international children’s palliative care network … · this campaign marks the 10th anniversary...

INTERNATIONAL CHILDREN’S PALLIATIVE CARE NETWORK

2014 - 2015ANNUAL REPORT

ICPCN Annual Report 2014 - 2015

Message from our Chief Executive

The past year has been a momentous year for palliative care globally. The unanimous acceptance of the World Health Assembly Resolution 67.19 of 2014 “Strengthening of palliative care as a component of comprehensive care throughout the life course” places an

obligation on governments to integrate palliative care into their health systems for all ages - including for infants, children and young people.

It includes a special call for children calling on governments to collaborate with UNICEF and other relevant partners in the promotion and implementation of palliative care for children. ICPCN was involved in the development and promotion of this Resolution and we now represent children’s palliative care on the WHO Ad Hoc Technical Advisory Group for palliative and long-term care. This is a strong advocacy document, but words are not enough, and we are challenged to support and encourage countries to implement the resolution.

This year also saw the launch of the ICPCN NOW Campaign. This campaign marks the 10th Anniversary of the International Children’s Palliative Care Network and aims to raise the profile of children’s palliative care globally. The campaign hopes to express the urgent need for

governments and health departments to cater to the very particular needs of children with life limiting and life threatening illnesses and will culminate at our 2nd ICPCN Conference to take place in Buenos Aires in May 2016.

Our five year project in Maharashtra State, India and Malawi has now come to an end. It has achieved so much and we have learned many lessons that can be applied in other countries. ICPCN designed the project and worked with Hospice UK to implement the plan. Working with model programmes in each country – Tata Memorial Centre’s Palliative Care Department in Mumbai and the Umodzi programme in Blantyre, the project saw six

new palliative care programmes developed in hospitals in the

two countries; over 1 500 health care workers trained in children’s palliative care ; 2000 new children reached and over 1 200 children receiving opioids for pain. Through effective

advocacy palliative care for children was included

in the national palliative care policy of Malawi; and

in Maharashtra it was not only included in state palliative care policy, but the state provided funding for implementation in rural hospitals and expanded this for adults as well. Research carried out as part of the project shows a marked increase in the quality of lives of children receiving palliative care.

ICPCN is a Network of individuals and organisations. We believe in the strength of collaboration and that together we can bring palliative care to more children. ICPCN was delighted to announce a new partnership with the Fondazione Maruzza in Rome in November 2014. To be known as the Awareness Alliance

Joan MarstonChief Executive

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Joan Marston, Chief Executive of the ICPCN reports on the activities of the network over the past 12 months.

ICPCN Annual Report 2014 - 2015- 2 -

this is a commitment to work together to raise awareness; to support each other’s activities; and to collaborate on specific projects. Our first activity will be around spiritual care for children.

We continue to work closely with the Worldwide Hospice Palliative Care Alliance and the International Association of Hospice and Palliative Care, as well as the four regional hospice palliative care associations, a number of national initiatives and other non-palliative care organisations.

Our small and dedicated staff continues to work effectively and collaboratively with ICPCN’s supportive Board of Trustees and many member volunteers from around the world, to achieve our strategic goals and work towards ICPCN’s vision of a world where every child who needs palliative care will be able to receive it.

The International Children’s Edition of ehospice has been a wonderful channel to highlight the amazing work being carried out by our members

and others providing palliative care for children, often in very challenging situations, and our active social media platforms support these and other heart-warming stories.

ICPCN’s e-Learning , now available in 8 languages, continues to reach those eager to learn more about children’s palliative care in many countries across the world.

This coming year we will build on our research with UNICEF, using the same methodology to identify the global need for children’s palliative care.

We have achieved much by working together with our partners, but we are still only reaching a tiny percentage of those children in need of palliative care. Going forward we need to work smarter, more effectively, and even more collaboratively to reach these most vulnerable children and families.

Joan MarstonChief ExecutiveICPCN


It was a busy year....

The small ICPCN staff continue to work effectively and collaboratively despite the distance between us. The ICPCN staff all work from home offices so regular management meetings are held using Skype.

Board of TrusteesWe were pleased to welcome Doctors Marli Robertson from Canada and Marianne Phillips from Australia to the Board and look forward to their contribution to the continued success of the ICPCN. We are sad to announce that Barbara Gelb will be stepping down from the Board after nine years, first on the Steering Committee and later the Board of Trustees of the ICPCN. Barbara was one of the co-founders of the ICPCN and will be greatly missed. We thank her most sincerely for her valuable contribution to our development.

