and stage at diagnosis: factors contributing to cervical cancer mortality. Annual Meeting of the North American Association of Central Cancer Registries, Toronto, Ontario, Canada: 8-15 June 2002.

38. *Stamatakis KA, Simoes EJ, *Holt B, Jackson-Thompson J, Chang JC. Status of breast cancer and breast cancer control in Missouri. Thirteenth National Conference on Chronic Disease Prevention and Control, Atlanta, GA: 1998.

39. Jackson-Thompson J, Simoes EJ, Chang JC, *Dietz M, *Holt B, *Stamatakis KA, *Tillema A. Could ‘Communicating Public Health’ help lower colorectal cancer mortality in Missouri? 125th Annual Meeting of the American Public Health Association, Indianapolis, IN, 1997.

40. *Stamatakis KA, Jackson-Thompson J, *Vradenburg J, Simoes EJ, Murayi T. Representing the homeless: Results of a comprehensive countywide health care needs assessment survey. 125th Annual Meeting of the American Public Health Association, Indianapolis, IN: 1997.

41. Jackson-Thompson J, Simoes EJ, Chang JC,* Holt B. Trends in breast cancer incidence and mortality: opportunities for improvement. Twelfth National Conference on Chronic Disease Prevention and Control, Washington, D.C.: 3-5 December 1997.

42. Jackson-Thompson J, Akinbola P, Murayi T, Kiani F. Characteristics of Missouri’s older adults: Augmenting BRFSS data to identify differences in African-American and white populations. Eighth National Conference on Chronic Disease Prevention and Control, Kansas City, MO: November 1993.

PRESENTATIONS (Poster, Invited Presentations) 1. Jackson-Thompson J, *Schmaltz C. Enhancing Cancer Registries for Comparative Effectiveness

Research Special Project #1: Improve quality of race and ethnicity data. CDC-NPCR Program Directors Meeting. Atlanta, GA: 5-8 April 2011.

2. Jackson-Thompson J, *Schmaltz C. Enhancing Cancer Registries for Comparative Effectiveness Research Special Project #3: From EHRs to MCR: Implementing Physician Office/Clinic Reporting. CDC-NPCR Program Directors Meeting. Atlanta, GA: 5-8 April 2011.

3. Jackson-Thompson J. How to develop a business model and long-range plan: The Missouri Cancer Registry Experience. 2008 National Program of Cancer Registries Program Directors’ Meeting, Atlanta, GA: 13-15 May 2008.

4. Yun S, Jackson-Thompson J (presenter), Schootman M. Colorectal cancer in Missouri: Screening, incidence and mortality. 2007 National Program of Cancer Registries Program Directors’ Meeting, Atlanta, GA: 15-17 May 2007.

5. Schootman M, Jackson-Thompson J (presenter), Yun S. Trends in cancer disparities in Missouri. 2007 National Program of Cancer Registries Program Directors’ Meeting, Atlanta, GA: 15-17 May 2007.

RESEARCH SUPPORT Ongoing Research Support Missouri Central Cancer Registry Operations Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/NPCR) 6/30/13 – 6/29/14 Purpose of the contract: Provides ongoing support for the collection of cancer incidence data,

surveillance activities and registry operations to meet the goals and objectives of CDC’s National Program of Cancer Registries (NPCR).

Role: Principal Investigator Contract amount: $948,317 (Funding source: CDC FY 13 cooperative agreement with DHSS (U58/DP00394-02) Osteosarcoma Surveillance Study (Jackson-Thompson, J) RTI International 10/1/13 – 9/30/18

Primary objective of study: Identify newly diagnosed cases of osteosarcoma among men and women 40 years and older, starting 90 days after the first marketed use of Forteo™ and for at least

24


10 years afterward and determine incident osteosarcoma cases, if any, who have a history of Forteo™ treatment.

Secondary objective: Collect patient information, including demographics and data related to other risk factors for osteosarcoma.

Role: Principal Investigator Year 1 Contract amount: $38,589 Medullary Thyroid Carcinoma (MTC) Surveillance Study (Jackson-Thompson, J) United Biosource Corporation on behalf of Novo Nordisk Inc. 7/1/13 – 6/30/14 Purpose of the agreement: Establish a registry of incident cases of Medullary Thyroid Cancer (MTC) in

adults in order to characterize their medical histories and possible risk factors, including history of treatment with their drug VICTOZA (liraglutide).

