identifying and addressing barriers for cald carers · 2016. 4. 8. · program (nccp) • carers...
TRANSCRIPT
7 November 2013
Identifying and addressing barriers for CALD carers
Yve GritschnederPolicy and Development Officer
Contents
1. Overview of Carers NSW 2. Findings from the Carers NSW Survey
20123. How to support CALD carers?
Carers NSW
Carers NSW represents the849,700 people of all ages in NSW, who provide informal care and support for family members or friends with a disability, mental illness, drug and alcohol dependency, chronic condition or who
are frail
What does a carer do?• Personal care‐ showering, dressing, feeding• Collect prescriptions from pharmacies• Administer medications & observe side effects• Liaise with health professionals• Make appointments & follow ups• Arrange or provide transport to appointments• Emotional support • Purchase equipment/aids• Meal preparation, cleaning, shopping, gardening• Phone calls to check in • Interpret health information• Visit the consumer if they are hospitalised• Help family members & friends understand what is going on
• Care co‐ordinator• Advocate• Lifestyle coach• Home helper• System navigator
Number of Carers
In Australia, there are 2.7 million carersincluding 769,800 primary carers
(Australian Bureau of Statistics 2012)
In NSW, there are 849,700 carers including 264,300 primary carers
(Australian Bureau of Statistics 2010)
Diverse carers in NSW There are at least:• 100,200 Young carers,(under 25 years old)
(Australian Bureau of Statistics 2009)
• 186, 934 CALD carers, and • 14, 989 Aboriginal and Torres Strait Islander carers (15+).
(ABS 2011)
Value of care It is estimated that carers provide 74% of all care needs in the
community
Carers have been described by the National Health and Hospital Reform Commission as the “invisible health workforce”
Across Australia, unpaid care for adult family members and friends is worth $40.9 billion per year
In NSW, this equates to $13.5 billion
(Access Economics 2010)(ABS 2003)
2. Carers NSW 2012 Carer Survey• Biennial survey of carers in NSW to inform our advocacy work
• 1,916 respondents in 2012:84% female17% CALD carers 15% speaking a language other than English at home
Survey Findings CALD carers in the workplace
76%
65%68%
54%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
An employer aware of caring role A workplace supporting them inworking and caring role
CALD working carers less likely to have:
non‐CALD
CALD
Findings (cont.)CALD carers and service providers
2.9
3.6
2.9
3
3.1
3.2
3.8
3.2
3.3
3.3
1 2 3 4 5
take carer's views/needs intoaccount
respected care relationship
own needsacknowledged/respected
recognised/supported carer'schoices
recognised carerknowledge/experience
Rating scale out of 5
CALD carers were less likely to agree that the organisation supporting the person they care for
non‐CALD CALD carers
Findings (cont.)
78%
50%
14%
27%
41%
62%
34%
30%
44%
53%
0% 20% 40% 60% 80% 100%
Carers who used GP for own support
Carers who have used psychologists for own support
Carers who used Carer Line for own support
Time constraints prevent carer fromgetting support
Carers not knowing where to go for support
Mental Health and CALD carers
CALD non‐CALD
Findings (cont.)
6%
12%
12%
44%
12%
5%
7%
36%
0% 20% 40% 60% 80% 100%
Carers who don't know where to go for ownmental health needs
Carers who go to psychologist for own mentalhealth needs
Carers who go to counsellor for own mental healthneeds
Carers who go to GP for own mental health needs
Mental Health and CALD carers
CALD non‐CALD
Summary of main findings• Employers are less likely to be aware of caring role of CALD carers and less supportive;
• Service providers are less likely to recognise experience and knowledge of CALD carer, to respect CALD carers caring relationship and to take CALD carer views into account.
• CALD carers less likely to use health professionals for their own mental health needs, rather calling CNSW Carer Line.
• CALD carers don’t know where to go to get mental health support.
Other issues and barriers• Different interpretation or lack of awareness of the term ‘carer’ and available carer supports;
• lack of identification as a carer by professionals, and subsequent lack of referrals due to the perceptions made about the carer's role in their family;
• lesser uptake of Centrelink carer payments, benefits and concessions;
• problems with the cultural appropriateness of assessment processes and eligibility criteria;
• lack of choice between mainstream and culturally‐specific carer services, such as respite, carer counselling, and support groups;
Other issues and barriers• concerns about the cultural appropriateness and competency of services;
• lack of involvement in service planning, implementation and evaluation;
• lack of availability of bilingual and culturally and linguistically diverse staff;
• lack of carer information and resources translated into different languages; and
• issues relating to the quality of interpretation services.Source: Carers Australia, 2013
3. How to support CALD carers?
Carers NSW provides a variety of programs and services for carers and service providers:
• Carer Line • National Carer Counselling Program• Young Carers Program • Older Parent Carer Program • Better Start for Children with Disabilities• The together program• Education and Training
a) CALD carer focus groups• Focus groups with different CALD communities inform our program design and support services, e.g.The together program• A co‐ordinated state‐wide program resourcing a Network of
support groups for carers of people with a disability across NSW.
b) CALD carer representatives• The Carer NSW Carer Representation Program • Aim:
Inform Carers NSW, service providers, government, professionals and the broader community of carers’ needs and views
• 17 CALD carer representatives out of 78 Carer representatives overall (22%)
c) Tailored services for CALD familiesOlder parent carer (OPC) program
• Delivers a flexible, family‐centred Case Management service
• In 2012‐13, 92 OPCs and their families were assisted:– 15.2% Greek, – 6.5% Lebanese, – 5.4% Italian, – 4.3% Columbian OPCs vs 46.7% Australian OPCs
Tailored services for CALD familiesBetter Start for Children with Disability program
• Early intervention initiative for children with eligibledisabilities and funded by the DSS
• Children who are registered can accessup to $12,000 in funding for early intervention services and additional Medicare items.
• In 2012‐13, 14.9% of children who registered for the program were from CALD families.
d) Tailored support for CALD carersCarer Line 1800 242 636• Provides carers and service
providers with referral to services and tailored information and resources to support carers in their caring role.
• Free telephone interpreter services are usually available.
• In 2012‐13, 11.2% of callers to the Carer Line identified as CALD carers.
National Carer Counselling Program (NCCP)• Carers NSW offers a range
of counselling services to carers across the state
• One‐on‐one counselling in LOTE is available on request.
• In 2012‐13, 11.2% CALD carers accessed NCCP services.
Tailored services and support for CALD carers
Young Carer Program• Young Carers (YCs) are children and young people, 25 years or
under, who are in a caring role.
• Young Carer program is:A central point of contact for YCRaising awareness about YCSupporting YC to complete secondary education
• In 2012‐13, 40% of YCs who contacted the YC program identified as CALD (new contacts).
Tailored services for CALD carersCarers NSW Education and Training team
Carers:• Carers NSW provides education for carers and carer support groups
across NSW. • They provide information, knowledge and skills for carers. • The education sessions can be delivered with an interpreter if
needed.
Service Providers:• Education for both government and non‐government organisations
and service providers who work either directly or indirectly with carers.
• To develop the awareness of service providers of carer issues and to build their capacity to provide information and support to carers.
e) Projects targeted at CALD carersMulticultural Carer Awareness Initiative
• Raising awareness of CALD carers through the distribution of the posters to GP practices in the SESLHD area in collaboration with the Eastern Sydney and South Eastern Sydney Medicare Local offices.