XII International Hemophilia Forum

Intercontinental Phoenicia Hotel, Beirut, Lebanon, October 19 – 22, 2017

Program

This Forum is made possible in cooperation with Biotest AG, Dreieich, Germany

08:15 – 08:45 Registration

Welcome and Opening Session 08:45 – 09:00 WFH in the Middle East Alain Weill, Rana Saifi

09:00 – 09:15 The Hemophilia Situation in Lebanon Solange Sakr El-Hage

09:15 – 09:30 Opening Remarks by His Excellency the Lebanese Minister of Public Health

Mr Ghassan Hasbani

I. Session: Prophylaxis

Chairs: Prof. Wolfgang Schramm, Solange Sakr El-Hage 09:30 – 10:00 Low-Dose Prophylaxis for Children Dr. Marijke van den Berg

10:00 – 10:30 Treatment Options for severe hemophilia A Previously Untreated Patients (PUPs)

Dr. Steve Austin

10:30 – 11:15 Middle East Regional Experience in Low-Dose Prophylaxis Tunisia: Dr. Emna GouiderEgypt: Dr. Magdy El-EkiabyMorocco: Dr. Mohammed El Khorassani

11:15 – 11:30 Discussion / Q & A

11:30 – 12:00 Coffee Break

II. Session: Hemophilia Management and Treatment Products

Chairs: Dr. Magdy El-Ekiaby, Dr. Peter Noon 12:00 – 12:30 Selection of Treatment Products – CFCs and EHL Prof. Manuel Carcao

Friday, 20 October

12:30 –- 12:45 Humanitarian Aid Donations Dr. Assad Haffar 12:45 – 13:00 Discussion / Q & A 13:00 – 14:00 Lunch

III. Session: Enhanced Hemophilia Care Chairs: Prof. Wolfgang Schramm, Dr. Miguel Abboud 14:00 – 14:30 Hemophilia in Old Age Dr. Evelien Mauser-Bunschoten 14:30 – 15:00 Cardiovascular Disease and Hemophilia Dr. Steve Austin 15:00 – 15:15 Discussion / Q & A

15:15 – 15:30 Coffee Break IV. Session: Hemophilia Atrophy and Surgery

Chairs: Dr. Magdy El-Ekiaby, Dr. Adlette Inati

15:30 – 16:00 Orthopedic Surgery and Radio / Chemical Synovectomy Prof. Andreas Kurth

16:00 – 16:15 Physiotherapy Care for Hemophilia – A European view Piet de Kleijn

16:15 – 17:00 Physiotherapy in the Middle East - Lebanon: Cesar Haddad - Egypt: Prof. Adly Sabbour - WFH: Rana Saifi – Update on the WFH Proposed Arab MSK Network

17:00 – 17:15 Discussion / Q & A

V. Session: Inhibitor Development

Chairs: Dr. Emna Gouider, Dr. Claudia Khayyat

08:30 – 09:00 Inhibitor Development and Diagnosis Dr. Daniel Hart

09:00 – 09:30 Treatment of bleedings in patients with inhibitors Dr. Roseline de`Oiron

09:30 – 10:15 The SIPPET study – Today and tomorrow. Dr. Maria Elisa Mancuso

10:15 – 10:30 Discussion / Q & A

10:30-11:00 Coffee Break

VI. Session: Other Bleeding Disorders / Women with Bleeding Disorders

Chairs: Dr. Marijke van den Berg, Dr. Claudia Khayyat

11:00 – 11:30 VWD and Rare Bleeding Disorders Dr. Susan Halimeh

11:30 – 12:00 Women with Bleeding Disorders Dr. Rezan Abdul-Kadir

12:00 – 12:15 Discussion / Q & A

VII. Session: Novel Therapy for Hemophilia Treatment

Chairs: Dr. Bulent Zülfi kar, Dr. Hanadi Samaha

12:15 – 12:45 Gene Therapy Prof. Thierry VandenDriessche

12:45 – 13:00 Discussion / Q & A

13:00 – 14:00 Lunch

VIII. Session: Diagnostics in Hemophilia

Chairs: Dr. Marijke van den Berg, Prof. Ali Taher

14:00 – 14:30 Ultrasound diagnostics in hemophilia a pediatric approach Dr. Michael Sigl-Kraetzig

14:30 – 15:00 A good quality lab as a key factor in hemophilia diagnosis Dr. Günther Kappert

15:00 – 15:15 Discussion / Q & A

Closing Session

15:15 – 15:45 Closing Remarks Alain Weill

Robert LefebvreSolange Saker El-HageProf. Ali Taher

Saturday, 21 October

Cesar HaddadLebanese Association for HemophiliaPhysiotherapy UnitJal el DibLebanon

Dr. Assad HaffarWorld Federation of Hemophilia1425, boul. Rene-Levesque Ouest, bureau 1010Montreal, Quebec H3G 1T7Canada