The Mumbai DeclarationAt the conclusion of the first ICPCN conference that took place in Mumbai, India a declaration, to be known as the ICPCN Mumbai Declaration 2014, was issued and signed by delegates. The declaration calls for all children with life-limiting conditions to have access to appropriate pain and symptom control and to high quality palliative care to meet their particular needs.

The declaration in full reads as follows:

We believe that all children (neonates, children and young people) have the right to the best quality of life. When they have life-limiting conditions they have the right to high quality Palliative care to meet their needs.

We believe that euthanasia is not part of children’s palliative care and is not an alternative to palliative care. It is imperative that we work together to improve access to

children’s palliative care around the world, including ensuring access to appropriate pain and symptom control.We call on all governments to transform children’s lives through the development of children’s palliative care, and in particular we urge the Belgian government to reconsider their recent decision to allow euthanasia of children.This includes:1. Access to children’s palliative care within

the children’s health care system2. Access to appropriate pain and symptom

management (Including medications) for all children

3. Supporting children and their families to be able to live their lives to the best of their ability for as long as possible.

This declaration has been added to the ICPCN website to collect more signatures.

Ambassadors and champions In 2014, Micheline Etkin, a well known model and celebrity of Brazilian and Lebanese decent, now living in the United States was appointed as our very first Global Ambassador and Lucy Watts, a young adult living with Ehlers Danloss

The ICPCN Staff at the Asia Pacific Palliative Care Conference in Taipei. Back row l to r: Barbara Steel, Sue Boucher, Joan Marston (CEO), Busi NkosiFront row l to r: Lorna Sithole, Julia Downing

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syndrome and many other related complications, has been appointed as our first Global Youth Ambassador. Both of these inspiring women have contributed to the raising of our profile and awareness of children’s palliative care through their use of Social Media. They both took part in our first ICPCN Tweetchat. Lucy has recorded a short video for ICPCN to be used at the upcoming World Health Assembly side event on the importance of providing palliative care to adolescents and young adults.

Marquardt Petersen, a talented trumpeter and musician from Germany, and Cateline Khoo, who sang at the launch of the NOW Campaign and premier of the Little Stars documentary in Taipei have become our first global youth champions. Richard Newton, a TV reporter for the South African Broadcasting Commission has also agreed to be a global champion for ICPCN. Richard will be running t h e L o n d o n Marathon to raise funds for ICPCN in April 2015.

Dianne Gray, President of the Elisabeth Kübler-Ross Foundation, has kindly offered to assist with the management of our Ambassadors.

The NOW CampaignThe NOW Campaign was formally launched at the Asia Pacific Palliative Care Conference on 30 April of 2014. It was launched at the showing of the premier of the Little Stars full length feature film/documentary. At this launch, attended by a full house including the staff, Board members and conference delegates, Cateline Khoo (15) sang her own beautiful composition, “Live Now” and dedicated it to the children we serve. On her appointment as an ICPCN champion and the NOW campaign, Cateline writes: “I think that it is wonderful that the NOW campaign has been launched! It is very important for vulnerable

children who are ill to make the most of their lives and to live in the Now. We need to afford them with the right care and to show them that they are loved and that their lives have value. We need them to believe in themselves and to have dreams and to have joy in the face of suffering.”

World Hospice & Palliative Care DayWe are pleased that in recognition of ICPCN’s 10 year anniversary and the NOW Campaign, the World Hospice and Palliative Care Day committee have committed to focus on the palliative care needs of children around the world. The theme for this day will be “Hidden Lives, Hidden Patients”.

ICPCN will be continuing to promote our ‘Hats On for CPC’ campaign

around this time.

Little Stars ProjectICPCN has been working

alongside Mike Hill and Sue Collins from Moonshine Movies on the Little Stars Project. Little Stars is a series of short films and a full length

documentary that tells the unexpected

stories of young people around the world living,

and thriving, with serious illnesses. Against the odds,

these courageous young people are making the most of every moment

thanks to the help and support of their loved ones, working together with passionate children’s palliative care teams. These stories have been captured in 9 countries – the USA, South Africa, India, Australia, Malaysia, Italy, Jordan, the UK and Russia.

The 52 minute documentary film is presented by acclaimed British actor David Suchet. We believe that the transparency, insight and emotional honesty of this documentary will leave a lasting impression on viewers. The first screening of the Little Stars film took place on 29 April at the 2015 Asia Pacific Hospice Conference, at the Taipei International Convention Centre.

