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Impacting Children’s Health because of you! a report to donors

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Impacting Children’s Health

because of you!a report to donors

The Janeway Children’s Health and Rehabilitation Centre’s medical team has been providing the best medical care possible to children of Newfoundland

and Labrador (NL) for more than 50 years.

Each year, there are approximately 120,000 patient visits at the Janeway Hospital. In a world

where medical technologies and treatment protocols are ever-changing, your gifts allow

us to stay current, and help introduce new initiatives, all to enhance and keep pace

with the advancements in pediatric care.

The Janeway Children’s Health & Rehabilitation Centre

B E C A U S E O F Y O U !

The Janeway Children’s Hospital Foundation is a registered

charitable organization created to raise funds to meet the fi nancial

needs of the Janeway Children’s Health and Rehabilitation Centre

for capital projects, medical equipment and research and programs

directly related to the health and welfare of NL children, while

promoting awareness of these needs.

Board of Directors

Chair Mr. Lloyd Powell

Directors Mr. William Boyd, QC

Mr. Gordon Brewerton

Mr. Jeremy Charles

Ms. Katherine Chubbs

Mr. Will Eisener

Ms. Bev Evans, CA

Mr. Chris Facey

Mr. Jerry Flaherty

Mr. Shane Kennedy

Mr. Kevin King

Mr. David Norris

Mr. Adam Stanley

Mr. Martin Sullivan

Dr. Eilish Walsh

Mr. Marvin Way

Ex-Of icioSister Sheila O’Dea

Ms. Marilyn Pardy

Ms. Lynn Sparkes

Staff

Executive DirectorLynn Sparkes

Executive AssistantDebbie Murphy

Director of FinanceColleen Menchions

Manager, Corporate DevelopmentJenine Kerrivan

Manager, Telethon & Gift PlanningRuth Squires

Manager, Communications & EventsPhyllis Kinsman

Donor RelationsKaren Stevens

Administrative ClerkSusan Parsons

On behalf of the Janeway Children’s Hospital Foundation, Board of Directors, and Janeway staff, thank you for your commitment to child health care in Newfoundland and Labrador.

From the latest innovations in medical equipment to life-saving research, continued staff education and vital pediatric programs, your donations help provide an exceptional health care environment for our children. Last year, your donations were used to support: $1,140,000 in medical equipment, $150,000 in research and learning, and $200,000 in programming, staff education and other pediatric initiatives.

In our mission to augment government funding for the Janeway Hospital, the Foundation continues to explore initiatives to ensure that these supplementary funds will be available today and well into the future. None of this, however, would be possible without the support of you, our community and corporate donors. Your partnerships continue to enrich the delivery of medical care for our children, going above and beyond what would be accomplished with government funding alone.

Thank you, again, for enabling the Janeway to reach new heights in child health care in our province.

Sincerely,

LLOYD POWELL | ChairJaneway Children’s Hospital Foundation

Age 9 Years Old

Condition Medulloblastoma (Brain Tumour)

Date of Diagnosis March 25, 2014

Treated With 31 Radiation Treatments and 6 Rounds of Chemotherapy

Annual Visits 4 – every three months

Number of Departments Visited 15

Number of Surgeries 4

Number of Admissions 10

for ld

dland

saving

JANEWAY PATIENT AILISH

Thank You

JANEWAY 2013 IMPACT REPORTB E C A U S E O F Y O U !

Equipment

Through donor gifts, the Janeway Foundation continues to provide our medical team

with the necessary equipment to improve the positive outcomes in the health care

of our province’s children. We all know that children are not just small adults. The

importance of specialized treatment is seen daily, ensuring best care, patient safety

and in many cases, shorter recovery times.

The Janeway cares for children from birth to the age of 18 – from the 1 lb. preemie to

the 150 lb. teenager. These children require specialized medical treatment and care

using modern technologies such as the Draeger Babylog VN500 (ventilator) and the

Telepsychiatry Technology Mobile Unit. Thanks to you, such state-of-the-art equipment

are being utilized to save and improve children’s lives now at the Janeway.

The Draeger Babylog ventilator has the newest technology available. First, it supports

breathing by non-invasive oscillation, which means the patient is getting the most

advanced level of support with no tube in their lungs. Next, as with other ventilators, it

breathes for the baby when they are not mature or strong enough to do it themselves.

However, this model has the ability to synchronize with the baby’s breathing to

provide gentle and better ventilation as it coordinates with the breathes the baby

takes. This synchronization helps the baby to build up the strength and ability to

breathe on their own sooner. By getting the baby off the machine sooner, they can

develop fewer complications from being on the machine and ultimately get home

faster. Furthermore, this ventilator delivers four different levels of breathing support

without any interruption in respirations. Consequently, the medical staff doesn’t

have to change machines and therefore there are no periods where the patient is

not receiving support. Having the most advanced equipment available makes a big

difference in the lives of our babies and their families.

How You Make a Difference Specialized Equipment Purchased

Sleeper Chairs

Bladder Scanner

Portable BP Machine with Sat monitor

Infusion Pumps

Electric Cribs

Medical Day Care Bed

PACs Station

Neonatal ventilator - Neonatal ventilator recognizes changing conditions in a baby’s lungs and

adjusts itself accordingly.

JANEWAY 2013 IMPACT REPORTB E C A U S E O F Y O U !