Role: Principal Investigator Contract amount: $30,500 Completed Research Support Enhancing Cancer Registry Data for Comparative Effectiveness Research (Jackson-Thompson, J) ICF Macro 12/1/10 – 9/30/13 Purpose of the contract: improve the accuracy and completeness of race and ethnicity data collection

through innovative, yet practical, approaches that may be applied to central cancer registries funded by the Centers of Disease Control and Prevention.

Role: Principal Investigator Contract amount: $107,275 Enhancing Cancer Registry Data for Comparative Effectiveness Research (Jackson-Thompson, J) ICF Macro 12/1/10 – 9/30/13 Purpose of the contract: Implement electronic reporting, using the established standard, from primary

care physicians and targeted specialists to the MCR. Role: Principal Investigator Contract amount: $675,000 Osteosarcoma Surveillance Study (Jackson-Thompson, J) RTI International 3/01/10 – 9/30/13 Purpose: The primary objective of this study is to identify newly diagnosed cases of osteosarcoma

among men and women 40 years and older, starting 90 days after the first marketed use of Forteo™ and for at least 10 years afterward, and determine incident osteosarcoma cases, if any, who have a history of Forteo™ treatment. A secondary objective is to collect patient information, including demographics and data related to other risk factors for osteosarcoma.

Role: Principal Investigator Contract amount: $111,672 Health and Environment Exposure (HEER) Research Study (McElroy, J – American Cancer Society Memorandum of Understanding between HMI and MURR 7/25/11 – 7/24/13 Purpose: Identify eligible cases for a population-based case-control study focusing on endometrial

cancer and obtain informed consent. Role: Supervise MCR-ARC activities Contract amount: $30,762 Medullary Thyroid Carcinoma (MTC) Surveillance Study (Jackson-Thompson, J) United Biosource Corporation on behalf of Novo Nordisk Inc. 4/11/12 – 6/30/13 Purpose of the agreement: Establish a registry of incident cases of Medullary Thyroid Cancer (MTC) in

adults in order to characterize their medical histories and possible risk factors, including history of treatment with their drug VICTOZA (liraglutide).

Role: Principal Investigator Contract amount: $30,000 Community-based Participatory Research (CBPR) on Breast Cancer (Jackson-Thompson, J) Washington University in St. Louis 2/20/12 – 6/30/13 Purpose: Improve services to African-American women diagnosed with breast cancer and living in St.

25


Louis, MO Role: Principal Investigator Contract amount: $47,000 Exercise and Nutrition to Enhance Recovery and Good Health for You (Jackson-Thompson, J) Washington University in St. Louis 2/20/12 – 6/30/13 Purpose: Identify breast cancer survivors for a randomized controlled trial on weight loss among breast

cancer survivors. Osteosarcoma Surveillance Study (Jackson-Thompson, J) RTI International 3/01/10 – 9/30/13 Purpose: The primary objective of this study is to identify newly diagnosed cases of osteosarcoma

among men and women 40 years and older, starting 90 days after the first marketed use of Forteo™ and for at least 10 years afterward, and determine incident osteosarcoma cases, if any, who have a history of Forteo™ treatment. A secondary objective is to collect patient information, including demographics and data related to other risk factors for osteosarcoma.

Role: Principal Investigator Contract amount: $111,672 Missouri Central Cancer Registry Operations Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/NPCR) 6/30/12 – 6/29/13 Purpose of the contract: Provides ongoing support for the collection of cancer incidence data,


Role: Principal Investigator Contract amount: $948,317 (Funding source: CDC FY 12 cooperative agreement with DHSS (U58/DP00394-01) Missouri Central Cancer Registry Operations Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/NPCR) 6/30/11 – 6/29/12 Purpose of the contract: Provides ongoing support for the collection of cancer incidence data,


Role: Principal Investigator Contract amount: $1,235,108 (Funding source: CDC FY 11 cooperative agreement with DHSS (U58 DP000820-05). Missouri Central Cancer Registry Operations Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/NPCR) 6/30/09 – 6/29/11 Purpose of the contract: Provides ongoing support for the collection of cancer incidence data,