ICPCN Annual Report 2014 - 2015 - 5 -

Education and Research

During the year 366 individuals participated in the ICPCN e-learning programme from all around the world. (40.5% Europe, 6.5% Latin America, 10.3% North America, 7.9% Oceania, 15.0% Asia, 18.2% Africa, 1.6% Middle East). Six e-learning courses were available, free of charge, via the ICPCN e-learning website (www.elearnicpcn.org) on different aspects of children’s palliative care. These were:• Introduction to Children’s Palliative Care • Communication and emotional issues • Pain assessment and management • Child development and play • End-of-life care • Grief and bereavement

At the same time, two more elearning courses were being developed, these being:• Management of symptoms other than pain• Introduction to research

The e-learning courses are now available in eight languages - English, French, Russian, Serbian, Spanish, Portuguese, Manderin and Dutch with Hindi soon to be added. As validation of the value of the e-learning programmes they were endorsed by the University of South Wales and ICPCN also partnered with Stitching Pal, the national children’s palliative care foundation in the Netherlands, to produce the e-learning courses in Dutch.

Our face-to-face training materials were adapted for different countries and were translated into

different languages including Namibia, Serbia, and The Czech Republic. Face-to-face training in children’s palliative care was carried out by ICPCN staff in a variety of countries including Rwanda, Ukraine, India, Serbia, the Czech Republic, and Namibia. Alongside these courses, ICPCN was involved in organising and presenting at pre-conference workshops on children’s palliative care at palliative care conferences held in Rome, India and Malaysia.

Other educational activities included: leading on the process of the development of core competencies for education in paediatric palliative care for the European Association of Palliative Care (EAPC) and the Maruzza Foundation; external examining for the Diploma in Children’s Palliative Care run by Mildmay, Uganda; and beginning the process of building on existing programmes to develop an online diploma/ degree in children’s palliative care.

Response from trainees“After this course, I started to make some changes on the ward – to allow authority for families to spend more time with their sick child”. (Participant - Serbia training)

“We now have access to oral morphine and we have attended the training – our children are no longer in pain – the wards are quiet.’ (Participant - Rwanda training)

“I think honestly this course is a turning point in my life, as a professional and as a human being!” (Participant - Sudan training)

“As a social worker I found most interesting the parts which are linked to my profession. I really liked the small group and very practical contents and activities of the course

Education

Geographical regions of E-learning participants

Professor Julia DowningDirector of Education and Research


(body map, video on bad practice follow up by interesting interviews and good practice plus role play at the end) – it was very engaging.” (Participant - Czech Republic training)

“I loved your personal approach and admired your knowledge and experiences. You picked the most useful topics and show us another point of view how to deal with families and difficult situations” (Participant - Czech Republic training)

Face to face training in Africa At the request of the African Palliative Care Association (APCA),ICPCN trained thirty-two (32) health care workers in Namibia on the basic principles of children’s palliative care. These health workers included doctors, nurses, social workers, counsellors and a variety of other categories. To spread the knowledge and skill of children’s palliative care in the country, that basic training was followed by training of twenty-five (25) trainers selected from the original group of 32. The process was completed by adapting the ICPCN Training Materials to suit the Namibian context. A great amount of awareness was raised by this process to the extent that all the trainers came together to form the Namibian Children’s Palliative Care Network that plans to keep children’s palliative care on the national agenda.

We also successfully solicited funds from the Open Society Institute South Africa to train health care workers in Swaziland and Malawi in children’s palliative care. These are public health workers who will be able to offer palliative care in state health hospitals in both countries.

ResearchICPCN was involved in several research projects during the year. A Delphi study to identify priorities for global research into children’s palliative care was finalized and the results disseminated. The results of this have helped to focus ICPCNs research activities including ongoing research into the understanding and utilization of the WHO guidelines on persisting pain in children, the finalization of the African Children’s Palliative Outcome Scale (C-POS) in conjunction with APCA and King’s College London, and a study with Global Partners in

Care to look at the different models of children’s palliative care. With finalization of the study looking at the need for children’s palliative care in Kenya, South Africa and Zimbabwe, undertaken in conjunction with UNICEF, the study has been extended to other countries covering a range of high, middle and low income countries e.g. Argentina, Armenia, China, India, Indonesia, Malaysia, Malawi, Russia, Serbia, Tajikistan and the UK, amongst others. The work to develop the global need is ongoing. ICPCN has partnered with different organisations to do this work including, UNICEF, True Colours Trust, EMMS International, the Russian Children’s Palliative Care Foundation and Open Society Foundation.