Equipment

Another newly acquired state-of-the-art piece of equipment is the Telepsychiatry

Technology Mobile Unit to be utilized as part of the Outpatient Child/Adolescent

psychiatry program. The unit is a portable, computerized system that allows Janeway

medical staff to connect with patients all over Newfoundland and Labrador. The

Janeway currently implements telehealth technology for emergency and scheduled

assessments, as well as follow-up appointments. Actually, the Outpatient Child/

Adolescent psychiatry program is responsible for more telehealth appointments

than any other part of our mental health and addictions programs, consequently the

demand for a new unit has increased. Therefore, this modern practice can provide cost

and time savings to families throughout NL. To employ this unit, the patient goes to the

site in their community and Janeway staff connect with them. Most recently we used it

to support a young client and her counsellor working through a therapeutic approach.

The counsellor is now prepared to offer this therapy to others and we will continue to

support through telehealth. Thanks to this portable unit our staff can travel through

the province caring for all our children.

How You Make a Difference

Gavin Carroll was born three months early and was monitored 24 hours a day in NICU.

“The staff at the NICU are truly amazing!

The times that we could not be there

with our son, we felt completely

comfortable leaving him as we knew

they would treat him as their own. We

became very close with many of the

staff and they became like a second

family to us when our family couldn’t be

there. The doctors, nurses, respiratory

technicians, etc. at the Janeway NICU are

highly qualifi ed staff with exceptional

skills who can keep their calm even when

the situation is intense. We both feel

that Gavin received the best care at the

Janeway NICU and we are very thankful

for that. “

GAVIN’S DAD AND MOM, SCOTT AND ROBYN

Education

Through the generosity of our donors, the Janeway Foundation invests in

the continued education and training of our health care professionals. There

are always new developments in medicine to help advance clinical practices;

education is essential to ensure our staff have access to the most up-to-date

pediatric medical information and techniques when they need it most. The

Foundation, through the community’s support, provides $100,000 annually

to fund educational opportunities for medical professionals who care for the

province’s pediatric population in areas such as cardiology, high risk obstetrics,

diagnostic imaging, and neonatal intensive care. This past year, Janeway’s NICU

nurses attended the National Neonatal Nurses Conference where they learned about

disease processes, treatments, research and other relevant topics that are pertinent to

everyday clinical practices.

Maintaining clinical competency and knowledge of best practices enables me to

provide the necessary education across the province, act as the provincial consultant

as well as write policies and practice guidelines based on best evidence and current

practice recommendations. Thank you for this learning opportunity.

SUSAN WHITE, BN RN, NEONATAL EDUCATOR

Other Education Bursaries were Awarded in:

Occupational Therapy

Physiotherapy

PICU

Child Development and Learning

Public Health

Lifestyles

Radiology

Audiology

Mental Health and Addiction

B E C A U S E O F Y O U !

s,

U

d about

NICU nurses att ended the National Neonatal

Nurses Conference.

Research

At any given time, the Janeway has 50 active research projects underway that

will impact children who suffer from various childhood illnesses and af lictions.

The Janeway, in af iliation with Memorial University, serves as a primary clinical

resource for vital pediatric medical research. Without funding for ongoing medical

research, advancements in the diagnosis and treatment of illness and injury would

not be possible. In fact, the Janeway Pediatric Research Unit will serve the needs of

children throughout Newfoundland and Labrador well into the future, enhancing and

expanding clinical research through current and future clinical trials, clinical studies,

and health service initiatives. Such critical research has the potential to have long-term

and positive impact on children and their families.

B E C A U S E O F Y O U !

Child Health Programs

When children and their families are dealing with very serious issues that

affect their well-being and mental health, they can spend extended periods

of time at the Janeway. Through donor support, our medical team is able to

provide programs in areas such as lifestyle, mental health, and development

and rehabilitation. Janeway specialized programming helps our young patients

throughout, what could be, the most dif icult and challenging times in their lives.

It is an essential step in preparing children for the future so they can develop to

their full potential.

One such program funded by the Janeway Foundation is music therapy, the clinical

use of music to promote, maintain, and restore mental, physical, emotional and

spiritual health and well-being. Susan LeMessurier Quinn is a music therapist

who is trained to work with young patients to develop a musical and therapeutic

relationship through improvisation, instrumental play, song-writing, vocalization,

movement to music, music listening, and lyric analysis. When she irst met Graysen,

he was experiencing respiratory distress and an elevated heart rate. It quickly

became clear to her that he was very engaged by the lute. For 30 minutes, she

played a steady melody, initially matching Graysen’s heart rate and breath. She

then gradually slowed the tempo to help him relax. His heart rate actually

decreased as the musical tempo decreased! As a result, Graysen did not require

medication to reduce his elevated heart rate. Graysen has come a long way from

PICU and is now an outpatient of the music therapy program.

“Music can be placed in a variety of categories. For some, it’s simply music.

For others, it’s an escape, a place to go aft er a long, hard day. But for my

family, music is so much more!! For my son Graysen, music is his voice –

a voice that I’d been waiting so long to hear. I’m so grateful for Susan and so

glad she was able to unlock this treasure.”

GRAYSEN’S MOM, ALICE

nts

ives.

p to Child Life recreation therapist, Trixie, makes

craft s with Janeway patient, Morgan

Graysen,

kly

he

he

uire

rom

Music therapist, Susan LeMessurier Quinn,

plays fl ute to Janeway patient Graysen

As the only pediatric hospital in Newfoundland and Labrador, the Janeway is an integral part of our province, providing care for all our children. Each day more than 300 seriously ill and injured children and their families walk through the doors of the Janeway expecting the best care possible. We are inspired by their courage and determination to be well and it is this fortitude that drives our Janeway medical team to ensure they receive the care they need and deserve. You have helped to fund the tools necessary to provide this care.Thank you!

because of you!

Janeway Children’s Hospital Foundation 300 Prince Philip Drive St. John’s, NL | A1B 3V6 (709) 777-4640 | (709) 777-4489 JA NE WAY F OU NDATI ON.NF.CAFollow us on JanewayNL and @JanewayNL