Dr. Susan HalimehGerinnungszentrum Rhein-RuhrKönigstraße 1347051 DuisburgGermany

Dr. Daniel HartRoyal London Haemophilia CentreHaemophilia Centre OfficesBarts Health NHS trust - The Royal London HospitalWhitechapelLondon E1 1BBUnited Kingdom

Ghassan HasbaniMinistry of Public HealthBir Hassan, Jnah, next to OgeroBeirutLebanon

Dr. Adlette InatiRafik Hariri University Hospital Division of Pediatric Hematology Oncology Bir Hassan Beirut Lebanon

Dr. Günther KappertCRC Coagulation Research Center GmbH Königstraße 1347051 DuisburgGermany

Dr. Claudia KhayatDepartment of Pediatrics Hotel-Dieu de France University Hospital Achrafieh BeyrouthBeirutLebanon

Piet de KleijnFysiotherapeut | Divisie Hersenen, R,V&SUniversitair Medisch Centrum UtrechtC.01.409 | C.01.425 | Postbus 855003508 GA UtrechtNetherlands

Prof. Dr. Andreas KurthAsklepios Klinik BirkenwerderHubertusstraße 12-22 16547 BirkenwerderGermany

Robert LefebvreBiotest AGLandsteinerstraße 563303 DreieichGermany

Dr. Maria Elisa MancusoUniversity of Milan and IRCCS MaggioreHospital, A. Bianchi Bonomi Haemophiliaand Thrombosis CentreVia Pace 920122 MilanItaly

Dr. Evelien Mauser-BunschotenUniversitair Medisch Centrum UtrechtHeidelberglaan 1003584 CX UtrechtNetherlands

Dr. Peter NounSaint George Hospital University Medical CenterP.O. Box: 166 378 BeirutLebanon

Dr. Roseline d`Oiron Centre de Traitement de l’Hémophilie et autres Maladies Hémorragiques Constitutionnelles RaresHôpitaux Universitaires Paris Sud - Hôpital Bicêtre94270 Le Kremlin-Bicêtre CedexFrance

Prof. Dr. Adly SabbourUniversity of Cairo24 Sheab St MohandsienEl GizaEgypt

Rana SaifiWorld Federation of Hemophilia1425, boul. Rene-Levesque Ouest, bureau 1010Montreal, Quebec H3G 1T7Canada

Solange Sakr El-HageLebanese Hemophilia SocietyJal el DibLebanon

Dr. Hanadi SamahaSaint George Hospital University Medical CenterP.O. Box: 166 378 BeirutLebanon

Prof. Dr. Dr. h.c. Wolfgang SchrammRudolf-Marx-Stiftung fur HamostaseologieSchillerstraße 4080336 MunichGermany

Dr. Michael Sigl-KraetzigWeilerstraße 4189143 BlaubeurenGermany

Prof. Dr. Ali TaherAmerican University of Beirut Medical CenterP.O. Box 11-0236Riad El-Solh, Beirut 1107 2020BeirutLebanon

Prof. Dr. Thierry VandenDriesscheVrije Universiteit Brussel (VUB)Faculty of Medicine & PharmacyDept. of Gene Therapy and RegenerativeBuilding D - 3rd FloorLaarbeeklaan 103B-1090 Brussels (Jette)Belgium

Alain WeillWorld Federation of Hemophilia1425, boul. Rene-Levesque Ouest, bureau 1010Montreal, Quebec H3G 1T7Canada

Chairpersons and Speakers

Dr. Miguel AbboudDepartment of Pediatrics and Adolescent MedicineAmerican University of Beirut Medical CenterP.O. Box 11-0236Riad El-Solh, Beirut 1107 2020BeirutLebanon

Dr. Rezan Abdul-KadirRoyal Free HospitalPond Street London, NW3 2QGUnited Kingdom

Dr. Steve AustinSt Georges HospitalDepartment of HaematologySW17 0QT LondonUnited Kingdom

Dr. Marijke van den BergWorld Federation of Hemophilia1425, boul. Rene-Levesque Ouest, bureau 1010Montreal, Quebec H3G 1T7Canada

Prof. Dr. Manuel CarcaoThe Hospital for Sick ChildrenUniversity of Toronto555 University AvenueToronto, OntarioCanada, M5G 1X8

Dr. Magdy El-EkiabyShabrawishi HospitalFenni Square – El Karma Compound, Vill F7Dokki CairoEgypt

Dr. Mohamed El KhorassaniCentre de Traitement de l‘Hémophilie et des Mala-dies HémorragiquesCentre d‘hématologie et d‘oncologie pédiatriqueHôpital des enfants RabatRue Mfadel CherkaouiRabatMaroc

Dr. Emna Gouider BelhadjaliHemophilia Center Aziza Othmana Hospital Tunis Tunisia