DisseminationFifteen papers were published by ICPCN on key aspects of children’s palliative care including: transforming children’s palliative care, perinatal palliative care, assessment of the need for children’s palliative care, pain control, core competencies, considerations for a physical therapeutic environment, the role of play and increasing global access to palliative care. The papers were published in a wide variety of journals including the IJPN, ecancer, BMC Palliative Care, Pain Management, Journal of Palliative Care, EJPC, and Ann Palliat Med. Publications have been in English, Spanish, Serbian and Russian, with the first handbook on children’s palliative care published in Serbian.

10 September 2014 - ICPCN’s Prof Downing was awarded the Robert Tiffany Nursing Lectureship honouring those within cancer nursing who have made a significant contribution to cancer practice, education, research or management.


ICPCN staff are regularly invited to present at key national, regional and international conferences – giving over 35 presentations within the year on a wide variety of topics.

Conferences attended included the World Cancer Congress, the World Cancer Leaders Summit, 2nd congress on paediatric palliative care in Rome, KEHPCA conference, OSF conference, Ohio Children’s Hospital Conference, 4th Biannual International Multidisciplinary Pain Congress, Workshop on outcome measures, 18th International Conference on Cancer Nursing, Hospis Malaysia conference, HPCA conference, International AIDS conference, Singapore

In July 2014, the ICPCN provided training on the basic principles of children’s palliative care to 32 doctors, nurses and psychologists in Namibia.

palliative care conference, 3rd International children’s hospice congress, Hungary, ALCP conference, Bundesverband Kinderhospiz, amongst others.

Following the success of the first ICPCN conference in Mumbai, ICPCN is planning a second conference in Buenos Aires in May 2016. ICPCN will also partner in organising the 2nd International Paediatric Palliative Care Conference in Rome in November 14, 2014 and the 7th International Cardiff Conference on Paediatric Palliative Care due to be held in July 2015.

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Communication & NetworkingSue BoucherDirector of Communication

Communications is central to the growth and development of any non-profit organisation. We work hard to stay connected to our members and supporters through as many conduits as possible including our website, the International Children’s edition of ehospice, regular electronic news bulletins and our social media platforms which include Facebook, Twitter and Instagram.

As a network, ICPCN is committed to assist people from around the world to connect. We make every effort to respond to requests such as the following that allow the transfer of knowledge and the deepening of experience:“I am writing you because I want to create a children’s palliative care team, to give palliative care, at home, to children with oncological disease. Could you, please, put me in contact with any European team that gives palliative care? I would prefer home care teams, but others with experience in children’s palliative care are important too.” MB (Portugal)

Our website forms the hub of information for learning about children’s palliative care related news, research, global trends and a calendar of relevant events. The website is regularly updated and continues to provide a wide range of information including general information on children’s palliative care, links to useful resources, the structure and history of the ICPCN and the work we undertake, where to find training, special projects, and an up to date calendar of events related to the field. Our newly revamped website received close to 40,000 visits from 184 countries during the past year. In this reporting period we received and responded to 45 requests for assistance via our website enabling us to connect people to the resources they needed, to other services they were looking for, or supplying the required information.

We aim to provide a quick and helpful response to all requests as mentioned by these examples

of ‘satisfied customers’: “Thank you for you welcome letter and find the information on the network very beneficial to my work. I have been granted a fund and hope to travel to the USA next year to look at their palliative and hospice care systems to look to improve services within my area. Would the network be able to advise me of contacts within the states that I would be able to link in with?“ LP (UK)

“Also I want to mention that I am so surprised and impressed by ICPCN! I’ve registered already and the warm welcome and next communication - wow :-) Why I am so happy about it is also because of before one week I thought it will be like ‘mission impossible’ to get any info about children’s palliative care and occupational therapy.. but now I know that it’s much better than I could ever have expected.” LJ (Czech Republic)

The International Children’s edition of ehospice, edited by ICPCN, has shown a steady growth in readership over the time period with the fourth highest readership of all 9 editions. We endeavour to cover a wide spectrum of news topics from around the world that would be of interest to people who work in the field, from interviews and articles on research into gaps in paediatric palliative care provision and barriers to access to an article on a group of determined parents who want to eliminate the diagnosis of ‘Incompatible with life’ from the vocabulary of doctors.

ehospice not only offers a news service but provides a platform for the advertising of job opportunities and the promotion of products that would be of interest to the readership. An article promoting a university diploma course in children’s palliative care elicited the following response from the contributor: “Thank you so much for putting this information on e-hospice. Since that moment, we received

Websiteehospice


plus I always enjoy the ehospice articles from around the world.” CV (Ireland)

Our monthly news bulletins keep our members informed of events, news articles, campaigns and organisational news items via their email accounts and give those who do not follow us on social media or ehospice an overview of international news related to children’s palliative care.

