ibdr regional workshop: warrington

7/25/2019 IBDR Regional Workshop: Warrington

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IBD Registry. All rights reserved ibdregistry.org.uk


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IBD REGISTRY

REGIONAL WORKSHOP

WARRINGTON

MONDAY 7THDECEMBER 2015


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Meeting Chair

Dr Keith BodgerConsultant Gastroenterologist & Senior Lecturer in

Medicine, Aintree University Hospital


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Meeting objectives

To provide clarity on the national plans for ongoing data

collection for quality improvement in IBD

To review the local benefits of IBD Registry participation

for clinical teams To support the development of local action plans


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These exciting developments come at a

time when many changes in therapy

are happening, and gives the UK theability to measure how this impacts on

real-life treatment for our patients, anddrive forward meaningful improvement

in patient care.

Dr Barney Hawthorne, IBD Section Chair


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Agenda

The changing IBD landscape including the future of IBD Audit and

Quality ImprovementDr Fraser Cummings, Consultant Gastroenterologist, University Hospital, Southampton

Implications and benefits of the IBD Registry what recent data can

tell us

Dr Keith Bodger, Consultant Gastroenterologist & Senior Lecturer in Medicine, AintreeUniversity Hospital

Local priorities and facilitating Registry participationGroup work facilitated by Dovetail

Tea break

Supporting a local action planGroup work facilitated by Dovetail

Feedback, discussion and actionDr Keith Bodger

6.00pm Close of meeting


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The Changing IBD Landscape

Dr Fraser CummingsConsultant Gastroenterologist

University Hospital, Southampton


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downloaded from www.rcplondon.ac.uk/ibd


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JOINING THE IBD REGISTRY


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Choose your EPR IBD Patient Management System

Interfaces with hospital systems (PAS, document store, couldinclude pathology, prescribing etc)

Registry extract built in

Installation and licensing costs

Registry Web Tool

Same data structure as PMS + Registry extract

Does not interface with hospital systems (eg. PAS)

At present, free to use and minimal local IT

Other systems (Emis, Rotherham/Ferring) extract processeither built in or the Registry file templates can be used tocreate one.


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Data entry strategies

Enter a few patients in clinic each week

Choose a sub-set of patients:

biologics?

new patients only?

Admin backfill ahead of clinics

Denominator population demographicsand diagnosis


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Registry PMS local benefits

Better access to clinical data for managing patients

Patient summary

Longitudinal data

PMS supports:

Point of care data entry

flow of clinical contact

monitoring of blood tests and investigations

multi-disciplinary team working

IBD helpline calls

Patient summary can be printed at end of consultation

GP letters part template data, part free text


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Web Tool local benefits

Data can be entered in the course of clinical contact


Web Tool supports: flow of clinical contact

recording of any patient contacts

monitoring blood tests, cancer surveillance etc

Can print summary for patient and for hospital notes

at end of consultation

GP letters fixed template exported as pdf


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IBD Registry and IBD Audit

Any future funding from HQIP will be to embedquality improvement processes and support intothe Registry

Data collection will transfer to the Registry

The RCP IBD Programme team and Registry willagree the focus of future audit topics.

Registry datasets will be adapted as required.

The Registry Web Tool will enable all sites in theUK to take part.


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www.ibdregistry.org.uk


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The Web Tool Early Experience

Maximising the Value of Registry

DataKeith Bodger

Aintree University Hospital


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Web Tool Local Benefits Data can be entered in the course of a clinical

contact, or as a back room administrative process


- point-of-care decisions (individual)

- service administration (monitoring, audit, research)

Can print a summaryfor patient and for hospitalnotes at end of consultation

GP letter fixed template exported as pdf


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Data Entry Strategies

Enter a few patients in clinic each week

Choose a sub-set of patients:

Biologics? [Linked to UK IBD Audit?]

New patients? [Future audit topic?]