Role: Principal Investigator Contract amount: $2,743,661 (Funding source: CDC FY 09 cooperative agreement with DHSS (U58 DP000820-03&04) Research Contract - Breast Cancer (Jackson-Thompson, J) Washington University (WU) School of Medicine (Schootman, M) 10/1/05 – 6/30/10 Purpose (subcontract with WU for a National Cancer Institute RO1 contract, M. Schootman,

Principal Investigator): Examine neighborhood impact on quality of life for breast cancer survivors. Women with breast cancer are being interviewed at one year post diagnosis. Women without breast cancer living in the same neighborhoods are being interviewed simultaneously. Both groups are being re-interviewed one year after initial interview. Comparisons between groups and over time will be made.

Role: Principal Investigator Contract amount: 10/1/05 – 9/90/08: $409,481; total: $899,159 (NCI primary contract with Washington University: $1,800,000 for 5-year period)

26


Missouri Central Cancer Registry Operations Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/NPCR) 6/30/08 – 6/29/09 Purpose of the contract: Provides ongoing support for the collection of cancer incidence data,


Role: Principal Investigator Contract amount: $1,275,353. (Funding source: CDC FY 08 cooperative agreement with DHSS (U58 DP000820-02). Chart Abstraction Services Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/FAS) 30/9/07 – 29/10/08 Purpose: Initially, a service contract to abstract medical records of children with fetal alcohol

syndrome (FAS). In early 2008, MU assumed responsibility for data submissions to CDC and for management of the database.

Role: Principal Investigator Contract amount: $69,601 Missouri Central Cancer Registry Operations Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/NPCR) 6/30/07 – 6/29/08 Purpose of the contract: Provides ongoing support for the collection of cancer incidence data,


Role: Principal Investigator Contract amount: $1,275,353. (Funding source: CDC FY 08 cooperative agreement with DHSS (U58 DP000820-01). Surveillance Contract (Jackson-Thompson, J) 7/1/06 – 12/30/07 MO Dept. of Health & Senior Services (CDC/NPCR) Purpose of the contract: Provide ongoing support for surveillance activities associated with the state-

mandated Missouri Cancer Registry as well as meet the goals and objectives of CDC’s National Program of Cancer Registries (NPCR).

Role: Principal Investigator Contract amount: $1,564,839. (Funding source: CDC FY 07 cooperative agreement with DHSS (U55/CCU721904-05) included

base contract ($1,230,460) and two amendments ($312,498 and $21,881, respectively). Note: The contract end date of 6/30/07 was modified to reflect a no-cost extension through the end of

the calendar year. Chart Abstraction Services Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/FAS) 1/2/06 – 9/29/07 Purpose: Service contract to abstract medical records of children with fetal alcohol syndrome (FAS). Role: Principal Investigator Contract amount: $87,495 NAACCR Contract (Jackson-Thompson, J) North American Association of Central Cancer Registries 3/1/06 – 12/31/06 Purpose: Determine the utility of using CINA data to describe geographic variations in second

primary breast cancer. Role: Principal Investigator Contract amount: $9,983 Surveillance Contract (Jackson-Thompson, J) MO Dept. of Health & Senior Services (CDC/NPCR) 7/1/05 – 6/30/06 Purpose: Provide ongoing support for surveillance activities associated with the state-mandated

Missouri Cancer Registry as well as meet the goals and objectives of CDC’s National Program of Cancer Registries (NPCR).

27


Role: Principal Investigator Contract amount: $1,453,993 including amendment (Funding source: CDC FY 06 cooperative agreement with DHSS (U55/CCU721904-04) of $1,770,752)

RAF Agreement (unfunded project to beta test data use) Centers for Disease Control and Prevention – Scientific Work Group 9/20/05 – 12/31/07 Purposes of agreement: 1) to examine cancer incidence data from two perspectives (answering

research questions and posing a question about coding); and 2) to beta test procedures for approving release of CDC’s Restricted Access File (RAF) of high quality cancer incidence data to qualified researchers (during the beta test phase, only members of CDC’s Scientific Work Group were eligible to apply).