ICPCN membership spans over 100 countries and presently includes 320 organisations and 1209 individuals. Mapping where our members are in the world assists us in staying informed of the development of services and enables us to put members from different parts of the globe in touch with one another when this is required. It also shows where there are gaps in provision that need to be addressed.

many demands for enrolment, and also for bursaries!” MFC (Brussels)

We were delighted to welcome Lorna Sithole as a Media & Marketing Officer to our team during this past year and look forward to an increase in our visibility and presence on various social media platforms.

Our social media sites include Facebook, YouTube, Twitter and Instagram. We have seen an encouraging rise in Facebook and Twitter followers over the past year, totalling over 4 000, and have noticed an increase in interaction and comments from those who take an interest in our posts. New and original posts are added to Facebook on a daily basis with many leading back to articles on ehospice or posts on our website. These links have increased clicks through to our website and boosted the readership statistics for ehospice articles. One member wrote, “Thanks again and I love that ICPCN is on Facebook now

Social media

Membership

Bulletins

ICPCN Membership figures map - August 2014.

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AdvocacyBusi Nkosi Director of Advocacy

The ICPCN made a number of presentations on how to advocate for Chidren’s Palliative Care (CPC) at our conference in India, Mumbai to a variety of health workers which led to numerous requests for more information as well as a request to contribute to a chapter on advocacy for the Indian Manual for Children’s Palliative Care. Presentations were also made at the Hospice Palliative Care Assocation of South Africa (HPCA) conference which raised awareness for the need for palliative care for children with Drug Resistant TB and a discussion session about palliative care versus euthanasia was held at this conference.

Over this period, ICPCN published position papers on HIV and AIDS, Euthanasia, and Drug Resistant TB, all of which were posted on our website. The paper on Drug Resistant TB was picked up by University Research Co., LLC which supports National TB programmes in South Africa. This resulted in ICPCN being asked to present on palliative care programmes for children at the Lung Health Conference to be held in Cape Town in December 2015.

In June 2014 the ICPCN became part of the Regional Inter Agency Task Team on Children and AIDS for Southern and Eastern Africa, whose mission is to ensure holistic, quality care for children infected and affected by HIV and AIDS and their carers. Through this forum we ensured that palliative care was included in all the documents that were developed for caring for children affected by HIV and AIDS.

In May 2014 ICPCN successfully advocated for the inclusion of children’s palliative care in the resolution that was passed by the World Health

Assembly to integrate palliative care into main stream of health care systems by member states. As a result ICPCN was made part of the Technical Advisory Group that is assisting the World Health Organization (WHO) in implementing the resolution, looking at sites to pilot palliative care for children.

To ensure that children’s palliative care remains on the WHO agenda, in January of 2015, during the sitting of the WHO Executive Board, ICPCN successfully lobbied countries to support a side event on children’s pallaitive care at the 2015 World Heatlh Assembly.

This side event, organised through the Permanent Missions of Chile, Italy, Spain and Panama, the side event, is to be entitled Implementing WHO’s Resolution on Palliative Care: Ensuring Access for Children and will be held in May 2015,It will be the first ever side event focused on children’s palliative care to be held at the Annual World Health Assembly in Geneva. To be included in the programme are the following renowned speakers:• Dr Marie-Paule Kieney, ADG Health Systems

and Innovation, WHO• Dr Oleg Chestnov, ADG Non Communicable

DIseases and Mental Health, WHO • Joan Marston, Chief Executive of the ICPCN • Anna Garchakova, Director of Belarusian

Children’s Hospice• Silvia Lefebvre, President/Founder of the

Maruzza Foundation in Italy• Dr Rajagopal, Founder and Chairman of

Pallium India• Anne-Sylvie Ramelet, PhD, International

Association for the Study of Pain. The presentations will also included a short video recording from our first Global Youth Ambassador, Lucy Watts, on the importance of palliative care for young adults.