Admin. to backfill data ahead of clinics

Denominator population demographicsand diagnosis (minimum dataset)


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RegistryMinimumRegistry

Dataset

HESInpatient and

Daycase

Coding

OPDOutpatient

Activity

Dataset

A&EA&E

Attendance

Dataset

Linkages to Routine NHS Data


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" Current diagnosis (UC, CD or IBD-U)

" Date of diagnosis

" Consent status (from May 2016)

The minimum dataset Hospital Episode Statistics" Inpatient & Daycase Episodes

" Outpatient attendance

" Accident & Emergency attendance


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Coding-based versus Registeredlocal populations

IBD-specific activity reports for your unit

Opportunity to shape the content of local reports

Simple metrics using routine data driven by the needs ofthe front line


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Local priorities and

facilitating IBD Registry

participation

Caroline Lindholm & Claire Munro

Dovetail


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1.

What is your Vision for your IBD

service over the next three years?

Each person write on one Post-It note


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2.

The main difference being part of

the IBD Registry could make to

myIBD service is!

Each person write just one difference on one Post-It note


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3.

What are the perceived barriers to:

- IBD Registry participation

- Successful transition?


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IBD REGISTRY

REGIONAL WORKSHOP

tea break


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Supporting a local action plan

Caroline Lindholm, Fraser Cummings &

Claire Munro

Dovetail


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Benefits of participating in the IBDR Registry

Helps you provide better care for your patients

Helps you comply with IBD Standards

Benchmarking of service performance and activity

against national levels can drive quality and outcomes,making it easier to monitor and improve quality

Data will improve understanding of local outcomes

The IBD Registry can provide opportunities to participate

in IBR research


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Benefits of the IBDR Registry PMS

Real-time data capture

Clinical summary provides all key characteristics of

patients disease:

Saving time looking through notes

Reducing potential for error

Potential for greater efficiency in clinics

Improved safety through biologics monitoring

Access to better information to facilitate the efficiency of

the MDT


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Supports best practice, person-centred clinical care

which can leads to higher quality clinical care

Provides access to an overview of your patients

Easy way to capture and demonstrate the impact thatyour IBD service makes on patient care and outcomes

Safe delivery and monitoring of high-risk treatments

Improved data quality facilitates risk management and

avoidance


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Better continuity of care, leading to increased patient

confidence in IBD service

Better access to information supports self-management,

leading to improved symptom control Supports phone and virtual clinics, meaning shorter

waiting times for patients

Provides better information: printable summary of the

consultation and care plan


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Benefits of the IBDR Registry Webtool

Real-time data capture

Improved safety through monitoring of blood tests, etc.

Easy way to capture and demonstrate the impact that your

IBD service makes on patient care and outcomes

Provides a printable summary for patients and for notes

Has a GP letters facility saving valulable admin time

Better continuity of care, leading to increased patient

confidence in IBD service

Provides better information for patients: printable summary of

the consultation and care plan

Safe delivery and monitoring of high-risk treatments


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ACTION PLAN

What do I need to do

Before Christmas

By 1stMarch


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Feedback and discussion

Dr Keith Bodger


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IBD Regional workshops also being held at:

LONDON Friday 15th JanuaryChair: Dr Stuart Bloom

CARDIFF Thursday 21st JanuaryChair: Dr Barney Hawthorne

TAUNTON Friday 22nd JanuaryChair: Dr Ian Shaw

DARLINGTON Tuesday 26th JanuaryChair: Dr John Mansfield

BIRMINGHAM Friday 5th FebruaryChair: Prof Tariq Iqbal

GLASGOW Spring 2016Chair: Dr Ian Arnott


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Your engagement andparticipation are needed right

now to ensure that the benefits

of the Registry are fully

realised.

Dr Ian Forgacs

President, BSG


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Special thanks to

Janssen, Shire,Takeda and Tillotts


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www.ibdregistry.org.uk

ibdr regional workshop: warrington

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