Role: Principal Investigator Surveillance Contract (Brown, G) MO Dept. of Health & Senior Services (CDC/NPCR) 7/1/02 – 6/30/05 Purpose: Provide ongoing support for surveillance activities associated with the state-mandated

Missouri Cancer Registry and with the Missouri Behavioral Risk Factor Surveillance System (BRFSS) as well as meet the goals and objectives of CDC’s National Program of Cancer Registries (NPCR) and Behavioral Risk Factor Surveillance (BRFS).

Role: Co-Principal Investigator; Missouri State BRFSS Coordinator (until 2004) Contract amount: $3,739,337 including amendments

(Funding sources: CDC cooperative agreements with DHSS (U55/CCU721904-01 through -03) U58/CCU700950 (Jackson-Thompson, J) CDC – Behavioral Risk Factor Surveillance 9/1/99 – 8/30/02 Purpose of cooperative agreement: Collection, analysis, dissemination and utilization of annual

behavioral risk factor prevalence data for the state of Missouri and seven regions within the state. Data were collected through random-digit-dialed telephone interviews with adult (18 years of age or older) non-institutionalized residents of the state; the sampling frame was stratified into seven regions (600 completed interviews/region). The infrastructure provided by this project provided the basis for a variety of special BRFSS-based special surveys targeting specific populations (e.g., inner-city and rural African Americans, older adults, etc.).

Role: Principal Investigator/Project Director; Missouri State BRFSS Coordinator U751/CCU710667-01 to -06 (Jackson-Thompson, J) CDC – National Program of Cancer Registries 10/1/95 – 6/30/02 Purpose of cooperative agreement: Fund the collection, analysis, dissemination and utilization of

annual cancer incidence data in compliance with Missouri statute (192.650-192.657 RSMo) & requirements of the National Program of Cancer Registries (NPCR).

Role: Principal Investigator/Project Director (from 1 May 1996 through 31 July 2002) (CDC Cooperative agreement with DHSS total in May 1996 was $160,000; award ending 30 June

2002 was $1,570,900) U58/CCU700950 -11 to -15 CDC – Behavioral Risk Factor Surveillance 10/1/94 – 9/30/99 Purpose of cooperative agreements (5-year funding cycles): Collection, analysis, dissemination and

utilization of annual behavioral risk factor prevalence data for the state of Missouri. Data were collected through random-digit-dialed telephone interviews with adult (18 years of age or older) non-institutionalized residents of the state; the sampling frame was stratified into seven regions (600 completed interviews/region). The infrastructure provided by this project provided the basis for a

28


variety of special BRFSS-based special surveys targeting specific populations (e.g., inner-city and rural African Americans, older adults, etc.).

Role: Principal Investigator/Project Director; Missouri State BRFSS Coordinator (CDC Cooperative agreement with DHSS – amount of award not available) U58/CCU699859 -6 to -10 10/1/89 – 9/30/94 CDC – Behavioral Risk Factor Surveillance Purpose of cooperative agreements (5-year funding cycles): Collection, analysis, dissemination and

utilization of annual behavioral risk factor prevalence data for the state of Missouri. Data were collected through random-digit-dialed (RDD) telephone interviews with adult (18 years of age or older) non-institutionalized residents of the state; the sampling frame was stratified into seven regions (600 completed interviews/region). The infrastructure provided by this project provided the basis for a variety of special BRFSS-based special surveys targeting specific populations (e.g., inner-city and rural African Americans, older adults, etc.).

Role: Initially, Project Manager, then Principal Investigator/Project Director; Missouri State BRFSS Coordinator.

(CDC Cooperative agreement with DHSS – amount of award not available) FUNDING AUTHORIZED Three proposals prepared at request of Missouri Department of Health & Senior Services (DHSS), ranging from $75,000 to $1.3 million. DHSS put forward the $1.3 proposal to the State Legislature. Governor Nixon signed HB 21 on 28 August 2009; it includes authorization for $1.3 million in Stimulus funds for expansion of the Missouri Cancer Registry (collect additional treatment data; identify missing cases; and develop infrastructure to become a survival registry). At request of DHSS, a New Decision Item (NDI) was prepared in mid-2009 for ongoing support for MCR to continue expanded data collection and become a survival registry. If approved, this would provide $1.9 million annually for ongoing support for MCR. [Note: Due to the State’s budget situation, this proposal has not been put forward.]

jeannette jackson-thompson, ma, msph, phd...curriculum vitae jeannette jackson-thompson, ma, msph,...

Documents