ICPCN has been invited to submit monthly

Position papers

Children with AIDS

WHA Resolution


articles on different children’s palliative care related topics every month to a South African Nursing magazine called “Nursing Update” and we have received positive feedback from the readers of this magazine.

ICPCN has marked each relevant world health day such as the International Childhood Cancer Day, World TB Day, World Rare Disease Day, etc. by developing media releases and sending them out to different media houses. Some of these have resulted in a representative being asked for radio or TV interviews on topics they felt were important in their areas.

During 2015, ICPCN’s Advocacy Director, Busi Nkosi, visited Botswana, Malawi and Swaziland and highlighted the need to include children’s palliative care within their palliative care programmes. The health ministry in Botswana and Swaziland and invited stakeholders embraced this concept and subsequently joined the African Palliative Care Network to keep up to date with what is happening in children’s palliative care in Africa. The provision of face to face training by the ICPCN is planned to promote the development of children’s palliative care in these countries.

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Financial Report

ICPCN has managed grants and funding efficiently and within budget. Income for the year was £196,417 and comprised mainly grants from True Colours Trust, Monument Trust, the Open Society Foundation and the Department for International Development. Expenditure on our various projects amounted to £245,974.

At the financial year end, being 28th February 2015, the free reserves of the charity amounted to £8,630. This is equivalent to just less than 1 months’ expenditure, and we plan to invest staff time in fundraising over the coming year in order

to ensure our sustainability in the longer term.

IncomeFUNDER AMOUNTTCT & Monument Trust £124 223Open Society Foundation £42 641EMMS £12 500DfID (UD UK Govt) £12 794General Fund - unrestricted £4 259TOTAL £196 417


Expenditure: Support CostsEXPENSES AMOUNTAdmin & Managment Fees £6 136Postage, Printing & Stationery £2 579IT Expenses £1 965Telephone Costs £4 642Consultancy Costs £8 583Bank Charges £607Website Development Costs £437Training Costs £1 881Accounting Fees £68Insurance £397Staff Expenses £37Marketing, Advertising, Promotions

£1 094

Development & Printing of Educational Materials

£136

Foreign Exchange Adjustments

£404

Report Dissemination £358Salaries & Wages £116 890Depreciation £1 989TOTAL £148 203

Expenditure: Direct costsEXPENSES AMOUNTGovernance costs £5 746Travel in Africa £11 298International travel £17 949Project Costs £30 174Salaries & Wages £10 195Consultancy Costs £20 152Consultancy Expenses £2 257TOTAL £97 771

SummaryEXPENSES AMOUNTStaff costs £127 085Travel costs £29 247Direct project costs £30 668Office & admin costs £22 236Consultancy £30 992Governance Costs £5 746TOTAL £245 974


We are thankful for the support and direction voluntarily given by our global Board of Trustees who uphold the work and mission of ICPCN wherever they are in the world. They are:

Dr/Prof Maryann Muckaden (Chair) IndiaMs Sabine Kraft (Vice Chair) GermanyMr Richard Carling (Treasurer) United Kingdom Dr Zipporah Ali KenyaMs Sharon Baxter CanadaDr Delia Birtar RomaniaDr/Prof Hanneke Brits South Africa Ms Lizzie Chambers United Kingdom Ms Lynna Chandra Indonesia Dr Stephen Connor USA Dr Anna Garchakova BelarusDr Rut Kiman ArgentinaMrs Fatia Kiyange Uganda Dr Marianne Phillips AustraliaDr Marli Roberson CanadaMrs Joan Marston Chief Executive (ex officio member)

Without the continued loyal support of a small group of funders, the ICPCN would not have achieved all that it has done over the past year. We would like to record our most sincere gratitude to the following funders:

• The True Colours Trust • The Monument Trust• Open Society Foundations • Open Society Initiative of South Africa• Emms International

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Board of Trustees

Our Funders

The ICPCN is administered from within South Africa.Postal Address:

Cluster Box 3050Assagay

3624South Africa

Telephone: +27 (0)82 897 4420Email: [email protected]: www.icpcn.org

ICPCN is a registered charity in England & Wales (No: 1143712)ICPCN Operations is registered in South Africa as a Section 21 (Non Profit) Company (2011/001648/08)

and a Public Benefit Organisation (PBO 930043272)

international children’s palliative care network … · this campaign marks the 10th anniversary...

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